Sarcoidosis (updated 2023) - CRASH! Medical Review Series
Vložit
- čas přidán 11. 07. 2024
- For just $1/month, you can help keep these videos free! Subscribe to my Patreon at / pwbmd
(Disclaimer: The medical information contained herein is intended for physician medical licensing exam review purposes only, and are not intended for diagnosis of any illness. If you think you may be suffering from any medical condition, you should consult your physician or seek immediate medical attention.)
Thank you Dr.
I have sarcoidosis i found out a year ago i been having tumros on my hips for 12 years and they thought it was cancer and theu did blood and scans and biopsy and now i have sarcoidosis on mu lungs and hips and pelvis im so scared i have three kids someone pray for me i been given steroids and methotrexate and now im doing humriaa injections 💉 im freaking out and im veey depressed
May God bless you dear
I’m in the same situation as urs
Stay strong brother
I pray that God has healed you, taken care of your finances and he's protecting you and your family. HEALED IN THE NAME OF JESUS 🙏🏾🙏🏾🙏🏾❤️
Prayers for you, angels on special assignment to reduce stress and eliminate your condition.
Thank youu
Great!
In my younger years as a telephone cable splicer, I worked with a lot of lead, such as lead solder, lead tubes. I now have a PET scheduled to look at some damage on my right lung. The systems sound like berylliosis. All other tests have shown not to be cancer. I'm wondering if the lead may have caused this?
I've had Sarcoidosis for around 13 years it was in my lungs last they checked. I feel stiff sometimes and all of my tattoos on both arms it comes every so often never been treated with any type of steroids except the topical one which is to sloppy to put on the usually resolve in a month or so. Is this the lupus pernio
I have Sarcoidos Pulmonary Fibrosis. Cyra xxxx
I have had it, or have it, I should say. I doesnt really go away forever. I woke up one morning about 20 years ago, my ancles had swollen to grapefruit size, and I coughed with barking sounds, like a dog. Sweat was pouring. I was 27-28 at the time. I was rushed to the hospital. The examining doctor looked at me, then went to the door and shouted "hey, come look at this". One of the older doctors called it classical sarcoidosis. He told me that since I got it overnight, medication would probably fix me pretty fast. And he was right. I got massive doses of prednisolone and a vitamine D supplement. Symptoms were gone in about a week. It has since come back 3 times, two of them when I went on holiday to hot countries, after two days or so (I live in Norway, so I am not used to heat), and the 3rd time it was probably brought on by emotional stress. All times the same thing, ancles and lungs. So by now, I know that it will probably always be there, just waiting for some stress to occur.
*Title should say, "Crash Course."*
I have saracodosis had part of my lower lob of lung removed it damaged my eyes and mussels
I was diagnosed with stage 4 sarcoidosis, I was coughing up a lot of phlegm, eye running water a lot, no energy
my mom of 60 just got diagnosed with it :( took them 8 months to find out what it was she lost so much muscle :( not sure what stage yet still doing the testing family a mess right now cuz she so sick :( i need stop watching video like this but trying find more out what this is because grr :(
i have had it or 25 years STRESS REDUSE garlic high dose of C goldenseal mullen
I was just diagnosed with stage 2 June 28 it’s in my lungs lymph nodes and joints I have days that I just don’t want to do anything I feel like I’m running out of energy and always have pressure in my head I have had the cough since 2014 they kept telling me it wasn’t anything wrong but I kept pushing for test so I was tested for cancer and they found the sarcoidosis
Also common in people of Northern European ancestry. When I was diagnosed, I was confused (I'm not black American); but I *do* have strong Nordic genes.
One of my friend is suffering with sarcoidosis since 2018 which has effected multiple organs. He has started taking steroid medicines. Also, he got side effects of sarcordosis like onculor,dermao, kidney stones ,calcuim deffeciency....etc. Unfortunately he was involved in a legal case and there are possibilities of getting Jail Term. Is it Safe for him to suffer in Jail with this Disease and its side effects. Due to Jail, his health may go more worse ?
He has the same chance of anyone else of getting worse or better. No one knows. It's ridiculous that so few doctors understand this and put out bs information such as saying it "spontaneously goes away." It doesn't. It can go into remission but it can come back.
@@alouise3557 yes I have sarcoidosis as well at the moment I get stomach and chest pains and I'm now in a wheelchair. I got kidney stone as well but what I have been taking to stop getting kidney stones is 100 percent lemon juice every day with a straw . It does work for me .
My husband was diagnosed with pulmonary sarcoidosis November 2019. Now he has severe stomach pain. Constant diarrhea. After a ultrasound. They said they could only find fatty liver. My husband doesn’t drink alcohol. Could it be a misdiagnosis?
Yes, it certainly could be. Sarcoidosis is commonly found in the liver, and is often misdiagnosed as fatty liver disease.
request a CT scan. i had ultrasounds and x rays many times and nothing showed up. as soon as i had a CT scan they diagnosed with Sarcoidosis
Hi Kerry what you are saying about your husband . That's just like me in pain in the stomach and chest. I have had the illness since 2016 for me I'm getting worse. I'm now in a wheelchair. I wish you both well. All the best. Love from Scotland
@@scottferguson48 He was diagnosed with Sarcoidosis in November 2019. For the last year he’s been having really painful stomach aches. He had an ultrasound and they said he has fatty liver. We don’t drink any alcohol. I think it’s more sarcoidosis. The doctor said that not every ache or pain has anything to do with Sarcoidosis. I think the doctor is wrong about the fatty liver.
@@kerrysimpkin1026 thank you for your reply. I'm so sorry about your husband having stomach pain s. Yes it could be the sarcoidosis . It's the same for me I get chest and stomach pain s . I was work up to 2016 . I got sarcoidosis I got ill very quickly after that . I'm saying this in a kind way. About fatty liver... You don't need to drink 🍷 to have fatty liver. Yes it can be the sarcoidosis or if you put on weight that can also give a fatty liver.
Yes. Sarcoidosis can be very difficult for the doctors. I do understand what you are saying .. sarcoidosis can give you a lot of illness. I hope you and your husband are doing well. I wish you both well. Love from Scotland
Doc, my Pulmonologist said i don't need treatment unless I'm having a hard time breathing. Should i get a "second opinion"?
Mild sarcoidosis does not necessarily need treatment.
@@pwbmd I was aware that it can be considered mild if there are no symptoms causing breathing problems, but I'm having other symptoms like dry eyes/mouth, palpitations, suddenly getting hot, and night sweats. And I'm thinking they may be related to Sarc now. Are these things that Sarcoidosis meds can help? What kind of doctor handles the entire disease? A rheumatologist?
@@alouise3557 - Seeing a rheumatologist may be a good idea if you're having significant symptoms beyond just lung-related.
@@pwbmd Great, thanks doc. May the good deed come back around. God bless.
I have pain on my eyes and reddish as well optometrist said it was Episcleritis I told him I was diagnosed with sarcoidosis 5 years ago and just diagnosed with Marfan syndrome. had an abdominal MRI recently for something else but incidentally they found multiple Lesions on my spleen. going for a PET scan. Might be sarcoid acting up hopefully not the C word
Hang in there. My prayers are with you.
@@pleasantcrew thank you so very much. God Bless you
My prayers with you, be positive, it helps
How does one go about proving that it is sarcoidosis that caused cataracts, arthritis, nerves, and other symptoms?
The prednisone absolutely can cause the cataracts to form earlier and they can grow at a rapid rate. I work for an ophthalmologist been in the field for 13 years if i can help answer anything else let me know 😊
I have suspected sarcoidosis in my lungs and spleen. I was told I can't have a confirmed diagnosis till I've had I biopsy, though I've heard you can have a diagnosis if you have the all of the symptoms for Lofgrens syndrome. Lung and spleen biopsies are dangerous so my providers thought I shouldn't do it at this point. My granulomas show on my PET and CT scans. I have stage 4 cancer too. Sadly they can't tell the difference between the two since they look the same on pets.
sorry to take so long. I did not know anyone had replied. I have been fighting with doctors ever since I got this disease. That was over 3 years ago and they have not discovered anything new.@@NicoleMcL-to1hy
I was diagnosed with sarcoid before a biopsy. Your insurance does not want to pay for it. You have to demand everything from the doctors and insurance company's. Point out to the insurance company the difference in treatments and get your doctor to write a lettr to back it up. Start demanding help and do not accept what they say. Demand proof for any diagnosis. I give you a long list of things I have had to fight for. Even demanding them to walk me to show that I lost oxygen sats. I am now on 10L of oxygen.@@cherylf9788
@nicole
My vision becomes very blurry before especially if I have headache. I went to check my eyes but they just give me a reading glasses. After 3 yrs I diagnosed with sarcoidosis. Blurry vision is one of the symptoms. I dont have treatment yet until now. Besides it, I feel fine. What I can do with my blurry vision?
Awesome 👍 Also remember elevated ACE has poor sensitivity and insufficient specificity for diagnosis of sarcoidosis.
(“Diagnostic Utility of Angiotensin-Converting Enzyme in Sarcoidosis: A Population-Based Study”. Lung. 2016 Feb;194(1):91-5)
That is so important. Also, not all sarcoid patients have raised ACE levels. ACE spikes are less common in the extra pulmonary sarcoidosis that is more typical of chronic disease. In addition, NCBI reports that there is an inverse relationship between raised levels of ACE, and duration of disease, in other words, the longer you have the disease, the less likely it is that your ACE levels will spike.
Sarcoidosis can be challenging, but there are holistic options like Planet Ayurveda medicine that many find beneficial. Anyone here incorporating it into their routine?
First 😊