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🧡 Why Is My MS Ocrevus Infusion So Important?

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  • čas přidán 11. 07. 2024
  • 🧡 Facing My Fears Before Ocrevus With one week to go until my Ocrevus infusion, I'm sharing my nervousness and excitement. Our community's support means everything to me. Let's talk about how we deal with nerves and hope. Comment below with your thoughts!
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Komentáře • 9

  • @livingwithms
    @livingwithms  Před měsícem +3

    1 week and counting 🫢

  • @gwendolyn5492
    @gwendolyn5492 Před měsícem

    Thank you for sharing your experiences. You're a positive light for the MS community. God bless!

  • @discobeaker
    @discobeaker Před měsícem +1

    Don't know if you seen but there's an article on the bbc website today (or yesterday) but the NHS are going to be rolling out a 10 mins shot for ocrevus soon rather than it taking 4 or 5 hours

  • @cealeyytownsend1483
    @cealeyytownsend1483 Před měsícem

    Thank you so much for sharing this, I've had ms for apparently 5 years and because of recent activity and new lesions I'm being put on to ocrevus has my bloods done yesterday so just a waiting game now, but you honestly are an absolute inspiration I will say x

  • @jude4896
    @jude4896 Před 20 dny +1

    Fatigue has really zapped me. I also used to just walk around like what you are doing. Have had some mobility issues. After msct pt for 3 months now and improving. Was on Adderall for 2+ years but recently had poor medications side-effects, so had to stop. As one boost, now I have caffeine gum. But not as quick as you. Even with high dose steroids gotten after new leasons found to reduce the inflammation and / or progression. I am also on Ocrevus for about 6 years now. But have had decidedly good results with Ocrevus.
    Hope you are and will have fewer issues on your journey through MS.
    Thanks for sharing

    • @livingwithms
      @livingwithms  Před 12 dny +1

      So great to hear positive feedback about Ocrevus. So pleased you’re doing well.
      My ADHD medication has been ok, but about to change and hopeful it does more.
      My mobility is worsening but I’m doing what I can to keep going 🙌🏻
      So glad you’re here and part of our gang 🧡

  • @kiree.e
    @kiree.e Před měsícem +1

    I, myself have MS i haven’t started treatment yet but they want me to start with ocrevus, it’s in the works right now but i’m hopeful it will help!
    My cousin has MS as well and he has been on ocrevus for 4 years! and not a single lesion has appeared since, 4 years with ms and 4 years with ocrevus!
    Knocking on wood though but i’m very hopeful and you should be too!
    I wish nothing but the best ride for you brother. we got this 🤞🤞

    • @livingwithms
      @livingwithms  Před 23 dny

      That’s amazing to hear! 🙌🏻 from what I gather, lots of people want to be on Ocrevus and not everyone can, so you’re starting on the good stuff.
      Good luck! Hope all goes well and you are able to kick some MS butt 👊🏻
      Sending love and positive your way 🙏🏻 🧡