Fibromyalgia Flare Up // What The Bad Days Look Like // Living With Chronic Pain & Fatigue
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- čas přidán 6. 09. 2024
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So I thought I would share a little of what a bad day looks like, or better, a description of what it feels like.
This video is a tad rambly (what else is new ahah) and I think it shows a real part of my life, living with Fibromyalgia.
If you enjoy this video let me know by liking it or leaving a comment, and consider subscribing to my channel!
Hi! I'm Olga, I'm 25 and I have Fibromyalgia - I had to give up my dream of becoming a professional dancer, I had to give up driving, working, a lot of us have to go through this. I started making videos to help me cope with the condition, and now they have turned into educational videos about the illness, as well as some entertaining ones, cause I am a multi-layered person like everyone else, and I like more than one thing! This channel is also a statement - we are people still, in spite of our condition, we are complex and passionate and interesting. I hope by sharing my journey I will inspire others to keep going, that I will help others understand their bodies better, and that I will help you all feel less alone!
For me it feels like I was dropped into a giant swimming pool filled with molasses. Even the smallest things require so much effort because there's just the drag of the Molasses on you and it envelops you. It's a curse especially when you get a flare.
That is a very good way to describe it, too!
Is anyone having heart palpitation also in fibromaylgia
I do get heart palpitations and chest pain, my dr did every test under the sun on my heart they all come back normal
I'm so glad I found this channel. Finally there's someone I can relate to
Yay! So happy you found me too :)
Every day is awful. I power through it as much as I can but it does get overwhelming at times & I have had quite a few emotional breakdowns. Hang in there friend!! 😊
You too! :)
Id anyone having heart palpitation also
how are yo doing today?
I was diagnosed with fibromyalgia 21 years ago. When I have bad days my husband says I'm exaggerating. I work full-time, cook meals, clean up afterwards, clean house (what little gets done), do laundry, feed our 9 cats and 2 dogs, do yard work, do shopping and do yard work.
I went for years undiagnosed because I didn't want people to think I was a hypochondriac.
I come home from work, fix supper and after eating I fall asleep for the next hour to an hour and a half.
I was diagnosed in 2002. In the last 21 years I haven't had an improvement. I have learned naps are my best friend. I hope soon I will be able to get medical help
. I've enrolled in Medicare but it won't go into effect until October. Hopefully soon I can get a grip on this disease.
You just pretty much wrote my story as well!! I hope and pray 🙏 you get on Medicare and find the meds that work
Sleep is the #1 best gift along with lower stress when can 😊
I just found out today! That i have have it, same spot same arm I thought I was having heart attacks for the last year having anxiety attacks and depression not sleeping. My children were always scared thinking something bad was happening going to the hospital in an ambulance ever month almost and the trauma they went through i feel so bad. I'm also a single mom and not having a baby sitter all the time so they had to come with me. But im so happy now I know and I can try to fix it 😌 ☺ I cried of happiness knowing im not dieing and happy i know I can get better but sad because it will take away so much I plan to do with them
You’re not alone, many others including me have fibromyalgia. Mine hurts bad in my hips, buttocks, legs and neck and shoulders. And upset stomach with extreme fatigue. It sucks.
Thank you for sharing your story with us. I can totally relate to you. I am in a HUGE flare right now and have been for a few weeks. Just can’t function. Making it worse is that I have relatives visiting from England (I live in Canada). They are staying an hour away from me, but want to see a lot of me while they are here. I have told them that I can’t do a lot of physical things with them, but don’t think they really understand and don’t know what fibromyalgia is. I went out for breakfast with them todays ago, then we went for a walk in the sun and heat and then went for dinner. By early afternoon I could feel my body breaking down and my pain and exhaustion taking over. I have been in excruciating pain since then. I am seeing them again in two days for a,whole day again. I’m totally dreading it. There are five of them, so even just entertaining them and conversing is too much for me. Like you say, we just can’t explain why we feel so bad and what makes it worse. I have spent the last two days sitting in a chair with a heating pad and a blanket. Then I feel guilty for not accomplishing anything for the day. Unlike you I broke down and took double my pain meds. I am 76 and have been suffering from this debilitating illness for nearly thirty years, so at this point just want some kind of pain relief.
There is nothing wrong with feeling sorry for yourself once in a while. We can’t be strong every day. I’m sure most of us try our best to appear as normal as possible to those around us most of the time, but we are only human and our bodies break down once in a while after with this constant pain and stress that we deal with. Love nd hugs to my fellow chronic pain sufferers❤️🇨🇦❤️🇨🇦
Omg I could be you. Same age, same 30 yrs. Sitting with blanket over me. Pains too numerous to mention. I’ve started taking CBD OIL and it definitely has improved things.
Well said Olga, I’m sitting in bed at the moment after no sleep all night due to pain etc, and feeling rubbish too, headache and feeling like I have the flu. well said fellow spoonie 👍🙏
Hope you feel better soon :)
I'm flaring really badly, since getting my vaccine actually, not to discourage anyone from getting it as I know COVID is worse, but it's my current reality all the same and I'm feeling so frustrated. Been dealing with this for decades now. Anyway, was looking for a gentle yoga video to try to help a bit, and came across this. Thank you, perfect, and I'm sorry you're living with it too.
Hi, I'm sorry you're experiencing a flare because of the vaccine. I hope it eases soon!
Thank you for video.🙏🙏🙏
I am in the process of diagnosis, but have the same experience...it's nice to not be the only person in the world.
Hi I found you today. I have been in a flare up for 4 days. Today has been the worst and I needed something to take my mind off the pain and to not feel so alone. You totally understand how I feel. I feel less alone after viewing your vlog. I can’t stop the pain but just to know someone understands helps. I also believe being positive is important, but on today’s like today it is a complete struggle. Thank you so much for sharing I needed to find you today. Be blessed you are amazing 😍
Hi, lovely to have you! Yes, I know what you mean, sometimes as the flare goes on it gets harder to stay positive, but I guess that's when you need it the most.. it sucks, i know! I'm so happy my video made you feel better, even if only slightly! That's the whole point, for us to share our experiences and help one another feel less alone. Honestly, your comment filled my heart, I was having a tough day too. Lots of warm hugs!
Amen. I know how you feel. The struggle is so real today. I’m
So glad I found this channel.
I know what you are going through too, I was diagnosed with lupus and find out I have fibromyalgia, and the pain is bad, and headache can get bad. I have being going through this a year and had serizures from it, so I hear you. But I'm getting better. And if no one believes you hurt that is their problem. But I believe you. Get better.
Thanks this is me today very honest conversation xx its first time I've spotted you look forward t o joining you on the journey
I hope you feel better soon :) thanks for joining the journey!!
Firstly you're adorable! I loved this video. You said it perfectly how you want to do things but just can't during a flare. How your emotions are sensitive when you're in pain. T
Thank you so much Lauren ! Im glad you thought I explained myself well, I sometimes struggle with that haha! Have a great day :)
@@olgachronics3273 well let's put it this way. I completely understood what you were saying. I often ask people of they understood me. I do it so often I think they get annoyed. So I totally get ya! Thanks! Have a great day too!
I know this is an older video but OMG YES YOU ARE EXPLAINING EVERYTHING i DEAL WITH but Doctors have yet to believe me or diagnose me with Fibro when my Grandma and Mother-in-law have told me I have it. They both have it and we share stories about how we feel all the time and they are the only people in my family who 100% understand what I deal with. Im in the middle of a long flare up and have no idea what has caused it. Ive had flares last months before too and I would just cry bc I was struggling to get even the dishes done. I' m a mom too and my daughters have learned that when mommy hurts they have to be patient with me and help me a lot. They are my biggest cheerleaders in my life. Thank you for sharing your story !!
Aw man I'm sorry you haven't got a diagnosis, it seems like a silly detail, but it makes a big difference in our mind (and the way other doctors treat you). I'm glad you have some family support, and that your girls help you, that sounds so sweet :) I'm sure you're very proud of them! I know what you mean, sometimes they seem to come out of nowhere, and those are the worst for me. I'm glad to share my story if it helps others, cause I know it's so hard to be living with this and have no one who gets it. Lots of positive thoughts to you! :)
I get the jaw pain sore throat, pain on left side so much
I HAVE IT MOSTLY ON MY RIGHT SIDE ALL THE WAY DOWN...I JUST STARTED A FLARE...ANKLES,HEELS,WRISTS ....ARMS FEEL HEAVY AND PAINFUL....I CANNOT TAKE PAIN KILLERS...IF I GET TOO BAD I HAVE TO GO TO THE EMERGENCY ROOM FOR A SHOT....NAUSEA USUALLY STARTS IF MY NECK AND SPINE START ACHING....ITS SOO DEEP IT HITS MY STOMACH....I CAN GET THE HUG AROUND MY RIBCAGE OR THE BAND FEELING AROUND MY HEAD.... (thought I had MS but doctors won't even look at it....says fibro....but fibro can be part of MS, FEELS LIKE A SQUEEZING FEELING...FATIGUE AND EXHAUSTION.....IT SERIOUSLY SUCKS..BECAUSE I FEEL I CANNOT BE RELIABLE....BECAUSE I NEVER KNOW WHEN A FLARE WILL START.... EYE PAIN,JAW PAIN, EAR..... I WORKED 3 JOBS ...TOOK CARE OF MY TWO CHILDREN.....TILL I HIT A WALL AND BECAME HOMLESS....CRIED EVERY MINUTE WHEN IT HIT ME....PAIN WAS SO BAD....COULDNT WORK ..COULDNT EVEN THINK...BRAIN FOG....SO TAKE CARE...... soft hugS😔🙂
That sounds awful. Hopefully you can get a doctor to take you seriously and have a proper look at what is going on. Sending you lots of positive thoughts and gentle hugs :)
I reasonate with your story 100%.. .I have fibromyalgia and chronic migraine.. Very few people realise what we go through. I hope you are having some relief these years later. I am having a flare up due to rain on the way here.
I know how u feel. I have the same. God bless u❤ thanks for posting a video when u have a bad flareup.
you're welcome. It's necessary to show all sides of the illness.
I've been newly diagnosed and I'm struggling with the pain!
It's a lot harder at the start - it gets better with time, or it did for me. Be patient with your body, and rest as much as possible :) And keep looking after yourself in other ways, like with the right foods, staying hydrated and all that! It helps eventually :)
You can also use heat pads, or hot water bottles for the pain, and even the cold ones if it helps! And try going in a pool, even if you just float around, that helps my pain a LOT! Just being in water makes you feel better I promise. I hope you feel a little better soon
What are the tests they run prior to being diagnosed?
So sorry for your pain...it's so bad ....especially the beginning ....with that said...understand fibro has levels as you go....its a hard road....the only way to get through is understanding the pain and how to breath through it when it's overwhelming.....concentrating on isolating the most painful point and meditate ....sounds silly, but I can't take pain killer...I'm celiac....when I took pain pills 5 years ago...it would drop me to the floor screaming...felt like my stomach was being ripped apart....not kidding ....the hospital emergency room was my second home until I realized pills are made with thickeners....of which are celiac challenging....my son has the same thing ...so did my dad....so handling this without pills is mostly like wanting to put your head through a wall so it will knock you out so you don't feel this ......my son and I figured out hydration is huge....pain will be lessened with full hydration with electrolytes but don't over hydrate either.....get fresh citrus into your diet...if you stop the dairy you won't get a sore throat or strep....eggs contribute as does chicken to streptococcus.....and if you have fibro remember your immune system is compromised.... so your susceptible to strep and staph just something to remember ....
Olga girl i feel for you take care this invisable illness is no joke serious hurting pain brave to show take the pain killers swèetheart make it calm down and you get ease pain olga is pain just keep steady lay in your bed camomile tea helps me to be calm settles you so sorry i wish a cure could be found olga god bless you go get some rest just close your eyes i get u i feel the same hope you feel better soon u know when i say better flare up go away xx
Sorry you're experiencing a flare. I've just finished a 4 day one. I've been diagnosed for nearly 4 years now and honestly I don't think flares get much easier to deal with. I love watching CZcams to take my mind of pain when I'm in a flare, or first thing in the morning before my drugs kick in :-). I can deal with a flare that goes for a few days but when they last weeks it sucks - and I start to think it's never going to end, but of course it does. Hope your flare is short lived.
Libby Withnall thank you for commenting! I love watching CZcams too :) ya, I agree. I’m starting to feel better gradually so it’s okay, I just like to share the good and the bad on here :)
Anything in particular set off your flare? A for sure for me is that time of the month. 🤓
Libby Withnall it actually gets worse .... age and frustration all together play a part. At least I feel like this compared to 7 years ago
Well said! I know exactly what your going through. Fibromyalgia is so hard and frustrating. Balancing is very difficult at times. TFS
Absolutely, but we have to keep going :)
I'm going through a flare and trying to do an elimination diet to help my symptoms and this video was really helpful and validating. ❤
I liked and subscribed - I'm looking forward to watching more of your videos
Oh I hope you're flare ends soon and that the diet helps! I am glad sharing my story helps others. I hope to see you around :)
Biggest thing hydration and vitamin c....helps so much....from a fibro vetran... soft hugs😔🙂
I’m so happy to know I’m not losing it. This is how
I feel today, looking at what I want to do but I can’t get up
To do. My pain today is really bad. Thank you for being honest and letting me know it’s ok and I’m not going crazy. Sometimes o feel as though I’m
The only one that feels this way.
I totally know how you feel. When you’re in so much pain it’s hard to remember that you’re not the only one. But you’re not 💖 i hope the pain eases soon 🤞
Is anyone have heart palpitation also in fibromaylgia
I’m so sorry you are flaring. Thank you for trying to explain how we feel, you did a great job putting something inexplicable into words. Namaste. 😌
Needed to feel better today and this helped because i am alone. Weekend mostly shot but i made the most of it! I have a few improvements to make because this was one of the worst flares ive had.. ty💋
I'm so sorry you're having a rough time! But really glad this helped you feel a little less lonely, hopefully! I'm here, if you ever need to chat, honestly. Make sure you give your body time to heal, and invest in your self-care and doing things that will make you feel better. It takes time to recover from bad flares, don't pressure yourself too much :) Sending you gentle hugs
I agree. Hello. How are you now, mam? I'm having a flare up this week in November 2023. Elizabeth in Yorkshire
I think I might be living with this undiagnosed... Do you have a video about your diagnosis story? I finally got the courage to go to the doctor and I'm starting the process of "investigating" my pain, the doc says
Sarah Haley yes i do. I talk about it a lot on my channel, and talk about specific symptoms as well in dedicated videos so that might be worth a watch to ser if you relate to any of it. I also have a video called Fibromyalgia for dummies (lol) which explains it in simple terms so that might be the most helpful actually! I sincerely hope you don’t have fibro, but if you do, I hope you get a diagnosis as soon as possible 🙌 gentle hugs 🤗
This video is spot on. Like how you brought up emotions as well. I’m especially sensitive during a flare up. I’ve been in a flare up since before the holidays. Haven’t driven in some time, nor worked. But it’s getting a little bit better. Thank you for spreading awareness.
Thank you for your comment. I am glad it is getting better. I'm sure you will be back to your usual self soon.
Thank you for showing this side of your life ❤️ so inspiring
Thank you :)
Drop honey in warm chamomile helps sore throat for fibromyalgia issues it’s calming drink
Thank you for this video! I know it’s a year old but I seriously understand & relate to what you’re saying! It’s been raining in Ohio for 8 days, actually today was the 1st day we didn’t have rain. For me rain really effects my fibro & arthritis , I’ve been it a horrible flare , I just went through like a 4 mth flare, and now it’s back. I honestly have been so sad , and like you said things are getting to me during this flare , and always has in the past. I’m a Highly Sensitive Person ( HSP ) anyways so the flares don’t help! I do have to say in my experience with fibromyalgia I feel mine has gotten worse & I have had it since 07’ , but I may have something else wrong or this is something some experience. The last 3 yrs have been honestly the worst for me, I really hope it gets better for you or anyone with fibromyalgia, unfortunately mine seems worse. Thank you for making me feel not so alone especially with the being sensitive and sad. 💜
Oh I’m sorry you're flaring! I'm going through a migraine flare rough patch (i don’t even know what to call it) and it has gotten to me hard, so yes, I relate! I hope the rain goes away and you feel at least a little better soon. I think when fibro mixes with other things, it has weirder effects, or just gets worse, but I don't know for sure. I'm glad you found our little community though! :)
Olga Chronics ohh I’m sorry migraines suck! Honestly I think migraine flare fits. I really hope you can find relief also 💜 You’re right that anything in conjunction with fibromyalgia can make fibro feel much worse. That’s why I’m beginning to think something along with fibro is going on. I’m so happy I found you too 💜
Aw I hope you figure it out!
Do you get sore throats, headaches, nerve pain, and dry skin?
Hi, I used to get sore throats, but haven't in a long time - mine were related to my TMJD. I have chronic migraines, so big yes to headaches, and yes, nerve pain and dry skin.
Is anyone having heart palpitation also
Does anyone deal with brain fog? Mine is pretty intense and sometimes I have panic attacks from it.
Great video! Just found your channel :)
Thank you! I'm so happy to have you on board :D
The impression I get from the first few minutes is that because you don't have stuff distracting you, you notice all the stuff that's sitting there, waiting to be distracting
Pain is very distracting.
It feels so impossible to be strong. To do normal things like be a mom to two toddlers and a wife. My life from one day to the next just flipped upside. God I don't want to be sad but i wish i could cry and just have comfort from someone.
I understand friend, it can be so overwhelming and so frustrating. I hope you know you're not alone. I've found therapy helps with coping and finding healthier ways to deal with all the loss & grief that comes with this illness.
I can totally relate. I actually find myself asking for permission to not do anything because I feel so ill. It is ok not to be perfect. If you want to cry have a cry. Sometimes I have found it is my brains way of tension relief and it helps with the pain. If shit happens sod it. A good day in a flare up is making fish fingers and oven chips. Tomorrow it can be putting on a load of washing. I have pared down what are the absolute essential tasks that cannot be missed and what can be left. Then if I have a flare I dont care because I know that the really life threatening stuff will get done. We have a chronic illness we can feel shitty but we can also feel great. Hope your flare up stops soon.
Thanks for posting this. Very encouraging.
Thank you !
Dear when I have flare up I can’t sit like you ...... I fell miserably on the bed dark room no sound ..... Maybe upload also a video about how you do after a flare up ? I recently have more difficult pain during flare ups mainly because migraines have been added too:( and after flare up I feel emotional and physical exhaustion ...... and it is very disheartening and tritium
That's a good idea, I will :) I hope you are feeling okay :)
@@olgachronics3273 thanks. yes... the day I commented was half a day after a flare. but I m better now ... :xx
I can no longer get in a pool. It makes me ache. Anyone else?
Oh no, that sucks!
Keep strong girl hi from england
Same to you! :)
Drs don't understand how or why I started with ra and then fibro it's hit my heart and lungs liver and kidneys most days I watch the whole world live and on a good day I don't know how to stop food can make it better or worse please be easy on your self get rest eat lots of fruits and vegetables soft 🤗
Hope youre having a good day today 🤗
@@olgachronics3273 thank you hope this finds you on a good day happy Thanksgiving luv
My son's fibro has got a lot lot worse since he got long COVID have any of you noticed this ?
Yeah it my bad day to day
That's what I'm doing laying on the sofa watching TV in so much pain today its torturing
I'm sorry to hear that! I hope the pain eases soon :)
@@olgachronics3273 thank u me too it sux
D-Ribose tablets (made by Jarrow)
have helped me when I need energy and don't have time for a flare. They are available on Amazon. Totally safe it's the body's natural sugar.
I've never heard of that. But thanks for the tip :)
@@olgachronics3273
MSM helps with aches, available at Walmart.
Natural CALM calcium magnesium powdered drink before bedtime to get you into a deep sleep. Make sure you get the calcium and magnesium both have to be present for it to work properly. Available online and at health food stores.
Kava, in liquid drops and paste are excellent for muscle relaxation. Available online but watch carefully for the quality as there are some low-grade products out there.
Hope these help. They did for me but like everything they work for a while and then lose their potency. But then when I pick them back up after a while they seem to work again. I guess the body builds up short-term resistance...
Thanks for sharing.
My jaw hurts constantly I'm exhausted feel like a sluggish
Im sorry to hear that 😔
I , feel the same, most days!! Pandemic, lack of income...on top of health........add extra!!!!!!hard to keep , internet.....with Fake... EBB program.
Hi, thumbs up......flaring crazy, after pressing at work, with little pay! Nice, to meet u...sometimes a rest, is in order!!!!!!!!!!!!!!!!!! Happy Thanksgiving....2019........try not to flarrreee!!!!
Thank you! We don't celebrate Thanksgiving, but thanks. Hope your flare passes quickly :)
how are you feeling nowdays?
Ironically, I am currently flaring, but overall much better than when I filmed this years ago!
💕
Does ice help you more or heat? When you have your flair ups
It really depends, but I normally find heat more soothing, but it's harder in the summer months to endure
Where do you interact with people online you mentioned in one of your videos a support group? I’d like to join one see how other people cope & advice
I find the instagram account "fibro_warriors" a really good place to start - she posts questions from followers where people can give advice and talk about stuff, and she also organises group chats on insta with people who have fibro and also will have similar things in common like age, etc. I also have a book club where we read together but also can find other people who have this condition (or others) and have similar interests to us - it's called Foggy Book Club, and we have a page on the forum where people have introduced themselves where you can reach out to people as well. There is links to that in all my newer videos :) I'd also suggest following hashtags on insta as well like "fibromyalgia" etc, because it'll show you people posting with that hashtag and you can find some really cool pages that way :)
I hate the pain
Gentle hugs 💕
Can I ask what type of pain medication u get? I have tramadol and lyrica. Which dnt seem to do much!
I'm sorry it took so long to get back to you, I was so sure I'd replied!
I am currently on Duloxetine & Amitriptaline daily, and then use Gabapentin as an Emergency pain killer.