I can't thank The CdLS Foundation enough for this conference. It was such a blessing...gosh, beyond a blessing! I left loving my son, Elijah even more! It's a journey, but knowing you're here and all the other families I'm connected with makes a big difference, and I don't feel alone. I can't wait until Minneapolis in 2018. Thank you for all that you do! God bless you! 💜😀
Im from Saudi Arabia and my first son Abdulrahman has Cdls , me and his mother so scared about his future but actually this video gave us hope about him, thank you so much and We hope visit you soon.
My beautiful daughter Nicole was born with Cornelia De Lange syndrome. She is 30 years old, and has surpassed many obstacles. She is living in a residential home for adults with disabilities. She has a 1 on 1 and is doing well. She does have issues with frustration and anger...but all in all, she is doing well.
Jewel Haines that's awesome to hear! I don't know a whole lot about this, as I just looked it up. but I bet ur daughter is beautiful and you're very proud of her ❤
@@hurryupnow1 Probably cause she is violent towards people, I'm not a doctor, but I've done some research on this syndrome and people with CDLS have similar behavior to those with autism, and sometimes violence is one of them.
God bless all CDLS children and their families. It always boggles my mind that a fertilized egg is SOOOOO tiny and within that TEENY TINY start of life are even TINIER bits of DNA that can have such huge consequences.
Hey & that would not be so bad, but it’s not genetic, or contagious. My son is 4 and adorable . Not what we planned but if doing the journey again we would defo take a detour to pick him up.
The first little boy with the glasses... HE IS SO SO SO ADORABLE!!!
He has a life limiting deformation but yea super cute. 😂
Mad cope
The baby with the glasses is the cutest baby I have ever seen😍
the little guy with glasses 😍
I can't thank The CdLS Foundation enough for this conference. It was such a blessing...gosh, beyond a blessing! I left loving my son, Elijah even more! It's a journey, but knowing you're here and all the other families I'm connected with makes a big difference, and I don't feel alone. I can't wait until Minneapolis in 2018. Thank you for all that you do! God bless you! 💜😀
Did they ever find out what causes this?
Daniel is so cute! Oh my goodness! What a blessing!❤
Im from Saudi Arabia and my first son Abdulrahman has Cdls , me and his mother so scared about his future but actually this video gave us hope about him, thank you so much and We hope visit you soon.
خالد الشهري i hope your son is better now.
Are you still scared ?
I was scared but now not so scared
😢I wish this was around in the 60's through the 80's while my sister was still here
My beautiful daughter Nicole was born with Cornelia De Lange syndrome. She is 30 years old, and has surpassed many obstacles. She is living in a residential home for adults with disabilities. She has a 1 on 1 and is doing well. She does have issues with frustration and anger...but all in all, she is doing well.
Jewel Haines that's awesome to hear! I don't know a whole lot about this, as I just looked it up. but I bet ur daughter is beautiful and you're very proud of her ❤
why have you put her in there?
@@hurryupnow1 Probably cause she is violent towards people, I'm not a doctor, but I've done some research on this syndrome and people with CDLS have similar behavior to those with autism, and sometimes violence is one of them.
Daniel is sooo cute. What a doll
The music makes it so you can’t hear what the people are saying
Cdls kids have so much hair and crazy eyebrows, wonderful!!!
God bless all CDLS children and their families. It always boggles my mind that a fertilized egg is SOOOOO tiny and within that TEENY TINY start of life are even TINIER bits of DNA that can have such huge consequences.
i actually have mild CDLS! if i ever have kids they will 100% have CDLS! I am 14 years old!
Good
Hey & that would not be so bad, but it’s not genetic, or contagious. My son is 4 and adorable . Not what we planned but if doing the journey again we would defo take a detour to pick him up.
Los amo con todo el corazón cdls me marco la vida con mi pequeño facundo 💜
Don't have kids
Don't have any kids then
Aww he is just a tiny cutie 🥰
❤
Beautiful children
Do you watch Freya?
They all have same eyebrows
I’m from Iraq my boy kako has clds
Как жалко детей!
What's wrong with their hands tf
It's called acheiria, the lack of development of the hands. Don't know why you had to say 'tf' to that.
@@-SUM1- tell that nigga gimme a high five 😂
Why would you say something like that? Don't be rude.
@@Roy-ol3qx lmao
No.