FOX 5 Special: LYME & REASON

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  • čas přidán 30. 06. 2016
  • “LYME AND REASON: THE CAUSE AND CONSEQUENCE OF LYME DISEASE” presents an in-depth look at the cause and effect of Lyme disease, including the controversy over testing, the issues of misdiagnosis, and the personal struggles of medical professionals and patients contending with this life-changing illness.
    -Brian A. Fallon, MD, MPH, Director of the Center for Neuroinflammatory of the Lyme and Tick-Borne Diseases Research Center at Columbia University talks about the cause of Lyme disease and what you should do if you’re bitten by a tick!
    -Yale-trained Lyme disease expert Steven Phillips, MD, addresses the controversy surrounding Lyme disease, while Paul Mead, MD, Chief of Epidemiology and Surveillance Activity of The Bacterial Diseases Branch of the Centers for Disease Control and Prevention, offers the perspective from the country's lead public health agency.
    -Singer and songwriter Dana Parish describes how Lyme disease temporarily derailed her music career during the prime of her life, and how she is now raising awareness about this debilitating illness!
    -Lyme patient and advocate Susan Green of the non-profit The National Capital Lyme and Tick-Borne Disease Association (NatCapLyme) talks about the burden placed on families in terms of costs for the treatment of Lyme disease!
    -Renowned oncologist Neil Spector, MD, shares his own personal story of his transition from doctor to patient, and how Lyme disease led to an emergency heart transplant!
    -Actress and TV personality Marla Maples talks about her own diagnosis of Lyme disease, and how she is encouraging other celebrities to share their stories to put the spotlight on Lyme!
    -Author, artist and designer Ally Hilfiger, the daughter of fashion icon Tommy Hilfiger, reflects on how Lyme disease stole her childhood, and her mind after being committed to a psychiatric hospital!
    -Patricia De La Mora, Associate Professor of Clinical Pediatrics, Weill Cornell Medical College talks about prevention and how to keep your children safe, while Lawrence Putter, MD - Medical Director Lenox Hill Veterinarians discuss pet safety when it comes to ticks!
    -12-year-old Julia Bruzzese shares her heartbreaking story of how Lyme disease has left her unable to walk, and how a blessing from Pope Francis on his visit to NYC last year has given her and her family hope for recovery!

Komentáře • 142

  • @Mojosfire
    @Mojosfire Před 7 lety +13

    I'm so glad to see this video. I was bitten years ago, but lately it's really got me worried, because I'm having huge issues with the mind fog, more then ever, and having trouble even talking, going completely blank in the middle of conversations not having a clue what I just said, or sometimes cannot speak words, having trouble just getting them out. The pain symptoms, and fatigue have been a constant battle. I wish doctors would stop acting like their a God, and humble themselves a bit to stop being know it alls, and actually listen to us.

  • @phyllismervine7030
    @phyllismervine7030 Před 7 lety +5

    Thank you, Fox5, and thanks Dr. Phillips, Dr. Spector, Ally Hilfiger and everyone else for becoming advocates for the millions who are too sick to advocate for themselves.

  • @FitFarmChick
    @FitFarmChick Před 7 lety +22

    No one understands what we suffer through. Even our closest loved ones. Relationships of all kinds can suffer.

    • @BlueStar712
      @BlueStar712 Před 5 lety +2

      Fit Farm Chick yes I’m on my way to being healed from Lyme, doctors had nothing to do with it.

    • @iPostiPodiEatiYuri
      @iPostiPodiEatiYuri Před 5 lety

      @@BlueStar712 could you share with me what you are doing to treat yourself?

  • @AB-bt9eb
    @AB-bt9eb Před 7 lety +8

    Thank you for speaking out on Chronic Lyme. It's a terrifying and painful disease. Youve done so much to help and I'm so grateful.

  • @lastingchangenow
    @lastingchangenow Před 8 lety +18

    Excellent job. You communicated well how devastating Lyme disease is to "body, mind and soul." It's changed my life completely.

  • @lavenderclairy
    @lavenderclairy Před 7 lety +10

    This was really well done. Thank you for raising awareness for this awful disease. I've had Lyme as long as I can remember. I got bit when I was almost 2 years old and now I'm 15. I just got diagnosed last February. I'm severely debilitated, I'm confined to my bed and I use a wheelchair to get around. I've had multiple ICU stays and the doctors thought I was going to die. I somehow pushed through and now we are trying to find a treatment that will help me. I have to travel across the country every 3 months to see my LLMD. It's awful that insurance doesn't cover anything. I'm hoping I can get into remission but I know how much of my body has been destructed. It's scary going to sleep at night and not knowing if you're going to wake up in the morning. It's scary to see how little people care about Lyme when you're dying. It's such a tough illness. Everything gets taken away from you in the blink of an eye. If you think you have Lyme please see a Lyme Doctor, it's a very severe illness that can be deadly. I have hope that one day Lyme will be recognized, not sure when but eventually it will be!

    • @familyscicluna6137
      @familyscicluna6137 Před 4 lety

      Claire Elizabeth Have you considered RIFE and Infrared Sauna Blanket. This is what I’m using and slowly feeling better but I did go through a few herx reactions. Hope it helps you too x

  • @TheDap123
    @TheDap123 Před 8 lety +13

    Thank you Fox5 for this special report. We need more like this to be shown on TV to make people aware about Lyme. This sucject has been silent and suppressed for too long! I am a Lyme advocate and fellow sufferer. I never had the bullseye mark and went for years misdiagnosed with many other diseases. Once I found a LLMD I started aggressive treatment with both antibiotics and alternative healing methods it took almost 6 years to start to get my life back. It's better now but I still ride the roller coaster with flare ups. Our medical professionals need to be more educated about Lyme and the many co infections that the Ticks are now carrying. It's important to include the co infections since some of these can cause just as much if not worse damage then just Lyme. I did not hear anything mentioned in the video about these co infections. Babesia is one of these co infections that has to be treated with anti malaria drugs. Unfortunately we who have gone the Lyme route are more educated then the doctors about such medical references. Most doctors will not even think to try and test for co infections. It's a project just to get them to test for the Lyme! Then of course the tests are not accurate enough to give a positive result. There are thousands of people walking around thinking they are suffering from MS, Lupus, Fibromyalgia, Chronic Fatigue Syndrome and even ALS who do not have these illnesses... They have Lyme! People are also dying from this disease because of the lack of education and insurance coverage. The CDC continues to keep people sick with their nonsense that Lyme is easy to cure. This may be true if you find the Tick and get antibiotics right away but that's not the case. Doctors are bound by the CDC guidelines that want you to be tested ( which tests are not accurate ) and then have to wait weeks to months before getting a treatment for a short time ( which is not long enough ) while this bacteria is taking a hold throughout your body. People should not have to fight with their doctor to get help. Lives are at stake here. How many children will be crippled or die because of the blinders the medical world have to put on because of the ignorance of the people who dictate these useless guidelines! Please continue to have specials like this one to expose the truth.

    • @eminjo7397
      @eminjo7397 Před rokem +1

      Tnx that is amasing what u have said and so true. My husband is fighting, he can not eat anything and does a treatment but he has no energy to continue...could u tell us what did help u? Did u hear about thermo therapies? That Borrelia is thermo unstable? Or could be with some frequency changed?

    • @TheDap123
      @TheDap123 Před rokem

      I was lucky enough to find a really good Lyme Literate doctor. I’ve done it all from antibiotics to using Rife machines. Bottom line is there’s no miracle cure so we have to do whatever we can to get as well as we can ourselves.☹️ Lyme isn’t taken serious enough in the medical field. The doctors really don’t know what to do or how to treat it because the information the CDC tells them is WRONG! I have found that most symptoms are caused by inflammation in the body. The brain fog can be disabling! I’ve learned a trick that helps me. Antihistamines decrease inflammation in the head. 👍🏻 There are a few doctor websites online that give very good advice. I’m not a doctor so I can only say what helped me. Everyone is different though. I would do a search for all natural ways to treat Lyme and find doctor’s who can help. Western medicine isn’t educated enough to know what to do! Hope this helps👍🏻

  • @linaaliotta4545
    @linaaliotta4545 Před 8 lety +14

    Thank you for sharing. We need more people like you to get something done about this horrific disease .

  • @brittinipeck9189
    @brittinipeck9189 Před rokem +2

    This is by far and wide the utmost horrific pain I have ever been in throughout all of my entire life.

  • @ladieluck19
    @ladieluck19 Před 8 lety +15

    THANK YOU THANK YOU THANK YOU!!!! This special will help SAVE LIVES

  • @robertvalderaz7329
    @robertvalderaz7329 Před 7 lety +18

    send the bill to the depth. of homeland security, plum island.

    • @robertvalderaz7329
      @robertvalderaz7329 Před 7 lety +7

      research how it was started, goverment experimentation on plum island, first case was a young boy on the Connecticut coast.

    • @JazzzzlvrFU
      @JazzzzlvrFU Před 7 lety +3

      If only we could prove that it came from a biological-weapons accident on Plum Island. The US was said to have been experimenting with tick-borne biological weapons at the time, and Lyme, Connecticut is just across the Long Island sound from Plum Island (an easy trip for a tiny, wind-borne tick). However, research also shows that a form of the Lyme bacteria (Borrelia burgdorferi) was found in the genetic material of a well preserved frozen mountain creature (Yeti, the Ice Man) who lived about 5,000 years ago.

  • @skeetelmore65
    @skeetelmore65 Před 8 lety +10

    I'm a vocalist that worked professionally in Nashville, at Opryland, for years, but after getting Lyme, my music and my life was put on hold. Been bedridden for years, but not giving up and still fighting with natural remedies.
    I contracted Lyme and two co-infections-Bartonella and Babesia, after pulling a tick off of me in '08. It was where I couldn't see it or feel it because it was in my hair-line, at the back of my neck. On top of the tick making the area numb, as it usually does, my fingers were also numb, due to getting hit by a nerve block for other back issues. I didn't feel it there and it had been there for over 3 days, until the tick had become engorged and swollen to the max. I almost puked, when I found it and pulled it off. I saw it and never thought anything about Lyme because didn't know much about it and I flushed it down the toilet. Of course, the wrong thing to do and 2-3 months later, I was so ill with flu-like symptoms and my adrenals went out and an Endocrinologist thought that I had Addison's disease and was treated for it. Then, my thyroid was giving me trouble and my neck was swelling up with a goiter. I was lost and thought that I was dying, so like so many others...went Doc to Doc..to no avail, until I found my LLMD. He sent my blood-work off to Igenex and they called me with the results and sent me the lab results of Lyme. I cried.
    After 8+ yrs now, I to this day have never been treated with ANY abx. I just deal with my symptoms and use natural remedies... essential oils. I find it utterly amazing that I found them and believe that The Lord sent them to me. It was a true blessing that I started using them, the same year that I pulled the tick off of me or I might not be here right now. Truly believe that my EO's have been what has kept me alive this whole time and due to a LOT of prayers. Glad in a way that I've never taken ANY antibiotics for the Lyme or co-infections because I am afraid of long-term treatment with them. You only make your system weakened, for when you really could need them later and them prove to be un-effective. If I had caught it early, like at the beginning, I would have taken them, but not after they've been let loose to grow wild throughout my body. Would it really do me any good? I donno...but feel it would be redundant to do so now. :/
    If, I had only gotten a positive test result from the NL's or NS's that I went to for years, then I would have know years earlier and possibly wouldn't have suffered all the years that I have. There were 4 different test run, by 4 different docs(NS and NL) and they all were negative. The docs even seemed to be angry or aggravated that I thought that it could possibly be Lyme, even after the tests proved otherwise, but what other answer was there? I did pull a tick off of me and it only made sense to me.
    My left arm still will go paralyzed and this has happened to me, at least 4 different times. The whole left side of my body has gone paralyzed too and my weight sky-rocketed to 199. My joints started to lock up and the pain was horrendous. My body would ache down to the bone and still does on some days...today. My knees and elbows would lock and actually, feel like a tree-branch being broken, just to move them. I can say that I have literally been through H*** on earth...but thank God everyday, I'm still surviving. :)
    I would LOVE to participate in any way I can in helping others to become more aware about Lyme. IF there is anything that I can do, I will. I do have some professional friends that are also willing to help and they are on the top right now, in the music business. They said that they would be willing to help in any way possible and would love to be a part in giving benefits or whatever it would take, to help research Lyme.
    Just get back with me and let's get the ball rolling.
    God Bless...and thank you for the spreading of the info about Lyme, to others!!

    • @jonathankumfert8311
      @jonathankumfert8311 Před 8 lety +2

      So I am a musician and singer as well. I was having forearm and hand pain and always thought it was from playing guitar, working out and wrestling. Two months ago it got so bad I couldn't get outta bed. I finally went to a llmd doctor and he said it was lymes even though i only showed 2 bands instead of 5. Another doctor says arthritis. So I have been on a bunch of drugs for 2 months, no alcohol and a strict diet. I have some better days but still feel crappy and everything hurts espcially hands arms, neck. Not to mention I get these crazy pains in my elbows if i just brush them lightly. I feel like I am going crazy often questioning if its lyme or something else. I can't take seeing more doctors. I have cats claw and japaneese knotweed coming....Not sure what to say.

    • @skeetelmore65
      @skeetelmore65 Před 8 lety +1

      Sorry to hear of your pain in the limbs. I do understand completely of what you are going through. I have some days like that, but with me using my Young Living(YL) essential oils everyday and have been using them religiously for the past 8 yrs and have seen a tremendous difference in my pain level.
      I mostly feel that pain now, only when a front is coming in...like rain. :/ But, even so I have found some remedies, to dealing with that awful pain. I am a big Young Living fan and become a distrubutor of their oils because I thorougly believe in them. They have worked faithfully and continuously for me and I use all of their essential oils, but I have been adding them to all of my baths, in Epsom salts.
      I found that their "Deep Relief" is fantastic for helping the arm, neck and hand pain. It comes in a glass 10 ml bottle that lasts me for a month and basically you are paying a $1 a day and well worth it. All you have to do is rub it in and it penetrates down through the skin layers. If you would like to give it a try and/or need any of their products, you can get them right here. You must try the Deep Relief and won't be disappointed..trust me. God Bless you and sending my best!! :)
      You can get it on my site: www.youngliving.org/karenelmore

    • @JazzzzlvrFU
      @JazzzzlvrFU Před 7 lety

      Have you tried Cymbalta to relieve the pain? Works for me.

    • @DariaRock1
      @DariaRock1 Před 7 lety +1

      I am a singer and musician too and survived /surviving neurological Lyme. Its hell on earth. Sometimes I wake up and dont know who I really am ....

    • @DariaRock1
      @DariaRock1 Před 7 lety

      I am using colloidal silver, Mms, herbs , also essential oils, vitamins ....

  • @davidrthomas8761
    @davidrthomas8761 Před 8 lety +5

    This is very accurate and what we Lyme Advocates are trying to tell people. Thank you Fox 5 for a great piece of work.

  • @LoriGeurin
    @LoriGeurin Před 7 lety +4

    This video was so well-done! Thank you for bringing awareness to Lyme disease and the truth of what so many of us are dealing with. Awesome job!

  • @ReverendJon
    @ReverendJon Před 8 lety +3

    I contracted Rocky Mountain Spotted Fever, last year & a mistake on treatment left me untreated for a month. I lost my job, robbed my 401k empty on snake oils & doctors, lost many friends; and as of today, lost my home.
    I was diagnosed with thyroid cancer in October, and refuse to address it due to message boards of people in similar situations & all saying that after thyroid removal, they deteriorated.
    I would rather die a slow death from cancer than to feel like this or worse for the rest of my life.

  • @keithberndtson6747
    @keithberndtson6747 Před 7 lety +7

    This is a powerful video segment on the oversimplification of Lyme disease by CDC and IDSA diagnosis and treatment standards, for an infection that is widely recognized by microbiologists, immunologists, and Lyme-literate clinicians as a persistent, immune evasive infection that can persist despite the kind of antibiotic challenge that is recommended by the IDSA and by the Federal agency in charge of how doctors are supposed to think about Lyme disease.
    I have yet to see the CDC or IDSA contend with the conclusions of authors of peer-reviewed scientific research in journals of record whose findings make very clear that Lyme bacteria can evade and confuse mammalian immune systems in ways that interfere with our innate and adaptive immune responses, rendering currently recommended diagnostic and treatment studies wholly irrelevant to a reality-based evaluation and management of patients whose multiple symptoms likely relate to untreated or incompletely treated Lyme disease.
    The CDC and IDSA are guilty of creating the chill effect that prevents doctors from taking such research into account. Health insurance reimbursement bias bars doctors from engaging in patient-centered, accountable care of patient who have, or might have, persistent Lyme disease. Patients are disenfranchised by collusion between the health insurers, professional societies, and federal agencies that are forcing the medical profession to pretend that Lyme is much simpler to diagnose and treat than the peer-reviewed medical literature has shown to be true.
    One of the key concepts in treating untreated or incompletely treated Lyme disease is to conduct a therapeutic probe using antibiotics that cover both the spirochete and dormant forms of Lyme bacteria. No study that has failed to do so can claim any relevance to the immune evasive reality of Lyme disease. Only treatments that take away the Lyme bacterial "hide and seek" capacity out of the equation are worth discussing.
    The glaring question remains: Why do the CDC and IDSA insist on over-simplifying the complexity of Lyme-related infections? Their failure to take into account the long parade of research showing why persistent Lyme is hard to both diagnose and treat and treat would be silly were it not also so scandalous and tragic.
    My thanks to Drs Phillips and Spector, to the Lyme-suffering patients who were brave enough to share their stories, and to the crew that put together this most profound telling of our nationally disgraceful handling of Lyme bacteria as a commonly missed answer to the question, "What happened to my life?"
    Keith Berndtson, MD

  • @abbeyt5885
    @abbeyt5885 Před 8 lety +2

    Thank-you for doing this! The truth needs to get out about how serious this disease is!! Things need to change so people suffering can get the help they need.

  • @kellyth846
    @kellyth846 Před 6 lety +3

    I have Lyme. Been battling Chronic Lyme since May 2012 since the Dr in the ER didn't treat it aggressively enough with strong antibiotics. He should have given at least 4 weeks worth and only gave about a week. Now I battle this everyday.

    • @Alexander-mk9kg
      @Alexander-mk9kg Před 5 lety

      Chronic lyme is not a diagnosis. Sorry. You may have post-treatment lyme disease syndrome but there is no such thing as chronic lyme disease.

    • @user-xf3cu4le5z
      @user-xf3cu4le5z Před měsícem

      ​@@Alexander-mk9kghaha you're comment is going to age like milk. You don't realize to follow the money and realize it's a insurance and pharma scam.

  • @paulbryce526
    @paulbryce526 Před 6 lety +6

    For those with Lyme you need to know where it came from. You won't like it. Search Lab 357
    or Plum Island Bioweapons.

  • @angelonduty100
    @angelonduty100 Před 7 lety +6

    Thank you for this....I have been sick for over 37 yrs w/ NO Doctor who knows
    anything about these diseases .....But hey, I'm lucky, I was put into
    Hospice 3 weeks ago, SO I get to Go Home soon !

    • @menarussell
      @menarussell Před 7 lety

      How are you doing? I want to help you. I really want to help you so that you can get well. You need a doctor that knows how to do things to help you. I know some great doctors and health consultants that can help you with your genetic issues that can affect how you react to things, etc. YOU can get better. Contact me: ArtsyMena@gmail.com

  • @kathalanaoneg1456
    @kathalanaoneg1456 Před 7 lety +3

    It's not just from ticks but fleas, horse flies, humans, humans, humans. Why can't they get with the program.

  • @bekindforlyme4437
    @bekindforlyme4437 Před 8 lety +4

    Thanks you for doing this interview. We hope to see more awareness in the future about the Lyme epidemic. Would be nice if the CDC were doing the right thing and putting out PSA's for prevention. In the meantime, we will and as well as many other Lyme warriors spread info...Appreciate you for doing this!

  • @laraesanford8605
    @laraesanford8605 Před 7 lety +5

    Sad that dogs can get lyme vaccine but ppl can't. Been battling Lyme for 5 years. It's hard.

  • @kraftykels2884
    @kraftykels2884 Před 6 lety +3

    I believe the CDC is rediculous, those with Lyme are DYING. My sister is one of those people. Please pray for Krista she is in the late chronic stage. She has severe neurological, cardiac and severe morgellons. Over a 4 year period, misdiagnosed 32 times. I fear it will be soon.

  • @ceciliaamirati4470
    @ceciliaamirati4470 Před 4 lety +1

    And while all this "controversy" goes on, we are stuck in the middle, suffering because all the lack of effort and study for this scourge has been allowed to continue to this very day!!! nightmare!

  • @pureone26
    @pureone26 Před 7 lety +2

    A lot of people are having success treating Lyme (and/or related infections) with colloidal silver. Please try. But you need a good brand (small particles) or make it yourself, start low dose and build up (and may need to space out the day with probiotics). May need to take it for 1-2 years and be patient and persistent through the horrible die off/ Herx reaction. I use DMSO also to improve absorption through my body. DMSO is also good for pain. It has helped and you won't turn blue!. Where I live there is no Lyme test, no treatments so it is DIY. Infectious diseases doctors told me Lyme does not exist (even though I got it in USA possibly). Luckily I am a medical scientist and topped the course, so I told them to pee off (and I am a drop out med student, as I didn't like the mercenary motivations of the students). Best wishes. (Many people with diagnoses of Parkinson's, MS, dementia, ME/ CFS, fibro etc, actually have Lyme or Lyme like illness and would improve on this type of treatment, but don't tell big Pharma that as they don't profit off you getting better).

  • @nutew4809
    @nutew4809 Před 6 lety +3

    Don't forget the secondary fungus infection that can get you after high doses of antibiotics for the treatment of Lyme.

  • @BeKindforLyme
    @BeKindforLyme Před 7 lety +2

    Thank you for this report. Please keep talking about Lyme Disease!

  • @cateyvaida9305
    @cateyvaida9305 Před 5 lety +1

    sorry to everyone going through this :(

  • @cheryllewis3059
    @cheryllewis3059 Před 5 lety +4

    sickening - created by govt

    • @marcchaffee7751
      @marcchaffee7751 Před 2 měsíci +1

      Oh ,dont you know ? they are here to help .

  • @NEWSBYTES.
    @NEWSBYTES. Před 4 lety +1

    It says prevention is better than cure, stay safe people 💙

  • @amc7568
    @amc7568 Před 7 lety +6

    Here's a doctor who had to force people in medical community to help. Imagine those not so fortunate.

  • @shawnmeboy
    @shawnmeboy Před 7 lety +2

    I've had Lyme for 10 years now but just diagnosed with it last year.

  • @margaretboyce-furey3116
    @margaretboyce-furey3116 Před 7 lety +2

    This disease ruins many lives but research to find a cure is almost nonexistent . Those effected by this epidemic must advocate for research and laws to protect doctors and provide support for patients, including a mandate requiring insurance carriers pay for all treatment prescribed by ILADs doctors.

  • @coletteg.4548
    @coletteg.4548 Před 2 měsíci

    As many people there is that has this why isn’t there more media coverage?
    Why is this so covered up ?

  • @JazzzzlvrFU
    @JazzzzlvrFU Před 7 lety +1

    For anyone interested: After 15 years on those awful opioids to relieve Lyme arthritis pain, I found that Cymbalta has cut the pain in half, most days. I'm certain that I have "chronic" Lyme disease, although no doctor will yet diagnose it as such ... and there is no effective treatment. GL!

    • @lavenderclairy
      @lavenderclairy Před 7 lety

      . jazzzzlvr I'm starting Cymbalta in a week for chronic pain! This gives me a little bit of hope that it will work.

    • @shiarafigoni1464
      @shiarafigoni1464 Před 2 lety

      The rife machine.......nano technology

  • @brittinipeck9189
    @brittinipeck9189 Před rokem +1

    It is tragic.

  • @charlesfeatherstone6196
    @charlesfeatherstone6196 Před 4 lety +1

    Im from South Africa, I have lymes disease. My sister also has lymes and our family is destroyed.
    THe financial burden has been great. Unable to work properly and medical Aids in South Africa refuse to admit lymes exists in South Africa.

  • @fatimamarrerocampos7820
    @fatimamarrerocampos7820 Před 7 lety +1

    Thanks

  • @gizmo10923
    @gizmo10923 Před 7 lety

    Extremely interesting!!!!! makes you think !!!!!!

  • @quinones903
    @quinones903 Před rokem +1

    We need help is in my heart already

  • @robertaschwartz9459
    @robertaschwartz9459 Před 7 lety +1

    This is my second fight with Lyme. It started in 2007 and then again in October, 2016. I almost lost my job a little over 2 months ago. I am working again, after almost getting fired bec/of memory problems at work, probably due to Lyme. However, lately I am struggling with feelings of chronic feelings of being cold all of the time and a new pattern of chronic, extreme fatigue. I have very, bad pain constantly in my right hip, and am having great difficulty walking on that side. I need to find a new Lyme Dr. I live near NYC.

  • @brittinipeck9189
    @brittinipeck9189 Před rokem

    And it is proving Relentless. In my life.

  • @michaelrapheal4772
    @michaelrapheal4772 Před 6 lety

    Is there a follow up news report on these stories; what has happened to them and how they are doing now?

  • @dsimone11
    @dsimone11 Před 7 lety +1

    I like to give the explanation that it hurts because I can't breathe but then it hurts when I breathe. 😩

  • @heatingfuelsavings3
    @heatingfuelsavings3 Před 5 lety +1

    The answer is a prevention from tick bites by all mothers. We must educate all Mothers about all methods of avoidance of bites.
    e mail for complete paper

  • @lisbethwatson
    @lisbethwatson Před 6 lety +2

    Hey channel 5, did you ask where Lyme originated. Research project paper clip

  • @elaineclementsfinn1872
    @elaineclementsfinn1872 Před 8 lety +3

    Wrote a Lyme disease brochure with the help of 2 Lyme-literate doctors. Will email a copy to anyone interested. God bless, Elaine

    • @cindifortner9205
      @cindifortner9205 Před 7 lety

      Elaine Clements Finn please emails me at
      madathisto@Gmail.com
      ty

  • @menarussell
    @menarussell Před 3 lety +1

    Almost all of us have lost friends and family because they don't understand or believe us.

  • @gaiamw8
    @gaiamw8 Před 6 lety +1

    We have to stand against CDC together and fight for R lifes !

  • @candacecarver2376
    @candacecarver2376 Před 6 lety

    I had lime disease over 18 years ago I had the bull's-eye rash I was in New Hampshire at the time and went to the hospita. the CDC was there at the time and they told me I had a spider bite went back to Connecticut to my doctor he pulled out a medical textbook and said you have Lyme disease. I was one of the lucky ones I caught it early

  • @tamiwigginton7137
    @tamiwigginton7137 Před 2 měsíci +1

    Where is the new research???

  • @philbodean1
    @philbodean1 Před 6 lety +1

    why are there so many treatments for pets, but nothing for people?! I took my dogs to the vet the other day and they offered the Lyme vaccine for them. I got them vaccinated. I asked why they don't have anything like that for human beings, with no answer.

  • @menarussell
    @menarussell Před 3 lety

    Sadly, Dr Neil Specter crossed over not long ago. We were hoping to meet since he lived only 2 hrs away. He's a great example of Lyme carditis and cardiologists misdiagnosed him! THEY should be educated on it. It's malpractice for drs to misdiagnose sooo many people who refuse to believe anyone else that their drs might be wrong.

  • @alfonindatube
    @alfonindatube Před 7 lety +6

    ah, and by the way, DEET is useless as repellent for ticks.

  • @brittinipeck9189
    @brittinipeck9189 Před rokem

    It is painful.

  • @marcchaffee7751
    @marcchaffee7751 Před 2 měsíci +1

    Oh and by the way , the friends you thought you had ? well they are gone . I miss having friends , anybody else going though that ?

  • @brittinipeck9189
    @brittinipeck9189 Před rokem

    That's where I am.

  • @marilynshelton2371
    @marilynshelton2371 Před 7 lety

    I was bit by a Rocky Mt. Tick in Utah when I was eight. Being a dumb eight year old, I just plucked it off of my skin and smooshed it. I didn't develop Lyme Disease. I wonder, is that more common in eastern ticks?

  • @patear59
    @patear59 Před 5 lety

    Please read and click the green here at the end of the page to read the court case! Fascinating read

    • @patear59
      @patear59 Před 5 lety

      lymediseaseassociation.org/news/lyme-patients-file-civil-suit-against-insurers-idsa-idsa-panelists-2/?fbclid=IwAR0SvcN_oO_hmEsF3-iPYoQ0-T5YzsQYMnozsNaBjApKewHH1qTEU8ytmn4

  • @judymallory3260
    @judymallory3260 Před 7 lety +1

    If every L.D. patient will take it upon themselves to be aware of what people say about their health, then we can educate the public about L.D. too. If I hear anyone describe what could be L.D., I make them aware that they could have L.D. and they should get tested to rule it out as the reason for what they are suffering. I carry literature in my purse to share as well. I encourage them that it is treatable with antibiotics and tell them how to find a Lyme literate doctor in their area. I have had some people follow my advice and find out that they did have L.D. I try not to overwhelm anyone with too much info. Just enough to make them see the need to be tested.

  • @sagal_1117
    @sagal_1117 Před 5 lety

    How is possible that they have to go in a trial to help the people when at least is 300,000 new cases every year and i bet is going to be higher numbers since this disease is spreading very fast..God bless all of us and give us strength!

  • @brittinipeck9189
    @brittinipeck9189 Před rokem

    Yep

  • @menarussell
    @menarussell Před 3 lety

    Most people are missing with multiple other things. So they cling to and begin to own and believe those things are the root cause when in fact, they aren't. So they are prescribed meds and get worse or don't get better.

  • @okdk7
    @okdk7 Před 4 lety

    Not hearing much about Initial infection vs re infection and then co-infections.

  • @brittinipeck9189
    @brittinipeck9189 Před rokem

    Bingo!

  • @patrinabrown5359
    @patrinabrown5359 Před 3 lety

    Can't wait to get healed,I'm scared I'm gonna die.always tird,sleeping,back pain and I isolated myself to prevent from spreading it to my grandbabies an others.been on quarantine before the corona.just waiting patiently for help ....

  • @brittinipeck9189
    @brittinipeck9189 Před rokem

    Crazy

  • @brittinipeck9189
    @brittinipeck9189 Před rokem +1

    I would imagine, the more likely "lyme" areas, would hold a much higher and probable number of "head trauma" aka TBI, cases.
    I'm no scientist, but there's no expert, like that of whom was born with it.
    I always use to congratulate (still do) my baby sisters many accomplishments; there's Only One Book/Streets/Survived/ Lived , Book I've ever read though, myself.
    It's because of Christ Jesus, alone, that I know all I have been taught, regarding this disease.
    If there's (AND THERE IS A LOT) hope for me; you're already well on your way to being healed.

  • @janicesutton9718
    @janicesutton9718 Před 3 lety

    victim of the CDC and the IDSA..........blood on their hands for so many sick children as well as adults

  • @patrinabrown5359
    @patrinabrown5359 Před 3 lety

    Help Me!

  • @danhousler2134
    @danhousler2134 Před 7 lety +3

    I was hospitalized for 5 days, cost $30,000

  • @mariegentile9157
    @mariegentile9157 Před 7 lety +1

    Lyme disease is an epidemic and why is that why?

  • @AGirlandaGermanShepherd
    @AGirlandaGermanShepherd Před měsícem

    That's me and add Bells Palsy. Ruined my life. 😢

  • @andreafox3835
    @andreafox3835 Před 3 lety

    FOX news please keep talking about this. People are dying. Peoples lives are being ruined. We need change!!

  • @MrPatrick1414
    @MrPatrick1414 Před 6 lety

    Lets focus on the disease not the celebs

  • @kathymyers7279
    @kathymyers7279 Před 6 lety

    Your concerned about patients getting "unproven treatments?" DO YOU HAVE LYMES???????

  • @chelee3444
    @chelee3444 Před 7 lety +2

    iradicate the ticks!

  • @scootergreen3
    @scootergreen3 Před 6 lety

    Squirrels and other rodents also carry "Deer Ticks".

  • @nicoleluter
    @nicoleluter Před 6 lety +1

    Of course even this well-done reporting says that "in the majority of cases, a bulls-eye rash appears" -- That is just Plain NOT TRUE. I hate that misconception.

    • @Alexander-mk9kg
      @Alexander-mk9kg Před 5 lety

      Chronic lyme doesn't exist. Sorry but all of you are idiots.

  • @blkseal1
    @blkseal1 Před 4 lety

    They had to put in the religious deception.................

  • @annkremer9721
    @annkremer9721 Před 8 lety

    "blessed" HA