COVID Long Haulers and the Connection to ME/CFS by Dr. Bateman

[@milohagie6562]

It sure would have been nice had NIH taken ME/CFS seriously decades ago.

[@leannatimmerman9922]

Yes. It takes pressure from organized groups to get action.

[@MsKell35]

Thank you so much. As a bed bound patient for over 10 years with M.E cfs this give me some hope 💜🙏🏽💜

[@orionhale788]

About time we got the recognition for the severe suffering we’ve been experiencing. Thank you

[@apple369]

That question from the tired mother was absolutely offensive and highlights the kind of misunderstanding and stigma folks living with ME/CFS contend with on a daily basis. Thank you to Dr. Bateman who didn't even blink an eye yet answered succinctly and with authority.

[@AJansenNL]

I've been both a mother without and with ME. There's really no comparison. Without ME I could cook, clean, work, study, hop on my bike to do the shopping, etc. I'd drop into bed and the next day I'd do it all over again no problem.
With ME I could do none of that without suffering for it, slowly having to drop more and more of those activities and chores, and even then gradually getting worse. To the point I couldn't do anything at all anymore. Which meant the house and my kids got neglected. No amount of sleep or better parenting/house management skills could prevent that.

[@ianseaweed]

Great answer to a very ill considered question

[@youknowcrimedontpay9257]

I've been ill since 1982 since I was 20.
Most of my life has been suffering with little to no quality of life.
Hope one day they break through and find a cure or effective treatment.
Thinking about everyone who suffers with ME / CFS Fibromyalgia.
Sending strength from Toronto Ontario Canada 🇨🇦.

[@thegangov14]

You are a very strong individual, cannot imagine suffering with ME/CFS symptoms for all that time. Stay strong.

[@littleangelsphoto]

Dr Bateman gets it! She understands what we long haulers are going through. It’s so refreshing to listen to a dr who understands our symptoms. Thank you Dr Bateman for all you do.

[@taradrolma2774]

She understands because she has been treating ME/CFS patients. Some of us have been I'll and confined for decades with no help or understanding.

[@lme9743]

This was a phenomenal talk. I appreciate Dr. Bateman who gave an informative talk with just the facts as best as possible with current evidence available. I believe she has along with a few others spent a career long study and management on this condition. God bless you and thank you Dr. Bateman for what you are doing.

[@andreabengtzen643]

Fantastic video that validates how sick I have been feeling, especially with the PEM. I would say that I have almost never felt as sick as I have when I am having post exertional malaise crashes. I did not even know what that term really meant until it was explained to me at your clinic and I connected the dots to my long Covid/ME/CFS experiences of this past year. Literally unable to get up out of bed for half a day to days, after doing things I wouldn’t have thought of as exertion before this. Thank you for these videos! I will keep watching them and learning!

[@MK-gy1ug]

So sorry you’re going through this. I am going through LC. 10 months in. PEM is horrible but I do feel like I have turned a corner. It’s getting better. How are you feeling these days? I’m hoping you’re better! Never lose hope!

[@missednoahsarc2654]

This is the place I need to go for help. I have fibro and was diagnosed with chronic fatigue now I'm having mast cell issues and chronic hives. My lungs are severely effected now and doing something simple like washing dishes by hand it's like I just ran a marathon. I had to use an epi pen the other day and in the ER my blood glasses po2 and o2 venous were 17 and 27%!!! I am not getting the medical help I need because I became homeless after escaping an abusive relationship. I have a safe place to put my head but it's not like I can do much I'm practically bed bound rn.

[@heretoday788]

Excellent talk, Dr. Batemen!

[@KatiDebelic]

Great lecture, thank you so much for explaining clearly what clinicians need to know.

[@sweetiepienumber1]

Thanks again. One day hopefully asap.

[@azalea1404]

Thank you so much Dr Batemann for the huge work you do on behalf of us ME-patients. There are no words that suffice to describe how grateful we are for all that you do to help us.
Pertaining to your lecture; at approx 08:00 you have a slide that states the typical ME-triggers, but vaccination was not mentioned as one of them, despite a substantial part of the patient's ME-disease were induced by vaccination - and in particular the 2009 swine flu vaccination. Would you mind stating that in the research material and future presentation slides? It is important, as many ME-sufferes who got sick after getting a vaccination have huge problems getting compensated from the medical companies who manufactored these vaccines.
Also, a large part of the ME-patients develop premature cataract as well as a very aggressive kind of parodontosis. These additional diseases are probably caused by the altered immune status among these patients or perhaps autoimmune-related.

[@KidCity1985]

I knew this would happen before it was talked about.

[@Julia-ik9wf]

Same here! :)

[@gustavdesnica9753]

My story, 35 years old. I had dizziness for 2-3 months. Weakness and tingling in the left leg and vision problems. Extreme insomnia that still lasts as well as episodes of moderate anxiety. I did an MRI/MRA. Everything is ok about the brain. There is hope for all of us.

[@Yazzie101]

Wonderful Thank you Dr! 🙏

[@barbarateresarhiannonsreal1756]

Thank you...
ME/CFS, Covid-19 & PASC Survivor

[@barbarateresarhiannonsreal1756]

I've had ME/CFS since childhood, Covid-19 in 2020 which led to loss of employment. Then PASC (Long Covid).
I've been denied SSDI twice (as labs are normal) and am at the hearing level of the SSDI process.
I'm working with Allsup (disability advocates) who tell me it's going to be another 18 to 24 months before the hearing appointment.
At that point (since I'm not working & not wealthy) I'll be living in my car.
I'm almost at retirement age & I'd like the ME/CFS PASC community know that we're still out here, we still need help, & we need to expedite the waiting process.
It's already in my medical records & this should be an "on the record" case that shouldn't have to wait for a court hearing.
I already qualify for benefits.
I'm in Seattle, rentals are unaffordable & we've a lot of homeless living in tents, cars & rv's.
A huge effort should be made to keep us off the streets.

[@carlene2416]

Wish I lived in the USA -I’m stuck in Uk with no help - nhs is worse than rubbish unless you have something very obvious wrong with you and there’s nowhere else to get help 😥

[@judya465]

There's no help over here either. It's impossible to get into any of these treatment centers.

[@francescachristy8761]

Thank you for such a great, informative and coherent presentation. Please would it be possible to post the links from the last two slides in the explanation under the title. With many thanks.

[@Hk78666]

I hve all this symptoms after covid vaccine since 4 months chronic sinusitis,Auto immune Hashimoto thyroiditis,Lyme dieses on border,RA arthritis also have different kind of allergies I went everywhere in hospitals but they said everything is fine according to them but I am not fine my life is totally destroyed 0 I hve extream cognitive impairment like dementia memory loss I can't bath combing,restless all day walking around room can't sit on a sec I can't able to eat and drink everyday new changes in body now GP ignoring me she send me 21 days psychiatry anti depressants but did nt work now where I go to whom I go for bring my life back even they don't believe I am ill after covid vaccine and you mention the symptoms all I am feeling all.which more antibodies test should I someone told me about blood wash (inusprease)for long covid patient as well side effects of vaccine I please reply me what u said abut this?

[@bea29able]

Take Monolaurin it's helping my CFS EBV #1 cause of CFS/ME

[@Yazzie101]

Covid reactivated my EBV.. so have these people been checked for EBV? I’m still suffering and had to recently stop working! Pushing my body too much causes infections! 🤷🏻‍♀️ we can’t get help and disability doesn’t recognize long haulers!

[@anna-marieeasmus7529]

Covid reactivated my cocksackie virus, too. So fighting at least 2 viruses.

[@bea29able]

@@anna-marieeasmus7529 Take Monolaurin it's helping my CFS EBV #1 cause of CFS/ME

[@anna-marieeasmus7529]

@@bea29able thank you. I will look into it. 💐

[@steve0ne11]

Has anyone with long haul covid had surgery? I know our blood is quite clotty and I was wondering if this has caused issues for anyone?

[@sixpackbinky]

Back pain is also associated with long haulers

[@jefftist9625]

Can you please turn on the captions for your videos?

[@caroshmarow]

Any advice for someone who has Fibromyalgia and now, long COVID. I Cannot describe how disabled I am now. I was double vaccinated when I contracted DELTA on 25 December’21. Haven’t returned to my pre COVID status or found a way to mitigate the pain….

[@sixpackbinky]

For one don’t get any more vax, start taking d3 ,k2, magnesium, zinc, vit c and b vitamins… some people have a lot of relief from NAC

[@kellysmith-may6889]

had covid 28th Dec 2021 and destroyed my life,bedbound and syptoms just seem to get worse

[@MK-gy1ug]

How are you today?

[@petramckean3505]

Hi, I'm only 4 weeks post covid virus and have these symptoms and they are very severe. The U of U Long haul clinic is 6-8 weeks out after doc referral but I need help now. Who can I go to who believes and is versed with you guys in the interim to at least stabilize me? I'm scared and just getting worse. 🙏

[@MK-gy1ug]

How are you today? It takes a long time to turn a corner. I am 10 months in just started to get better-a little

[@traiandanciu8139]

May be SARS COV2 induce persistent infection?
If SARS COV2 better replicate at low tissue temperature,( say Christian Drosten at TWiV 659 at min29 ),hypothermia must be avoided in SARS COV2 infection .
May be low temperature agglutinine occur after SARS COV2 infection?and also antypiretics must be avoided ,even low fever occur.

[@davidkruse4030]

Nobody in the comment section knows what you are talking about

[@gregjulius8365]

God will keep you for us Dr Emuakhe on CZcams for the herbal supplements for healing HSV

[@rjanderson-fn8le]

I love people who come and with I could see their faces too.