THIS IS LUPUS
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- čas přidán 10. 12. 2016
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My name is Samantha Wayne and I have been creating advocacy videos on CZcams since 2009. I created Live Hope Lupus in order to create a space where those with chronic illnesses could get information and support. Please subscribe to follow me along on this journey!
Lupus sucks! I've had 2 open heart surgeries, 3 strokes, congestive heart failure, respiratory failure, plursey, and so many other problems. People don't understand the pain that comes with lupus. Thanks for sharing 💜
Keep fighting Love!
Tracy Tinsley May God Bless You❤❤❤
Thanks! And prayers for you!
Crystal Tavares ooo God Bless
MO3B God bless you!
Love this update! Your original keeps popping up on my suggested list so I've seen in multiple times LOL. Yet I still managed to learn a thing or two tonight. Thanks Sam! Sadly I'm out of spoons to post to social media, but still feeling encouraged by my accomplishments after your last vid. Thanks for all you do. It's lovely to see you back in this space every week ☺️
Thanks so much for this. I’m 33 years old and just got diagnosed in February. This was really helpful and also kinda gives me an idea of things I may have to deal with in the future.
I'm glad that I found your channel! I've been diagnosed when I was 13 y/o and I am now 22. It's been a long roller coaster ride! Was getting better, then had to take trips to the hospital because of swollen abdomens to my thighs, taking off from work to go to a different island to see a rheumatologist and have your coworkers say 'nah you just wanna go off island to have fun'... and have to live with people assuming you're fine when really you're not fine internally.
Christine Mendoza am 16 and it sucks so much ..sorry you had to go through that ..
Thank you for the video and the positive inspiration. Im a male that was recently diagnosed with Lupus. For me the fatigue is insane. And having a physical job is harder. Trying to maintain an 8 hour workday is hard and by the time i get home Im exhausted. And like you say, the meds side effects are almost as bad. Im in my 50s and the doc was telling me that cause of my age, Lupus could escalate faster and the effects more painful. I have found learning about it to be the best medicine as well. I will keep fighting it cause I still have a lot of life to enjoy.
Hello my friend! It's been a long time. So glad to see the remake. I share the old one with soooo many people. I think that it is great to see both. Shows that you are still growing and thriving.
I'm so excited to have found your channel! I'm 20 years old and just got diagnosed with SLE Lupus a little over a month ago. I had to take a leave of absence from college and have been home bedridden ever since. I've been looking for people around my age who also suffer and get what it's like to go through an invisible illness when most of our age group cannot conceptualize it at all. I try not to talk about it too much with my friends (a lot of whom did not reach out to me in time of dire need. Lol @ "true" friends). Ok I SWEAR I'm not trying to promote myself but I just made my first video on lupus a few days ago bc I feel like there's not enough info out there about it! Anyways, thank you for being real and talking about this online, I personally have received a ton of misinformation about lupus from people who follow weird diets who know nothing about it and I can't stand people who give unheeded advice on something so sensitive. Anyways, I'm gonna watch all your videos now!!! thank you SO much for spreading the word ❤️
I'll check out your new video! Glad you found my channel. Hope the rest of the videos are helpful.
@@HealWithSamantha I have discoid lupus (skin related)
I've been diagnosed with Lupus since I was 5 years old, and I'm now 14. Having Lupus was difficult at a young age but now that I'm alot older, It's made me realise that I'm a lot stronger. We are all beautiful people, and we're in this together! #findacureforlupus
1 ml
I was diagnosed at age 8! I'm 25 now! I have and I've had RA, ITP, Shingles, pneumonia, Osteopenia, pleural effusions... this are some of what I can remember... I've been watching your videos ever since you started making them. I've also tried Benlysta like you did. I've been on chemotherapy, plaquenil, cellcept, cyclosporine and of course prednisone and I've tried a lot of different meds. I love your videos, I feel identified and feel I ain't alone.God bless you girl 😘
I always love hearing from my viewers who have been there since the beginning. Thank you for your support. You have quite a story to tell.
LiveHopeLupus oh yes! I do have a very interesting story. I also had a stillbirth at 30 weeks on 01.03.15.... I think this has been the hardest and painfullest thing I've ever had to go through. 👼🏻🙏🏻🌟
Yes, it is true that lupus can not permanently cure, but there are medical treatments, and can keep this disease under control, but now depends from country to country, because in some countries the health system is very corrupt, and is led by very corrupt people, who use the health system money for other purposes.
I live in Romania, which has the most poor and corrupt health system in Europe, and that is because the government, parliament and presidency, of that do nothing for the people.
Hello Everyone, I just feel obligated to share about Atomy Hemohim from South Korea. A 22 year old female in Lucena Quezon Philippines, She is suffering lupus for more than 3 years. Had 5 times chemo therapy. After taking 2 boxes of Hemohim. Now she is doing well. 0943 325 4847 feel free to contact me for more info.
Marian Stoica m
Terrified right now. I just got blood work and X-rays done yesterday and I'm getting tested for either Lupus or RA. I have to wait 3 weeks for the results though which is the hardest part. I just want to know already if I have it so I can start fighting it and get on a path to health. So thankful that as soon as I expressed my symptoms to my doctor she acted right away to go get tests done!
I just love your way of talk and most liked thing is your sense of humor 😊😘love you 😘😊
I a male POC (Hispanic). I was just diagnosed this month at the age of 58. I think I’ve had it for several years but was undiagnosed. The kidney thing was the most beneficial to me. Thanks for the information.
I'm a female and I was diagnosed at 3 years old...yes I was 3 years old and already had lupus. I've literally lived my whole life growing up with lupus. I don't even know what it's like to have and feel a normal body standpoint. I was that kid who had to take breaks at recess or couldn't participate in sports cause my lupus was too bad and being diagnosed young my symptoms were horrible most my childhood and I would be stuck in the hospital because I kept getting flares. I was almost held back multiple times for not showing at school because of the hospital trips. Im now an early adult and I'm finally adapting. I've always had that fear of not making enough money to support myself with all the med's and obviously housing but thanks to my 1000 doctors (sarcasm lol) I have hope for my future.
Oh my!! Just starting with lupus as a 58 year old guy. I have so much to learn and it sounds like its going to a "hard row to hoe". Knowing that I'm not the only one who wakes up each morning with EVERYTHING hurting is a little encouraging, in an sad sort of way, but I'd never wish it on anyone.
Many of the people I know have a friend or relative or someone at work lupus horror story to tell without a lot of facts. Thanks for all the real, first hand info. It all helps!
Stay strong my fellow Lupie Warrior! 🦋💪💜
Thanks for doing this video people need to see how much lupus is such a horrible disease. You are beautiful and amazing don't think otherwise if you want to talk sometime if love to. 😘 Take care love
I was diagnosed at 50...5 years ago. I'm currently taking Benlysta infusions. Just had my second last week and my third will be next week. Then once every 28 days for at least six months. Take it One day at a time.. Life is a gift from God. I have no idea why we are afflicted with this horrible disease. Glory to God in all things.
I am 48 in one week, I was diagnosed at 21 +1/2 . My son was 6months old. They know I was born with sle . I have had kidney failure liver fairly mini strokes macular degeneration oestio and rheumatoid sjogrens raynaudes I now have epilepsy and so much more. I have broken 84 bones often repeats . I live in Sydney Australia , they say my son is a miracle. I hadn't fallen pregnant before and never after him. I am so happy to see a beautiful young lady doing this, I had my own forum many yrs ago .
Lupus was so unknown when I was young that people including my own family did not believe me Or my doctors.
I have cataract on my eyes so filming myself is out of the question. Again thank you and please take care we are not like every other you tuber . Rest when you can, I didn't when I was young and now I pay for it. God bless from Sydney Australia xoxox
Just stumbled upon you and your vids
I am a 34 yr old male with SLE and and almost every other rare condition associated the disease.
Knee replacement from AVN, rheynauds, pleurisy in lungs and heart, osteoporosis, and now, scleroderma.
Honestly just wanted to say thank you for posting vids.
Hope you have a few "good" days in a row from time to time.
Nicholas Martin Hey thanks for leaving a comment! I hope you have a few of those good days in a row as well.
I've been diagnosed with lupus from I was 16, I am now 30. There where many ups and downs but I learned to live with the disease and generally my symptoms ( joint pains, muscle pains, chest pains, vomiting diarrhea, rashes) were stable.
Until all hell broke loose summer of 2014. I began to break out in blisters. At first just one or two here an there. But gradually it became a full blown affliction. Arms, legs, stomach, chest breasts, butt, back, face, palms of hands, under my feet, on my head. To this day only one spot has been spared, my vajayjay.
The blisters would leave open wounds that take long to heal. The larger ones last way longer. the wounds are hella painful. I learned that they make bathing painful because plain water burns them. And they stick to all my clothes. if I wear something for too long the wounds will kinda start to heal onto the cloth. So then I have to painfully peal my clothes off making a bloody mess. So I got the idea to sleep in no clothes to avoid this problem over night. Only to wake up in the morning stuck to my bed. Sigh. Oh and if I got the wounds bandaged I would smell like a rotting dead body. Literally.
After being passed around from doctor to doctor, and enduring many blood tests; my current doctor believes that the cause of the blisters is not my lupus but the prednisone I've been taking every day since I was 16. Although I am not fully convinced I am hoping that this is the cause. They have been slowly weaning me off of the prednisone.
Living with my normal symptoms I could accept. But these blisters have made me really depressed. This one thing on its own, is just too much for me. I'm used to having clear skin. Now, I have open wounds that come and go, and they always leave black spots and scars. Here in the carribean where I live, marks on the skin automatically mean that You have AIDS. So when ever I build up the nerve to go in public I am given many stares and dirty looks. So I now spend most of time locked away in my room.
I pray that stopping the prednisone solves my problem so that I can go back to living comfortably.
Has anyone else had this problem?
Thank you for your video. I just had labs done and i came back positive for possible Lupus. I now have to see a Rheumatologist. Im constantly exhausted, my bones hurt everyday, its becoming so hard to get out of bed and more things like stiffness...... Thank you for your video =(
my first hemorrage came in a small circle shape but doesn't look like the pics I've seen online!.
great video I also have sciatica and lupus and on and on......
I'm 15 and I was diagnosed a year ago and I didn't know some of these things , I guess you can say I'm a little bit more scared now
Thanks for sharing i am a 21 year old caucasian male and i am almost sure i have lupus it started this year but a few years back i had hip joint pain which acts up every once in a while. I was told it was because my immune system was attacking itself. i also have constant fatigue (i eat healthy and excercise) and sensitivity to sunlight. I havent been officially siagnosed but im sure i have it because i have the rash on my face in around the eyes cheeks and forehead and along my back and abdomen and limbs. One day it got so bad my face looked horrid bumpy and red and i had to go to qork that day but i called in and went to the hospital to get a type of steroid cream and it definitly hides it but it comes back in a week if i stop using it. What medications do you take for lupus? Is it worth it for me to go and get medication? I live pretty normally while using the cream to make my rashes go away but i atill itch all the time. Thx for sharing your story you gave me some facts i didnt know
I'm a latina diagnosed in 2014 at 22 yrs old while in the military I went into renal failure and none of the doctors knew why.My renal failure landed me in the hospital where I got a kidney biopsy done got told the news by an a-hole nephrologist who didn't really explain what lupus nephritis was he wanted to schedule a hysterectomy and told me I couldn't have anymore kids(I didn't have any kids he confused my younger brothers for my kids).I didn't even know what lupus was and didn't know I could be in this much pain...soo much pain during the years my kidney function went up and down flaring for 6-8 months at a time(I had to be hospitalized each time)I eventually landed on dialysis with no possibility of transplant until my flare went away.I went through a combo of meds and somehow my kidneys came back to life the lupus relaxed and I got off dialysis now in 2018 my lupus is in remission and I even got off prednisone too
I just got diagnosed with Lupus. I’m getting sent to a specialist to look more into it. I know that my joints are weak for 2-3 years now, and been having constant lower back pain, and spine pain. I’m constantly sleepy, and tired. I haven’t drank water as much as I used to for 3 1/2 years. Sometimes my organs are pierced with some odd & indescribable pain which I was unaware. I have really short breath now. I had no idea I had Lupus until I went in to get check after experiencing terrible memory loss and developing a mild speech impairment. Once I was diagnosed with Lupus, all its symptoms became clear to me. However, I still am living life just the way I intend it to be.... Yes, it’s hard knowing I have it because there’s a disease in me attacking my organs to keep me alive. But I will live life, and let God show me my way.
Savannah Pits you have a great attitude. I'm glad you finally know what has been causing all your problems and hopefully things will go up from here.
I am pretty sure I have this. 39 year old male, and I think I have been dealing with it for the past 5 or 6 years, but went undiagnosed due to the "just grin and bear it" mentality. I knew something was slowly bringing me down. Fast forward to 2022, and I got hit with a really bad case of Lyme. The arthritis pain is unbearable at times, and it is whole body. Had to go to the hospital a week ago. Kidneys and heart are starting to become effected. That signature butterfly rash is present on my face. Blood and urine tests are abnormal, but not showing "acute organ failure". Rushing to find a PCP as I went without for 23 years.
I stumbled on your videos while looking at Lupus, rheumatoid arthritis and autoimmune diseases in general. Helpful information here.
You are very inspiring !!!!
I just got a blood test for lupus yesterday and I’m waiting for my results. I’m a 15 year old boy from scotland. My symptoms are the butterfly rash across my cheeks which has been with me for years and the reynuads on my fingers. I also expierence a lot of fatigue
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
Im a 24 year old Asian and I had the symptoms like june of 2016 but i just ignored it up until last monday, june 5 of 2017 that i was diagnosed with it... I've been frequently absent this past two months because the disease is making me weak so I undegone a lot of test from series of doctors then run down to same opinion, I have systemic lupus and so I went back to work telling my supervisor about what I had been going through... I was also shocked when I first knew about it but since in our country this disease is not commonly heard or not even familiar to them, I got to explain what I've been feeling to my body and so they care for me more and understand my situation. I am now undergoing medication and I already accepted that this will be part of my lifetime.. God gave this to me because it has a reason and a purpose.
Quinne Florentino ... ya... everything happened for a reason. Acceptance is better than grievance. That's how your mindsets mature. Btw, stay away from prolonged stress and never stop being optimistic like you already are.😊😇😉
Quinne Florentino 🙏🏽🙏🏽
i ha e just been told today today that i may have lupus, im 17, nearly 18 and i had a blood test a couple weeks ago to test for rheumatoid factor, that came back as 10% which is good, but apparently i may have lupus, the doctor asked if i get a red rash in my face, i asked my mum and she said my face goes really red and i said i get hot flushes a lot, he doctor got me to take my glasses off andhe traces his finger around the outline of where my butterfly rash is, he has refered me to a rheumatologist
my mother has fibromyalgia
I haven't been for an ana yet but I was diagnosed with fibromyalgia a few years ago and always have anaemia. my skin has started mini hemorraging the last 18 months esp after laser treatment. I'm very fatigued and have depression, my hair dried right out in my early 30s no one else in my family has that though (I'm the youngest) I already have celiac disease (as do my siblings) but I'm being good with my diet. I also have chest and stomach pains but I don't have the butterfly rash or other symptoms. Ive had a few small sore lumps on my hand but I'm wondering if they're just insect bites!.
I have mixed connective tissue disease and some lupus symptoms I have.
So today I received my old primary care provider's complete medical records and found a very puzzling and potentially life changing piece of information. Because I was so disappointed with their care and lack of diagnosis, I never bothered to provide my records to my current rheumatologist. Three months before my body suddenly crashed and I stopped walking, I felt many symptoms that were leading up to it. This was July&Aug 2015. Anyway, I read my old rheumatologist notes stating that although I tested positive for dsDNA (specific lupus antibody), it's likely I don't have lupus because my ANA was negative at that time. When I finally switched insurances to see my current rheumatologist in feb 2016, I tested positive speckled ANA and negative dsDNA. It has flipped, but given my lack of improvement with 4 treatments and extreme fatigue, I feel this may be a clue to either an additional diagnosis or just the right diagnosis. I'm confused and desperate for answers. I have been diagnosed with psoriatic arthritis, but have failed all treatments. just like all of you, I just want to get the right treatment! I can't even walk my kids from the school office to my car :(.
I have lupus. This is very accurate.
rather than hair loss can it dry your hair out like your 90 yrs old!?
Hi sweetheart...I have lupus also...and it’s pretty active...I’ve tried to carry on with a workout..but it’s hard because I think it causes joint flair ups...I was diagnosed at 23...it’s been a hard road
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
What type of medication do they use for Lupus. I tested positive for Auto Immune disease a year ago. My ANA levels were tested and came back positive. That in itself took about 3 weeks to come back. I finally got an appointment with a rheumatologist. I am pretty nervous and scared, I think that's why I pushed it off for so long, plus I have another medical conditions I was focusing on and getting the proper medication cocktail in place. I am terrified of what the doctor may say, I keep telling myself no not again, no more medications, my mediset is already full enough. So I am not exactly sure what the outcome maybe,but it's time I focus on my positive ANA.
Awesome video I am a male with Lupus in NZ
All of my blood work is showing lupus but I don’t have or never had a rash on my face it’s always my legs and chest is that normal and my ANA has neck two time’s negative is this normal
I have really bad rashes on my face for summer camp I'm only 9 they hurt and itch alot😷
I've been in treatment for over a year , my hair continues to only get worse, soon I will have to buss my hair, its dead and lifeless continues to fall out and grow back at the same time but the fall out is winning... so am I getting the right treatment? Do I need to seek a new Dr?? I've tried every experiment out there and am just giving up... what to do... help
Try collagen powder for your hair.
Plz tell me how to use for stopping hair loss in lupus?
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
Wow, i search lupus and get this. Like 2 weeks ago the doctor said i have lupus. I got pills but that wont help me to get scrary thinks. Do you have any tips to live with it and dont get the scary stuff with my heart or kiddneys?
Starlightvlogs Hi! The best thing you can do is take care and listen to your body. When you don't feel good... don't push yourself. Stress is tough on lupus patients. I don't have kidney involvement (have had lupus for 9 years) but this depends on the person. Just listen to your dr, take care of yourself and I also have a video about things to avoid.
LiveHopeLupus thank you so much for your response!
Isn't Lupus an autoimmune disease? My wife is suspicious of me having L on top of living with MS. I get fatigued too but that comes later in the day. Also I have two half sisters with L, one is on my mom's side the other my dad's.
Question I found out I had lupus and I was wondering am I able to still put makeup on my doctor told me I shouldn't but it was just a random thought I'm at my doctor's first patient with lupus
Vannessa Tapueluelu hello. You are your doctors first lupus patient? Do you have discoid lupus (of the skin) or SLE? My doctor has never told me to not wear makeup but they could be saying this based on your type of lupus.
Live Hope Lupus both of them
Live Hope Lupus I'm so scared and feel so alone thanks for the response
Sometimes there are ingredients in Skin care creams that aggravate lupus rashes... You can find the best skin creams and make up for us 'Luppy's.' on the net. Also get a mineral filter for showers.. some of my worst rashes were triggered by chlorine and other stuff in the water. I make my own soap and skin creams now... also found out 2 years ago ..that not only Sunlight affects us... Energy saving light bulbs also sent me into Urgent Care.... which was a blessing really because after decades of illness.. got an ANA test.. which was positive. I'm 65 years old ... before I was told I had 'hives' .
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
I am from kashmir and due to ban on internet, i was missing u so much for ur informative videos.
You know i dont take medicines now.
I eat nuts and message with some homemade oil remedy.
It does not work that much, but it helps me to control my pain in hands, feet, back, shoulders and where not.
Anyways it is good to be here to share our stories.
Love u sis.
Welcome back!
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
Shingles develops when you've once had chickenpox because those stay in your body for as long as you live and the shingles break out when your immune system is compromised, so shingles are a thing that can only happen when you've had the chickenpox.
i hope you are well sis
i got diagnosed at 58
It'll take forever for me to be diagnosed if ever. I had a bad head injury that they missed, too. I'm pretty sure that murmur was more than a murmur. But I'm not the doctor. We play pretend. I've given up my pride of being a good citizen. I'll go to the regular ER and pretend I don't know. .
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
Your ANA is positive or negative ? What's your symptoms ? And what medicine you use ?
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
Yes lupus is bad im 37 soon. I need new medicine im just on blood thinners
Just been diagnosed with lupus... 😳
I've been having hives for 3 weeks now, it's been driving me crazy because my family and I had no clue of the cause. After not knowing, we thought it was just tree pollen because with the weather the levels of pollen are high. I just found out a couple minutes ago that lupus was found positive from my blood. I have no clue what lupus is, I've never had to think about before until now. I don't know anything about it, I'm trying not to overthink it. I'm telling myself I'll just wait to think about it until I see a doctor because reading articles on the Internet is only making me more scared.
Any advice? Any wisdom to share of those who have lupus or know what it is??
I haven't told any of my friends either because I don't want to scare them. Plus, if I say I have it, people may not tell me the full truth of what it is, they'll hold back information that I need to know.
Elizabeth Dubinsky ... so how are we doing now... Eliza?
I have lupus to, but I dont like it because in summer I must put sun cream 50+ on my face and in swimming pool I must have a tshirt. I sad
I’m 14 and just yesterday I was diagnosed with lupus and I’m honestly pretty scared about it. :(
The T I mean the medication I’m taking is making me feel a whole lot better but side effects tho. I get very bad headaches throughout the day and The only thing rly that is bothering me is the hair loss. I’ve lost a lot of hair and i don’t know what to do. 🤷🏻♀️
@@alexarojas7937 hope ur doing okay pal
4 DVT/Pulmonary Embolisms. Several serious pneumonia. Pericardial Effusion requiring surgery for pericardial window. 2 Days later Cardiac Tamponade. Whew!
Well said. I got very sick in 2015. My symptoms were all over the place. A sore that blocked the entire hole on one side of my nostril, 2 ulcers that left deep scars in my mouth, crippling joint pain, unexplained intestinal problems and pain. List goes on. I have been to different doctors and several ER trips. Because I don't look sick they just act like it's nothing. One tested me for RA. And stopped with that. All the while I am getting worse and because no diagnosis my family thinks I am fine. Now I have these weird headaches and went to the ER cuz I was having stabbing pains in my chest and thought I was having a heart attack. Hurt to breath. The doctor told me to go to the rheumatologist and get tested for lupus. NO APPOINTMENTS UNTIL AUGUST. I am miserable. I laid out in the sun yesterday and feel like a truck hit me today. Is this lupus symptoms or something else? Help anyone
What state are you located? You need to go under hypnosis with one of Dolores Cannon's QHHT Practitioners. Go to www.dolorescannon.com/find-practitioner and select the state and city your in and click on the name of a practitioner to get contact information. Dolores Cannon's students communicate with the higher self through hypnotizing their client and the higher self heals the client's body. They will tell you the cause of your health problems and heal and cure you. You can also buy the book "Soul Speak" by Julia Cannon which has information about different medical conditions and health problems the human body is trying to communicate to you. Julia is the daughter of Dolores Cannon. Dolores passed away in 2014.
My healer power is God ALMIGHTY. But thanks for the reply.
What is exactly the results for lupus. Ana test porive and what else. My rheumy said that I have undifferentiated tissue decease and is treating like a lupus patient. What do you think about that dear since you have so much experience living with this condition for way longer than me. Thank you in advance
Lali Tea I hope that you don’t have it.
I don't really follow the typical male/lupus severity thing. Mine is fairly mild... for now. That said, your stats sent a cold chill up my spine. It's certainly a frightening disease we battle.
Indeed it is. I try to stay on the more positive side for these videos but it's important to show just how scary this disease can be.
According to the book "Soul Speak" by Julia Cannon, it says on page 143
Lupus: Attacking yourself; feeling a need to be punished. I think this
means that many people with lupus are punishing themselves and blaming
themselves for something. Are you attacking yourself or punishing
yourself over something? You need to stop doing this and love yourself.
That is the cure for lupus.
Swytek That has to be the most ridiculous thing I've heard concerning my illness. I have Lupus because I don't love myself? That is completely and utterly absurd. Frankly, I'm offended by your comment. It lacks empathy and has little basis scientifically. Also, your comment assumes a lot about the emotional makeup of not just myself, but every person with any illness.
Swytek oh girl no....that sounds like a poem for body dysmorphia. I'm really compelled as to why you thought a poem like this would be helpful to all of us out here fighting a deadly disease? Most patients need anti-malarials, chemotherapy, and steroids just to keep them alive and you're bringing up shit like "love yourself?" So messed up
hi ive watch earlier clips, wish you well.
I'm on iron pills 3x a day and my anaemia still won't go away!.
HOw were you diagnosed? A blood test? Or what? I was told i hace fibromyalgia. Wondering if that is what it us.
Margaret Collins my symptoms at the time were very noticeable and I had lupus for awhile before getting it checked. They did blood work for me and my ANA was very high along with my SED rate. Both of these test help diagnose but aren't always positive in people with lupus.
Thank you for your reply. So many do not reply. I am just thankful for that. I Hope you feel better soon. Take it easy!
If you were in remission do you have to still take your medicine that's what I would like to know my name is Angie
Yeh still have to take medicines otherwise it will get worse.
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
The diagnose „SLE“ came 2 years ago - a little to late. My pankreas, my kidneys, my liver and my spleen stoped working- at the same time. Hallelujah. I‘ve been in hospital 2 years now, got over 40 operations and was already death for 5 minutes. There is still a open fistula from my pankreas and I‘ve got an anus preater. Lupus is just shit 🤷🏻♀️
I have lupus too.
Stina M N H me 2 am 16 can't do much because I don't feel good half the time ...
Samantha, I watched your video and you so need to hear my story and how I was near death and reclaimed my health. I suffered like you horribly with Systemic Lupus with renal involvement. Let me know if you have an interest and I will post it here. I want to help Lupus warriors. I was to hell an back and I so know what you are going through...Hope to hear from you!
I'm 14 diagnosed with lupus I am so scared 😳
Dont be sad sweetie!!! Am also same
omg i found out i have lupus 2 months ago i had no clue about all this until now i am scared
lovely mimi Mimi, you just got a name for an illness you have been living with for who knows how long. The only thing that has really changed prior to your diagnosis is now you have a name for it, something you didn’t have before. So just as this is a piece of information there are other “pieces” of knowledge you’ll learn as you go along. It is scary, of course because of all the things that “could happen” but that doesn’t mean they will happen to you, OK? This Illness is highly individual-and there is no one else who is exactly like you.
No matter what, you are lovely mimi: Lupus is a part of who you are, but it is not all of who you are by any means. It’s OK to be scared, angry, confused or what ever you feel but please remember, you have been living with Lupus before you knew it had a name-and it’s name isn’t lovely mimi. You are NOT your diagnosis. None of us are.
your right .. i was just shocked the moment i knew because it took me 5 years of hospitals and tests until i knew its lupus i am taking medication for it now and it is helping me alot i just need to check monthly and see that everything is ok i keep telling myself that it is just part of life now
i am very grateful that i never gave up so many doctors told me that i have a mental illness because they just couldn't find out what causing me to be ill they even gave me medication for depression and i wasn't even depressed
i know now that i can control it i try to be easy on myself and enjoy my life not thinking too much about it and i am more happy now than ever at least i know im not crazy or lazy like what some people always tell me and i feel so much better with the treatment i am seeing huge difference.
^_^ thanks for your msg it dear
My sister has lupus...😭
can ppl with lupus have kids??
Yes you can. It's just higher risk and is best if planned based on disease activity at the time and medications.
I have Lupus and I am a proud Mother to 4 amazing children!!!! Although I have to be very honest when I say for some woman with Lupus having children can be risky. Planned pregnancy is the best option when considering having children when you have this illness. I had some very serious complications during my pregnancies due to Lupus, although I will say that I was undiagnosed at the time.
When you can't even get a doctor to run your ANA because "you're too toung to have that"
You are soo cute 💖💖💖
I hate lupus..this shit hurts
eat nothing but fruit and vegetables for a while and see how u feel after that herbs and nuts are okay but try to stay away from bread any food in a package that's process and sugars besides fruits every thing has sugar
Ken Weezy it's a disease what the fuck dude
😥😥😥😥😥😥😥😥😥 my mom has lupus 😭😭😭😭😭😭😭😭😭😭
Thank you I'm a Lupuswarrior too. Check out my vlogs and videos.
sounds sucky. my family wouldn't be able to afford all that
U never reply my comments😣
I get hundreds of comments a week - it is difficult for me to get back to comments on my older videos. If you are able to catch me the first few days on a new video, I am usually able to reply back to most. I try my best.
@@HealWithSamantha I know dear.
Thanks a lot.
U inspire me so much.
I am a primary school teacher.
I am 31, and i m getting married in september this year.
My will be in laws dont know about my disease, I am very afraid to tell them because they expect a lot from me.
Anyways thanks again for replying.
@@erfanasalim9886 I wish you the best. I hope that they understand when you tell them.
Thank u dear for your loving words.
All thanks to Dr.Auchi who I met on CZcams channel. He cure me from Sle Lupus disease with his herbal remedies, I recommend Dr.Auchi on CZcams channel to everyone suffering from Sle Lupus disease 🦠..✅✅🙏🙏🙏
Do you have rash on your face?
'
pretty lady on this video...
she should leave pretty pure natural face alone that way without a makeup chair