Fibromyalgia & Small Fiber Polyneuropathy (Full Lecture) | Khosro Farhad, MD
Vložit
- čas přidán 16. 07. 2024
- Up to 60% of Fibromyalgia patients in some studies show evidence of Small Fiber Polyneuropathy (SFPN), a condition which shares many symptoms with Fibromyalgia and which may be treatable. Dr. Khosro Farhad spoke about this topic and reviewed recent research on SFPN at a public talk sponsored by the Massachusetts ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) & FM Association on Nov. 14, 2015 at Newton-Wellesley Hospital, Newton, Massachusetts.
Dr. Farhad is a neurologist associated with Massachusetts General Hospital in Boston, MA and Wentworth-Douglass Hospital in Portsmouth, NH
For more information and resources from Dr. Farhad, visit:
www.massmecfs.org/news-events...
For more information about the Massachusetts ME/CFS & FM Association, visit: www.massmecfs.org/
0:00 Introduction
0:35 What is Fibromyalgia and How is it Diagnosed?
4:57 Research Linking Fibromyalgia and Small Fiber Polyneuropathy
8:09 What is Small Fiber Polyneuropathy?
10:33 Dysautonomia in Small Fiber Polyneuropathy
13:15 How is Small Fiber Polyneuropathy Diagnosed?
18:47 What Causes Small Fiber Polyneuropathy
21:56 How is Small Fiber Polyneuropathy Treated?
25:34 Conclusions
So nice of you sir. Majority of doctors donot know about this disease. Since not able to find , they make patients psyche. I am suffering this so many years, i was wondering what kind of thing i have. But now i realised since so many years i had many problems, all were bcs of fibromyalgia. Alergic reactions, numbness, stiffness , sprains including chest muscles. If i over do one day , bext day i cannt walk around. No one believes shat i am suffering. Family including some friends feel i am acting. This s more painful . When i am so active and hard working person.. feel so bad ..that no one trust your sickness. I couldnt tolerate any medicine started for this. It was more worse..Thank you Sir ..please support these patients, they suffer a lot. Fatigue is horrible
Check out ME/CFS and MCAS (google or see vids) symptoms....sounds more like ME/CFS
Started fibro in 2003 when I started waking up in the a.m. with sore chest wall, did not want to get out of bed. Had just went through loss of my home/abusive relationship. Very smart man here. subscribing to his work.
I got Blessed he is my Dr
For anyone here experiencing Autonomic Symptoms, I started Wim Hof breathing and within two weeks reset my Sympathetic Nervous System and eliminated symptoms. All the best.
Wow! Very helpful..wish more doctors would get this knowledge. Explains a lot about my situation. THANK YOU!
Fantastic..sharing this with all of my Drs esp my Rheumy..ty ty ty❤
At last some new information,very helpful and theres hope for future generations who may have this terrible trauma,
went through the fibromyalgia DX.
only to find i really had sarcoidosis-associated small fiber polyneuropathy.
when i was DXed with fibromyalgia.
the doctors knew i had sarcoidosis, but one specialty did not talk to the other.
this is a common problem when you have more then one specialty doctor not checking medical records as to what other specialty doctors found.
I have dealt with this same failed communication among specialists even among drs who were together at major university hospital in major city. This same scenario has been repeated in my case at many major facilities despite all my records being in their system and despite me bringing records to my appts but but most failed to review them.
He is Literally My Dr. 😊
Thank you to My Dear DR. Farhad best Neurologist Dr.
very edifying - thank you!
35 years of THIS :( if you have fibromyalgia you also have other autoimmune disorders...skin, arthritis, sinusitis ( YES!! confirmed by my ENT it is an "autoimmune") and it effects your eyes ( confirmed by my Eye MD & my Retina Specialist, MD).
It's a game of dominos once you start a 'flare-up'. Anti-inflammatory diet plays an important part in controlling symptoms with this disorder.
Fibro is not an autoimmune disease but true if u have u can have an autoimmune disease lupus, ana, etc
Great lecture!! Very clear and helpfull
Great advice 👍
Thank you very much!
So helpful
Excellent, thank you !! Yes very helpful!
Oaklander diagnosed me at mass general
@@dinobergamasco9187 I just had a biopsy done here in CT by a Yale physcian and it came back negative for SFN. So I did not have to go Mass General after all. Now I don't know what I have...
Thanks
Where can I find more information on vitamin B6 toxicity and SFPN
This information is very informative. I have Sjögrens and fibromyalgia. For the past few months I have been having pain in my back and upper legs. I’ve been to a chiropractor, thinking that the pain has been coming from my back (spine). He recommended that I see my family doctor. Now I’m wondering if I also have small fibre polyneuropathy. I will be speaking to my doctor in the coming week and mentioning this.
How r u
I am thrilled to have found d you..do you Sir do telemedicine?? I am in Florida. Help
How do you get in to see him or Dr. Oaklander? I am so miserable. Have been on Prednisone and pain medication since 1992. Need help! Cathie
This is what's going on in my body. Pain all over back itching non stop headaches want go away.
itching is what i got when they put me on anti depressants. for the fibro
the doctor never believed me about the itching and the antidepressants.
it's part of serotonin syndrome and due to high serotonin levels caused by the antidepressants raising the serotonin
Wow, sheets irritate my feet, wear socks. IBS , interstitial cystitis!
Ditto
Are any anticonvulsants considered causes of SFN? Thanks.
I have SFN confirmed by skin punch biopsy. I have been prescribed Gabapentin which is quite standard (Lyrica is also often prescribed).
I take gabepentin, Lyrics is reportedly causing retinal damage.
@@sharonjonsy9412 get off the stuff my Retina Specialist warned me about that stuff
I HAVE POLY NEUROPATHY OF BOTH FEET. NO PAIN, BALANCE PROBLEM, WEAK LEG MUSCLES, TRIED MANY THERAPYS, CHELATION ,HYPER-OXYGEN CHAMBER, BLOOD OZONE,B VITAMINS, N. O. NO RESULTS. HELP
FM diagnosed 2014 post shoulder surgery. complained of toe and finger numbness early 2000's. Mine is Severe SFPN as of 2021 punch biopsy. My neurologist told me I am fully disabled wont be able to work second words I heard from him. I cannot feel to text or type. My back burns like inside sunburn, mu sheets bother me. My feet are outside covers, temperature cold/hot I have mild cognitive dysfunction by test, blury vision getting worse, Blood pressure issues. pvcs rapidly put in betablocker, stomach issues IBS, sleep disturbances, urinary frequency constant,
I walk to left, dizziness, shaky hands fingee twitching hard to button shirts, pick up a glass ot breaks lose grasp. I am chrinically Fatigued. I wake up stiff exhausted. I cant walk without help if I sit too long im hunched over hips hirt so bad I cant take a step, Stand too long less than 5 min Im in tears my back cramps up amd hurts horribly. Im tired of getting mot diagnosis after another Inflammation is horrible. pai all over every joint amd muscles .
Is tetracycline one of those anti - HIV medications that can cause small fibre polyneuropatia?
In Ayurveda fibromyalgia is a disease that comes under vatavyadhi. The aggravation of vata dosha along with the accumulation Ama (toxins) gives rise to Fibromyalgia. The vata and kapha dosha is the main culprit in this disorder. In Ayurveda, there are numerous herbs present in nature that will deal with stiffness, fatigue, pain, mental disturbance, & loss of movement related to Fibromyalgia patients. Chandigarh Ayurved Centre provides the best ayurvedic treatment for Fibromyalgi known as Fibromyalgia Relief Kit that contains a combination of herbal products. These products will give effective results to the patient.
Herpesviruses. It is viral imo. Do those herbs happen tobe antiviral?
Does this mean you have poor blood flow to legs and feet?
Due to the nerve dysfunction yes.
My feet and legs itch like mad when I go into a warm bath.
I wonder how many fibro patients have a history of trauma. Our parents= grew up WWII Germany. My brother=PLS/ALS, me=GBS & now fibro. Last neurologist=you have migraines.... lol!
I also think it has to do with severe trauma in your youth and later on.
Me=parents fighting and drinking and picked on me..
I had a lot of trauma... Both as a child and as an adult.....I believe its a big factor.
Personally I don't believe Fibro has anything to do with trauma at all. Doctors are using it as an excuse because they can't come up with a true answer. Billions of people have trauma...and next to none has Fibro. It's only an opinion not a Fact sooo
Gababentin effects my bladder