Juliana's FINAL DAYS (REDO)

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  • čas přidán 6. 12. 2016
  • I decided to delete the video, I posted, of Juliana's final days and remove certain scenes. As of today, December 7, 2016, Johns Hopkins Hospital has yet to provide us with a logical reason why Juliana's health declined so rapidly starting on October 20, 2016.
    She started a rapid decline the evening of October 20th and EVERYONE told us it was the result of the pain medications. We want the truth. She died on October 24. As of today, Johns Hopkins is refusing to have another meeting with us to address some of our questions regarding her death as they couldn't answer a few of our questions in our first meeting which we initiated. NO ONE, FROM THE HOSPITAL, TOLD US SHE WAS GOING TO DIE SOON. She was scheduled to start new cancer treatment on October 26th.
    NO ONE contacted us, from the hospital, after her death (except for a doctor and a nurse coming to the last viewing)...NO ONE. It was like we didn't even exist. Yesterday, the hospital said they will send us a letter in the next thirty days to explain how and why she died. We deserve the truth. We deserve answers. There was something that happened between Thursday (October 20) and Friday (October 21) the day she was discharged from the hospital. We can't be the only family who has had a similar situation happen to their child.
    The gaping hole in Tammy's heart and my heart is growing and growing every day. We don't know what happened...for sure. We want the truth.
    Love you all!

Komentáře • 10K

  • @balintanna2311
    @balintanna2311 Před 4 lety +3190

    I was born in the same year as her, i turned 18 just a couple of moths ago, I never realized how lucky i am, just to be here, just to be healthy. Rest In Peace little angel.

  • @TaraVixen
    @TaraVixen Před rokem +140

    I was a cancer nurse for adults, and one thing all family members do is try to “feed” their loved ones as they think it will give them strength! We used to take the water etc away once the patient was loosing consciousness as families would still try to give it to them causing them to aspirate.
    I don’t understand why this family were not given mouth swabs to moisten her lips. They are flavoured and can be used safely to moisten the mouth, or If you want to moisten the lips and mouth please do it using a sponge in tiny amounts to avoid aspirated pneumonia.
    Unfortunately no one can tell you how long someone will last & this is common during cancer treatment that patients will take a sudden turn for the worse but the family should have been told that she would be going home to pass away not to recover & if they were not told that the signs were obviously there l, then the hospital is negligent.
    It is the morphine that aids a painful death and when given in the hospital it’s the build up that slows the breathing down with added sedative that gives a peaceful passing.
    This family should have been given mouth swabs and a machine to administer morphine & sedative so she wasn’t waking and was peaceful.
    I’ve given many patients a very peaceful passing from cancer and it can be a very pain free peaceful passing if done properly & can be done in the home with family around them.
    If this family were not told that the signs, when she left the hospital were that she would be going home to pass, then this hospital was very negligent and should have to give answers why she was not discharged with the meds etc to have a peaceful passing with her family and her little dog Maddy.
    I struggled to watch this video as a nurse & a mother, as it could have been far more peaceful for Juliana and her family, and with the right advice & equipment to give her a far more peaceful passing.
    Passing does not have to be painful, it can be done peacefully but it must be planned and it must be with medication which unfortunately means your loved one will be unconscious and will not regain consciousness but it will be peaceful. it also can only happen if the family are ready for that and understand that to pass peacefully they will be unconscious which is the hardest part for families to except. The hardest part is accepting the signs and knowing it’s time to give up the fight & now time to say goodbye and give them the best passing we possibly can, free of pain surrounded by their loved ones surrounded by love.
    My heart goes out to this family and what they had to go through watching her pass this way 😢💔 RIP Juliana 💔xx

    • @Numb217
      @Numb217 Před 6 měsíci +16

      This was the best comment I have read. You are a great nurse. I have had many Hospice patients pass very peacefully.

    • @jenniferfatzinger7714
      @jenniferfatzinger7714 Před 6 měsíci +10

      My mom died of cancer 12 years ago and she died in the hospital and they gave her morphine for the pain which helped her so I agree.

    • @eruncensored
      @eruncensored Před 5 měsíci +5

      I really struggled watching 😢 for the same reasons my heart is torn nobody prepared them!

    • @jenniferfatzinger7714
      @jenniferfatzinger7714 Před 4 měsíci +6

      I totally agree with you.

    • @juniordixie9489
      @juniordixie9489 Před 4 měsíci +3

      @@eruncensoredI think they did and they were in denial.

  • @Italian_girl89
    @Italian_girl89 Před rokem +71

    Juliana was already dying when Miss America visited her at hospital 😢
    Her skin color changed and she struggled to breathe and stay awake. Poor sweet soul.

    • @rachelreid8621
      @rachelreid8621 Před 9 měsíci +12

      I agree. I noticed she had mottling in her videos a day or 2 before, and then when Miss America was visiting ,it looked like she started going through agonal breathing.
      My heart goes out to her parents, as I know this is not anything any parent wants to go through.

    • @Tracy-rf7ri
      @Tracy-rf7ri Před 7 měsíci

      @@rachelreid8621 Miss American need to gtfo

    • @nancysacca6813
      @nancysacca6813 Před 3 měsíci +1

      I thought the same thing ❤

    • @jenniferfatzinger7714
      @jenniferfatzinger7714 Před 3 měsíci +3

      She was on morphine and some other drug when miss America was there.

  • @joannerawles1622
    @joannerawles1622 Před rokem +141

    One the saddest videos I've ever seen. But what an amazing young girl she was and how strong she was with all she went through. How she fought so hard to fight this illness and won only to have it come back again, and again. She deserves a medal for her bravery and the battle against cancer. It was so sad that she just couldnt fight it anymore. RIP Juliana with your angel wings and no more pain.

  • @marciaclegg6005
    @marciaclegg6005 Před 3 lety +750

    I am a hospice nurse, no one no one has the right to tell her family what they should do unless they have walked in these parents shoes for a mile
    Rest in piece with God, where their isn’t any pain . Thank you God for this brave child.

    • @joannebrown6163
      @joannebrown6163 Před 3 lety +35

      I couldn't agree more, I have so much respect for the parents who have terminally ill children, and the hospice nurses and doctors. You are all amazing xx

    • @annekalunn8567
      @annekalunn8567 Před 3 lety +13

      I lost my first uncle cancer and lost my grandma to cancer and Alzheimer’s

    • @nikki3726
      @nikki3726 Před 3 lety +26

      Piece? Really?

    • @mythoughts6922
      @mythoughts6922 Před 3 lety +13

      Totally agree, and I have done hospice cases as well. Very hard for her to suffer, as well the family and to feel helpless. You do all you can, seek all the help you can. Then it comes down to the ( Cancer) illness, prognosis, her body, immune system, treatments available, the effects of those treatments, chemo, radiation, medication and etc. And perhaps some spirituality as well.

    • @MaestroStefanoPetrini
      @MaestroStefanoPetrini Před 2 lety +16

      begin to realize that we are only animals who get sick and in the eyes of the universe we are nothing.*Ps any god doesn't exists

  • @jeanmyers1787
    @jeanmyers1787 Před 2 lety +277

    I’m 68 and lost my husband when he was aged 63 to cancer. We thought we were so unlucky, and we were but when I see these children going through cancer eight times before dying my heart goes out to them and their parents.

    • @steveclinton4084
      @steveclinton4084 Před rokem +8

      Hello jean how are you doing hope you’re having a great time with your family may God bless you and your family

    • @claudiakrizay
      @claudiakrizay Před rokem +2

      I feel the same way. So sorry about your husband.

    • @joetisdale30
      @joetisdale30 Před 9 měsíci +3

      I lost my husband who was 39 to cancer he fought it for 10 years at the end of it he was at such a peace because of his faith but he was also blessed because we had a great hospice nurses .I would also lose my mother and my father 2 and 3 years later to cancer as well. I would not want to watch my child suffer and die from this awful disease. It is so heartbreaking maybe one day they will find a way to cure this disease. Prayers sent.

  • @eruncensored
    @eruncensored Před 5 měsíci +36

    As I study to become a hospice nurse I really wished someone would have told the parents the truth that she was actively dying and it was time to just make her comfortable. It Seems these parents weren’t properly prepared and it makes my heart hurt. They really thought they would be able to get her more treatment. These beautiful parents did the best they knew to do and I know she thanks them for it. So beautiful mom was right by her side rubbing her into the next realms. Fly high beautiful angel❤

    • @user-fo3oq7in9t
      @user-fo3oq7in9t Před 4 měsíci +1

      I disagree with you because god is not though yet and maybe they already know but Jesus Christ is powerful

    • @RandomComment6
      @RandomComment6 Před 4 měsíci

      @@user-fo3oq7in9twhy would God allow this?

    • @Jessica-wo6px
      @Jessica-wo6px Před 27 dny

      I do agree there could have been a lot more better communication between the parents and the hospital. The doctors didn't properly explain to them that she was nearing the end and the parents didn't properly handle it as a result. I'm not blaming them and ultimately, cancer is the real evil here. I'm sure everyone involved has some regrets and wish they would have done things differently.💔

  • @Melissa-JC
    @Melissa-JC Před rokem +138

    Okay, I tried holding back the tears, but I couldn’t. The tears really flowed. Gone to soon in life. She fought hard. Her doggy Maddie, definitely knew something was really wrong. Dogs are very intelligent (except when running into the traffic) & they can sense feelings and illness. What a loving fur baby she had. And how much Juliana loved her Maddie. 😢💔

    • @lourdesleone5990
      @lourdesleone5990 Před rokem +6

      Muito triste chorei muito 😢😢

    • @ginnyronning9532
      @ginnyronning9532 Před 4 měsíci +1

      How sad, how lucky I am!! THANKYOU, what a awsome gal you are through and through

  • @marjoriepope7015
    @marjoriepope7015 Před 2 lety +547

    2 days before she died and she was still smiling at the camera. What a sweet soul

    • @Italian_girl89
      @Italian_girl89 Před 2 lety +19

      Yes, she was something of extra special ❤️

    • @liztrainer895
      @liztrainer895 Před 2 lety

      Was hoping she would beat this

    • @sumachizs3262
      @sumachizs3262 Před rokem

      I mean she didn’t know that she should die two days later

    • @torimig2151
      @torimig2151 Před rokem +8

      @@Italian_girl89 you can see her color change grayish

    • @flowermusic3487
      @flowermusic3487 Před rokem +2

      @@torimig2151 so?

  • @lisaedenshaw-krieger4241
    @lisaedenshaw-krieger4241 Před 2 lety +193

    I lost the love of my life to colon cancer. It was heart breaking when her breathing changed. Reminded me of what I experienced. I tell myself that I enjoyed the days we has and cherish the memories. What a precious daughter you had. I saw the love you all have for her.

  • @NightGazer
    @NightGazer Před 2 lety +58

    As a person that has seen death many times over in my job. You never, never force fluids. She could have aspirated, she would have been gone sooner then later. She was in her final stage, you hold her close and tell her love her.

    • @albertao4074
      @albertao4074 Před rokem

      Likely morphine

    • @NightGazer
      @NightGazer Před rokem +5

      @@albertao4074 If that is so, then they should have done a butterfly. Less invasive.

    • @nataliechild9163
      @nataliechild9163 Před rokem +1

      Put the video camera down and hold your dying daughter for the love of God!

    • @plantpants3746
      @plantpants3746 Před 10 měsíci +6

      I am assuming there were no hospice workers to give mom advice.

    • @NightGazer
      @NightGazer Před 10 měsíci

      @@plantpants3746 Since she was passing away at home. There would have to be hospice nurses stopping by.

  • @olivedog1880
    @olivedog1880 Před rokem +100

    Maddie was such a loyal pup. Rest in peace, both of them 💔

    • @Jessica-wo6px
      @Jessica-wo6px Před 27 dny

      May she and her Momma fly in Heaven💔💘😇

  • @simplyxaxby2732
    @simplyxaxby2732 Před 3 lety +405

    Wow. Battling cancer 8 times before losing the battle is incredible. She is a strong fighter, she is probably watching over you in heaven right now. She is in a better place, you will see her up there when your time comes. So sorry for your loss. Praying for you Julie and your family.💜💜

    • @ourcreatorwords933
      @ourcreatorwords933 Před 2 lety

      know about our Creator czcams.com/play/PLinLM3tHjYbzxXM-jizfjwycrMXipFhI5.html

    • @arsheenzahid1972
      @arsheenzahid1972 Před 2 lety +2

      @@brandieubanks8980 cool down mate what's your problem 😆

    • @MrSpecificity
      @MrSpecificity Před 2 lety +2

      You can say that again

    • @angmoulton8528
      @angmoulton8528 Před 2 lety +3

      I think this is beautifully written 💓

    • @babyhandgrenade4004
      @babyhandgrenade4004 Před 2 lety +4

      I know she is. I've heard that your loved ones can see you in heaven while you're on Earth but to them it's like looking at you from the Next Room. That gave me a lot of comfort because I lost my grandma in 2006 very suddenly and I know she's still around.

  • @Kat-lg9zm
    @Kat-lg9zm Před 7 lety +1249

    She had the death rattle in her breathing. Her lil body was tired. Rest easy sweetie

    • @jamsla2635
      @jamsla2635 Před 5 lety +113

      Roxelle The Great yea she did. U could easily tell how bad she was suffering, at least the dog was w/ her showing her love. Hope she found some comforting w/ her fur baby. Poor baby. Id be cuddled up w/ her till she passed.

    • @albertinapeswa
      @albertinapeswa Před 4 lety +13

      Rest

    • @inavanmourik4792
      @inavanmourik4792 Před 4 lety +24

      Ik heb met verbazing een stukje gekeken van de opname van het stervende meisje. Hoe kan je als ouder zo iets filmen. Dit is zo privé in mijn ogen. Waarom gingen de ouders niet naast haar liggen haar knuffelen en haar kussen. De enige die ervoor haar echt was is het hondje. Rust in vrede lief dapper meisje

    • @adelaidemarie
      @adelaidemarie Před 4 lety +43

      Jams La at least the dog? Are You Trying to insinuate her Parents didn’t Love her. Jesus how cruel Are you?

    • @shannonbuschman9593
      @shannonbuschman9593 Před 4 lety +48

      @@Italian_girl89 I thought the same thing why wasn't the child back in the hospital,? Too many people in the room and everyone asking questions like she could talk and answer back

  • @gloriasantana7937
    @gloriasantana7937 Před 2 lety +92

    When that lady told that sweet little angel that they were doing Pizza without her I thought was the cruelest meanest thing anyone could ever tell a sick dying child that couldn't eat. But could still hear you and understand what you were saying. That was so cruel !!!!!!!!!!!!

    • @scratchy1704
      @scratchy1704 Před rokem +2

      Yes such an ignorant person.

    • @kimbauman3733
      @kimbauman3733 Před rokem +11

      Definitely cruel

    • @x_aj_x1157
      @x_aj_x1157 Před rokem +14

      People say and do weird things in situations like these. Try not to judge too harshly. Sometimes people don't know how to deal with these kinds of situations or even know what to say . Watching a child actively die in front of you is kind of hard to take in on an emotional level I would imagine. You could liken it to people who laugh at funerals. It's not because they aren't sad, but kind of a nervous/anxious response.

    • @maryannewebster4100
      @maryannewebster4100 Před rokem +9

      Hi Gloria Santana its Maryanne from the UK yes i really do agree with you what that lady said was the cruelest thing that you can say to a dying sick child and actually i get the same thing because I can't swallow any solid food's because my food pipe doesn't work I was born like it rest in peace Juliana and I'm so proud of you you were so brave all through it well done baby girl we will all miss you until we meet again when we go to heaven❤

    • @belabelutsa2099
      @belabelutsa2099 Před rokem

      the lady in red or miss?

  • @JayLang7
    @JayLang7 Před rokem +81

    Looks like the dog knew and was there to support his best friend. It’s really hard to watch this without having a flood of emotions. Can’t imagine how hard it was for her and her parents. Rip little angel ❤❤❤

  • @blinkfan5735
    @blinkfan5735 Před 3 lety +328

    It breaks my heart seeing beautiful babies go through this type of situations...Rest In Peace beautiful princess

    • @elissagubber410
      @elissagubber410 Před 2 lety +10

      I just said this isn't right it literally tears my heart to pieces i lost my husband last July 27th 2020 from cancer they found it and he passed 50 days later he turned 55 on July 23rd 4 days later he passed his sister passed away this yr on his first Heavenly B'day July 23rd she also had cancer. I'm tired literally just tired of CANCER especially this lil ones they don't deserve to go through any of this they should be playing with Friends,riding their bikes,laughing, and all the other good stuff that kids like to do I am so sorry for the family my heart and prayers go out to you...😔🙏🏽💗🙏🏽

    • @vijayalakshmi-kb8dw
      @vijayalakshmi-kb8dw Před 2 lety +4

      Its really heartbreaking.

    • @merugubhanuprakash6084
      @merugubhanuprakash6084 Před 2 lety +4

      You are an blink l am blink and army

    • @ericmugambi4951
      @ericmugambi4951 Před 2 lety +1

      True it’s really hurting

  • @tomfontaine2183
    @tomfontaine2183 Před 4 lety +73

    I'm a 62 YO man and I'm balling my eye's out, May she rest peace. I watched far too many in my life pass, It doesn't get easier.

  • @mikayla521
    @mikayla521 Před rokem +73

    Now that I have had time to think about this, I think the reason why the hospital stopped any new treatment is because they felt she had been through enough. She knew was not going to get better, even though the parents wanted her to press on, you can see she had gone a long ways already, she was suffering, by the time they took her home she was barely eating , I think the hospital knew she had been through a lot in her well young life, and enough was enough. I have read the whole story, and I cry every time I think of what she went through, her bravery, her courage, and her willingness to keep fighting, and always with smiles, and love for all who loved her back. It is because of things like this that I question my own faith!

    • @MireilleSXXX
      @MireilleSXXX Před 9 měsíci

      The hospital didn't stop new treatment. After they found that she has cancer again, they scheduled treatment for the following week. Juliana was taken home only for the weekend and should be back on Monday. But the day before she left hospital, they gave her a doubled dose of painkillers and from that on she declined rapidly. But nobody had any idea that she could die 2 days later. Nobody was prepared for the catastrophe. After she had died the hospital officials refused answering the parents' questions. The parents guessed that she could have died of an overdose of her painmeds. And in my opinion is that the most probably explanation for what's happend with Juliana that weekend when she died with her parents at home.

    • @user-mr8ep9lv1i
      @user-mr8ep9lv1i Před 8 měsíci +7

      71 here & been thru so many loses in my lifetime & this still breaks my heart. 😰 What a brave soul this child has! She's still with us ❣

    • @gamingforever6687
      @gamingforever6687 Před 8 měsíci

      Its genocide. The medical jouranals state that chemo and radiation dont work. Doctors make direct cuts from prescribing these. High grade pure THC oil and a gallon of raw juicing a day would have cured it very easily. MD directed medicine is the NO1 leading cause of death, most of it doesnt work. GOOGLE IMAGES - ACIDOSIS CYCLE.

    • @seer1623
      @seer1623 Před 8 měsíci +12

      This poor little girl should have been in a hospice or properly medicated so she didn't experience so much stress and pain. At the 11th hour the parents dropped the ball. She smiled and played with that puppy because mom and dad desperately needed her to, not because she had it in her at that point. What a loving, selfless girl. Thank goodness she's at peace.

    • @gamingforever6687
      @gamingforever6687 Před 8 měsíci

      Be quite NPC, your drone responses go unheard, go talk to the wall.@@seer1623

  • @libbypropp4846
    @libbypropp4846 Před 2 lety +305

    I watched a Frontline episode recently called "Being Mortal" where a doctor talked about how bad the medical profession can be at having very honest and tough conversations about death. And so often families don't know how dire their loved one's prognosis truly is and decisions about hospice and palliative care can't be made. This feels like a heartbreaking example of this problem. We have to get better at talking about death

    • @talesfromtheleashexpatdogl1426
      @talesfromtheleashexpatdogl1426 Před 2 lety +9

      Yeah because none of us get out of here alive. RIP sweet angel

    • @estelleschneider9033
      @estelleschneider9033 Před 2 lety +14

      We need Jesus yo be able to do that..by the Holy Spirit..LOVE

    • @jennybyrd2818
      @jennybyrd2818 Před 2 lety +27

      Yes! Death needs to be destigmatized because we all will face it. Its one of the few things in this world that every single person will go through. Even as a person with a chronic disease my dr appointments are confusing at best. Families need to be told the truth as soon as that decline starts to happen because it will make the death a little less traumatic.

    • @mandycote5662
      @mandycote5662 Před 2 lety +3

      That’s ridiculous!

    • @katluann
      @katluann Před 2 lety +4

      They had no trouble waving a DNR in front of my face everyday and saying he can’t make it! I said Jesus is coming do your jobs before I sue your a**! Jesus showed up and shocked the socks off them! A true miracle when they got over their shock they were happy!

  • @nadiachalabi9838
    @nadiachalabi9838 Před 4 lety +406

    I have lost my 9 years old son from leukima in December 2019. I know exactly what they have been through. There is no word to describe the pain I felt and I still feel losing my child. Only someone who went through it can understand.

    • @jamielynn8497
      @jamielynn8497 Před 4 lety +12

      I am just so so so sorry. I can’t even begin to comprehend your loss. My heart goes out to you and your family and pray for you to find the strength u need to endure 💕

    • @Overflow02
      @Overflow02 Před 3 lety +3

      Don't be sad I'm sure your angel is happy and is in a better place now. I wish you all the best ♥️♥️♥️♥️

    • @phantomvampyressshadowkiss4690
      @phantomvampyressshadowkiss4690 Před 3 lety +4

      As a mother of 2 daughters i empathize with you. Thats the worst thing ever to lose your child. I pray angels watch over you. I almost lost my 11 yr old daughter to diabetic ketoacidosis. She was just diagnosed this March of 2020. I am thankful she was saved. But i lost it when she was life flighted to children's hospital. It didnt go to her brain. Thank God. She's been type 1 diabetic for almost 4 months now.

    • @dvalin.
      @dvalin. Před 3 lety +3

      Stay strong

    • @boadiceaosei4548
      @boadiceaosei4548 Před 3 lety +8

      And I lost my eight years old son from internal bleeding and I’m not over it since 2011 😭😭😭💔

  • @it-stillhauntsme5581
    @it-stillhauntsme5581 Před rokem +27

    Trying to give fluids during the dying process is the worst thing you can do

  • @11solus11
    @11solus11 Před 11 měsíci +133

    First of all, I want to thank you for sharing this video. However, I can’t understand why doctors or anyone from the medical facility didn’t tell you that your daughter is terminal and all she needs is hospice care at home, not another treatment in the hospital. For anyone with hospice experience, it’s obvious, she was actively dying, struggling to keep herself awake for days. And I felt she didn’t want to disappoint expectations and hope put in her. That’s why it's SO important to educate ourselves not only about how to live, but how to recognize a dying process and comfort our loved ones as best we can, according to their needs, will, and body condition. Your daughter made a heroic, but exhausting battle that no one who dies should ever be going through. Nevertheless, someone fu..ked up her right to let go.

    • @violettheorgangrinder3232
      @violettheorgangrinder3232 Před 10 měsíci +14

      That narcissistic father did 🤬

    • @alisonscofield6653
      @alisonscofield6653 Před 9 měsíci +4

      I agree. However, I think that almost every medical professional absolutely hates to give up, especially on a young patient. Sometimes they continue to fight long after they should.

    • @seer1623
      @seer1623 Před 7 měsíci +32

      I've watched several of these videos, and it's obvious how much these parents loved that little girl. But what is missing is conversations about what she was feeling, what she wanted. I don't hear questions of, are you in pain? Do you want to let go? Is this too much? Do you want to rest right now, instead of making a friggin' halloween pumpkin -- days before her death. An adult can assert these needs and take charge of their passing, but a kid who's battled this vile disease for nine years cannot. The medical staff should have counselled the parents about dealing with end of life issues.

    • @marilyn60
      @marilyn60 Před 5 měsíci +2

      I stumbled on this researching a family matter. I am going to have a hard time sleeping. I can not opinionated. Therefore, I must exit and wish all a peaceful evening. ❤

    • @trickortrump3292
      @trickortrump3292 Před 5 měsíci +14

      They absolutely told the parents. This is just denial after the fact. If the parents didn’t know she was actively dying, why on earth did they not call an ambulance? They didn’t because they knew there was absolutely nothing the hospital could have done for her. They knew she was at the end.

  • @jenmarks6594
    @jenmarks6594 Před 2 lety +43

    No child should ever have to go through this. May Juliana rest in sweet peace while asleep with the angels.

  • @miasandholdt
    @miasandholdt Před 7 lety +441

    For the love of God, let the girl sleep. I don't understand why no one asks Miss America to leave so Juliana could sleep

    • @jackycook64
      @jackycook64 Před 6 lety +27

      Mia because you have eternity for that when you die. Interactions are invaluable when you are isolated in the hospital. You don't want to miss out on something special just because you are tired.

    • @notlana983
      @notlana983 Před 6 lety +80

      Its weird how they ignore the fact that shes dying.

    • @brandontsosie1734
      @brandontsosie1734 Před 6 lety +18

      Mia right that got to me too😒

    • @luisarojas7566
      @luisarojas7566 Před 6 lety +27

      Mia you’re right when you are sick the last thing you want is talking 😞

    • @cindybrooks6370
      @cindybrooks6370 Před 6 lety +14

      lana maybe Juliana accepted the fact that she was dying and wasn't afraid, we all are dying in one way or another, I'm not afraid of it, I just look at it as another step in my life.

  • @Mandy7D7
    @Mandy7D7 Před rokem +37

    It breaks my heart to know Tammy called Hospice and they never returned her calls and never showed up to help them with Julie's last days. And they released her from PICU to home? There is usually and step down process. If they were going to skip it so she could die at home fine but they never told John & Tammy their child was actively dying?
    I'm so sorry for the extra misery you and she went through as the entire medical community left you alone in your darkest time. 💔

    • @Numb217
      @Numb217 Před 6 měsíci +8

      I am a volunteer for Hospice and this makes no sense to me. We always return calls. The hospital would have known death was imminent. The signs were there even to a lay person like me. The internet is full of videos addressing these sign & symptoms. There are many videos from Hospice workers with phone numbers you can call. This confuses me a great deal.

    • @SV-hw9he
      @SV-hw9he Před 6 měsíci +7

      Not trying to hate on grieving parents, but often times grieving people aren’t the most rational… or they want to blame somewhere have it be someone’s fault etc because it’s hard to accept the painful fact their child passed from the disease. I see a lotttt of “medical negligence” videos where people are saying stuff that just could not have happened in the way they describe. Some can’t read between the lines, they are in active denial even WHEN the doctors tell them “you are dying”/“your child has terminal illness and will not recover, make the time she has her quality”:

    • @juniordixie9489
      @juniordixie9489 Před 4 měsíci +6

      He kicked them out of the house. So them not returning calls is not true.

    • @Jessica-wo6px
      @Jessica-wo6px Před 27 dny +1

      Both sides mishandled Juliana's last moments. She should have been kept in the hospital.

  • @pheble.pebble
    @pheble.pebble Před 3 měsíci +7

    It was just so sad to watch… I know Julie is in a better place now, free of pain and treatment, but she was such a fighter and a strong girl. Love her and miss her ❤

  • @paulanewhouse4252
    @paulanewhouse4252 Před 3 lety +176

    She is out of her misery now. She is at peace. An angel of god.

  • @briruiz9006
    @briruiz9006 Před 4 lety +256

    I hope she is having a good time in heaven rest in peace :(

  • @coastalcreekwoodworks8795

    What a beautiful angel ❤️... I'm surprised how much a little video has taught me about what's really important in life and what's trivial. That's the first time I've cried in decades. Rest in peace to you, and all the others.

  • @kerstinkraemer9744
    @kerstinkraemer9744 Před 5 měsíci +8

    I can't understand why parents would show off their dying child on the internet like this

  • @helenbrown6488
    @helenbrown6488 Před 6 lety +94

    I REALLY DO NOT THINK HIS WIFE WAS ALL FOR THE FILMING OF JULIE IN HER FINAL DAYS OF HER LIFE. AND I DO THINK EITHER ONE KNEW ANYTHING ABOUT DYING, HE WANTED TO BE THE CENTER OF ATTITION!

    • @brittanyherbeck3269
      @brittanyherbeck3269 Před 5 lety +20

      Helen Brown I agree. You can tell based on the looks she was giving john

  • @kathynotaro7386
    @kathynotaro7386 Před 4 lety +73

    I have been watching all of the past videos. I am an RN of 32 years. I have a lot of feelings about this little girl. The biggest one being that she was beautiful and had a spirit of no other. Her smile was contagious. God bless this family. John and Tammy, how are you doing? I hope you are finding some peace and comfort as time goes on. Your little Julianna was a doll!! She was an absolute doll, and so inspiring. xoxox

  • @Welp503
    @Welp503 Před rokem +12

    This is disturbing. That little girl should have been in hospice. She’s gasping for air why are you shoving tea down her throat??? I truly hope to god that she wasn’t suffering in the end.

    • @juniordixie9489
      @juniordixie9489 Před 4 měsíci +3

      She was. The father kicked them out. He deleted that video.

    • @pigtailsandteddybears
      @pigtailsandteddybears Před 3 měsíci +2

      ​@@juniordixie9489 Was there a video showing more of her final day or something? I keep seeing people discuss how hard it was to watch, more than this "redo" video.

    • @juniordixie9489
      @juniordixie9489 Před 3 měsíci +3

      @@pigtailsandteddybears there was but the dad deleted parts of the family telling her it was ok to go to heaven

  • @theresalero7039
    @theresalero7039 Před 8 měsíci +18

    I'm very sorry for your loss. As a Nurse I know that we can't always predict the path a terminal patient may take. Life and death aren't always logical and yes, that sucks, but it's a fact. I'm so sorry.

  • @Fiona-sg9wh
    @Fiona-sg9wh Před 3 lety +233

    The medication didn't make her worse. I am an ICU nurse and have seen many die from cancer. I could tell she was in the process of dying from the beginning of the video. Rest easy in knowing that and that you were all with her.

    • @ella-bt8hp
      @ella-bt8hp Před 3 lety +14

      Why didn't the family know this? Very upsetting knowing they believed she was going to get better 💔

    • @tiffany3294
      @tiffany3294 Před 3 lety +49

      I'm not a medical professional I work in the hospital a little bit as a unit secretary but even someone like myself could tell at the very beginning that she was actively dying and going downhill. It breaks my heart

    • @tiffany3294
      @tiffany3294 Před 3 lety +22

      @@ella-bt8hp I think people just don't feel comfortable talking about death especially when it's a child maybe they were hoping things would change

    • @caroltaylor3931
      @caroltaylor3931 Před 3 lety +32

      Me too, she was starting to Cheynes Stoke before even leaving the hospital! The transfer from hospital to home would have caused her great pain, she would have needed extra meds for the journey.

    • @th3azscorpio
      @th3azscorpio Před 3 lety +40

      @@ella-bt8hp They knew she was dying, they just chose not to accept it out of grief. Don't blame them one bit, having been there myself.

  • @EmanViam
    @EmanViam Před 4 lety +460

    I believe that her father just wanted to memorialize her. Don’t judge. Yes, my husband died and it was way worse, I didn’t film anything of course. My life is destroyed. Seeing this makes me connect with her family. There was nothing they could do and that must’ve been horrible. Don’t judge.

    • @amandalyubelsky5251
      @amandalyubelsky5251 Před 4 lety +2

      Joesndanuyankifan 6 days ago l believe that father just wanted mezireaz her yes my husband died it wrs worse l didn’t film anything of wanted memoirs Don judeg; Yes my husbdan died and it wigh her family There weas nothing of and that

    • @KristineMarieTxSPI
      @KristineMarieTxSPI Před 3 lety +16

      @@amandalyubelsky5251 ??

    • @woody4984
      @woody4984 Před 3 lety +35

      How can you tell that it was a lot worse for your husband??

    • @EmanViam
      @EmanViam Před 3 lety +6

      michelle wood seriously!

    • @EmanViam
      @EmanViam Před 3 lety +5

      Amanda Lyubelsky huh?

  • @bequietkitty
    @bequietkitty Před 8 měsíci +9

    The more you put fluid in her mouth the more fluid seeped in her lungs. The body has no strength anymore to flex the way it needs to fully pass things through.
    She needed medicine that could sedate her so she could have passed in peace, completely pain free.

  • @blugreen123
    @blugreen123 Před rokem +5

    Something's not adding up. Why were they giving her liquids? Commanding her to "swallow it down and not choke on it" was inappropriate. Why did they not take her back to the hospital or call 911 when she was in obvious distress. Where was hospice? She should have at least been on pain medication.

    • @Jomac87
      @Jomac87 Před 3 měsíci +1

      They refused to believe she was dying which is why hospice wasnt involved. Then they may have been told to notgive her fluids but they were so pigheaded in their belief that she wasnt dying. The only one that suffered due to their arrogance was Julianna!! Anyone who tried to advise them were shot down. John had to remove parts where he was shown to be a control freak who believed he knew better than doctors. A silly old fool who caused his daughter more distress than was needed. The first thing a hospice nurse will tell yoh is not to give a dying person fluids. This is how i know they refused hospice input!! He was more interested in getting "celebrities" to visit Julianna than actually interacting and listening to professionals who could help Julianna in her final days. Dont think Julianna wouod be interested in talking to an old woman and Miss America especially when she was feeling so crappy, you even see someone taking pics...why? Who is this to benefit? Seems to me it was to stroke the dads ego rather than help Julianna!!Says everything about the parents!!

  • @myleshiasmith1813
    @myleshiasmith1813 Před 4 lety +649

    You can’t tell someone on how to deal with losing their child . Just because they chose to film it doesn’t make them bad parents or not having compassion for their daughter. Death is a natural thing and a lot of people don’t even get a chance to say goodbye. They wanted to have and share the last moments of her life on film & probably for them self and to show others who might be or have gone through similar situations know that they’re not alone .

    • @Jill.McGlothlin42
      @Jill.McGlothlin42 Před 4 lety +54

      Myleshia Smith I followed her journey on FB and John was evil. He forced Julian to hang on and he used her. We’re not judging we know what we saw.

    • @jeanne9729
      @jeanne9729 Před 4 lety +15

      I agree, Of course a parents will video every chance they have, knowing full well they may your last memories.

    • @Jill.McGlothlin42
      @Jill.McGlothlin42 Před 4 lety +47

      Jeanne No, it was much deeper than that. You would of had to follow them from the beginning. He was seriously very controlling and a narcissist. Tons of people on his page spoke about his behavior. He basically had no relationship w/ his other kids. It was very sad to watch.

    • @jeanne9729
      @jeanne9729 Před 4 lety +5

      I did follow them from the beginning. 😊 Not sure what you mean , first time I ever heard that .

    • @Jill.McGlothlin42
      @Jill.McGlothlin42 Před 4 lety +37

      Nanny Slime Yes, very strange. Did you see at the funeral he was the only one who didn’t hug his kids? They never really spoke to him and they always acted scared of him.

  • @ellennghihepa9067
    @ellennghihepa9067 Před 4 lety +88

    The easiest part is knowing when shes gone, her pain will be no more. The suffering ends. 😞😞😭

  • @Wassuppples
    @Wassuppples Před 2 měsíci +4

    I know this was an “old” video do, but I am glad YT brought me here. I found it hard to watch at certain times. I couldn’t even handle some of the scenes when she was at home. So, I can’t even start to understand how her family remains to feel. I just hope at this point in your life, that you only remember all the wonderful memories you had with her. She truly is a hero. Her spirit and soul was strong. It was why she fought for so long. Even until her final hours, she didn’t want to disappoint her parents.
    I had a friend who went through stage 4 of a very rare form of leukemia. He didn’t find out until it was already all over his body. The doctor gave him only weeks to live. Actually, the doctor was shocked to see his test results and was surprised he was still around and fighting. The doctor told him that he should have died already. He was strong and he was a fighter.
    I know you might still have so many questions, but I wanted to tell you that the doctors had told my friend that if he was still around to fight it, that there was a new treatment that they can have him try out. He never made it to that appt. Two days before he was scheduled to start the new treatment, he died.
    I hope you find solace in knowing that you raised one amazing young lady and that one day you all will be together again.. Until then, know that she is still around you as you continue with your life (no matter how hard) that when your time comes, she will be there with you helping you through it.

    • @Jessica-wo6px
      @Jessica-wo6px Před 14 dny +1

      My heart breaks for her parents. I can't imagine how it must feel to watch your baby get cancer eight times then lose her after fighting for her life for so long. Bless them💔💔💕💕

  • @amandamiller7926
    @amandamiller7926 Před rokem +6

    I'm very confused why they didn't have a hospice nurse or why they didn't take her BACK to the hospital if they thought she was over medicated???

  • @suchitraroy1758
    @suchitraroy1758 Před rokem +20

    These few moments had such uplifting effect on Juliana. That she is struggling to breathe is obvious, yet these few moments shown in this video had definitely been positive for Juliana. The fact she is so sick cannot be changed, but a few moments of normalcy is wonderful. Having being critically with lung disease last year snd almost not making it, I can almost feel her struggles to breathe. Now she is pain free. May Juliana Rest In Peace, angle.🙏❤️

  • @smitatripathilifestylewith2122

    One can clearly see that mom is trying to control her tears trying hard to look brave in front of the daughter god bless

    • @mauricedebrosse9047
      @mauricedebrosse9047 Před 4 lety +3

      Patti Lanni And what ? (Et alors) ?

    • @enzapatriziafichera7519
      @enzapatriziafichera7519 Před 2 lety +2

      Che dispiacere !!

    • @smitatripathilifestylewith2122
      @smitatripathilifestylewith2122 Před 2 lety +3

      Juliana you were a fighter I can never forget your brave smile in front of the camera inspite feeling so much of pain .
      Rest in peace, love from india .

    • @michellemartinez5337
      @michellemartinez5337 Před 2 lety +13

      @@brandieubanks8980 it is her daughter ...she adopted her so that is her. Legal daughter shame on you to come on this page to be ugly on a family who shared their daughters last days

    • @my4daughters
      @my4daughters Před 2 lety +2

      @@brandieubanks8980 spend some time broadening your vocabulary! There was no need in jumping on this lady for her comment, there was nothing ugly or hurtful said! As a Mom of a daughter that has fought cancer twice now, it is okay to cry with your babies and communicate that we adults are scared or hurting too. I pray u never have to face a day like this family has!! Another tip if u wanna troll get off videos of parents sharing intimate and personal time with their sick child bc there are Mothers out here watching to prepare themselves for similar situations!

  • @ronmendoza4916
    @ronmendoza4916 Před 3 lety +80

    Poor girl. Sounded like she was in pain in her last days. No way I'd like to go out like that.

    • @darrylbutler5993
      @darrylbutler5993 Před 2 lety +4

      I don’t want my last moments with someone forcing raspberry tea into my mouth when I’m dying

  • @ShawnATX
    @ShawnATX Před 3 měsíci +2

    Instead of helping, I'm super glad dad recorded this.

  • @paulinekirkham7945
    @paulinekirkham7945 Před rokem +6

    The poor girl was drugged up and breathing badly. How on earth did they expect her to answer or talk to them.

  • @jeanettedegiulio8220
    @jeanettedegiulio8220 Před 4 lety +145

    As a home health and hospice nurse my heart broke. There comes a time to hold the one you love and let go.
    The hardest I have ever done is my mom dying in my arms. We can't be selfish, let go 😣😭

    • @sowhatwearedoomed
      @sowhatwearedoomed Před 4 lety +4

      Jeanette Degiulio , yes , these poor children don’t have a lot of say about the torture they are being put through .

  • @codyblackford9569
    @codyblackford9569 Před 4 lety +75

    Animals do know when something is with there owner..thats why the dog keeps licking her...

  • @Motherofthedead
    @Motherofthedead Před rokem +5

    Thank you for sharing your heartbreak mom and dad. I’m still praying for your family. This is a real look of what childhood cancer does to children and families. I hope the donations poured in for the honor of Juliana to eliminate this horrible horrible disease. Thank you again for sharing. May God keep you.

  • @anne-mariemcinnis9143
    @anne-mariemcinnis9143 Před rokem +72

    This video is a great teaching tool, actually. It teaches the what not to do and could be a very good eye opener for a lot of people who might be tempted to do the same with a loved one, at the time of actively dying. The family obviously was completely ignorant of the dying process or else things would of been done completely differently. So to turn this video into a positive, it would be awesome that it be used as a tool. As a hospice volunteer, I’ve heard of families doing what this family did, yet seeing it, is wayyyyy more effective in teaching about the dying process and the do’s and don’ts!!! This family would of been better equipped to act appropriately, should they had known what is taught in hospice and palliative care!!!

    • @cindibarton1167
      @cindibarton1167 Před rokem +1

      Well we don't always get that chance as my daughter died 14 hours after I first took her to the emergency

    • @anne-mariemcinnis9143
      @anne-mariemcinnis9143 Před rokem +2

      @@cindibarton1167 I am so sorry about your loss! No parent should have to go through such tremendous grief. None! Please know that I will keep you in my 🙏🙏🙏prayers and ask for 😇😇😇😇😇😇😇angels to carry you through!

    • @22lyric
      @22lyric Před rokem +1

      Anne-Marie McInnis, shame on you!

    • @anne-mariemcinnis9143
      @anne-mariemcinnis9143 Před rokem +13

      @@22lyric Jude, why do you say shame on me? I don't think I said anything unkind. Yet, I obviously something that wasn't liked and would love to understand, especially because my heart is at the right place.

    • @mambi74
      @mambi74 Před rokem +16

      @@anne-mariemcinnis9143 You said nothing wrong or offensive - some people can't deal or just resort to being offended when faced with facts they don't like. It wasn't easy watching this poor brave girl suffer so much before her end.

  • @annxx7976
    @annxx7976 Před 3 lety +188

    Aside from the fact that this little lady is dying from cancer, there are several quite disturbing aspects to this, some that people have already mentioned in the comments. I don’t think her final hours were particularly well handled in terms of pain control and a general misunderstanding of the physiological process of death itself. I also get the feeling that Mom resents that camera at points, which I would too. I don’t understand this obsession with filming everything and missing the moments because of it.

    • @Morebeeswithpisces
      @Morebeeswithpisces Před 3 lety +33

      Ann xx I agree. I am perplexed as to why this is being shared on CZcams. I understand documenting her last days to keep and share with loved ones, but this feels too intrusive.

    • @katie6902
      @katie6902 Před 3 lety +5

      For memories and to honor her

    • @katie6902
      @katie6902 Před 3 lety +4

      To keep her memory alive

    • @annxx7976
      @annxx7976 Před 3 lety +12

      @@katie6902 I see and understand that, I do honestly. But was this the right way to go about it? I don’t know, and I don’t have the right to judge, but it does feel extremely intrusive and rather obsessive when it gets down to the really really emotional occasions. I probably should have said in my original comment that I was meaning this particular video alone, but kind of across the board with all of the videos.

    • @annxx7976
      @annxx7976 Před 3 lety +8

      @BlewnHeadGasket you expect to post stuff like this on CZcams and not have it discussed or criticised? Lol that’s not how social media works, fuckwit, do some research.

  • @ashtheanimecat7077
    @ashtheanimecat7077 Před 3 lety +196

    Poor girl, you could hear the death rattle in her breathing. Rest in peace angel.

    • @annekalunn8567
      @annekalunn8567 Před 3 lety +1

      @Zixuan Xing I not nice to hear my mum had

    • @alessandrasocio2090
      @alessandrasocio2090 Před 3 lety +4

      @texasj123 most likely she was in hospice or the parents wanted her to let go and not get drugged up anymore.

    • @marymcdonald7418
      @marymcdonald7418 Před 3 lety +1

      @texasj123 Please read the book. It explains why...

  • @Sophiafabfive
    @Sophiafabfive Před 5 měsíci +12

    She was actively dying when she left the hospital how could the nurses and doctors not know this?!?! So completely heartbreaking 💔 Juliana was the sweetest soul she even smiled at the camera as she was dying it ripped my heart out. These parents are beautiful. Rest in peace sweet girl 🙏🏻❤️

    • @jessicamerkert111
      @jessicamerkert111 Před 4 měsíci +5

      Some families chose to take their loved ones home on hospice instead of having their child go through the dying process in the hospital. It is their choice to do what is best for their family during that time. That does not mean the medical staff did not know she was dying. I am sure they knew she was dying.

    • @juniordixie9489
      @juniordixie9489 Před 4 měsíci +4

      The doctors and nurses knew this. The parents were in denial.

  • @anntoification
    @anntoification Před rokem +7

    Poor little child I wish they could have left her alone to rest not make her chat to this girl.
    Parents very unprepared not behaving appropriately.
    The poor child is dying.

  • @anttony80
    @anttony80 Před 4 lety +108

    To the family of this little girl....as i sit her as a 44 year old recovering adict! I am ashamened of myself!! All the times i complained that life wasnt fair!! God rest this little girls soul...may god keep you with him as you lay to rest!! I am so sorry

    • @laniakeas92
      @laniakeas92 Před 3 lety +8

      Don't compare your life to hers.
      We all have different roads and paths.

    • @krisrhood2127
      @krisrhood2127 Před 3 lety +4

      Don't judge yourself. Everyone's toothache hurts the worst

    • @heybitch8577
      @heybitch8577 Před 3 lety

      @@laniakeas92 huh?

    • @bloom9295
      @bloom9295 Před 3 lety

      We all do mistakes and that's ok

    • @MiraBella1972
      @MiraBella1972 Před 3 lety +1

      Don't be ashamed! Know that you are absolutely loved! You have value regardless of what you might think!
      Love and light to you!

  • @spartadelavega5436
    @spartadelavega5436 Před 3 lety +25

    Seeing someone actively dying is so heartbreaking

  • @dawnkhobain6399
    @dawnkhobain6399 Před 4 měsíci +3

    All I see in this video is a young girl who fought hard for her life, but eventually couldn’t do it anymore. This baby spent majority of her life battling cancer.
    As a parent, I can’t imagine how hard it would be to go through this. You’re trying to stay strong for your child, but breaking down behind closed doors. Nobody wants to see their kid in pain. Nobody wants to feel like they can’t help their child. Nobody chooses to go through situations like this. These parents were learning as the days passed by. Nobody finds out their kid has cancer & immediately knows what to do. Some things they did right & others they may have not. But, the one thing that stands clear is they loved their daughter.
    As I scroll through & read the comments, I want to say thank you to the people who RESPECTFULLY educated others on how to handle certain situations. As far as the people bashing the parents, the little girl was half the mom & half the dad. They had every right to decide what to do with their daughter. The only thing that mattered was she was loved & they did damn good job of it, until her last breath.
    This family put her story out to educate others. Too also show other families they are not alone. Her memory will live on through their foundation they started, in honor of her.
    RIP Baby Girl 👼💕

  • @arwaothman4376
    @arwaothman4376 Před 5 měsíci +1

    I am really sorry for your loss. It’s really heartbreaking to see your child died with cancer. I saw lots of videos I am really sad crying

  • @kkdoc7864
    @kkdoc7864 Před 6 lety +33

    When someone is dying whether over a couple of weeks or days, the last thing he or she wants is oral nourishment. Not only is thirst gone, but food is repulsive and often nauseating, and you run the risk of having her aspirate. Trying to push food or fluids on the dying patient can even be considered abusive in spite of the fact that you think you are helping. Wetting her lips is a safer thing to do.

  • @Applehead.michaelj
    @Applehead.michaelj Před 3 lety +78

    this is honestly so sad, to see a child dying🥺😢 may she rest in peace!

  • @kel2700
    @kel2700 Před 4 měsíci +20

    She’s so beautiful! I bet she always made everyone smile & for sure still does!!❤️❤️

  • @Italian_girl89
    @Italian_girl89 Před rokem +5

    What’s wrong with the woman who said “they order pizza without you”?!? I am shocked 😥 poor Julie.

  • @imru9924
    @imru9924 Před 4 lety +663

    she was adopted :( that's so sad storyy, nobody deserves anything like this. Life is cruel and so unfair.

    • @abigale3629
      @abigale3629 Před 4 lety +120

      At least she was adopted into a happy and loving home with people who loved her unconditionally :>

    • @fec9496
      @fec9496 Před 4 lety +6

      Yes it is!!!

    • @Maya-hq3nv
      @Maya-hq3nv Před 4 lety +21

      What’s wrong with her being adopted!?

    • @imru9924
      @imru9924 Před 4 lety +18

      @@Maya-hq3nv nothing, i meaning that she wasn't their biological child. She was certainly wanted and loved.

    • @tyyfunimateeditzz8578
      @tyyfunimateeditzz8578 Před 4 lety +6

      @@Maya-hq3nv girl if u woulda read the whole thing then u woulda knew what he was tryna say

  • @sweetarielangels2580
    @sweetarielangels2580 Před 7 lety +180

    I do not understand why John says that the cause of Juliana's death is an overdose of opioids. if it had been the case, doctors would have noticed it and wouldn't have discharged her from hospital. she had been sent home in hospice care because she was terminal and her parents could not be unaware. the truth is that Juliana's body was destroyed by years of treatment and cancer and she was ready to fly away. Poor little girl ❤️

    • @ivyedan7183
      @ivyedan7183 Před 7 lety +19

      Sweet Ariel Angels that's what hospice does..they don't come unless you are dying.. it it wasn't opiates that had her like that..it was organ failure and a coma

    • @danielleschiazza6172
      @danielleschiazza6172 Před 6 lety +22

      If u are sent home on hospice that means your life is ending! That's what hospice is, end of life care/ comfort care! The goal is to keep her comfortable while she is actively dieing! The doctors did nothing wrong! Some families just do not want to except that! They want to force the person to fight and suffer and that is just selfish! But unfortunately some families just don't get it or accept it! I work in nursing and I do hospice care and I see so many families like this, Its so sad and u can't blame them because u don't know how it feels to be in their shoes all u can do is do your job and try your best to support the family. So sad god bless her

    • @fourchickensma4628
      @fourchickensma4628 Před 6 lety +19

      Danielle Schiazza The precious girl is obviously in the final hours of life, you can tell when they walk in the house from the hospital, she is even showing signs of reflexive breathing, also known as a death rattle, and they keep trying to pour raspberry tea down her throat. I wish they could have just backed off a little and let her go in peace. She didn’t die from opioid overdose, she died because her poor little body just gave out, I don’t know why her parents can’t see that. I know what they are going through must be awful, but she died because cancer finally took over and her body failed. She fought long and hard! Bless her heart!!

    • @tamaraeppinger4767
      @tamaraeppinger4767 Před 6 lety +10

      Omg just stop taping stop with the flipping tea I understand u wanted to show child hood cancer but good Lord enough is enough cancer is an evil disease it is but this is just way to much...stop put the camera down and what would have been the fatherly thing to do was to hold her tell her it's ok but no people taking pictures people filming people forceing tea down her throat just so sad and disturbing..

    • @tamaraeppinger4767
      @tamaraeppinger4767 Před 6 lety +4

      I'm sorry but u say she was over medicated if so y did u not call an ambulance..un real

  • @theparkinsontribe9105
    @theparkinsontribe9105 Před 10 měsíci +35

    I followed Juliana and the worse part for me was hearing the breathing and her struggles to breath, that was heartbreaking… Juliana should have been given some morphine to help her along her way sooner than she suffered 😢😢😢

    • @the_arrogance
      @the_arrogance Před 7 měsíci +2

      ​@@TubbyNutkinwhy is that out of curiosity?

    • @vegon.begone
      @vegon.begone Před 6 měsíci

      I think they were worried she would die sooner. The parents seemed upset in the description because of the pain med increase that had the possibly of killing her

    • @michellemartorell2394
      @michellemartorell2394 Před 3 měsíci

      She actually was not struggling to breathe. That was a normal breathing pattern for a person who is actively dying.

    • @RaquelSantos-qx2st
      @RaquelSantos-qx2st Před 2 měsíci

      God why?? Why were they not educated ?? Why didn't the hospital Dr's nurses someone anyone help those parents??

  • @full_time_Sinner209
    @full_time_Sinner209 Před 4 měsíci +3

    I'm not sure if that lighting is from a camera's flash but if it is I find it completely disgusting to be taking pictures of a child who's obviously transitioning 😢 like I know you want memories but is uncomfortable to see the person circling around that child like she's some kind of exhibit 😒

  • @judithryle2113
    @judithryle2113 Před 4 lety +66

    I thought the dad went way over with not giving this sweet child privacy. I thought it was rather cruel

    • @pfalgiano5565
      @pfalgiano5565 Před 4 lety +2

      so do i

    • @sarahroberts4917
      @sarahroberts4917 Před 4 lety +1

      If she didn’t want to be filmed she would’ve said

    • @andreavonruden3204
      @andreavonruden3204 Před 4 lety

      warum tut man einem Kind kurz vot seinem Tod diese Oberflächlichkeit an?

    • @ToastyDoasty
      @ToastyDoasty Před 3 lety

      @Tracy Isaac how dare you say that he's a grieving parent trying to get a last moment of his daughter sickening of you to say

    • @heybitch8577
      @heybitch8577 Před 3 lety

      @Tracy Isaac what is wrong with you? You need help. Not him. You. Sickening and disgusting human being

  • @sarahnine10
    @sarahnine10 Před 5 lety +68

    I dont know the background on this...BUT...the last thing I thought of when my father in law was actively dying was to film it. Incredibly personal and intimate and I dont think I would have shared those moments out of respect for him.

    • @ladydayana
      @ladydayana Před 5 lety +1

      @john vonburg awareness of what?

    • @ICPadict36
      @ICPadict36 Před 4 lety

      @Eliza Grogan is their a way to see the original?

  • @tinag3751
    @tinag3751 Před 4 měsíci +1

    Oh my God I just found this video so saddened to hear of her. Passing these many years later God bless you all.

  • @williamcoe9200
    @williamcoe9200 Před 4 měsíci +3

    You know i was with my oldest sister when she passed from cancer...Hospice were at her house and said she didnt need them yet....5 minutes after they left she sat on her couch and passed away. That really bothers me 12 years later.
    I also see that when alot of people try
    The clinical trials there health declines rapidly.
    And i also think they may have some cure for some cancers and they wont so anything with it because there is alot of money they make off cancer....i know that sounds a little crazy buti truly. Believe that. That was so hard to watch. RIP

    • @user-zn4mi1ei6q
      @user-zn4mi1ei6q Před 4 měsíci

      I pray that John Hopkins did answer your questions. It's so wrong of them to lead you on for so long. May God's Blessings be upon you all

  • @Kimberly-yt6nn
    @Kimberly-yt6nn Před 6 lety +42

    When Juliana seen Maddi and got so excited and screamed her name just melted my heart. What a beautiful soul she was. May you rest in peace with the lord sweet angel.

  • @emilylange4748
    @emilylange4748 Před 6 lety +190

    No one should have to die like this. We don't even let our pets suffer like this. I can't finish this video, poor child.

    • @agusblackbird2486
      @agusblackbird2486 Před 5 lety +4

      You did well. At the end it's her dead body in the funeral. So cruel.

    • @hydie0073
      @hydie0073 Před 5 lety +11

      Emily Lange I know it's more than I could take I'm screaming for the Queen to just let her sleep please just let her rest!!!!😢😢😢😢😭

    • @louisavevers9709
      @louisavevers9709 Před 4 lety +10

      This is actually a normal way of dying when someone is suffering with cancer. The pain is bad, and usually the pain relief is what helps quicken the end. Cancer is a very cruel disease, and sadly there is no nice way around it!

    • @louisavevers9709
      @louisavevers9709 Před 4 lety

      @@agusblackbird2486 I don't understand this. What is cruel?

    • @tenazshah3362
      @tenazshah3362 Před 4 lety +7

      Pls grow up....death is never pretty...its a medical stop to your life.....did you expect angels with golden Harp's

  • @CristinaBraga-zw5et
    @CristinaBraga-zw5et Před 8 měsíci +33

    Lamento tanto que esse anjo tenha que partir,uma mãe muito corajosa,sem derramar uma lágrima na frente dela,mas por dentro são lágrimas de sangue,só quem passa por isso compreende, há mais uma estrela no céu 🌟

  • @Michelle-gw4db
    @Michelle-gw4db Před rokem +3

    R.I.P. sweet angel. You have no pain now. Such a brave sweet little girl.

  • @carole1a
    @carole1a Před 7 lety +74

    the hospital knew juliana was dying, her parants must have been told this.thats why she was taken home.thats only my thoughts...xx

    • @chellefell1331
      @chellefell1331 Před 3 lety +8

      if you go back to one of the older videos, he writes at the beginning that the hospital DID, in fact, inform him.... they knew. I understand how hard it is as a parent to hear that, your brain goes into a denial.... however, that hospital treated her amazingly and did all they could....

    • @Jessica-wo6px
      @Jessica-wo6px Před 27 dny

      @@chellefell1331 If they knew the parents were in denial and not accepting the circumstances, they should have realized that they couldn't have given Juliana proper care due to their states of minds. Not bashing anybody but Juliana should have remained in the hospital under these circumstances, have a nice chance to say goodbye to everybody in a peaceful, quiet manner and be placed under right pain medication and in a medically induced coma so she could pass away peacefully as her body shut down. The Carvers were not in the right headspace to help their daughter's process when they were constantly denying the obvious signs that she was dying and I think the hospital should have realized that and intervene for Juliana's sake and not let her go home. I pray for healing for everybody involved. Juliana was such a little angel who deserved more in life but is now healthy and pain free in the arms of Jesus.

  • @loldianaaa
    @loldianaaa Před 7 lety +247

    What a loyal friend Maddie was. I'm a veterinary nurse, and I've seen a few shelter dogs that were with their owners when they died. I think they really go through their own mourning, there's something really special about the bond between dogs and their people. Also, it's their instinct to lick like crazy when they have their own problems, it's like they think the more they lick the better they'll get. Maddie knew something was wrong, and was doing the best she could (like the rest of you) to help her girl.

    • @pugzilla9172
      @pugzilla9172 Před 6 lety +12

      Diana P.
      I know :(
      that part where the dog started licking her arm made my cry so hard! Poor baby knows

    • @FireXConor
      @FireXConor Před 6 lety +15

      Animals have better senses than us, they can even tell when we're sick, and come over to help us through our suffering, or when we're dying, come over and comfort us during our final days. Maddie knew what was happening before anyone else, what a good dog. 😢

    • @ThePlutoandMarsEffectofTarot
      @ThePlutoandMarsEffectofTarot Před 4 lety +13

      Very true. Cats are very keen on Death or Sickness as well. I always say that Animals are way to good for Humans & are even better than us.

    • @candytiger644
      @candytiger644 Před 2 lety +10

      Animals are very loyal and knowing. My cats hang around me a lot more when I get sick or injured. Unlike many humans, animals don't judge, they just know by instinct and love.

    • @charlottekey8856
      @charlottekey8856 Před 2 lety +5

      @@ThePlutoandMarsEffectofTarot Yeah, my cat knew when I was going to the hospital though there was no evidence for him. He meowed urgently and looked with big worried eyes. I had another cat who met me at the door with big worried eyes, even pulling back the curtain with his paw, when I'd had a bad altercation on the way home.

  • @franciedcuestaa
    @franciedcuestaa Před rokem +1

    Gracias por compartir. Te abrazo muy fuerte.

  • @karenhusman7333
    @karenhusman7333 Před 9 měsíci +5

    What a wonderful tribute that had to be so difficult to film. Thank you for sharing this celebration of life to the world. God Bless.

  • @relatablereactions7658
    @relatablereactions7658 Před 3 lety +643

    I can’t believe why everyone is hating about him posting this , it was his right. She looked like a sweet angle let her fly high!❤️

    • @ksanurse
      @ksanurse Před 3 lety +25

      No everyone copes with this level of illness. Men mostly don’t because they think they can fix things and some things they can’t. It makes them feel powerless. You have to forgive them, they don’t mean to offend the parents. In the old days dying was public and people feared it less. Now people are terrified to die because most of You never see it. Think instead the family was sharing their last precious moments with their daughter. Maybe it will remind people to hug their kids and realise how lucky they are this isn’t them.

    • @pannydeparker3613
      @pannydeparker3613 Před 3 lety +13

      Your right she's a cute queen rip i will never forget you

    • @pannydeparker3613
      @pannydeparker3613 Před 3 lety +8

      Your right let her fly up in the pretty clouds but don't worry she will return to earth to thank you us

    • @assx_vivix8877
      @assx_vivix8877 Před 3 lety +5

      ik this isn't a joke, but what angle?🤣

    • @sharonbee4185
      @sharonbee4185 Před 3 lety +12

      I guess no one can be entitled to their own opinion. When it's not your opinion you can't believe it. Get a grip. Not everyone was hating - just some. And i don't consider it hating - maybe some just couldn't believe the lack of respect.

  • @slowjamz4life
    @slowjamz4life Před 4 lety +56

    I think in her final moments, she should've been put into a medically induced coma, because the end looked like suffering. But then again, she appears lucid and aware in the end, so idk.

    • @guardiansanimalrescuestate7289
      @guardiansanimalrescuestate7289 Před 3 lety +20

      She was struggling to breathe. And they were trying to get her to drink things. If u saw the original video where he showed her after she died, it was so easy to see how she suffered. He should have been hugging her and comforting the other kids....not making a video of her dead body.

  • @marjoriepope7898
    @marjoriepope7898 Před 7 měsíci +26

    I watch this vid a millions times and it’s almost the anniversary of her death and it still hurts just to see it. She went through so much in such a short time

  • @christopherthornton3291
    @christopherthornton3291 Před rokem +12

    She's in a much better place. No more pain. No more suffering. She's in heaven. Rest in Peace

  • @troyrydell3904
    @troyrydell3904 Před 4 lety +76

    Who else actually watched. The hole thing

    • @markvargas5356
      @markvargas5356 Před 4 lety +2

    • @vitaminjovitaa
      @vitaminjovitaa Před 4 lety +3

      whole*

    • @nicolebrown5921
      @nicolebrown5921 Před 3 lety +1

      Troy I have and it is very sad that Juliana had to go through all this. She is in no more pain cause she is in heaven with God.

    • @aliceforsyth9476
      @aliceforsyth9476 Před 3 lety +3

      I did but it was killing me because it was for years after the fact that I first saw this if it hadn’t been I would’ve been very perturbed almost to the point of contacting them and telling these people you do not give a dying person pizza don’t give them anything no raspberry tea they’re dying good God Almighty this poor child was in pain what a way to die

    • @aliceforsyth9476
      @aliceforsyth9476 Před 3 lety +4

      Stupid hospital
      Why did they not send this child home with hospice care I will never know it doesn’t sound like there’s a lot of bright action going on around there thank God this child’s and having at least she’s out of pain

  • @suepete
    @suepete Před 6 lety +218

    Parts of this were like a freak show with so many people in the room seated accordingly, and just staring at her while she was dying. I would NEVER want a bunch of people watching me like this. Ugh.

    • @cyberspelunker1980
      @cyberspelunker1980 Před 3 lety +15

      Me neither. I understand wanting to offer support but I’d never want to be seen in this condition.

    • @belle369
      @belle369 Před 3 lety +4

      Yeah but would you really have a choice? She’s laying there lifeless barely able to to anything except groan.

    • @heybitch8577
      @heybitch8577 Před 3 lety +2

      Shut up

    • @davidlagomarsino4850
      @davidlagomarsino4850 Před 3 lety +3

      You and me both!! Irrational in my opinion

    • @ceejamm3180
      @ceejamm3180 Před 3 lety +4

      Wait until you're dying to pass judgements. You might change your mind.

  • @isabelzabotto998
    @isabelzabotto998 Před 7 měsíci +17

    Essa menininha valente... guerreira.... é doce...meiga....lindinha demais.....foi para o papai do céu 😢❤

  • @nici2446
    @nici2446 Před 2 měsíci +2

    23:00 Uhr Düsseldorf Hallo Ihr Lieben... Ich habe alle Videos von Euch angesehen... Von ganzen Herzen wünsche ich Eurer Familie alles alles Gute. Ich bin sehr sehr traurig darüber das Juliana nach soviel Schmerz + Leid den Kampf gegen diese Krankheit doch verloren hat... Sie hatte fast immer ein Lächeln trotz der so vielen Schmerzen... Ihr seid super tolle Eltern ❤

  • @marinadee2771
    @marinadee2771 Před 4 lety +139

    That dog just knew

    • @Kitkat.hvbbbb
      @Kitkat.hvbbbb Před 3 lety +14

      Yeah dogs can sense cancer

    • @satos1
      @satos1 Před 3 lety +22

      @@Kitkat.hvbbbb cats also. The year before mom passed away to the dreaded "C" her pet cat would often go into her room meowing. At the time mom was not diagnosed with cancer yet. On the night she passed away I was on the cell phone talking to one of mom's friends. The cat began meowing non stop again in the background. Her friend said "is that a baby" crying in the background. I said no. Its her cat grieving her passing. Animals can sense sadness and grief like we humans can do.

    • @kharlie22
      @kharlie22 Před 3 lety +7

      @@Kitkat.hvbbbb they sense a lot. My dog knew that I was pregnant. I thought I might be, but she would never leave my side from the moment I get home to the moment I'd leave the house.

    • @dariacordella
      @dariacordella Před rokem

      😡☝⚡

  • @lisaosborne5493
    @lisaosborne5493 Před 2 lety +41

    My name is Lisa Osborne I'm from Indiana and just wanted to say that my heart goes out to your entre family. Cancer has been around for a very long time , I don't understand why it's not curable by now. May God Bless you, your wife and the whole family.
    I was diagnosed 3 years ago with Lupus and I'm currently doing infusions and I know how I feel after each one I cannot imagine the pain that poor baby was in

    • @maryannewebster4100
      @maryannewebster4100 Před rokem +4

      Hi Lisa Osborne its Maryanne from the UK I'm so sorry to hear that your poorly I really hope you get better very soon may god and jesus help you heal god bless you and your family to I'm a very religious girl myself I'm a Roman Catholic and I have long term health conditions myself that i was born with I can't swallow any solid food's because my food pipe doesn't work like other peoples can and a very painful hernia to half of my tummy organs are in my chest. Rest in peace Juliana now that you have gained your Angel wings fly to heaven and rest peacefully in heaven with god and jesus to im so proud of you you are so so brave all through it well done baby girl and don't worry baby boy you are at peace no more pain and no more sickness to my prayers and thoughts are with you and your beautiful family to xxxxxxxx

    • @cz180p
      @cz180p Před 6 měsíci +1

      god killed their daughter how dare you praise him

  • @deannacarter4251
    @deannacarter4251 Před 4 měsíci +2

    This was the hardest thing I've ever watched. Juliana's parents and her extended family seem like a very loving family but I'll have to say very ignorant. My husband died 6 months ago from interstitial lung disease and his transition was so opposite of this. It was very peaceful, and he never gasped or moaned as this poor child did. He was in hospice and we were instructed to give him morphine with a sedative mixed in it every 2 hours. He wasn't awake and didn't respond to us when we the hospice nurse said he was transitioning and we begin the 2 hour medication but he was peaceful. I would have been out of my mind if he had struggled like this poor child. What were they thinking to keep her awake like that and pushing tea and suggesting pizza. Even in the hospital prior to going home, they wouldn't let her rest or sleep. Mercy! Possibly they were in denial, but this poor child suffered as a result of their ignorance. It was just hard to watch. I'm glad she isn't suffering any longer. I can imagine her in heaven, healed and feeling her best and living her life with so much joy. Juliana, you were a brave girl.

    • @Jessica-wo6px
      @Jessica-wo6px Před 27 dny

      They probably didn't want to believe she was actually dying after beating cancer so many times before but I believe that both the family and hospital could have worked together to make a plan. Miscommunication led to this for poor Juliana.😥😥Sweet baby👼

  • @mereviews3202
    @mereviews3202 Před 7 lety +68

    You can clearly see her health declining unfortunately with cancer no one can ever give you an exact approximation of her health and say we feel you should say ur goodbyes. She was weak she had a cpap machine that forces her to breath so that tells you that her lungs were very weak. Please take this advice and accept that she was with u her last days and she was happy

  • @laceyrugg6656
    @laceyrugg6656 Před 6 lety +62

    I guess I need to go watch more of their videos, because I'm confused. they claim they didn't know she was going to die, but they obviously took her home on hospice. she wasn't breathing well the day she got home. wouldn't you go back to the hospital If your child was gasping for breath ans you didn't know she was dying? im confused!
    precious girl who fought long and hard! fly high little one!

    • @Amberussianbeauty
      @Amberussianbeauty Před 5 lety

      lacey Rugg yeah you really do, you really haven’t a clue

    • @Italian_girl89
      @Italian_girl89 Před 5 lety +5

      lacey Rugg in fact in my opinion the knew she was dying...

    • @ivyedan7183
      @ivyedan7183 Před 2 lety +1

      Hospice is only for people at the end of life..they knew it.. also nobody that they expect to live gos home from ICU..

    • @aquarianlight1880
      @aquarianlight1880 Před 2 lety

      @@ivyedan7183 yes, the longer one is in ICU the less likely to survive. She was there for over a week. It makes upset that they didnt just let her sleep, instead she was forced to keep talking to the beauty pageant queen then felt the need to apologize. The parents are in DENIAL

    • @Jessica-wo6px
      @Jessica-wo6px Před 14 dny

      @@aquarianlight1880 And the hospital should not have let them take her home if they couldn't handle what she needed. Sometimes doctors need to step in to do what is best for the patient even if family doesn't approve and tell the TRUTH of what is exactly going on even if it means taking action that may involve CPS and emergency guardianship. We can say the parents failed the child or the hospital failed the family and we may be correct BUT the reality is that the main person that was failed the most in this situation by BOTH parties is Juliana. She was made to suffer alone thanks to bad communication by both parties. May she rest in peace. 💙💙💙

  • @Heaven-dy9lj
    @Heaven-dy9lj Před rokem +2

    Bless you all.

  • @kimberly-blahblahblah

    💜 I just got to meet your family on here today. You have a beautiful family! Thank You for sharing them with us especially your amazing and beautiful daughter Juliana! My heart broke for you all as I watched her fight her cancer. Although I am very late to this fight, I am amazed by the strength and fight in her and the support you gave her on this awful journey. You all are an inspiration! I'm truly, deeply profoundly touched by your journey. May God bless you for all you do! I wish I'd had the opportunity to meet your daughter, she was a real gift. Not just to you but for us as well. I am so grateful to witness her strength at such a young age. I have no words...God keep you all in his loving arms until you all meet again! Thank you! A beauty and a beautiful angel 😇😇😇 💜 pink heart ❤

  • @kellyworthey7910
    @kellyworthey7910 Před 6 lety +31

    R.I.P Juliana.I have just found these videos.I am on my second fight against lung cancer.I am 44 years old,not doing too good this go around.After watching this precious child fight so hard without complaint.She's given me the want to fight harder and not give up.She's something special,Juliana.I'm so glad I was looking for a video of struggle and joy that day!

    • @laurenallison9391
      @laurenallison9391 Před 6 lety +2

      Kelly Worthey I’ll pray for you beautiful. My mom just had early stage lung cancer and had it removed by a thoracic surgeon (size of a pen tip the spot was) and I’m so blessed and GRATEFUL she is cancer free! I am praying so so hard for you! Truly!! May God help you FIGHT and you win this battle and get to be around for many many more years. Prayers to you- dear God please heal this woman against Lung Cancer... please🙏🏼🙏🏼🙏🏼🙏🏼

    • @GirlMomma
      @GirlMomma Před 5 lety

      Kelly Worthey, you are in my thoughts and prayers. How are you, dear?

  • @keirahillman8830
    @keirahillman8830 Před 3 lety +76

    When I saw her in the casket holding the stuffed dog I started bawling my eyes out this is so sad, I’m so sorry for your loss. Rest easy angel

  • @michellewhyatt4438
    @michellewhyatt4438 Před 9 měsíci +2

    What a very very sad end to a beautiful little girl heartbreaking. But she has to suffer no more. Fly high beautiful angel xxx

  • @lisamariott618
    @lisamariott618 Před 8 měsíci +5

    I have watched her videos multiple times and I was always wondering why she was never entered into hospice I mean they clearly knew she was getting near the end and to die was so much static in that room being probed and prodded and with all those instruments around her I don't get it should have been peaceful for her

  • @ranstxx
    @ranstxx Před 6 lety +93

    Im not sure i would want to be put all over CZcams dying :(

    • @jackycook64
      @jackycook64 Před 5 lety +10

      I told my friend and my mother that if there is anything in my dying process that could help someone, PLEASE video it and post it where ever they want (including CZcams). Because if there is anything in my life or death that can help even one person then everything I went through has been worth it.

    • @DenverDonate
      @DenverDonate Před 5 lety +6

      I didn't want to be the one to say it, but since you did I agree, it's odd.....she's like a zombie painting fish or something....laugh with her a little. When I'm dying don't drug me up and give me a paint brush.