My Story: Obstetric Cholestasis | A Thousand Words
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- čas přidán 22. 07. 2024
- I wanted to share my experiences with Obstetric Cholestasis to raise awareness and help prevent the same frustration and anxiety I experienced when trying to get a diagnosis. Feel free to ask any questions and I'll answer them as soon as I can.
British Liver Trust website for OC information: www.britishlivertrust.org.uk/l...
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Thank you for sharing this. I am a third year medical student, and just learned about obstetric cholestasis today. I like to check the internet to get the patient view of an illness, so that's why I watched your video. I want you to know that your story was memorable, and if a pregnant woman ever comes to me with itching, I'll take her seriously. I also wrote down the diagnostic criteria: Anything over 14 micromoles/L is considered OC. You were heard!
Truly,
future Dr. Luther
Thank you so much!! It would mean the world to me if my experience could make a difference.
@@AThousandWords i know ur post is of last year and i'm texting u now so apart from this read my latest comment n rpl soon
I also has icp and i am not that wealthy for tests and medication like these doctor of mine she told me to get tests done for bile acids and LFT but tests are so expensive i couldn't afford them...so i am bearing the itching and pain by my own amd itching is so intense even sometimes i cry....i just wanted you to know thank you if uh have any home remedy that is helpful in my situation plz do tell i am 31 weeks pregnant
@@NehaSharma-iz2gu How's your condition in during pregnancy with bile acid? Is your baby safe ??
Normal delivery or C section?
I have no more itching now before I was just itching on my neck & back but now is ok my Dr told me again take test after 4 weeks ..
My baby was die in womb 2years ago that's my Dr said again take test & it's for helping to know condition
Please let me know about you. .....?
Thank you for making this video! So sorry about your terrible experiences, but I'm so happy that they ended well! I was just diagnosed at 30 weeks and two days on the 2nd. I am honestly so freaked out and this helped me understand a lot more about cholestasis.
I'm so glad you got a diagnosis. I hope all goes well and that you can be as comfortable as possible until your birth.
Thank you for sharing your story. Due to a condition differing from yours, I, too had that awful itching which left bruises all over my body. I love your vlogs.
I'm sorry you suffered with that.
OMG Jen! what a nightmare, thankfully your beautiful boys arrived safely in the end and thank God you did your research so you could put pressure on the obs team.
+Neiceynoo I'm so grateful my story had two happy endings.
Thanks for this. I'm so happy that you saved your baby.
This sounds like an absolute nightmare, i'm so sorry you had to go through this. That itching sounded horrific. So incredibly scary that no one took you seriously. I'm just so pleased to hear that this had a happy ending.
+Mama's Studio Thank you, it was pretty grim but happily ended well, for which I'm grateful.
Wow thank you for sharing your story! I am 32 weeks and was diagnosed with OC 4 days after I had called my doctor complaining about itching. They were very proactive. They got me right in the next day to test my bile salts. One week later, I visited a specialist and now we are planning to induce at 37 weeks. The itching, frustration, and anxiety wondering if your baby is ok is stressful enough, I cant imagine having to go through what you went through. Even though it's a rare condition doesn't mean doctors/midwives shouldn't take it seriously or at least research for themselves. Thanks again for sharing!
That is so good to hear that your doctor is so proactive! I hope you can be as comfortable as possible for the next few weeks and are soon holding your healthy baby!
I'm so thankful for people sharing their stories like yours. Thankfully, my medical team was way more responsive. I was just 38 weeks when I started itching, so at least I was full term. I called on a Sunday when the itching started and the on call doctor immediately ordered the labs for liver and Bile Acids. However, the lab didn't open til Monday. Then the bloodwork was supposed to take a few days, so I had an appt Thursday. Half the bloodwork came in by Tuesday. The Bile Acids were not back yet, but liver was looking not so normal. So I called and asked if they could move up my appt. My medical team thankfully opened something up that day. Even without the Bile Acids, the liver function and symptoms were concerning enough, they scheduled a c-section for Friday (I had two previous csections. I really wanted a VBAC, but with the previous csections, they couldn't use relaxants for induction and my cervix was too closed for a balloon. I just wanted baby out like you, so I sucked it up and said do the csection). Baby was born safely on Friday. I only had to wait 5 days and it was torture. I feel so bad you had to wait so long. I got by Bile acids back the day before the c-section and they were 15, so I am glad my team was proactive a scheduled it. Did you continue itching at all post partum? I know they say it goes back to normal. I am itching less, but still have short episodes. Perhaps it is the pain meds, but just curious if you had any lingering symptoms postpartum. Glad your babies are safe. It is terrifying knowing within hours, your womb can become toxic and having to wait days or weeks.
I am crying watching your video. I am so sorry nobody listened to you! That makes me sick, good for you for pushing for your rights! I am speechless and my heart breaks for the trauma you went through.
Thank you for bringing awareness. I am in the similar position now - my doctor is not taking my condition seriously. I feel like this pregnancy is a constant uphill battle.
I'm sorry you're struggling with this :( Will your partner help advocate for you? Definitely keep pushing! I wish you all the best for a happy and healthy outcome x
This is so insane! I knew what cholestasis was and I was itching but I didn't think it was bad enough to mention, but then at my 33 week app my doctor noticed me itching and asked some questions, and he sent me in for the test just to be safe -lo and behold it was positive! We started treatment and scheduled the induction for 38 weeks. The sucky thing is that I most definitely had OC with my first pregnancy too, probably even worse, but when I mentioned it to the ob I had at the time, she said it was probably nothing. Our baby girl came at 38+4 all on her own, but I shudder to think what could have happened if she cooked for longer, the cholestasis definitely would have affected her if she hadn't known to come out on her own! Thank you for sharing your story. Doctors need to listen to women about their own bodies!!!
What diet u took during that period
So glad you were persistent in getting a diagnosis. If you hadn't, outcomes could have been very different . Thanks for sharing your story.
Thank you so much for this video and sharing your experience! It’s provided a great deal of reassurance and clarity on what to do.
I know someone going through this exact situation & it seems like the medical professionals are also slacking and not taking it seriously for us too!!!
Thankyou for sharing, I noticed really quickly that I was itching unbearably and remembered some information I had read about it. I am currently awaiting results I am terrified for my baby. The midwife really downplayed the seriousness of the condition which makes me feel like I am not being listened to!
I had it twice...early onset with all symptoms. You are SPOT ON describing this torturous itch! People don't understand!
They really don't! I'm sorry you've had it twice.
You’re right my stomach hurts to itchhh so I just rub it now
What were your symptoms? I'm in 2nd trimester and believe i have it
Your story really hits home for me, even though there are stark differences from my own. While i was lucky enough to have an OBGYN who had knowledge of ICP, I did have a number of other conditions that, all together, made induction at 37 weeks to the day pertinent.
I had hyperemesis gravidarum, borderline gestational diabetes, the ICP, and my son was considered to have IUGR. Luckily he only spent a few hours in the NICU and was a generally healthy 4 pound 10 ounce baby. Otto was very slow to grow and catch up developmentally with other babies his age, but at 10 months old he has finally caught up and I couldn't be happier.
I'm so glad you had a good outcome, what a lot to bear in one pregnancy. So thrilled for you that your story has a happy ending!!
Thank you for sharing your experience. I was literally crying while watching this video. I’m 34 weeks today and diagnosed with OC just couple of days before. I feel like im on fire, without knowing what’s going on with my child. Last night, I couldn’t feel my child for a while and I immediately rush to the hospital. But thankfully my medical staff is very proactive about it and they do everything they can do to make me and my baby feel safe. But I’m really worried.
I hope that you can deliver soon and have a positive outcome and a healthy baby xx
How r u now did your firey feeling gone now
Thank you for sharing your experience, I have been itching for almost two weeks now and as you did I looked up online for some answers...my husband is a doctor and he also doubted me about the itching saying that for having OC I had to have jaundice too. Anyway, now I'm waiting for the test results and the clock is ticking....I hope they take things seriously, otherwise I won't be afraid of being the "crazy pregnant lady"!
I'm glad you have been able to get the tests done an I hope all goes well with the rest of your pregnancy! Let me know how you get on.
I’m a nurse, now a midwife, I have some knowledge of this, further, doing my own research, I wanted to hear a video of someone who had experiences of this first hand. I’m sorry no one listened and advocated for you. I’m sorry it was so stressful for you, hubby and Bub. All the best. ❤I will always LFT and salts because of you.
I think I have Cholestasis. And I'm waiting on my results. Thank you so much for sharing!!
How did it go
Thank you for sharing. You have been so brave and it's good you listen to your body and instinct.
I am only 31 weeks and my bile acids are 10. I was wondering if a diet would help the liver.
I was diagnosed with cholestasis of pregnancy at 36 weeks, my major symptoms was not severely itching, but rather severe diarrhea and inability to gain weight in my third trimester. I only gained 13 pounds and my baby weighed 5 lbs 13 oz. I had mild itching in my palms and feet. FYI having been diagnosed with cholestasis gives you higher chances of having gallbladder issues in the future.
Hi, I am diagnosed with ICP.. I live in India, but i am currently in Canada to give birth.. I had itching to which I though it normally happens with pregnant women in third trimester, and my mum had it too in her last pregnancy with my brother and didnt take it seriously untill I contacted my gynac in India and told her my concerns as I wanted relief with itching and my mum was flying soon to see me so I could get any topical ointment or lotion to put which eases my itching.. which ended her telling me that she thinks its cholestasis and I should contact my doctor in canada asap.. then I started researching about Cholestasis and came to know about this in depth through your video.. I really really thank you for this video, it gave me a clear understanding and a course of action which needs to be followed if in such situation.. Im so grateful I came across this video.. I am in my 33 week so I had plenty of time before things could be really serious.. I tried speaking to my maternity clinic and they did not hear me out at all saying all that i was saying were not symptoms of cholestasis and that they could not write me the tests and I had to get back to my GP to get diagnosed by them first.. So my GP heard me and wrote me down the liver functions tests which came out the way they were expected and then the maternity clinic heard me and further wrote down the bile salts test as per what you suggested and the course of action has bedn followed.. I thank you immensley that through your video I got the strength and knowledge to fight through.. I cant thank you enough for this..
omg i love you!!! your personality everything rocks 😍
Thank you so much!
I am itching and watching your video...day after tomorrow I have appointment because I have all symptoms of intrahepatic cholestosis
I have had two high risk pregnancies and totally understand your situation. I had to actually switch doctors at 32 weeks with my first baby. Had I not he wouldn't be here. You do have to stick up for yourself and your baby when you know something is wrong. Please share your birth stories I would love to hear them.
+Clever Simple Chic I'm sorry that happened to you. During pregnancy you are so vulnerable and fighting an incompetent doctor or system is the last thing anyone should have to deal with.
Will do birth stories video, thanks for that.
I am dealing with cholestasis now and I'm 31 weeks and so scared I see a specialist next week and am on medication for it. Thank you for the video it helped me a great deal.
Hang in there, if you have been diagnosed and medicated and seeing a specialist you are likely to have a great outcome. I'm sorry you have it, it is miserable - all the best for the rest of your pregnancy and the birth of your baby!
+A Thousand Words 😀😀😀
Nicole Revette , i wanted to ask. Does the medication help reduce the itching to it eventually stopping?
How terrible! So sorry you had to go through this!
+Sarah D'Atri Thanks, I'm just grateful it ended well.
Thank you for sharing this video I’m waiting for the results which are coming in on Monday but I’m feeling really itchy
What were your results? Wishing you a smooth delivery and healthy baby, whether it's sooner or later.
I have four kids I had it with every single pregnancy. I use a brush to itch. And I am very miserable towards the end. Even on the meds. I am pregnant again and just waiting for it. Because they say you can have it with every pregnancy and even pass it to your girls. 😐 My babies came out fine with no problem 🥰🙌🏻
Hey i know this comment is old but i would like to ask you something
I need ur suggestions
I have your video to thank for why my daughter is alive.. i watched this around December last year. My girl was born Feb 3, I had to fight with my OB to get tested twice. First time negative, a month later 2nd time positive at 38 weeks was induced immediately. The OB and my whole family thought I was crazy and even my husband was sceptical but the inching hands were unbearable. My hands were completely black and my body had rashes. A day after delivery it just disappeared. So thank you!!
I am SO glad that my video helped you!! Congratulations on your baby girl, what a blessing that she arrived safely and that you felt instant relief!
My word!! 34 weeks & I found this after having mild itching on my thighs and belly at night. Thankfully, no other symptoms. Here in the states, my OB is talking about possibly inducing me bc baby’s abdomen is “measuring small” and you couldn’t get an induction?! Unbelievable.
Hello, I found you through my cholestasis of pregnancy research. I have not been diagnosed yet but have been itching for 3 days and being a nurse and doing tons of research I know this is cholestasis. I go to my doctor on Monday to run the liver function tests and bile acids and I just know this will be the outcome. Nothing is worse than the torture this itching is. I felt silly telling my mom about it but it really is taking over my life and so incredibly difficult not to feel depressed about all this. At least my midwife has taken my complaints seriously and are getting the tests they need to diagnose me. I’m only 25wks so more than 2 months of this. I’m sorry you went through such an awful time with your healthcare team.
I'm so sorry you're struggling with this. I wish for you the best possible outcome!!
Thank you for this video. I have OC for the second time. It starter at 14 weeks. The doctors in the Netherlands are saying it’s not possible. This kind of itching is the worst!
Hi, did you end up have OC? If yes how did they treat it & how did your pregnancy progress .. since u started so early?
i went to l&d last monday, the doctor sent me home with benadryl saying it’s an allergy because my hands and feet weren’t itchy.. i went back on thursday because it was just still so unbearable and my hands/feet were now itching as well. this doctor did all the tests, i should get the results tomorrow. they said he was insane for ruling it out and not doing ANY tests. it’s INSANE how we have to avocate for ourselves!!
Thanks so much for this video,my EDD is 4th April and started severely itching on 22nd March,though it had earlier begun with feet and hands,had to start researching because the medical personnel say it's normal and I shouldn't worry, maybe it's allergic reaction to food, water or lotion,yet am sure it's not the case.
Started with itchy feet and legs and now full body, especially in the night.
Hope I get help sooner.
How r u now I'm having the same
Very good video.
You are right, some of the doctor they don't know much unless you tell them what to do....And my doctor even told me the bile acid will be the same in 24 hours, i just want to know how and where my doctor graduated from..
I feel the same way . I'm absolutely terrified . And they make u feel crazy I would leave the hospital just crying . I been having problems for so long and no one takes me seriously . I don't know what to do
im going through the same thing im 38 weeks and my doctor wont listen to me cant get no sleep waking up every 2 hours in so much pain itching
I’m 36 weeks with my 2nd pregnancy and have just been diagnosed with cholestasis, and I can hands down say it’s the worst effect of pregnancy I have had. The itching is relentless, and it’s mainly worse during the night, and I can hardly sleep and when I do manage to fall asleep, I wake up due to the itching. My skin is covered in scratches and cuts because of how much I’ve been itching 🥺🥺🥺🥺 I’ve been put on a course of ursodeoxycholic 4 times a day for 28 days. There’s not guarantee the tablets will work but I’ll give them a go
Wow...geeeeezz how dificult! Those people are useless..im glad all went well.. I said my hands were mildly itchy they took my blood same day. They called me next morning saying I was to be induced 3 days later at 36weeks..all went well. Thank goodness. In those 3 days I didn't sleep but my baby was moving and that's all that mattered. Happy for you
I feel you. This is exactly what I'm going thorough. I'm in 34th week of my pregnancy and I'm absolutely clueless how they're going to do it in three weeks. I was mentally prepared for July first week but it has to be in early June.
kriti Gupta, How are you And the baby now??
I’m 14 weeks and I itch severely thrice to four times a week. My fingers/ toes itch, swell and develop allergy like mosquito bite. It goes away automatically after 15-20 mins. Is it something to be concerned about?
My sgot and sgpt is 55 and 67 which slightly high...and I have started the medication today
I am 28 weeks. Crazy. . Thank you & it helps..
I have ICP for the fourth time.
1st time (1st pregnancy/child) minor itching started like a day before my due date. My dr took me seriously and tested my blood. I was induced at 41+0 weeks and was informed we were inducing for post dates but also I should know for future reference that I came up positive for obstetric cholestasis and it was likely to repeat with subsequent pregnancies.
2nd time (2nd pregnancy/child) itching started at around 35 weeks. But this time, the itching wasn't a minor inconvenience this time, it got worse with each passing day. My midwives saw my history and immediately tested and a week later the results were positive for obstetric cholestasis. They referred me to an OB/GYN (Canada) who was really nice and he schedule and induction for 37 weeks. Within about 48 hours of meeting the OB/GYN, my itching ramped up, I was taking scalding hot showers and freezing cold baths to numb my skin. I wasn't able to function. My husband called the midwives. We got a call back from the OB/GYN to come in straight away. The Dr had me get the blood tests but didn't wait for the results, he started an induction (36+6 weeks) and was nice enough to let me stick with my midwives for the delivery.
Birth went well, but my son wasn't okay. He spent weeks in the NICU and was traumatic watching him. Results came in and I was informed my bile acids were over 100.
3rd time (3rd pregnancy/child) I tried dietary control from the beginning of the pregnancy but also timed the pregnancy for the summer because obstetric cholestasis is less common in the summer than winter. Itching started at 39 weeks and induction was scheduled for 40 weeks before the results came in. Results came in the day before scheduled induction and it was only barely positive for obstetric cholestasis. I went into labour naturally the same day and had a home birth.
It was such a more positive experience than my second child having a summer baby. March baby was the hardest.
My third child died of FLHCC at 12 years old (liver cancer). Unknown if connected to obstetric cholestasis, his cancer was a lot rarer than ICP. With our older 2 heading off to college soon, we decided to try for another baby. We had low expectations but luckily I'm still fertile in my early 40's.
4th time (4th pregnancy, twins) and little itching started at 24 weeks. I'm going to a hospital that specialises in multiple pregnancies and they see obstetric cholestasis all the time because it's more common in twin pregnancies. But also with my track record, they said from the beginning ICP was probably unavoidable. My first blood tests showed elevated numbers but below cholestasis diagnosis. I was given a prescription for Ursodiol and was asked to hold off on starting it until my itching got worse and to let them know when I start it so I could get blood tests. 28 weeks the itching got worse, I called to let them know, Maternal Fetal Medicine Specialist advised to start the prescription and to come in to get bloodwork. Sure enough, acid bile had risen high enough for obstetric cholestasis.
My MFM has said current research shows under 40 is lower risk. Over 100 is high risk and induction by 34 weeks. Between 40-100 induce 37 weeks. We're trying to keep my numbers below 40 with prescription and diet. I go in every 2 weeks for ultrasound and my bloodwork is being done. Love that I can get my bloodwork results same day at this hospital. I'm 31+6 weeks, twins are in 65th percentile and I'm still below 40. We'll see if we can keep those numbers below 40. Aside from my age, twins and ICP, I haven't had other risk factors come up. My blood pressure is good. Passed the glucose tests. Cervix holding solid. We're doing great so far!
No commitment on induction schedule so far. If I shoot up over 100 again, we'll be looking at an induction by 34 weeks. If I go over 40, we'll be inducing at 37 weeks. If I can keep my numbers below 40, we might be lucky enough to go to 38 weeks. I feel like my midwives and dr's have been listening to me over the years and what they've said has always matched current research/data available. So sorry to hear that wasn't your experience.
I am going through this atm. Since I was about 22weeks I've been itching. I am 33wks now. They don't even want to tell me my test numbers. In 2 days I am seeing the doctor again. I am going to approach them differently this time..I am tired of them treating me like nothing is wrong with me.
Your consultant described bile acid levels of 13.3 as through the roof?
I tried everything as well. Nothing helped not lotion not Benadryl I went to the er. Its crazy itching but medicine helps the itching
i am 35 weeks pregnant. 3 days back i was itching all over my whole feet. Couldn't sleep that night. Next night itching was only under my feet, but not too much. Next day it was totally gone. i also researched online and came to know about Cholestasis This morning went to doc. She said not everything in google are real. But luckily she still ran the test and the result came back same day evening. They did find cholestasis. Not too high. But its still there. now have started medication from today and was told to monitor baby's movement. Also gonna see a special doc tomorrow to make sure baby is doing alright. Its so important to know every symptom during pregnancy.
I'm so glad that your doctor ran the tests. I wish you all the best with the rest of your pregnancy and hope you are soon holding your healthy baby.
Thank you for your story. I'm so sorry to hear the health system has failed you. I was tearing up throughout your story :( I'm 34 weeks pregnant and have been itchy +++ for the last 10 days. don't think my itch is as severe as yours tho. I'm going to see my Midwife next week I will mention to her. do you think I should tell her earlier?
It should be okay to wait for your appointment but I'd definitely ask for liver function and bile salts tests. How did you get on?
Hey there. I saw my Midwife. She's not convinced that it is ICP. Because my itch is not on my palms or soles of feet. Its all over my body and my fingers and around my toes, soles of feet and heels. My urine is not dark and poo is not pale but how do u tell if u r on multivitamins and iron tablets?? Lol. Itch has been abit better. Some days are worse than others. Some nights I wake up with itch and can't get a good sleep. I'm not 100% certain of I have ICP but if I missed it and something happened, who's ti blame? Took that approach my midwife agreed to do LFT for me but was very reluctant to do bile salt level for me. Not sure if its because its more expensive or what. But I did push it and she gave in. But I need ti wait till 36 weeks to do them, along with my CBC and antibodies test.. as long as I know the result before 37 weeks I guess would be OK. But can be quite nerve breaking everyday especially today my baby movement has been sluggish and not as strong :( its funny how if you are not diligent, they say you don't care or not being a good pregnant woman. But on the other hand , when you are being too careful they call you a crazy pregnant woman, isn't it?
I hope you are having the tests anyway!! I was told I didn't have it and I actually did. Outward symptoms are not the full picture, and not everyone has the symptoms your midwife mentioned. I'm so glad you pushed to get the tests run!! No idea why she is making you wait to have the tests run ?! So weird. If you are concerned about your baby's movements definitely push for getting checked out!!! DO NOT let anyone bully you or say you are being crazy, you know what is normal and they should take you seriously if you mention reduced fetal movement.
I had itching at 25 weeks on legs only at night for 10 min for 3 days, told the doctor she said it's due to your rough skin and change your soap, and gave me finallerg tab for 10 days, I told her if it might me OC , she said if you want to be tested it's up to you, if after taking this medicine itching still there then we will test for OC. I don't understand why doctors put it your bucket to decide if this test needs to be done or not.
I know this video is from two years ago, but I am going through something similar to your second story right now and I feel like I’m going crazy! This is my third pregnancy. I had ICP with both of my previous pregnancies. Early onset with the second. They caught it at 24 weeks. This time around I started itching in my hands and feet some during the first trimester. During my second trimester, I started having gallbladder pain and attacks, on top of still having the itching (which had started to get worse) especially at night while trying to sleep. I was digging my skin raw in spots, almost to the point of bleeding. They kept doing blood tests but kept saying that my bile acids were within the normal range. I’ve had an ultrasound on my right upper quadrant which showed gallstones and bile/sludge backed up in my gallbladder. They did a liver function test last week, which showed that my alkaline phosphates are elevated, another marker of ICP. And my bile acids are 13.1. But they don’t consider it above normal until 14. It’s just making me crazy and terrified because I know my body, I KNOW the itch. Like you said, it’s SO different than a basic itch! And I have the history and every other symptom. It scares me so much because I know that my bile acids can go dangerously high pretty much over night, but the blood tests take about a week to come back. So our son could potentially go into distress one night while I’m sleeping, and I wouldn’t notice his lack of movement until it’s too late, all because they are waiting to get THEIR confirmation of what I already know I have. To me, the risk just ISN’T worth it. But I don’t know what to do! They literally will not induce me until they get it on paper that my bile acid levels are above normal. 😭
I'm so sorry you are struggling with this :( I hope that your blood tests will reflect what you are experiencing so that they will take you seriously.
Hi, I’m sorry that you had to go through that. Can you share what happened afterwards?
yes thank you for this video it does help. I found out at about 29 weeks and am now 31 weeks and will be having my boy at 36 weeks
All the best for the birth of your baby! I hope all goes well and that he and you will be safe and well.
Thanks for your story.I was just diagnosed with OC.I read that most cases they induce the babies at 37 weeks.But seems like my doctor is not too worried about it and not planning induce me earlier than full term.It makes me so worry.
+qing yang I'm sorry you have OC, it is the pits! What were your test results, and are they repeating them each week? Don't be afraid to be pushy, you might have to be if nobody is taking it seriously.
If you could do any of it over again, would you have asked for testing earlier? I have itching below my ribs but it’s not constant and none on hands or feet or waking at night. Do you get clues of it starting or do you only know when it’s full blown?
Definitely mention it to your midwife or doctor. Might be worth getting a baseline test in case it develops into OC. All the best x
What a horrible ordeal that must have been for you! Are there any other symptoms apart from the itching that you know of? I'm so happy that both your babies arrived safe and well in the end :)
+Lifeasloz There is a vague "unwell" feeling but really the itching is the main symptom and the one that you can't ignore. There's no rash or anything else.
Thank you for sharing i am currently waiting on results to find out if i have oc or not im almost 36 weeks the itching is driving me crazy nothing is helping i cant sleep
All the best for a safe delivery x
Did your itch gone
Yesss! Please do your birth stories! I'm planning to share all of mine at some point :)
Also, OC sounds absolutely awful, and it sounds so horrible having no one take you seriously!
+A (mostly) Kiwi Family I'm so grateful we had a happy outcome. I sure will do my birth stories and can't wait to hear yours - you have twice as many :)
This was so different from my experience. I told them my symptoms, they ordered several tests including bile acid and salts for that day, I got the results the next day, we immediately set up fetal monitoring, ultrasounds, high risk ob appointments, and further bile tests for later, and began planning my induction for 37 weeks. My midwife and the staff immediately had taken me and my cholestasis research seriously. My story happened in the US though... and I wonder if socialized vs. non-socialized medical care was a factor in how my experience was different? I also though... wasn't just in the US, I was in Utah where we have a significantly higher birth rate than other states.
I wish your experience had gone as smoothly as mine, and I hope this becomes a routine check for pregnant and well women exams. I think I may have even had cholestasis before my pregnancy. But no dermatologist mentioned cholestasis as a possibility. I don't believe blood work was even ordered (can't remember).
Thank you for helping get word out there!
Glad you had a better experience! x
I'm so sorry this happened to you! I am 36 weeks and I have been diagnosed with OC at 34 weeks. They want to wait until I am about 38 weeks but I don't want to gamble my babies life. I feel like their not taking me that serious. I don't know what to do at this point and I feel hopeless. I don't want to wait until I'm 38 weeks. Any suggestions?
+Elisheva L Congratulations on your pregnancy, and I'm sorry you have the dreaded OC. It is the worst!!
All I can suggest is printing off relevant information from reliable sources, highlighting specific points that you want to get across (so it's not just a bunch of text thrust at them) and then making a pest of yourself until someone takes you seriously.
If it makes you feel any better I delivered at 38 weeks both times and my boys were just fine. I know that doesn't mean everyone else's baby will be but I hope it gives you some reassurance.
How are you bile salts / bile acids and liver function tests looking?
I have it now im 29 weeks and have a antenatal test on Wednesday im so scared. I've been on medication for 2 weeks they repeated the blood test and it was high so they ordered that i be monitored
It's good that they are monitoring the situation. I hope you have the best possible outcome!
I wonder if I have OC, but I’ve already had my baby. It got worse after I had her!? I’ve not had any tests, but I’ve got the same symptoms. I hemorrhaged and have been resting for a week now. My midwife is taking it seriously but thinks it’s a mineral deficiency. I get a little relief by rinsing my feet in cold water. I’ve also been putting ice packs on my feet at night. It seems to get better after I have a Ningxia Red shot with Mineral Essence from Young Living. I think I might be jaundice, so tomorrow, I’ll sit out in the sun more.
Did any you get prescribed Ursodeoxycholic acid? It is proported to lower the level of bile acid in the blood, and thus relieve the itching associated with obstetric cholestasis. If you did, did it work for you? Any side effects?
I wasn't prescribed anything as I was 38 weeks when I got my diagnosis so was immediately induced.
symptoms are so easy to ignore! as in pregnancy skin can get dry etc!
that's so crap I have heard so many horror stories of professionals not taking pregnant women serious during pregnancy and during labour. So scary! so glad both babies were born safe and healthy
+Alba and Kacy Vlogs Thank you, me too!!
😢 I'm 33 weeks .now having the same symptoms pls what is the solution pls😢
I had this exact same thing and the doctor told me. Oh it’s just your hormones you be fine once you deliver and no I am in up with this for 10 years after I delivered.
Can you get cholestasis after delivering. I am feeling so itchy after like two weeks of delivering. What are the remedies?
R u still itching
scratching with a brush now. even my eyelids itch. my feet feel like I have atheletes foot. I believe I had this with my first pregnancy and the doctor didn't know and I think I have it now.
Definitely ask for liver function and bile salts / bile acids tests! All the best, hope you can get help with this and have a healthy baby.
Thank you. My doctor did the test and it was positive. I start meds as soon as I get back into town after the holiday
I had sever itching since long time in my pregnancy. But in 34 week when I thought it was severe my dr did my blood work and values came 23.9. I'm freaking out. I'm 35 weeks 1 day and want to be induced badly to have my baby. Is 35 week baby born ok?
How did it go for u
Hi
Now I pregnant I suffer same problem. But I am now only 30 week. What can I do???
I was just in the hospital last night because my hands and feet were so incredibly itchy. I felt absolutely ridiculous going into the er saying "my hands and feet itch" but thankfully they sent me up to labor and delivery. 7 hours later, 2 needle pokes, and 10 viles of blood, and they told me to take benadryl until my results come back until 3 days 😩 obviously I hope I don't have cholestasis, but the other part of me is scared everything will come back "normal" and then I won't have answers for why I'm having this itch that is driving me insane.
I am also suffering from this situation, my results are normal but itching is severe and it started at 5th month of my pregnancy now the 6 has started, how early did you have it?
How u managed after that ????
I know this is what I have. I can’t stop scratching. I’m miserable. I just failed my one hour glucose and have 3 hour one set for tomorrow. I have a vitamin D deficiency and other blood levels were high or low. So I asked for them to run bile salt and liver tests. They took blood. Still waiting on results as they said it takes a long time. I’m so worried. I just turned 28 weeks.
Did your itch go away
Plz tel me diet plan for cholestasis pregnancy..? Can i eat yogurt ? And nuts?
Hi! I'm barely 25 wks pregnant and have a very intense and severe itching. I called my doctor but she aint available until my next appointment. Is been 2-3 wks already with this itching. Also its my 4th pregnancy and ive suffered this itching on every one. You think I will get this checked out if I go to the hospital or just wait until my next appointment. I'm desperate!
If you're desperate and can get the blood tests run by going into hospital now then go for it. Beyond the blood tests unfortunately there's not much they can do for you immediately. The top priority is getting the tests run, so I'd recommend going into hospital if you can get them run that way, or making a doctor's appointment with a different doctor to ask for them, or waiting for your next appointment. I hope all goes well!!
How did it went for u
Omg I’m 9 weeks pregnant and this itching started at week 5 no one took me seriously and I just took a blood test it won’t come back for another two weeks I’m afraid something will happen to the baby!!!! Someone help what should I do?
Any results? What happened? I'm also 9 weeks.
How soon does this go away after pregnancy?
I am going to my doctor today to get tested because I've been intensely itching for the past 3 days. I am so so so so terrified. I'm 37 weeks now
+melissa perez Melissa, please don't freak out, you are right at the end of your pregnancy and if you catch it now then your baby should be fine. I hope your tests come back swiftly and that your doctor is taking you seriously. Please don't hesitate to message or email me if you want to talk.
Hi from USA…. My story is literally the same!!!!! Except some angel saved me at 37 weeks…… baby #2 is 34 weeks along
Wow...how scary! Is this a possibly genetic condition? It makes me wonder if when the boys are married and have children if their daughter's could be at risk of this. I'm very glad you put your experiences with this out here and if my daughter is blessed with future pregnancies this will be good to know about. (Right now her worries about future pregnancies center on her experience with hyperemesis gravidum.) Please do consider filming your accounts of your birth stories!
+Molly Spradley Yes, there is a greater chance that my granddaughters can have it.
Will do birth stories video :)
Rewatching this now that my daughter is just entering her 3rd trimester. So thankful you shared your experiences with OC. Since she is a Celiac mom I worry about her health in every way, including the possibility of OC. In all, I'm so grateful your experiences had positive outcomes. Thank you again for the video, Jen!
Not long to go then - hope all goes well!
She's having facial, hand and feet swelling how in her 3rd trimester. Sounds different than OC which is good.
Molly Smith that does not sound good at all
I am in the exact same situation, with the only difference that I have had itching for almost 3 months, went to a dermatologist that told me that if the itch doesn't go away with cortisone it's something related to the pregnancy. My ob said that I should just change my soap! Surprise, surprise, after 2 months I have my results, it's cholestasis. I am angry with the doctors, they don't take us and their job seriously. I am very worried about the baby because I lost trust!
Im so sorry you had to go trough this, I can't believe nobody believed you, moreover because obgyn should know how dangerous is OC.
Im medical student studying for my obstetrics exam and this is something we need to know in order to even think about passing this exam.
Good for you and your mom instinct, you practicality saved your babies :D
Thank you! Good luck for your exam.
A Thousand Words thanks! :)
Currently have OC.. its horrible.. I'm only 31weeks though and have been struggling since mid 2nd trimester.. I just want this to be over! Meds do not seem to be helping! I cant stand this ITCH anymore!!! Plus I'm nauseaus because of it and have now been nauseous my whole pregnancy.. sorry for the crappy comment, currently been up all night itching and MISERABLE! 😭😭
Did your itch went away after birth
My doctor said that same crap. She said well you aren’t yellow, so I don’t think you have it... I was just like 😒 I will have a new gyno come next pregnancy. I had to be tested 3 times before it came back positive.
I know this late comment on this video but always push your symptoms to your doctor because I had it in my first pregnancy and I got jaundice and itchy skin and 37 weeks it the limit my baby came out at 39 weeks because no one could figure out what wrong until last minute and my baby was already not breathing and he came out with jundice pregnant with my second child and now iam 30 weeks but the doctor and my mid wife took my symptoms seriously and I was diagnosed with ICP PLEASE PUSH YOUR SYMPTOMS DONT TAKE NO FOR AN ANSWER almost lost my fist baby boy because of negligence
I have cholestasis of pregnancy and I’m trying to find a way to relive the itching i have been taking my medicine but the itching still has not stopped. I have not been sleeping I’m 33 weeks and all everyone is during is sharing their story.!!! Sorry but most people are not looking up cholestasis to hear your story but to see how to relive the itching !!.
I'm sorry, the only relief I had was in giving birth.
So I started having itching on my feet and hands, but now it's everywhere (arms, legs, hands, back, etc). But I don't scratch myself raw or anything. Does the severity of itching start small and then get worse? Should I wait for the itching to get worse before I get a blood test? I am 32 weeks along with my second. My first pregnancy I didn't have this itching.
I'd recommend getting the blood tests run just in case. I hope all is well!
Alyssa C I was going to ask the same thing. Did you get checked out?
Hi .. i am suffering from OC.. can i deliver my baby normally. As i dont want to go for c section
Yes, I delivered both of my babies vaginally after being induced. Hope all goes well for you x
@@AThousandWords how long u were in labour.. m in india.. they dont practise natural birth here most of the time. for them doing c- section is quite easy..
Also i have a fear that induction is more painful then natural labour pain. I m in 35 week of pregnency.. pls suggest something .. i dont want to go for c sec..
Can i wait for natural labour pain for atleast a week. I m taking medicine for OC.
@@Shajda1505 You really need to talk to your doctor about your care, I'm sorry I can't help with that. All the best.
I am about to be diagnosed with Cholestisis and I'm 33w +3 days and I am in that worried phase... I just want my son to be here and out of a toxic environment! Ill know my levels Monday or Tuesday but until then... Ugh
I am 28 . How is your baby?
@@Lidia1312 my baby arrived via a scheduled C-section at 38 +4 and now is just over 2 months old, he is hitting all his milestones and is just a beautiful, strong healthy boy. I was diagnosed when my bile acids hit 13, my highest level was 19; This is considered very very mild.
@@andreaayers4285 awow congratulations 🎊 👏 ! This is gives me hope! My both hands are itching like crazy at night & I haven't talked to my OB yet. This is my 4 th baby! Pray for me! Xoxo love ❤️ 😍
I’m 22 week pregnant now and I got OC problem from 17 week. I’m really scared about my baby. Every week I go for check up in hospital and they collect my blood for test 😢😢
Hi, how are you and your baby doing? I hope you're both healthy.
I m having same issue on same time....n every week i go for test n by every passing week...my bile acid goes upper n upper
Im very frustrated about it. My husband wont believe me as well as the doctor. They are both doubtful that I may have the possibilty to have cholestasis. I have to beg for blood test prescription. I hate all these people who are acting like they know everything and would not even bother to try a simple blood test. I really do hate them.
Were u itching and did it gone now
I had the same problems it started at 22 I finally went to the hospital after I google my systems my liver test came back normal I'm still waiting for my bile test but the high risk Dr came back like no she has to have this baby so Sunday I'll be 37 weeks and I'll be induced Sunday I'm so happy this will be over because this itching is jus so horrible Sunday needs to hurry up
I hope all went well and you are holding your precious baby (and have relief from the itching!)
A Thousand Words yes I had her on the 25 instead water broke she was born at 11:35 @ 5lbs 9oz thank u
@@aprilstephens6382 did your itch stop
@@aj2954 yes after I had my baby the itching an rash cleared up Immediately
@@aprilstephens6382 okay
Hii. U share ur experience with us is very helpful. Since 17th week i have been suffering from severe itching and my dr also told me that its just because of skin problem but without asking my Dr. I went for blood test, the test is slightly elevated but itching is harsh!! Then n visited to another Gynae n she suggested to have Udiliv 300. Pls suggest ur treatment and and managemental method including diet.... If u reply it will really helpful for me... I have twins. I m from india i didn't get u properly.....pls rpl soon.
I'm so sorry you're struggling with this. I'm really not qualified to be giving anyone medical advice; I would advise you to talk to your doctor and to seek a second opinion with a different doctor if yours is not receptive to your worries. I wish you all the best.
How are you now? My wife' condition is same now. Doctor has sujjested udiliv300 for 10 days and wanted us to come in 10 days with another LFT test..
Hi, thanks for sharing your story. I've been itching severely at night for 2 weeks now. It started on top and edges of feet and hands, and then slowly wrapped around to soles and palms and random places throughout the body. I insisted that my doctor send an order for blood test and I did it two days ago but everything apparently came back "normal" and the bile acids are 4. I'm 36 weeks today and they want to induce it anyway for 38 because of diabetes and hypertension, but the itching keeps getting worse. I totally agree with you on insisting to get taken seriously because I had to ask my doctor like 3 times for this. They look at you like you're being crazy or dramatic, but if your baby ends up not making it, all you'll hear from them is "I'm sorry" and you get stuck with the pain of loss and guilt forever. Not worth it. Babies only have us mothers to fight for them.
There are other reasons for itchyness in pregnancy.... my bile acids were at 55 for my first test. Anything under 10 is "normal" and not cholestasis.... I see this was 3 months ago, so I hope everything turned out well for you and you got some itchy relief.
I had cholestatsis in my first pregnancy from week 35... but in second pregnancy it start from week 8, it was a horrible pregnancy which i cant even explain in words. I get pregnent by chance again after 7 years and its my 7th week. I am so scared but still i want to keep the baby in good health. I am getting ready for any condition which is about to come. But still hope for the best. Searching for some help here.
And also i had the vommits for the while 9 months😥😥
Hey, I have a question. How did you deal with it from 8weeks?
@@mshairdesign1800
Hi... it was so bad at the end and unfortunatly there was nothing to do. I got induced at the early 35th week. I had a baby boy who is 8 months now.
@@faizamahmood7759 ma'am did u take any medicine for its cure?
I know this is a late comment to this old video but I’m 34 weeks and having dark urine in the morning. Like super dark and my legs where my calves and in the front are SO itchy and I haven’t been sleeping, feeling nausea here and there and super fatigued... does the itching happen like CONSTANT or can it come and go? Just wondering
Please speak to a health care professional (doctor, midwife) about your symptoms! My itching was pretty constant, but definitely worse at night.
While you were waiting for your results was your baby still moving regularly?
Yes, thankfully he was very active. Get in touch with your health care provider urgently if your baby stops moving or has reduced movement!
@@AThousandWords We went in to L&D and thankfully they did blood work without any hassle. Thank you for the video, it was very informative.