Rachelle's Success Story: 100% recovery from PPPD, MdDS, vestibular migraine - nearly 4 years later!
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- čas přidán 30. 07. 2024
- One tool Rachelle used to heal was the Curable app. Get 6 weeks free with my link curable.com/thesteadycoach (I am a paid affiliate now but have been sending people to Curable for years)
The course that outlines my approach, and contains lists that Rachelle mentioned in this interview- it is FREE: thesteadycoach.com/free-course
Wondering if people get better and STAY better? YES. I am so happy to bring you this fantastic interview with Rachelle! Rachelle was diagnosed with PPPD, MdDS AND vestibular migraine as well as several other dire illnesses, and she fully recovered in 2019. She is still doing great today! In the interview, Rachelle talks about what it was like at the time, how she recovered, how she's feeling nowadays, and what she does to keep herself healthy and happy.
Please forgive the audio glitch around 24 minutes- we were having bad storms and I lost connectivity! I was saying that dizziness keeps your nervous system in a state of fight/flight.
00:00:00 Intro and why this interview is special
00:03:20 About Rachelle and what life is like right now
00:05:00 Symptoms started around January 2019- dizziness, couldn't walk, vision delay, light sensitivity
00:09:33 Spinning vertigo began and she was diagnosed with BPPV- symptoms were soon 24/7 bobbing, swaying, vision symptoms
00:12:12 Saw 27 doctors and received 15 different diagnoses
00:16:20 What it was like to be told she had all these different disorders; tried migraine medications and antidepressants for a few weeks but they didn't work
00:20:20 Retrospectively it is clear that she was in a state of chronic stress, but no one dug into why and how this could be part of the solution
00:27:48 Her experience with functional neurology and vestibular rehabilitation therapy
00:33:19 The mindbody/psychophysiologic approach to chronic pain and applying it to her dizziness
00:38:00 Her first visit with a mindbody practitioner who connected her symptoms to her past experiences
00:44:00 She started by reading Dr. Sarno's books and Unlearn Your Pain by Dr. Schubiner & listening to mindbody podcasts
00:46:36 Letting go of being an "A+" student and lightening up on the push to recover quickly
00:48:51 The list of all the things she was told or told herself she couldn't do!
00:51:05 Using Curable and guided motor imagery to get back on cars, boats and planes - also got rid of her motion sickness!
00:57:32 How to go deep in journaling and to use the insights in a useful way
01:03:00 Why it's important to go into the past experiences that led to current day strategies
01:06:12 Recovery doesn't mean you should stop working through the events that led to nervous system hypersensitivity
01:07:56 "I feel grateful for my dizziness. It brought me to my knees. I had to look at my stuff. I couldn't keep pushing it down."
01:14:00 Her daily routine now for self care & the insights about people pleasing and "fixing" herself
01:21:06 Breathe, listen to yourself, trust yourself, don't expect to be fixed, and YOUR BODY IS MADE TO HEAL!
DISCLAIMER: Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk. - Zábava
I'm grateful to hear people's success stories. It's crazy how complex dizziness cases can get, like a massive web. Rachelle's story has me recalling when I was told by a primary doctor that I probably have Meniere's disease which I totally disagreed with and then I went to an ENT and asked if he thought I had Meniere's since the primary doctor thought I did and he said I absolutely dont have that disease and was frustrated by how doctors hand out that diagnosis way too often. If I didnt think for myself Id be walking around believing I had Meniere's disease and taking the meds the primary doctor was so quick to prescribe me. Thank God for the internet to help people like us seek the truth and root of our issues and to find doctors like Dr. Yo.
Keep working! you will get past all this!
@@isaacsubias7390 thank you! I sure hope I will but I'm a very unique case so I don't know what the future holds for my healing. I try to stay positive.
Thanks for this wonderful interview and all your work Dr.
My name is Manuel Londra, I’m 29 years old guy from Argentina, and have been with 24x7 dizziness symptoms since April 27, 2024.
I’m putting the work and will recover soon.
PS: tomorrow I’ll buy one Dr Sarno’s book.
Cheers!
Manuel
Bienvenido Manuel. Please be sure to see the two exercises in Spanish. Your English is excellent but it's always so nice to hear an exercise in your primary language.
czcams.com/video/VWfWstkImPA/video.html
czcams.com/video/n9r6YsMCuyE/video.html
Oh my gosh I can do relate to all she's saying...it was a way for my body to tell me you cannot be in control anymore.. Since childhood. I was my own parent.. Having the symptoms stops me from being in control and makes me sit and just accept that I can't do it all anymore..
Wow yes! My older sister says she feels like she raised herself (she’s just two years older) so yes , I feel that!
Thank you for sharing your story with all of us.
Almost 5 months into my VM diagnoses and your channel has been my go to. This made me feel so hopeful and I could really relate to some of the things Rachelle was saying, so thank you for this. I’m also on a healing journey and very slowly recovering, I’ve been in lots of doubt but your channel has given me some light. Thank you so much for all the great content. Mindset is something I’ve been struggling with but you’ve helped immensely with that. So thanks again! 🙏🏻
You're very welcome, Elleelle! I am so glad that you found this channel. It is truly my privilege to be able to share this information ❤
YaY!!! Looking forward to listening this today😊
Thank you so much for sharing your story Rachelle , so much hope and so encouraging for those of us still recovering , love these testimonies 😊
I so badly needed this video today. This is sooooo relatable .
Many thanks to you both for sharing xx
What an inspiring story. Thank you so much for sharing your incredible journey to full recovery. I am feeling so hopeful now. ❤
Your channel….omg…. I’m obsessed! ❤❤❤❤Thank you for all you do! I have tremendous hope that I have found what I’m looking for to lead me in the right direction to fully overcome this!
Amazing story!! This gives me hope! ♥️💜♥️
There is hope!
This was an excellent interview. It is encouraging to me. I’m only about three weeks into the tms journey. Thank you.
Recovery is possible! magnesium supplements help me a lot by getting anxiety under control
Dear steady coach- I cannot thank you enough for putting so much time and effort for putting these videos together and helping a community that just doesn’t know where to go.
Dear Rachelle, you touched me at the very moment that you mentioned your childhood, dysfunctional home and Capital T trauma. I resonate with this so much. Would not have even thought this played a role in pppd and Vm - had no idea this is what I would have heard but what I needed to hear.
I thank you so much for this. This has opened my eyes to so much and has opened a new way for me to think about treatment
Thank you so much for the kind words. It upsets me that this is not talked about in the vestibular field when there are so many other central sensitization disorders like fibromyalgia and chronic back pain that are CLEARLY linked to difficult life events.
Another great success story! Thank you!
I’ve been listening you for 3 months and find you so soothing and you make great sense.
I’ve always been in tune with my body, after a cruise motion stayed with me for days…or getting off of elevator. Have experienced panic attacks, have learned how to manage, work through it, took years of going through it without fear, or doing my best.
But I have been having a problem after going through chemo during the pandemic after being diagnosed with early stage ovarian cancer and did very well. Although getting chemo without my husband was difficult. He was able to be with me was the easiest. I had horrific response after my first chemo. The following were better with drug adjustments. I am amazed at how well I did. I was diagnosed with bipolar disorder, depression at age 37, I’m now 75. I’m taking medication, it’s been life saving.
I was so pleased that my mental state handled this stressful time so well.
I’ve had an MRI, all negative. Extensive Balance testing, all good with brain reaction to off balance and response. No vertigo.
But I’ve been struggling with internal tremors and a feeling of motion which is constant, waxes and wanes particularly difficult this week.
I’m listening to your semantic messages, deep breathing, pressure points for the vagus nerve and still struggling.
You give me hope and you make great sense with our minds being hypersensitive, sending the wiring being confused with its interpretation. I also have peripheral neuropathy, again the brain’s message interpretation is Out is sync.
I’m doing my best to manage, I have a good life but I didn’t expect to be dealing with other health prob after got an no sign of cancer 2 years ago.
I am grateful and doing my best to manage ignore my brains interpretation. I will continue with grate faith, I have to, it’s my only hope.
Thank you for your devotion to helping others. With much appreciation, Nancy Foster, Long Beach, Ca. ❣️😻
I am sorry you are struggling. You are not alone. Please consider going through my free course if you have not already thesteadycoach.com/free-course
Thank you Rachelle and such a huge hug and thanks to Dr Yo… she is the most amazing person… someday I hope to meet her…
THANK YOU SO MUCH
Wow, wow 100% me and literally what I’m going thru now, even down to having to take antibiotics which I had to with 2 courses of antibiotics recently and my dizziness going thru the roof again! Then I start again with the fear, frustration and emotions and searching on how to fix it and the why! and yes, poor hubby having to deal with my emotions again😢. Thanks for sharing. My mind and body re training will start today. ❣️🙏🏼🙏🏼🙏🏼🙏🏼
You can do this, Angie!
@@TheSteadyCoachThank you Dr Yonit for all the great work you do to help others all over the world and your compassion towards all who are going thru this challenging condition with their health symptoms. I’m so grateful to have found your you tube channel 🙏🏼
I just watched the interview with Dr Schubiner which has also helped me to understand and believe more in my recovering from this dizziness 🙂
Thank you again. Much love from down under Australia 🤗🤗
Inspiring story!
I love this video this is me cptsd awaiting an emdr therapist to work through my childhood so my brain can rest and heal. I went from having immense head pressure where I couldn’t focus or move around without extreme fear and emotion I did one somatic tracking session and the pressure lifted like mist. I am practising yin yoga now and regularly doing parasympathetic breathing and I’m now able to go out for meals without distress and I’m calmer in response to my sensations thank you dr yo you are truly one of the most beautiful humans
Wonderful, Rachael!
also I would love to hear a discussion with you and Joey of Rock Steady...it would be so enlightening
Thank you for the suggestion!
The verbiage used is so helpful . “ my world got very small very fast “ and the list of things you can’t eat or do …. I’ve been to so many doctors, at least 20 with no answers. Getting into curable now
Oh yes, my world did the same thing, plus I live alone so that made it even worse!
My chronic dizziness, imbalance, light headedness, head pressure has been going on for two decades…fluctuating in severity. However, i also have “CFS” with symptoms like chemical sensitivity, weakness, fatigue, etc”… does that sound like a totally separate issue or possibly related?
I also had mold exposure, chemical off gassing exposure and multiple head injuries…like your guest speaker.
I am really fascinated by your expertise! Loving your channel❤
Hi Monica, so glad that you are here! I have seen these symptoms related to mind body issues.
brilliant thank you🙏
You're very welcome, Nick!
Thanks
You are so welcome. I appreciate your support very much.
As I was watching this I was wondering if EMDR therapy would help, I’m so glad it was mentioned!
I had started doing EMDR not long before my balance symptoms started (I reacted to my covid booster). I’d love to know how Rachelle handled the eye movement whilst having these symptoms.
Thank you for sharing these stories.
EMDR is super helpful for resolving specific traumatic memories like a big bang attack, but not super helpful for resolving ongoing trauma and attachment wounds related to childhood. If you fall into the first category, totally worth a try. If the eye movements are troublesome to you, there are other types of stimulation like vibration and tapping that are used.
@@TheSteadyCoach Thank you so much for your thorough reply :)
My chiropractic did the muscle testing on me..the questions he asked told me alot...about traumas held into the body...it was very interesting...this was before the dizziness...I too grew up too fast...
I know you did, Janice...
so very kind of you Dr Yo.. I want to thank you from the bottom of my heart for all that you have done.. I hope your taking care of yourself. Your very important around here...I never really had a chance to thank you and tell you how much I appreciate you...❤
Thank you both so much making this video! Would you recommend starting with your free course or Curable? Or are they similar - and may be done simultaneously?
Doing them simultaneously works great. The course is comprehensive and says a lot of the same stuff, but Curable gives concrete exercises that are a really helpful tool.
Thank you so much for this Rachel. I just have a quick question, how did you overcome the visual symptoms. Did they just improve as you got better. I recently had a major traumatic event and had emergency surgery that saved my life and ever since I woke up from the surgery have had all types of symptoms. I’ve taken the amazing free course but feel so lost in how to move forward
Rachelle used a lot of journaling and she also mentioned the curable app. If you feel you need more guidance than the course, you can get a free trial on Curable at curable.com/thesteadycoach and it's $12/month if you end up liking it. Journaling is another powerful tool and there are prompts in our membership community and workbook as well.
I know she said she healed within a 10 months, but im curious did her rocking/swaying slowly subside over that time frame or just stop one day? Thanks so much for the recovery story! Gives us all hope!
Slowly subsided! With lots of ups and downs along the way!
I need to figure out how to cope with the downs! I’m a 2 year COVID long hauler and I have days of doing better and days when the dizziness is hell again
@@marlac.876me to after covid
@@marlac.876yup me too
I would love to know more about the guided imagery. Isn’t this the same as visualizing yourself healthy or visualizing yourself doing something you’re currently unable to do? Is there a difference?? How would you go about doing this imagery? I wonder if it could help me with all the symptoms I get being in the car and other things. Would really love to dig into this more!!!
Hi! It is more specific than just visualizing yourself healthy. For the car symptoms- you would specifically look at images of cars, sitting in the car, etc. sounds like Dr. Yo has some more detailed instructions, as does curable. ❤
Yes I second Rachelle’s recommendation for Curable! They have an extensive exercise!
Is it helpfull to take antidepressants on the road to healing from pppd and other things? If you are very low and anxious?
Ask Dr. Yo: Do I need to take medication to get better from chronic dizziness or PPPD? czcams.com/video/NLnSNCpewh4/video.html
Dr.Yo, The advice on spending money on these therapists, is really really great. I spent some thousands of euros ( I am in europe ) for nothing, they are kind of draining me. At some point, I realised that they are making me to get the treatment on purpose though that wont give me permanent solution. But it was too late to realise..I spent alot. I am glad I found Dr Howard first and then the pioneer Dr Sarnos..and you. My TMS journey just started. Many issues I have but this dizziness is the real devil of all..learning how to train my brain. Great videos. Whenever I feel low, J am watching your videos. Thanks for the great work. God bless you and your family
I am glad that you found the right team for you! It sounds like you are in good hands!
Are you from India
Same story for me ; I go from VPPB to Vestibular neuritis and cervico genic disease .
What is next ?
Hi Dr Yo,
I have a question. I understood how to do journaling like we have to make a list and write about one topic with a free flow but I am still confused about how to process through it..I mean after writing should I just feel the emotions that come up and destroy it or make some rational opinion on it and then destroy it?
Thanks a lot😊✨️
I discuss this in more detail in step 5 of my free course thesteadycoach.com/free-course
my eyes are go blurry and I am unable to focus with my eyes. yknow when you like purposefully cross your eyes, its like double/blurry ? well my eyes seem like they are doing that, and i space out a lot. Is there any fix to that
Stop chronic vision symptoms WITHOUT exercises (visual vertigo, jumpy vision, patterns & moving) czcams.com/video/o0F6n_QB4iU/video.html
I am working with this right now. The extra loop (pun intended) that got thrown in is going to functional medical doctors who did other diagnosis, like chronic lyme/mold/ebv, it makes harder to understand that it really is a mindbody syndrome. Yah hormones too. i do have gi symptoms though.
That is hard. Functional medicine practitioners are more openminded but still are very much in a biomedical mindset and will try to find a physical/biomedical explanation for all things.
yes thank you for the response
@@TheSteadyCoach
What did the last months of her recovery look like? Did the symptoms just go away one day or was it a gradual decrease until they stopped?
It was a gradual decrease with lots of ups and downs along the way.
Some sounds(noises) trigger my dizzyness or unsteadyness, dishes clink together and so on, can that be from pppd also?
Maybe. This could also be a sign of a medical issue so this is very very important to have checked out by an ENT doctor who specializes in vestibular disorders.
Can you please share some lino for breathing exetrcise., there is so much different videos on youtube about brething., i am lost. I am doing WimHof breathing., i love it. But wish to see something alse as well. Thank you a lot
Have you seen this video of mine? czcams.com/video/AUoRvDUtC68/video.html
I tried googling “guided motor imagery” but I keep getting “graded motor imagery” instead. Am I missing something? Really interesting video! It’s reassuring that other people experience the same things as I do. It’s sad and I hate that other are going through the same thing but it is less lonely me I feel heard when I heard other peoples’ experiences and symptoms. Thank you!
Dr Yo has videos of what you are asking about 😊
@@jackiegroden416 Thanks!
i know i told u functional neurology helped me with mdds but i only solely had mdds…its ok to feel the way u do, u r not wrong!🤪❤️ i still do daily exercises once a day now vs 3x then but im fine with it! but vrt did not work for me, only func neuro did!😳
Where did you do the functional neurology?
@@samia2604 in los angeles. i did it in florida for 4 months when i stayed with my parents too. it came back a little bit more persistently but this week its starting to fade away again.
Your videos are so amazing - dizzy for 2 years here with long COVID and so tired of all the doctors 😢
I also think Covid brought up dizziness for me. Have you started Yonit's course or are you using the Curable app?
Do you think COVID caused your vestibular issues
@@headtrips1 100000%
Me too, started last year from CV and have been this way a year. You are not alone 😢🙏🏽
Hello! I am curious if it’s would be possible to connect with Rachelle? Is there a way to do this? Thank you
Passed your email on to her!
Dizziness with everything possible ruled out is caused by mind body issues?? I just need to hear it again. I’ve had every test done, comes back nothing found. Have dizziness for 4 1/2 years brought on after stressful times. Recently the past two months I have developed neck and back pain that has me lay down more then I’d like to. Does this sound like mind body, neurocircut dizziness?
Yes, this pain can be mind body and you may be interested in this video as I discuss this topic more. czcams.com/video/1jYe4wWZGXw/video.htmlsi=xM8EOfVe399nLW6L
@@TheSteadyCoachso how long did she have the symptoms before she started her healing journey?
Do you do one on ones? Irma mess here and won’t do well in a group yet.
Yes, I do offer one on ones to clients from my coaching group, but I currently have a waitlist. You can view the different options I offer on my website thesteadycoach.com/
Dear Dr Yonit. What was the reason Charlotte could not read and watch tv etc what did she feel...dizzy? Or dizzy with eyes?
So I couldn't watch TV because balance gets unloaded on your eyes and my eyes personally couldn't focus and work together for depth perception along with loads of other problems. Long story short I now play video games for hours at a time and eyes aren't really a problem anymore I'm still not perfect though
@@sevn8757 Thank you!!! So you also had visual diziness / disturbances do i understabd this right?
@@ariannesmakman5639 yep its hard to describe, seeing things out of my peripheral vision, image burn in, things looked tingly or sparkly, depth perception and the eye focusing. It's all better now those things have gone away I just get dizzy sometimes still when I'm at work
@@sevn8757Hi!! Just 1 more question...my last and main issue is the processing problem with my eyes. So focussing is hard all they long. especially when i move or look at busy stimuli..i do go outside and do as normal things as possible..however, i am afraid of the sensation that i cant focus properly. How did you DO that...how did you manage to go on while you felt your eyes like this?🙏😊
@ariannesmakman5639 if you mean anxiety I started Lexapro 20mg. If you mean depth perception eye fatigue and headaches then Lexapro and just a lot of time.
There are a couple of places in my country that specialize in treating issues of vertigo and balance (They have all the equipment and everything). I got a hold of them and they told me they could not help my dizziness and balance problems. Go figure. Nothing to do with the insurance or payment cause we did not even get that far.
Wow, well, you're in good company here on my channel. Most people make their way here as a last resort after being told there's nothing more that can be done.
😢 not only do I have pppd but I had to hear my husband and find him after he shot himself in the head oh my gosh
I am so sorry, Dorothy. I know we have communicated before about grief hotlines and support groups available to you. Please consider utilizing them or calling 988 for immediate support. You do not have to go through this alone.
Honestly, believe that the Brandt Daroff is what caused me to get the PPPD. Just my opinion, but that’s where everything went haywire. Not to mention they had me performing it in correctly many many times over and over for several days until I was told I was doing it wrong.
I don’t think of exercises as causing this, but rather the stress and anxiety around not knowing what is going wrong, on top of already scary symptoms. Doing tons of exercises would increase your focus and attention on symptoms and make you feel worse.
@@TheSteadyCoachyes TERRIFYING 🫤I was given the Brandt Darroff because I was diagnosed with BPPV over the internet during the pandemic. It wasn't until vestibular therapy that I was diagnosed with BPPV posterior canal right side. Several weeks into therapy w/ no changes... what I feel is PPPD, started to kick in... And like you said, vestibular migraine was the very last thing I was diagnosed with and right away I felt it's because they had no answer of where this was coming from nor resolution for me. Have had it ever since 2years now. I have noticed over the last year and a half that breathing seems to have an effect but I just didn't know how to use it until now. Also, I have felt that my eyes have a lot to do with it. I went back to my chiropractor last August and that's when things started to improve. But I just can't kick it 🤷🏼♀️.
After watching your videos, I understand how it all is connecting!! I have hope! Thank you!
❤❤❤❤❤
My new symptom is full body feel weightless when walking I feel my leg is so light anybody feel it 😢
Various feelings when walking are common. You may be interested in this video czcams.com/video/FqT6ZFhqE0I/video.html
How do we get out of danger mode
Please consider taking my free course. I talk about this in depth there. thesteadycoach.com/free-course
@@TheSteadyCoach thank you
40:02 what she did to heal
Nicole always says you have to use feeling words, not just a narrative.
I don’t get it, how did she get better?
The journaling. The key to recovery is allowing yourself to feel deeply repressed emotions.
Wait, she had all those disorders?
She was given all these diagnoses. Most of them are "symptom based" meaning people are given these labels based on their symptoms, so many times people are given different diagnoses by different people. It's quite common for people with neural circuit dizziness to get more than one diagnosis, but they all basically mean the same thing: "You have unexplained symptoms."
I can’t eat bananas and avocados if you have chronic dizziness?
czcams.com/video/7w2L-F80Qgo/video.html
Whiplash is a concussion
That is incorrect. Concussion is a brain injury and whiplash is a neck injury. They can occur at the same time but they do not always.