14 Years Old, Losing Muscle Every Day | The New York Times
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- čas přidán 6. 09. 2024
- Nicolas is 14 and has Duchenne muscular dystrophy, which is robbing him of his muscles Ó and his life. A new and expensive drug may help, but can he get it?
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14 Years Old, Losing Muscle Every Day | The New York Times
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The government better pay for the new drug.
Eric Horbal shouldn't have elected Drumpf.
@@moderatesunited While he is clear psychopath, Obama did nothing either. Ever seen a lot of change in America's policies when the new president was from the other party? No. They are both the same, not there for the people but for big companies. It is a wellfare system for multinationals mostly. Obama was no different at all. Words words words. That is why people lose all faith in politics. Because these people have no problem letting you down big time.
@@moderatesunited what is the name of the machine that sitting next to him?
Such a beautiful, beautiful boy. I pray so hard that a cure is found for these boys.
I have this. Im 24 right now. My brother also has this but has since passed. This is a terrible sickness :(
I just made friends with someone with dmd.. looking at the life expectancy broke my heart.. but I want to be by his side either way, the whole way. This condition is vicious and unfair.
@Tech Shakib I will.. no one deserves to live with this. I'm so sorry you have this. I hope you're able to fill your days with joy, love and adventure while you're here. I don't know you but I'm sending you my love and compassion. None of us are promised tomorrow... Try to make the best of what you have ❤️ I love you and I'm sorry you're going through this but it doesn't mean you have to let it limit you. Apply for grants, go to school, or if that's not your thing, find a job that makes you happy, go on adventures. Don't let this condition keep you from living your life. I'll be praying for you. ❤️❤️❤️❤️❤️❤️
@@DeMiTriDreams i have it 2 milder form of dm i am 33
@Tech Shakib i have limb graded md also known as beckers md
How do yo feel know?
this kid looks cool I wish I knew him in real life🙏🙏
LoL
Is her son still alive?
I have polymyositis. Similar to mascular dystrophy but not genetic.
Give TCM a try.
is that malcom
Exondys 51
Ohh i have this very late, my son and i have the same 😢
SEE DR. WALLACH ON THE 90 FOR LIFE
Try ataluren, it's better than corticosteroids at least...
Stem cell therapy?
I have a cousin with this and he ruined my life.
how did he ruin your life?
Ayo
All this kid needs are SARMs. They prevent muscle wasting. It would literally solve all his problems, he just needs to get on a daily dose of ostarine every day in the morning and he should be fine. I hope the family sees this comment. Even testosterone would help.
Don't give false hope to us, there is no cure, how dare you even try to say that there is.
Lanboner imagine if that kid sees your comment he probably gonna be crying
Are you doctor
This is an incredibly irresponsible comment to leave.
حبيبي 🤍
does he even lift bro?
Edgelord
first
just stop