My Disability Roadmap | An Emmy-Winning Op-Doc

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  • čas přidán 16. 05. 2022
  • With audio description, English and Spanish subtitles. Learn more about the film and listen to the audio description pre-show: likerightnowfilms.com/product...
    Samuel Habib, 21, wants to date, leave home, go away to college. But for Samuel and millions of other young adults with disabilities, the path beyond public school and into adulthood is difficult to navigate.
    Samuel lives with a rare neurodevelopmental disorder caused by a mutation in a gene known as GNAO1. He drives a 350-pound wheelchair, uses a communication device, and can have a seizure at any moment. In "My Disability Roadmap," co-directed by Samuel and his father Dan Habib, he seeks out guidance from America’s most rebellious disability activists.
    He wants to learn how they built full adult lives as a road map for himself and others. “No one tells you how to be an adult, let alone an adult with a disability,” he says. “But there are badass people with disabilities who figured it out. Maybe they could be my mentors.”
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Komentáře • 116

  • @laneatkinson6441
    @laneatkinson6441 Před 2 lety +54

    As someone with a disability, I really can't thank you enough for what you're doing. I have more of an "invisible disability", and this really helped me to understand what it's like to have a disability that's visible. You helped me come to realize that people with one type of disability can have misconceptions about and prejudices against people with other disabilities.

  • @marc-oliviersavard2866
    @marc-oliviersavard2866 Před 2 lety +44

    As someone with a CP too, I got frustrated by people telling me that I was a role model just because I decided to pursue my studies and my ambitions regardless of my physical disability. For me, there was nothing special about it as I thought that everyone can do it. I recently realized that the very thing that makes people believe that I am special is the positive response that I had throughout my entire journey despite the inherent adversity of dealing with limited mobility. I'm 24 y/o, I have a bachelor degree in finances, I have a job, and I have a very great social life. I can understand Sam when it comes to dating tho. I never got a gf (although I got close) and as time goes by, I am starting to have a complex in front of this fact. I tried to get matches on Tinder and Hinge for several months, yet I didn't make any significant progress. I feel that when people see the mention that I have a wheelchair, they might associate it with other issues beyond the wheelchair and that is a turn-off. I don't see any way to validate that feeling with fully able people because most of them don't feel comfortable talking about it or would pretend that they don't see any issues about it, and I understand that. Don't get me wrong, I am pretty satisfied with my life rn, but I can't deny the fact that I feel the urge to date girls and not having any opportunity to do so is a bit frustrating. This is way harder than what most people think, but I won't give up - never. Our true limit is in our mind, not our body. I am now considering changing my strategy by relying more on the network effect to get introduced to new people more organically. Anyway, this documentary is well done. Take care! ✌

    • @JaimeMesChiens
      @JaimeMesChiens Před 2 lety +6

      I’m a adult, a Masters degree’d professional, mother, and I live with spinal cord injury.
      I’m just living my life.
      I do not want to be a role model.
      Even moreso, I do not EVER want to be anyone’s “inspiration.”
      I hate when anyone tells me that they think I’m brave.
      What a stupid thing to say: I did not choose this.

    • @katiekraning7248
      @katiekraning7248 Před rokem +3

      There is a new app called dateability. I tried it but not many people in my less populated area, plus it's a new app so not a ton of users. Maybe that would work better than hinge or tinder.¯⁠\⁠_⁠(⁠ツ⁠)⁠_⁠/⁠¯
      Finding the dating apps to be brutal and I can only handle them in fits and starts, before reclaiming my sanity.
      Actually a Google search about dating with disabilities lead me to this video.😊 So glad I found it. Well done and great example of day to day as well as the weird interactions with people. Loved all of these role models/mentors + questions. Well done video.
      🫶✌️

  • @Andreamom001
    @Andreamom001 Před 2 lety +85

    Strange how the lady at the airport couldn't stop talking like he was a child. Would she walk up to her boss and speak like that? Or any other adult? No. That's not how adults talk to each other. "How old are you? Are you 55? Are you 55? You're the CEO, hey?" Ugh.

    • @evenhodnevalaker3634
      @evenhodnevalaker3634 Před 2 lety +11

      It is really sad. I also have CP, and just like Sam, I hate when people are underestimating me. I mean, why do people think that only because you are using a wheelchair, you are not able to be a normal person. A person who studies and living a normal life. I am 19 now, lives in Norway on my own, and I am so happy that I have the opurtunity to do so.

    • @katiekraning7248
      @katiekraning7248 Před rokem

      Her dialogue was so cringe! 😬 I was like when will she stop?! Make it stop!
      Sam's (filmmaker, sorry if I forgot first name) reaction said it all.🤬

  • @danielleshanti
    @danielleshanti Před 2 lety +38

    I have CP too, although it doesn't affect my speech, and I was super frustrated on Sam's behalf at the lady in the airport (and Biden--yikes). At the same time, I understand that the lady didn't know how to handle waiting for Sam's response. The general population has never had the experience of conversing with someone who uses a communication device. Sam had to sit there while his dad talked about and for him. The audience only saw Sam talking back and forth with family and care assistants; all other communication was preprogrammed and cut away after the interviewee had spoken. I would really appreciate seeing a real-time conversation between Sam and a new acquaintance. Show us what that looks like when it goes well. That's what we need to see, to understand and to learn. Lovely work overall. We need more!

  • @evenhodnevalaker3634
    @evenhodnevalaker3634 Před 2 lety +21

    The lady at the airport doesn't understand much! I have CP too, and those people are those I hate the most in the world. I get upset everytime people thinks that only because I am in a wheelchair, I can't do what everyone else is doing. I am proud of my opurtunity to study economics at the largest university in Norway (NTNU in Trondheim), far from my home in Oslo. I want to prove ableists wrong someday, prove that I can get a job and be part of the society just like anyone else. (hope that my English is not too bad)

    • @PHlophe
      @PHlophe Před 2 lety +2

      Oh i wondered what your sobriquet meant until i read you are from NO and its an actual name, it makes sense. You english is impeccable and you live in NO, i am like 1/4 NO and i struggle with the language, i speak german . I wanted to get mad at the broad at the airport but then i realized she was clumsily trying to be friendly because she isn't aware of what someone sees and receives who doesn't have the same physical ability. she was talking to Samuel as if she was talking to a Beagle who was wagging its tail. it was cringe . i could picture her leaning forward with a sheepish smile and wide eyes.
      I have a cousin in southern african who has variety of CP and it doesn't affect his speech much. i have always been amazed at how well he is treated by the extended family . Now it helps that 2 gen of a family live in the same compound and this means taking care of him is super easy since its split among 12 people.

    • @FollowmedowntheNumberWhole
      @FollowmedowntheNumberWhole Před rokem

      Wow, communication really is freedom, like his t-shirt said.

    • @FollowmedowntheNumberWhole
      @FollowmedowntheNumberWhole Před rokem

      You’re already proving the ableists wrong by everything you are and everything you do. Forget about them, prove yourself right. Keep focusing on what you do have; you sound extraordinarily intelligent and extremely able. Cheers.

  • @WryAun
    @WryAun Před 2 lety +12

    Awesome stuff! As another disabled young person this was so cool to see.
    I also respect how you baked in the audio description. Great little bit of accessibility

  • @gv71891
    @gv71891 Před 2 lety +16

    I love watching this documentary. I do not have a disability and I have rarely been exposed to people with disabilities, but I am glad to learn and understand what they are advocating for and break the internal biases I have when seeing someone with a disability. Hope to see more work from you Sam!!!

  • @joeysan207
    @joeysan207 Před 2 lety +11

    Great film! As a former teacher, I wish this film and films like it were part of the curriculum. As a dad, I will definitely be watching it again with my 10 year old. The preparation, dedication, participation by so many amazing guests, and the way those moments are shared with the level of cinematography they are captured makes me feel I was on this journey with you. I really only had time to watch part of it, but had to watch the whole thing. When time flies, it's good stuff!

  • @keirstenwahlberg6476
    @keirstenwahlberg6476 Před rokem +3

    I have Cerebral Palsy. I'm nearly 32 and yet still treated as a child. I don't think society will easily stop treating people with disabilities as permanent children. It could take generations

  • @ekenejae
    @ekenejae Před 2 lety +12

    Samuel I love this. I have to say as a person with invisible disabilities it's great to see such an inclusive disability DOC done! Good luck in your advocacy, I really hope people stop infantalizing and talking down to you. You are definitely brilliant and the transition into adulthood is difficult. I hope you can find everything you're looking for!

  • @can-usa
    @can-usa Před 2 lety +5

    Thank you for this. There are quite a few disabled college students in my university. I know a few of them, and it is good that you are showing that they are not to be treated as kids just because they are not as physically able as others.

  • @briancorcoran
    @briancorcoran Před 2 lety +18

    Fantastic film, really well done. Sam, your questions throughout the doc were well thought out, your interview prep is on point. I had intended to take 5 minutes and briefly check this out, instead I watched from beginning to end (and now I'm leaving a comment!). Keep up the great work.

  • @rdred8693
    @rdred8693 Před 2 lety +5

    We are all one accident away from being disabled.

  • @dariana03
    @dariana03 Před rokem +3

    You made me cry because I felt so related to someone, which I haven't felt in months since I am starting college on Monday, and I feel like you know and understand what I'm going through. Thank you for making this video.

  • @gayanedirisinghe1481
    @gayanedirisinghe1481 Před 2 lety +2

    Fantastic film and very illuminating especially as my baby nephew may have a disability. Shared this video with my family and a million thanks for making this!

  • @furqanabood1775
    @furqanabood1775 Před rokem +2

    So proud of you Sam, Keep the hard work and inspire the world.

  • @Marystorystanton
    @Marystorystanton Před 2 lety +2

    Sam, I’m not sure you read the comments, but my best friend Jen Ranney in Spokane Washington told me about you and your film making. I want to tell you I was SUPER impressed with your film, your vulnerability and your story telling. Keep showing the world you. It’s absolutely perfect! And btw, keep searching for your perfect person, they are definitely out there!

  • @anthonyschueller1284
    @anthonyschueller1284 Před 2 lety +2

    His tenacity is inspiring. Much love and respect!!! ❤ 💙 💜
    Never give up!

  • @tatianaflores1926
    @tatianaflores1926 Před rokem +1

    Great and very educational. Ty for being so strong

  • @khazermashkes2316
    @khazermashkes2316 Před 2 lety +5

    I am looking forward to the full documentary!

  • @MrBucketlist
    @MrBucketlist Před 2 lety +31

    That woman at the airport upset me as well, it was truly uncalled for.

    • @MsKTMvalley
      @MsKTMvalley Před 2 lety +11

      It was strange after she was told to stop talking to him that way that she continued. I get that it’s hard to tell anyone’s age but don’t talk to anybody like they’re a baby or a dog.

    • @simple11q
      @simple11q Před 2 lety +8

      She just didn't get it. It didn't register. Some people are like that. Naive and inexperienced even if the intention comes from a good spirited place. The airport is a strange environment. Interactions are rousing and hightened. People feel also more vulnerable and excited at airports I suppose. Giving her the benefit of doubt she most likely didn't mean any harm and she most likely had little experience with disability or exposure of disabled in her life. Not excusing her actions, but it is bound to happen. That being said there are far worse countries out there to be in as disabled. The US is moving in the right direction, perhaps even taking the lead, for sure.

    • @jennbaker6964
      @jennbaker6964 Před 2 lety +1

      @@MsKTMvalley And people are always like offended and like "what do you mean i was being nice?!?" and its like no you were treating me like I was beneath you because i have a disability. watching that clip hurt my soul.

    • @c0rxpseb0i13
      @c0rxpseb0i13 Před 2 lety +2

      I feel like she was actually sorry. Some people just assume that someone needs to be treated differently because of a disability
      I think she meant well and she wasn’t trying to put him down
      But I do understand how frustrating that is

  • @Am21Cards84
    @Am21Cards84 Před 9 měsíci

    Great documentary. It definitely provides a look into Sam’s life, and that he is like everyone else, but just needs to do things differently. He deserves the same respect as those around him, as it is a human right. He desires the same things others around him want in life: respect, love, employment, and a home that is all both accessible to him and where you can be as independent as possible.
    I too can relate to these same desires/wants, and struggle with it. Even though my disability is different from Sam’s, and like him, I have a good support system, some of the emotional struggles are a bit harder.
    Great documentary!!

  • @Kartracer95
    @Kartracer95 Před 2 lety +2

    Absolutely loved this video. ❤️

  • @sugarmaster8986
    @sugarmaster8986 Před 2 lety

    I am so thankful for this video for I have learned a little bit more about the people that I live on this Earth with! Hope everyone gets to watch this very interesting educational video!

  • @Xcalator35
    @Xcalator35 Před 2 lety +12

    'Oh! You're in school now hein?' Even after being told several times not to speak to him as a child that lady can't help to patronize him. Probably one of those persons who allways brag about 'loving disabled people'!

  • @allanan22
    @allanan22 Před 2 měsíci

    i love your strength i too have disabilities you're amazing great job super proud that we're getting our stories noticed

  • @dinahstroe7687
    @dinahstroe7687 Před rokem

    WOW! You're my new hero!

  • @dhampal5948
    @dhampal5948 Před rokem

    You are one of the best inspiration

  • @tabithasuzuma
    @tabithasuzuma Před 4 měsíci

    Wow, Samuel! I loved the documentary your father made when you were small and so delightfully cute, and so it's such an honour to be able to catch up with you in this documentary and to see how well you are doing and how mature, passionate and determined you've become as a grown man. I have a mental illness and a mild physical disability and it's so wonderful to see how hard you are fighting for disability rights. You still seem as happy and determined as you were as a young boy, but I know you must have to endure huge frustrations on a daily basis - I gasped in shock when I saw Biden stroke your face, and I was even more angry when that woman at the airport started speaking to you as if you were a 4 year-old! SURELY people know better than that nowadays?? Are there people who are really that STUPID?? I particularly loved what you said at the end of your documentary - people paved the way for you and so you want to pave the way for other disabled people. I think your dad started your legacy with his documentary, and now you are carrying that on splendidly by yourself: by making this new documentary, interviewing and speaking to those in power, and educating so many able-bodied people about what it's like living with a disability, as well as showing everyone how much further our society needs to go in terms of breaking down stigmas, increasing inclusion, and fighting for disability rights. I think you are a fabulous role-model for everyone, disabled as well as abled, and I very much hope you've been able to move out by now and have found a girlfriend too - any girl your age would be incredibly lucky to be in a relationship with you! If I were 25 years younger, I'd be writing you love letters for sure! Keep being amazing, Samuel, and keep making documentaries about yourself - you're a joy to watch and to listen to! How about starting a podcast or CZcams channel - extraordinary individuals like yourself really need to be in the limelight these days, in order to influence and be role-models to as many people as possible, and also to give the rest of us hope!
    I wish you all the success in the world, good health, and plenty of daring and exciting adventures!!

  • @mapofthesoultagme7143
    @mapofthesoultagme7143 Před 2 lety +5

    I am a 22 year old girl in my fifth year of university, my last year and I like being treated like a kid. I don't think I have any disability.

  • @Elsorkora
    @Elsorkora Před 2 lety +5

    Stand up for yourself comes to mind.
    I a a chronic kidney patient, who has started kidney dialysis in February 2022. Some days are tough others not so bad.
    Not everyone understands what the process is about, some people avoid me in case they contract or too, -,not possible of course. Some are sympathic, whilst those who have family in the same boat, are very supportive
    My advice to you is hold your head up high, pray to God for strength, courage, show love to all you meet, it will come back to you. God Bless You Everyday.

  • @royroddey
    @royroddey Před 2 lety +2

    Hey Samuel - just watched your vid and gotta tell ya i was inspired by your journey and honesty. Wish you the best on your search for a girlfriend/wife - you'll make a great boyfriend/husband!

  • @brianmouland209
    @brianmouland209 Před rokem

    I am disabled , I go ballistic at those who treat me like a bratty child

  • @ashgann69
    @ashgann69 Před 2 lety +2

    "I'm a College Student with a Disability. Stop Treating Me Like a Child" the problem with the video since second 1

  • @johannacrespo1663
    @johannacrespo1663 Před 2 lety +1

    I don’t zipline man! Good for you!

  • @emeraldkimble7602
    @emeraldkimble7602 Před 9 měsíci +1

    Community junior colleges are two years then aa degree granted after that senior regular colleges

  • @brucewayne235
    @brucewayne235 Před 2 lety +5

    No offense i dont even have a disability and some people still treat me like im a child... im 25 years old

    • @sk0kiE
      @sk0kiE Před 2 lety +1

      But nobody has talked to you the way that woman at the airport did, Samuel probably has those interactions way too frequently

    • @brucewayne235
      @brucewayne235 Před 2 lety +1

      @@sk0kiE you dont know me

    • @sk0kiE
      @sk0kiE Před 2 lety +2

      @@brucewayne235 true

    • @brucewayne235
      @brucewayne235 Před 2 lety

      @@sk0kiE and yes he probably does, and im sorry for him nobody should have to endure that over and over again

  • @elisabethsiena7811
    @elisabethsiena7811 Před 2 lety +4

    This was an amazing film! I can’t wait to see more from Samuel.

  • @rachelwolf5370
    @rachelwolf5370 Před 2 lety +4

    Great documentary!

    • @PHlophe
      @PHlophe Před 2 lety

      Shalom, Rachel, its eye opening for sure . That bird at the airport who was talking to him as if he is a puppy. Schande !

  • @khalylehagood3222
    @khalylehagood3222 Před 4 měsíci

    I like Samuel have wondered what people have sacrificed to get where they are, what were the risks they stared down. It's a good question.

  • @AsadAli-le2ms
    @AsadAli-le2ms Před 2 lety +1

    you have ability and very able every level of logic and you are not unable you are not unequal.

  • @Riomojo
    @Riomojo Před 2 lety +13

    Man i cried so hard watching this, and it made me wonder if i were to meet samuel and cry in front of him if that would also be seen as a form of looking down on him when i simply absolutely do not at all. I wonder how i would try to successfully explain to him that I do not look down at him but merely am emotional towards how the world treats him and only wanting the best for him.

    • @MsKTMvalley
      @MsKTMvalley Před 2 lety +3

      Yea agreed. I guess we should remember that he’s a guy who with assistance loves all the same things as able bodied people, like skiing or jogging or having intellectual conversations. Each of us all have our own sets of challenges and differences.

    • @janberger2339
      @janberger2339 Před rokem +1

      I'm a Quad. Dw, it's appreciated

    • @FollowmedowntheNumberWhole
      @FollowmedowntheNumberWhole Před rokem

      @@janberger2339but not in person, i’d imagine…someone breaking down crying in front of a disabled person just bc they feel so bad for them? Let’s think that through…

  • @evancarroll2869
    @evancarroll2869 Před 2 lety +1

    i don't want to be treated like a child due to autism.

  • @m1lkweed
    @m1lkweed Před 2 lety +7

    Hey, they fixed the audio descriptions!

    • @CherylGreen
      @CherylGreen Před 2 lety +2

      Yes! The filmmaker didn’t waste one second when he found out. Dan got them to fix it right away.

    • @RobertKingett
      @RobertKingett Před 2 lety +2

      We hope you like what the social audio description crew did!

  • @Viviko
    @Viviko Před 2 lety +2

    I’m low vision, yet I can shoot a gun and aim pretty well. Agreed. Stop treating me like a child. Lol.

  • @elizabethwall2775
    @elizabethwall2775 Před 9 měsíci +3

    Not Biden stroking Samuel's face ew

  • @swankyangelo8527
    @swankyangelo8527 Před 2 lety +6

    They need to do this with every video

    • @RobertKingett
      @RobertKingett Před 2 lety +3

      Agreed. Audio Description can be used by sighted people. In fact, Netflix has many audio described originals. You can listen to movies while cooking or driving.

  • @howtomakeshoes9293
    @howtomakeshoes9293 Před 2 lety +1

    Hi

  • @IamwhoIam333
    @IamwhoIam333 Před 2 lety +1

    Amen thank you

  • @remigiocater2930
    @remigiocater2930 Před 2 lety +2

    It just goes to show you can have fun and you dont hve to be superfit

  • @KWalt
    @KWalt Před 2 lety +9

    What an inspiring young man!

  • @shariecebrewster5962
    @shariecebrewster5962 Před 6 měsíci

    New on there's and getting tup

  • @roxannacruz8407
    @roxannacruz8407 Před 2 lety

    Think I’m in love with Sam 😍☺️

  • @entitysingularitat3676

    THAT'S ONLY FAIR...!
    Every living being that can think should close its eyes for 5 minutes and think about it: what are the consequences/ what training does my behavior have..? !! Then you ask yourself: HOW WOULD THE WORLD BE BEAUTIFUL AGAIN...?
    IF EVERY PERSON GIVES TO A COMPLETELY FOREIGN PERSON THE SAME AS HE GIVES HIS FAMILY AND HIMSELF. .!!!
    then you open your eyes and try to think of these thoughts as often as possible. .!
    maybe man is the most intelligent creature after all. .!??!

  • @senpaisanchoyt5225
    @senpaisanchoyt5225 Před 2 lety +1

    13:55 the audio speeds up a little.
    Happens in other parts of the video

    • @RobertKingett
      @RobertKingett Před 2 lety +2

      That is so the audio description does not talk over dialog.

  • @shariecebrewster5962
    @shariecebrewster5962 Před 6 měsíci

    10 question on there's

  • @sulpherbratigh7936
    @sulpherbratigh7936 Před 2 lety +2

    be careful what you wish for

  • @mayaqueen8178
    @mayaqueen8178 Před 3 měsíci +1

    MAyAQeeN ❤

  • @tanyamarie987
    @tanyamarie987 Před 8 měsíci

    diz was awesomazingly beautiful.
    i can't even make a jokey comment, jellybean.
    💘🤭🤗😍💎🌟💟

  • @julii5890
    @julii5890 Před 6 měsíci

    حبيبي

  • @bizichyld
    @bizichyld Před 2 lety +5

    Don’t wear a New England Patriots shirt if you don’t like being treated like a child.

  • @shariecebrewster5962
    @shariecebrewster5962 Před 6 měsíci

    I am there's and there's

  • @tonypitsacota2513
    @tonypitsacota2513 Před 2 lety +3

    Shouts out to Stephen Hawking! What? He doesn't have a sense of humor????

    • @PHlophe
      @PHlophe Před 2 lety

      Tony Pitsacola, Stephen is greatly missed. fr fr

  • @yasurisolis5734
    @yasurisolis5734 Před 2 lety

    00

  • @Malouco
    @Malouco Před 2 lety +1

    U BETTER BE MORE AMERICA 🇺🇸 THAN SELFISH LIARS

    • @Malouco
      @Malouco Před 2 lety +1

      I DARE U TO CHALLENGE ME 😡

  • @shariecebrewster5962
    @shariecebrewster5962 Před 6 měsíci

    Yes I disability and I am imbarries a about it's or angry a about all of it's

  • @andreabloch1512
    @andreabloch1512 Před 2 lety +18

    Amazing young man. Thank you for creating this descriptive version of the video. My son is completely blind and I wanted him to hear this story. My son is graduating with high honors from college this weekend. Never underestimate anyone with a disability!

  • @apollolucifero9216
    @apollolucifero9216 Před 2 lety

    LAVORIAMO FRA CCTV ED IL NEW YORK TIMES-🔥✡🕋🔥

  • @OldEnoughToParty
    @OldEnoughToParty Před 2 lety +2

    The girl that went to the prom with him wins

  • @nathanielturner5641
    @nathanielturner5641 Před 2 lety

    First

  • @stacyn.
    @stacyn. Před 2 lety +3

    What a cute and I know how he feel’s because I’m On Disability and I been getting made fun of since I was a kid.

  • @taquitocruz9398
    @taquitocruz9398 Před 2 lety

    CAN you interview the new elected President BBM , MARCOS JR why He did not pay the tax

  • @KattarRSSHindu
    @KattarRSSHindu Před 2 lety

    Converted to hinduism from islam 3 years ago, now never looking back. It was the best decision of my life.
    JAI SHREE RAM

  • @jnelletrim1478
    @jnelletrim1478 Před 2 lety +1

    Remember God loves you♥️!!
    John 3:16
    For God so loved the world that he gave his only begotten son that whosoever believeth in him should not perish but have everlasting life.
    Please repent, change your life around and live for Him🙏🙏
    He is coming back soon🥳😊..............

  • @edward9862
    @edward9862 Před 2 lety +3

    Stop telling people what to do!

    • @robokill387
      @robokill387 Před 2 lety +2

      Yeah, because it's *such a burden* treating someone like a human being. Jesus Christ, listen to yourself.