Further down the Line: A Primary Progressive MS Diagnosis

This video looks at my Primary Progressive Multiple Sclerosis (PPMS) diagnosis, and how the condition is affecting me and where I go from here.
Where I am pointing at the screen, CZcams no longer allows annotations, so here is the link!
• My Multiple Sclerosis ...

[@bettywith2girls]

You should look up Jason DaSilva who wrote/filmed the award winning "When I Walk" film that PBS picked up. He's a Canadian who moved to New York (the best home-care health care state in the U.S., he found out), and he's had primary progressive MS since 2006 when he was diagnosed at the age of 25. The film starts with him getting initial symptoms, the diagnosis, his marriage (altho he actually didn't officially get married so he could keep his health care, which a lot of people do) and the birth of his son (sadly, his "marriage" fell apart within the last year or two) and his slow physical decline. He has a YT account with his current condition, plus he is close to releasing his 2nd film "When We Walk" which covers the rest of his life after his 1st film and his relationship with his "wife" and son (they are currently in a custody dispute). His son is very young also, and Jason is now only able to move his head, yet lives a fulfilling life and makes films. You are right; MS reacts differently for everyone but PP-MS is so definitely hard on relationships and having children. Jason has had the stem cell procedure also. I wish you well and God bless you and yours. Look up Jason DaSilva when you get the chance.

[@ATipplingPhilosopher]

Thank you so much for this. I am also looking forward to watching Living Proof, another supposedly excellent MS doc.

[@ATipplingPhilosopher]

czcams.com/video/fjwSz2xsD1s/video.html

[@xephani76]

I know a doctor who managers her symptoms with diet. She's cut out dairy and wheat I think. I don't know the particulars.

[@ATipplingPhilosopher]

I'm still eating wheat and hoping that's ok!