Getting Diagnosed with Lymphoma | Luis’ Story (1 of 3) | The Patient Story | The Patient Story
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- čas přidán 15. 06. 2024
- “My garage door comes down. It's winter, it's cold, and my garage light goes out. So I'm sitting in a dark garage, in a car, and the pulmonologist says, ‘I'm sorry to tell you that I looked at your CT scan and there were some findings.’
In this segment, Luis describes how he got through his stage 4 non-Hodgkin lymphoma, specifically diffuse large b-cell lymphoma. He describes his first symptoms and what finally got him to go to the doctor’s.
In this Series: Our 3-part series with Luis covers everything from how he got diagnosed, to the intense chemotherapy regimen (R-CHOP + methotrexate) and getting through side effects, and living life after a cancer diagnosis - as a pessimist. Thank you, Luis, for sharing your story.
Videos:
(1 of 3) Getting Diagnosed with Lymphoma : THIS VIDEO
(2 of 3) R-CHOP Chemotherapy & Dealing with Side Effects : • R-CHOP Chemotherapy & ...
(3 of 3) Cancer Survivorship (As a Pessimist) : • Cancer Survivorship (A...
Full story & transcript → www.thepatientstory.com/cance...
The interview has only been edited for clarity.
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Contents of this video:
00:00 : Intro
00:45 : Tell us about yourself
02:08 : What were the first symptoms?
05:43 : Listening to yourself and your body
08:48 : Did you push for testing when symptoms got worse?
09:28 : The struggle to get seen by the right specialist
11:18 : Describe the CT scan experience
12:52 : The wait for results (scanxiety)
13:40 : Describe how you got the diagnosis
16:34 : Processing the diagnosis
18:43 : Breaking the news to loved ones
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#thepatientstory #nonhodgkinlymphoma #patientstories #cancerstories #cancerpatient #cancersurvivor #dlbcl #lymphoma #stage4
Couldn’t agree more Luis this channel IS very important good luck with everything
I’m just at the point where he talks about radiologists not giving away what they seen on scans. I’m crying because that really resonates with me. Each time I’m so fearful of something yet they might be seeing. 😢
Thinking of you, and I am sorry it has been awhile since I’ve been active here. I sympathize with your scanxiety; I’ve come to think of it as something to be managed but that will never go away. I strongly encourage you to find something, be it therapy, yoga, guided meditation, etc. to help you get into a calmer space. I was initially very skeptical that anything could help with with my fear and anxiety, but I have become, through experience, a believer in using all and any resources available to help you fight. Survivorship is a process with no end. However, that does it mean it doesn’t have rewards, moments of grace, and a heightened appreciation for what it is to be alive. Hang in there.
The host has all the right questions...lovely
Thank you for this - means a lot! -Stephanie
I appreciate this gentleman's calm & candor about such a tough subject as cancer. Also, I'm impressed by the man's wall decor, I have the exact same arrangement of a large picture flanked by two smaller ones, above my couch. I wonder, did his wife arrange the pictures, or did he? I feel it's significant
I mean: that wall arrangement began as an unconscious expression of something, not just putting pictures on a wall. My cincidentally similar arrangement was made after I'd(thankfully)moved from the cottage where I'd lived for 2 decades. I was in a shell-shock, & focusing on hanging up pictures helped. Also, I was & still am afflicted by an as yet still a mystery ailment that has me fatigued, sweat, but different other symptoms.
Patti, I am sorry about this late reply. Thank you for your kinds words about Luis. He is indeed incredibly calm and delivers his messages so well! About your symptoms - don't hesitate to get the answers you deserve from a medical team.You know your body best. ❤️ Stephanie
I see a hash tag for diffuse large b-cell lymphoma which is quite treatable and has good prognosis. But DLBCL can be refractory and there are nasty sub-types such as double-hit, etc.
Why do CT scans always seem to be forgotten or the last thing that doctors order in these cases? Seems like it would at least give a relatively definitive initial answer short of a biopsy?
sad to say but doctors listen to men and take them seriously. women are diagnosed "hysterical" "anxiety"
It's absolutely true. I don't understand it.
Knowing Luis personally, I'd say its 30 ft garage to house.
That being said, I'm incredibly happy to know Luis, and to have him as a cancer buddy.
@@lindseycogswell4165How's he doing now?
Cancer feeds on (eats) sugar.
That weight loss figure isn't that huge, and I dropped 29lbs in 5 weeks .... My Drs / specialists didn't see it as being a red flag.
John, thank you for sharing that about your own story. Hoping you got the attention/care you needed.
All of my doctors are pointing to lymphoma and are testing one of my extracted lymph nodes from a biopsy I went to not to long ago. I lost about 5 pounds in 2 weeks.
i have some labs out if range and ive lost 15 lbs in 6 weeks without trying and dr said oh good for you! 🥹
@@79mnq85worrisome, anxiety makes you lose weight, you stop eating when concerned. Do you have an update?
@@artsoto5459 turns out I had acute lymphoblastic leukaemia.. getting cured soon though