Persistent Postural-Perceptual Dizziness (PPPD)
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- čas přidán 6. 09. 2018
- When all your balance tests are "normal" but you still feel dizziness, imbalance, or a constant feeling of motion, you may have PPPD. Symptoms of PPPD include include non-vertiginous dizziness and unsteadiness that was increased by a person’s own motion, exposure to environments with a complex or moving stimuli (e.g., stores, crowds), and performance of tasks that required precise visual focus (e.g., reading, using a computer). Many PPPD patients are told that it's "all in their head." This is not a psychogenic disorder, and typically starts shortly after an event that causes acute vertigo, unsteadiness, dizziness, or disruption of balance.
I told myself I would come back here to announce my recovery and I am TOTALLY recovered. It took 7 and 1/2 months and I'm here. I tried everything - supplements, maneuvers, exercises. Maybe it was just time and lifestyle change that cured it. But God, was it pure hell. Prayers going out to anyone dealing with this uniquely isolating condition. You are loved and can and will recover.
I am so happy for you. I suffer from this for 20 year and lost custody of my dear kids because I was so disoriented I could not fight my ex in court. I was dizzy could not walk
Please tell me how you recovered
I dream of living again.
Thank you
please tell me howw i really need it
What did you do?! I'm suffering everyday can't live like this
What were your symptoms
Hi happy to know you are totally recovered
I have seen it triggers more when I sit in home
Rather feel relaxed if busy with daily routine
Can you pls elaborate what makes you recovered
I almost cried reading through some of the comments to hear and see that some people experience the same things that have been experiencing for years. It came all all the sudden and I have no idea from what. Some people say it’s vertigo but the room is not spinning nothing is spinning around me, it’s just that I feel unbalanced, unequal, lightheaded...I can’t even explain it...some days are worse than others. Even if I sit really still, it’s like I can feel myself swing back-and-forth or side to side. It’s so weird and has kept me from doing a lot of things. I had a CT scan done that was negative. I’ve had a vestibular test through my ENT Where they stir up the crystals in your ear and nothing came of that. I’m not sure what to do but I want my life back..... it is one of the worst feelings to feel as if you’re going to fall and lose control of your balance. God heal us!!!
Dani I feel you . Please take comfort in knowing that your health is otherwise fine. Do you have neck issues? Do you get this sensation just as you wake up lying down in bed?
Please do light exercise...it helps me a little. I understand the feeling...I pray we all will be heal.
@@starlite7785 I don’t really feel too bad waking up or lying down but when I move to move my neck in certain positions. I do feel it. There are instances where I have we woken up and had a very bad case but I can remember that only being twice in my life thus far.
@@starlite7785 When I apply heat to my back and neck. I feel relief. In September I went almost 2 weeks without feeling like this I thought so good and forgot what it felt like to not feel dizzy and I thought I was healed but It came back.
@@charm_nesaipaeng8753 yes. I do notice when I do Pilates it helps especially with the stretching.
You don’t know how good it feels to finally have an answer to what I have been feeling many months. Can’t wait to get to treating this.
how has the recovery been so far? what steps did u take?
ME TOO!!!!!!
*@Dan Borja* Best treatment for vertigo/dizziness:: www.MootDizzy. xyz
Been feeling this for a year and have never been able to describe it to people and doctors. I can not believe I have finally found something that describes exactly what I have been experiencing.
Thanks for the Video clip! Sorry for the intrusion, I'm interested in your initial thoughts. Have you considered - Schallingora Automatically Update Scheme (erm, check it on google should be there)? It's a good one of a kind guide for getting rid of virtigo without the headache minus the hard work. I've heard some pretty good things about it and my work buddy at last got excellent results with it.
Felt so alone...for years...so unable to process anything as normal in my mind . Like in a dream state almost.
You are not alone!
That's derealization
Exactly how ive felt for years
@@VestibularVeDA so this not cause fainting no? thank for you answer
@@ELIGHT20 All cases are different. Here is more info on PPPD: vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/persistent-postural-perceptual-dizziness/
I suffered 14 bloody years until PPPD video randomly appeared on my feed just yesterday, leading me to this video which is completely describing what I’ve been suffering with. I’m so glad to know that there is hope!!
Same here 15 years . Dr's seem to think I'm making it up and it makes me mad.
Finally ! I've found my answers here. Thank you . I quit my retail job recently as my dizziness always come and go but persist, the store lighting , people moving around, the store's shelf, any fast and spinning movement that can triggered my dizziness and cause me panic attack sometimes. I really hate that .
So glad l googled my symptoms today and found this video. I have been suffering for years and was told it was FND and that l just needed to find a way to control my symptoms and for the last 3 years l have managed very well but these last 6 months have been just awful and l had to be referred back to my neurologist who now thinks l have PPPD and have an appointment this week to confirm if this is the case and l am terrified in case l don't get over just how bad it is and they sign me back off and l have to just get on with again by myself. It is really hard to explain something you can't see and get people to understand something they haven't been through or can see (l am not explaining myself very well here either). I just hope it goes well. Thanks for listening and letting me know l am not alone in this.
I received a diagnosis of PPPD last year June 2018. It’s so refreshing to have someone speak on this issue. PPPD previously referred to as PPV wasn’t recognized by the CDC until 2014. I will say that this journey has been hard. I have panic attacks regularly. The silver lining is that vestibular therapy (resetting the brain) has helped me. The dizziness isn’t completely gone but it helps. Walmart is a huge trigger for me. So what she says in this video is real. We need a larger support group for this. If you’re new to the diagnosis: it’s not ALL in your head. Be encouraged.
Bessie Bibb yes mines symptoms started at Walmart then I. Th casino with a lot of movements and flashy lights😔 I fight with this everyday and try to tell myself it’s all in my head and to stay calm me feeling this way is what brings on the panic attacks and depression because nobody understands what I go through on a day to day base....but I am very great full and blessed regardless of what I am dealing with I believe that one day this will to pass🙏🏾
For many years I have a concern with Vertigo and it made my sleeping routine unpleasant. But now that I am utilizing this Vertigo treatment t.co/YajEea0QtE my resting routine became so calming as ever. I enjoy the extra suggestions to remain inspired and practice every single day. I feel quite excited about continuing the routines. My Vertigo has disappeared already. .
I feel you, I had quit vaping as a teen about 9-10 weeks ago and have been dizzy since then, I am currently still dizzy, I have been worried about it being a medical illness or a brain tumor, I am very scared of death, which that’s how I get panic attacks, but I don’t get them often but I know how it feels trust me. But as a teen and you being an adult, your not alone, a lot of people in the world probably have this, don’t give up there is still hope!
Get your eyes checked and go to isitmyeyes.com. What you may have is a binocular vision dysfunction.
What vestibular exercises helped?
Thank you so much for posting this! I have been struggling with dizziness, lightheaded ness, feeling the constant need to faint not fainting, etc., for a year and 1/2. And I have tried asking people about, looking it up but nothing seemed to match up with how I feel. But after doing a bit of research on PPPD and watching a ton of videos on it, I finally think I have name to put to it. So I am going to talk to my parents and my doctors about it. Again thank you for posting about this!! :>>
Thank you so much for posting this video. I feel very hopeful now. I was beginning to think I was going crazy. You explained it to a T.
How are you now? Please help me, i am feeling dizzy all day since last one year 😢🙏
I cry when i read what u guys wrote , u described so well what im feeling almost 7 years with this hell .
It never goes a way , some day better some worst but its always there.
It also so random i can do my stuff and one sec later that feeling inside the head .
I hope one day we all come back to here and talk about how we made it .....
Very encouraging and informative! Thank you so much! God Bless!! 😇
I wish more was known about anxiety and chronic dizziness. (Unsure if I have PPPD but, thought this was helpful to leave a comment) Doctors don't seem to understand the connection between both. I've taken an SSRI and noticed it made a giant difference in how bad the dizziness I was feeling. An example is, just rocking back and forth in a chair. That would literally be enough to make me want to puke. When I was on the medication, I randomly rocked back in the same chair and... basically nothing.
I'd say it took away about 90% of my constant dizziness. I don't know how but, it is somehow related to anxiety. Meds don't work long for me so; I had relief for a couple months. I just wrote this, in hope that it will help someone if they suffer the same thing.
How are things going now?
@@Sharppz15 CZcams doesn't like to leave notifications so, I just now seen it. Anyways, I'm still struggling with it. I forgot to mention I was taking the med 'Auvelity' which helped a lot with the dizziness...once again. I just recently went off it because it was going downhill fairly quick. Got a few months of feeling less dizzy, which was nice. Not really sure what else to try now, since I've been on everything.
Very frustrating. I'm back to taking like 10 motion sickness pills a day, just to sort of function. I do still feel it's related to my anxiety / depression. I was reading an article that said, 'Psychological factors contribute to the development of PPPD'. That does give me hope that maybe I understand what is going on with me. I'm just stuck, like a lot of people are with this disorder.
Idk where to turn anymore for help. I still believe it's worth trying some meds, to see if you get a positive response from it.
Thank you so much for this video. Finding this video changed my life and started me on the path to recovery, Prior to this video I didn’t know what was going on with me was a real thing. Knowing I wasn’t crazy and wasn’t alone was a turning point for me. My PPPD was triggered after a panic attack, I’d never had one before and was plagued with dizziness and imbalance for months, Dr’s were no help and I had major anxiety and depression, I couldn’t go into a grocery store or walk the halls at work without massive dizziness. After finding this video I started more research and working with neuroplasticity exercises which helped a ton. Now I’ve learned that my anxiety triggers the dizziness and now I can better manage it now that I know what’s going on. Thank you!
Hi. Really appreciate if answer. Did you have the feeling of floor shifting when walking? Like walking on the walkways at the airport. Or walking on the boat.?
I have this also been dealing with it for a few years now doctors wanna keep putting me on all these meds meds are not helping out is there anything that I can do to help without being on meds I do not want to be on any meds at all
Thank you, sincerely Thank you
For the past 10 months I have been having a constant feeling of unsteadiness and off balance . Some days it's better some days it's worse . I have been to my doctor so many times and have gotten MRI and CAT scans of my brain and everything came back normal . My doctors kept telling me to drink water and take medicine like Claritin clear and wait so I just stop going to the doctor. it was so discouraging to the point I was wishing it was something to do with my brain so I could finally find the cause of this feeling. My uneasiness and off balance is heightened when I go to grocery stores . I have been having anxiety attacks and I never knew that the anxiety that I have may been causing this problem. I'm only 20 years old so I feel like no one in my family is taking me seriously. I also come from a black family so they don't really believe in these types of things like anxiety and depression. This video has been what I have been searching for !
Hang tight you are not alone,glad you found this group
@@LuisLopez-th3hs thank you !
@@Bonitaabritt keep coming on this chat for updates I know I will post any new finds as I go through my treatments, God bless and stay strong!
@@LuisLopez-th3hs I will ! Please keep me updated
Hey! Hope you are okay! Im strugglinh with this myself and doing vestibular rehabilitation have have helped!
Hi everyone, I'm only just learning or heard of pppd a few days ago, I've been like this over fifteen years now and just accepted this is the way it is, just not doing many things I used to do. I now avoid people and places, stopped driving and making excuses not to go out with my friends and family (I have two little boys who knows no different, its just the way I am as I've had it for years). didn't know it was a thing (pppd) i do feel relived that it exists, feels like at times I've been going mad, feel like no one really believes me as no one can see or feel it. I could write a book about the last 15 years. I'm seeing my doctor tomorrow to ask about pppd. Hopefully sort something out. Sometimes I feel I can't keep going, but I do. Fingers crossed.
Start doing retrainment exercises and good luck!
@davesmith, Hi Dave, search for a Physiotherapist in your area who specialises in vestibular conditions
@dave smith, Hi Dave, search for a Physiotherapist in your area who specialises in vestibular conditions
I've had BPPV for years, but this year was the first time that I felt like I was on a boat... this description feels right! I'm seeing a vestibular therapist and I'm going to mention this to her. I also am thinking this might be due to a corticosteroid eyedrop I was put on by opthalmologist for an eye infection (a very lethal one, called Uveitis) and she prescribed this drop four times a day for a month, then tapering it slowly. Thank god she saw me on an emergency basis and put me on that drop... it saved my eye... but now that she's tapering it off (the uveitis is gone for now), I feel like the first day I didn't take the prednisolone dosage (tapering it now!) -- there was NO dizziness!! Halleluijah! I' gonna write to my opthalmologist about this diagnosis!
Hi indrani, from research it does say that bppv resolves on its own mostly. What does your bppv symptoms feel like.
Looking to hear from you
thank you for posting this! your beautiful
You are so welcome! So glad that you found the video helpful!
This is what i was diagnosed with yesterday! At last, everything is explicable! I had a sports accident when i was 10 - was playing football, and the goalpost fell on my head!
I thought i'm the only one who feels like this. I have to deal with this dizziness for 24/7 for almost 13 years... It only stop when i sleep, and i spend almost all my day lying down coz it feel a little bit better while lying down you know... I've done MRi, CT scan, eyes and ears check, blood test and everything but it's all normal... i can't living like everybody else around me because of this and it's killing me slowly...
HI Xalottha, I'm so sorry to hear what you have been going through. Send us an email at info@vestibular.org or call us at 800-837-8428 for healthcare referrals and other resources.
I love you.
I've been dealing with lightheadedness/dizziness and tinnitus for the past two years. I went to many doctors and they couldn't find anything organically wrong with me and kept telling me it was just anxiety. I then spent the next two years scared out of my wits that I was dying and that the doctors were totally missing my major disease. I just learned about PPPD yesterday and... Honestly, if this is what I have, then this video is a godsend. Thank you!
Let us know if we can help with resources or a referral call 800-837-8428 or email us at info@vestibular.org
Hola! Como sigues ?
Thank you for naming this disorder, it definitely makes it a lot less scary knowing that something concrete is causing these things in my head. I've been having chronic dizziness for a relatively short time compared to some of the other commenters but it feels like an eternity with the toll it's taken on me. Wishing everyone in the comments the absolute best of luck on their recoveries, and lots of love for you all.
How are you doing now? I’ve been suffering with this for about 7 weeks now, feeling really low
@@ryanprice5652 it’s gotten a lot better since the peak of my anxiety and dizziness in September. A combination of SSRI antidepressant medication and physical exercises have made it so the dizziness is negligible most of the time. For me it was definitely generalized anxiety disorder-related and I just wanted to say that it feels like it will last forever but you WILL get better. Definitely talk to your doctor and/or physical therapist about possible SSRI and physical treatments. There is an end in sight, just have to push through it.
@@limebbowo thank you so much. When I found out what it actually was, I feel so much better. It was so scary when it was first happening. I’m glad to see you’re feeling a lot better and long may it continue. Thanks so much for your reply and advice. Definitely going to push through!!!
@@limebbowo just came across your comments, may I know are you healed?
@@eshghedelameshghedelam1727 It’s been over a year since I posted this comment and it’s amazing how much better things have gotten. Like I said in an earlier reply, a combination of SSRI medication and physical therapy helped me get over the dizziness, which was probably a result of my panic disorder. Nowadays I only very rarely feel the dizziness, and it does not affect my quality of life anymore. If you are going through the same thing, don’t give up hope, seek all the treatment you can, and remember it WILL get better. Lots of love to you!
SOLVED …. So I had all the symptoms of PPPD. I’m male, 50 years old. Spend long hours in from of computer screens. Symptoms started about 2 years ago. Feeling of confusion, brain fog, unable to concentrate, poor memory. Then mild dizziness when walking especially corridors and the supermarket. Symptoms got worse, depression and very emotional. Jaw pain at my TMJ and incredible neck pain. Had MRI, CT, ear pressure test, eye test, changed glasses, dental checks etc. All cost me a small fortune. Tried stretches, yoga, meditation etc. nothing worked. THEN… by chance I had reason to close my ears with my fingers… symptoms reduced. So I wore earplugs and …. Symptoms reduced. Kept them on 24/7 for a week to get through the day. I still didn’t know why symptoms reduced. Took the ear plugs out it was like letting the devil back in. With the earplugs in whilst driving and pressed down on the plugs and symptoms reduced even more. Was convinced it was ears. So I watched a video on doing ear massage and stretching. When I pulled and stretched my ears, away from my nose line, and held them there for a minute, it was quite sore, the symptoms had reduced massively!! The pain in jaw / cheek had gone but my inner ear was very sore as I kept doing this all day. The next day all symptoms had gone by 90 percent but has very sore inner ears. I am now on day 3 and no dizziness etc but still quite sore inner ears and haven’t stretched them since. Please try this and reply if this worked for you. Go easy on the ears tho. Very gently pull and stretch them away from the side of your head. Please do reply if this works or not.
This is wonderfully helpful to read, exactly what I've been suffering with for two years. I've yet to try your suggestions, was just so excited to stumble across this video, in the face of zilch assistance from any of the medical profession (who I've been lucky enough to avoid all my life, first time in 50 years that I had to visit a doctor when I got an ear infection and perforated eardrum. That's when my troubles began.) But they make sense to me, esp. earplugs/headphones, I used to type audio transcriptions for a living so I'm used to being plugged in. Thanks again, I will be back!
Hi to anyone watching this video with the symptoms described, I know your pain and I want to share my experience from NZ in case it helps. Throughout all of 2019, I suffered without diagnosis. A “gloopy” kind of dizziness I called it. Not actual spinning. More like my brain was moving through space slower than my body and then always "whooshing" in a slow treacly way to catch up with the motion. Like living in cotton wool or being underwater. Mainly when moving but not always. Elements of brain-fog and double-vision but maybe not related. I had tension headaches too - probably shows I was stressed. Was trashing my ability to think and work in management role, and I took to only exercising on long flat easy spaces like a beach. I got all the tests under the sun and they came back negative. In late 2019 an ENT specialist mentioned PPPD very briefly alongside other vestibular conditions. I then read up on it myself and I was SOOO relieved it had a name and was a thing! Felt like crying with joy i wasn't going mad alone. I went back to my GP armed with my research and two things saved me. 1) An SSRI (Citalopram in my case) antidepressant. I had to ask the doc for these myself but he was happy to try after reading the material. I wasn't depressed although of course I I was fed up and stressed, but I was very happy to try anything. It worked wonders within weeks. There seems to be some thinking that it simply helps your neurons function and communicate more effectively but maybe that's not quite right. I've had no downsides other than withdrawal challenges when I tried coming off a bit too soon. Be aware of that risk. But still worth it vs PPPD hell! 2) De-stressing by learning to breathe properly again. Not just doing occasional deep breathing once a day. I learned to constantly breath diaphragmatically. There are physios and CZcams videos to help with this. It's very easy once you practice and completely transformative to your sense of calm and your body and brain loves you for it. That was enough for me to “cure” my issue with PPPD that was wrecking my happiness. 16 months on and no relapse. Hopefully it stays away. Personally, vestibular training exercises didn't help but of course that was just me and clearly they work for many. My advice is to go to your medical people with printed out material about PPPD and the possible treatments including SSRI anti-depressants. Force them to understand this is a real thing with proven solutions. Good luck to you all and I hope this helps.
I've had nonstop lightheadedness for ten years now
Hey mate, where in NZ are you from? I’ve feeling the same, have gone through the Gp to ENT and ENT referred further to MRI and NZ balance and dizziness institute, I kind of feel the same but gave up hope as all the centres I go to say that everything seems to be normal, it all started with me in month of may last year when NZ was in complete lockdown. If you could connect and share some information it would be really helpful.
Cheers
Yes!! These are my exact symptoms! One time all of a sudden my vision went into like a tunnel vision then everything was moving slow. Felt like my life was a video and someone put me in .025 speed. Scariest experience ever it's been happening since my daughter was born 10 months ago
@@pranavpratapsingh6515 Hey. In Auckland. Happy to share info although it sounds like you’ve been to all the right people (similar journey to me) and I think the next thing you should do is pretty simple - get back in touch with your GP armed with some info on PPPD as your doctor may not have heard of it. They may suggest SSRI treatment or maybe something no medicinal first. Simple info here vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/persistent-postural-perceptual-dizziness/ and lots of links at the bottom of my post here www.reddit.com/r/Dizziness/comments/mxwzf8/pppd_my_story_and_recovery_from_new_zealand Should be able to chat via Reddit if useful.
@@Weatherface thankyou for sharing your story, it gave me hope that i could get better. Thankyou my friend. I will try ssri 😥🙏
Brilliant informative information. It totally explains what I'm feeling and will discuss this with my ENT specialist who diagnosed BPPV and offered me Eplay manouvre. With no lasting effects. I will go to your site and learn the exercises needed to reset my neurology. A huge thank you
How are you? Did you feel it while lying in bed too?
@@8QQ8 I can feel some type of feelings in my head when I’m laying down in bed. All my off balance feelings come from my head. How about yours?
For the past 2 years ive been having problems with dizziness. At first we thought it was motion sickness but then gradually it got worse. From the moment i get up to the moment i go to bed i feel a very small sense of dizziness which worsens with motion. At first it was managable but a few months later it got worse and every day i feel eally unsteady and dont understand what is wrong. Now ive been referred to ENT cause doc thought it was inner ear related, i had an MRI which came clear and i also had a test for vertigo which was also negative. I then decided to do some research and i found this video. Ive seen some comments of people saying that their dizziness is very vauge but gets worse with stuff like walking in hallways or being in elavators. Symptoms like these are exactly what i have been experiencing which relifs me because i didnt know that what i have been dealing with is actually pretty common, definitely going to bring this up at my appointment next week as i think that i may have PPPD, many thanks for the video!!
Substance was the reason❤❤
Thanks! I've been dealing with this for almost a year. Loss of balance, pushing/pulling, rocking, feelings of floating and other symptoms. It seems to be triggered mainly by sitting in front of a computer screen. Even just thinking about sitting at a desk to work or study seems to trigger it.
Ive had two severe vertigo episodes where Ive fallen over and now left with this permanent feeling of unsteadiness and floating for over 2 years now. I've had all the brain scans, blood test etc and everything has come back normal. Ive been doing vestibular rehab with physio, it has helped.
Do you think it's related to your neck? What position bought about the severe episode ?
@@starlite7785 yes, the neck! I've been meaning to ask the same question. Could Spondelyosis have something to do with it?
@@indranidasgupta8982 yes i have cervical disc bulge and I'm constantly dizzy it's a horrible feeling. And yes CS can cause vertigo.
Are you still dizzy , if not how did you get rid of it , I’ve had vertigo for 4 months
@@andreevestibulardisordersa8140have you got rid of it an how
Excellent information. I've had this since I split my head open when I was seven years old. Always diagnosed as anxiety. Now working with a Professor who is doing research into Visual Vertigo and he's using my advice i.e. using the Wii Balance board with his research. Wii Balance exercises have certainly helped me to reset my neural pathways over the last two years. I still use the Wii at least twice a week, sometimes more. Not 100% yet, I would say at least 90%, compared to 0% two years ago after having Flu, then having my ears syringed. That knocked me for six. I was housebound and became Agoraphobic. Onward and upward :-)
Ellen Dean, I came across your comment today. What are these Wii Balance exercises? Will you tell me, please, where can I find them? Thank you so much in advance. I have been diagnosed with this kind of vertigo today-after 17 years of looking for answers to my questions...
I feel your pain Tanya. It's the Nitendo Wii Fit U and it was recommended by VEDA. You can find them on eBay to buy. Unfortunately, I don't think you can buy from Nintendo anymore, but some of the eBay ones are new and some are second hand. If you google it you'll find where you can buy one, or you may know a friend or family who don't use their's anymore. They were very popular at one time.
I am experiencing something similar
Who is the professor please ?
Affording help is the problem
Joanne Roberts I hope you find help ❤️
wow this sounds like me . I live with this unsteadiness every day .
Hello Maria
How are you doing today?
I can honestly say this video make me feel a little better. I have had non-stop lightheadedness for 10 years now. It all started in late 2011 I just stood up and I just started feeling light headed, as well as tinnitus and it's never gone away. I'm also having trouble focusing and concentrating I have very bad brain fog and it's so debilitating
Me too, but around last June it got so bad and it’s gotten unbearable I’m only 22 too, took over my life
@@beepboop9519 I'm in the same boat as you friend and it seems like no matter what hospital I go to they never find the root cause. I'm about to go see this guy in Nevada called doctor Gates. He works in a place called Gates brain health
@@beepboop9519 same here i have been depressed for days i cant even go out i feel like i will pass out and in scared . Public places makes it worse
Mine to..Just feel light headed at my home and that feeling stayed..I thought it's vertigo but it's not...I was positive for coxackie virus then but even I healed these stayed for years..Then I forgot about it and came back these year,now with pressure in my ears ..I can hear like air is come from my ears..And it's realted to diet and my bloating and digestion..So now I think all this sensation is correlated to gut Flora ...I find some mention leaky gut and histamine ...It make sense..Have u done inner ear test ..caloric test for balance?
I am so happy to come across this page as reading these peoples stories helped so much. I woke up Dec 19th to fall out of bed and never been the same since. This is so frightening, scary and debilitating. I'm going on 4 weeks and already tired of living like this always dizzy, nauseated, light headed, unbalanced, depth perception and brain not working right. I couldn't image having to live the rest of my life in this condition I would rather be euthanized than live with zero quality of life. Just overnight went from being vibrant and vivacious to being a vegetable with a brain as i'm terrified to walk i get so wobbly feels like i'm going to fall and keel over dead. This is so sad for everyone suffering this. I hope they can find relief for us and good luck to all of you !
@Brenda , do you feel dizzy even when you are lying in bed? Like you are on a boat?
@@8QQ8 yes i do . I'm working with a vertigo physio therapist for balance and dizziness but I haven't seen a lot of progress and i'm in the 7th week so frustrating. I just seen an ear specialist yesterday and i will be sent for balance testing at the University of Alberta but as always here in Canada the waits are long. I do have a eye exam also in February to see if i may need neuro vision rehab so i guess its a process of elimination trying to find out if its from the ears, eyes, or neck as i have problems right now with all three areas. It's so debilitating and frustrating and now feel like my whole body is on pins and needles so don't understand
I'm also waiting for a neurologist appointment . Praying something will be figured out as this is certainly no quality of life.
@@brendafreund2282 you might have vestibular migraine (even if you don’t have a headache!) that’s my diagnosis. Many who have it have this kind of 24/7 dizziness. There are meds you could try, like Amitrpitlyne, effexor , topamax, propanolol etc. Anything that works as a migraine preventive med could help!
@@8QQ8 Thanks for taking time out of your day trying to help me as i do experience migraine along side many other things and in the midst of trying different things for a process of elimination so to speak as i have trouble with migraine, ears and neck so this could be it and will no if the migraine meds works. Have a nice day and thanks again for taking time out of your day to help
@@brendafreund2282 you are so welcome! I hope we all find the right medication and this nightmare will stop!
I was diagnosed with PPPD by my ear, nose and throat specailist after she sent me to a location that tested my eyes and ears in ways that made me extremely nauseas. I am not dizzy all the time it's random and may only happen a couple of times a week and that's maybe because I have been living with this all my life and found ways to avoid getting nauseas. My triggers can be sudden movements and watching my son play 3D games which is upsetting because I would love to be playing those games. Unfortunately, if I watch for more than a minute, I get cold, clammy and feel very sick. It takes quite a while to get back to normal. So I don't seem to have it as severe as others but it limits things I can do with my kids. Not sure if my diagnoses is right but it sure seems to hit on all the things you spoke about. I hope I can find help to get me to a place where I can feel more normal and do more with my kids. Thanks for the video, it has helped me see that I am not alone out there.
@ times it's soo scarely for me. Am grateful i landed here.
It can certainly be very scary. But you are not alone. Feel free to contact VeDA at info@vestibular.org for one-on-one help. You may also want to check out the Vestibular Disorders Support Group on Facebook: facebook.com/groups/894515707291390
Thank you very much!
I just want to share my case.... My dizinnes is a mix of things.. Having this problems 3 months now. Neck herniated disc, allergies, sinusitis and injury from bad neck manipulation from a chiropractor. Went first to ENT doctor, had MRI, blood tests, everything normal (except the herniated disc and some other issues from an old whiplash), saw neurologist. Have treatment for allergies, found a good physiotherapist for neck instability, doing the exercises he showed me and I see huge improvement. I have days feeling dizziness or see things worsen but my neurologist told me I need a couple of months to heal. Also have trigger points on SCM muscle and this cause dizziness and ear pain.
Don't give up. Patience.. Anxiety make things worse.
Glad to hear that you have a good physical therapist and are doing better. Please feel free to contact VeDA directly if we can be of assistance (info@vestibular.org).
I have a few bulging discs in my cervical spine. I constantly feel discomfort and tightness in my neck area . I find when there's alot of neck movement during sleep turning neck one side to the other and I wake up while in bed itself ( not standing? I'm feel off balance and like the room is tilted it's a very disturbing sensation. Is this normal?? Do you get it too especially while getting out of bed?
@@starlite7785 No, I do not have this symptom. (Check your pillow. I have stiffness from neck instability. Muscle strengthening exercises helped me a lot)
And see ENT to guide you properly.
I hope you feel better 😊
@@starlite7785 mid bulge?
@@rayansha7005 yes u as well?
I feel like a sort of light headed feeling and when i turn my head it feels like my head balance is slow to reconnect to my head position, I also feel like i cant think straight
It's totally normal to have problems concentrating. Please feel free to contact VeDA's patient support coordinator if we can help you find additional resources: info@vestibular.org.
same exact here... did alot of bppv treatments and medication... still very slow progresss for 4 months now! hang in there it will resolve!
SINISTER ACTIVITY just be patient and don't do any head maneuvers like the eply. Those only make things worse and then it will take you even longer to recover
@@arkane5170 how are you treating it?
@@ErikvonStrongber hey eric i visited an ENT specialist and he did treatments called Epley maneuver and recommended home exercises to be done... but in my case it still didnt resolve and i am going back soon.. what are u suffering from same kinda thing?
ive dealt with this for almost 3 years now, and only got a diagnosis in November. Currently doing vestibular therapy for it, let's hope it works :)
This is a relatively new diagnosis, so it's not unusual that your doctors didn't know what was going on until recently. It sounds like you have a medical team who knows what they are doing. Feel free to contact VeDA directly if we can help you in any way (info@vestibular.org).
@@VestibularVeDA yeah it took a while to get a diagnosis (i've been going to different doctors since may 2020). My therapy is now almost over, and it did seem to help ! Not completely back to normal yet, but I think if I start to meditate and practice mindfulness I'll slowly start to recover and go back to normal. Also not thinking about the dizziness does help a lot
@@sumanas8578 how are you doing now?
Thank u. I can barely drive or shop now. 💜♥️💜♥️💜♥️💜
Rasheedah, I'm sorry to hear that. Please write us for some support resources at info@vestibular.org
I just want to get my life back, it's been a year dealing with it :( . It's a relief to know someone understands.
Same here, an year with this. Do you have any other symptoms?
@@qpffosb1322 Oh yes, little things like sitting on the chair, showering make me feel fearful of falling down, constant tinnitus in my left ear, inability to walk properly, the entire lobby sways when I walk is how I feel, constant feeling of fear, shoulder and neck tightness and stiffness, waking up in my sleep because of sudden onset of dizziness, pressure in my ear and head when I get out of the sitting position, am never at ease and relaxed, are only a few examples of how I feel. How about you?
I'm sorry to hear that my fellow dizzy friend. Mine all started and late 2011 I just stood up and I just started becoming light-headed and it never went away. Is that what you feel?
Its been a year and a half for me I'm lightheaded 24/7 and constant ringing in both ears
@@mooch2155 HI Mooch, Do you have a healthcare practitioner that is working with you? Please call us at 800-837-8428 or email us at info@vestibular.org for more information, healthcare referrals and support info.
Oh my god. Ive been to so many doctors. They always tell me its migranes because im sensitive to light and colors, but i never had pain. Just a pressure feeling in my brain. I still plan on getting an MRI done, but ive never heard of something so similar to how i feel. For a couple years now, i walk into a store and get extremely dizzy to the point where i feel like ill faint, i get a weird pressure sometimes in my head, and of course anxiety follows so my heart rate goes wack. Its good to know i have a chance to bring this up to a doctor to see if they can tell.
You literally described what I've been going through. Stores are a big trigger for me also. I always get like lightheaded/faint feeling.
Mine started back in April of this year. First it was head pressure then neck pain, then after, the rocking/swaying dizziness came out of nowhere. Neurologist diagnosed me with migraine. Like you, I also have sensitivity to light and bright neon colors.
I don't get light sensitivity but I get baaad head pressure and a heavy head, I often watch TV with my head on the arm of the sofa when it's heavy
Hi maybe allergies? Try alegra
If you have a straight neck and no curvature to your spine then this can also be a reason you feel heaviness .
I had a vestibular neuritis months ago. I recovered. I had anxiety problems after it, panick attacks. Three months ago I have started feeling these rocking sensations exacerbated by busy environments like grocery stores or squares full of people and in front of computer screens. It's been a nightmare. I thought it was just a reoccurence of vestibular neuritis, but the sensations were different, less intense, even though very annoying. I have visited 4 different doctors. Everything was normal, blood and urine tests, neurological tests and vestibular tests. I am italian and no doctor fucking told me about this. The last neurologist I saw treated me very badly like someone faking symptomps and told me it was just "funcional". Seeing this video made me cry of joy. THERE IS AN ANSWER. What can I do now to treat this nightmare???
Hi, hope you can do a video differentiating Mdds and pppd. For mdds should ypu have experienced being in a boat or in a plane just before the dizziness started?
I am in tears , I have been dealing with all this for 10 months ! After I had my baby I had a horrible ear infection to the point my ear was hot and hot wax would leak out ,but I had just had a C-section so my ear was the least of my problems , well about 4-5 days after having my son I went to put somthing in the oven and my head started with all these symptoms everyone is describing, of course I panic , and I tried to get help but They just prescribed me Anxiety meds which helped my anxiety but never my other symptoms , I deal with this daily and unless I’m driving or swinging on a swing I feel all these symptoms I thought I was just crazy when I’m in grocery stores it gets worse or if I suddenly walk into a dark room or even pick one leg up I feel so unsteady 😭😭😭 I need help as far as what to ask my ENT to look for I’m going September 17th thank you
Hey girl, I've been going through the exact same thing as you for the past 5 months😔 I know how scary it can be. I just wanna feel normal again. Stores are a big trigger for me. As soon as I enter I feel like I'm gonna fall over to the ground. Kind of like lightheaded/faint feeling. I don't feel it when I'm driving or lying down. I'll be praying for you🙏❤
Ok so I had a hearing and balance test every thing was normal EXCEPT for my Bithermal Calorics this is what they said , there is a significant bilateral weakness with a total of all eye speeds of 5 degrees per second, which is consistent with bilateral peripheral disorder, CNS abnormality, or pharmaceutical effect .
Literally the only meds I take daily is my Synthroid for hypothyroidism and my dose had strep changed for 4+ years before this started , wondering if you have ever come across this , my ENT is stumped and sending me for a MRI
@@Breighahhhna Hey, I've never heard of this. When are you scheduled for MRI?
@@vannessavidal4193 they have to call me to schedule something so not sure yet hopefully soon
@@Breighahhhna oh ok girl. Keep me updated. How are you feeling today?
I always have fungal infection in my right ear and having it cleansed by an ENT doctor like once or twice a month. I always feel dizzy. Been drinking antibiotics and using antifungal and antibacterial ear drops but fungi keeps getting there. I avoid my inner ear getting wet while bathing. Can thid cause that rocking boat sensation I feel everyday?
Here's some info about fungal infections and the ear: dizziness-and-balance.com/websearch/search.php?zoom_sort=0&zoom_query=fungal&zoom_per_page=10&zoom_and=0. Have you talked to your ENT about your dizziness? There are many possible causes (vestibular.org/article/what-is-vestibular/causes-of-dizziness/). One condition that results in a rocking or swaying feeling is Mal de Debarquement (vestibular.org/article/diagnosis-treatment/types-of-vestibular-disorders/mal-de-debarquement/). Please contact VeDA directly for one-on-one help (info@vestibular.org).
I have struggled with dizziness on and off for the last five years and have received different diagnoses from different doctors. I meet with a vestibular specialist on the 28th of this month as right now it’s looking like either vestibular migraines or PPPD.
Andi Vestibular Disorders Association thank you so much for your thoughtful response and the articles. I will definitely read them and reach out as needed!
@@XxMadAboutPotterxX has anything help
I have been interested in books regarding neuroplasticity and I was wondering if there are any recommendations for vestibular issues.
Chrissy - Neuroplasticity can certainly help some vestibular issues. It is the premise that vestibular rehabilitation therapy is founded on. Your treatment would depend on your diagnosis. Feel free to contact us directly at info@vestibular.org and we can help you further.
I think I have exactly PPPD. Been fighting with it for the last year. How can I find a specialist near Washington D.C?
Sergio Sevilla , do u feel any better?
Been dealing with this for almost a year. Winter months I feel better as soon as it starts warming up I get dizzy, nauseous etc and my neck starts hurting etc.
Do you get vertigo when you switch positions while lying down sleeping?
hey. how are you feeling now?
Just crying over this video.. nobody will listen to me. I’ve had anxiety for about 15 years now or diagnosed with GAD around that time.. was on and off meds, one SSRI and tried a few benzos taken as needed but it was pretty minor considering.. and steadily got worse over time. I kept pushing though for many years and managed OK but very weird tunnel vision in stores, sometimes ditching carts and running out, ran out of jobs.. can’t say I was exactly “dizzy” back then but i fidgeted a lot and stuff for weird. Movie theaters set me off too, the movements on big screens.. so I haven’t seen a movie in a decade at a theater but I didn’t know why I was like this. Fast forward to a death in 2017 and a few panic attacks while driving and I slowly started to stop pushing.. still don’t remember dizzy as a main symptom YET. Got a boyfriend that year too and with his help was still going out but things just didn’t look right. I’m big on concerts and live music but going to a bar or music event with lots of people and flashing lights and overstimulation would freak me out and make me wanna run more and more often. Still sort of functioning alright I guess. Then one day maybe 2018 I had my first real vertigo spell,full out spinning while turning in bed and I was screaming and went to the ER horrified.. it went away pretty fast but dizziness now was always around and my swelling on it and always focused on how I feel? Will I spin. So that’s when dizzy took over any other anxiety symptom I had.. I was put on Klonopin as needed. It eases it. Became daily,low dose and doesn’t completely stop it but helps me function some anyway ( and yes I know all about benzos so no need to talk about that). So I’ve been battling this and on a low dose, I still have to work on myself because it doesn’t cover everything so I’m not a zombie etc.. So for years even prior to the med I’d wake fine, last about two-3 hours and then the dizzy would kick in or woozy, off balance, weird vision. The only way it eased was med and an eye rest or nap to reset and then again good for a few hours. Very odd to me because. It didn’t correlate to my anxiety level and I wasn’t feeling anxious,just happened on cue. I still at this point this it’s anxiety and hormones but no idea what’s happening. I can’t watch a big screen Tv??? Why? I didn’t get it! I’m walking around in sunglasses? Why? Walking like a weeble wobble feeling like I’m moving? Why?! No one would listen and tell me it’s anxiety and now add Perimenopause , uh huh.. so I’m dealing not knowing what to do and last summer my neck went out or something, huge muscle seizing in shoulder had me screaming again and in ER.. pinched nerve I guess and tension and bad posture related. NO dizzys entire six weeks I recovered for some reason but as soon as pain eased dizziness took over my life and daily,24/7 except after some kind of sleep or eye rest. No longer drive myself anywhere and been not to become totally agoraphobic but it’s so debilitating. Been knocking out some medical tests but nothing that would cause this. After the neck issue, rocking, feeling pushed forward, feel like I’m moving in bed and even sitting, rocking side to side standing, feeling drunk in a bad way, sinking in bed, boatiness,off balance, feeling like I’m falling over and a lot on a bed or couch.. like right now I know I’m on a soft bed and leaning left a bit but my brain says I’m falling over,ugh,and so much more. I ran into PPPD not too long ago so things sort of are coming together. I resist the hell out of it.. bad I know, now.
Does anyone have major issues with sunlight or seeing trails after certain lights? Anyone on a medication that helps.. be if benzo, SSRi or anything and what is your experience on something? I’ve been trying to except it and get exposure now that I know and I hope I can accept and beat this or at least ease it. 💗
Oh and my new Dr isn’t bad. I do have a neurological appointment coming up and he’s been patient.. as of now he says my nervous system is exhausted and disfunction but we are knocking out other tests for now….
Recently (February 2022) I found this website. I have had a feeling I’m on a boat all the time for 2 years. My PT found this information for me. I’ve started an SSRI just a week ago+. So I’ve done these physical exercises for 4 months now, but I still am on the boat. I’ve been told to walk more without my cane or sticks, it’s quite tiring to carry the sticks, but I’m not confident enough to not have them to start. I hope the Zoloft helps.
Get rid of it, slowy get off zoloft. It almost killed me personally and it took my friends life because of the side affects. Nutrition and excersise was the only thing that ever helped, get rid of sugar, junk food, wheat, pasta , rice, potatoes and refined carbohydrates. Us women really really beed iodine, omega 3, collagen, iron form beef liver grassfed, and high vitamin c with real plant and animal based foods and supplements. No synthetic stuff. I used to have severe period pains, anxiety and depression. I promise that focusing on sleeping, eating healthy, moving away from technology as much as possible due to the EMFs and excersise outside for the absolutely important vitamin of all which is vitamin d3 -k2 to absorb better. Zinc from oysters does wonders aswell. It's a life changer. I don't take anti depressants anymore, never panick and no more depression. I will never go to another doctor again and have not been for over 2 years. 🙏🙏 hope this helps ladies. I'm a bit concerned about this channels logo, its satanic which is not a good thing at all. However in saying that , Rockefeller does own the education system. All the more reason no to trust it. This person didn't really give you valid information, just saying what you know and wants you to join a link. 🤦♀️🤦♀️ be your on doctor girls this video is useless. Let food be thy medicine. I highly advise doing your own research about nutrition on bitchute.com. or seeing a naturapath that heals with herbs and plants.
Hey, could you tell me how are you feeling with the SSRI treatment? Have you recovered yet?
I’m not sure if this is how to reply….. but the SSRI caused me to have intestinal problems and I was tired of it. So after trying the full dosage and constant morning issues with elimination for 6 months I stopped the Zoloft. I felt a little more cheerful and calm, but just couldn’t do the constant toilet issues and I’m still feeling like the floor is the sea, which is usually a bit worse as my day wears on. 9 months of PT has given me more confidence about my abilities to walk but prefer walking sticks or a cane and am fearful of not having assistance. I’m currently not going to PT but could return if I choose.
My mother 87, has been dealing with this for YEARS. Initially she was told that she had Meniers. She lives alone and I've noticed more and more that she experiences dizziness when she stays home for days. Her trigger is being lonely. She goes to the senior center during the week, she has a lady that goes to her house 6 hrs a week to assist with chores, my sibbling goes to see her every other day after work and takes her out on Saturdays and Sundays. I call her every single day for at least one hr. When I come from the state where I live and stay with her, she has NO DIZZINESS no STOMACH PAINS, she is normal...as soon as my time to return home approaches, she starts getting anxious and does not sleep and gets dizzy again. Are there studies that she could participate in? She lives in South Florida.
Please contact us at 800-837-8428 or at info@vestibular.org for assistance.
Watch the steady coach on CZcams she's yonit Arthur she has a free program no strings attached.. And her videos will help you understand the emotionally components of this.. She had tons of videos that will help you understand just check it out
I’ve had this same thing for a year, and I’m hearing you guys put up with it for 14. I can’t deal, idk what to do. I’m freaking out I just lost my grandma I can’t stop having this constant panic attack, my head just keeps pounding like it’s being crushed by my skull. I’m so dizzy. I need help, please someone reach out to me with ways to deal with it
hey, hows it going I had something similar happen to me Rip to your grandma I lost mine as well this year. I got vertigo a week after and it stopped for like a month and now I don’t have it as bad but I feel it there whenever I turn my head my room tilts a bit but not extremely its so hard to tell but im sure its there and it scares me. I pray you get through it I know how bad it is.
@@whitex9316 hey same as me when i move my head the room seems like it tilts or something or sometimes i feel like its moving do you have tips to help with that?
I feel the same if I can give you my number and talk to you please my name it's Juan
@@juancordeiro5507 I'm sorry hope you are doing better I've been dizzy for 2 years had everything tested but know I see a chiropractor hopefully this is the answer
@@lexi1536 can I given. My number I need somebody to talk that have the same problem for support please
Thanks for sharing that. Overall fantastic description of such a complex condition. I'm finding clinically that some of my PPPD patients are having unresolved neck issues causing this mismatch. Unfortunately you need a qualified manual therapist to help make that distinction.
Interesting you say that. I have a neck injury and am in pain daily because of it, and am also suffering from chronic dizziness.
@@polrbearzrsexy54 get that neck and inner ear cleared. Both relatively easy to do with a good therapists
@@thesportsclinic2160 I've been seeing doctors for both on and off for 6 years now but still have issues. Its better but still a bit of a struggle.
@@polrbearzrsexy54 what kind of doctors?
@@thesportsclinic2160 multiple primary care doctors, 4 physical therapists, 2 ENTs, and a traumatic brain injury specialist (who thought my neck injury was contributing to my dizziness). Ive had the Epley manuever, seizure test, MRI, and rotary chair done, all inconclusive.
The only thing that helped was some physical therapy and my TBI doctor had me used a laser attached to my forehead and a print of a bullseye attached to the wall 4 ft in front of me. I would start with balancing the laser in the center of the bullseye, close my eyes, and turn my head 90 degrees left/right and try to get back to center. Doing that was really tough at first, and made symptoms worse, but I think its what has helped me the most so far.
I had a leg surgery 3 years ago due to a bad infection. While in the hospital I felt quite dizzy and mentioned it but never went anywhere with it. I had hoped it would go away after awhile but still have it. Hard to describe, perhaps like having a few drinks and taking cold meds, or standing up too fast. Just feel spacy all the time, dizzy and not really in the world. I just got on Medicare Sept of 21 but have not been feeling well past few months and laid up in bed but hopefully I can find out something soon...
HI Rich, It sounds like you might want to get vestibular testing from an Audiologist or other practitioner to see if you may have a vestibular disorder. Write us at info@vestibular.org for a referral or other resources.
hi! i’ve been experiencing these symptoms for about 4 months now and this last week has been the worst it’s ever been. can it cause other things to look like they are moving too? for example when I walk I feel the swaying and rocking motions, but also see the things in front of me moving that same way too. like I’m on a boat. I’ve had a Ct scan, MRI, blood tests, EEG, EKG, all came back normal. thought it was my anxiety, started taking CBD and my anxiety has gotten better but the dizziness is still there and has just become sososo bad and so debilitating. idk what to do anymore, and I’m only 19 and have had to take time off of work because of how bad it’s gotten :(
I feel exactly the same however have two children who really on me. that is the only reason I'm still standing not giving up. it is SO hard. especially after clear test results. I have had a lot of the same Tests. do you know what you will do to try ease your symptoms? do you symptoms happen 24/7 ?
Do you feel pressure and heaviness, dizziness on your head or one side of head? And it is persistently?
@@nazlimehdili582 I do..With blurrd vision and hard to focus...I have now last flare..how are u? Are u better ? Do u feel like ur vision pulsating when u watch some point ..
@@princessofchina5237 i feel so good now. I think i am healed.
Hi. Really appreciate if answer. Did you have the feeling of floor shifting when walking? Like walking on the walkways at the airport. Or walking on the boat.?
I’ve had this serious vertigo starting when I was 12/13. Went on through school I would miss weeks of school because of this. After many years they said it was menieres. After 15 years I lost all hearing in left ear and was good. About a few years it started again and feel right side hearing getting worse. Many doctors are still not quite helpful and I’ve now been bedridden for two weeks. If you have any suggestions for Michigan area please reach out thank you.
Tracey - you can use our online provider directory to find a vestibular specialist in your area: vestibular.org/finding-help-support/provider-directory
Did u experience a lot of ringing in your ears
For about 3 years I have not felt normal. Ever since my senior year of high school (2019) I have felt off. That year I took two edibles both adding up to 150 mg of thc, and ever since then I have been feeling different. I had two stoney patch edibles and keep in mind this was the first time I was high in my life. I know you can’t directly overdose on THC or marijuana, but I don’t know if this excessive amount of THC especially for a beginner has something to do with the dizziness and vertigo I still feel today. The months and time that preceded this were some of the lowest points of my life as the dizziness and vertigo was unbearable as I was struggling both in school and while participating in basic activities I love such as working out and playing soccer. I could barely get any sleep as I would feel as if I was constantly rocking when laying down. Whether I was standing up, sitting down, or running I would constantly feel as if I was floating and as if the room and other things around me were constantly moving. In addition, I would have constant headaches and my head would feel like its spinning along with a constant beating heartbeat while I ran and was active in any sort of way. During this time period I had countless visits to the neurologist, ENT, and had done scans in the beginning and nothing unusual had ever seem to show up. Nothing unusual ever came up based off the results and I felt as if there had to be something wrong. Fast forward a year later (2020-2022), my past ENT doctor diagnosed me with vestibular migraines and I took medications like topiramate and other migraine medications. However, none of these medications had produced any significant improvements. However since the start of this all, I have seen some natural improvement as the beginning of this could be described as constant vertigo and dizziness throughout the day. Currently, I am doing better with my dizziness and vertigo, however, it still presents itself often. I play soccer at a competitive level and it has made participating in the sport a bit harder than it was before all of this. For example, when I play and run I begin to feel dizzy, light headed, and my brain feels like it’s bouncing with every step I take, especially when I’m running. I don’t know if this is PPPD or something else. Some mornings my neck even cracks a lot when I look up and I can hear my ears ringing when I flex my jaw. When I flex my jaw in the morning I can also feel it crack in my ears. This is also in addition to cracks I feel in the back of my neck when I move it in the morning. Throughout the day however these problems with my neck seem to go away, but the dizziness and vertigo is always present when I am either working out or playing soccer. Sometimes I do feel weird when I move my head up and down or side to side. I wonder if this event caused PPPD and because of this my brain still feels as if something is wrong and is trying to fix itself, hence why the dizziness and imbalance is present. If any would could help in any way by giving recommendations or advice it would be much appreciated! I am currently taking Neuratec for my dizziness but nothing has seemed to change or help.
Hi Jakob, I’m unable to answer your questions in relation to THC; however, it is possible that the initial problem lead to PPPD. Vestibular Migraines and PPPD are often connected and the same medications are used to treat both. You do have a good understand in that the brain is learning to rewire it’s self and I encourage you to keep active. Keep pushing through the symptoms, but not too much so you’re not over doing it. This way the brain begins to recognize this as normal. I also recommend that you see a specialist who has an understanding of neuroplasticity and PPPD. Please contact us directly if you have any further questions or would like help trying to find a specialist in your area at info@vestibular.org or 800.837.8428. We try not to discuss personal health information on social media.
I keep going so dizzy/lightheaded it just comes out of nowehere. Some days like today a lot worse than others,ears full feeling and absolutely knqckered all the time. Doctors gave me ear drops whoch have not remotely helped,had eyes tested and they are fine. Feel like my sight is one second behind when i move sometimes...all started after a lot of pain in ears after headset/headphone use! Please help
Does anyone have head pressure and head heaviness feeling with this? If so, what helped reduce these symptoms?
I feel this way. And it is in one of my head
same how are you now?
im in cronic sitation of dizziness for 2 years now; find nothing wrong in mri or ct; I PRAY FOR GOD THAT THIS IS MY ANSWER FOR END THIS
This dizziness vertigo remedy t.co/xFfs9TYvka has been a great help in my situation. Once I have my vertigo, I would really feel dizzy and also have exhausting episodes. This will make me nervous whenever I am driving my car or truck. In just 4 months, I have employed the guideline 2 times per day without fail and the effects are amazing. I haven’t suffered queasiness or dizziness.
Are you better now?
@@alexlee8639 ME OR ERIK
@@moshekol9080 do you feel better ?
Are you recovered?
what books can we read on this
If we go to the website are we able to find some tools and vestibular exercises there to help us out??. I ask instead of looking because my internet is going in and out at the moment and I cant pull up web pages in particular right now for some reason. 👎🏼 You have no idea how relieving this is. 💗
There are several articles about vestibular exercises on this page: vestibular.org/diagnosis-treatment. Please contact us at info@vestibular.org for more info.
Sarah G did u take meds
Can a cruise with very bad weather cause this? Ever since I got off my cruise about a month ago I've been getting light-headed and dizzy -- no vertigo and my tests for labyrinthitis were normal. CT, EKG and blood work were normal as well. I also have a very strong feeling of dissociation and disconnect from reality. I feel like I'm losing my mind ... can't take it anymore!
Check out this article about a condition called Mal de Debarquement, which can happen after a cruise: vestibular.org/mal-de-debarquement. Certainly, there could be other causes as well. I would recommend that you consult a neurologist or neurotologist. You can find a vestibular specialist on our directory: vestibular.org/finding-help-support/provider-directory.
U sound like me
Goldiney has anything helped, have u taken a VNG
I've been suffering from this for over a month now. Since I had a wisdom tooth pulled. Had my ears and eyes checked and taken two different different medications.
Everytime I move i feel unstable and unsteady. Like motion sickness. Its driving me fucking crazy. I can't believe how some of you have lived with it for so long. I can't wait to do what I need to do to get it fixed.
Could it be TMJ?
@@starlite7785 can that cause these dizziness systems?
@@lukefletcher9644 if you have TMJ or neck problems yes it could. Did you check your bite? You get jaw pain and vertigo from switching neck position?
Not really experiencing jaw pain anymore. I did at first. Pain in my temples sometimes and sore left ear
@@lukefletcher9644 is it more vertigo or dizziness?
I live in France nobody has found my disease for 4 years . One think i 've hydrops other no and she spoke pppd syndrom but i don't know where find a specialist. It's a recent disease. Can you help me ? Thanks you
I had an anxiety attack at work May 2019, after that I was light headed non stop, had real bad neck pain and I was exhausted all the time so I went on medical leave..2 Months later didn’t get any better and they fired me..On medical leave. I haven’t had a job since because I’m so light headed all I can do is lay down. Sometimes it’s not as bad and I can get up and move around for maybe an hour then BAM! I’m super light headed again..This has destroyed my relationship, and my life I’m suicidal and need help. I’ve got ever head scan and bliss test possible everything came back normal. I can’t provide for my kids or girlfriend and I’m basically a burden at this point. If I can’t be cured it’s no reason for me to be here.
Hang in there man. I’ve been dealing with the same(almost) thing for going on 3 years now .. when it’s bad anxiety about the worse case .. your not alone bro
@@Mr315679 more people going through the exact same thing as me. Going on 6 months with my symptoms. You guys continue to keep Fighting and stay strong. I know how exhausting and scary it can be.
@Mario Glynn stay strong and don't give up. Keep on Fighting🙏
Mario Glynn, stay strong brother! Your family needs you there with them regardless, your kids need you there regardless, don't let your thoughts control you like that brother, snap out of those thoughts and go hug your kids bro, I love you man and so does God!
It's most likely instability in your neck that's csusing this 🙏🏽
I always feel dizzy after every long walk. It's like the environment is moving away. does any of you know that?
I have PPPD and when I walk for a long distance and then stop, I get very dizzy and will most likely fall. Its like my brain is unbalanced with my body, it takes me a few minutes to stop, hold on to something and wait for the dizziness and nausea to calm down.
@@sylviekgirard do you do any exercises? Can you recommend something to me?
Yes, you just described symptoms I have when taking a walk. Sometimes, I feel as though I cannot stop leaning forward and even stopping from walking.
Whatever The Dizziness Is It Doesn't Go Away With Meds,Look Down At The Speedometer I'm Doing 110 Feels Like I'm Going In A Circle But I'm Not,Sitting Down Feels Like I'm Falling Off A Cliff Not A Chair,Then Fly At 500 On A Plane And It Feels Like On A Elevator But Going Down,Weird To Not Sleep For Days But These Help Meclizine,GM.
Can antipycotic cause dizzyness i took my meds bummped into a wall and woke up a couple of seconeds later with dizzyness.
I suffer from severe anxiety and been feeling lightheaded that comes in waves. Not so much dizzy where things are spinning more so in my head feeling woozy light headiness. Could Anxiety be the culprit doctor seems to think so
After my mom developed vertigo and dealt with a fall and concussion, the prescribed medication from the physician only made her exhausted and also nauseous. She tried this dizziness vertigo remedy within a few weeks, her dizziness was gone. I save your time to do the research on Google. The guidebook’s name is below.
I feel the same thing
@@moodymohamed9135 have u taken A VNG testing
100%. I’ve been dealing with it for 3 years. The stress disturbs your vestibular system. Once you calm the anxiety, it will pass. Unfortunately my anxiety comes back and the dizziness accompanies it. It sucks.
@@kathleencampbell7912 what is it
So can high stress and anxiety be the root cause of this? and whats keeping the condition going?
@Andi Vestibular Disorders Association why do most doctors say it’s anxiety caused can u help me out what can it be
@@marioavila9021 i don't know but it feels so real that prevents us to believing that it can be due to anxiety
What about taking zoloft and having vertigo.... Will it make me feel worse?
Hi, I am having below symptoms, please share your thoughts.
1. Feeling dizziness while walking always ( more in the afternoon than morning) and its goes away immediately if I sit down.
2. Sometimes have dizziness with sudden head moments on standing from bed, it will goes away in 30 sec.
Appreciate your feedback, thank you
I am having those symptoms you talked about since 2013 and I have consulted the neurologist a month ago but he said when the symptoms are too old, then they don't take it seriously. But the symptoms are bothering me in my daily life, while I drive, while I change clothes, while I cook, while I brush my teeth I get imbalanced, while I walk ...I can't go straight, and while I sit in front of computer whole day at work etc. But this doctor didn't take it seriously. When I told him how I feel, he looked at me as if I am a complete idiot, which was quite discouraging. Should I contact an ear, throat and nose doctor instead of....please suggest. I had got my head scanned two weeks ago, and I don't know how the scanning looks, I will get the answer from this dumb neurologiost on Monday 17/8. Can somebody please write to me if you had experienced the same issues, and what treatment did you get.....I will be really thankful.
There are many different types of vestibular conditions that can cause dizziness, imbalance, etc. Finding a vestibular specialist is key to getting an accurate diagnosis. What type of specialist depends on your specific symptoms. If the problem originates in the inner ear, you would see an ENT; if it is related to your nervous system you would need to see a neurologist. There are also sub-specialties, such as neurotology, which cover both areas. Please contact VeDA at info@vestibular.org so we can help you find the appropriate specialist.
@@neetanagi3819 any luck did u do a VNG test and are u taking meds
How was your test?
@@starlite7785 Hello there. Test was normal. They didn’t find anything suspicious. But I still feel the symptoms, not as aggressive as before , and I have developed an other problem too. When I sip my coffee my lips shaking a little bit, when I try to fake a smile, my cheeks flickers, I feel they shake, twitch and I don’t seem to control this feeling. Have you heard of this kind before. Shall I be worried? Pls. advice.
@@neetanagi3819 thanks for replying do you think it could be neck related?
Does anyone else go from laying to sitting and all of a sudden feel like you're tilting to one side and your body is light and your heart races? I also suffer from anxiety
@@andreevestibulardisordersa8140 thank you I thought that I may have this a while back but now it seems more sure! Sometimes I get attacks just sitting there doing nothing and all of a sudden the room moves and my eyes can't focus on anything. My head and body get heavy and I can't get off the couch. Those episodes last for about 20-30 seconds. Sometimes a minute. I'm exhausted after them
Yes! I have been dealing with a dizziness for a year now and it's like my entire body even my lips feel tingly or dizzy like it's so hard to explain but I cant work or live life normally because of it and I'm always told I'm fine at the doctors.
@@buckweatboby2240 Have you had vestibular testing done to see what is causing your dizziness? Please contact us for information or a healthcare referral at info@vestibular.org
This. Mine started with a sudden vertigo. It's been 4 years but the dizziness lingers. I feel like I'm on a rocking boat and it gets worse when I am looking at a computer screen or when I am mentally tired. I'm sick of this.
I was diagnosed with PPPD. It initially started with vestibular neuritis attack in my right ear. I felt dizzy, nauseous, unable to walk. Always had the feeling that i was swaying or like i am in a boat. The ENT doc gave me tests which are audiometry, vhit, vng, caloric test etc. Everything came back normal or near normal. But i still had that dizziness feeling. My doc told me that it is PPPD. What actually happens is that if you get affected by any middle ear infection or things like that you tend to be afraid; you become anxious; you restrict your motion and movement lest you fall on the ground; you always start thinking like "oh! What is going to happen?" "Will i suffer like this throughout my life?". This fear and anxiety manifests itself solidly as PPPD. your balance system stays normal or near normal but your neurological pathways become messed up. The treatment is :
Rest rest and more rest,
Avoid caffeine, smoking, drinking as much as possible.
Vestibular rehabilitation exercises
Watch comedy, laugh your heart out. It relieves the anxiety. Your doctor may prescribe an SSRI medication to relieve your anxiety but i prefer the natural way.
Go for walks with a friend.
Start practicing football in your home. Trust me it does miracles to your balance.
All the best.
Did you recover ?
@@8QQ8 I am at around 80%-90% fit. The doctor has advised me to continue VRT exercises for 4 years to be 99% fit. Hoping for the best
How are you doing now?
@@arin0207hi Arin. May I know did you have the feeling of floor shifting when walking under your feet ? It’s like walking on the boat… your help would be appreciated
I was a college student that got PPPD my Jr. year, and spent all summer recovering. I got back to 100% and was even training to do full triathlons by the end of my senior year. I graduated two years ago, but had a massive relapse even worse than the first time I had the illness. Its been almost 2 years with this relapse with not as much progress and the first time where I was symptom free in only 6 months. Is this normal? I've been taking the same SSRI (Venlafaxine) I was the first time, and doing Physical Therapy with the same people. Its putting a lot of strain on my relationships and job/ future schooling. What should my next steps be?
How are things Michael? I'm in the same situation, but I haven't tried SSRIs nor reabilitation yet. I hope you'll be able to improve again. Can you tell how long did it take for SSRIs to work for you? What kind of exercised did you do/are you doing? What kind of specialist recognized your illness? It is my understanding that there's a big psychological component in the problem, right? I've been like this for 10 days and I'm trying to understand what's going on. I'm not in the US, so I don't have access to a lot of treatments.
@@ErikvonStrongber for me the psych component is much smaller. I take venlafaxine ER. I will only take half dose of the pill by opening the pill, taking half the pebbles, then putting them back in the pillcase and taking it once a day. Use the pillcase, it is important for the extended release. Look up vestibular therapy exercises on youtube. The most important thing for me was to desensitize my brain to movement, so i did faster head turn movements, and a lot of walking as treatment. What worked for me may not work for other people, and it may not even work this time. If you can see a neuro otonologist. Its only been 10 days, so it may not even be pppd, just vestibular neuritis or bppv, so dont bet on it being pppd. Dont fight the diziness, let it happen and your brain will adjust for it to go away.
@@lamichael19 Did you have an MRI? Was there any physical proof of the damage your brain had gone through? Do things upset you more now? I feel like even things like horror movies can set me off. I'm a teacher and I find it really difficult.
@@ErikvonStrongber yes i had an mri. There was no brain damage. My mri came back very normal actually. Some people with pppd actually have more symptoms when they are nervous or have certain emotions. I dont generally have that issue, but now i get more symptoms when I'm tired or didn't sleep well the night before
@@ErikvonStrongber also, if you are taking any vestibular suppressants like benadryl or meclazine, stop them. Taking them can actually cause or make your pppd worse if that's the case. They will keep your brain from being able to retrain your balance systems even if your diagnosis isn't pppd and it a different vestibular condition
You don’t know how relieving it feels to finally hear what the condition is that I’ve been living with for almost one whole year now. I have had an MRI done, been put on benzos, anti-depressants, did a VNG test...all testing showed normal. But yet I have to get up and deal with this dizziness sensation every day of my life. It is draining and terrifying. I wish there was a magic pill that could help those with PPPD...it does feel good to know I’m not alone...but I need to know what I can do now to get rid of this feeling and get back to living a normal life. Any suggestions??? I’m open to anything!
Justin P , same here.. I don’t know how long I can live with this... I’m giving up..
Eli Yaeli Trust me, I feel like giving up too. Almost every day. But we have to keep going! Please don’t give up, friend. If you ever need to talk to someone...you can message me.
Justin P , All this sh*t started back in 2015. It always went away (not fully) but it’s back again (this hardcore session started around christmas time) I feel like floating , and my brain is just not working. I have huge derealization and depersonalization, and everything feels like a dream or a hallucination. I literally feel like I’m gonna end up crazy. It’s so intense. I just want it to go away. Trying not to give up but who wants to live like this? (Sorry if my english is all over the place but it’s not my first language)
I hope we will heal for good...!🙁🍀
Eli Yaeli I understand, buddy. I’m going through the exact same thing. It’s very debilitating and all you want to do is lay in bed all day, but we have to keep on fighting it! Even though it’s extremely difficult. I hope that we both feel better soon! ❤️
Hey guys please don't give up! I just haved the same thing and i'm so mutch better now! Please belive this can end... i will make a video telling my experience and how i'm better now i want to help people like us! Because i thinked i was die or to be crazy! Belive! 🙇🏻♀️
What if everything is normal EXCEPT balance? The test where you stand feet together, arms crossed and close your eyes - I instantly fall over and I don't even realize it until my dr catches me! its been 7 years off and on - i did have a couple years of a break but a 30 second BPPV incident sent me back and its been almost 2 years "on" again - I'll still explore this with my dr and get a referral but I wonder if my balance is def effected, would that mean PPPD can be ruled out?
Hello. Is it possible eye problems can cause this or changes in my blood pressure medication? This has been increasingly bothersome. It is a feeling of my brain trying being off when I'm turning my head, especially when I drive. Also, I'm not vibrant in my thoughts. It's like a dull feeling in my head, sometimes accompanied by pressure. Sometimes a little ache. But this has been increasing slightly over the last 5/6 years to where it's definitely not a 'mind thing.' It's definitely not all in my head.
i finally found an answer
Mando unfiltered what is it?
Do you feel like you are rocking/floating even when you are in bed?
@@8QQ8 yes does your mind make it worse, have you taken a VNG?
@@marioavila9021 no vng
@@8QQ8 that’s how I found out I had bilateral vestibular weakness, what else do u feel maybe I do as well, are you afraid of heights
Omfg...
I JUST found the answer, 17 years later. 17 years!!! It all started after I've almost been involved in an accident while on my bicycle. Boom! First crisis. Since that episode I had frequent debilitating non-vertigo dizziness. Few years later I had a lot of improvement. Nowadays I'm 99,99% free from it. I do, however, have a lot of health issues, ranging from motion sickness and GERD to osteoporosis and cardiovascular issues. I've had a intestinal issue when 2 years old. Since them I started having migraines and MAYBE vagus nerve started to be affected by intestinal imbalance.
Can anyone recommend me a good specialist in Belgium please? Thank you.
I have symptoms like this too. Whenever i dont walk and im in my bed, its gone. can that be pppd too!
I really feel only good when im in my bed. I lose like all symptoms in bed.
What is this? Im really loost.. 4 years with this Pain..
That's exactly how this has happened to me. It feels like I am on a boat and some lighting and flooring will mess with me but I make myself go in stores that do that to try and retrain my brain. I have been so scared. I'm glad I'm not the only one going through this. I have had all the tests they can run and they find nothing which I am grateful for but now I know it's not ME causing this like the doctor's keep telling me. They laugh at me when I ask them about PPPD and some say there is no such thing. I went to a balance center and she had just come back from a conference and they talked about PPPD and she said that's probably what I had. They gave me exercises to do and they were helping but then I got sick and it started all over again but I am sticking with doing these. I saw on a video it took a lady about a year to finally get back to normal so I'm not giving up.
Hi..Are u better now?
@@princessofchina5237 Nope
@@deannisbell159 u should check vitamin D and minerals in blood..do u have constant dizzines or they dissapear sometimes?
R u better an how did you do it , I’m been vertigo for 4 months now ,I feel like I’m on a boat
@@pigjones2724 I'm a little better. It's funny how I can be outside and work in my yard and go play pickleball and feel great and when I walk in my house the dizziness starts. I'm so sick of it but I keep going. How are you doing?
I feel dizzy all
The time. How long is going to last?
We hear you Peter. This thing bloody SUCKS :( We can only hope and pray that it goes away quickly. Best of luck to you.
Me too😭😭😭
@@sintija1685 me too cant live a normal life
@@davesraiders5519 mine got better after medication for the brain
@@sintija1685 what medication helped you ? I'm so tired of feeling like this
I have non rotational dizziness 24/7 . Does this come and go. Mine is constant even can feel it while lying down. Vestibular testting, MRI and labs negative (with the exception of both B12 and Ferritin deficiency which aren't causation).
What is TMJ. I have been having these symptoms. Lightheaded sometimes I think I might faint. My head feel like it’s Bobbing in the back of my head. Head always feeling swollen or pressure in my head. And it leaves me off balance with a headache. I thought I was doing better last week and out the blue at work I got light headed and I’ve been having a headache or swollen head since. I’ve also had MRI done CT scan done been to neurologist and ENT everything normal
Hi Angela, TMJ is temporomandibular joint dysfunction. There are specialists that can help with that issue. If you would like vestibular resources and info please write us at info@vestibular.org
I have been experiencing dizziness n frequent falls for 15 plus years. I need help. I had to stop working and living a normal life. I can’t take this life anymore. I emailed you guys but it says email is not valid. I just started doing some exercises yesterday and I don’t know if that is going to be a healing process. I had all test done and they come back normal and doctors say it’s all in my head but I know it’s not but send me help
Do you suffer from some anxitety problem or anything similar?
It might be chronic subjective dizziness. Get on a SSRI and do vestibular exercises.
Do some research on POTS (postural orthostatic tachycardia syndrome). If it’s dizziness with lightheadedness it could potentially be pots!
Hey guys please don't give up! I just haved the same thing and i'm so mutch better now! Please belive this can end... i will make a video telling my experience and how i'm better now i want to help people like us! Because i thinked i was die or to be crazy! Belive! 🙇🏻♀️
Tatiana Mendes how did you get help? Can you please share your steps as I am so desperate to feel normal again ugh it’s been almost 3 years now since my symptoms started
I have that stuff and had it for 7 years. The only thing that helps me is SSRI medication and it helps a lot. For you who haven't tested, test it
Scared to try ssris though
@@devfree4117 Scared of what? Completely harmless
@@Tuffeman it can cause depression
@@devfree4117 Don't know where you get that from but it treats depression, not causes it. Either way you could just try it and if it doesn't work in some monhts, quit. To me it works perfectly and it removes 80-90% or my pppv
@@Tuffeman im not depressed though, just anxiety
Can this cause moments of binocular double vision at all?
For a while I wasn't able to lay on my right side without feeling dizzy/disoriented. Now today I wake up and the dizziness is when I lay on my left side too and also when I put my head back. I have an appointment in 5 days with my ENT who did all the tests on me two years ago. Let's hope he can give me some answers. This is horrible.
Did you ever get any answers?
Hmmmm? sure wasn't an informative video. I suffer from PPPD and this video did nothing for me....sorry.
xxxDreamWeaver1958 at the end she directs you to the website to go to for further help and information...
I make use of medica cannabis for sleep. Can cannabis trigger it? I gotta mention that after I use cannabis I feel better. But the headlightness started 2 months ago out of a sudden. I woke up like that... Been to many doctors and got a diagnosis of vestibular inflamation. My MRI, CTs they are all fine. Can cannabis be the cause?
My life story of the past 6 months, after what may have been a bout of positional vertigo or labyrinthitis.......then a fall 2 months later.....everything this lady says in this video is me to a tee......anxiety is the boogieman. Been doing some VBT with little help. Hypnotherapy has helped a bit with anxiety as well as psychological counselling. Like the lady says, all my tests, scans etc.....all clear. So I went to see a specialist last week who offered up PPPD.....surmised that my ongoing unsteadiness is in part my heightened anxious state and a side effect of an anti-depressant (benzo family) I've been taking for 30 plus years. He intimated at a more effective medication (mirtazapine family)......this video has given me some solace.......that such a condition potentially exists and not all in my head. Thanks
Roni J Covino , are you feeling any better?
@@8QQ8 do u have the same
@@marioavila9021 i feel like i am in a moving car or on a boat constantly. Even when i am in bed lying down. My dizziness feels like if i were rocking/floating/falling/taking an elevator etcetc. My disgnosis is Vestibular Migraine. What about you?
@@8QQ8 bilateral vestibular weakness, what has helped you, taking meds? Do u get anxiety
@@8QQ8 what test did u get done.
Were can I get help I have been dealing with all this that you describe I think it due to picking at my ears for years with a bobbie pin..... Now im all messed up get elevated heart rate with dizziness at times vertigo every other week or so can someone please comment if they have these symptoms almost like if im floating at times when I walk!!! Thanks!
Brett, You can call us at 800-837-8428 or email us at info@vestibular.org for resources, healthcare referrals and other information.
1,5 Year now, there is No treatment, they say is stress/ anxiety related….. it takes time, I don’t know what to do….? I have all the symptoms like you guys, plus problems with my vision, like my eyes can’t focus, dizziness, walking on water/ cotton feeling, can’t be in supermarkets, like it’s to many things, colors, people moving, can’t walk/ see on busy patterns- like rugs or wallpapers, the rocking on boat feeling only stops if I lay down or sit still, I feel this fullness in my head and ears also. Wtf is this???
It’s hell !!!!!!!!!!!!!! What to do? Relaxing, walking to lower cortisol doesn’t work for me.
The visual disturbance that you are experiencing sounds as though you are having visual vertigo or supermarket syndrome. Here is a link to an article Visually Induced Dizziness - “Supermarket Syndrome” (vestibular.org/article/coping-support/living-with-a-vestibular-disorder/visually-induced-dizziness-supermarket-syndrome/). Regarding the rest of the symptoms you’re experiencing, we try not to discuss personal information over social media. May you please email info@vestibular.org and I can assist you further to try and locate a practitioner in your area to receive a diagnosis and reduction of symptoms.