A Broken System Is Failing Thousands of Americans With Disabilities
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- čas přidán 8. 06. 2021
- Adults with developmental or intellectual disabilities in the U.S. are legally entitled government-funded assistance. But hundreds of thousands of them are either getting no help, or not the kind they need. VICE News investigates how the lack of funding and political will, combined with a limited number of care options for a diversity of needs, has led to a crisis in care for one of the country's most vulnerable populations.
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We talked to the team that set out to untangle the bureaucratic nightmare that's keeping an overlooked group, adults living with disabilities, from getting the care they desperately need. - czcams.com/video/KwrYJ3kNUlw/video.html
I completely agree with everything you're saying. I can't imagine being her, being in her same circumstances, or the Stress and Nightmare scenario she's imagining for the future. I can't imagine what she's to do when she's actually 60 years old. Retirement itself and the benefits that go along with that is pretty much out of the question for her and Daughter. Special Needs don't Retire after a certain age. Her Daughter isn't going to understand that her Mother wants and needs Rest and Relaxation. You also have wonder; What happens if for whatever reason, Tammy herself becomes Disabled somehow?! She knows she cannot realistically ask her Other Adult Children, Other Family Members, or any Friends to take the responsibilities of her Daughter since they themselves have their own Lives to manage and they don't have the Financial wherewithal to do so.
If this so called Pandemic has taught us anything; The underlying reasons for these problems is the collapsed Promised Entitlement System and the other Laws or Decrees that didn't take into account of Unintentional Consequences for the Financial Costs for not just the Disabled, also Childcare and Eldercare. Also, the Infrastructure, Personnel, and Economic Realities to sustain this type of Safety Net System. The Pandemic has also exposed that the Care Model System has been upside down for decades since Wages and Benefits aren't competitive and the Money allocated for these Services was grossly squandered for Political reasons. It goes to show you, Life has an Expiration Date but Autism doesn't...
I'm of the belief that the United States government is imposing genocide on the disabled community for purposes of reallocation of resources the have been traditionally used to advance survival of said community. I would like to talk to someone with your organization directly to share my concerns with you in more detail. Please feel free to reach out. You may be surprised by what I have to say.
Keep publishing this type of content!
These are real struggles, the same thing is happening in Europe and nobody is saying anything.
Do you realize how useless is the PC narrative that so many media outlets are pushing compared to the reality of social injustice?
I believe the us gov. Is imposing a genocide against the disabled community at large. And benefit financially from every coffin that is filed with a disabled body prematurely from an economic framework.
@@NereoSal That's because the government benefits directly from our deaths. Let's unite as a community to start a movement. Message me back to take part in starting a movement.
The U.S. spends so much time fighting wars in other countries, even when our own country is falling apart.
This country has chosen a very, very dark path. I don't envy the next 2 generations.
military spending and police budgets are out of control and much of it is wasted yet citizens can't get help surviving because politicians think they need to "pull themselves up by the bootstraps"
@@JaysonT975 They are right. The problem isn they dont show what pulling up by the bootstraps actually is.
That's what props up the petrodollar and reduces our productivity.
If you are world leader that's normal but somethings should change.
These parents are the true unspoken heroes. Extreme respect to them.
If you respect them vote for policies that support them, especially on the federal level. Spread this video to those who are against it.
Well, except the one who is advocating for mental institutions to stay open despite 16 states banning them for decades now.
There wouldn't be a problem if the homeless didn't use and live off the system if they used it when they really needed help or if we had a time cap like oh its been a year get off you're ass not giving you any more money
I am not the hero. I am a mom following Teneilles lead. She has taught me so much….. about tenacity and unconditional love!! She is the hero.
@@nepadron …. There are ICF’s still open and for many they are a necessary level of care. I’m still able to keep my daughter at home but as the first mom in the above documentary it would be the level of care I prefer once I can no longer provide it. Over the last 20 years I’ve worked to provide for my 4 children. I worked group homes day programs home health and ICF. It was my way of viewing from the inside…”UNFILTERED” if you will. If her siblings can’t get the little bit of help I’m fighting fir to safely care for her while being their for their partners & children…. I choose ICF.
I am a paraplegic with state funded care., but I was on a waiting list for 3 years. My mother recently died, and she was 70 years old still trying to help make my life easier when the aides were unable to come to my home. I did not realize how much I called her, or she did my laundry plus small tasks around my home. She died scared I would go before her because my other illnesses and complications from being a paraplegic for 25 years. I miss her. This has reminded of the many struggles we went through. It was hard for her and my father to admit they were unable to help with my care. The healthcare system needs to change. Individuals caring for people with disabilities needed paid more and offered more benefits for the work they do. The parents of this documentary have my respect.
Sending you lots of love and light ❤🙏🏽
❤️❤️❤️❤️❤️❤️❤️❤️
Yes ma'am. I have Multiple Sclerosis and a host of other conditions that go with it now that I've been battling it for over a decade. My Mom is in her 70's now and I have to beg her to stop trying to take care of me when my healthcare inevitably fails me. She should not be in that position, nor should I, or you and your sweet late Mum. This system is worthless. I hope they raze it to the ground then rebuild from the ground up, this time focusing on care instead of profit.
Hello friend how're you doing today hope you are doing fine, hope we can be good friends?
Sending you hugs and love around your way. May your sweet and nice mother rest in peace. I also is disabled myself and live alone. My parents passed away 💔😭 I know your pain, good lady friend
As someone with a mild disability and a certain amount of privilege, I can’t imagine how people are facing even worse situations
Belgium is one of five countries that allow doctors to kill patients at their request, and one of two, along with the Netherlands, that grant the procedure for people with mental illness such as severe chronic depression. The idea is that those with a psychiatric illness should be afforded the same rights as those suffering from a physical one.
Welcome to capitalism. Your living conditions are dictated by your wealth and disabled people struggle to accumulate wealth. So they often suffer.
@@Kage-jk4pj what else do you suggest?
@@JD-jz5rr are you a bot?
@@oldtechnobodycaresabout is there anything wrong with Kage said?
“Hope and pray” never paid for my bills
Exactly! Just what I was about to say to!
That's a lie! Prayer changes things! I will always pray, trust and have faith in God! He's never failed me! I'm truly sorry that you dont believe, better repent, accept Jesus as your Lord and Saviour and be baptized before its too late!
@@Angel-tw3ko what happens when he still dies poor like so many others that prayed and nothing happened?
So by your interpretation god is just supposed to pay your rent and bills cause you asked him too 🤦🏽♂️ entitled spoiled Americans always use the dumbest examples 🤦🏽♂️😂
@@Angel-tw3ko Wow... accept god or else... way to make your point
please keep this in the spotlight. this is not discussed NEARLY enough. this should not be happening in america. thank you for this clip and please keep them coming.
Definitely not discussed enough
@Green Fog this happens everywhere. Also this is just top of the ice mountain
@Green Fog
Don't be so rude 🤬. English is not everybody's first language. The whole world is on the internet. Always remember that !!! 🤨🤨🤨
Thank you from the bottom of my heart…Tammy Schwab…. Teneille’s mom
@Green Fog US citizens irrational fear of socialism and communism to the point we are denying people healthcare and allowing wealth inequality at unprecedented levels will lead people to have more radical politics.
If you really don’t want communism you should be fighting for socialized medicine and reduced inequality
She needs immediate orthopedic intervention, poor girl. The American Healthcare system is in bad need of reform. Among many other of our broken systems.
America has the appearance of a "developed" country, yet one look beneath the surface shows that our system is barbaric, and there does not seem to be a light at the end of the tunnel just yet.
@@jtr7377 Hear, hear!! As an experienced nurse and a mother familiar with the failing healthcare system, your words could not ring more true.
Belgium is one of five countries that allow doctors to kill patients at their request, and one of two, along with the Netherlands, that grant the procedure for people with mental illness such as severe chronic depression. The idea is that those with a psychiatric illness should be afforded the same rights as those suffering from a physical one.
Also *In 2015, a 75 year old woman from the UK named Gill Pharaoh decided to go to Switzerland in order to receive doctor's assisted euthanasia, even though she was extremely healthy.* Gill Pharaoh, age 75, who wrote two books giving advice on how to care for the elderly, was not suffering from a terminal disease.~
~
She said she had seen enough of old age to know that she was “going over the hill” and wanted to take action to end her life while she was able to do so.~
~
Speaking before her death in Basel, the mother of two said her experience as a nurse, including working in nursing homes, had shown her that the reality of old age was “awful”.
Also Recently Australian euthanasia activist Philip Nitschke and Dutch designer Alexander Bannink created a suicide pod. Called the “Sarco”, short for sarcophagus, the 3D-printed machine comes with a detachable coffin, mounted on a stand that contains a nitrogen canister. ~
~
“The person who wants to die presses the button and the capsule is filled with nitrogen. He or she will feel a bit dizzy but will then rapidly lose consciousness and die fast and painlessly,” said Nitschke, who has been dubbed “Dr Death” for his work to legalise euthanasia. ~
~
The “Sarco” is a device “to provide people with a death when they wish to die,” Nitschke said.~
~
“This is a situation where one person chooses to press a button … rather than for instance standing in front of a train.”
“I believe it’s a fundamental human right (to choose when to die). It’s not just some medical privilege for the very sick. If you’ve got the precious gift of life, you should be able to give that gift away at the time of your choosing,” Nitschke said.
The United States doesn’t respect or take care of our poor ESPECIALLY children, elderly, mentally & physically disabled.
But we wonder why we have all the current problems we do. While Politicians are getting the best services around
Idk. We got someone disabled in charge
@@ThePresentation010 your worldview is broken
Pretty much. It's not fair they have their fancy lunches and spend money like it's going out of fashion, at the expense of the Tax Payer.
In the UK the support is available but it takes effort and fights to get help sometimes.
I feel that Trump did more harm than good spending money on stuff to suit his own gain.
It's about time the tax-avoiding big digital companies paid their taxes in the US and globally. Then the funding would be available to take care of the vulnerable in society.
Sweetie, you left out, women, gays, blacks, Latinos. The system being created are not benifiting anyone
At our expense
Americans complaining about these types of problems but then saying socializing healthcare is “communism”
Exactly!
@@Knight_Horus ……..
Socializing health care would make this lady wait even longer and more difficult in America.
@@joshsmith503 Waiting isn’t her issue. Lack of access to resources is her issue.
After 2 world wars,uh ,shut up lmfao
I used to work with adults with disabilities and the money thing is huge, along with a large turnover rate for staff. At my previous employment they tried to get the most high needs individuals because the facility would get more money from the state. Also no one considers the staff, not only were we underpaid we had to deal with violent or sexually abusive clients, clients with needs that were beyond our basic training, long working hours, etc.
Yes exactly this. If people were paid well, they would stay, & the job itself would attract less abusive or negligent applicants. I also refused to work in many homes because of the threat of violence and having no legal way to defend myself. Absolutely will not take that risk for slave wages.
I worked in a sheltered workshop and people have opinions on those but my guys were always glad to see me and I was always glad to see them. I took on the most challenging of our folks on my caseload and tried to make their lives better until I got fired “for being late”when everyone else was late and it didn’t matter to corporate. 8 years as your best unofficial psychiatrist. Pay us better and respect us way more. We love our folks but it gets hard when no one even respects what we do.
Yup, been there and done that. All the problems you mentioned are right on! Group homes and supported living programs have to take everybody because there are no alternatives with institutions closed. Also the training, pay, and resources to help the staff work with the clients is poor.
Let's not forget that the societal conditions imposed on the disabled are so dehumanizing at its roots that it robs many disabled people of their ability to see or expect humanity in others as well.
Been there, done that. The pay issue, staff turnover, not enough group homes and other alternatives which has been exacerbated by state facilities closing, etc are all symptoms of the system being broken.
This is ridiculous. This woman needs help. What's going to happen with this kid when her mother gets sick from the stress of caregiving.
Seriously
What tends to happen in my state is, the situation becomes an emergency. Suddenly the state comes up with enough money to care for her in a group home, or face the public wrath when the disabled person becomes homeless.
She dies. That's what happens. Welcome to cutting social services.
@@Glotglot A good majority of the homeless population is disabled. And yet the outcry is at the homeless for shitting themselves in the street and not on the fact that society failed us in every possible way.
You talk about an outcry when the disabled become homeless. What outcry?
People with disabilities have the right to life, liberty and the pursuit of happiness too.
Only if they are rich in capitalism. Otherwise you have to beg for help and get lucky that someone says yes.
Yes they do! I have spent 30 plus years working in this field. The shortage of facilities to begin with, let alone good staff due to poor pay and some not being run very well is a huge problem. Plus I feel like state facilities were kind of made the scapegoat for the problems in the system.
My daughter is similarly disabled and HELL YEAH what you said. They don’t just deserve basic care services, they deserve the respect to be ENABLED to reach their fullest potential, constantly. They deserve nothing less than to feel elated with pride in themselves
Something institutionalization does NOT provide.
@@ericalagrasta7657 hi Erica?
The workers for them are underpaid as well
That's the real issue here. In Michigan care workers are paid $10-11 per hour when you can go get a fast food job for $12 an hour. When you pay close to minimum wage for a skilled job you get crap results
Skilled labor ain’t cheap, cheap labor ain’t skilled. So many care agencies are god awful.
I did work like this in ohio. They were paying us $8.25 (this was about 5 years ago). Of course I quit within 30 days. For $9 I could get a job putting cookies in a box. And thats exactly what I did.
My support staff here in Maryland are underpaid. We have a very high turnover rate. One of the staff members for my day program is leaving for another job.
Yes. Can confirm. Each agency is different. The good ones rarely stay. People who don't have better options do...and their character is often lacking....and it's a constant revolving door of different aides. There is a bill in Congress that is supposed to give money to families to pay for in home services, as well as increase carer wages.
Wish the people who were pro-life were also also pro helping people. Maybe then it would actually be "pro-life" and not just screams of Jesus while ignoring the things that Jesus would care about - people.
Alot of those who are pro choice don't care about the lives of people with disabilities either. All these pro choice people want to do is kill us off because they think that we are useless and worthless ax we don't fit into the leftist utopia paradise.
I’am Republican, and i’am pro whatever is best for that person. Why do you generalize an entire half of the country instead of going after the real people that handle our tax money. It’s easier to keep us divided, that’s what each party wants. Take care and stay safe
@@valerieannrumpf4151 You really think that about your fellow Americans? That makes me 😔. Bad people are everywhere, this has nothing to do with republicans, this has to do with 💴. Follow the money friend.
They are pro-control not pro-life. They are fine with their demographic accessing abortion, aka D&C
Exactly ! They want to save babies but then complain when a person who keeps a baby gets on welfare .
We do not value humanity in this country; and difference is either presecuted, or ignored.
We definitely live in a society...
"we"...speak for yourself and be the change you want
Incorrect. We in fact value it so much,that we rather be free than risk dependacy on anyone. No one,including the handicap, are entitled to anything and no one owes them anything. Being alive does not mean one deserved to be nor is that a right to be. Being alive doesnt grant you entitlement to life. Harsh truth but it is what it is.
@@MayorMcheese12 but if they're aborted, how will people like you find targets for your brutal cruelty and contempt for humanity?
@@MayorMcheese12 First off, that is not exactly easy to predict in most cases.
Second, eugenics is evil.
Americans, this is not hard to implement nor impossible to sustain:
1. Socialized healthcare
2. Monthly government stipends for family caretakers of people with disabilities
But what of the corporations who obviously need that money more so they can buy their third yacht?
We can’t have socialized healthcare in a country with such high substance abuse & obesity rates. It will only work if we take a more holistic approach, by either financially incentivizing people to maintain a healthy lifestyle, or through legislation to criminalize the business practices that thrive from cultivating disease. Otherwise, we’d be financially punishing healthy, responsible people which is unacceptable.
It's too expensive for the government bro
thank you. people saying it's "too expensive, people are lazy," are absolutely delusional.
As a person who works in the intellectual disabilities field this is very real. In Pennsylvania we need more agencies to accommodate this dire situation.
Nice to meet you am sorry for infringing on your profile,do you mind be friend.... 💕 💕 💕 I don't mean to be rude commenting on your post without your permit, if your wouldn't mind I wish to know you more better God bless you 💕💕💕♥️.............. .
Exactly
“I’ll pray that you get help but I won’t do anything.” - GOP
"I'll probably change my mind and try to do something if it affects me personally"
-GOP
"I'll make snarky comments but not do anything" - CZcams lefty
When's the last time you volunteered to help people less fortunate than yourself? Never?
@@benjamingriswold2564 People can't afford to help these people, they have to work to support themselves. The government needs to tax the wealthy more (jeff bezos paid 0 tax last year) and use that money to pay workers to help. I volunteer a lot, but I can't do it all of the time because I have other things I need to do. Getting money for helping would make it a lot easier to help though.
@@skyee7512 Preach
@@benjamingriswold2564 We can hardly pay rent, you ass. Where is the time?
I feel sorry for Teneille and her mother. I have great respect for her mother in raising her daughter. However her mother is approaching the ripe old age of 60... how will she able to support her efforts as she approaches old age?
I can’t imagine the stress and difficulty she would come across even more into the future
I mean she chose to have a kid at that age. You get what you get sorry not sorry.
Noah Lawrence I still don’t think it’s her fault because she didn’t expect her child to be born with special needs. It’s also harder for people to have children at a younger age because of the huge expenses involved
@@mehdin7520 yeah but usually nowadays. The doctors know your child will have special needs before they're even born. Abortion is a thing, and prevents this stuff from happening.
@@MayorMcheese12 you’re so ignorant
@@dUnjer 🤷♂️
this is what a 3.4% tax rate in America for billionaires looks like on the ground
3.4%? That would be a start. We find out they don't pay any!!
Lol billionaires pay much more than that. Besides that, why are billionaires responsible for disabled people?
@@hopefloats7573 They pay billions.
How about, we all just pay like 30% of our wages and enjoy every aspect of a citizen's needs 100% covered.
False this what lazy ass Democrats cheating the system and taking money from the system created for people with actual disabilities looks like.
These parents are the strongest people in the world. And the government don't give a s*** about people
You arent kidding. I have a special needs brother whos 24 now and my mom has raised us 3 boys the best she could. These people are real life superheroes
I mean.. if they live to be 90yrs old.. And just throw money at them what's there to get back?
Same with criminals. Throw money to support for them for what?
I would put in a different system for criminals where the family has to pay for meals, at the very least. The govt already provides shelter, and utilities.
If the person is sentenced to 10 yrs and family cant pay meals, then they will die.
This will reduce crime because eventually the criminals will die out slowly but surely.
Nature is the true God. And she doesn't spare for no reason- literally. The poor genes die off. I hate to say it but its true. If you want to take on such a burden of lifetime financial support, that's your choice. But dont expect the world's help.
Everyone has lives and their own problems.
@@ThePresentation010 That's a very selfish, entitled, naive and highly cynical point of view. You don't know the circumstances of these parents, how they ended up in these situations. What if it happens in your family to someone you love and respect? Does it not say something about society - of how it treats the most vulnerable? I'd go so far as to say that safety nets and government support for the most vulnerable in society is a sign of how advanced and developed a community is. You are straight up lumping criminals together with disabled people. Drawing parallels. I mean how low can you possibly sink? Imagine being you, walking through life self centred, cynical, having 0 compassion, 0 empathy. Looking down upon any fellow human being with disabilities or criminal history. What about wrongly convicted individuals? We are all in the same boat. Reading your comment again, it's like an uneducated observation a teenager would come up with. Why not put your argument to one of the parents who choose to take care of their offspring through good and bad? Why not get a bit more enlightened?
@@simple11q no one is going to read a wall of text. Breakm up boyo.
@@ThePresentation010 are you really comparing disabled people to criminals? You conservatives are really one with words lmao
I’m am the first mom interviewed. I fully support ICF and all levels of care for the families who are forced to make difficult choices. I choose to keep my daughter at help for now while I am physically able. While I respect the gentleman’s opinion he doesn’t know Joey’s story or his moms. I might add I do not know the others in this video but I do know the ICF’s provide awesome care and are only closed currently to visitors due to state order due to the pandemic.
I want to express my respect for you!
You seem to be such a good mom for Tanil (hope I spell her name correctly). I can imagine how hard that must be for you and I wish I could help you.
I have a minor disability myself, so I know a little bit about the struggles of families with disabled members. Though our situation is still great compared to what many other families have to go through.
I live in Germany where health care is easier to come by in general, but our support system for disabled people also has a lot of cracks, which many families and individuals fall through.
It sucks!
I think that capitalism is inherently ableist and that there is still a strong undercurrent of eugenics in our societies. If you can't earn money, you're not worth anything - that's the subliminal message.
I'm angry at the system. >:-(
I work in this industry and parents like you are rock stars. Within 90 seconds we can usually spot the results of a loving home life even if we have basically no background info upon meeting. There is so much under-funding in this realm. Thankfully, there are people who are passionate and choose to do what's soul- rewarding. I know this last year has been difficult for hiring but I do hope you are soon hooked up with great help that will provide you that break again.
Did you get the assistance you need? Even the wheelchair?
My name is Jessica and I have an autistic child yes I'm in full support for places to care for adults with disability but they definitely need to be monitored so much more! Here in Iowa we have group home houses like the professors son is in they shut down places like the place Joey is in due to abuse wich just breaks my heart! My oldest son has vowed to take over the care of his little brother when I physically can't any longer ( I had my younger child late in life) may God bless you and your daughter she is such a beautiful person! And if you ever get to Iowa look me up and we can have a girls day in a place that is disability friendly 😁
@@johannageisel5390 I agree with you this world is so money driven that if you are not able to work you are looked down upon and it's heartbreaking my younger son is disabled and I have so many fears about how he will be treated by society
Just remember when politicians talk about Social Security, Medicare/Medicaid, insurance, health care, elder care, single parents, child welfare, the poor, working class, or how they think people are living off the government and not working, welfare moms, etc. -- This is what they are really talking about. The federal govt. want you to have less than $1250 per month in any income whatsoever, no help from family or friends, and not working at all. My state wants anyone who can possibly work, disabled too, to be fully working, the direct opposite of what the federal government wants. -- They don't care at all. You are a number, an unwanted expense, basically. Yes, there are some people who care and want to help, but there are also lots of people who are burnt out and people who don't care or actively discourage people. The paperwork and process are built to actively run people off, to discourage them, or delay until it's too late. It's beyond awful. The general public assumes people are adequately taken care of. They have no idea what it's like until they are caught up in it themselves.
It's too expensive
Nice to meet you am sorry for infringing on your profile,do you mind be friend.... 💕 💕 💕 I don't mean to be rude commenting on your post without your permit, if your wouldn't mind I wish to know you more better God bless you 💕💕💕♥️.............. .
you're too expensive @@zoomermench6563
When my mother died we took over care of my disabled brother I love him he is a blessing to us..we used to get aid from the state but not anymore...its so hard to provide care but when u love someone u do what you have to do...miss my mom she was our blessing he is too
I had a similar situation with my mom. You may want to look at putting him into assisted living so that he can have a separate residence then you. That may allow you to qualify for some level if assistance.
If you don't mind my asking, why do you no longer get state aid?
@@dodieodie498 the state stop giving it
@@bambam6231973 Was it because your income changed, or was it a policy change?
@@dodieodie498 policy
PCA's or personal care assistants in my state are desperately needed and they are paid so little no one will take these jobs. To wash, care, and clean someone that may be a full adult for $12 an hour in my state. No one will do it. The last PCA I spoke to had a terrible time where she would go into this old ladies home once she got the assignment at the last minute to find the woman had soiled the bed and now needed cleaning and the sheets needing cleaning and she needed to take the woman to appointments. Other PCA's are clear that they are not able to afford to live on the rate of pay they receive. They can spend in gas what they make in a short shift to drive out to someone's home depending on location. My father worked with fetal alcohol syndrome kids and my uncle is wheel chair bound for life so this is very personal. The system is so terrible I don't know where to begin.
To get a nurse to come to the home you need an open wound requiring medical care. It's very very very hard to get a nurse visit. When there is not enough nurses people go to a temp hospital unit which actually costs MORE MONEY. These wages and shortages need to be addressed or the costs of the bandages we place on them from the family members losing their jobs to the temp hospital units people go to when staff is not available will hurt us much more in the long run.
Pca and cna definitely do not get paid enough to do their jobs. They're also putting their own health at risk when lifting people, helping fallen patients, or dealing with aggressive patients. My mom was a cna until her back couldn't take it anymore. She saw a lot of hopeless cases in her time and it broke her heart.
Yes and home health care and lvns.....extremely underpaid and undervalued
@@perezismaray Many women take the jobs and can't life a full grown man out of a tub. Many get assigned patients who may have mental health issues they get little to no training to deal with. Some can be aggressive and all the PCA gets is a sheet of paper on what to do or what the clients needs are so HIPAA is not violated. Saw a 5ft 2in woman with a 6 ft tall male who can easily become aggressive and was like "Oh, this will not go well" and it didn't. She quit after the second incident of feeling unsafe/being assaulted. I know of one client who is unable to get help moving from his wheelchair to his bed so frequently due to lack of the correct assistance he just sleeps in his wheelchair and gets bedsores. Very poor system we have in place and the money is terrible, just terrible.
As someone with multiple disabilities, I know the pain and stress of dealing with the system. I fought for years to get any benefits, and when I was finally approved, I ended up getting less than $900 a month. I can't even pay rent with that. I have to live with my mom because I can't work and I don't get enough to live on. I also struggle on medicaid to get the medical and dental care I need. None of the specialists I need take medicaid so my mom has to help me pay out of pocket. It's ridiculous. She's in her 70's and struggling herself, neverind having to help her nearly-40-year-old daughter. I wish I could work and support myself. I didn't ask for this. As this mom said in the video, I don't want to be pitied, I just need help.
well, you sat here and typed a paragraph, watched a video. You obviously have a thinking mind. Why can't you get a desk job? Part-time even? One look at your youtube page shows a perfectly capable woman who can sit at a desk and work. How are you disabled?
@@Skipbo000 First of all, my CZcams vids are like 10-12 years old. Second of all, it’s none of your business. If I could do a desk job, I would be doing a bloody desk job. Being disabled is not only physical. I have both physical and mental health issues that play off each other. And that’s all you need to know (I didn’t have to tell you anything).
That mom must have the patience of a saint
It's clear you have not any children
But she did threat the girl in putting her in the doghouse! :/
She is a saint
Parents of disabled children aren't saints. They're just regular people with severe needs and challenges.
@@ladymonacoofthebluepacific2571 yes
This breaks my fucking heart! And yet there’s people who see nothing wrong with this and will say “one needs to do more”
Deep systematic problems that has forgotten its citizens. It’s never enough money for the people, only war.
Bernie Sanders wouldn't tolerate this crap, hell I bet if he saw this video he'd be mega tilted -- and rightfully so
It makes me very angry and sad to see problems like these persist in our country, and like you said, have a lot of people just ignore the problems and push for "dog eat dog world" crap as if that is moral and normal for a modern day society.
All the money goes towards making the rich richer and wars. Sad.
"Socialism never took root in America because the poor see themselves not as an exploited proletariat but as temporarily embarrassed millionaires" - John Steinbeck
And true socialism jus KILLS all their disabled and everyone else eventually too.... But go ahead keep beating that Marxist horse, I am Sure you are all the noble anointed compassionate special ones that will usher in "the Utopia" because unlike the rest of humanity in it's attempts for this Utopia that has left over 100 plus million Dead, mass starvation, genocide, poverty, enslavement your hearts are pure, uncorruptible , completely selfless knowing only what is best for all...🤣🤣🤣🤣🤪🗑️
If you want to impose socialism that's fine just do it at a state level. Socialism will never work at a national level because of how decentralized the nation is. You think America is divided now just wait when you start messing with people's money from different states.
@@LDuke-pc7kq who are these socialists who killed disabled people?
I hope you aren’t referring to the Nazis who were socialist only in name
@@oliveraparicio8464 wut?
@@julesjules5439 the nazis were definitely socialist and not just in name. They implementated social policies such as restricting free speech, press censorship, banned opposing political parties, consolidated the trade unions into one big state controlled conglomerate, redistributed wealth, slapped on price and rent controls in the economy, the state had control over the distribution of raw materials rather than letting the free market forces work, and dozens of other socialist policies.
So yeah, it turns out the National Socialist Workers Party of Germany was very socialist indeed.
I can’t imagine the pain the parents must feel knowing they will not be around someday to look after and be a voice for their adult children. Knowing that the system we have is inadequate at best and in many instances non existent makes it that much worse. A society should be judged by how they treat their most vulnerable citizens and the USA NEEDS CHANGES.
Let’s think about those with disabilities, not just their carers. Don’t you think it would be more terrifying, knowing someone could put you in a prison for the rest of your life? Have you sterilized against your will? Those are valid concerns about carers, but let’s focus on those who are literally facing the struggle.
And these are kids/adults who HAVE parents who love them, imagine the kids/adults who have no one...
It’s called a lifelong dedication that many of us have experienced. We jail prisoners at $50,000.00 each per year. But nothing for parents with a disabled family member.
Thank you for covering this important matter. In future, please also include the voices of actually disabled people affected by this-not just parents. Part of the problem is the dehumanization of disabled people/ failure to see us as actual people with feelings and humanity. To not even give us a voice is to reduce us to objects-much the same way as the Eugenics inspired state healthcare policies do. This has to change. I live in Pennsylvania. I am directly impacted-yet I am not even granted basic ADA civil rights to access INFORMATION about my healthcare options. I want to be an ally to other disabled people and their families. This is possible-yet my voice is considered so insignificant that in your video, footage of bleating goats takes precedence over the voices of actual disabled people. This is not a criticism of the amazing mother, who raises farm animals to help her daughter-it is a criticism of your lopsided journalism. Please rethink your own attitudes towards disabled people.
Thank you. The irony of this video is they mention "people falling through the cracks" but then don't get comments from any of those said people
As someone with epilepsy, I'm glad they're shining a light on disabilities. Smh soo many of us are trying to survive but can't cause most job won't accept us and the system takes too long to the point where you have to be dying just to receive the help you've been needing for years smh
Sorry 2 hear hang in there brother
@@coolcat5798 appreciate your support 💪🏽
As a social worker that specialises in the area of special needs and intellectual disabilities, in an EU country, this is absolutely shocking. I worked in Egypt and Ethiopia in the early 2000's and the level of care in these countries was orders of magnitude better than what is in the US (though it still was totally inadequate). What's so sad is that the funding problems for services aimed at people like Teneille is caused, politically, by the same two faced muppets that proclaim themselves to be "pro-life". In my country (Ireland) Teneille would have a person centred plan working towards 1, 2, 5 and 10 year goals according to her life course. She would have multiple disciplinary input, as well as family support. At her age, she would be living independent of family in whatever setting suited her no further than 30 km away from her parents or siblings. She would either be engaged in sheltered work/play therapies, special education or an actual job (she might make a great "greeter" with the right support person on the right day, one day a week for a start!) and this would be scheduled according to the working week. Its really hard to watch this. Her mum just seems like a treasure, but she wont be around forever.
Hey I was thinking of moving to Europe and doing my masters in social work. How easy is it to find work in social work? Especially as a foreigner (although from an English speaking country)?
@@watermelondreasymone7144 try the UCD or Trinity College social work Masters in Dublin. They are both 2 year taught Masters with major thesis. They have really strong applied practice components and are rated higher than anything coming out of the States! Also, in Europe, we are crying out for social workers, especially in the child protection field, but I would avoid that like the plague if I were you!
@@arfnore as someone who is autistic, "special needs" is a infantilizing euphemism, disabled is NOT a bad word!
@@aussiefurbymogwaifan6621 Fair enough, that is how you feel, but I know and work with a lot of people that feel very differently. Personally I feel the word "disabled" is overly negative; I would argue that every person has their abilities and disabilities but certain people require additional support to manage their disabilities and labeling people by their limitations takes away from what they can offer the world.
You have touched on the whole "labelling debate" though and I can assure you that there is no right answer. I have sat through whole conferences where unconnected policy debates were eaten up by angry arguments about what you use to refer to someone who needs special support. If you say "person who needs support" that could mean someone with a chocolate allergy. If you break it up and refer to specific diagnoses then it becomes unwieldy and risks defining individuals by their limitations. "Special needs", while not perfect as you point out, does indicate a group of people who have specialised needs. Its also the one I have found to be most universally accepted by people with those needs, so I am going to stick with it unless someone personally objects; then I will tailor it to the person in front of me.
@@arfnore Really there is nothing "special" about a autistic/disabled persons needs, they are just needs. This That I copied that I wish I could credit the person, but CZcams might delete it (ableist turds), explains why "special needs" is outdated and a majority of the autistic community don't use it: "Disabled people's needs are not special, extra, burdensome or additional, they are human needs. Referring to disabled people as having special needs is inaccurate. As an autistic person, I need to be able to communicate and express myself, that need to communicate is not special, that need is the same as every non disabled person. I might just need accommodations in order to communicate. The term 'special needs' makes it feel like accommodating disabled people is optional, which it is not. The term special needs is also associated with special treatment too and it gives society the impression that instead of accessibility being a right, it is 'special treatment' or a 'special privilege.' I want to see disabled people's accommodation needs normalised and the term special needs does not do this for me. It 'others' disabled people. It separates disabled people's needs and the needs of non disabled people. When I was labelled as having special needs as a child, it took away my ability to feel pride in my disability too and see disability as part of my identity. The term special needs often infantilises disabled people too. I want to see disabled people's accommodation needs normalised and the term special needs does not do this for me. It 'others' disabled people. It separates disabled people's needs and the needs of non disabled people. When I was labelled as having special needs as a child, it took away my ability to feel pride in my disability too and see disability as part of my identity. The term special needs often infantilises disabled people too. If disabled people's rights were seen as the rights that they are (instead of being seen as extra, additional or special) then perhaps wheelchair ramps would be in every building, plastic straws would be available to those who need them and disabled toilets would be made to be available and accessible. Instead, disabled people's accessibility rights are seen as an afterthought. Disability is not special, rare, exceptional or unusual. Disability is a normal part of life. The term special needs makes it sound as if it is unusual or rare. This too heightens the inaccessibility cycle. If people believe that disabled people are few and far between then people don't see the point or the benefit in accessibility. Accessibility is however vital. Sometimes people say that they don't see my disability but just see my needs, specifically my 'special or additional needs.' I feel that this is often because people see my disabled identity as something inherently negative, which I guess is part of growing up in a society which sees disability as something to be ashamed of. I need people to recognise my disability. I am exhausted by the euphemistic terms used to describe disability." Also those disabled people who think "special needs" is fine to use, is probably because they have been learning about disability from abled people instead of disabled people themselves!
A country needs to take care of its own before it can take care of the world 💯
Having a child with a disability can be very stressful and draining from time to time, especially when you can't get any help.
Most definitely my son is 7 with autism
When healthcare discriminates against people based on race/ethnicity you inadvertently end up discriminating against your own demographic regardless of preexisting health conditions, gender, or age!
That literally doesnt happen.shut up
They way kids with disabilities are treated at schools are horrendous and the immunity protections against the schools should be abolished.
@Beautiful Loser: I was one of those abused kids in school and behavioral schools. Im an adult now. Disabled and disadvantaged. You dont know the half of what goes on in the schools and communities unless you have been there and delt with it and its not just the kids but adults as well as the abuse continues. Im not welcome in the community im currently in, still put up with abuse and neglect from people and healthcare people. I no longer see doctors, am isolated and since communication is a problem for me, i dont talk to anyone. I was mostly non verbal til age 10. I suffer inside and no one knows a thing unless i go into severe meltdown. I advocate for abolishing the school protection protocol, stopping the neglect and abuse and dismantling the staff that do these things to kids and adults. I have never supported public education as it is government run.
I was harassed by a teacher at my special education college program for adults with disabilities. When I spoke up they told me not to criticize staff and do nothing to protect me as a student.
@Flat Sign My staff at my day program for adults with Autism are wonderful! I am thriving! Some of my teachers at my school were good and some were bullies. I did the best I could in my special education school and my special education college program for students with disabilities. I am grateful to now be in my day program for adults with Autism where I am getting the help and services I need.
@Flat Sign Thank you!
@Flat Sign Yet the wonder and complain because we are the way we are now as adults. Sounds like you support the abuse and ABA therapy. Im unique in my own way and will not follow the worlds universal stupidity. Thats dangerous for the world following the universal stupidity method. They can keep there ABA. ABA to me means Abuse-Behavioral-Application. I wont go to a adult autism day program because of the abuse I went thru when I was younger. People are not forgivable to me anymore. Ive tried to keep it in the past, but community and people stupidity runs rampant and continues with Autistic and other disabled individuals like me.
This breaks my heart. I have worked as a case mgr for over 30yrs, most in mental health but other diagnoses as well. I have always loved what I do and have never wanted anything else. It is hard though because you are expected to provide a list of services to a case load that continues to grow while funding continues to be cut. Programs like ACT teams, Partial Hospitalization Programs, Waiver and other federally funded programs that are so beneficial in helping people with disabilities lead lives that give more independence and community inclusion continues to experience funding cuts. Further direct care positions and other entry level positions are not consider professional positions so only minimal requirements like high school education and minimal age of 18 or 21. No experience is usually required and pay is often just above minimum wage. It is difficult and you have to want to do it for the right reasons ( many take job because it is easy to get but have no idea what it entails) so turn over and burnout is high. The system is broken at every level. And sadly I and those I work with do not see it getting better anytime soon. I donate my services now so that at least some people can get the full amount of services they need w/o having to worry about not having the insurance coverage. I wish I could do so much more.
I’m autistic. Please listen to us not just our parents/caregivers. I need full time care but I deserve to be heard.
Forcing the disabled community to communicate bi proxy is one of the numerous way the system dehumanizes us to advance it's own politics. I'm looking to unite with others to fight the genocide that is taking shape against us in the united states. Please message back if your interested in taking part.
I am interested. I am disabled and also want to fight back. @@citizenx3729
Thank you for focusing on this issue. As the 60 year old caregiver and parent of a 30 year old daughter with severe disabilities, I can tell you that even with financial resources, it is so hard to find good help. It’s also hard to trust when your child cannot speak and tell you what kind of care they receive when you aren’t there.
I used to be a case manager for people with intellectual disabilities. There were times where I’d do an evaluation for new slots that would open, and it was clear that the person needed services, but there’s always someone else who has more emergency needs. It’s a completely broken system.
We have issues with my daughter here in Mississippi. My wife can’t work ,has to take care of her full time and take her to multiple therapies and appointments a week. They won’t help with anything.
I have invisible disabilities that still let me work full-time, so I know I have it good. And I live in Canada, so I have access to decent care, for free. I can't fathom living like this, especially to a more severe extent if my disabilities were worse, in the US.
I have a disability and require certain care so this horrible fear I have that the care I need will be ripped apart from when my government decides I don't need it anymore. This is a barbaric system we are living here in the U.S
Same. Canada’s system is very flawed and needs work... but nothing makes you appreciate it more than living next to the US where it’s borderline abysmal.
@@chemoboy-dannypheleps9234 borderline is being a little bit generous
These people get checks (not a lot to live on) and free medical care because they are fully disabled.
@@alexlewis8143 Source?
People talk about how people “abuse the system”, but never how the system abuses people
Me and my wifes struggles our son is now 23 he's great he's amazing but help doesn't come along way for him. I feel there pain 🙏
I have days where I sleep until 2PM and do nothintg.... I can't imagine being in a position where your daughter literally relies on you to do EVERYTHING... that poor women, please let's get together and help them...
FACTS YO
I know very little of GoFundMe, but if the story of the daughter is true, someone should touch base with them and set one up.
I mean, a price of coffee from a few hundred people at least gets her a new wheelchair no??
"Keep your legs closed"
There's your help lol
@@Rocky13Ray Having a kid doesn't mean you are ready to take care of a special needs child for the rest of your life. Yes, it's a risk you take, but most people have the it won't happen to me additude, as do I. But you don't know her story, she clearly is financially stable enough to have children, but just needs some help. You don't know her story, her husband could have died for all we know. Saying "keep your legs closed" doesn't solve this problem. This isn't like a teen pregnancy issue, this is a normal woman who had a child and she turned out special needs and has devoted her life to take care of her. If you think the answer is keep your legs closed our world would not be populated in 90 years...
@@ATLTraveler Nice reply, but it looks like you are dealing with an amoral sociopath.
When that father said who will love my son I couldn't stop crying. It is just so terrible when society is failing these disabled adults. There are plenty of services it seems available for kids but not adults. It's almost as if once they're out of that cute adorable stage the state and people don't care. We should do better.
Pennsylvania there's a waiting list for everything. No qualified staff available or consistently. I feel your pain Mom. We have to continue to be the squeaky wheel for our children. Demanding stability and community comfort for our differently abled adults and children and not setteling for what's available. 😕💚
What state doesn't have a waiting list?
BTW I live in FL and the attitude is pretty much "pull yourself up by your bootstraps, there's so many people worse off... "
@@the_rubbish_bin you're suffering is NOT okay, and I'm sorry that you're on a waiting list for whatever it is.
Some of us don't have any more bootstraps bro. It gets to the point where some people are literally killing themselves because there's nothing more they could physically do, so that it mentally plagues them and other people's around them.
This person is right though and saying you got to be annoying or a squeaky wheel to get s*** done. I was homeless seven times since I was young for long periods of time. I've been in and out of shelters and all that. S*** has got to change for the children. As much as Americans want to say we're a superpower there's too much s*** in our backyard that we're not taking care of.
@@the_rubbish_bin Flori-duh...the manipulation of the disenfranchised in FL is incredible. Next they will have you believing that they are short their quota of billionaires because the poor won't work for free. Open your eyes.
I'm in the same situation. In Michigan.
The system isn't broken, it's rigged.
There is no help for parents like us.
I had to stop working to care for my son, we lost half our income and the expenses are astronomical.
It is really, really hard.
Aside from the medical and financial struggles, we are completely isolated. My son has no friends, no group activities, no friends at birthday parties.
It's like society has just thrown these kids away. His dad and I haven't gone anywhere alone in over 5 years. Childcare is expensive.
Our tax dollars are spent on ridiculous things, the amount of waste is insane.
They're doing a lottery for a million dollars, for those who got vaccinated. Yet we literally have this going on.
Our government is committing crimes against humanity with their spending waste.
People are suffering, and our gov doesn't even care.
God Bless these parents!
Their love and tenacity is inspiring
...apparently, prayer isn't enough. God blessing them doesn't seem a viable option.
@@AudiTTQuattro2003 its not we need action
Amen
I wish the other sides of disability were shown in this vid too. How this effects different versions/levels,etc.
This was a good insight into what has been going on with trying to get services and needs met, and how it’s even harder this past 11/2 years.
Do a doc on invisible illnesses/disabilities attempting to get treatments,services,etc and you will see a world you barely have a clue about. And I would say it’s even worse to get needed services because of this u fortunately 😣
Oh and if you do, try to focus on adults. Many,including myself did not have many or no diagnosis till older. And that is a major problem because the older you are, the less help there is. So many are geared towards kids but it can be a specialized treatment places/options for kids will be say 200 options in the area but for adults? Your lucky if there’s 1 or 2, and that’s in a decent metro area 🙄
That cause they are hoping were died by then big guy. Let's unite to challenge these crimes against humanity. Message back if interested.
tax the ultra rich!!!! my goood!!! how is it possible that the gov is letting down this population!!!
They do tax the rich, they actually tax them more then they do anyone else.
@@ironrangerw6r1 ppl are so out of touch if they think it's about taxing the rich.
Conservatives are pro-life, but not pro-care for the needy. Fucking funny how that works.
There's never money for this... money to expand the military? Blank check...
Did anyone else cry or am I just emotionally unstable
If this doesn't bother people then that's "unstable".
It angers me that this happens.
No, this is worth your tears
@@amranxtv3261 my tears are of anger.
😓
I am almost 37yrs old & have been physically disabled since I was 12, and became a lifelong medical lab rat against my will.
I had full open-back surgeries at 15 & 16 that failed & involved removing half the disks in my back & medical malpractice that destroyed my future & quality of life.
I had an irresponsible, selfish, bipolar mother who not only didn't plan for or care about my future, but took my entire $12,000+ back disability check & 80%+ of each monthly check after.
I never had a chance in hell at getting into a vehicle of any kind (which I was & could be very capable of driving) & that one setback has been the factor that not just stunted my social life at the time I was a secluded, sheltered, homeschooled teen lab rat & antisocial geek.
It also kept me from ever being able to experience anything outside a hospital, Dr office or Walmart. It stopped me from having any memories or anything to look forward to. It stopped me from being able to get to any specialists or doctors I badly needed (& still need) to see, which could have increased quality of life 100x.
It stopped me from being able to move to a state where not only could I be with real specialists, but could access affordable meds that currently cost HALF my disability income, leaving me $300-350/month to pay all other bills/expenses.
I've spent a decade on my own, with almost zero financial support & less than zero physical or emotional support, from a very large, capable, well-off family, most of whom act like I don't exist anymore. The stress of doing everything alone, on an impossible budget, with impossible restrictions, for all these years, has led to my teeth ALL having to be pulled after they crumbled & fell apart from decades of clenching & grinding, I've had 2 massive stress heart failures at ages 27 & 30, leading to my quality of life being somehow even worse...
I went from having real dreams as a teenager, of moving out west & being a script or fiction writer, to dreaming of getting anything motorized at all, even a moped f I had to, and just leaving everything behind to go out & LIVE as much as possible in the little time I had left, to now... Since my first heart failure & my DNR wishes going ignored, all I have wished for, more & more every day, is that I just not have to wake up to this hell anymore...
The American Dream 🤕⏰💀
My son has special needs. Autism, global delay and scoliosis. He's my little best friend and he's the sweetest and smartest little guy ever. That's why I'm fighting now for my son's future
I don't get why they have to close the institutions too. They can expand group homes while also keeping a few institutions for those who need them.
Thank you for spreading awareness on this topic
Exactly " We dont want to be pitted we just want some help" Im a 50 year old mom of 22 year old twins with Autism and one more severe than the other. One high functioning and one is about the age of a 3 year old in her mind. She is taller than me and very strong and combative. Illinois has NOTHING for her or her sister. it is just awful
This is very sad 😥 and heart breaking 💔.
How are you coping and May God bless you and Family for me.
Fun fact from a parent of a permanently fully disabled child. As sad as those parents looked, they were killing themselves to hide it for the cameras. It's so much harder than you can possibly imagine until you live it.
Where are the pro life republicans now?
Pro life republican is an oxymoron. They're pro birth, not life
That's a good thing
This reminds me of being a caregiver for a loved one with Alzheimer's. You get an adult body but often childish behavior, and in the case of Alzheimer's, a formerly fully-functioning adult who's no longer aware they are not, and who is trapped in there, but with decreasing ability even in basic things like feeding themselves or bathroom hygiene. They can't remember short-term, and in some cases long-term. -- Dealing with a teen or adult who has cognitive problems so they are essentially like a small child looks much the same. -- I feel for that mom. I know what it was like to take care of my grandmother for years.
I applaud you! Well done! Caregiving is very sacrificial....
As a residential dsp its also a huge staffing issue to up to full staff and the pay is also an issue when the staff are not valued and are constantly over worked
I'm in the exact situation(s) depicted, just backwards. My mom is physically disabled and has been since I've been around 12 years old. I've taken the role of being her caretaker when I turned around 18, because I have no other family and also because I can't imagine throwing her into a state facility or allowing a stranger to help care for her (or our run down 1930s) house. I also live in PA, so I understand fully what this video is talking about. It does depend on what county you are in as well, but for the most part this entire state is probably one of the worst states to live in if you are disabled. ...And don't even get me started on the lack of proper medical care :/
From as far back as I can remember, my mom and I have always 'fallen through the cracks' so to speak. I try to work when I can find suitable jobs but there's numerous obstacles I face just to hold it down. Just as the lady mentioned at the beginning it's exhausting when you take care of someone else (when they need around the clock care) and also try to hold down a full time job. There's absolutely no programs or funding available to me to help sustain us, specifically financially. I'm in debt from student loans (which yes, I just keep deferring) but yet, I've been unable to finish my college degree since I made the decision to stay home and take care of her and the household (Online college is a joke, I won't bother). It's an uphill battle, and I remind myself everyday that I'm lucky to have what I have, but you start to feel less and less interested in any aspirations you once had as a young adult the older you get because of the stress and anxiety. I figure I'm going to be left homeless once my mom's income goes, because I won't have anything to fall back on. It's an awful outlook, but unfortunately I know I'm not the only one in a similar situation, and it's even more depressing to know there won't be any help to come.
I don't know why I posted this but it was cathartic for me, so I guess in closing, thank you for bringing attention to this topic, especially since it's in PA.
Glad we shed light on this! I do hope we also recognize and include the people who are high functioning with disabilities, who seem like typical people but still struggle. I feel like they often get overlooked because they seem so “normal” on the outside. Or just carry it so well.
But again, glad we are bringing attention to all this! Great job thank you!
Yep I know exactly what this is like because I have a handicap as well (I dont like to call it a disability), but mine is Aspergers (aka high functioning Autism). I was technically given up on back in third grade when I last had some speech therapy classes which really didnt help me at all. I totally agree with this title as our nation is truly a broken system that only caters to the rich, which the poor and those with handicaps are left to struggle. Unfortunately there are similar situations to the one in the video from all over America & I dont forsee it getting any better anytime in the future...
As somone who also has high functioning Autism, shut up,stop making excuses,get a job and do what you wanna do.no one cares you or I have autism,and making excuses doesnt pay the bills.shut up,and do what you got to do.begging for money and complaining ain't it and having autism doesnt mean sh!+. People just need to learn to use their brains.
We all need to see where all tax money is going to and who’s paying.
The budgets are public.
Poor mother, she is working hard to keep it together for them both. She is just positive and understanding. They do need help bad.
My son with Cerebral Palsy turns 19 this year. We've been dealing with waiting lists for 19 years for various things. Bless those that work hard to help.
What type of things?
Nice to meet you am sorry for infringing on your profile,do you mind be friend.... 💕 💕 💕 I don't mean to be rude commenting on your post without your permit, if your wouldn't mind I wish to know you more better God bless you 💕💕💕♥️.............. .
Healthcare should have never become this privatized. It’s one thing to hold someone accountable for overspending on a credit card for stuff, it’s another to hold someone’s health, heck, life, for ransom. You got a disease you can’t afford the medicine for? Better figure it out, quick. Sorry. Better hope you never need a surgery. That’s gonna cost a year’s salary. If not too. Hope you saved good.
Then they wonder why people turn to crime and turn those people into felons which makes it even harder.
I’m disabled waiting for disability and have been denied already. No financial assistance or anything. It really sucks.
I feel so grateful that my 26 yr old disabled daughter has a respite worker who took her into her own private home to care for her, compensation by the state. If she was to live with me, I wouldn't be able to get any assistance from the state, other than her SSI, which would make my own SSI check way less, so we couldn't afford to survive. It's so sad that there aren't many people who are willing or qualified to be inhome caregivers
9:31 "Thomas, you changed my life." I felt that deep inside my heart - as did clearly the reporter. Heartbreaking.
9:32 I am bawling like a baby. Absolutely beautiful soul. 😭
I experienced this while caring for my bed bound and incontinent father in law. COVID made it worse. We are under 30 with two small kids. I had to send him to a nursing home even after promising not to because there was ZERO support. It is too much for one person to handle. So much respect for these parents. I can’t imagine if it was my child.
On the system: unfortunately, it is based upon a historic model where the mentally handicapped and seriously handicapped would be housed in a large institution; an institution where neglect, disease, and cheap diet would cause the weakest to die early on.
What a great mother. She’s a joy.
Also, I love Joeys double hat swagger.
These circumstances are exactly what I face with my special needs daughter. The system seems to not have realistic accommodations for special needs individuals. For those parents that deal with this every day remember that you are not alone and nobody will advocate for your child more than you. Demand the best for your loved one no matter how exhausting it might be at times. And as always rejoice in all of the small victories along the way.
The sacrifice that those parent with developmental or intellectual disabilities is unimaginable. I really wish the best to them and hope they get more help soon.
Public school children with developmental/intelectual issues are entitled to supplemental assistance, but during COVID.....the teachers unions were able to get that suspended.
God bless you, very special person you are.
My sibling has mental disability to the likes in this video - the government hasn't given an oumce of support. It's difficult when you care about someone but one needs to dedicate a significant amount of time to meet his needs. To my knowledge, unless both of my parents pass away we're not liable to a home he can live in. I emphasize deeply with the families in this video. There's so many struggles we have to contend with and that includes red tape.
Thank you for shedding light on something that needs to be addressed.
Yeah especially when they are in wheelchairs, canes, crutches, walkers, casts, scooters, ramps, face braces, and body braces
It makes me sick that with all of the wealth and resources in this Country, we are not doing a better job at taking care of our most vulnerable populations- the sick, the elderly, the mentally ill, the disabled, the abused and neglected children. It has been said that the measure of a community's character is how well it takes care of its most vulnerable populations.
I work for an agency that has numerous group homes in PA for people with disabilities. I can’t imagine having to make the choice of eventually placing your child in an agency. Because as the parent gets older, so does the child. I always feel so bad for the ones we take in who have lived their whole lives at home and then are placed in unfamiliar surroundings. I will say the staff here are amazing and treat our people like family.
I'm so glad that I've only lived in WA and OR. Never had to be waitlisted for anything and help was readily available.
This is so sad. I hope this mum gets some help.
What the parents fear the most is when they are gone, who will look after their kid. Who will be the one advocating for them? Like one parent said, she’s 60 and tired, but I can tell, if life gives her further life, she will use that time to be with her daughter. Breaks my heart.
“Thomas you changed my life, you did.” That really broke me. I am aware he meant it in a pure loving way , and I can see the immense love that father has for his son and it’s so heart wrenching seeing him sad because he truly is scared of who will take care of him when he no longer is able to 🥺💕 I hope and pray there will be a loving person to do so after his father , and for every ill person out there who never truly got a shot at life and depended on another . 🥺🥺
We need to be paying the relative caregivers... they can do better than 90% of professionals and deserve compensation. My state's medicaid has a program to do this, but its limited.
I was a caregiver...this happens all over the place...God bless them.
Really? God bless them? Didn't their "god" allow these people to suffer, and place the burden on their parents and community? Seriously, religion is poison and pointless.
These children don't ask to be born and death with dignity should be a law. Watch the video on CZcams about the 6 yr old that had cystic fibrosis and was on ABC that kept her lungs from filling up with mucus and her parents gave her the option to continue living like she was or to let them allow her to die. They gave that choice to the six-year-old and she said she did not want to go through what she was going through anymore. She consequently died. But it should be a choice not to live suffering and being a burden. I'm a nurse and have watched people suffer too much. If somebody even says that they don't want to go through any more pain and suffering they say that they're having suicidal idolations and put them in an insane asylum or a psych ward. People should have the right to die. These children are no different. Life is for living not just existing.
@@angelahall4402 ok....uh...im not religious...and that took a real dark turn....I don't think anyone was talking about euthanasia....
A video about accessibility and disabled people struggling and there aren’t closed captions to make it accessible to other disabled people? Vice, do better.
Totally feel for that mom... really reminds me of me and my mom taking care of my grandma, we couldn't go out sometimes I'd have to stay so my mom could have time for herself and sometimes I got to go out but for the most part we had to stay home it was 24/7 care and obviously it was out of love so I totally understand her... sorry for commenting twice but I definetly see the similarities and just had to get my thoughts out
As a disabled person myself my disability was taken away because I had "to much money" in the bank. I had $3000 in bonds that was made in my name by my parents made back when I was born or as a baby I'm not even sure that i had no recollection of and now bc I'm cut off I'm behind on bills etc. You are not allowed to have over $2000 in the bank cause then you are considered financially abled which makes no sense if there is no income coming in and now they want me to pay back $22.000 back to them. When trying to get help and speaking to reps i had one woman literally huffing and puffing while im speaking a gentleman who was real nasty and told me it wasn't his problem and someone else hang up on me. The system is not only broken but those who work there do not have social/ppl skills and act as though they are doing you a favor. They are suppose to be there to help you but instead you feel like you need to tip toe around them, beg them and you feel like a burden or second class citizen.
Heartbreaking