Claudia Scanlon and Johnny Sexton on the Late Late Show

As somebody who has battled EB for 19 years, Claudia displays the strength and resilience that those who live with this devastating disease have in abundance. Claudia was born with the painful skin blistering condition EB (epidermolysis bullosa). She has to be bandaged almost from head to toe to prevent infection. Also known as Butterfly Skin, because their skin is a fragile as a butterfly's wings. Currently there is no cure.
DEBRA Ireland was set up in 1988 by parents of children living with EB to support. We provide support, advocate on behalf of people with EB and fund vital research.
DEBRA Ambassador Johnny Sexton shares why he supports DEBRA Ireland and why we need to ensure people like Claudia continue to get the help they need.
www.debra.ie

[@edmundpower1250]

What a delightful young lady

[@KnuxDeluxe]

The best 💪