Saying Thank You and Goodbye
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- čas přidán 20. 08. 2024
- I wanted to break away from my normal video format and say thank you, to you, and say goodbye to something that has been a big part of my life. Thanks for for being there, thanks for watching, and thank you for your support.
GEAR USED TO MAKE THIS VIDEO -
Main Camera (Sit Down Part) - geni.us/fCo6
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Second Camera (Sit Down Part) - geni.us/3deXcAQ or howl.me/ckVm4M...
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Mic for sit down part - geni.us/Tj8RI
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Second Camera (Studio Tour) - geni.us/3deXcAQ or howl.me/ckVm4M...
Lens - geni.us/wYBV6
Mic for studio tour - geni.us/XFnz
The LUTS I used for this video - transactions.s...
STUDIO TOUR -
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Key Light Softbox - geni.us/UJPXnec
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My Sony Cinema Camera - geni.us/fCo6
My Sony Awesome Budget Camera - geni.us/m7tYR9
The LUTS I use for Sony - transactions.s...
My 21.5 Inch Filed Monitor - geni.us/AmHDKP
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*** NOTE *** If you, or someone you know, has symptoms similar to mine, but has been unable to get answers, watch this video - czcams.com/video/kqpwiE9RZSo/video.html
Heartbreaking to hear your story. Just shows that nobody knows what people might be going through. So glad that you’re better! Looking forward to see the new studio and what lies ahead for your channel 😊
They could still be wrong, you know. Try intermediate fasting and cute down sugar in take. I have been regenerating my nerves since then. Good luck to ya.
is it an auto-immune condition? If so, I am wondeirng if you have some eatern european or western asian ancestry.. I believe there is genetic component that puts some people at risk for this auto-immune condition.
Watching this has me crying. I'm 26 and have been declining in health with similar symptoms, but because of my age and history of depression, doctors never took me seriously.
I look like a normal young person, but I feel like I'm 80. I graduated a year early from high school, I used to feel smart, but now I feel incompetent and dumb.
Physically, I can do almost nothing these past few months. I'm in a situation right now where I don't have insurance, so I've been depressed about not getting answers, always hurting, and feeling useless.
Thank you for opening up like this. It's good to know we're not alone.
I was diagnosed with a condition called POTS disasomia. This was brought out by long COVID. My central nervous system was attacked. I have to do cold therapy everyday . It's been life changing and has helped with my condition. I also found sound therapy and meditation has helped even more. I was told to get ready for disability and I wouldn't be able to work, drive and I couldn't walk. Sunlight brought pain because of the reaction of the nerves. I slept all day. So cold therapy has had very good results with this condition. I hope this helps with anyone who reads this. Along with fasting and changing diet has helped so much. Good luck to you in your recovery.
I've never seen a video of yours before, but the algorithm decided I should watch this, and it was right. From one person living with chronic illness to another, I feel you. I'm glad you're doing better, and I wish you all the joy and success this world has to offer. ❤
Same.
Same. Never saw a video from this gentleman before. Been living with a veritable menu of serious medical issues. Recently diagnosed with stage 4 breast cancer (invasive ductal carcinoma). Two days after Thanksgiving we had to sit my son and his family down to tell them. The algorithm was telling me of my diagnosis before the doctors, if you can believe it. It was telling me about breast cancer 6 months before my first tumor appeared the same day our governor locked us down for the pandemic. Very sorry I ignored it then. These algorithms are far more advanced than they’re telling us. I’m not an isolated case, nor is it voodoo or witchcraft. Google is in the backend of every conceivable industry on earth, in every sector. Medical, environmental, genealogy. I think it was simple math. Or, due to the routine bloodwork I get for my kidney disease it got picked up there where my doctors missed it, or it linked me through a study I hadn’t consented/unknowingly consented to being apart of and told me thru targeted ads. I was receiving an inordinate amount of ads for things such as breast cancer bras, wigs, drugs, etc. Nobody I knew was going thru this disease, we weren’t talking about it, weren’t searching it, wasn’t on my radar whatsoever. I was 46 when it started happening. Not old enough for this generally. But, the algorithm knew. Wish I had listened. Then, after my lumpectomy we were told “all clear!” 🎉 🥂 Was told the margins were clean, the 9 lymph nodes were clean, PET was clean, blood markers normal, all good! Except, the ads on CZcams now were nothing but ads about having metastatic breast cancer. They’d repeat the same ones over and over so much so I would yell at my tablet, “you lie! They said I’m clean!!” But, I knew. It knew. It wasn’t wrong. Started having tremendous pain in my tailbone 5 months after my lumpectomy and asked a doc for an mri and lesions were present. From there to here. Stage 4.
Never ignore the algorithm now. Also, contemplate the power they have over us all with this knowledge of us. More knowledge than we have about us they control. Nothing good is planned for us.
Here's a tip. From one person to another with chronic illness .. listen. The go to for Dr is anxiety ..all the fing time ..all the time.. don't trust them and especially don't trust the medications they prescribe..even if they tell you you need it and it will help ..don't trust the Dr and don't trust the medications..look to foods. The one who beautifully made you gave you everything to heal you. You just have to find it ..nature ..nature ...health food stores ..and Drs that are not brainwashed by western medical school..find an ancient wisdom doctor
❤samw❤ Wish you all the best
Same ❤
Worst part about these "invisible" illnesses is the decades of gaslighting you'll have to go through all the while you just progressively get closer to feeling and accepting that you're just going to die. Just nothing left in the tank. I went through that whole process and reached a point where I almost fully accepted it's going to happen and nothing can be done. Did one final attempt and while the generally poor treatment and gaslighting has remained since then, I did finally get a diagnosis and medication along with it.
It's especially heinous since it's not exclusive to rare conditions and applies to things that tens or even hundreds of millions suffer from as well.
Totally and completely agree. 🩷🌷
@@illex759 homeopathy has some excellent results also! Both herbs and homeopathy are more gentle way of treating long-term or chronic illness.
Thank God for that neurologist! I wish you continued improvement, and good health.
That's not what gaslighting is. Gaslighting implies intent to misdirect that isn't here.
"You think you feel bad, we all feel bad. You just try being me."
~Father to son from 8-18, never taking me to a doctor. Lost in GOP land without insurance. NO life until I moved to Portland at 33 years old, too late, disabled.
@illex759 but you need both. Herbalism also a lot of time doesnt fix anything, or can make things worse.
Always go to both if you want to try it (and you should, try your options).
Did interviews with african surgeons, and a lot of stories of people first using herbs to try and fix it cause they believed they could, making it worse AND waiting to long, sometimes witg dire consequences. For things that could be fixed in 30 min if they just came in immidiatly
Never heard of you before, but the CZcams gods have brought a lot of us to you. Wishing you all of the best🙏🏻
⚠️There is no CZcams god. there is only one God, the God of Israel and that's why he has sent me here as a humble servant of his, a humble servant of Jesus the Christ. To let you know, the following:
"God showed His love for us by sending Jesus to die for us." - (Romans 5:8)
"The heavens declare the glory of God, and the sky above proclaims his handiwork" . (Psalms 19:1)
"Worthy are you, our Lord and God, to receive glory and honor and power, for you created all things, and by your will they existed and were created" . (Revelation 4:11)
"And you shall love the Lord your God with all your heart and with all your soul and with all your mind and with all your strength." (Mark 12:30)
"Behold, I was brought forth in iniquity, and in sin did my mother conceive me" .( Psalm 51:5)
"your iniquities have made a separation between you and your God, and your sins have hidden his face from you so that he does not hear." (Isaiah 59:2))
" None is righteous, no, not one; no one understands; no one seeks for God. All have turned aside; together they have become worthless; no one does good, not even one". ( Romans 3:10-12)
"For all have sinned and fall short of the glory of God" .( Romans 3:23)
"For the wages of sin is death, but the free gift of God is eternal life in Christ Jesus our Lord" .( Romans 6:23)
"And just as it is appointed for man to die once, and after that comes judgment" (Hebrews 9:27)
"Whoever believes in the Son, has eternal life; whoever does not obey the Son shall not see life, but the wrath of God remains on him" .( John 3:36)
"In this is love, not that we have loved God but that he loved us and sent his Son to be the propitiation for our sins." ( 1 John 4:10 )
"but God shows his love for us in that while we were still sinners, Christ died for us. " (Romans 5:8)
"But he was wounded for our transgressions; he was crushed for our iniquities; upon him was the chastisement that brought us peace, and with his stripes we are healed" . (Isaiah 53:5)
"Truly, truly, I say to you, unless one is born again he cannot see the kingdom of God." (John 3:3)
"But to all who did receive him, who believed in his name, he gave the right to become children of God." ( John 1:12)
"if you confess with your mouth that Jesus is Lord and believe in your heart that God raised him from the dead, you will be saved." (Romans 10:9)
"Come to me, all who labor and are heavy laden, and I will give you rest." (Matthew 11:28)
"I am the way, and the truth, and the life. No one comes to the Father except through me. " (John 14:6)
"And there is salvation in no one else, for there is no other name under heaven given among men by which we must be saved." (Acts 4:12)
"If we confess our sins, he is faithful and just to forgive us our sins and to cleanse us from all unrighteousness. "(1 John 1:9)
"The thief comes only to steal and kill and destroy. I came that they may have life and have it abundantly. "(John 10:10)
"Whoever has the Son has life; whoever does not have the Son of God does not have life. I write these things to you who believe in the name of the Son of God that you may know that you have eternal life." (1 John 5:12-13)
"Therefore, if anyone is in Christ, he is a new creation. The old has passed away; behold, the new has come. " (2 Corinthians 5:17)
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Hurry up! Run to the ONLY one who can save you from what is coming upon the world, the one who created the world... JESUS the Christ. DO NOT BE LEFT BEHIND UNLESS YOU LIKE ZOMBIE MOVIES. I am not joking.
@@firstinlastout this isnt the right place to preach man. i know you mean well, but honestly its unlikely for preaching to ever really convert anyone
Man, I am so sorry. I literally just came across your channel as I’m just getting into photography and your videos have been so helpful & informative. I’m sending you all the well wishes and prayers. Stay strong and thank you for being so open about your experience. I am just a stranger on CZcams comments but thank you so much Mark.
I beat esophageal cancer while launching my media production company after getting laid off from broadcasting at 40. “I have to be there for my kids” was also was my mantra that got me through. I never feel alone in my studio because of CZcams channels like yours. So, thank you for being there for all of us too.
Thank you for sharing your story.
Incredible, I hope life is treating you better nowadays.
@@theSato Life is good. My company is successful enough to replace my former salary and I have more control over the work I’m doing and who I do it for. On the health side, I just had my last post op scope and I’ve been clear of the cancer for five and a half years. It’s great to be able to see my kids grow up.
Really fucking proud of you
My husband was diagnosed with esophageal cancer. He was given a 17% chance of surviving three years and a 7% chance of surviving five years. I am so thankful that ten years after his diagnosis he is cancer free.
Damn, I thought you were calling it quits as a CZcamsr.
I thought you were giving up. That made me so sad and depressed.
I am delighted that you recovered, survived, and triumphed over your illness.
I am from Egypt, and I own the Canon M50, and you have been extremely helpful to me in my photography career.
Thank you so much for all of your amazing videos, and best wishes!
Keep going, keep fighting, and never give up hope.
lol
Well said
Clearly to assume that he was calling it quits WAS his intention
I’ve gone through cancer and chemo and am still in remission.
The best medicine is realizing that you have to be positive. You’re doing the right thing. The power of the mindset is truly insane
I was given weeks in December, I took on being positive and optimistic and I’m still here! This week I explored giving up (stopping taking actions) and letting go (giving up attachment to the outcome) because I have kids too. I’m feeling good. We got this! Keep spreading the news about being positive! I still have it all but I know I’m getting better, I can feel it.
As an Australian with migraines and worse neurological conditions, I went to six neurologists before one of them stopped with the "anxiety" and "see a therapist" BS and finally diagnosed me with migraine. My condition has lost me jobs and my ability to drive and was still repeatedly dismissed. The profession is a disgrace there's a never ending fountain of stories about their mistreatment of patients due to their own bias and general lack of competence. I wish you all the best.
I am 45 and up until about 3 or 4 years ago I suffered from debilitating migraines since I was a baby, really bad during my teens and never eased off. Went to nutritionists, doctors and specialists over the years and no better.
Well I injured my back really bad around 8 years ago and was seeing physio's and chiropractors for about 18 months. To go with my migraines I now had severe lower pelvic and back pain.
Popped across the road to my neighbour who is a well know osteopath in my country and in one visit she identified a number of cranial vertebrae and c5 area of my neck with very distorted alignment and nerve pinching. I haven't had a migraine in years!
Many prayers. I suffer from Fibromyalgia and many other illnesses that have progressed over time.
are you effing kidding me... what kind of health professional confuses migraines with anxiety 😭
I saw a chiropractor at the age of 8 ...... reduced my migraines from weekly to once a month. 50 years later, my migraines now are mostly visual disturbances with a dull throb the next day ..... still get adjusted regularly. Worked for me.
@@KerlasiaMental health issues can be expressed physically to such a degree that it's difficult to know what is causing what. Anxiety isn't nervousness. In the same way depression isn't being sad. Anxiety can cause you to take shallow breaths. This can cause similar symptoms to migraines.
I'm not "one of Your "normal viewers" but I "somehow just ended up here"...
But I feel that I have to say massive thanks for having the courage and integrity for making and sharing in part highly personal video.
Best wishes from a passing stranger.
Same here.
Very well said!
Ditto. Wish you all the best
Why air quote ur words man..its not necessary
@@P.willow Air quotes are just fine when writing conversationally. It is another option to express where you're coming from.
Wow, man. This is what CZcams can do, in the right hands. You should be so proud of yourself, brother. Stay strong. I'm so impressed. You are loved, man.
@@markwiemels I agree with the others, your title and the way you are simply trying to get views is disgusting. Unsubbed
My thoughts exactly. It’s amazing how this platform is used to spread such absolute garbage, but then something like this comes up and most of us are left speechless. I’d give anything for the platform to make videos like this viral.
Thank you !
My thoughts exactly! I wouldn’t have thought the platform could’ve brought so much recovery. Very cool!
❤️💯❤️💯❤️💯❤️
I think CZcams must have decided that your story should be shared with everyone. Your story doesn't fit my viewing profile but I was kind of intrigued. I'm glad to have watched this. I have suffered from medical issues and depression for the last 8 years. I'm glad things are improving for you.
The CZcams Gods were looking out for you and placed you in everyone’s algorithm for a reason. We all need some good news and You brought it! Thank You for sharing your light and hope!💕
Props to that neurologist for having the humility to admit that it might be something they don’t know. Many people go un/mis-diagnosed because a lot of doctors will usually make a diagnosis based on the closest thing they know, even if everything’s not lining up.
It's due to Occam's Razor, it's generally the best mindset to have and doesn't make things too complicated for no reason, but obviously it can also go wrong at times too.
It's a slippery slope and why being a practitioner is so hard. Be it MD, PA, NP, whatever. When a constellation of symptoms is laid bare, and they just don't resemble anything you know it is very hard to still seem competent to the patient that is depending on you, and also have humility to explain that you don't know what to do.
agreed. I have had doctors google things right in front of me and those guys are so much better than the ones that repeat stuff they read in their college textbooks in 1982 and refuse to believe there has been any new knowledge since.
Thank you for deciding to "just be there" for your kids, when that was all you could do. As someone who has suffered the consequences of the opposite decision, I cannot tell you how happy it makes me that you decided to stick around and keep going. Wishing you a lot of success.
I’m so sorry to hear this, but thank you for sharing it, it’s meaningful.
@@markwiemels Don't you ever believe that just you simply being there isn't enough...... To your children it will ALWAYS be enough!
@@JasonP6339 especially in the future when respect and time and empathy rolls through and hey have that deep sense of understanding
Thank you for being there for your children! I am a family member left behind after another member chose to end his suffering. His 66th birthday would have been yesterday(May 5). You never get over it. Your children loveyou no matter what!
Chronic pain drove my Mother to suicide when I was 5 years old. Thank you for fighting for yourself and your family. Stay Strong!
Your story is riveting. At this point I’ve lost probably 80 to 90% of my substantia nigra, the bundle of cells in your brain that produces dopamine. I can so relate to everything you’re talking about. At first glance and listen, probably people don’t realize there’s something wrong, but if you listen to me talk longer or watch me walk further. It’s very obvious. Bless your heart I am so inspired by you.
I mash words together due to my condition, it's definitely impacted my entire life. I used to be so eloquent. As someone with an invisible disability, stay strong, my friend. Focus on whatever brings your joy, not our inevitable ends. Big hugs. 🖤✨
Most of the time CZcams is faces on a screen. But today I felt the human in front of a camera. I am sure your family is proud of the man you are.
May the univers heal you completely.
There is no higher calling than just being there for your kids! I had no idea man. Please keep up the great work!
Chronic pain conditions are so misunderstood, under researched and under funded. The impact it has on daily life is immense. I'm so sorry you've been through this and im glad you got some answers. P.S. that lense shelf is insane.
Most chronic illnesses are due to wrong diet.
@@gh0un cool story
cool story but has nothing to do with the video
I really needed this. It's so easy to get isolated when you feel like Iike just surviving takes all you have. Thank you for making me feel like there's people who understand.
😭
Mark, chapeau for coming out with this. I can imagine what you’ve been going through. I survived five months on a ventilator in an ICU, completely paralysed with Guillaine-Barré Syndrome. I had heard doctors talking by my bed saying things to the effect of ‘poor boy, he hasn’t got a chance to survive this’. I was in really bad shape. I clenched my teeth and fought. When I survived they told me I won’t be able to walk normally again etc. That was 32yrs ago and since then I have led a good life. I have 250.000 metres of altitude gain on my current Garmin, cycling. Alps, Dolomites… Mark, be brave. Never give up. Science makes advances. New treatments are discovered all the time. All my best wishes to you. God Bless.
I had Guillain Barre in 1978 and was paralyzed from the head down and on a respirator in icu for months also! Had to relearn how to walk and feed myself. I’m 63 now with 3 grown children. The doctors told me I probably wouldn’t walk again either but I refused to accept that! 👍🏼
@@lisaw1085 Probably. They were telling you statistically valid probabilities. This whole "the doctors said I'd NEVER" bit that people use to boost up their videos and testimonials is getting long in the tooth. Doctors rarely EVER say those things to anyone. But the general public isn't too good on 'nuanced' thoughts. e.g. "you probably won't compete at the level you did, you will probably have to accept other competitive levels" is too many words so in the mind of a (often medicated and anxious) patient it becomes the doctors told me "you will never run or walk or compete again."
@@deeder001 You might be right. But in my experience, a lot of doctors have terrible bedside manner, so I'm not so sure people are making it up.
@@derekc423 I grew up in hospitals being treated by some of the smartest doctors around. For the most part, I completely agree, their bedside manner sucks.
They were constantly telling my parents that I was going to die, to prepare for the worst, etc... They always tended to trend towards the negative.
Keep strong. My wife, before I met her, had a traumatic brain injury. Coma over 6 weeks. Doctors pulled the same crap while she was deep in a coma. Bastards never shut their mouths. My motherinlaw was in the nursing home and the workers and hospice workers would irritate me by talking her further into the death process. Just rotten people with no hope or respect for human life.
Man, you are what is good in mankind. You are my inspiration. I went through a hellish skydiving accident. Lots of broken bones and nerve damage but with time and withstanding pain I've managed to move from Economics to dressage riding. I ride 4 horses every day. I hope some miracle happens and you live to be old.
Your story is inspiring in its own right. I'm glad you were able to move from "the dismal science" to dressage riding. 4 horses a day, that is commitment to your sport!
My grandmother passed away from a neurological disease called als when I was 12 and I said to my self "I want to be able to find a way to cure it or slow it down a LOT" right now I'm doing extra curricular activities and some college courses in neurology hopefully later on I can get more schooling to be able to become a doctor and be able to stop it or slow it down WISH ME LUCK!! ❤❤❤ Edit and chemistry
Good luck with your studies. So important to follow your heart and do things with a purpose. Your grandmother is watching over you, I feel sure. Keep going. 👍
@@sarac.3259 Thank you for that, you just made my day 😊
As someone with an ' invisible ' and also extreme painful near chronical illness, i really really wish you the best and a somewhat normal live in the future :)
There seems to be a whole genre of “thanks and goodbye” videos that turn out not to be goodbyes. Glad you’re sticking around.
😂 ive noticed that ...they sure make me think they are click bate .
Yeah.....i agree
Amazing story. I have never seen your channel, but I just clicked this video randomly and you kept me focused the whole time. You’re a strong dude, brother. Inspiring. You have to write a book about this journey one day. I wish you well. Godspeed.
As someone who once felt that his life wasn't worth living, your words evoked a pain I've almost forgot, but also the courage from not surrendering and keep fighting, since the only thing we can do in this life is to never surrender and try to play the cards that we have been dealed. Your family and friends are truly blessed of having you in their life.
I find it interesting and amazing that so many of us here who are leaving comments, are people who stumbled upon your channel by accident, which makes me think that it's not an accident at all that you are reaching so many people who never knew anything about you prior to this video! I think your purpose is far bigger than you realize! This video is going to help so many who are suffering in silence. By sharing your pain and your struggles, you are also sharing one of the most important gifts of all...hope! Thank you for being so brave and honest! Your purpose isn't just big, it's powerful! Be well! 💙
Agree! I wouldn't have clicked on a camera video but this one hit home big time. When he choked up, that is so relatable.
Wishing, hoping & praying for you & God’s speed for a full recovery from your illness. Best wishes also for your family. 👍❤️🙏
We're not goin no where ✊😊💯
This video is my introduction to you and I felt deeply connected, as you had me crying not because you cried, but because of why. I love the humanity that you are, you are beautiful. I'll never forget this day, this moment.
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Today, the algorithm randomly decided to introduce me to you and your channel and I'm so thankful for it. I truly have no words for how moving this vid is. I'm not a praying man but I will pray that things get better for you and life continues to bring blessings. Thank you for this!
Hi there! This is the first time I have seen your video. My heart goes out to you. My mom had a similar story. Growing up, my mom was constantly sick. She struggled with depression and anxiety. She was falling all the time. Many years went by in and out of hospitals until my dad had had enough and demanded answers. At this point, I was 11, and it was 1975. There was a new neurologist who sat with my mom, just before being released from the hospital again without any answers and sitting with her 10 minutes knew what she had where the top doctors she had seen for years did not even know. He told his follow colleagues she had multiple sclerosis. They didn't even know what that was. My childhood was ravaged by that horrendous disease. I think it would have turned out differently if she had been diagnosed earlier. The last 5 years of her life, I was her caregiver, and it was the most precious time I had with mom. She passed away 7 years ago, and I miss her, especially on Mother's Day. My prayers are with you and your family.
As a person who is currently going through a neurological condition with no clue to what has caused my problem and what can be done to improve my condition, I give you my salute for not giving up and doing your best every single day. I'm no stranger to pain, and your videos have been helping me hang to my camera hobby and I continue to have the dream to work on my own channel eventually.
Can't wait to see the new apartment studio. Stay well out there 😎👍👍👍👍
Here is a bit about my condition, incase it may apply to you - czcams.com/video/kqpwiE9RZSo/video.html
Carnivore diet helped my friend and I
@@phylocybe_ I didn't have the vaccine yet, or the virus.
oh man I am speechless right now. What a struggle you have had. My heart goes out to you
I just came across your video today!!! OMG! I have been dealing with Small Fiber Neuropathy for a couples of years now and I have all of the issues that you have mentioned!!! I was diagnosed by a skin biopsy. I have been very depressed lately because I have been getting worse and thought this was my life from now on, pain and agony!!! You have given me some hope that maybe I need to look into trying other things instead of just taking meds that really aren’t helping!!! I feel that I came across this video because I really really needed to hear this today!!! Thank You for sharing!!! Peace, love and healing to you!💙
Whatever quirk of the algorithm is sending this to different people I am glad I am one of the new people seeing you video. There is so much that is discouraging happening in the world but listening to you really gives me hope. You have the kind of honesty and courage so needed these days. Thank you (and that Aussie doctor who wasn't afraid to Google)
No one on CZcams has been more personally helpful to me than Mark. Thank you.
👏👏👏
Blocking out the pain of something so overwhelming and all encompassing is so difficult. Sometimes all you want to do is pull the trigger. You being able to come this far is amazing man.
I too have small fiber neuropathy as a result of Lupus. Apparently in my case, it’s quite severe, and very common in those with autoimmune diseases. Testing was a simple punch biopsy I received at University of Michigan neurology clinic, by an amazing neurologist. It’s a shame you had to go through so much to receive a diagnosis, but it’s becoming more commonly tested for everyday.
Ugh this comment scares me
I also have small fibre neuropathy due to Lupus. Do you also have Sjogren's? Apparently it is much more common in Sjogren's and I seem to have both...
I am so sorry, it really is hard. Have you found anything that helps?
@@lizzy311 yes, I do have both!
@@kristineteall368 mhh... Me too. It sucks. Sorry if I am too bland. I hope you have a treatment that works for you.
it's never lupus
I really want to thank you for so openly and earnestly sharing your story and encouraging enthusiasm!
I’m 39 years old and have been continuously “relearning” how to cope and live with the limitations, complications and chronic pain of my own systemic degenerative illness for more than 3 decades now. -
I trust you know well the feelings of isolation and otherness that one can harbor even at the best of times when you have a rare or little know disease; hearing your story was uplifting and encouraging.
Thank you and I wish you the best in your endeavors!
I recently acquired an M50 kit and I want you to know how invaluable your videos and advice have been to me. I am so sorry life has thrown such a major health challenge at you. But I am inspired by how you have pulled yourself together and created a vehicle that allows you to contribute in such a positive way to so many lives. I wish to send you peace, love, and healing energy. Bless you.
I don't know you. This was in my recommendations. I have small-fiber neuropathy with autonomic dysfunction, POTS, neuropathy, celiac disease, and a bunch of others. I've doctor hopped for more than 10 years, people thought I was crazy, I feel you. It's like I'm watching a video of me. My doctor here in St. Louis, MO told me to never let go of what makes me...me. I make music, I love cooking, I enjoy being with my girlfriend, programming apps, video editing. Don't lose sight of what you have and never lose faith. This has been my entire 27 year life so I know I have a pain tolerance. People don't understand that if someone shakes my hand too hard, I'm down for the count for 24 hours and have to pop a pill. It's hard to fall asleep. There will be a day where it feels like it's the worst it's ever been, that's the peak. Once you get on the other side of that peak and believe that you can pull this off, you can start predicting what makes things better and worse. If this doesn't make sense to you, maybe it's because I'm having a bad day. 😂 It'll be okay. You have a blossoming CZcams channel, a family, a wonderful life. Just remember that the bad stuff can be louder than the good stuff. If you ever need someone to talk to who also has this stuff, just reach out. My social media links should be on my channel. They should still be correct. (I stopped doing my stuff because of my diseases)
Try photobiomodulation. It has been shown to help POTS.
Do you have Ehlers Danlos Syndrome by chance? All of those symptoms could be explained by Ehlers Danlos Syndrome. It's a rare genetic disorder characterized by a defective gene in the production of collagen. Which in turns effects every body part that is made with collagen, essentially every part of the body. Some main symptoms is POTS, Dysautonomia, hyperextension of the joints, gastroparesis, gastric problems, chronic pain in the joints and mast cell activation syndrome.
Best wishes, your words and sentiments are loving and a reminder that we can never judge others when we don’t know what they’re going through. Good luck with your health journey!
Love, I'm 60 and one very tough cookie. I've never had a day without pain and it's been escalating the past year. You are so very strong. You have this. We can crawl on hot coals through fire if we are saving a child. No question that we are still strong and useful. It is still okay to swear blue murder in the privacy of your bedroom and bathroom. The adrenaline might give you a pick me up. My husband tells me it helps him. I'm not sure, but I don't have his vocabulary. Love to you and yours.
I am balling! 😭
As someone who suffers with chronic pain I related to your feelings of understanding your purpose and struggle with this too all the time. You summarised it perfectly. I too have realised I am only here for my daughter, an adult daughter but she still needs me.
Like you, I need to find my 'youtube' though. I think that would be great for me.
God bless you and I pray that your treatment is working and doctors are continually finding a way to improve your quality of life. 🤗
The algorithm directed me to you. I also have a chronic neurological condition and from one stranger to another, I love to see you being strong. There is always a reason, the reason is you, and the purpose is whatever you decide it is from day to day. I’m glad to have met you.
Mark, everyone has struggles, but few are as brave or graceful as you while being vulnerable before thousands of people. Your voice became so animated when you began discussing your plans that it was contagious! I will gladly follow that enthusiastic voice, and can’t wait to see you in your new environment where you can spread those wings some more. Thank you for working hard for all of us when it has been so difficult for you…you are appreciated.
Just chanced upon your channel today and was touched by your honesty and humility. What an inspiration you are to all of us who are afflicted with chronic health issues. We will hold your hand, sir.
I think a huge part of lifes purpose is to touch the lives of others....we're in an age when you can really have a positive impact on thousands of people...and theres nothing better than giving other people hope. Good luck with everything!
Thank you for being raw and transparent. People have no idea what it is like to suffer through a chronic illness when you don’t look sick. I suffer from fibromyalgia with chronic fatigue and it is exhausting. Similar but not exactly the same symptoms but I have pain all over the body especially in my limbs. I’ve had to be put on opiates long term because nothing would get rid of the pain. Without opiates I could not get out of bed I was in torture. I’ve never seen your channel before but I appreciate the glimpse into what you are dealing with. Stay strong. ❤
This is so meaningful. So many people struggle to find a place where they can exist with an illness that is occupying so much of their life and mind. Thank you for everything you do here on CZcams! So much info and knowledge. It’s been a great help.
Exactly how I feel about my illness. Everyday is a struggle
Your video popped up as #1 on my feed page. I never watched you before... but I am glad I saw this! For those of us who suffer, we get it! Those who know what it's like to feel like garbage everyday from what ever the illness, and because it is not something you can see on the outside, it makes life so much harder. There are so many of us who just can't get the answers we so desperately need. Its those of us who got it, we saw this video for just exactly what you intended it to be... your words to those who watch you... but it hit those of us that suffer too, and it gave us hope!!! I am so glad you feel better and let's keep that improvement going! Enjoy the journey and thanks for spreading hope to us all !!!!! 🥰🥰
I’ve lived with constant chronic nerve pain for 50 years - you’ve made some EXCELLENT choices in regard to your pain - the mind and brain are amazing- my brain rewired itself quite a long time ago - by choosing to not dwell on the pain, it rewired my response to it. It’s always there, yet I don’t always notice it if I don’t think about it. Also on bad days if I embrace the pain it often softens. In choosing to embrace normalcy and life, it changed my health and improved it significantly. Diet is very important with chronic pain - getting rid of inflammatory foods really helps. And having a workspace that inspires creativity makes a big difference. Pacing is also key, I respond well to alternative as well as traditional therapies and again so helpful. I completely understand the mixed up words, constant pain takes tremendous energy, it’s like your body is firing at full throttle constantly. If I become fatigued the vocabulary gets quite mixed up and messy. Texting is not fun as well, as fine motor skills are increasingly difficult with fatigue. Thank you for sharing your journey- and how well you are doing now.
Have you tried speech to text, and swipe typing for texting. I hope you'll get well soon
This was such an inspirational video!
Glad to hear that you overcame the illness.
We’ll also be looking forward to what you’ll be able to make in the new studio.
Wow Mark. It's good to know you are doing better. You do so well on camera I never thought you were going through any difficulty. Props
I suffer from severe neuropathy. Your videos have been a huge part of keeping my mind off the pain. I had no clue you were going through pain also!
Thank you for all you do!
God this resonated with me so much, it’s different to your symptoms but I’ve been dealing with a chronic undiagnosed health issue for the past 3 1/2 years. I’ve been through sooo many doctors and tests and still it all comes back normal, even recently went through 2 surgeries for a test device to see if it may help but nothing. I thought the same kinds of thoughts you have, like what’s the point in living a life in this state. I’ve really been struggling with my situation and I know what I want to do with my life since I’ve had so long to think about it but my symptoms really hold me back from doing it. However, this video gave me a little bit of hope back to just keep going. Thank you so much for posting your story and I hope only the best for you
Hi- it makes me incredibly sad how you have suffered in silence. (I am a medical person) You are truly an amazing person Mark. I have saved all your videos and some I have watched multiple times. You are so talented and I can't thank you enough. As I have aged, I have been contemplating leaving medicine and retiring (time to be done), and my hobby is photography. While I'm amateur at best, you have given me skills I otherwise would have never had. Keep on fighting, live your best life. Beth
Unfortunately there are a lot of us in that situation. It took twenty years to be sort of diagnosed with a rare autoimmune condition that can't be definitively diagnosed because it's a matter of eliminating everything else and coming up with a short list of things that doesn't show up on any test. Even today, 35 years on, its still a best guess and I'm at the mercy of seeing someone who actually believes me when I have a particularly bad flair. It's soul destroying when you are in so much pain that you can't stand up, let alone walk, and are fobbed off as it being all in your mind. You have no other choice but to suffer in silence.
Don't know you, but love you, wish you and your family this best. Speaking openly of personal tragedy is more difficult than anything, you're very brave and strong
I will never understand your pain but the part about finding purpose was beautiful. Thank you for being here and sharing your story
I work in the medical field and am really thankful that you shared about this condition. No matter the age, we are still constantly learning and knowing more about specific conditions makes it easier to help and guide people that haven't been diagnosed yet and are seeking answers. Thank you.
Damn, dude, I'm so happy you're better and even expanding your channel, that's amazing! Felt so depressing initially to see "goodbye" in the title and then hear "I have this neurological condition" like fuuuuu---
Not sure how I ended up here, but decided to stick around and am glad that I did. As someone who also endured a medical condition that affected me neurologically, I got quite teary-eyed at your account of your search for answers, empathized with the valleys of the journey, and ultimately celebrated that you've traveled and overcome a challenging path to here and now. So glad to hear that your experience and condition has improved and to know that you're expanding and growing your channel and work. You're doing great work here. Sending good wishes for continued improvements in health and the pursuit of big bold possibilities! (Also, we share the same exact hometown!)
Thank you so much for this humbling and vulnerable video. To share this with the world is SO brave and courageous!
As others have emulated, you youtube videos have been so wonderfully educating and helpful to photographers all over.
My thoughts and prayers are with you during these challenging times.
Mr. Wiemels,
Sometimes we walk a path not of our own choosing. So we wander along and ask why we're there, how long we have to walk it. Most of us simply walk along in our daily life, but some of us, the strongest amongst us, are trailblazers! Their load is heavy and the road is long! Because the trailblazers among us, life if better for the rest of us. Thank you Mr. Wiemels for your sharing your story, I pray that you are doing well and that your journey to recovery continues!
God Speed Mr. Wiemels!
-G
Sorry you met with so many doctors brushing you off. I have been met with that too and it really takes a toll on you mentally and physically. I’m so glad you found a doctor that believed you and helped you. Best of luck in everything.
Hi Mark, I am not sure how your channel/episode ended up in my “recommended “ view, but I am glad it did. Listening through the entire episode, I truly felt inspired by your truthful thank you to your followers. I am very pleased you are feeling better, enough to expand your physical location and will for sure increase your target audience. I subscribed only because you are a unique grateful content CZcamsr. Although I have no interest in camera’s or photography, I will share your episode with our daughter whom is a semi-professional photographer as well as a young lady that has recently graduated some photography course at our local University. Good luck my friend from Southwestern Ontario, Canada.
I have a "laundry" list of autoimmune diseases.... so I deal with severe chronic pain and fatigue that keeps me in bed. I also have a suppressed immune system because of the meds I take to keep me alive. I am recovering from a really bad flare, and I should be getting up and trying to live normally. But I cannot gather the strength to push forward. This video helped me so much more than you could ever know. You have made a difference and I feel so encouraged.... "if he can do it, so can I!" Thank you and I"m so impressed with your courage and determination!
I am like you. Please, try eliminating milk, cheese and gluten if you are taking them. This is so super hard. 😢
@@miranduri I have given up all those things as well as soy. But it didn't seem to help that much. I don't like meat, so I was having trouble getting enough protein, so I added cottage cheese back into my diet. I also have eliminated so many other foods because of allergies, so I just have to do the best I can!! Thanks so much for your kind comment and suggestions!
Oh wow, this was actually an eye opener for me. I'm rebooting my photography hobby again since 2 weeks and was looking at some youtube channels when i stumbled upon yours. I've seen at least 20 video's and then this one pops up. What we tend to forget is that youtubers like yourself are normal people with everyday issues and problems as well. I truly love the way you explain things to us and you (together with Simon d'Entremont) are by far the best channels to watch if you want to learn and master this craftsmanship. That being said, i really hope you are still doing well and i wish you all the best from The Netherlands. Many thanks for sharing your knowledge!
Mark don’t ever give up. We value everything you share with us. If it ever get to the point you feel you’re not at your best, don’t give up. You’re a huge mentor to so many!
Hi Mark, thank you for this video. I'm getting tested for SFN this week, but I'm 99% sure this explains my symptoms. It's encouraging to me to hear that you're feeling better. I'd love to hear more about what you've been doing to improve your quality of life.
Never saw your channel until today, praying for you, your family, and the world, frankly. You seem sane and centered. Service to others, specifically being present for your own children, is a purpose within itself.
He was a good doctor for sending you for test because you always want confirmation when you are trying to figure out what you have.
All I can say is thank you for what you've given to this space, and I wish you and your family the best in dealing with your continuing health concerns. You do have a talent for distilling and presenting information in a clear and helpful way.
As long as your heart beats, there is always hope. Always. No matter what.
I don’t know how I got here? But as a chronic pain endurer I get you. Great you are coming out of the closet 😊 Bless you & wish you well 😺
Hugs to you, friend. Sometimes that's all one can say.
I just stumbled across your video as a first time viewer and subscribed to your channel by the end. As one Internet stranger to another. I’m genuinely proud of you and was moved by your story. You are a rare find. You have a gift of authenticity and a renewed purpose in life that will serve as inspiration to those who come across your path in their own lives. I’ll be looking for your future videos and look forward to seeing you pass the CZcams milestones. Keep on keeping on. ❤
Wow!! ive never watched any of your videos but the title hooked me. I just went through a journey with my mom who is now going through chemo and radiation due to a brain tumor. Your story hit close to home and im glad you are improving and moving forward. Family is everything! Keep moving forward and keep your head up. You just gained another sub.
Hi Mark,
This is the first video of your channel that I‘ve watched and I can tell you one thing: It won’t be the last! 🙏
I‘m a professional video photographer and video editor for over 18 years now (but mostly doing stuff for TV) so it was kind of „obvious“ that a new video came into my CZcams feed, but watching the first minutes of this video was hard, but I‘m really happy that you‘ve found a way to deal with your „situation“ and that you actually had the joy of an improvement 👍
So therefore I wish you all the best, after watching the first 7 or 8 minutes of this video I paused it, liked it and of course subscribed to your channel 👍
As I said: I will definitely start to watch many other videos you made, cause now I‘m curious 😉
Thanks for being so openly and honestly to us viewers, not many people let strangers take a kind of „inside look“ 👏🙏
But I really appreciate that and I want to give back something, so I‘ll watch a bunch of your videos and like them, etc.
By the way: I‘m a „heavy“ user of Sony cameras (FX7/FX9, FX5/FX6, Alpha 7SIII and Alpha 7IV), but on the other side I really like your „open mind“ (using other brands, cameras, lenses, etc).
That being said, I wish you and your family all the best and stay safe!
With best regards from Germany 🇩🇪, Philipp 👋
EDIT:
Please ignore any mistakes I made, I usually mess up the English language I use 🥴😆 (but for obvious reasons I guess: I’m not a native speaker 😉)
I feel your pain and anguish. I lived like this for more than 10 +years with extreme pain, brain fog, depression. I too have changed my diet and reduced many medications with positive results. So happy for you that life has improved for you. Prayers for continued healing!
good on you for pushing through when the light is darkest
I'm not a photographer, so don't ask me why this was on my algo, but your candor and story are so validating for me.
I am fortunate to not be in physical pain and am fully physically able, but I suffer from pretty debilitating mental illness. Deploying "fake it til you make it" is the only thing that has gotten me through life, and it sounds like you're a believer too. Today was an incredibly challenging day, but your story was enough to inspire me to try again tomorrow. Thank you, Mark.
Congratulations on your progress both in terms of your recovery and growing your channel.
Stories of people like you and him battling diseases heroically while most of us enjoy a healthy life and still complain remind me to appreciate this life. I wish medicine would be advanced enough to make everyone better. Good luck and thank you!
@@mihnealazar7039 oh goodness thank you for sharing that. Today I have felt much better, and now I'm feeling even more validated, thanks to your message. I too wish medicine could just take away all the world's hurt. But I'm so grateful for people like you who go out of their way to understand. Thank you for spreading kindness and empathy!
keep going there is light at the end of the tunnel,my son has been ill with mental illness since he was 15 years old he is now on the road to recovery at 43 it has been a very very tough ride for him but l must say there is hope so keep going it is worth it
@@jaysea1553 thank you! I am nearing 40 with my own kids entering their teens, and couldn't have done it without them. I've got a long history of wins and success to reflect on when times get tough, but kind words are always a welcome occurrence. Thank you so much for being a committed, attentive, and loving parent.
1. mental illness is often tied to diet. Sugar is particularly horrendous. I'm sure you're aware that your gut is also called your 2nd brain.
2. Psilocybin and Ketamine are tremendously effective single treatments against untreatable depression.
3. If you're psychologically fit enough and don't suffer from borderline personality disorder, or dissociative disorder, I can recommend resources that will prove, as best humanity can offer, that you live beyond death.
A gentle introduction that won't put you at risk of a psychotic break is JeffMara's channel. He has interviewed hundreds of NDE cases.
If you think you're ready for substantially deeper than that, I can recommend, but it can be risky for some minds.
Hi Mark - I'm a therapist that works with the central nervous system - what you described here is in a nutshell very similar to the pain management program I use to desensitize the nervous system and trigger a healing response. To avoid a lot of medical gibberish - meditation/mindfulness/gratitude/presence practices switch off the pain cycle. It basically works for most chronic pain sufferers that have a central hypersensitivity. flare ups can happen, but really the focus is to do things that, in lack of better wording, 'bring you joy'. You basically healed yourself :) excellent job! I don't follow your channel, but I'm glad the algorithm brought me here today, was worried about a particularly tough case and was thinking that maybe I'm not equipped to take it on, but trying something is better than not trying at all, just the concept of advocacy is a strong enough medicine sometimes.
Hey Mark. I have watched you over the last couple years once I started getting into mirrorless cameras and finding the best lenses. You helped me learn a lot about lenses. Thank you so much. I just happened to see this video and feel encouraged and blessed that you have shared this. Praying for you and your family. I will continue check your videos
What I think is amazing about your recording essentially out of a closet is that your audio sounds good even when your mic is out of frame. I have an actual recording studio with acoustic panels, base traps, corner traps etc. and I'm not satisfied with my audio if my mic is very far away so kudos to you on that.
And thanks for a video on your personal journey, I'm glad you're not actually stopping your content creation (even if that was a bit click baity). We can't handle losing DPreview and your channel in the same week. :-)
I have no idea why CZcams's algorithm put you in my feed; but here we are and I'm not even mad. You are an inspiration and I'm so glad for the alignment of planets that brought you to my feed. We don't share the same hobbies, though I'll be sure to come back to your channel for information should I ever take it up. But I'll continue to watch because you are a being of good in a world where good seems increasingly rare. Thank you for being; and thank you for making this video.
What a fantastic human being you are. All the best life has to offer.
Stay strong man, your strength is inspirational.
Mark, I can only imagine what you've had to deal with, physically but also the dark emotional side of first the uncertainty before it was undiagnosed, but then the implications of the illness, now that you know what you are dealing with. I appreciate all your honesty in sharing this with us. You are a role model for us on how to grapple with the very difficult terms for living that you've been dealt. Prioritize your family and loved ones. We'll be here when you feel up to it. As a fellow former Michigander, wishing you strength, Craig
Wow, you scared me with your title and the way you started so I'm so very delighted to hear how you've so courageously pushed through your struggles and thank you for sharing this with us. As a fellow Michigander here (grew up in Ann Arbor/Saline), you've proven such grit and strong character choosing to persevere as a good Dad over succumbing to your rightful feelings of painful physical and mental despair. Your videos provide not only wonderful photographic and audio education to so many but also stand as a legacy your children will no doubt cherish seeing their loving, strong Dad long into their futures. Thank you for courageously sharing your challenges with us and may you continue prosperously moving forward with stable, endurable health. It was cool to see the "wizard behind the curtain", too...literally behind the curtains 😄 👍. You always have a Michigan (Grand Rapids now) connection if you so ever need...please feel free to call upon me. Peace and well-being, brother!
You seem like such a good dude. I hope your health continues to improve. I wish you all the best with all your new endeavors.
I hadnt seen your videos before but I am glad You tube suggested this. I admire your courage and strength. Wishing you much continued healing and improvement. ❤
What a heartfelt video. I bought my m6 II because of your videos and bought lens based off of your videos. You inspired me with your enthusiasm and have helped create a new passion in my life and I want to thank you for all you’ve done. Here’s to overcoming your health struggles 🎉
I like that the painful, personal story becomes a room tour. Only on CZcams! 😂
I mean it, I love your personal honesty AND your love of filmmaking! I admire your passion in the face of adversity.
Can’t wait to see the next era. Thank you for your authenticity
You are such a strong and courageous human being and wonderful Father. There are dead beat Dads out there that don’t see their own children and are perfectly healthy. That’s a miserable existence. One day your children will realize what a beautiful gift of yourself that you give them. Praying for you, praying for your family and thankful for you!
Thank you man, you are a great source of inspiration for me. You made my day better, thank you.
When I got started with my first camera, it was a Canon M50ii. I learned so much from your videos in that first month with it, and I want you to know that you really made an impact making me a better photographer. Thank you, and I wish you health.
Hey Mark, thanks so much for sharing your story and being so real with us. It’s so inspiring to hear you overcome your limitations, and i wish you an even better recovery than you’ve already experienced. I can definitely say that I’ve learned alot from your channel, and i can’t wait to see what you do next with the channel!
Your video just popped up on CZcams…..(I’m not into photography except for enjoying seeing the results!). And I watched it ….. Your story is so touching. How frustrating and discouraging it must have been. You look and sound so good now. And sharing what you’ve been through, and continuing to journey through, will continue to be an encouragement to many to many people if all kinds of ‘impossible’ situations. My prayers for you and your family in this new big step in your future!!!!!
Sorry this happened :( I really do hope you keep that strength. Your children are very important.