Mouse talking so casually about noticing her chest covered in her own blood really speaks to everything she's been through. I know if that happened to me, I'd be fucking terrified.
You'd be surprised. I was recently hospitalized for 3 months and I got a pick-line that went right into the heart; which is obviously not the same thing, but even outside of that pick-line you can get used to leaking pretty quick.
human body is excellent at adapting to situations. You'd be surprised by the amount of stuff you can tolerate if you have do deal with it more than once. It quickly becomes "just another part of life".
I aspired to the purity of the Blessed Machine. Your kind cling to your flesh, as though it will not decay and fail you. One day the crude biomass you call the temple will wither, and you will beg my kind to save you. But I am already saved, for the Machine is immortal… Even in death I serve the Omnissiah.
I don't think folks realize without vtubing as a career, she'd literally be dead. Just another statistic. That's wild. I'm so happy she got into vtubing. It literally saved her life.
Uh I mean if she's under 26 she would still have her parents medical insurance. And after that she could apply for disability and public assistance health insurance.
@@skeetsmcgrew3282 they couldnt get her her medicine before for a while and she ended up with major lung damage and ending up bed ridden untill recently so no very much dead
@@skeetsmcgrew3282 Both her parents lost their jobs right at the beginning of corona, and at the same time her streamer career went on the rise, so she really dodged a bullet there. And with insurance, she said like, two weeks ago, that IDF (Immune Deficiency Foundation, not the other one), contacted her and Connor to say that they managed to pass a bill to include insurance coverage for "CVID/Primary Immune Deficiency stuff", so insurance wouldn't help her at the time.
@@skeetsmcgrew3282yep, in good ol' america your life is worth less than the medicine that you need to keep you alive, and god forbid trying to make "treating people" easier by using tax money to buy and finance medicines and treatment for the sick.
Being casual about being covered in blood is the most chronic illness mood ever. Sometimes you're just exasperated with your own body's bullshit. I've came to from a seizure and just been like "eugh that was absolute ass" while everyone around me was freaked out.
True, seizures are the worst, especially if you are twitching like a demon during it (happens to me when i sleep). Your back will be killing you for literal days, its nothing compared to just feeling like complete shit from having too low or too high blood sugar levels to even display on meter (below 1.5 or above 35).
@@alexturnbackthearmy1907 was convulsing but didn't feel the pain because it scrambled my brain and I was dazed, stuttering mess for almost two days after. Small blessings, I guess? Lmao.
I had one time I gave blood and I warned them to let me hold onto the lil squeezy thing while they pulled the needle or they were gonna have to deal with me passing out, they thought i was being dramatic, and next I knew, I was off runnin with Inuyasha and the crew chasing Naraku through the backdrop of Spirited Away for like 10, 20 minutes, woke back up with a towel soaked in ice water on my neck and like 5 EMTs that were working the Red Cross' equipment all trying to get me back, I looked around, found my friend who brought me to do the blood giving and went "Well, _THAT_ happened.. Iced Coffee?", meanwhile they all looked at me like "Fucker aint human!"
I am glad she talks about this casually. people are always so horrified and disgusted by disabled and chronically ill people's daily lives. It is normal to us.
there's nothing scary or gross about it in my opinion. modern medical is incredible! It kinda adds a unique-ness to those of you who have to go through that, and I've never met someone living a normal life with medical issues that was rude or disrespectful, they're always nice and live life the best they can, and just generally have a positive attitude towards life. because life is short, and theres no point in living your life in a negative manner, might as well enjoy it the best you can while you're still alive.
More like Titanium Mouse, but that doesn't have the same ring to it. Unless you're referring to the iron in blood itself (Hemoglobin Mouse?), but that's the same as most humans and animals.
ironmouse is a step over the god emperor sitting on her golden throne of vtubing proyecting the light of the inmuno compromiced awareness across the internet and needing the blood sacrifice of 40 people every two weeks to keep the galaxy from falling into darkness
Fun fact: Titanium shouldn't set off most metal detectors becuase it's not magnetic enough to trigger them. So, the card is probably more for a steel varient or for if she falls unconscious and needs emergency medical attention, she has that card to explain the thing in her chest.
yeah, I was thinking the same, also when it breaks the company wants to know which series it is and check everyone else which got it from the same series.
@@cheyennemoore8380 Also must have for anything metal that goes into humans, cause titanium (unlike most other metals) is harmless in its metallic form.
It'll probably get pinged on millimeter wave scanners like airports use (the "face this way and put your arms up" machine), so handy to have there too.
The more IVs you get jammed into a vein, the more likely they are to blow out. A port or a pick prevents this from happening. My mom ended up getting a port put in after they got tired of trying to get an IV.
Another case of "they" just being more reduction of grammar in English, that already struggles to make anything clear. "They got tired of" doesn't mean anybody, it's just obfuscating "oh, SOMEBODY involved didn't bother with it". It's honestly funny how the "neutral" pronoun is literally "omg did you hear what they are saying now!" because some people ACTUALLY identify as gossip, rather than identify what their gender is. Social anxiety runs so deep they can't handle it, like calling you "she" or "he" is tantamount to being filmed or doxed.
Oh it's an injection port, last time she described it so vaguely that it sounded like she had straight up a door in her chest for ease of access cause doctors needed to regularly get in there
If it wasn't so tragic, it would be incredibly awesome. Imagine telling people 200 years ago: "Oh yeah, I keep my chest cavity open at all times for better medicine" *insert reference to Adeptus Mechanicus*
Well, I mean there was a clip about how they actually developed nano machines, for insemination. They move on their own! AND... With Elon's brain implant thingy helping people electronically control prosthetics with their minds! Bluetooth no less! Approval to go into the next phase within human trials is looking great. 👍 ...I'm saying this because if we would've been born NOW, by the time we would been in our prime I honestly think augmentations for the public is a reality. Maybe not the stuff in Cyberpunk or Deus Ex but for sure augments for some degree of quicker reflexes. Better control of your adrenaline when in flight or fight moments. Greater strength, not lifting cars but certainly the average person with the speed and power of Mike Tyson, with control of their adrenaline. Perhaps control over FoF itself. The ability to restrict unnecessary blood flow from certain organs and redirect it to the brain & muscles, ...oh, and WiFi + VR everywhere you go whenever you want. Literally connected to everything (passively of course, actively if you want using the ⚙️ icon). WiFi your sences to your GF while she WiFi connects her sences to you 😉 I mean if you're in to that kind of thing. Whatever floats your boat, man. 😏 ...As long as there's no unforseen global incident. That covers everything from Nuclear Apocalypse, Zombie Apocalypse, Meteor Apocalypse, Alien Invasion Apocalypse, and last but definitely NOT least ...Sentient A.I. Apocalypse. Barring all that stuff..! Augmentations all day long. Yeah baby!
I fucking love that that is the honest reason she chose that username, it's worrying to hear her port isn't as cool but it's a hilarious positive spin to put on having one.
you want to know the even crazier side. because its mouse and she has the needle in her chest. i could totally see her standing and saying something like CarebearShare!! and the blood squirting from her chest. @@jaysuscrass9119
Ok, so the cool thing is, it would actually be closer to a leak rather than a spring because the tube is inserted along the superior vena cava (the big vein going into the heart) and the actual end of the tube actually faces towards where the 'suction' of the heart is pulling from, so any blood coming out would be from more passive means that it actively being pumped out. Just a fun factoid.
"Mousey your heart is leaking again!" feels like one of the absurdest sentences anyone could ever say, but apparently it's not as unrealistic as one might think.
As someone who has worked in the medical field for quite a while it is still scary AF to me to hear that first hand experience. Its different if you do stuff on someone but totally different if its something that keeps YOU alive. Gotta hand it to Mousey to be able to talk about it that calmly. I hope one day she will be able to live close to normally.
Random person: "YOUR SHIRT IS COVERED IN BLOOD!" Mouse: "Aw, dang it, did I sprung a leak again?" I love her optimism through all this, and how she's not afraid to make jokes about her condition. That is probably why she's slowly getting better physically, despite her underlying illness being incurable. *Doctors operating on her* "Hey, I wanna see!" Imagine being _so_ used to all of this, that watching the surgeons handling her internal organs doesn't bother her anymore.
I mean, sometimes that's just what happens when you have medical equipment that is connected to your body for extended amounts of time. Sometimes when I remove my infusion set for my insulin pump, very rarely, I will bleed way more than I should (it's usually none), but instead of freaking out, it's more of an annoyance. Like "Goddamnit, I got to change shirts and/or pants now. I hope it didn't get on the bedsheets."
Recently my body just decided to mutate and now i have a chronic heart condition. I was terrified of doctors and needles and all that. Now ive given probably 80 liters worth of blood for all kinds of tests and had non stop IVs. Now i dont care about them anymore. You can get used to anything
she's such an icon. her just opening up and allowing us a peak into her life like that and explaining things to people... I'm forever grateful as a fellow chronically ill person
For anyone wondering, a port is a small receptacle that is connected to a catheter thats permanently installed to the patients vascular system. The port has a special membrane that can only be accessed through needles and it seals itself once the needle is taken out. This is done for patients that need recurrent IV medication as the vessles need time to recover and can retract if the same zone is used over and over. Eventually the patient might run out of available vessels to use, forcing those vessels might cause them to collapse and increases the risk of infection. The septum sits underneath the skin as a layer of protection.
I was too scared to do the blood thinners myself, my partner would do it for me. "Do I get to stick you with a needle now?" all happy just hits different.
As someone petrified of everything even tangentially related to hospitals, Ironmouses life sounds like a living nightmare. Man she’s so cool, I wish she didn’t have to deal with everything but I’m glad she’s made the most of it.
I remember when my sister got a port installed because she had leukemia and that’s how they were giving her chemo When she got done with chemo they removed it so now she has a scar where it used to be She also had a PIC line once and her main complaints were that it was hard to sleep on it and she had to wrap it up with cling wrap to take a shower lol
Yes, all medical stuff is awful in day-to-day use. Its itchy if its embedded and always in the way if attached, but if you need meds in your veins that often...
I'm making a face and yeah It's scaring me, it's the same sympathetic feeling I got when my grandmother fell and cut her hand really bad, but whenever she talks about stuff like this it's always interesting, and I'm glad she feels comfortable opening up.
And its definitely cringing if u cant handle blood and guts in the office like that but its Mouse and we should already be in for it altho still a scae😫
I have permanent genetic health issues that occasionally require me to get IV medication, especially IV potasium, on occasion. It's not often enough to require a port, but I have thought about it. Potassium IVs blow out the veins really quickly and hurt like hell, so I usually end up having to switch arms and/or legs for the IVs because the veins burn out and collapse. Potassium (k) is a caustic and highly reactive element, especially in its pure form, but it's necessary as an electrolyte, allowing your muscles to contract and relax. Thank god this only happens once every few years (going on a decade now, knock on wood).
Make sure the nurse taking care of you Y lines the potassium to an additional saline bag set up as a primary and dilutes it to a level that is not painful. I have seen nurses that do not know, and they just give the potassium straight and it literally eats up the veins as i'm sure you already know.
Is it something genetic? Or is it from not eating/drinking enough things with a lot of potassium? Just curious because I had something similar where I had to get potassium through IV twice in my life but it's interesting to see that others had similar experiences. It does burn a ton too
@bryanmartinez2515 it's genetic. Hypokalemic Periodic Paralysis is the actual name. Diet has very little to do with it, but carb loading combined with strenuous exercise can trigger an episode. The doctors referred to it as "the bagel test." Eat a couple of bagels, then run in a treadmill and see if it triggers a paralytic episode. It has to do with the way the body processes carbs into fat and sugars while the demand for but goes up while exercising. It's a lot more technical than that as it has to do with permeability of the muscle cell membrane and how the cell recognizes electrolyte triggers when contracting and relaxing, but thats close enough.
Modern implants made of titanium dont set off metal detectors now. Weird, because I have been on several international flights and my heart valve has never set off anything. But yeah, those titanium implants have serial numbers and the card lets surgeons and specialists know what parts to order should they need to be replaces. Those PICC lines are terrifying in that nurses need to be careful when giving meds and flushes. The ports are much safer because they're under the skin which is the first line of defense against infections. And yes, those ports can be tricky. Imagine a coin-sized bump that can shift around under your skin, and you have to hit it dead center to access it.
"From the moments I understood the weakness of my flesh, it disgusted me. I craved the strength and certainty of steel. I aspired to the purity of the Blessed Machine. Your kind cling to your flesh, as though it will not decay and fail you. One day the crude biomass you call temple will wither, and you will beg my kind to save you. But I am already saved, for the Machine is immortal... Even in death I serve the Omnissiah."
My mom had one when she had cancer. It was a horrible experience and terrifying every time it comes loose. It's crazy to me that Mouse can talk so casually about it. Really speaks to how much she's been gone through.
The fact that she got this comfortable, telling us all of this information means that she truly trusts us plus she sounds like she was kinda laughing a little bit at even the fact that she was in this, so I wamna say she's kind of a good, very good personality and very good mentality about it all at least for right now.
As strange as this sounds I mean it in the best way- I’m glad one of the largest vtubers is someone who made a career despite being bedridden for a long time, there’s so much stigma with chronic illness and to have someone like mouse talking about it makes the topic more approachable for a lot of people - a cane user with with chronic pain
Perspectives change fast when your life is on the line. But as the Dr. K interview makes clear it also messed with her head a whole bunch. This young lady went deeeep into bad territory.
I've been recently diagnosed with Leukaemia (specifically Acute Myeloid Leukaemia) and the doctors put a Pic line in my arm. I'm glad I have it because the amount of stuff they pump into your body is crazy. They even can take blood from it too, instead jabbing me with needles. 😬 It's definitely cool to learn about all this stuff. Just amazes me how far medical tech has come a long.
Just today I got my powerport put in and it was scary at first, get my first chemo friday and now Im more aware of how cancer just happens and it's so terrifying. But I enjoy wtching mouse and hr going through what she is going through helps me have courage.
the fact that someone mentioned their hip bone in their mouth, kinda makes me 'happy' as weird as it is knowing that SOMEONE ELSE out there also has their hip in the roof of their mouth. it was like last year when I found out other people also had deviated septums, makes me happy knowing I'm not alone and someone understands
I also have a bone graft from my hip in my mouth. When I was 18 I had reconstructive jaw surgery to fix a severe underbite. They removed a section of my lower jaw to shorten it and added bone to my upper jaw to slightly lengthen it. Probably the creepiest medical thing I have to deal with is almost monthly injections into my eyeballs while I'm awake to treat diabetic retinopathy.
How bad it is, and how big are the risks to get one? Its not like i have any developed issues, but its not even a decade yet since developing type 1 diabetes.
@@alexturnbackthearmy1907 The retinopathy? I'm type 2 and struggled to control my sugar for a very long time so that's why I developed it. I get the injections and periodic laser treatment to keep blood vessels in the eye to stop leaking. As far as I know the treatment itself is very low risk and if you can keep your sugar under control the treatment might not be an ongoing thing. If it progresses too much it can lead to retinal detachment which would require surgery.
This is one of things i absolutely appreciate about her despite of course wishing she didn't have to go through it. Ironmouse really gives all of us an isight into medical things none of us usually think about in our everyday life and it's super educating and interesting. On top of that i love how casually she talks about it too so it doesn't really frighten you. She's explaining it so everyone can understand it like "It's a necessary procedure and this is how it works." Every day i'm more thankful for her being her honest wonderful self
Can't believe mouse has hdmi support, as expected from our metallic rodent 👏👏👏 ...nah but seriously mad respect for mouse its really incredibly admirable, the amount of work she is blessing us with dispite having to go through really rough living conditions daily...like she experiences events that the average human can only think of as a really bad time in his life regularly, like just thinking about it having a port stuck to your heart all the time which occasionally can just wear out and cause an internal bleeding, like i'm already plenty uncomfortable just having a needle stuck in my arm vein when blodd is being drawn, and that must be pretty much the endboss of that fear... no matter how many times we are remembered of her circumstance still most of us will never be fully aware to the extent this goes to, and being able to consistantly get shit done in that constant condition...she told about her experiences of never being treated as a normal human being but honestly, i don't think she is...being able to have this kind of willpower of not giving up and getting yourself to do stuff everyday that isnt anything you cant take for granted, her being to do that in her condition...nah man she is definetly not normal she is MORE than that, probably more of a human than most of us, and i can't give her enough credit for that...mouse if you by any slight chance were to read this, you're amazing, we're proud of you! If you kept reading to this point i also want to encourage you to take that aspect of mouse as a role model, we all fight with our different kinds of problems in life some very different than others but in the end still being able to keep going when these problem hit the hardest, thats real strenght! P.s Donate plasma! You can help people AND get money for that?! I'm not supposed to give my opinion but that sounds like a great price!
My infusion nurses recommended I get a port but many of the Drs and nurses there were not certified to use ports so I just have to get stuck with an IV each time I get an infusion.
I cannot see my own blood, or I just faint. If this had happened to me I instantly would’ve fainted in one to two seconds. I admire her for striving through those hardships, she is an incredibly tough and strong person.
I remember when my doctor told I have a health condition that requires me to take 2 big needles of medicine ever 2 weeks. she injected me the first time and then she tells me that I need to do this myself. so nerve wracking the first time I held that needle to inject myself.
as someone with Cystic Fibrosis, hearing someone else talk about the same things ive been through is really refreshing. shes sharing her story while educating her fans and thats really respectable
My mum used to have a port for her kidney disease, indeed anchored to her collarbone (for the curious, she's FINE, she got a transplant). She had it for the dialysis she was constantly doing, and the one thing I remember is how she couldn't take showers, because it'd risk the water getting 'inside' through the port (or damaging it, or both, I can't recall) and I wouldn't be shocked if Mouse had the same issue of not being able to shower due to the port's location.
Me to I've missed the last few secret port meetings. All seriousness have one for chemo. I've had chem leaks, and meet one guy who's pet rabbit chewed through his chemo line at home.😝 Hated chemo would only have 2 days out of every 2 weeks when I wasn't sick and throwing up (you have 12 days of Christmas I had 12 days of puking), sores all over head to toe, hair falling out, and mouth raw with sores.(gave me something called "magic mouth wash" to reduce pain) I hit every symptom I could get. It was so bad 😢 The last 2 days out of the 2 weeks were actually really bad because I was dreading going back and starting it all over again. Get sick and sad just thinking about it.😢
I have a port too- I’ve had this happen a lot lol - but it’s a good sign honestly - means the line is unclogged and healthy! I’ve had mine clog up and it suckss - I’ve had mine for 13 years it’s a trooper. Also yeah fuck pik lines - only thing thats cool is that they let you watch the procedure
I like it when people are willing to talk about their medical circumstances, it makes me feel more normal, others might feel the same. On the topic of picc lines, those suck 100%. I had one for 6 months and one time the nurses refused to change the dressing cause the line came out a couple centimeters. So I got a new one the next week cause my body likes to reject things.
couldn't watch through the whole thing since i have iron deficiency anemia and got really woozy in the first minute or two, but the story is so crazy to me. she's so strong!!
So I can sorta relate, though admittedly not nearly to the same extent. I have diabetes type 1 and use a pump for my insulin delivery. Not exactly the same IK but serves a similar purpose… and comes with its own level of BS to deal with.
i really love how willing mouse is to explain certain things sometimes, i had a PICC line for a long time, and idk but hearing how others deal with their devices is comforting
Listening to ironmouse brings back memories of all the medicine and things I had to give and do to my mom she had a pic line a port a wound vacuum injections and a drain 😢 scariest year of my life
Mouse is so freaking inspiring. Multiple times I've been going through shit and thought of her and what she has to deal with. I think, if she can stay positive and move forward then so can I.
idk if someone else had said it before, but the "heart port" she's talking about is called a Central Venous Catheter. it is (like she says) a line that makes possible the transfer of liquid medicine from the outside straight into the superior vena cavae that's just under the right collarbone. the "port" can actually be placed on different parts of your body along that vein, like on your wrist, on the inside of your elbow, on your chest like her, or on your neck. I'm not an expert, just did some googling, so i apologize if i got anything wrong. anyways, that being said, A thousand blessings toward the Omnisaiah for His unending grace and kindness to being the sustaining life force for our favorite idol. Edit: the artery thing she said i have no idea. i could only find stuffa about cancer and how through-the-artery medication (since it's not going into your heart) isn't really made to have/keep you healthy, moreso to attack the tumor (like i said), since that's what they leech off of for survival.
Yeah, it's true about ports for chemo. My mom had one for a long time, right on her chest like Mouse describes. I also live w/my nephew who has a g-tube (feeding tube going directly to your stomach through a hole close to the belly button), and we have absolutely forgotten to close that little white clamp on a tube during a feed and ended up w/his feeds/belly liquids getting all over. He used to have an ng-tube (tube going through nose to stomach) but those are not meant for constant long-term use and were literally disintegrating on us. He has an undiagnosed medical condition and takes all food by tube. So the g-tube is way better. It's more comfortable, it's more convenient, and we switch out the little connection bit about once a month, which is decent. It's not as fancy as a port. No titanium. Just plastic I think. And his stuff's all covered by insurance. Even his fancy blended food packets. Only 4yo in our area eating pureed salmon and quinoa and all the healthy shit. His nutrition team is dead-set on like perfectly balancing his diet. Meanwhile my niece is refusing to eat anything except vanilla yogurt, chocolate cereal, pancakes, and candy. It's also way easier to just give him medicine through the tube when he gets sick. My sister has to trick my niece by mixing it into her food and she figures it out like 70% of the time and refuses it. Don't know if my nephew will ever be able to eat or talk, but he's a really happy kid and the g-tube can allow him to get all the nutrition he needs. It's still scary because they don't really know what he has, and what to expect. Right now all they can say is that his pituitary gland produces basically no insulin-like growth hormones (which is also why he's so itty bitty), so he needs growth hormone shots just to "support daily functions" aka live. His team had to fight insurance to get us the once-weekly over the daily shot. Giving a 4yo a shot is not easy, so only having to do it once a week is a lifesaver. It helps that we bribe him with hot-wheels every time since he loves cars. Hope Mouse has something to help her through the tough moments.
"Desde el momento en que comprendí la debilidad de mi carne, me disgustó. Ansiaba la fuerza y la certeza del acero. Aspiraba a la pureza de la bendita máquina. Los de tu especie se aferran a tu carne como si ésta no fuera a descomponerse y fallarte. Un día, la cruda biomasa que llamas templo se marchitará y rogarás a los de mi especie que te salven. Pero ya soy salvo. Porque la Máquina es Inmortal." - Feisty Latina; probably
i couldnt listen past two minutes as im fucking terrified of needles and medical stuff (i tried my best) but mouse is genuinely so fucking brave. i legitimately couldnt handle all of that. im so happy shes here and sharing all of this with us, something so personal. she deserves the world for all her hard work.
Its really cool how she explains some of the stuff she has, at least as someone who had a port for a while due to my own health issues that has since been resolves
I had a PICC line when I was in likE 4th grade because I can't feel my legs and I somehow cut my toe in a way I didn't notice while playing outside and I got a MRSA infection in the toe, and it was bad enough to be between that and amputation. The bandage changes and the alcohol swab around the line hole sucked. And sometimes they couldn't get blood from the PICC line and would have to poke me repeatedly in the nurses office of my school (my nurse would come out to do that and bandage changes) because the antibiotics I was on made my blood clot easily. For the last stretch they put me on blood thinners though so it was less of an issue. I always feared it getting ripped out lol, but the more you wear it the less you worry. I can't imagine getting multiple put in or having them for extensive periods of time like that. I also can't imagine what them getting infected feels like- that has to be miserable
I remember when I used to have a port for chemotherapy. I would go in for a full of a week in the hospital and then the following week I would go in for 3 days of outpatient chemo, I had to put on this cream about 2-3 ahead of time that would numb the chest area so it wouldn't hurt when they accessed it. Luckily after a total limb salvage knee replacement, some titanium rods, some plastic spacers and bumpers, and some concrete I've been cancer free for 5 years. After I got the all clear they went in and removed my Medi-port and I even got to keep it, and if you look closely you can see all the little puncture holes from the needles in the yellow membrane of the port.
Exactly right on the chemo, my dad had one for that. If I remember right he also had to flush it with saline when he was betweem chemo runs and not using it regularily.
"Oops there goes my heart blood leaking out again."
- Ironmouse
No...she *CANNOT* possibly be a distant relative of Baron Rakan Harkonnen!
😮
"Oops" 💀💀💀
Imagine trying to rob her and she just pulls out a tube and covers you with blood until you slip.
¯\_(ツ)_/¯
@@Mr.MarblesShe starts throwing blood grenades like in death stranding
Mouse talking so casually about noticing her chest covered in her own blood really speaks to everything she's been through. I know if that happened to me, I'd be fucking terrified.
Given how her chest is massive that's saying something
She's the antithesis of Carrie.
Only for the first time maybe. You get used to stuff like this, if you have been through stuff like her.
You'd be surprised. I was recently hospitalized for 3 months and I got a pick-line that went right into the heart; which is obviously not the same thing, but even outside of that pick-line you can get used to leaking pretty quick.
human body is excellent at adapting to situations. You'd be surprised by the amount of stuff you can tolerate if you have do deal with it more than once. It quickly becomes "just another part of life".
So she's technically a cyborg
Zen is pissed
You’d think she’d say that more often, but when my neighbor got a nerve impulse prosthetic he explained how weird it feels to say that and mean it.
@@SocietyTomorrow Allegedly. I don't see how the idea is made plain at all, the word "weird" is not an explanation.
An 'Iron' Mouse, if you will :P
Mouster chief mind telling me what you're doing on that ship?
Sir, getting choccy milk. 🍫🥛
“From the moment I was aware of the weakness of my flesh I despised it. I craved the certainty of steel…”
Your kind cling to your flesh, as though it will not decay and fail you.
I aspired to the purity of the Blessed Machine. Your kind cling to your flesh, as though it will not decay and fail you. One day the crude biomass you call the temple will wither, and you will beg my kind to save you. But I am already saved, for the Machine is immortal… Even in death I serve the Omnissiah.
Thing about flesh is, it can heal itself. Metal can't.
@@dplocksmith91 Sounds like Chaos' propaganda to me
i love that quote. i have no idea where its from
I don't think folks realize without vtubing as a career, she'd literally be dead. Just another statistic. That's wild. I'm so happy she got into vtubing. It literally saved her life.
Uh I mean if she's under 26 she would still have her parents medical insurance. And after that she could apply for disability and public assistance health insurance.
@@skeetsmcgrew3282 they couldnt get her her medicine before for a while and she ended up with major lung damage and ending up bed ridden untill recently so no very much dead
@@livingglowstick1337 Wow. 'Merica. Home of the sick and dying
@@skeetsmcgrew3282 Both her parents lost their jobs right at the beginning of corona, and at the same time her streamer career went on the rise, so she really dodged a bullet there. And with insurance, she said like, two weeks ago, that IDF (Immune Deficiency Foundation, not the other one), contacted her and Connor to say that they managed to pass a bill to include insurance coverage for "CVID/Primary Immune Deficiency stuff", so insurance wouldn't help her at the time.
@@skeetsmcgrew3282yep, in good ol' america your life is worth less than the medicine that you need to keep you alive, and god forbid trying to make "treating people" easier by using tax money to buy and finance medicines and treatment for the sick.
Being casual about being covered in blood is the most chronic illness mood ever. Sometimes you're just exasperated with your own body's bullshit.
I've came to from a seizure and just been like "eugh that was absolute ass" while everyone around me was freaked out.
Woopsie my nervous system freaked out again, my body is such a klutz lol
True, seizures are the worst, especially if you are twitching like a demon during it (happens to me when i sleep). Your back will be killing you for literal days, its nothing compared to just feeling like complete shit from having too low or too high blood sugar levels to even display on meter (below 1.5 or above 35).
lol yes.
@@alexturnbackthearmy1907 was convulsing but didn't feel the pain because it scrambled my brain and I was dazed, stuttering mess for almost two days after. Small blessings, I guess? Lmao.
I had one time I gave blood and I warned them to let me hold onto the lil squeezy thing while they pulled the needle or they were gonna have to deal with me passing out, they thought i was being dramatic, and next I knew, I was off runnin with Inuyasha and the crew chasing Naraku through the backdrop of Spirited Away for like 10, 20 minutes, woke back up with a towel soaked in ice water on my neck and like 5 EMTs that were working the Red Cross' equipment all trying to get me back, I looked around, found my friend who brought me to do the blood giving and went "Well, _THAT_ happened.. Iced Coffee?", meanwhile they all looked at me like "Fucker aint human!"
I am glad she talks about this casually. people are always so horrified and disgusted by disabled and chronically ill people's daily lives. It is normal to us.
Same!!! It’s unfortunate, but this is normal for us.
True
there's nothing scary or gross about it in my opinion. modern medical is incredible! It kinda adds a unique-ness to those of you who have to go through that, and I've never met someone living a normal life with medical issues that was rude or disrespectful, they're always nice and live life the best they can, and just generally have a positive attitude towards life. because life is short, and theres no point in living your life in a negative manner, might as well enjoy it the best you can while you're still alive.
Damn she wasn't joking, she really is IRONMOUSE.
More like Titanium Mouse, but that doesn't have the same ring to it. Unless you're referring to the iron in blood itself (Hemoglobin Mouse?), but that's the same as most humans and animals.
@@Nejove
I mean the metal in her chest is similar to Tony Stark that also has metal in his chest. All she needs now is a cool robot suit.
ironmouse is a step over the god emperor sitting on her golden throne of vtubing proyecting the light of the inmuno compromiced awareness across the internet and needing the blood sacrifice of 40 people every two weeks to keep the galaxy from falling into darkness
but like, voluntary sacrifice. Donate plasma. For real.
Emperor protect!
in service to the iron emperor our cybernetic lord i donate this plasma
now that's a chaos god I can agree with.
Plasma for the golden throne!
Fun fact: Titanium shouldn't set off most metal detectors becuase it's not magnetic enough to trigger them. So, the card is probably more for a steel varient or for if she falls unconscious and needs emergency medical attention, she has that card to explain the thing in her chest.
yeah, I was thinking the same, also when it breaks the company wants to know which series it is and check everyone else which got it from the same series.
Its also for MRIs, titanium is paramagnetic, so a powerful magnet could pick it up
Or other metals could produce currents under a moving magnet
Thanks for explaining. I had no idea.
@@cheyennemoore8380 Also must have for anything metal that goes into humans, cause titanium (unlike most other metals) is harmless in its metallic form.
It'll probably get pinged on millimeter wave scanners like airports use (the "face this way and put your arms up" machine), so handy to have there too.
The way to Ironmouse's heart is through her catheter.
thats such a bad joke it loops around and becomes great again! XD
The more IVs you get jammed into a vein, the more likely they are to blow out. A port or a pick prevents this from happening. My mom ended up getting a port put in after they got tired of trying to get an IV.
Exactly this! I have a port as well, because I get poked a lot and we don't want to blow out veins (fighting cancer rn).
Another case of "they" just being more reduction of grammar in English, that already struggles to make anything clear. "They got tired of" doesn't mean anybody, it's just obfuscating "oh, SOMEBODY involved didn't bother with it".
It's honestly funny how the "neutral" pronoun is literally "omg did you hear what they are saying now!" because some people ACTUALLY identify as gossip, rather than identify what their gender is. Social anxiety runs so deep they can't handle it, like calling you "she" or "he" is tantamount to being filmed or doxed.
@@sboinkthelegday3892 maybe he has a lot of mom, do you ever think about that? No, you only think about yourself!
@@mandy8558 ggwp
@@mandy8558all the good vibes and strength your way.
Really puts into perspective how difficult any sort of implants would actually be to maintain in a realistic sci-fi setting.
Yeah especially considering the humans immune response to ANY foreign body and some non foreign bodies
Mousey just casually talking about her cybernetics.
Mouse full of Chrome lmao
Oh it's an injection port, last time she described it so vaguely that it sounded like she had straight up a door in her chest for ease of access cause doctors needed to regularly get in there
Just imagining Bender from Futurama and how his chest opens up
It's a port-a-cath
That scene from first Iron Man.
Not a porthole ya dork, she isn't a ship! 😂😂😂
I mean, you’re technically not wrong.
"I SPRUNG A LEAK! :3"
If it wasn't so tragic, it would be incredibly awesome. Imagine telling people 200 years ago: "Oh yeah, I keep my chest cavity open at all times for better medicine"
*insert reference to Adeptus Mechanicus*
Well, I mean there was a clip about how they actually developed nano machines, for insemination. They move on their own!
AND...
With Elon's brain implant thingy helping people electronically control prosthetics with their minds! Bluetooth no less!
Approval to go into the next phase within human trials is looking great. 👍
...I'm saying this because if we would've been born NOW, by the time we would been in our prime I honestly think augmentations for the public is a reality.
Maybe not the stuff in Cyberpunk or Deus Ex but for sure augments for some degree of quicker reflexes. Better control of your adrenaline when in flight or fight moments. Greater strength, not lifting cars but certainly the average person with the speed and power of Mike Tyson, with control of their adrenaline. Perhaps control over FoF itself. The ability to restrict unnecessary blood flow from certain organs and redirect it to the brain & muscles, ...oh, and WiFi + VR everywhere you go whenever you want. Literally connected to everything (passively of course, actively if you want using the ⚙️ icon).
WiFi your sences to your GF while she WiFi connects her sences to you 😉 I mean if you're in to that kind of thing. Whatever floats your boat, man. 😏
...As long as there's no unforseen global incident. That covers everything from Nuclear Apocalypse, Zombie Apocalypse, Meteor Apocalypse, Alien Invasion Apocalypse, and last but definitely NOT least ...Sentient A.I. Apocalypse.
Barring all that stuff..! Augmentations all day long. Yeah baby!
HAIL THE OMNISSIAH, SLAYER OF THE VOID DRAGON, GOD IN THE MACHINE AND SOURCE OF ALL KNOWLEDGE!
Ironmouse IRL ironman
I fucking love that that is the honest reason she chose that username, it's worrying to hear her port isn't as cool but it's a hilarious positive spin to put on having one.
you want to know the even crazier side. because its mouse and she has the needle in her chest. i could totally see her standing and saying something like CarebearShare!! and the blood squirting from her chest. @@jaysuscrass9119
Titanium mouse 🤔
@@OrloxPhoenix
IronBLOODMouse.
Im woozy, Mouse is tough as iron.
rat is a expert survivor species in real world, and Mousey is living to her name, a survivor with iron will
"I'm not alone, I have everyone here!" 😭
😭
Ok, so the cool thing is, it would actually be closer to a leak rather than a spring because the tube is inserted along the superior vena cava (the big vein going into the heart) and the actual end of the tube actually faces towards where the 'suction' of the heart is pulling from, so any blood coming out would be from more passive means that it actively being pumped out. Just a fun factoid.
I'm guessing it's on purpose, don't want to put that somewhere where it would cause a huge bleed. Science is really cool.
"Mousey your heart is leaking again!" feels like one of the absurdest sentences anyone could ever say, but apparently it's not as unrealistic as one might think.
Girl the way she talks about her stuff makes my skin crawl.literally she is strong willed and amazing
As someone who has worked in the medical field for quite a while it is still scary AF to me to hear that first hand experience. Its different if you do stuff on someone but totally different if its something that keeps YOU alive.
Gotta hand it to Mousey to be able to talk about it that calmly. I hope one day she will be able to live close to normally.
Random person: "YOUR SHIRT IS COVERED IN BLOOD!"
Mouse: "Aw, dang it, did I sprung a leak again?"
I love her optimism through all this, and how she's not afraid to make jokes about her condition. That is probably why she's slowly getting better physically, despite her underlying illness being incurable.
*Doctors operating on her* "Hey, I wanna see!"
Imagine being _so_ used to all of this, that watching the surgeons handling her internal organs doesn't bother her anymore.
I mean, sometimes that's just what happens when you have medical equipment that is connected to your body for extended amounts of time. Sometimes when I remove my infusion set for my insulin pump, very rarely, I will bleed way more than I should (it's usually none), but instead of freaking out, it's more of an annoyance. Like "Goddamnit, I got to change shirts and/or pants now. I hope it didn't get on the bedsheets."
I've been in for major abdominal surgery 3 times in 2 years and waking up during surgery is by far my biggest fear.
Ironmouse is just built different.
Recently my body just decided to mutate and now i have a chronic heart condition. I was terrified of doctors and needles and all that. Now ive given probably 80 liters worth of blood for all kinds of tests and had non stop IVs. Now i dont care about them anymore. You can get used to anything
HEART BLOOD, wtf that's crazy
As opposed to the other blood?
@@andrelastname1992 dong blood
@@andrelastname1992straight from the source, the freshest blood you can get. Fiji water level blood.
Makes sense to install a port there. Ensures that the medicine is distributed across the whole body equally immediately.
This girl deserves the world.
🥰Absolutely wish i could agree more💯💯
This poor girl man, been thru alot of bs and she still comes on and tries to make everyone smile and happy. God bless her
If she ever has to get her port removed/replaced, she should display it in a glass case with a plaque reading “Proof that Ironmouse has a Heart”.
she's such an icon. her just opening up and allowing us a peak into her life like that and explaining things to people... I'm forever grateful as a fellow chronically ill person
For anyone wondering, a port is a small receptacle that is connected to a catheter thats permanently installed to the patients vascular system.
The port has a special membrane that can only be accessed through needles and it seals itself once the needle is taken out.
This is done for patients that need recurrent IV medication as the vessles need time to recover and can retract if the same zone is used over and over. Eventually the patient might run out of available vessels to use, forcing those vessels might cause them to collapse and increases the risk of infection.
The septum sits underneath the skin as a layer of protection.
Like one of those syringes with replaceable needles? Neat, despite my deep hatred towards catheters.
I was too scared to do the blood thinners myself, my partner would do it for me. "Do I get to stick you with a needle now?" all happy just hits different.
I still give Mouse major props, for talking about her personal situations. Takes a lot of courage to do so. :)
As someone petrified of everything even tangentially related to hospitals, Ironmouses life sounds like a living nightmare. Man she’s so cool, I wish she didn’t have to deal with everything but I’m glad she’s made the most of it.
I remember when my sister got a port installed because she had leukemia and that’s how they were giving her chemo
When she got done with chemo they removed it so now she has a scar where it used to be
She also had a PIC line once and her main complaints were that it was hard to sleep on it and she had to wrap it up with cling wrap to take a shower lol
Yes, all medical stuff is awful in day-to-day use. Its itchy if its embedded and always in the way if attached, but if you need meds in your veins that often...
I'm making a face and yeah It's scaring me, it's the same sympathetic feeling I got when my grandmother fell and cut her hand really bad, but whenever she talks about stuff like this it's always interesting, and I'm glad she feels comfortable opening up.
And its definitely cringing if u cant handle blood and guts in the office like that but its Mouse and we should already be in for it altho still a scae😫
I have permanent genetic health issues that occasionally require me to get IV medication, especially IV potasium, on occasion. It's not often enough to require a port, but I have thought about it. Potassium IVs blow out the veins really quickly and hurt like hell, so I usually end up having to switch arms and/or legs for the IVs because the veins burn out and collapse. Potassium (k) is a caustic and highly reactive element, especially in its pure form, but it's necessary as an electrolyte, allowing your muscles to contract and relax. Thank god this only happens once every few years (going on a decade now, knock on wood).
Make sure the nurse taking care of you Y lines the potassium to an additional saline bag set up as a primary and dilutes it to a level that is not painful. I have seen nurses that do not know, and they just give the potassium straight and it literally eats up the veins as i'm sure you already know.
@@michaeld8980 thanks for the info!
Is it something genetic? Or is it from not eating/drinking enough things with a lot of potassium? Just curious because I had something similar where I had to get potassium through IV twice in my life but it's interesting to see that others had similar experiences. It does burn a ton too
@bryanmartinez2515 it's genetic. Hypokalemic Periodic Paralysis is the actual name. Diet has very little to do with it, but carb loading combined with strenuous exercise can trigger an episode. The doctors referred to it as "the bagel test." Eat a couple of bagels, then run in a treadmill and see if it triggers a paralytic episode. It has to do with the way the body processes carbs into fat and sugars while the demand for but goes up while exercising. It's a lot more technical than that as it has to do with permeability of the muscle cell membrane and how the cell recognizes electrolyte triggers when contracting and relaxing, but thats close enough.
putting the IRON in ironmouse
"that's rather cyberpunk of you" -that one chatter
Modern implants made of titanium dont set off metal detectors now. Weird, because I have been on several international flights and my heart valve has never set off anything. But yeah, those titanium implants have serial numbers and the card lets surgeons and specialists know what parts to order should they need to be replaces. Those PICC lines are terrifying in that nurses need to be careful when giving meds and flushes. The ports are much safer because they're under the skin which is the first line of defense against infections. And yes, those ports can be tricky. Imagine a coin-sized bump that can shift around under your skin, and you have to hit it dead center to access it.
"From the moments I understood the weakness of my flesh, it disgusted me. I craved the strength and certainty of steel. I aspired to the purity of the Blessed Machine. Your kind cling to your flesh, as though it will not decay and fail you. One day the crude biomass you call temple will wither, and you will beg my kind to save you. But I am already saved, for the Machine is immortal... Even in death I serve the Omnissiah."
Flesh is so much more beautiful though
@@okstorm4591counterpoint, robo anime tiddies
😂😂 sound like a Bubi quote to mouse copypasta
My mom had one when she had cancer. It was a horrible experience and terrifying every time it comes loose. It's crazy to me that Mouse can talk so casually about it. Really speaks to how much she's been gone through.
literal Ironheart
The fact that she got this comfortable, telling us all of this information means that she truly trusts us plus she sounds like she was kinda laughing a little bit at even the fact that she was in this, so I wamna say she's kind of a good, very good personality and very good mentality about it all at least for right now.
kinda cool what modern medicine can do
also win win
she gets a long fulfilled life
we get mousy
perfect deal
i love health care
As strange as this sounds I mean it in the best way- I’m glad one of the largest vtubers is someone who made a career despite being bedridden for a long time, there’s so much stigma with chronic illness and to have someone like mouse talking about it makes the topic more approachable for a lot of people
- a cane user with with chronic pain
jesus christ thats crazy, I couldnt imagine being tough enough to do that
Perspectives change fast when your life is on the line.
But as the Dr. K interview makes clear it also messed with her head a whole bunch. This young lady went deeeep into bad territory.
I've been recently diagnosed with Leukaemia (specifically Acute Myeloid Leukaemia) and the doctors put a Pic line in my arm. I'm glad I have it because the amount of stuff they pump into your body is crazy. They even can take blood from it too, instead jabbing me with needles. 😬 It's definitely cool to learn about all this stuff. Just amazes me how far medical tech has come a long.
Just today I got my powerport put in and it was scary at first, get my first chemo friday and now Im more aware of how cancer just happens and it's so terrifying. But I enjoy wtching mouse and hr going through what she is going through helps me have courage.
the fact that someone mentioned their hip bone in their mouth, kinda makes me 'happy' as weird as it is knowing that SOMEONE ELSE out there also has their hip in the roof of their mouth. it was like last year when I found out other people also had deviated septums, makes me happy knowing I'm not alone and someone understands
Leg bones are surprisingly useful for face reconstruction smh. I bet dude who discovered it was labeled insane until someone else tired it.
I also have a bone graft from my hip in my mouth. When I was 18 I had reconstructive jaw surgery to fix a severe underbite. They removed a section of my lower jaw to shorten it and added bone to my upper jaw to slightly lengthen it. Probably the creepiest medical thing I have to deal with is almost monthly injections into my eyeballs while I'm awake to treat diabetic retinopathy.
How bad it is, and how big are the risks to get one? Its not like i have any developed issues, but its not even a decade yet since developing type 1 diabetes.
@@alexturnbackthearmy1907 The retinopathy? I'm type 2 and struggled to control my sugar for a very long time so that's why I developed it. I get the injections and periodic laser treatment to keep blood vessels in the eye to stop leaking. As far as I know the treatment itself is very low risk and if you can keep your sugar under control the treatment might not be an ongoing thing. If it progresses too much it can lead to retinal detachment which would require surgery.
*"From the moment I understoud the weakness of my flesh.."*
Gosh mouse's situation makes me really sad, but im glad she has so many great friends and family :)
It's nice to see that she feels comfortable talking openly about that :D
We love mousy
This is one of things i absolutely appreciate about her despite of course wishing she didn't have to go through it. Ironmouse really gives all of us an isight into medical things none of us usually think about in our everyday life and it's super educating and interesting. On top of that i love how casually she talks about it too so it doesn't really frighten you. She's explaining it so everyone can understand it like "It's a necessary procedure and this is how it works." Every day i'm more thankful for her being her honest wonderful self
Can't believe mouse has hdmi support, as expected from our metallic rodent 👏👏👏
...nah but seriously mad respect for mouse its really incredibly admirable, the amount of work she is blessing us with dispite having to go through really rough living conditions daily...like she experiences events that the average human can only think of as a really bad time in his life regularly, like just thinking about it having a port stuck to your heart all the time which occasionally can just wear out and cause an internal bleeding, like i'm already plenty uncomfortable just having a needle stuck in my arm vein when blodd is being drawn, and that must be pretty much the endboss of that fear... no matter how many times we are remembered of her circumstance still most of us will never be fully aware to the extent this goes to, and being able to consistantly get shit done in that constant condition...she told about her experiences of never being treated as a normal human being but honestly, i don't think she is...being able to have this kind of willpower of not giving up and getting yourself to do stuff everyday that isnt anything you cant take for granted, her being to do that in her condition...nah man she is definetly not normal she is MORE than that, probably more of a human than most of us, and i can't give her enough credit for that...mouse if you by any slight chance were to read this, you're amazing, we're proud of you! If you kept reading to this point i also want to encourage you to take that aspect of mouse as a role model, we all fight with our different kinds of problems in life some very different than others but in the end still being able to keep going when these problem hit the hardest, thats real strenght!
P.s Donate plasma! You can help people AND get money for that?! I'm not supposed to give my opinion but that sounds like a great price!
My infusion nurses recommended I get a port but many of the Drs and nurses there were not certified to use ports so I just have to get stuck with an IV each time I get an infusion.
Womp womp
Lol😂 no way you womp womp his comment
HOW. they are literally infusion nurses!? injections into ports should be super common for them
what the shit
Mousey is clearly on the way to becoming our first true Borg queen.
Ironmouse is either:
A) robocop
B) a cyberpunk character
I cannot see my own blood, or I just faint. If this had happened to me I instantly would’ve fainted in one to two seconds.
I admire her for striving through those hardships, she is an incredibly tough and strong person.
I remember when my doctor told I have a health condition that requires me to take 2 big needles of medicine ever 2 weeks. she injected me the first time and then she tells me that I need to do this myself. so nerve wracking the first time I held that needle to inject myself.
She ahs an arch reactor
Mousey confirmed a decker with a datajack. It's why her models are always so expressive.
as someone with Cystic Fibrosis, hearing someone else talk about the same things ive been through is really refreshing. shes sharing her story while educating her fans and thats really respectable
Blood thinners injected into the medically correct term “tummy.”
This clip sponsored by House Harkonnen
Throat singing: Hamburger Cheeseburger Big Mac Whopper
OMG, Mouse you are so strong, having all those problems and taking it so casually. I would never be able to do such a thing, you are truly a warrior.
9:35 I realize she’s talking about some slightly unnerving stuff right now, but I really enjoy the way she says “tummy.”
My mum used to have a port for her kidney disease, indeed anchored to her collarbone (for the curious, she's FINE, she got a transplant). She had it for the dialysis she was constantly doing, and the one thing I remember is how she couldn't take showers, because it'd risk the water getting 'inside' through the port (or damaging it, or both, I can't recall) and I wouldn't be shocked if Mouse had the same issue of not being able to shower due to the port's location.
It would never have occurred to me that this was a reason people might have to not shower!
Thank you for sharing
Me to I've missed the last few secret port meetings. All seriousness have one for chemo. I've had chem leaks, and meet one guy who's pet rabbit chewed through his chemo line at home.😝 Hated chemo would only have 2 days out of every 2 weeks when I wasn't sick and throwing up (you have 12 days of Christmas I had 12 days of puking), sores all over head to toe, hair falling out, and mouth raw with sores.(gave me something called "magic mouth wash" to reduce pain) I hit every symptom I could get. It was so bad 😢 The last 2 days out of the 2 weeks were actually really bad because I was dreading going back and starting it all over again. Get sick and sad just thinking about it.😢
I have a port too- I’ve had this happen a lot lol - but it’s a good sign honestly - means the line is unclogged and healthy! I’ve had mine clog up and it suckss - I’ve had mine for 13 years it’s a trooper. Also yeah fuck pik lines - only thing thats cool is that they let you watch the procedure
I like it when people are willing to talk about their medical circumstances, it makes me feel more normal, others might feel the same. On the topic of picc lines, those suck 100%. I had one for 6 months and one time the nurses refused to change the dressing cause the line came out a couple centimeters. So I got a new one the next week cause my body likes to reject things.
couldn't watch through the whole thing since i have iron deficiency anemia and got really woozy in the first minute or two, but the story is so crazy to me. she's so strong!!
So I can sorta relate, though admittedly not nearly to the same extent. I have diabetes type 1 and use a pump for my insulin delivery. Not exactly the same IK but serves a similar purpose… and comes with its own level of BS to deal with.
i really love how willing mouse is to explain certain things sometimes, i had a PICC line for a long time, and idk but hearing how others deal with their devices is comforting
Listening to ironmouse brings back memories of all the medicine and things I had to give and do to my mom she had a pic line a port a wound vacuum injections and a drain 😢 scariest year of my life
ratanas becoming more iron
Holy fuck I would not be able to handle that
Mouse is so freaking inspiring. Multiple times I've been going through shit and thought of her and what she has to deal with. I think, if she can stay positive and move forward then so can I.
idk if someone else had said it before, but the "heart port" she's talking about is called a Central Venous Catheter. it is (like she says) a line that makes possible the transfer of liquid medicine from the outside straight into the superior vena cavae that's just under the right collarbone. the "port" can actually be placed on different parts of your body along that vein, like on your wrist, on the inside of your elbow, on your chest like her, or on your neck. I'm not an expert, just did some googling, so i apologize if i got anything wrong.
anyways, that being said, A thousand blessings toward the Omnisaiah for His unending grace and kindness to being the sustaining life force for our favorite idol.
Edit: the artery thing she said i have no idea. i could only find stuffa about cancer and how through-the-artery medication (since it's not going into your heart) isn't really made to have/keep you healthy, moreso to attack the tumor (like i said), since that's what they leech off of for survival.
Mouse is a literal VTuber.
Mouse is probably going to be the first person to have full augmentations of her body in order to live outside in a futuristic world.
Someone get Mousey the Quarian suits from Mass Effect!
Yeah, it's true about ports for chemo. My mom had one for a long time, right on her chest like Mouse describes. I also live w/my nephew who has a g-tube (feeding tube going directly to your stomach through a hole close to the belly button), and we have absolutely forgotten to close that little white clamp on a tube during a feed and ended up w/his feeds/belly liquids getting all over. He used to have an ng-tube (tube going through nose to stomach) but those are not meant for constant long-term use and were literally disintegrating on us. He has an undiagnosed medical condition and takes all food by tube. So the g-tube is way better. It's more comfortable, it's more convenient, and we switch out the little connection bit about once a month, which is decent. It's not as fancy as a port. No titanium. Just plastic I think. And his stuff's all covered by insurance. Even his fancy blended food packets. Only 4yo in our area eating pureed salmon and quinoa and all the healthy shit. His nutrition team is dead-set on like perfectly balancing his diet. Meanwhile my niece is refusing to eat anything except vanilla yogurt, chocolate cereal, pancakes, and candy. It's also way easier to just give him medicine through the tube when he gets sick. My sister has to trick my niece by mixing it into her food and she figures it out like 70% of the time and refuses it. Don't know if my nephew will ever be able to eat or talk, but he's a really happy kid and the g-tube can allow him to get all the nutrition he needs. It's still scary because they don't really know what he has, and what to expect. Right now all they can say is that his pituitary gland produces basically no insulin-like growth hormones (which is also why he's so itty bitty), so he needs growth hormone shots just to "support daily functions" aka live. His team had to fight insurance to get us the once-weekly over the daily shot. Giving a 4yo a shot is not easy, so only having to do it once a week is a lifesaver. It helps that we bribe him with hot-wheels every time since he loves cars. Hope Mouse has something to help her through the tough moments.
I feel so bad for her n her life is just so unimaginably hard but thank god things have been getting even just a little easier for her lately
**Mouse explaining how to get a port**
Me: "I'd rather die. I'll literally look at the doctor and tell them to *_let me perish."_*
I'd rather choose having port than undergone ЕGD once again.
Bit of a fucked up sentiment to tell a chronically ill person that to you death is preferable to the procedures and equipment that keeps them alive.
So the port is made of titanium? Then she is not ironmouse, she is titanmouse.
Ironmouse really following Kratos with "Death can have me when it earns me."
I hope Ironmouse lives to be 100 at the very least.
She is a good person and I want the best for her.
"Desde el momento en que comprendí la debilidad de mi carne, me disgustó.
Ansiaba la fuerza y la certeza del acero.
Aspiraba a la pureza de la bendita máquina.
Los de tu especie se aferran a tu carne como si ésta no fuera a descomponerse y fallarte.
Un día, la cruda biomasa que llamas templo se marchitará y rogarás a los de mi especie que te salven.
Pero ya soy salvo.
Porque la Máquina es Inmortal."
- Feisty Latina; probably
i couldnt listen past two minutes as im fucking terrified of needles and medical stuff (i tried my best) but mouse is genuinely so fucking brave. i legitimately couldnt handle all of that. im so happy shes here and sharing all of this with us, something so personal. she deserves the world for all her hard work.
Its really cool how she explains some of the stuff she has, at least as someone who had a port for a while due to my own health issues that has since been resolves
oh god just listening to her talk about it makes me so uncomfortable, i cant imagine having to deal with that. bless her she's so strong
Everytime Mousey talks about her sickness, I just wish she gets lots of germ free huggies.
As someone who has a needle phobia, this is like a nightmare
I had a PICC line when I was in likE 4th grade because I can't feel my legs and I somehow cut my toe in a way I didn't notice while playing outside and I got a MRSA infection in the toe, and it was bad enough to be between that and amputation. The bandage changes and the alcohol swab around the line hole sucked. And sometimes they couldn't get blood from the PICC line and would have to poke me repeatedly in the nurses office of my school (my nurse would come out to do that and bandage changes) because the antibiotics I was on made my blood clot easily. For the last stretch they put me on blood thinners though so it was less of an issue. I always feared it getting ripped out lol, but the more you wear it the less you worry. I can't imagine getting multiple put in or having them for extensive periods of time like that. I also can't imagine what them getting infected feels like- that has to be miserable
I remember when I used to have a port for chemotherapy. I would go in for a full of a week in the hospital and then the following week I would go in for 3 days of outpatient chemo, I had to put on this cream about 2-3 ahead of time that would numb the chest area so it wouldn't hurt when they accessed it. Luckily after a total limb salvage knee replacement, some titanium rods, some plastic spacers and bumpers, and some concrete I've been cancer free for 5 years. After I got the all clear they went in and removed my Medi-port and I even got to keep it, and if you look closely you can see all the little puncture holes from the needles in the yellow membrane of the port.
Exactly right on the chemo, my dad had one for that. If I remember right he also had to flush it with saline when he was betweem chemo runs and not using it regularily.
This was really eye-opening.
:s the more she talked about surgeries the more phantom pain i got, hot damn is mouse tough.
From having a Portocath and taking inch long needles having had chaemo as a kid, when I lost weight it was a pain (in both versions of the sense).