Living with Williams Syndrome

Sdílet
Vložit
  • čas přidán 1. 07. 2024
  • 17-year-old, George Rautenbach, who has Williams syndrome proves to us in this interview that he too can excel and enjoy life just like you and me.

Komentáře • 70

  • @HenrikRagnarsson
    @HenrikRagnarsson Před 9 lety +166

    It really makes me ill to see them talk about him in third person. HE'S SITTING THERE! TALK TO HIM!

    • @stap0510
      @stap0510 Před 9 lety +4

      *****
      Absolutely agree with you.
      It was very rude.

    • @thelegendaryblackbeastofaa115
      @thelegendaryblackbeastofaa115 Před 9 lety +10

      ***** Dude...he *can't* partake in the conversation the way most people can. Odds are he's not able to follow much of it. At least they're speaking kindly about him.

    • @aussiefurbymogwaifan6621
      @aussiefurbymogwaifan6621 Před 7 lety +2

      I agree! He can talk let him do most of the talking! I'm autistic and I have a IG page and just recently a we heart it page & a snapchat that I manage myself!

    • @aussiefurbymogwaifan6621
      @aussiefurbymogwaifan6621 Před 7 lety

      As well as a learning disability it's called HIGH FUNCTIONING!

    • @MiaBright
      @MiaBright Před 7 lety +8

      This interview is just as much about what it's like for families living with a family member who has Williams as it is about an individual living with Williams. I think she did a good job of asking questions of all of them, including George.

  • @OrbEmber
    @OrbEmber Před 7 lety +8

    Good on ya Derek for saying that it is an actual blessing rather than a curse, I too have this attitude toward my 3yo williams boy. Its almost like a change in evolution of the race toward happiness, acceptance and humility, in which this syndrome is teaching we who look after them, and those who come in contact and form close relationships with them. The problem is with our dog eat dog society, if we lived in a utopian world, williams syndrome would be seen as a model of outlook in which one would strive to view our existence and perceive the beauty of the world around us in innocent acceptance and trust instead of intellectually driven selfishness, disappointment, competitiveness and fear.

    • @laqlamb1388
      @laqlamb1388 Před 6 lety +2

      Without intellectualism we would still be in the Iron Age and wouldn't be able to help these kinds of people
      And innocent acceptance can be very unwise (for instance trusting strangers, blind faith in the stock market, and lack of critical thinking skills would all be products of blind acceptance and would lead us into chaos.
      Good day,
      - Laq

  • @thelegendaryblackbeastofaa115

    Frankly, it's really a relief to know that kids with William's Syndrome are able to be content, despite their disability. One thing that makes me super paranoid about having a severely-disabled kid someday is the fact that they might know what they are missing out on. But I think if I found out my kid had William's Syndrome, it wouldn't bother me too much, because I wouldn't have to worry as much about him or her becoming depressed about their disability.

    • @Clone42
      @Clone42 Před 6 lety

      Well, William's Syndrome is a dream compared to most birth defects, so of course it wouldn't "bother you much." A child is yours, faults and all. What they're born with will not "bother you", it will torment you.

    • @laqlamb1388
      @laqlamb1388 Před 6 lety +2

      People with Williams Syndrome often suffer from depression.

  • @erizzle67
    @erizzle67 Před 3 lety +1

    I want to see an interview with him by himself. The family kept piping in when he'd stumble for a second. I know they want to help. Just give him space to speak. He's lovely. I kept fast forwarding to get to the parts where he was speaking.

  • @jtshelton2822
    @jtshelton2822 Před 2 lety +2

    Hey I have William syndrome been living with it for 15 years and going to be living with it forever no matter or what I feel special cause god made me the way he wanted to

  • @jeanineburger9447
    @jeanineburger9447 Před 10 lety +4

    Living with Williams syndrome in South Africa where limited awareness prevails, are certainly a serious challenge for individuals and their families whereas in USA and UK those associations supporting individuals with WS brings forward astonishing opportunities resulting in as near a normal life as possible within these great support groups. Likewise George(17years old); Johan Coetzee previously for East London, living in Namibia since Sept 2009, little opportunities apart from those in his hometown becomes his support group. Unfortunately, when starting grade one back in 2003 (Johan already nine years of age), his school in East London advised us that he could no longer attend school due to his lack of abilities to learn reading/writing: SO SAD.

  • @natosegueda22
    @natosegueda22 Před 7 lety +7

    To all those who have unecessary comments KEEP TO YOURSELF !!!!!!!

    • @iamcleaver6854
      @iamcleaver6854 Před 5 lety

      And who is to judge which comments are unnecessary???

  • @41493bradley
    @41493bradley Před 4 lety +2

    I don’t know what it is about people with William syndrome. Just being in their presence is wonderful. Its like the same feeling of being around a guru. Something just feels heavenly about them and I’m not a religious person. Most of us may feel lucky we don’t have William syndrome but we would do anything to feel as good as this guy does in this video. It makes you wonder who really got the short end of the stick. But life’s weird like that. We may think we’re lucky and they may think they’re unlucky. In other words. People who don’t have the disability are less happy than the unlucky people who have the disability. And what do we want more than anything? We want feel good. So they may have a disability when it comes to doing certain tasks, but we have an even bigger disability when it comes to being happy

    • @jesseleeward2359
      @jesseleeward2359 Před 4 lety

      They can pick up on social cues. And this ability can inadvertently mask their intellectual handicap briefly.

  • @dwayneflemming5499
    @dwayneflemming5499 Před 6 lety +2

    i have a daughter with williams syndrome and she loves music and she even knows how to get on the internet! she was raised with 8 other sibling which are normal. her twin is normal also! the DR. SAOD WHEN SHE WAS 1, that she will have the age of a 3 yr old for life! she proved them wrong! she is 22 yrs old but function's at a 11 yr old! she can even prepare some foods like sandwiches, and uses the microwave oven. she knows lyrics to song i cant remarkable!

    • @andynorvell4953
      @andynorvell4953 Před 6 lety +1

      dwayne flemming.. I do a companionship with a young man who has WS.. Actually we were friends before l started doing the companionship..
      He loves music especially the Beach Boys.. He is going to a summer camp in Nashville this year.. Its really kool l went with him and his family the other year in Nashville and went to the sho..it was a great show Rascal Flats was there..
      He is actually pretty smart too.. We play complicated video games.. I ask him how to do stuff on my phone sometimes..how to spell things..he not a bad bowler..if l help line him up he does ok at par 3 golf..and says the damnest things that are absolutely hilarious..but sometimes he drives me bat shit crazy.. but that is ok cuz lm hi functioning autistic myself so lm just as crazy as he is..
      I have a lot of fun with him..so glad to know him..

  • @ginamisola8692
    @ginamisola8692 Před 8 lety +22

    i have it people make fun of me cussing dayly calling me ugly its uncall for show compassion .i have willam sydrome.

    • @MrMikkyn
      @MrMikkyn Před 8 lety

      Agreed!

    • @laqlamb1388
      @laqlamb1388 Před 6 lety

      "…its uncall for show compassion"… this sentence makes no sense. Translation, anyone?
      And by the way it's Williams Syndrome, not wiliam sydrome.

    • @sto-humanfriendly
      @sto-humanfriendly Před 6 lety +3

      Laq Lamb the abuse they suffered is uncalled for. People should show compassion.

    • @SpruceyTurtle
      @SpruceyTurtle Před 5 lety

      I have it to I think I'm ugly i hate myself

    • @sEEE724
      @sEEE724 Před 5 lety +2

      sprucey turtle don’t think you’re ugly you are BEAUTIFUL

  • @bretflemmusic
    @bretflemmusic Před 3 lety +1

    wow this is amazing I have Williams Syndrome I hope to meet all of you in Chicago

  • @eveventura7750
    @eveventura7750 Před 3 lety +1

    George is a cutie and so sweet and polite !!!

  • @wawewawe1316
    @wawewawe1316 Před 6 lety

    DISEASE?! DISEASE?! DISEASE?!!!!

  • @hipoint40cal39
    @hipoint40cal39 Před rokem

    Legs for miles...

  • @Happy_HIbiscus
    @Happy_HIbiscus Před 8 lety +4

    dude they sound like south african

  • @youtubeepicuser4209
    @youtubeepicuser4209 Před 8 lety +7

    Man she is fine

  • @geirtwo
    @geirtwo Před 7 lety +5

    I think it's interesting that his neck is bigger than his head.

  • @laqlamb1388
    @laqlamb1388 Před 6 lety +1

    I pity him.

  • @insanofreeriderdh3119
    @insanofreeriderdh3119 Před 4 lety

    Oi

  • @sy_c_8592
    @sy_c_8592 Před 5 lety +5

    Imagine that the interviewer is sitting there on the couch surrounded by friend who have to answer how it feels to be friends with a black person or how it feels to be black. It would be ridiculous to watch it. For me it feels the same when I see how they talk about George and not with George. Awful!!!

  • @willynymbus5030
    @willynymbus5030 Před 4 lety

    I think the host is very cute.

  • @cloudy2.083
    @cloudy2.083 Před 7 lety +1

    I like there voice wish I didn't have a dang American one 😭 I don't have the syndrome btw

  • @aka6153
    @aka6153 Před 6 lety +3

    What is this strange dialect? The family sound a bit like Indians

  • @Nena-pi4ki
    @Nena-pi4ki Před 4 lety +1

    I bet they're Austrian

  • @sophiatripiccione2330
    @sophiatripiccione2330 Před 8 lety +2

    I guys!!!! My friend told me to watch this video!! How r u guys!!!!! What's ur favorite color? 😄🤓😅😝😅😝😜😜😜😆😛😜😜😚😌😋😌☺️😍☺️😘🙃😅

  • @metaphoria3
    @metaphoria3 Před 10 lety +9

    Longest neck ever.

    • @thelegendaryblackbeastofaa115
      @thelegendaryblackbeastofaa115 Před 9 lety

      Metaphoria I've seen longer.

    • @bridgetashford9896
      @bridgetashford9896 Před 8 lety +1

      +Metaphoria Its part of the syndrome, they have an elongated or often described as elvin appearance

    • @Connorl18l
      @Connorl18l Před 8 lety +1

      +bridget ashford kind of late but not all kids with Williams syndrome have long necks because my brother has Williams Syndrome

    • @bridgetashford9896
      @bridgetashford9896 Před 8 lety

      +Connor L S no not everyone does, but i more meant the appearance is one of the possible physical characteristics

    • @guystudios
      @guystudios Před 6 lety

      Metaphoria Interesting point, sir.

  • @DagelijksLQ
    @DagelijksLQ Před 7 lety +3

    Giraffe incoming

    • @avemyriam1
      @avemyriam1 Před 6 lety +4

      Your comment said about what do you have in your heart and your education!