I Got Surgery to Fix my Dumb Intestines | IBD Ostomy Surgery
Vložit
- čas přidán 8. 06. 2024
- I had my family record me before and after major surgery.
I have IBD (specifically Crohn's Disease), and this is the fourth major surgery I've had to try to keep it from destroying all my intestines! In 2018 I had a proctocolectomy, and this year I had a stoma revision and end ileostomy resection.
Surgery can be very rough on your body, so if you're having surgery, try to go into it as prepared as possible! Take walks every day, eat extra protein, and follow your doctor's advice. When recovering, know your goals and recovery milestones and look forward to them. Try to know what you're getting into, and communicate with your doctors and nurses!
If you want to know more about my Crohn's journey, check out my book, You Only Have Crohn's Once! leanpub.com/you-only-have-cro...
Support me on Patreon: / geerlingguy
Sponsor me on GitHub: github.com/sponsors/geerlingguy
Merch: redshirtjeff.com
2nd Channel: / geerlingengineering
#Surgery #IBD
Contents:
00:00 - Day 1 - Going into the OR
00:45 - Post-op technical issues
02:57 - State of misery
04:13 - The worst part of recovery
06:08 - Day 2 - inspiration
07:41 - OT and Raspberry Pis
08:19 - Day 3 - Windows doesn't like Argentina
09:45 - Day 4 - Don't dance!
12:03 - Barbie, Ken, and a homecoming
13:29 - Back to the ER
14:15 - Part of the one percent (not the good one)
"My throat keeps drying out... my humor is not dry. My humor is very rich."
Dude. I love your humor. Big hugs to you and your family. Get well soon!
I was thinking, when he said that, was "Your humor is full of drugs.".
I was genuinely laughing out loud at that point.
I like to make bad puns involving ambiguity over whether you're referring to humor as in bodily fluid, or humor as in something funny. Nobody ever gets them. 🙂
I woke up after my extended right hemicolectomy and between the morphine and the general anesthetic my mouth and throat were very dry. I was out of my mind with the thirst and the pain and I kept asking the nurse for ice chips to suck on. She ended up yelling at me for asking so many times and then they ran out of ice. Not fun at all.
Not many CZcams channels give insight on the personal health complications they’re facing. Thanks for sharing with us with the intent to shed light on what the struggle entails and to serve as a motivator for people going through the same thing. You could’ve thrown a pity-party to get self-affirmation from fans and followers but instead you’re here doing a selfless thing. We’re with you in your journey and wish you the best.
You're a trooper, but lets give some props to Mrs. Geerling. Being so supportive and helpful with this channel is really appreciated from all of us! Heres to a better tomorrow!
Both of the two Mrs. Geerling's (mom and wife) were instrumental to getting me back on my feet!
@@JeffGeerling Well, a thank you to them both!!!!
Crazy to see the progress with each day. Wishing you the smoothest continued recovery. ❤
Get well soon fella. Take your time and your fans will be here when your ready
Fans are quite helpful when I have a fever! Thanks! (hehe)
@@JeffGeerling 😂
@@JeffGeerling Ugh. You are clearly feeling better already.
Speedy recovery sir!
Have Crohns and a stoma + procoloctomy myself so I know exactly what you've been going through!
We are strong people, we will make it through.
Still air in the lungs and blood in the veins. Keep fighting fighter.
That's the right attitude!
Jeff, thank you for showing us the tough parts. I don't want to make this about me, but I will: I'm receiving a kidney and pancreas imminently and I'm scared as hell.
Thank you for helping me get through this. I hope your life becomes as comfortable as possible with your problems.
I'm stopping the video at 1:30 because so far it's been good. Maybe I can watch the rest when I wake from my own sugery.
Hope you're doing well!
Follow Jeffs example, when they ask about pain don't hold back, tell the how you really feel.
Steve hopefully you're going thru your recovery with a new kidney and pancreas as I type this. Hang in there and you'll do great. I had a kidney transplant last year.
I wanted to update this comment. I received my two organs 4 days ago and I'm doing great. Thanks again Jeff and everyone.
Hey Jeff! I'm the one who cobbled together that PXE environment for the Oneview Computers along with the imaging software. I had a false report of a unspecific issue for your room and I thought it simple to bounce the machine. I'm really sorry we have limited resources but I swear I try to keep Oneview afloat along with my homie Josh who NOW works at Oneview. We're big fans so please get better soon and accept our apologies :< On a different note I realized that there was a bad image on the device but way too late.. Also we are moving to Android TV in our other locations since our windows hardware is really worn out and we get a lot of memory BSODS :
I think it's awesome you show, and talk, about the not-so-fun parts of life. Get well soon Jeff, we'll be waiting!
I figure it might help someone else with the same struggles see some positive signs-there are a lot of times during recovery when you can really get down on yourself. I try to stay positive and find fun and good things to think about during the whole time!
@@JeffGeerling Like knowing that linux would not have locked up during the men's World Cup!
As someone that suffers with UC, I can't imagine what you have had to go through. Thinking of you and hoping for a speedy recovery!
Hopefully you can stay in remission, hope you have a great 2023 full of no health surprises!
Have you guys come across Germanic New Medicine and the CZcams channel 'Heal your gut guy'? It's probably worth looking into. Also major dietary changes are probably in order. Maybe a keto diet or paleo diet might be more suitable and cutting out gluten and sugar completely as they are inflammatory. Wishing you guys the best of health, especially you Jeff. Stay strong buddy and look after yourself. Wishing you a speedy recovery.
@@JeffGeerling Also look into really good probiotics research for UC. I believe that and diet, together with research into psychosomatic healing or Germanic New Medicine will help tremendously. I suffer from ME/CFS which is linked to gut dysbiosis, so I had to go down this rabbit hole and still going :(
I had UC before early 20s, but I found out that there was anecdotal evidence that only non-smokers had UC so I started smoking and stopped taking the 5ASA and prednisone. I was fine for like 15 years. Then I got married and had kids and decided to quit smoking, UC came back in 2 months. However, somehow I found out that using loperimide when ever I got diarrhea and reducing lactose and gluten intake, it is under control again, haven't been to a doctor for it for like 12 years now. Hope for a speedy recovery for you.
My dad has had a stoma for the best part of 20 years. He had colitis and ended up catching pneumonia in the hospital so I already donated before I watched the video. He's still with us today so keep going Jeff!
Thank you!
"The long part has to point towards the talent, I'm the talent." well done maintaining your professionalism even when up the eyeballs on a cup full of the good stuff :)
Get well soon!
lol I even kept my eyes open during that part where I was checking over all the equipment 😅
I LITERALLY feel your pain. I was diagnosed with Crohn's literally the week they told everyone to stay home due to COVID. At that point the iron levels in my blood were so low as to almost require hospitalization. The severe anemia was due to years of vitamin B12 deficiency due to the Crohn's.
So, it scared me to death thinking IF I caught COVID at that point it would kill me.
Now that the Crohn's is under control (Inflectra) I still have serious abdominal pain whenever I eat solid food.
We suspect the damage caused by the Crohn's left some exposed nerves in the small intestine.
I know my discomfort is nothing compared to your issues, but you are not alone.
Hang in there! There have been some recent breakthroughs in treatment for Crohn's. Hopefully they will be released soon enough to give you some relief.
Aww, that stinks! I hope your intestines can heal a bit more so food is not as painful. By the time I had my first surgery, my doctor showed me pictures of the inside, and it looked like someone had carpet-bombed my intestines on the inside! That's when I knew having a resection (then later a colectomy) was the right plan :(
But it provided so much relief when the diseased part was gone. The thing that helped me most was getting a second opinion. I found a really good IBD practice at Washington University med school in St. Louis, and they had a couple great research doctors who helped me find a better treatment that was able to push back one of the surgeries a few years.
@@JeffGeerling as someone who goes to WashU and loves your videos, thank you for coming by! Consider it our way of giving back to you for your work!
@@youhackforme Hello to a fellow St. Louisan (even if it's only temporary!).
Surgery is no joke, especially as we humans age. A great reminder of our mortality! May God walk before you in your healing journey and ongoing health. I appreciate your positive attitude and your tech savvy. Your videos bring a welcome break in my IT workdays!
What an absolute legend. You're such a champ to go through this whole ordeal with such a positive attitude and then to also film the process in order to inspire strength in others. You're a pillar of IBD community. Wishing you a speedy recovery 💖
Years ago, a VA nurse asked me my pain level in my legs. I told her that if my chainsaw was working that I would have cut them off that morning. She said, "That's just a three out of ten." That was over a dcade ago, and I still have to go to wound care for the same problems.
I'm praying for you. May God speed your healing. 🙏🙏🙏🙏🙏
"I'm the talent." Classic Red Shirt Jeff showing through! Wasn't until 4 minutes in that I saw a little of that Jeff smile I was waiting for, feeling for you man. Glad to see you surrounded by people who love you, hope you can feel it from all of us who wish we were there to lend a hand. Thank heavens that only .001% have to go through what you are. Happy New Year to you and all those that helped you out!
This video was great, and a huge inspiration to be positive even if going into a tough situation like that. Also, when you explained to the nurse what a raspberry pi was, I laughed out loud haha… it was eerily similar to some thing I would do 😂
Still praying for a swift recovery!
agreed 100%
And thanks to you, I had three videos to keep me entertained :)
@@JeffGeerling Oh nice! It still makes me sweat knowing you're watching some of them hahaha
@@HardwareHaven I love the approach, and seeing your storage server evolve month after month :D
First up - keep fighting. Second: In a world with people being busy showing themselves from their best side it is great that someone dares being vulnerable and showing themselves when life is hard or just plain sucks. If a few more people had your courage to show when they aren't at their best and to discuss taboo subjects, like having a Barbie butt, the world would be a better place. But, as in tech, someone needs to be a first-mover, and you are. Thank you for that. Thank you for trying to make the world a better place!
Thanks so much for sharing your journey and all the support from all of you. Jeff, You are the definition of resilience and we are proud to have you as a fellow .1 percenter!
Thank you! And I'm so glad to be able to give back in some way. I was hoping to raise $1000 or so... the community on CZcams has blown me away with their generosity!
She gave me a whole cup... there was some good stuff in it 😆 So glad to see that you're home and recovering, keep rollin!
Glad to see you're doing better. Take as much time as you need to heal. We'll still be here. Make sure to push yourself, but don't push yourself TOO much. Your body will tell you when it's time to stop.
I've got Crohn's also. Over 2 surgeries (2001 & 2014), I've had to have 44 inches of intestine removed. Luckily no stoma, they just spliced me back together like a garden hose. It took a fairly long while (2+ months) for me to fully heal, and even then I wasn't back to 100%. Hopefully your healing goes faster than mine. Good luck.
Ouch! 44 inches is a lot-have you had to get B12 supplements, or was it in areas that aren't in the terminal ileum area? I'm worried now that I've had about 18" resected that I might start being deficient :/
I am one of the unfortunate few who really appreciates what you are going through. I have Crohn's and had a resection by laparotomy in 2012 that left me with a temporary stoma. I spent 2 days in intensive care and a week in the hospital after the surgery, it was really rough. The pain when I came around from the anesthetic was definitely a 10, I yelled uncontrollably in pain. It took me many weeks to recover. Stay strong, hopefully, this will be your last surgery.
Yeah you don't really know what a '10' is until you go through a 10. And then you can use that as a point of reference in the future.
If you have any control over your brain and can do anything besides think about pain and groan... probably not quite a 10 :D
@@JeffGeerling well, when your vision starts to narrow and goes dark and the next thing you know is you passed out from the pain - you probably reached a 10 ...
Yes, you do have a rather good reference after that :-(
@@JeffGeerling having experienced that level of pain at least make less severe pain less painful?
How much less pain would there be in the world if people stopped eating all those unhealthy plants and so-called plant-"foods" which make them sick and would stick to meat and animal fat instead...
@@btudrus You would have to prove that that is the correct way to go first...
Hi Jeff, fellow Crohn's sufferer from London UK. First (Ile)ostomy in 1990 (aged 25) for two years (had a hemicolectomy and 6ft of small bowel removed in the process), then my second in 2019 for 3 months - so I'm with you. First time around I had my mum to help, more recently my wife ... I seriously don't know where I would have been without both of them. You will come out the other side stronger. Keep up the great work for both IBD and Pi communities.
My Mom and Wife are both the two solid foundations for my Crohn's journey too!
I hope you will continue to get better in the upcoming future, it's a bummer not to see as many tech videos from you anymore, but health always comes first, and I think I can speak on behalf of everyone, no one will hold a grudge against you.
Oh don't worry, I have a backlog of things I'm going to plow through next year. Two or three big projects I've been planning since last June but couldn't do because of Crohn's!
@@JeffGeerling Do you already have a name for your stoma? My mother had one too, it was called "Henry".
Agreed. We are very patient fans!
Happy New Year!
This is the kinda video that I'd imagine would be a slow, but informative, show on TLC or something back before the channels turned to "reality" content. Thanks for the window into your experience and here's to hoping the rest of recovery goes well.
I've been on pain management for almost 10 years, nothing wrong with 'getting addicted ' if you need the meds. Without my medication I would be bedridden. Chronic pain is not fun. Glad you're doing good!
Have UC myself, removed the colon 4 years ago, had a stoma for 2 years, and now a pouch. Keep on pushing.
Wishing you a very speedy recovery, Jeff, from your friends on the other side of the state.
KC! I can't wait to play against your soccer team with our new STL City MLS team. My family might take a road trip over there.
Your sense of humor throughout is wonderful. I can tell that your wife is a perfect fit with her own jokes. Wishing you quick healing and I look forward to more Pi shenanigans in 2023.
One thing is for sure, my wife and I share a passion for laughter and lightheartedness! With chronic illness you can either laugh or cry sometimes, so we choose to laugh.
Jeff, we are all here wishing good things for you in 2023. Wishing you a good recovery to come first and foremost. You’re an exceptional human-being.
Soooooo great to see a patient give their "perspective"...20+ years in physical therapy ...this is a great testimony to how a patients motivation can absolutely change their outcome....Bravo to you and your journey ...👏👏👏👏👏
Good luck Jeff. It sux seeing you like that but hopefully its for the better.
I am somewhat afraid of hospitals, needles n such, so this video was harder for me to watch it without feeling mildly uncomfortable.
but all I will say, you're a God damn titan of a human, Jeff. I wish you a fast recovery n all safety!
God I was the same way. But if it gives you any comfort, you adjust to it really quick if something goes down. It's kinda like tearing off a band-aid, but for hospital anxiety.
@@mme725 yeah. I hear stories of people fearing being conscious while getting mild-ish operations done (bones getting re-set, sutures, etc) but trust me:
When you're going through something like that, your entire mental state changes. You're not worried about what's happening, you're focused on the fact they're fixing you. The "medical theater" effect is extremely powerful, making it easier for professionals to do their work
needles aren't that bad if you stay still, relax, and distract yourself by chatting with your nurses, we are human too! :)
@@Nurse_Xochitl I loved my nurse of 8 years before she retired! Love to all the nurses out there!
Also I think I still hate "shots" like vaccines, but IV insertions are dandy for me lol
@@mme725 well i can give you some IVs lol
thanks for the love though
You poor man - I feel so sorry for anyone who has to fight this nasty disease. I don't have it myself but know a couple people who do, and they are constantly dealing with its effects. I wish you a speedy recovery, Jeff, and many good thoughts are going towards your family and caregivers. Rest up, heal up, and let's all hope this surgery gets you well for a long time to come. Peace and good health in 2023 and beyond~~
Best wishes for a speedy recovery!
Hey Jeff. Thanks for sharing. I know I'm just one person out of thousands watching this, but I feel privileged that you would share your experience. Keep safe. Keep exercising. And I'm looking forward to more of your adventures in a few weeks.
Jeff, you're a hoot. Happy on dilaudid, and we get our most basic tech reminder of how to point a microphone! =]
I am happy you made it through with minimal complications, and are on the mend. I am grateful for amazing friends and family that help us get along in life, we can't do it on our own. Thinking of you and them while you get through this.
Take your time and don't rush it, we're just chilling here in youtube land.
Just like all Jeff videos, I ended knowing more about something than when I started. What more can we ask for? Here's to a speedy and full recovery!
Wishing you a swift recovery! 💪
Glad to see you on screen and grateful to see this process. It's not always easy to understand the lives of the people "on the screen", and I do appreciate you sharing, both for informative purposes but, hopefully, for cathartic purposes too. This is who you are and we are grateful that you're still around and in good spirits, especially the more we understand of your condition. God bless, Jeff! 🙏
having gone through the same surgery several years ago, this hits me hard. thanks for hanging in there and spreading awareness, props to you!
Wishing you a speedy recovery!
We're praying for you Jeff!
The day to day progression in your mood/spirit is remarkable. The signs are recognizable as my wife has chronic pain and the days where the pain is high and meds are in the system, her demeanor changes greatly between pre and post medicating, as well as the days which are less pain.
Yeah, I never really saw it clearly until this year when I had my family record each day. You can really tell the jump from day 1 at night to day 2 in the morning! And then day 3 I was nearly back to myself.
Im a young Devops Engineer and I cant state this enough how much of an inspiration you are to me, just bought your paperback ansible book ob Amazon. Stay strong man, youre amazing, sending love from Poland!
Wish you a speedy recovery! All the best!
Speedy recovery to you!
Great to see you smiling and feeling much better by day 3. I empathize with you. During the early 1980’s, I went through five surgeries for UC (total colectomy and continent ileostomy). In 1985, I got it all working right at the Mayo Clinic. Your great attitude is inspiring.
Get well soon, Jeff. Lots of love and blessings from 🇮🇳🇮🇳
This is so inspiring to see you recovering, making progress and keeping so positive! Wishing you a safe and well rest of your recovery!
Wishing you a speedy recovery and a healthy year ahead Jeff!
Awwwww ... so glad to see you awake and cracking jokes. Your progress looks amazing. Here's to a speedy recovery!
Happy New Year! 🎉
Hope you're feeling better!
Speedy recovery, Jeff, and strog health for many years to come! Happy New Year!
Jeff - you're like me.. even when heavily sedated we know where we are and what's going on (perhaps really, just through solid rationality and awareness).. It's difficult when other people just think you're not talking right.. It's like shouting through a wall.. Damn., that just reminded me of the last scenes of Interstellar...I think this is one of the strangest and loneliest parts of recovery... Totally sympathise, especially because I might be facing the exact same thing as you pretty soon, except, with quite a lot less loving support than you.. :) We fight on, my genetic brother in arms..
Hahahaha, it's a little funny to watch you guys giggling and laughing about the microphone direction. I'm hoping for a swift recovery for Jeff, and I'm so glad that one of my favorite CZcamsrs has such an awesome family there with him. You guys are awesome, thank you so much. I'm glad you guys actually made this video, it shows what people are going through in their home life. I find that medical stuff is often overlooked because it's "unglamorous" but it makes people relatable, especially for other people who are suffering form Crohn's Disease.
Wishing you a quick recovery and good health my friend.
Get well soon and a speedy recovery my guy thanks for sharing. ✌🏾
Praying for you. ♥️
5:20 We all knew it! You're a machine!!
To Jeff: Get well my CZcams Mentor!
I'll watch anything you put out. Happy New Year and wishing you a speedy recovery.
best wishes for a speedy recovery Jeff!
Praying for a speedy recovery!
Nice to see your face again. Hope all goes well for you!
Speedy recovery Jeff!!!
You're an inspiration, man! Get well soon! Happy new year!
It is always amazing to see someone come out of surgery on day 1 and their face is all white. Then when you see that they are getting better, color comes back to their face and you can tell in their demeanor that they are now on the mend. That was clearly evident on the Day 2 video and especially on Day 3.
It's also HILARIOUS to see Jeff analyzing things in the room and whatnot. I am an engineer and do the SAME THINGS when I have surgery. I teach the medical staff about what things are doing (even though they know). I am in the inspection industry and deal with radiation a lot so I am even more chatty when I have radiologists or imaging technicians in the room. Much to the annoyance to some of the other staff at times. Hey though, I am on the table, its my time!! 😀
I have had (3) knee surgeries (I am young, only 45) and I can say and agree that hospital staff are amazing people. Having SOMEONE there to be with you periodically helps out the staff enormously. If nothing other than to keep you motivated. That is the hard part for staff, its hard for THEM to keep a patient motivated when they are not feel motivated. A friend, family member, or someone the patient knows personally is able to illicit the desire for recovery much better than medical staff usually can. All the staff on my surgeries were angels, so lovely and caring. Its really important when you are pre-op and post-op, when you are feeling most vulnerable and need that caring and nurturing environment. Especially if you have some anxiety. My surgeon and my anesthesiologist on my most major surgery, were so caring pre-op. Normally I don't have anxiety but I was feeling it a little and you at times will get a feeling of "Well, I might not come back from this...." (all surgeries where you are put under are life threatening). They almost instinctively knew my brain was going that direction and its like motherly instinct kicked in and their supportive nature just instantly kicked in to help make me feel better and take me away from that little bit of negative thought and anxiety. It's hard not to feel in good hands and feel loved when even your surgeon takes a moment out of his busy pre-op, and puts his hand on your arm to comfort you.
Oh this is funny. I'm also an engineer and love to geek out on any technology. Early in my career I worked with the team at U of Utah to develop the first real time subtractive angiography machine. So you can imagine when I went in for an echo-cardiogram a few years ago. Me and the imaging technician were having a total geek fest over the echo cardiogram machine.
Glad to see you have humor though all this.
My throat was dry.
But my humor was not dry.
@@JeffGeerlingagreed🥰
Best of luck, I wish you a speedy recovery.
Happy New Year, Jeff. Glad you're back home. Wishing you a speedy recovery.
Lets hope the IBD dosent come back, hope you feel the best you can!
We'll see! I'm on a new medicine this year, and so far signs are good, but we'll see how things go in 2023!
Speedy recovery Jeff! dont get hooked on painkillers lol
Who needs painkillers when you can channel the energy from watching Windows lock up over and over?
@@JeffGeerling this is why I love you man... you have every reason to be "down on yourself" but you are a bright light my friend... God Bless You
Good and speedy recovery Jeff, get well soon. May the new year be better then the old. Happy new year!
Happy New Year Jeff! Thanks for the update, can’t wait to see what great content you make in 2023!
300ft is about 100 meters
There you go! I couldn't do the math in my head that night.
Title "I got a compute module 4 inplant" but seriously take your time dont worry about us.
Ha! Even the hospital system doesn't have enough money to buy a CM4 right now!
Lol, that's true
Wishing you a speedy recovery. Your eternal optimism is so inspiring, thanks for making the video!
Thanks for sharing Jeff. Prayers for a quick recovery.
Be well soon mate, fingers crossed for a fast & complete recovery
I hope your recovery is swift!
speedy recovery!
Wish you speedy recovery and a beautiful 2023.
Thank you for sharing all this with us, Jeff! Going through all this looks like it took a lot of strength and posting it shows how strong your spirit is! Take care, rest and get better as I already miss your content! Thoughts and prayers for a speedy recovery!
Hope you have a speedy recovery Jeff!
Happy new year Jeff, I hope you get well soon. Your spirit is really unbeatable.
Great to see you are well on the road to recovery from your surgery! Have a great new year.
Wishing you all the best. Praying for a quick recovery!
Thank you for sharing your hospital experience Jeff! Happy New Year, and hope you have a healthy complication free recovery! Take the time you need, we'll be here when *you* are ready.
You’re incredible, Jeff. Thank you so much for documenting this.
I'm a recent subscriber but your passion and joy for life doesn't take long to pick up on! Wishing you a smooth and speedy recovery
Thanks for sharing your journey Jeff. Rest well, take the time to heal and we'll be here when you're ready in 2023. Have a Happy New Year!
Thank you Jeff for sharing your story it means so much to so many. Happy new year!
I wish you the best Jeff. Be thankful for your family. Good luck man.
I wish you a great recovery young man.
Genuinely happy to see you back and hale! Please recover in your own pace and happy New Year! :)
Best wishes for a rapid recovery
Good to see you recovering. I'm glad you've got your family to help you so much - it looks like a really hard surgery. Big courage, dude!
Get well soon man! But at the other hand, take all the time you need! We’ll be here waiting for you.
Happy new year!
Stay strong Jeff. I wish you a fast recovery! All my best!