Azathioprine & mercaptopurine made my symptoms 10x worse. Right now I’m recovering from my worst flare ever after trialing mercaptopurine. I’m trying methotrexate now, wish me luck.
Recently found your channel Jacob, hoping to watch all your content! If I can ask, what do you think about IBD and Cannabis? Have you ever had any experiences with it? Would you ever do a video about it? - Thanks!
Hey thanks for the comment, I actually talked about it in my first live stream yesterday! This should take you to when I answer the question. czcams.com/users/liveKHXU8CHjlcQ?si=ggH2dHSDCHYNTMiU&t=6032 But I would definitly talk about it in more depth in a dedicated video in the future.
Sounds like your on the right path, trying out medications to see what works is a good idea. Hang in there, I know the bleeding can be scary but you will get through it.
Dude I used immuran 1 years I didn’t have any flare but I couldn’t make normal shit also then doctor said we will end up immuran in 3 months then I stopped using pills then I had flare again … Doctor said that we will start a real medication father of immuran Remicade I’ll start remicade tomorrow I hope it’ll be cure for ulcerative colitis
Infliximab is the boss out of all the biologics. Known as “rescue” therapy. It should work well. Coming off meds is risky though, it’s a debilitating disease.
@@jacobsIBD he said that imuran have side effects when you use it long term. By the way I stared remicade first dose effects in hours I shit normal healthy size 10 days then it doesn’t help:( I thought when I take second dose it’ll be normal again but it didn’t I took second dose but I still can’t make normal shit I’m very afraid I think i have to take colon surgery remicade also doesn’t help me
@@alirzadurak2491 hopefully you don’t need surgery. That’ll change your bowel habits for life. Infliximab usually is the one which works alongside some other medications. What’s your diet? I also realised that eating animal based food only 2-3 times per day makes me feel good. Hopefully they’ll find a medication instead of surgery.
I do have some details on my diet in my free PDF if you are interested: kneecapmedia.eo.page/bn5h5 I list an example of what I typically eat day to day.
Dude I used immuran 1 years I didn’t have any flare but I couldn’t make normal shit also then doctor said we will end up immuran in 3 months then I stopped using pills then I had flare again … Doctor said that we will start a real medication father of immuran Remicade I’ll start remicade tomorrow I hope it’ll be cure for ulcerative colitis
@@jacobsIBDI’ve had two infusions of infliximab and will soon be starting aza to stop me from making proteins that reject the infliximab you video has been a huge comfort to me as the thought of aza is currently terrifying to me, infliximab has worked so well for me so hoping all goes smoothly!!
Azathioprine & mercaptopurine made my symptoms 10x worse. Right now I’m recovering from my worst flare ever after trialing mercaptopurine. I’m trying methotrexate now, wish me luck.
Thanks, Jacob for this video. It is very relevant to my immediate situation.
Glad you found it helpful!
Recently found your channel Jacob, hoping to watch all your content! If I can ask, what do you think about IBD and Cannabis? Have you ever had any experiences with it? Would you ever do a video about it? - Thanks!
Hey thanks for the comment, I actually talked about it in my first live stream yesterday!
This should take you to when I answer the question.
czcams.com/users/liveKHXU8CHjlcQ?si=ggH2dHSDCHYNTMiU&t=6032
But I would definitly talk about it in more depth in a dedicated video in the future.
Turns out I just talk about smoking in general there. I definitly talked about cannabis at some point in this stream, I am struggling to find it now😅
Now my bleeding didn't stop doctor prescribed me azithioprine can this stop blood
Sounds like your on the right path, trying out medications to see what works is a good idea. Hang in there, I know the bleeding can be scary but you will get through it.
By the way don’t be afraid of immuran
Dude I used immuran 1 years I didn’t have any flare but I couldn’t make normal shit also then doctor said we will end up immuran in 3 months then I stopped using pills then I had flare again … Doctor said that we will start a real medication father of immuran Remicade I’ll start remicade tomorrow I hope it’ll be cure for ulcerative colitis
Strange the doctor called remicade the real medication! Is he implying he feels Imuran does nothing?
Infliximab is the boss out of all the biologics. Known as “rescue” therapy.
It should work well.
Coming off meds is risky though, it’s a debilitating disease.
@@jacobsIBD he said that imuran have side effects when you use it long term.
By the way I stared remicade first dose effects in hours I shit normal healthy size 10 days then it doesn’t help:( I thought when I take second dose it’ll be normal again but it didn’t I took second dose but I still can’t make normal shit I’m very afraid I think i have to take colon surgery remicade also doesn’t help me
By the way I use imuran 1 pill everyday by remicade
@@alirzadurak2491 hopefully you don’t need surgery. That’ll change your bowel habits for life.
Infliximab usually is the one which works alongside some other medications.
What’s your diet? I also realised that eating animal based food only 2-3 times per day makes me feel good.
Hopefully they’ll find a medication instead of surgery.
I'm curious, what does your diet look like? Maybe you could make a video about it?
Good idea! I will add it to my list.
I do have some details on my diet in my free PDF if you are interested: kneecapmedia.eo.page/bn5h5
I list an example of what I typically eat day to day.
Dude I used immuran 1 years I didn’t have any flare but I couldn’t make normal shit also then doctor said we will end up immuran in 3 months then I stopped using pills then I had flare again … Doctor said that we will start a real medication father of immuran Remicade I’ll start remicade tomorrow I hope it’ll be cure for ulcerative colitis
I can say it's been working well for me so far! Although as I am on aza and inflixi (imuran & remicade) it's hard to say which one is working.
@@jacobsIBD do you shit normal size?) I was shitting snot
@@jacobsIBDI’ve had two infusions of infliximab and will soon be starting aza to stop me from making proteins that reject the infliximab you video has been a huge comfort to me as the thought of aza is currently terrifying to me, infliximab has worked so well for me so hoping all goes smoothly!!
@@jacobsIBDinfliximab for sure. You shouldn’t have to be on aza for no more than a year.
Keep going,