I Thought It Was Just a Pulled Muscle! - Mike | Non-Hodgkin's Lymphoma (DLBCL) | The Patient Story

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  • čas přidán 9. 09. 2024

Komentáře • 113

  • @mermaidmama7880
    @mermaidmama7880 Před 13 dny +24

    I had NONHodgkins Lymphoma when I was 18yo, 1987. I did chemo and radiation while I completed a full load during my sophomore year in college. Two years ago i received a breast cancer diagnosis. I had a bilateral mastectomy in June and a 13 hour breast reconstruction on my 55th birthday. The breast cancer was likely caused by my radiation exposure when I was 18 fighting the non- hodgkin's. I don't ever quit, I never let cancer believe it can beat me, and my illnesses never define me.
    Never, Never, Never give up. 👊🏼Fight, Fight, Fight

    • @stacii834429
      @stacii834429 Před 12 dny +3

      @mermaidmama...Amen..amen...I pray for your FULL RECOVERY! MY UNCLE PASSED FROM PANCREATIC CANCER 2 YRS AGO.. AND NOW MY AUNT HAS LIVER CANCER.. SO, I AM ALWAYS GETTING A FULL WORK UP... TO MKE SURE... AND IF IT COMES MY WAY.. I CAN CATCH IT EARLY... IM ROOTING FOR YOU, HUN❤

    • @6Haunted-Days
      @6Haunted-Days Před 9 dny

      🤷🏼‍♀️yea ok and? We all die when we're meant too for one. Humans are so arrogant and ego obsessed.

  • @marimarxuach7180
    @marimarxuach7180 Před 29 dny +101

    Moffitt treated my husband for Hodgkin Lymphoma over ten years ago. He has been cancer free, thank God and Jesus. My prayers for you

    • @ken_in_atx9619
      @ken_in_atx9619 Před 29 dny +8

      Thank the scientists who worked long hours to create successful therapies. 🤦🏻‍♂️

    • @mariasant7810
      @mariasant7810 Před 29 dny +5

      ❤️ Moffitt Cancer Center

    • @reginacarrithers4454
      @reginacarrithers4454 Před 29 dny

      Hodgkin's and Non Hodgkin's are VERY different diseases. Hodgkin's is the best type of cancer to have (easiest to cure)...No Hodgkin's is 90% FATAL.

    • @PoissonDemiVide
      @PoissonDemiVide Před 28 dny

      @@ken_in_atx9619exactly 👏

    • @deirdrekiely6187
      @deirdrekiely6187 Před 28 dny +4

      ​@ken_in_atx9619 Agree. People thank God even though God lets many people die from cancer.
      Thank your nurses, your surgeon, your family ...all the people trying to give you the best outcome.

  • @user-vh8cb2hz5t
    @user-vh8cb2hz5t Před 26 dny +18

    Our Lord will free you from cancer and all this terrible illness . We just cling to our Lord . God bless you inmensely 🙏❤️

  • @deanawells4395
    @deanawells4395 Před 29 dny +76

    I feel so bad for all the patients that endured cancer through COVID. 😢

    • @BrooklynAlien
      @BrooklynAlien Před 12 dny +1

      Yes! My father and aunt, it was an extra difficult time to even see a Dr, get diagnosed and treated. Terrible.

    • @deanawells4395
      @deanawells4395 Před 12 dny

      @@BrooklynAlien I missed it by like a month. March of lockdown I was completely done radiation and chemo. Had a surgery on my back that was a mess with herniated disc on March 17th the last days before lockdown. At least I had 3 months of recovery with everyone home in lockdown.

    • @BrooklynAlien
      @BrooklynAlien Před 12 dny +1

      @deanawells4395 wow that's crazy! It's good you had time to recover. I hope you are all better!

  • @Steveoreno
    @Steveoreno Před 28 dny +66

    I just finished 6 rounds of chemo (rchop) at the end of June went for pet scan in mid July and learned that cancer has been reduced but still present.......now getting ready for 20 rounds of radiation starting next week followed by CAR-T therapy in September . So thankful that these options are available, thankful for my Nurse Practitioner wife who has been my rock, my family support, and the good Lord for watching over me during this trying time. Bless you for taking the time to post this video!

    • @sarahann530
      @sarahann530 Před 28 dny

      Why do you need medicine if the good lord is watching over you

    • @katentropy
      @katentropy Před 28 dny +5

      Twenty rounds of radiation is a real assault on your normal cells! Sounds like overkill to me but what do I know Please seek options or at least a second opinion on your scheduled treatment. Good Luck and May God Speed you on your oath to health and recovery!❤

    • @sarahann530
      @sarahann530 Před 28 dny

      @@katentropy Are you a Dr or do you just like to sound like you are online ?

    • @FrankHarrington-h7l
      @FrankHarrington-h7l Před 26 dny

      ​@sarahann530 Karen get a life! Are you always a !@#$%? Patricia Gambino Harrington

    • @AngiePerezTV
      @AngiePerezTV Před 26 dny

      Praying for you 🙏🏻

  • @alltimers_dizzies7311
    @alltimers_dizzies7311 Před 29 dny +37

    My cancer was found coincidently, almost the same situation. Had an X-ray for my back, they come back to tell me I just pulled a muscle but you have something on one of your kidneys that we need to investigate further.. Tumor on my right kidney the size of a baseball, wasn't causing pain and no symptoms, no blood in urine. they did an open manual surgery not the robotic type. Removed it with clear margins and that was 5 years ago and I had scans every six months, no chemo and they just released me and said I'm cancer free. I do have a hernia like bulge but I can live with that.

    • @ThePatientStory
      @ThePatientStory  Před 26 dny +3

      Thank you so much for sharing your story! We are so happy to hear you are cancer free!

  • @3piggypoms432
    @3piggypoms432 Před 17 dny +8

    I always hated the fact that anytime anyone has to go the hospital over covid times. Especially sick and dying they were all alone. You were a trooper. Noone should ever go through treatment by themselves. Good luck and never lose your faith Mike!!! Bless your wife for being a nurse and taking such great care of you!

  • @Mila_Brearey
    @Mila_Brearey Před 29 dny +31

    Mike, make sure to treat your pain. There is no shame in taking something for it. Anything to add to your quality of life.❤

    • @brookescott9598
      @brookescott9598 Před 28 dny +5

      Absolutely solid counsel, please listen. As a 4 time survivor of 4 unrelated cancers I know! The first 2, I thought I would "tough it out." Which I did. Unnecessarily making life worse for me and my family. During number 3 and 4 I had more sense😉. Amazingly, 24 years ago, my first cancer was Triple Negative Breast. Told 6 weeks to 6 months. Mastectomy and chemo. Then, a different CA in other breast one year later. So, another mastectomy. Then, 6 yrs later Endometrial CA. Surgery. Mayo put me in study. 6 years ago I had Recto-sigmoid colon CA. Surgery. Chemo. Miraculously, no colostomy. Anyway... here I am! Audience of Mike, if you have CA remember EVERYONE IS DIFFERENT! Remissions happen! Sometimes spontaneously🙂 Mike, the whole "Shoe Drop" thing is so true. That never goes away. God be with you.

    • @conniepitts8392
      @conniepitts8392 Před 28 dny +1

      ​​@@brookescott9598 why do people get the drop foot???????

    • @CGH250
      @CGH250 Před 21 dnem

      Agree!!

  • @emmainjapan
    @emmainjapan Před 28 dny +28

    Mike, you told your story beautifully. I hope for all good things for you and your family.

    • @ThePatientStory
      @ThePatientStory  Před 26 dny +3

      Thank you so much for your kind words!

    • @barbaramay5048
      @barbaramay5048 Před 25 dny +4

      ​@@ThePatientStoryMr. Edenfeild, My prayers are with you and your family, May God surround you with angels as you heal, from a watcher in Sylvania GA. .. and a lil tidbit, my dad was born in Effingham county, Springfield, have much family in Springfield, Guyton, Rincon and Savannah, Blessings to you Sir! 🙏❤

  • @malice6477
    @malice6477 Před 27 dny +19

    I was diagnosed with diffuse large B cell non Hodgkin lymphoma in 2004. I had a swollen tonsil that would not go down and had it biopsied. The scans showed I had it all though my chest cavity, both sides of neck, and some in abdomen. I also had rCHOP. After 6 rounds I still had some residual tumors and went back for 2 more rounds….so 8 total.
    You were very blessed to have your wife there ❤.
    The worst symptoms for me were fatigue, muscle pain, and constipation. Also my tastebuds were completely off….everything tasted like metal. I was also on neulasta. I gained A LOT of weight from all the steroids.
    I have been cancer free since 2006 it am dealing with after effects. I was 40 at the time and chemo put me in menopause. Now at 60 I have pretty bad osteoporosis. Also have heart issues…..I had a chest port/central line and the chemo was so caustic my Superior vena cava is completely occluded with scar tissue. My body compensated by creating collateral veins on its own to go around it.
    The chemo was brutal…..but it saved my life ❤

  • @staceyloke9872
    @staceyloke9872 Před 28 dny +21

    being rear ended and getting checked for my head found my lymphoma. glad you’re doing well

  • @deedeesmith3073
    @deedeesmith3073 Před 27 dny +14

    I went through chemo during Covid also. The nurses were so great .

  • @sandradalessandro2935
    @sandradalessandro2935 Před 29 dny +23

    God bless your wife!! And God keep u safe and cancer free I have the exact diagnosis been fighting lymphoma now two years. As mine keeps coming back!! Sitting in hospital right now with the new summer Covid. It will delay my current treatment. You are very strong person but so blessed by your faith and god sent you a wonderful partner. Stay well. 💜✝️💟🙏🏻☮️☮️✝️😷😷😷😷

    • @nancypatterson374
      @nancypatterson374 Před 29 dny +4

      Best of luck with your recovery, prayers to you 🙏🙏

  • @joanhenschel3511
    @joanhenschel3511 Před 29 dny +13

    Excellently shared with us, Mike! I'm trusting that the shoe will definitely never drop again. The Lord bless you and keep you.

  • @WdawgSmith
    @WdawgSmith Před 29 dny +11

    It’s really nice to hear that not all chemotherapy is100% horrible Many of us will eventually have to go through it and it’s nice to hear there is at least a chance it won’t be so bad

  • @heidi1651
    @heidi1651 Před 28 dny +9

    Such a sweet man. Wishing you the best. ✨

    • @ThePatientStory
      @ThePatientStory  Před 26 dny +1

      Thank you so much for your kind words! Mike is amazing!

  • @altabotha4525
    @altabotha4525 Před 29 dny +20

    You are a very compationate person. All the best for you and your wife ❤

    • @deirdrekiely6187
      @deirdrekiely6187 Před 28 dny

      It is spelled: *compassionate*

    • @ecduf
      @ecduf Před 26 dny +1

      ​@@deirdrekiely6187 which you are not.

  • @pam9231
    @pam9231 Před 17 dny +4

    So brave of you to share. You are a hero to me for taking the time to tell your story. Your strength & determination to get better will give so many people hope. Thank you for sharing the good & bad of your recovery. Best wishes & prayers to you & your family.

  • @lisamorris8859
    @lisamorris8859 Před 15 dny +2

    Hello Mike I'm glad you are OK, God was with you all the time ,thankyou for sharing your story x

  • @Gracie2la1
    @Gracie2la1 Před 18 dny +2

    Thanks for sharing your testimony!
    My mother had limphoma and she took chemo also. Thanks to our Heavenly Father she lived seven more years. Her kidneys collapsed a few years later and she died of heart failure.
    My prayers for you and all the people that are going through this horrible desease.

  • @3piggypoms432
    @3piggypoms432 Před 17 dny +3

    Mike thank you for telling your story. I pray you stay healthy and nothing ever comes back. You are a strong man. You and your wife deserve a nice long holiday. Keep up your faith and love. Sending you light and love from Calgary Alberta Canada.

  • @Gengingen
    @Gengingen Před 28 dny +8

    May we all trust in the Lord Jesus Christ. We are all going, some earlier some later, it is HOW we go that matters much more than WHEN, & I pray to God everyday to let us make use of the time here on earth to live & do things as per His wishes. That’s the best thing we can do to honour Him.

  • @talkswithkimberly1623
    @talkswithkimberly1623 Před 28 dny +15

    I had the same cancer, I am in remission, I’m told compleat recovery, 6 rounds of R-CHOP chemo was difficult.

    • @ThePatientStory
      @ThePatientStory  Před 26 dny +3

      So happy to hear you're in remission!!! We wish you nothing but the best!

  • @potssucculents
    @potssucculents Před 25 dny +3

    You made me cry with your adivse with the carer. I’ve been taking care of my husband who is suffering with Lung cancer for 9 months now❤…thank you for the encouragement🙏

  • @Angelhorselady
    @Angelhorselady Před 18 dny +2

    Thank you so very much for sharing your story and your feelings with us!
    My prayers are that God will bless and protect you and your wife and grant you many more years of love together! 🙏

  • @MelindaSoSassy
    @MelindaSoSassy Před 18 dny +2

    Your conversation reminded me of my experience. 10/28/2019 i had a modified radical hysterectomy for Endometrial cancer stage 3. 6 cycles chemo 25 radiation 3 brachytherapy treatments. During Covid, had to go to treatments by myself. It was hard. But remaining positive and optimistic helped. And refusing to listen to horror stories. In the words of my surgeon…time to get back to the land of the living. OMG thank you for telling your experience. Wishing you good health

  • @jonijenkins8006
    @jonijenkins8006 Před 28 dny +5

    Blessings to you and your family

  • @dawnhoughton4533
    @dawnhoughton4533 Před 29 dny +15

    I'm really surprised that he went to the hospital and they didn't do lab work for a heart attack? His lymphoma should have been seen on a CBC and Differential.

    • @roxysimmons
      @roxysimmons Před 29 dny +6

      Yes… I went in recently with what I thought was heart issues and they did full bloodwork.

    • @SpartanBlueJay2
      @SpartanBlueJay2 Před 25 dny +2

      Many patients with lymphomas can have normal CBCs prior to treatment. The really abnormal CBCs I’ve seen are more indicative of leukemias.

  • @sharonknight2938
    @sharonknight2938 Před 11 dny

    God can do anything. I am so glad you are in remission.

  • @user-qh2wb5ur4c
    @user-qh2wb5ur4c Před 28 dny +4

    Praise the Lord it was discovered thanks for the moving to the new house

  • @Katwinser1958
    @Katwinser1958 Před 29 dny +19

    I just found out that I have Invasive Ductal Carcinoma of the right breast. Seeing a surgeon tomorrow to find out what to do.

    • @joanhenschel3511
      @joanhenschel3511 Před 29 dny +10

      I'm sorry about your breast. May you be healed by our Lord asap. Thinking of you. Greetings from Mossel Bay in South Africa 🇿🇦

    • @mickieswendsen1302
      @mickieswendsen1302 Před 28 dny +7

      Me, too, 2 1/2 yrs post surgery/radiation. Now, take a chemo pill each day, gives me 'hot flashes'. NONE of the treatments have been very bad, even, not much pain with Lumpectomy. When it all started, I was TERRIFIED. Wasn't necessary. Exams/blood work every few months. Prayer kept me calm. And prayed for GOOD care and clinicians. It has never been as bad as I thought it would be. I'll be thinking of you.

    • @dawnmango5022
      @dawnmango5022 Před 28 dny +1

      Just breathe

    • @ThePatientStory
      @ThePatientStory  Před 26 dny

      We are so sorry to hear this! We will be thinking of you!

    • @carribishop
      @carribishop Před 18 dny +1

      My sister had this type as well as inflammatory breast cancer on the left breast. They did the mastectomy of the left breast and removed 10 lymphnodes. She was positive in 4 of them and was stage 4a. Three years post surgery, she had reconstruction done (she had a J flap). They gave her a tummy tuck, and used it to create her new breast. It was incredible! She's been cancer free since 2008 💟 Good luck to you on your journey to being cancer free!!!

  • @splash6427
    @splash6427 Před 28 dny +5

    🙏 ❤️ 🙏
    For You
    Always & Forever

  • @johnryan2193
    @johnryan2193 Před 13 dny

    God bless you, may you be well and free from pain .

  • @robertfield5904
    @robertfield5904 Před 28 dny +11

    Exodus 15:26,
    Matthew 4:23-24,
    cancer feeds on (eats ) processed and refined sugars and processed foods,

  • @AngiePerezTV
    @AngiePerezTV Před 26 dny +2

    Praying for you and your wife 🙏🏻

  • @perlarodriguez261
    @perlarodriguez261 Před 3 dny

    ! You are soo blessed to have a loving caretaker ! My exhusband was diagnosed with DLBCL...married with a psychiatic controlling narcissist. knowingly having a life insurance on him. I know she has contribute in keeping him sick in order to maintain control. How do I know this? My daughter visited for one day {Puerto Rico} and after taking 2 sips of the smoothie her stepmom prepared, my daughter became horribly sick. Before passing out, my daughter wrote a "goodbye" note stating that if she doesnt wake up, its because her step mom poised her. Thank God my daughter is ok... my daughter flew back home the next day. Have evidence of hair follicle results of arsenic which isn't enough to press charges especially in Puerto Rico. May the Lords Divine Justice be done... I continue to pray for my exhusband.

  • @cher4318
    @cher4318 Před 12 dny

    Thank you so much for sharing. We are just starting our chemo journey. I have no idea what to expect, but feel your words of encouragement already😭💙

  • @jimmywarren6685
    @jimmywarren6685 Před 29 dny +4

    Prayers for you, my friend!!

  • @jjcgrass
    @jjcgrass Před 28 dny +4

    You are blessed, ❤🙏

  • @magdavanderlith925
    @magdavanderlith925 Před 29 dny +7

    All the best😊

  • @kathleenmoore9534
    @kathleenmoore9534 Před 29 dny +17

    PHILIPPIANS 1:21 " To live is Christ to die is gain".

  • @Dublin1008
    @Dublin1008 Před 29 dny +3

    All the best for you ❤

  • @doriasalmon4790
    @doriasalmon4790 Před 2 dny

    “ I can’t wait for time when my wife can retire and we spend nothing but time together “… I hope she can retire now and you both spent time together now, do not wait or put off if at all possible
    I feel confident you will have a good positive outcome and healing but please be spending your time together now if she can find a way to retire now

  • @NikiLivi5
    @NikiLivi5 Před 10 dny

    I’m so happy you are cancer free! I hope you and your wife live out a long happy life together. Cancer should have been eradicated years ago. It’s sad money means more to those in the govt & companies than actually saving people. We lost my mother in law 2 years ago after a 5 year battle. She got it the first time & beat it. It came back so the cancer doc recommended she have her colon removed but at her age it would leave her with a colostomy bag. He was convinced if she did this is would not come back and she would be free to live the rest of her life. She would need a preventative dose of chemo every 6 months but that should be it. Her mother in law had one and she helped take care of her in her last days. She told after her diagnosis that’s the one thing she’s always prayed she never had to have. I know it was hard for her to come to terms with having one. But the doctor reassured her she wouldn’t ever have to see his ugly face again. 😂 His words. So she reluctantly agreed. I know she had a good cry alone before they did it. I couldn’t have asked for a better mother in law if I’d tried. She was the sweetest, kindest, most loving, fun, loved to laugh, loved to just have a good time, hardest working, most selfless, most protective, most giving, good Christian woman I’ve ever met! She always said I was the daughter she never got. She wasn’t just my mother in law. She was one of my best friends and someone I could tell anything. She always hugged my neck and told me she loved me. She treated me like a daughter and just as good as she treated her son my husband. He was an only child and a momas boy.

    • @NikiLivi5
      @NikiLivi5 Před 10 dny

      Once we went thru something that really put our marriage to the test. I told her what had happened & she took my side. She also told him he knew better and he was raised better. He was ashamed and upset he’d disappointed her as well. He had no idea he would hurt more than just me. That he hurt his kids, we have 5 and he hurt his mom & my mom. But she told me I could talk to her anytime and she would always be here for me. She meant it when she said I was the daughter she never had. It took awhile for her to get used to the colostomy bag and to learn when to empty it, the best way to do it and how to discreetly dispose of it. At first she wouldn’t go anywhere afraid it might make a sound because it she had gas in her stomach it came out into the bag and still sounded like someone passing gas except she had zero control over it. She didn’t even know when it was going to happen until she heard it. She learned to keep it muffled. She talked to the nurse about it and they had some tips & tricks they’d been told by former patients. It helped a lot. One night she woke up not long after the surgery and somehow it had gotten unhooked from the place it attaches and had leaked out all over the bed. She was mortified! She woke my father in law up to keep him from accidentally rolling over and getting any of it on him. He said she was balking her eyes out and was so embarrassed she wouldn’t even look at him. He’s not the caregiver type and most of the time he’s a grouchy old man. She later told me when he saw everything & her he told her not to move and cleaned up every bit of it and even changed all the bedding, cleaned her up, and changed her bag for her. She was so surprised because he wouldn’t even change my husband’s diapers as a baby. He was watching him one day while she ran to the store to get a few things. She said he came inside the store to tell her he stunk and would she come to the car to change him. She followed them out and changed him then they went back home till she got back. But when she was having a hard time he somehow pulled himself together and was able to clean it all up even her. She said she’d always been the one to clean up any messes but when she needed help the most he was there for her. After about a month she had things all figured out and was able to go visit family & go back to church. She rarely ever missed church. We all felt pretty confident that was behind us.

    • @NikiLivi5
      @NikiLivi5 Před 10 dny

      She was the only person I had that could & would keep our kids if we ever wanted to go anywhere without them. My mom could watch them thru the day until my twins were born. My mom had an almost fatal car wreck when I was 15. The ER doc told me & my little sis she wouldn’t make it thru the night. When she did he told us he wasn’t trying to be mean but he didn’t want us to get our hopes up because even if she made it a day to a few days there just wasn’t any way she could make it very long. Later that day he sent her to the icu. My grandma & uncle wouldn’t let me see her because she looked so bad. She had a seizure and the car ran off the road into a small ditch just deep and wide enough for the tires on the car. We think she jerked the car to the left trying to get it back onto the road but instead it flipped her out onto the pavement then the car landed on her. She was in the backseat trapped. 4 young lanky teenage boys heard it then saw it because it happened in front of their house. They yelled and told their parents there was a bad wreck & to call the ambulance. This was 1991 and we didn’t have 911. While the parents called the boys came out to help. My stepdad I call my dad is a veterinarian. He was behind her in his bronco because he’d had it worked on and they had picked it up. He was able to get far enough under the car to be able to hold her airway open. It broke every bone in her face and she was drowning in her own blood. Without him she never would have made it till the ambulance could get there. The boys tried lifting the car onto its side to give him more room. It didn’t budge the first 2 times. The oldest boy told them let’s pray & bowed his head. He said, Dear Lord we can’t do this on our own. We need to lift this car so this man can help his wife. Please Lord when we count to 3 give us the strength to get this car off of her. In Jesus name amen. He looked at the other 3 and so ok on 3 you give it everything you’ve got! They all got into position. He counted and on 3 he said, GO! At first nothing happened. But then it slowly started moving. He grunted and cheered them on. He said come on guys! We got this! No the Lord has got this! Please Lord more more more! Lift this car! We believe in you! Praise the Lord! The car kept going until they had it completely off of my mom and on its side. My dad was crying which I’d never seen him do and he said thank you. While 2 boys stayed with him the other 2 went to the house and got him something to drink and some paper towels to wipe his sweat and any blood he needed to. It was May 1st in the Deep South so it was hot and humid. Long story short on day 3 my grandma & uncle made me go tell my moma goodbye because she was going downhill.

    • @NikiLivi5
      @NikiLivi5 Před 10 dny

      I was terrified because they’d told me how bad she was. I went but the second I saw her from the hallway in the NICU I ran. My uncle caught me & said I have to tell her bye. But remember she can still hear us. I stood in the hallway balling for 10 minutes trying to stop. Her head was swelled up 3 times its normal size. She didn’t look like my moma. She had a tube in her throat breathing for her. Her hair was red from the blood. She had yellow spinal fluid in her right ear draining a tiny bit from her brain swelling. They had wired her mouth shut because it broke every bone in her face. She had knocked out 6 front teeth so she had a bloody mouth and at that time just nubs where her front teeth were at the gum line. There were tubes and monitors all over her. To this day it’s still very hard to look at the pic of her my grandma made. She documented everything in case she made it because they gave her meds so she wouldn’t remember the wreck because it would be so traumatizing. But they had all given up hope she would make it. I hadn’t. And I wasn’t going to. I finally went in her room which had a glass door that was always partially open. In the main NICU area was the 15 worst patients. A round nurses desk so they could watch a monitor for each room or actually look into each room. They called the rooms pods. I walked up to momas bed and saw her little hand laying there. It looked like her hand so I just looked at it. I put my hand in hers and held her hand. I said, hi moma. It’s me Nikki. I love you! You’ve had a bad wreck moma. You flipped the convertible cavalier. And it landed on you. The er doc told me & my sis you wouldn’t make it thru the night but you did. They brought me in to tell you goodbye because you aren’t doing so good. Moma they don’t know you like I do. I know you are a fighter! I know you won’t leave me! If something happens to you I have to go live with my sperm donor. You can’t leave me! Moma I won’t make it there. I’ll run away before I live there. I don’t care if someone kills me! I’m not living there. But if you show them and fight I won’t have to go there. Moma I love you so much! Please don’t leave me! Moma they think you are dying. But I know you wouldn’t do that to me. I can’t handle that. Moma I’m holding your hand. Do you feel me and I slightly squeezed her hand. She hasn’t shown any signs of life since she got to the hospital. I told her I know you are still in there and I know you are still with us. But they’ve given up on you. They aren’t going to fight for you anymore. Unless you show some sign of life. I know you don’t feel good and you are tired but I need you to show them you are still with us. Moma I love you! If you love me I need you to squeeze my hand. Moma you’ve got to squeeze my hand. Please show them so they won’t give up on you. I felt a tiny jerk in her hand. I looked at it closer and thought please Lord don’t let that be all she can do. I told her moma I love you! Show me you love me too and squeeze my hand. Then I felt a tiny little twitch then slowly she started squeezing my hand and she kept going and going till she was squeezing my hand hard. I raised our hands up to show my grandma and uncle and said see! She squeezing my hand! I told y’all she’s still here! She’s not going anywhere. My grandma screamed being shocked, excited, and happy. She thought she was gone. I told moma I love you too! It’s ok they saw. Rest right now and her hand went limp. I told her but when the doc comes in you have to do it again or he’s giving up on you. He wants to take you off the ventilator. Moma you can’t live right now without the vent. I need you to rest now but when he gets here you’ve got to do it again so he will keep helping you. I put my other hand over our hands and told her I’ve got you. I’ll never give up! My grandma & uncle had run to the nurses desk and were yelling so excited get the doctor! Get the doctor stat! My grandma & mom were both nurses.

    • @NikiLivi5
      @NikiLivi5 Před 10 dny

      It took him a few minutes and when he came in while looking at her chart started telling me because it was my first time in there that a lot of times patients even right before and after they die will have all sorts of twitches and a lot of family will think their loved one had moved when it’s just an involuntary move. I had gotten mad. I was a good kid who did what I was told, respected adults & people of authority, said yes mam no mam yes sir no sir please and thank you. I never was disrespectful but in my mind he was being disrespectful by discounting what id said and felt. It was also a very emotional time. I’d been told for 3 days my mom was going to die. I knew that meant I had to live with my sperm donor and my stepmonster along with my stepbrother who was 3 years older than me & stepsister who was my age that her first day at our school before my parents divorced I introduced myself because she didn’t know anyone and was keeping to herself. I was the kid that made all new kids feel at home. I could instantly tell which group of kids they would fit in with. It just happened to be the popular kids. My friends. So I told her I’d like her to meet some people. She followed me to the front of the class. I introduced her to my friends. They instantly hit it off. Then she said some snide remark about me & she laughed about it. She put her back to me & acted like I didn’t exist. She was a mean snake in the grass and I couldn’t stand her after that. She and my stepbrother would make jokes about me & laugh at me. My step monster verbally, emotionally, and mentally abused me. She would buy my stepsister & my little sister high end name brand clothes, shoes, hair products, and makeup. Then she would take me to Walmart and tell me to hurry up and get what I needed. Then she would make fun of me for using having and wearing Walmart stuff. Like I had a choice. I knew I’d never make it over there. But at that point I needed that man to believe me so he would give my mom everything she needed to do well & so she could recover as fast as possible. I looked him dead in his eyes and said, my mom & grandma are both nurses & my step dad is a veterinarian. I’m not an idiot! I know the difference between an involuntary jerk and a deliberate movement! It doesn’t take a genius to figure it out. Now if you would stop talking and give me a minute to show you then maybe you will believe me. Btw, did your parents not teach you any manners?! I’ve been told for 3 days I’m going to lose my mom. Then you talk to me like I’m an idiot before even letting me show you. Didn’t you take an oath to do no harm! Shouldn’t you not look for proof of life before just writing someone off! Seems to me if you tell a family especially a child their mom is dying and you are pretty sure she’s already gone should you not have proof of that first?! He looked at me dumbfounded. I guess he didn’t realize children can be smart as well. Then he got it together and said well then would you like to show me this so called proof. I looked at him like if looks could kill he would be dead! I told him I wouldn’t question anyone’s proof until I’d seen it first. When you assume well…….you know the saying. Then I looked at my moma’s hand I was holding. I told him be patient this may take a minute as she’s tired and hurting. It takes a lot out of someone to recover from something this traumatic. Then I look back at my mom & say, moma. Moma it’s Nikki. The doctor is here. He thinks you are already gone. He thinks what I saw and felt you do was just an involuntary jerk. I told him I’m smarter than that and I know the difference. He assumed I’m just some dumb kid. I knew if I made her mad she would respond faster. I told her I told him different. But he doesn’t believe me. Moma you know I don’t lie and I’m very smart. You’ve got to prove this to him. He’s ready to give up on you. And he doesn’t even have any proof that you aren’t there anymore. Moma he should be able to prove that before telling a kid their mom is going die. He doesn’t know you like I do! You are a fighter! I know you are! Moma we’ve got to prove this to him! He’s not going to stay long so we don’t have much time. Are you ready? I need you now! You’ve got to show him! Ok moma I love you so so much! If you love me squeeze my hand. He’s looking from the other side of the bed. Nothing. He has this look if I told you so. I wanted to punch him in the mouth so bad. I looked back at her hand and said, moma! Moma are you listening? The doctor thinks he’s right. He’s gong to leave. He doesn’t think you are with us anymore. Please moma! For me! I know you are tired and it takes a lot of energy but I really need you to do this one thing right now! Moma I love you! If you really love me show me! Squeeze my hand as hard as you can! Please moma! Then it started slowly but not as slow as before. I said yes moma! You are doing it! Don’t stop! Keep going! Squeeze it hard! I hold our hands up and she’s killing my hand. I excitedly say, does this look involuntary to you! He yells NURSE! She runs in & he gets his pen out and starts writing as fast as he could go and telling her we need to get this this and this. Set up this this and this. He kept gong and going. I patted moma’s hand and told her you did it moma! You did it! Thank you! I love you! I know that took a lot so rest. You can rest now. You did so good and I’m so proud of you! You’ve got a long hard road ahead of you and you are going to have to do lots of other things later. But you can rest right now.

    • @NikiLivi5
      @NikiLivi5 Před 10 dny

      We’ve overstayed our time but I promise we will be back and I kissed her hand. After that the doc called for me a lot. She couldn’t write because of the nerve damage on her right side and she was right handed. But she could mouth the words. No one could read her lips but me. When she would get frustrated because they couldn’t figure out what she wanted she would kick the footboard of the bed over and over. Then her bp would go up and machines would start going off. They had to calm her down and the only thing that worked was me. I spent more time in the icu than anyone else did. That doctor learned my name and anytime he wanted her to do anything he would tell the nurses call Nikki before we even try because she won’t do it for anyone else. I even got to be the one in the room when she took her first steps and learned to walk again. I did have to live with my sperm donor till she came home and it was pure hell but I did get to visit and spend my weekends with her. She stayed 73 days in the hospital. Her mouth stayed wired shut for 5 months. We just blended up everything for her. She came home in a wheelchair because her balance wasn’t good enough yet. I had to help her take a bath. I had to wash her back and legs and shave her legs for her. Until she learned how when she went #2 I had to wipe her. The first time she cried and apologized. I told her to stop it then I asked her how many times had she wiped me as a baby? She said I have no idea. I told her to think of it as pay back. I told her let’s talk about anything but this and I’ll just do it. I reminded her that this was part of my deal with God and He’s just making sure I’ll hold up my end. I prayed after the doc told me my mom wouldn’t live thru the night that if God would let me keep her I didn’t care if she was a vegetable as long as I got to keep her. I’d take care of her and I promised I’d never complain. He let me keep her so any time I think of complaining I remember He could have taken her home and I don’t. Once her wires came off I had to feed her till she learned to hold her hand steady & learned to hold the silverware. It took about a year for her to learn everything but by the end of the year she was walking with only a cane & was driving again. She went back to work for a few months but fell in some gravel at the hospital delivering bloodwork for her patients. She fell on her face. It knocked out 3 of her implants. My grandma told her not to try to work again because it took her 2 & 1/2 years to get disability and was turned down the first time even in the shape she was in. Then after she got hurt my grandma had to fight tooth and nail to get her back on it. It was ridiculous. She is 71 and lives in apartments for the elderly and disabled. She has an aid that comes 7 days a week for 7 hours a day. She helps her get a bath, does all the cleaning, runs her errands and anything else she needs done. She is using a walker now and isn’t driving anymore but is still a spitfire. She’s very independent. So that’s why my mommy couldn’t watch my oldest 3 but only thru the day.

  • @jacqwerner7919
    @jacqwerner7919 Před 17 dny +1

    I was just wondering did they do a genetic biomarker test on you prior to your treatment? I'm so happy for you that everything has worked out and that you're doing well God is definitely good. I do believe having faith is sometimes the best medicine.

  • @randyk7249
    @randyk7249 Před 28 dny +3

    I’m 57 gave double blood two weeks ago since then been in back pain not feeling well I’m not sure if overthinking or stress I guess I’ll wait another week hopefully it go away . My dad passed at 63 cancer and mom 67 any advice be appreciated. God bless

  • @danawilliams2450
    @danawilliams2450 Před 15 dny

    Sending prayers and hugs 🫂

  • @ClearwaterKB
    @ClearwaterKB Před 9 dny

    My dad thought he had torn his rotator cuff and was sent for a scan. Within hours he was sitting in an oncology office with a plan to start treatment by weeks end. It has been a little over 3 since since he completed treatment. He did suffer some permanent nerve damage from the chemo and has developed an essential tremor.

  • @tannniel
    @tannniel Před 10 dny +1

    I am on kidney dialysis and now the Doctor tells me I have kidney cancer. I just don't understand why? When the kidneys are not even working. Would it have made a difference if I had taken it out from before. I was telling them to take it out for years now.😢

  • @alicecoppers8980
    @alicecoppers8980 Před 24 dny +2

    Dr Steffanie Senf MD from MIT has done 35 years worth of research on Non Hodgekins lymphoma and she proves that Glyphosate causes this disease and by what mechanisms.

  • @CuriositySavedTheCat68
    @CuriositySavedTheCat68 Před 28 dny +6

    The mother of one of my best friends was diagnosed of same cancer. May be a connection to the Covid vaccine according to recent data analysis

    • @taylorthechemist
      @taylorthechemist Před 27 dny +2

      It seems like he was diagnosed before the vaccine came out but that’s an interesting connection if there is one

    • @CuriositySavedTheCat68
      @CuriositySavedTheCat68 Před 26 dny

      @@taylorthechemist thanks for the insight. The medical study was European if I remember correctly.

    • @alidabotes6264
      @alidabotes6264 Před 21 dnem +1

      Just read the same thing.

  • @Jessicaisawakenow
    @Jessicaisawakenow Před 13 dny

    My father had large diffuse b cell non Hodgkins Lymphona...went through radiation and chemo and was cancer free for a couple years...found that it came back slightly...one dr said scar tissue one dr said treat it...he went through 2 rounds of chemo and died of a heart attack due to chemo...but was cancer free

  • @talkswithkimberly1623
    @talkswithkimberly1623 Před 28 dny +1

    I was on nasia meds all the time in the first 10 days after treatments. I was home alone.

  • @susanhoagland5410
    @susanhoagland5410 Před 18 dny +1

    God bless you and keep you healthy for a LONG LONG time.

  • @tinajimenez-spalding6804
    @tinajimenez-spalding6804 Před 28 dny +9

    I NEED A FRIEND ??? ❤️ ❤️

    • @theresamichael5777
      @theresamichael5777 Před 28 dny +6

      I will pray for you Tina❤️. Ask the Lord to send you a friend, he cares, he will ❤️

    • @marya4717
      @marya4717 Před 28 dny

      @@theresamichael5777 Yes, and in addition, please remember Jesus is your friend right now and forever. Ask Him and He will see you through! And I will pray for your comfort and full healing!

    • @ginahaydon8240
      @ginahaydon8240 Před 28 dny +2

      Sending out thoughts and prayers for you. Love and best wishes, many blessings from the UK xx ❤❤🙏🫂

  • @LawrenceBishton
    @LawrenceBishton Před 15 dny

    That lyme disease is badd