FEELING ALL OF THE EMOTIONS-DAYS 76 and 77 OF TRIKAFTA (1/31-2/1/2020)
Vložit
- čas přidán 3. 02. 2020
- Over the past 24 hours I have been feeling all of the emotions. We are so very thankful and blessed to have our family, friends, and our CZcams family’s support. Thank you all so much and thanks for joining our crazy journey 💜💜
Donating an organ imo is the ultimate gesture of love. I am a blood donor and it’s a great feeling when you get a text that someone got my blood. You are lucky to have such great support around you. Shout out to your family and friends and all the love and hope from Sweden❤️🇸🇪
I couldn’t agree with you anymore I always said the same thing about donation. Your not just donating an organ or blood your giving life which is priceless!! Thank you I feel very blessed ❤️
Just said a prayer and will keep praying!
Jackson is adorable. :)
me too
Your channel icon is adorable too! :)< ^,,^ Do you like Kwazi and Uli's channel? czcams.com/video/boZRNgvLT8Q/video.html
Thank you so much :) and thanks for joining us
Hi guys, Please keep eating and keep your strength up. Your family and friends are wonderful for offering to be donors. Jackson is just the cutest. It’s strange how pets know when we are having a bad day and need extra support. ❤️
Hello!! Yes we are doing our best and eating much better this week than last week. Yes it is so funny how they can sense everything they are amazing pets ❤️
11:52 "Hello, Everybody!" sounded like Jill's brother did once or twice, I think! Maybe he should get the honor of being Jackson's voice model! ;) ^,,^ But I like Rosario's "baby voice" a lot, too!
Hahah thank you we will figure his voice out soon. Lol and my brother is good at doing voices so we will have to see where and whom his voice comes from. Maybe right now Rosario’s baby voice for him is fitting until he gets older hahah
13:00 I love the hoodie, Jill! :)
Thank you :)
Do you like red pepper flakes in scrambled eggs? Some people put Frank's or Sriracha on them !
I never tried them in eggs but I don’t like spicy stuff. I use pepper flakes when I cook sometimes and sometimes on pizza is good too
Does it help to mix or blend the yogurt with applesauce, Jill? I mean when it's hard to eat and you're not hungry.
Well I only use the applesauce to take my pills but I don’t think I would enjoy them mixed in picky when it comes to my foods mixing lol
Do you like Scandi shakes? I bet I would love the coffee ones!! :)
They are yummy been drinking those since I was probably 4 years old however there’s a lot of sugar and carbs so I been sticking to the ensure enlives. But Scandi shakes are amazing . I only have had the vanilla and chocolate never the coffee but probably delicious too
@@theazzarellicflife9856 I only had the strawberry and it was surprisingly strawberr-y! I do wish they had a lower sugar version, though. It would be good for the keto people then, lol! The high fat is good for taking the Trikafta, maybe. But the sugar not so good for many folks.
Are they thinking you might need dialysis until the transplant? I know it’s so scary but people that I know of who have had a kidney transplant have said they feel such a positive difference in how they physically feel afterwards. Just wondering if you have a common blood type for matching? Could your husband possibly be a match? You are in my prayers Jill and all your family also❤️
They don’t want to do dialysis unless we really have to. That is great to hear I am sure it will be a huge game changer in terms of how I feel. We will find out at the end of March if I have any matches from family members and friends. My husband is going to be tested as well. Thank you so much ❤️
Jill, do the kidney and pancreas transplants have to happen at the same surgery, and do they have to come from the same donor? Thank you. :)
I am not sure if they have to happen at the same time. I don’t think it has to but I think they prefer to only do one surgery. I am hoping to get a living donor and then the pancreas would have to come from someone whom has passed and is an organ donor 🙏🏻
@@theazzarellicflife9856 Could a living donor do both? They only need to take the tail of the pancreas. (I think)
What is the minimum amount of fat needed for a Trikafta dose, Jill? Thank you, hon. Love and prayers! 😊
There is not a set amount we believe at least 10 grams but higher doesn’t hurt :) sending you love as well