My Scary Night: A Reminder That I Have MS!
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- čas přidán 3. 07. 2024
- JohnnyMS shares a stark reminder of living with Multiple Sclerosis (MS). Despite not having a relapse in over two years and maintaining some mobility around his house, this particular night challenged his normal routines.
00:00 A Frightening Night: The Unexpected MS Challenge
02:05 Reflections on Living with MS: Adapting to Uncertainty
02:43 Recovery and Gratitude: Navigating the Next Days
03:51 Looking Forward: Appreciating Mobility and Hope
Multiple Sclerosis Medications:
Lemtrada
Tecfidera
Copaxone
Rebif
Biotin
Ampyra
Acyclovir
#multiplesclerosis #johnnyms
I always went to bed with the sheets.Not covering my legs so that my legs would not overheat in the middle of the night. The sit down pee is the best thing ever.
Getting my legs/body too warm was my hunch that caused the balance issues. I’ve tried to stay a cool temp now. Hoping the balance issues stay away!