Cancer Survivor Story: Acute Myeloid Leukemia | McKenzie's Story | The Patient Story
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- čas přidán 24. 06. 2020
- You're looking for: Positive, pleasant, young voice
Human, simple answers to your cancer questions: ThePatientStory founder, Stephanie, talks with McKenzie Roy about her acute myeloid leukemia diagnosis, treatment, and how she moved forward.
My son was diagnosed with AML in 2019 at age 19. It was discovered because he had his wisdom teeth out, and it didn't heal. His initial WBC count was 108,000. It should have been between 8,000 and 10,000. He was transfered by ambulance to our local Children's hospital. They discovered that he also had cancer in his cerebral spinal fluid. He had 7 months of inpatient chemo, including bi-weekly spinal taps where they took fluid to test it and inject chemo directly into the spinal fluid. He has now been in remission for 3 years and is getting married this summer. He did not need a stem cell transplant, because the chemo worked for him.
Amazing story and wonderful to know he found love ❤️ too. Great to know.
Does remission mean its gone and you get old with it?
@@Nk_043 It means that there's no evidence of disease right now. It could mean he's cured, or it could come back. We're praying he's cured.
What kind of chemo did your son take?
@@AS-yz2izI hope you sons cancer never,ever comes back!❤
I have AML in remission right now. Im 55 years old and doing chemo 5 days a month for a year. You hang in there girl! Your age is a great advantage over your disease. You are gonna be just fine. Get out and celebrate your youth with loved ones and enjoy your life. You deserve to be happy.and somehow i know you will be.
I was on lorazepam and I would fall asleep while talking to someone and I was on it for 2 years and I hated it and finally took myself off it and I was so so glad!!!!!!! My family was very glad to!!!!!!!
What a sweetheart this young lady is! That must have been so tough for you, but obviously you had a lot of people who love you and supported you. That’s great! But it was still you that had to endure what had to have been a tough experience. You are all the stronger for it. You can tell what a sweet kindhearted caring person you are, not to mention a very strong person! I wish you continued good health and a happy joyous life! ❤
I have stage 3 lung cancer and am going thru chemo and radiation right now!!!!!! I have 1 week of radiation left or 6 days left and 1 round of chemo left bc I couldn’t have chemo last week bc my platelets were way too low!!!!!! But I am Very hopeful that it will all be over very soon and so are my Drs!!! My chemo Dr my radiation Dr and my lung surgeon Dr!!!!! My chemo Dr is the top lung cancer Dr in the country!!!!!!! I am so grateful for Dr Bansal!!!!!!! He is the best!!!!!
She’s such a strong person,hope she’s doing well.
Thank you, Ava!
amazing how positive she is
Hi Martin, I agree - McKenzie was a joy to get to know! -Stephanie
I might be a match for an AML patient for either a stem cell or bone marrow transplant. So interesting to hear experiences from people with AML. LOVE this channel!
Did you register to be a match? If so, thank you so much! So glad you've found us :). -Stephanie
@@ThePatientStory yes I did, years ago. So excited I might be able to help someone 😌
Hope you are staying healthy and cancer free❤
so strong!
She definitely is!
I’m very surprised there were no visitor restrictions due to the neutropenia.
So I'm going though it. I've been sick for 3 going on 4 months. I've been tested for every bacterial infection, on medication, and antibiotics and everything. Nothing is working. I keep getting these low grade fevers, horrible body pain, bleeding easily and very heavy periods. I finally get called back to the doctors office and they ran my blood work and seen my white blood cells are high but they didn't send me to the hospital.. they sent me home with antibiotics... Again. I went back yesterday for a MRI but they saw nothing like her.... At this point I'm going to go to the hospital. I've lost weight and have had these odd symptoms but nobody is taking it seriously
Yes! You should definitely let them know you worries. All those symptoms are not normal
I’m terrified if I have leukemia or not. Went to a hematologist yesterday because my monocytes were insanely high. Yet my WBC is fine. No symptoms but my doc mentioned possibly leukemia but he took vials to make sure it’s not that and I’m worried. I’m praying I’m okay.
Praying for you! Whatever it is, it will be okay, I promise 🤍
@@Norahungary thank you! ❤️
How are you now was it cancer if you don’t mind me asking ?
How are you🙏🏼
👍👏💯🙏🙏🙏
Im scared bc I think i have this.
I dont want to go to the doctor im scared
I totally understand the feeling. The sooner you go to a medical professional, the sooner you'll have answers. In my experience, the waiting and not knowing can often be one of, if not the, worst parts. -Stephanie
@@ThePatientStory thank you for your reply.
I wish you the best
I had AML and the sooner the treatment the better the results. Waiting is hurting you even more I hope this isn't the case though.
@@victoriasauceda83 great advice Victoria.
My brother in law also suffering from AML
I could not focus on what she's saying but all I hear is LIKE..... LIKE LIKE LIKE 🤦🏻♀️🤦🏻♀️🤦🏻♀️🤦🏻♀️