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Patience, Listening and Communicating with Aphasia Patients
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Mine wasn't caused by stroke but I thought there were only few people with this problem. I've had it for 38 years and recieved no help from anywhere so I buried myself away and lived alone all this time. I felt so embarrassed whenever I was asked a question because I always got stuck. It's nice to know I'm actually human.
Aww bless you, you should never be embarrassed or worry about finding the right help, it's not your fault at all. God bless you
My heart broke a little while I read your comment. Nobody should ever have to feel that alone and unsupported. I hope that you find the connection, respect and support that you deserve. Yes, you are human.
Theres no need to feel ashamed Toni. We all struggle with something. The best thing to do is to get the intervention needed and be with those who are understanding.
Same
I hope you are doing well now
Very well video. As myself is aphasic, It's hard, but manage to get through. So happy for these people.
The Artworks of Johnny B Perkins Jr. Yes, I know this too well! #aphaisia #strokesurvivor #actress
@@rysss6580 jdmddmd
I started to cry while I was watching this video, my husband has semantic aphasia and early onset dementia and I have been feeling so overwhelmed and alone. I truly think this website will help me be more patient with him and give me the tools to help him communicate. Thank you from the bottom of my heart!
For me it feels like: My thoughts are written words on paper, but when it's time to speak my thoughts look blurry, so I lose track of what I'm saying
That's fascinating. It's hard for me to comprehend an inability to say words, it's good to have people who have actually experienced aphasia be able to explain it in a way I can understand
@@abBensch it’s not in a way you can understand “well it is” but it’s for real like you know what your about to say then you just can’t find the words and for me it’s pretty mild and I can still type pretty well but it is very frustrating when people are looking at you like your dumb cause you can’t get you words together or sometimes I just give up and say I’m bad at speaking sorry and shut my ass up
I am a Caregiver for my 93 father after his stroke. It was 12 1/2 years ago. ( Wernicke Aphasia)
I can’t stress enough find a support group and get them into Speech therapy. (He went for 9 yrs)
Always have Closed caption on the TV. He might not be able to read but some words might come through.
We do have to drive an hour away for the support group (once a month) but has SAVED me and my dad. Good luck to all of you.
Susan from Indiana 😘
These are GREAT suggestions for other caregivers! Support groups can make a world of difference and many families don't know about them. I love that you turn on Closed caption to help make movies/shows easier for your father to follow.
The doctor in the video seems like such a nice guy and you can tell he has worked with aphasia patients for a long time
Coffee, snacks, truth and support. An awesome motto for everyone in my opinion
I’ve come here since Bruce Willis’ diagnosis was made public. I just wanted to learn more. I really hope some good comes from this, like more awareness for this illness, maybe more funding and research money to help the poor people inflicted & future sufferers too. God bless them all xXx
same here
Same.
Same
Same
Thank You 🙏🏽 All ☀️🤍
I was diagnosed with IIH & things have been different for me. But I have faith that everything will be alright. God bless all of us 🙂
I love y’all ❤️
All my life i thought i had a poor vocabulary but eventually found out i suffer from aphasia and it affected my career
I imagine like myself, many are just now learning about this disease and the amazing strength it takes to master it. I cannot imagine the frustration and patience it often requires. These patients are inspiration for sure. Aphasia Research will definitely be one of my donating causes now.
I had Aphasia for 18 months now. It takes patience for yourself and care givvers. This reply took 10 monutes to type. Thank God for spell check.
Have, not had.
"Make sure they are talking to you". Great advice in this video. Useful tips for families & friends of people with aphasia to consider the most productive ways to communicate.
Great video learned a lot. Seems that learning to communicate with Aphasia sufferers can make a person universally better at communication.
thank you National Aphasia Association for helping me understand and care for my husband better Priceless
Now Bruce Willis has publicly announced he has Aphasia. God Bless him and God Bless all Aphasia patients and prayers for good health and tolerance with everything in their lives.🙏🏼
A wonderful video. Has given me new hope to find support and knowledge on the subject. Thanks for sharing
I discovered this video just recently and now I am 24. Seeing these people speak is like watching myself in mirror. The problem is I had this problem since I was a child not due an accident. I need to talk to a doctor to confirm my case.
Edit: 9:39 Omg this part is so relatable I do this when I am talking to people who are impatient.
I've always had the problem!
Ohh my gosh I am 23😭. I’ve always felt so dumb. The words are in my mind but I can never fully articulate it. Plus I start getting all anxious in social settings so it gets worse.
I spend my time with a young man with this problem as i work in a facility for long term care. I just found out that afasia is what he has. He is a darling!
My husband was diagnosed with Primary Progressive Aphasia one week ago. We knew something was different with his ability to speak and started to be forgetful in the past year or so. Now that we know what is happening, it is somewhat overwhelming, but understand there is support.
That is very rough. I wish the best for you and your husband. ❤️
@@cliquecommunity4655 Thank you
I've suffered from this from a migraine. It's lasts about 20 minutes and is VERY frustrating. I couldn't imagine having this for the remainder of your life! Omg my heart goes out for them. This has to really lower your quality of life. Maaaan.
That’s the same with me or it could be that I’m just mentally slow 💀💀
Wow inspirational video! I to suffer for aphasia, it’s very difficult to communicate. I sometimes use words as antonyms and say the opposite words, various times I try to say sentences and some words don’t add up to on want I want to say. I suffered through fungal meningitis and major brain injuries that caused me to become paralyzed. Now I’m running strong without a skip to the beat. ♥️ I pray that we all stay well and strong. Only The Strong Survive. 🤙🏼 #jetlife #aphasiaawarness #ingodwetrust
You said Pray. It is the best think you can do. My husband has the same illness. I will pray for you too. Keep the Faith please., The Lord is Merciful with us. ♥️♥️♥️⛪️❤️🇺🇸👌👋🙏👏👋👌❤️❤️⛪️⛪️👌👌👌👋♥️🇺🇸♥️
Thanks seem small gratitude for this graciously invaluable confirmation of the effects of aphasia - often heartbreaking for patients, families and friends working, sometimes disappointingly struggling, with the frustration of this condition. The confirmation and caring description of such improvements to communication are so gratefully valuable to all working toward improvement and recovery.
I have aphasia and this resonates with me. The frustration and anger are true. I get angry when hubby talks over me. I often tell people who are talking to me that I need to see their lips even though I am not deaf. I hate having to say words close to what I want to say until I get to that word. In my mind my symptoms are getting worse.
sGreat video learned a lot. Seems that learning to communicate with Aphasia sufferers can make a person universally better at communication.
you are great and his drawing inspiration for eveyone
Today I think I realised I may have it, after some research. A brain surgery that happened a few years ago in the temple lobe, due to epilepsy which bugged up my speech while have a full seizure or a partial seizure. It was rather close to the part where I speak and a bit to the short term memory as well. At times I can’t remember words to certain things when trying to talk or explain but I can describe them, or get words very similar in pronunciation to them (but will mean complete different to what I’m looking for) so explaining the figure and the symbols helps. It’s is rather frustrating with those who barely know you and don’t know the circumstances of why you can’t think of the word, due to the operation. But thank you for this, it explains a lot that I didn’t know about it and will try and see a doctor or whoever helps with this stuff.
Does this happen when you think, I know this is stupid question but I'm intrigued? Do u forget words when thinking? This sounds horrible. I hope you get sorted soon, God bless yoy
How are you doing now?
This definitely resonates because I had a stroke in 2022. I'm still working on my speech, but I just don't want to talk to people, as much....
Understood, but communication practice is important too! Are you involved in a communication group or aphasia center. There are so many available now. Let us know if you need help finding something in your area. answers@aphasia.org
I don’t have any personal experience with aphasia and only studied it in psychology. Watching this video is the first time I’ve heard people who have aphasia speak, and it’s not at all what I thought it would sound like. If I happened to have a short conversation with most of these people, I don’t think I’d have even noticed
Yeah. In many cases, aphasia is really subtle.
This is a fantastic piece introducing aphasia. I'll be using it to explain the work I want to do when I am done with graduate school.
I've had several strokes. Once aphasia. Once could only crawl and arm stumbling once couldn't u derstand English. My aphasia started about 14 months ago. Now I can write so well you problem . In the beginning I I just couldn't get a sensible thought out. Then it got later to where I could take maybe 3 minutes to think of the word. Then down to 2 minutes. Have minute. And completely forget about me trying to pencil write . Then den to maybe a maybe azazzz15 seconds, never answer the phone and couldn't used a phone. Now I'm just almost good again. Kept taking fish oil and coconut all the time.
Congratulations on your progress! Stay strong and I wish you even more improvement day by day ♥️♥️♥️♥️♥️
Appreciate this as I begin to care for a relative with aphasia
I am totally here for Bruce willis.... God bless him.
Crying Oct 2021, working words..alone. Thank you videos..🥺💔👀🤯
English is my third language and recently I seem to have APHASIA when trying to speak it. I have difficulties constructing meaningful sentences when speaking, and have problem trying to depend on my vocabulary. However, I have no problem whatsoever when it comes to speaking my mother tongue and two other native languages from my country.
That's a language learning problem. not aphasia. keep trying.
Thank you so much for sharing!
Mine usually begins after my pre-migraine auras. I’m lucky, I don’t get the headache. Spell lasts up to 30 minutes.
That sounds like me
I got the headache
Now 4 years later having frequently had ct scans
I say, "You speak quickly, but I listen slowly".
The older we get, the more frailties come to the surface and more aware we are of our deficiencies. These neurological issues are the worse because they inhibit your ability to deal and manage your shortcomings and possibly catch them early on in its development. I've started to develop these symptoms myself and I'm only 47 years old but my ability to fluidly communicate with people either through verbal or text has seem to hit a barrier like the person said in this video.
God bless stay safe✝️🙏✝️
I didn't know there were groups to support this. I have temporal lobe epilepsy that comes along with aphasia, it's a seizure so the aphasia comes and goes along with the seizure but it seems to be sticking around longer and longer.
AMAZING VERY WELL VIDEO DAPHNE COTTON ALWAYS 💜 APHASIA, ❤️🖤💚🤎 FAMILY,
I had 2 brain bleeds then a brain haemorrhage and stroke stroke over 3 days on hol it n Spain I was put on life support until the doctors got to me from other parts of Spain I was lucky I was in hos when I took the stroke and got treated immediately my husband was with me when it happened I had 2 coils put in to keep them open iv been so lucky iv weakness on right side and slight probs with understanding spoken and written word but it’s got a lot better and I’m walking as well I get very tired quickly iv been so lucky
It was 5. Years ago now
Love this! One thing is that it’s hard for me to find a video about Anomic Aphasia. I don’t see many videos on how to help people with Mild Aphasia. Especially me as a teen, it’s different then if I was an adult. So it would be really helpful if you could do a video on Mild Anomic Aphasia in Teens. And how to help people with Mild Anomic Aphasia, that would be really helpful!
I think I have this. It started 6 months ago, happened very randomly then once a week then once a day now numerous times a day. I feel like I was loosing myself. I've had 4 brain surgeries for a neurologically disease. Its happening so much so often. I feel like I am slipping away. On top of a TBI and PTSD
ClusterHeadSurvivor seek seeing a Neurologist NOW
I have this now but do not know what has caused it
@@sherindumond4290some people who suffered covid are having some type of aphasia now
I have it when I caught brain damage from an accident thanks for understanding
POWERFUL 😚AMAZING BEAUTIFUL! THANKS YOU ⚘.DAPHNE COTTON 💜.❤🖤💚.● BROWN FAMILY. APHASIA DAPHNE.
Great!
My mom had a stroke so I thought last week the doctors says it’s nothing medically wrong or structural idk they say it could’ve came from migraines no signs of stroke my mom can’t move her right side or speak she can hear and understand but nothing comes but member it’s crazy asl for me my 18 bday less than a month and I gotta deal with this she can spell out words tho so I pray she gets good🤦🏾♂️
My daughter was grazed in the head by two separate bullets and is now suffering from aphasia and epilepsy
I’ve had 12 concussions where I was knocked unconscious. The first one happened when I was just 10 months old by falling down a flight of stairs and hitting my head off a concrete wall. The next one came at 7 years old when I got hit by a car and cracked my head off the curbing. Unknown to me, the damage to my brain began showing up in my school work in 2nd grade and failing grades. Little did I know Aphasia was the cause till I tried to write my autobiography. I’m 81 now and still have trouble with words and spelling them. If I’m looking for a word I know but can’t remember it till I stop to think and finally come up with it. It’s not that I can’t remember it, it’s that I don’t remember it. I know it’s there, I just don’t know how to remember it. If I’m talking to someone and the word I wanted to use isn’t there, I’m forced to use a different word. So life keeps moving on with missing words.
Thank you for sharing your story, Robert.
Minimize or eliminate background noise (TV, radio, MUSIC!!, other people).
I have so much trouble with communication and it is hard to talk with anyone I sit and cry because of my language barrior
Sherri Tucker it will get better🌼
I can't speak for a year my tongue is numb and go thru many doctors,tests and nothing helps me I feel so down that I can't speak so many times I am crying and get anxiety.Sherri are you ok now?
ulaewa12 see a Neurologist
How are you doing now compared to when you first posted this comment?
Can someone tell me what app the young man was using? TIA
I could speak in Native language, but when i try to speak in English language, i keep adding uneccesary words, such as " You are is" like i can't control the words that's coming out from my mouth, and i'm only 14. I don't want to lose the abiltiy to speech with english language, even tho i still can speak Indonesian language perfectly, i still don't want to lose the ability to speak english. Also it's easier for me to type rather than speaking or speeching. I hope this will be cured soon ( I haven't checked the doctor yet, pls pray for me so i will not be diagnosed with Aphasia)
I dont think you have aphasia my friend, just need to practice your english more! Practice makes perfect.
Have u got checked for vitamine B12 deficiency.
@@pappydede4682 I checked long time ago and you Were correct I do have b12 defeciency
@@chips.3927 Bruhhh same, I have trouble learning new things recently and I can't control the words that comes out of my mouth it's like I'm having dimentia or somethin'
@@chips.3927 I'm 14 btw and im using my grandma's account
Also, badgering someone for imperfect communication reminds me of the monster study
hello and thank, i am Iranian speech therapist who work with aphasia patients.i need extra video
Do these people ever regain full language ?
I had a small hole in my heart that never closed. Maybe 1 of 4 people may have it I was told once. They fixed mine, no pain. Just sit and let them fix. A nurse reminded me drink a lot of water. I know a lady in the hospital just wouldn't drink much water. She had a stroke the next morning.
Arms legs couldn't move anything. I happened to be visiting and found she could a finger. She could respond to one yes two know. The family jumped up and were immediately began to finger respond with her. No nurse had checked her that carefully. I told my family befor I began to have my multiple strokes if something happen to me I go down every finger and toe to see of I can move anything.
Amfetamine. I had never diagnosed stroke And amfetamine cured that plank also helps talking.
#BruceWillis brought me here. Prayers for all.
Now besides me from having a small hole in my heart that caused a little giggle in the blood flow and caused all my strokes the suspected I had some kind of blood clotting disorder that gave me a stroke even after I had the hole in my heart fixed. So I hava blood thinner. Hope this is useful for someone else too,
good video
I thought we were supposed to resist the urge to finish sentences or offer words. Is it okay to offer words like "circumlocution"? When the doctor said it, it didn't sound so bad.
My question
Are they able to type or write exactly what they mean?
I know the rhetoric VERBALLY is rhe problem in conveyed message
Is this able to be bypassed by using different channels to convey words?
Can Lupus or any autoimmune disorder (I have over 23) cause this? I’ve been the same for many years and have noticed that with time it only gets worse. I comprehend quite well, considering but cannot keep a conversation because I cannot get the words out no matter how much I may remember the topic.
I need someone to please get back to me ASAP. This is going on with my GI- Long story. I almost died twice last month. I can’t eat or drink because the food and liquids don’t really move like it’s supposed to because my GI system mobility to help things move along isn’t really working. I was diagnosed with “Mixed Connective Disorder, Neuropathy, Myopathy, and Livedo Reticularis to name a few and it is attacking my central nervous system along with the rest of my organs. My Dr is not taking this seriously- No one is. I can literally feel all my organs slowly dying. Everything I have read recommends I head to the ER, and I have! Way more times than I can count. I either showed up unable to move (anything but my eyes) and speak. It’s been rare when I can speak a few words and yet, I was always sent home with “nothing is wrong.” I’ve also got sent home with a “drug addict” notes on my file and with everything going on right now… who will speak for me here on earth when they are kicking out anyone in hospitals who isn’t “the patient.” I appreciate whatever help, advice anyone is willing to share. Thank you for the time to read this. God bless in, Jesus name. 🤗❤️🙏🏽
i have brocas aphasia.
I have Aphasia. I'm living a living hell.
At first at hearing, my family cared now they have no idea.
They are so naive. Partly my own doing . I stopped attending appointments. BIG mistake 😔
I just feel like people professional or either wise stopped caring.
Is it just me or is it wrong to expect me to pick up the ball? Please help me , I'm desperate.
Very sadly it’s often part of a dementia situation as well… so that complicates things tremendously.
Several people have asked what the app is that the young man is using. No answers so far. Can someone answer that?
Does anyone else feel like the doctor has aphasia??
I’m only about half way through , so maybe that is revealed later. But that would be awesome.
So gentlemen said it works here(brain) it doesn't work here (mouth) what if it's the opposite? If you don't seem to know the words or forgot every word you knew but only say random words clearly and then think if they're real words because you're not sure? Is it the same thing?
The opposite would be apraxia of speech
What can i do for him ?
I thought l was the only one on earth with this disability
zitler the bandit will that's so silly do you know how many people are on this Earth
Not silly but how they have felt is so very real. Find an Aphasia support group. Best of luck to you. 😘
@@bettyshabazz4092 it's not silly if someone thinks that, this is not common it's quite rare. You shouldn't put people down like that
I was born with no aphasia
But i picked up aphasia
At 6 months old due to
A anesthesia doctor walking
Out of my surgery because
He never came back during
Surgery so his giving oxygen
Was forgotten during my surgery
So he fried my brain
Can hearing loss in one’s 40s cause this?
They could perhaps learn sign language to boost their communication?
Is it the doctor with the speech problems??
What is the app called?
Sheldon? Wow.
Wow this sounds like what I am going through. It got worse after my covid shot
Came chemo cause this? Diet a meat diet cause this?
Probably not stacking questions
Could getting punched in the head while boxing cause some aphasia?
I would imagin
Yes, traumatic brain injury can cause it too.
My brother had a massive stroke 3 years ago, has Aphasia, right side of his body is paralyzed! 😢
How is your brother now? Better?
@@anuabraham6372 , my brother is the same. He lives in an Assisted Living. 3 meals a day, 2 showers a week. They have activities at Assisted Living. My husband & I visit him, take him out occasionally….that’s all he has.
@@lindaguida4074was he able to gain any speech back?
@@aaronlewis2501 , Just a few words, says yes, no, ok,
Bruce willis brought me here.
a had a stroke on 6/7/24. Aphasia and I feel I stupid
Having a stroke and aphasia is so challenging but you are not alone. Aphasia doesn't impact your intellect or your memory... it's an access problem...getting to the language you need to communicate your thoughts and ideas. Please consider joining an aphasia center, or groups that are either in person or virtual. Let us know if we can help find you somewhere. answers@aphasia.org
I know it has only been a few weeks but I hope you are feeling more confident. You aren't stupid. You are already texting/typing and that is awesome! How are you doing now?
Childhood trauma
Benzodiazepines cause aphasia.
This doctor is using um on purpose 🤯
I'm 68 and move slow. Sorry.
R.I.P. BRUCE WILLIS
So when did he die?
I'm one of these people known for having stroke related aphasia. Not, "aphasia sufferers" but, Aphasiac Heroes. I'm listening, joking around, playing, hiking... and, speaking (without these doubts) with my daughters, with my girlfriend, with my employees and with perfectly strangers (they think I'm a foreigner).
Namenda helps.memantine hcl.the only words I knew was yes and no 4 months ago