The Parkinson’s Journey - Understanding Progression

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  • čas přidán 16. 07. 2024
  • For more information on this topic, please visit: www.parkinson.org/Understandi...
    Parkinson’s disease (PD) impacts every person living with the disease in different ways - from early signs to symptoms and progression. Learn more about patterns of progression, where you or your loved one tracks in the course of Parkinson’s, and how to navigate changes along the way working alongside your care team.
    Speakers:
    Annie Killoran, MD, MSc, Clinical Associate Professor Neurology
    University of Iowa Hospitals and Clinics, Parkinson’s Foundation Center of Excellence
    Lance M. Wilson, MSS, LSW, C-SWHC, ASW-G, Social Worker & Education and Outreach Coordinator
    Jefferson Health Comprehensive Parkinson’s Disease and Movement Disorders Center, Parkinson’s Foundation Center of Excellence
    Bios:
    Dr. Annie Killoran completed her Fellowship in Movement Disorders at the University of Rochester. She took a faculty position at the University of West Virginia before joining the team at the University of Iowa in 2016. She is involved in the multidisciplinary Huntington’s disease clinic and has dedicated clinics for ataxia and Botulinum Toxin. However, the large majority of her patients have Parkinson’s disease and she is currently involved in a clinical trial targeting sleep dysfunction in people with Parkinson’s disease. She is also a Parkinson’s Foundation “Palliative Care Champion” and has recently established a specialty clinic, which provides palliative care for patients with Parkinson’s Disease and other neurological conditions.
    Lance Wilson
    Lance M. Wilson is a Neuroscience Medical Social Worker who works with patients diagnosed with movement disorders, such as Parkinson's Disease. Lance works with both, patients and care partners providing education, assistance navigating healthcare systems and the continuum of care. Lance has the skill set to assess and facilitate interventions, as well as refer to community/national resources, and conducting brief therapy while offering support and guidance throughout the course of the disease.
    Lance has professionally worked in the medical, mental health, and public health field for over 5 years and is often asked to speak on a variety of topics in both academia and the community.
    Lance is a Licensed Social Worker (LSW) in the State of Pennsylvania. Lance holds a C-SWHC (Certified Social Worker in Health Care) and ASW-G (Advanced Social Worker in Gerontology) both are specialty certifications from the National Association of Social Workers.
    Lance holds a Bachelor’s Degree in Science (BS) in Human Services from Lincoln University of PA and a Master’s Degree in Social Service (MSS) in Clinical Social Work from Bryn Mawr College’s Graduate School of Social Work and Social Research. Currently, Lance is pursuing his PhD in Social Work from Widener University’s College of Health & Human Services as well as working on completing supervision to obtain his clinical social work licensure

Komentáře • 30

  • @selenawelborn2239
    @selenawelborn2239 Před 2 lety +5

    Lance is so upbeat! He makes everything seem ok… I wish he could be my husbands social worker!

  • @mk-iv7xn
    @mk-iv7xn Před 10 měsíci +1

    I was diagnosed 5 years ago
    But today it was good informatory and helpful.hope lot of people will benefit from it

  • @gayladreith9961
    @gayladreith9961 Před 18 dny +1

    My husband may have this

  • @kennethburke6422
    @kennethburke6422 Před rokem +1

    This webinar helped a lot with me and my carer. Thank you all for such a good job and informative. God bless you all!

  • @sunahamanagai9039
    @sunahamanagai9039 Před 2 lety +3

    16:29 18:20
    Wow, this may be the BEST Parkinson's video I've seen. Information packed and explains A LOT.

  • @RSRJ15
    @RSRJ15 Před rokem +2

    This is really valuable. Thank you so much for creating and making it accessible to people. I live in the Us but my mom who’s diagnosed with PD lives in India. Unfortunately, in India there’s not much information available and doctor’s specialized in PD are around. I found this video and felt I learned to understand about PD and the support my mom needs. I hope we have more doctors like you guys in India to help patients suffering from PD which goes undiagnosed in most cases until a few stages have passed.

  • @suzannedoran9314
    @suzannedoran9314 Před rokem +1

    Someone I love has been diagnosed

    • @ParkinsonDotOrg
      @ParkinsonDotOrg  Před rokem

      Know that we're here for you and your loved one, Suzanne 💙We have many resources for people with Parkinson's and those who love them: www.parkinson.org/resources-support

  • @celiaclack7802
    @celiaclack7802 Před rokem +1

    Very informative, thank you

  • @Zerobar78.
    @Zerobar78. Před rokem +4

    Thank you for putting this together, as someone who is recently diagnosed, trying to wrap my head around what to expect, has been the single most frustrating thing for me. Also, trying to establish a sense of time. Absolutely great information.

    • @ParkinsonDotOrg
      @ParkinsonDotOrg  Před rokem +1

      Know that we're here for you, Ben 💙 We also have information specifically for those who are new to Parkinson's disease on our website: www.parkinson.org/living-with-parkinsons/new-to-parkinsons

  • @jan01grippo
    @jan01grippo Před 2 lety +5

    Lance, I so appreciate your thoughts on "LIVING" with parkingsons. Thank you for a great outlook and hope.

  • @donnathompson9469
    @donnathompson9469 Před 2 lety +1

    Thank you so much for this helpful information!

  • @Facebook57
    @Facebook57 Před 2 lety +2

    Donny Mathis AKA uncle Donny AKA Popa doc Outkast guitarist back in the days I play guitar on Rosa Parks back in the days I went to the Grammys with Outkast back in the days I have PD I listen to learn about this disease I have type 2 diabetes and I have high blood pressure and I have COPD and I real and chronic pain but I will keep trying to play my guitar 🎸 PS I have epilepsy

  • @thelmafernandes4756
    @thelmafernandes4756 Před 3 měsíci +1

    I progressedfast

  • @kristis4147
    @kristis4147 Před 2 lety +4

    Thank you for this information. I’ve made my father in law dr appt in hopes to get hone physical therapy for his balance and falls. I am now considering speech and social worker . He is 86, can no longer drive and would welcome any help that can come to his home and help during this journey. Lance seems very passionate about his job and helping people with PD.

    • @marthatoledo6402
      @marthatoledo6402 Před 2 lety +2

      Quiero oírlo en español

    • @terrilamasa439
      @terrilamasa439 Před 2 lety +1

      My husband is 85 and has been told by his doctor to no longer drive..after many many falls the doctor is submitting the request for an electric scooter or wheelchair for him.

    • @Facebook57
      @Facebook57 Před 2 lety

      Thanks

  • @jhonmariomaderasanchez7948

    Thank you,excellent❤

  • @sandihodnett6370
    @sandihodnett6370 Před 2 lety +3

    I found this video very informative. My husband was diagnosed over 2 yrs ago and have recently found out his uncle and sister have been diagnosed with PD. Will definitely look into your genetic information. Thank you!

  • @rogerpinette3967
    @rogerpinette3967 Před 2 lety +1

    So much great information in this video. I have forwarded it to my children so they can understand what's going on with their dad much better. It was in normal language so us non professionals understand it too. THANKS so much!

  • @josephbruder1225
    @josephbruder1225 Před 2 lety +2

    Why can’t I get qualified for any Parkinson’s study at all

  • @josephbruder1225
    @josephbruder1225 Před 2 lety +1

    Yes I want to enan
    I would like to improve my living expersnce but first I want to get my drivers licence back from the Secretary of state

  • @sunahamanagai9039
    @sunahamanagai9039 Před 2 lety +3

    18:20 Wait, the non-tremor dominant type, isn't this similar to MSA??? This sounds like MSA-P if you ask me. They are both synuleopathy but is there really a difference? Do the brains under microscope appear different at autopsy?? Same pathology?

  • @isabelmorfa8227
    @isabelmorfa8227 Před 3 měsíci +1

    where is the financial help !!

    • @ParkinsonDotOrg
      @ParkinsonDotOrg  Před 3 měsíci

      Hi there - We have resources on financial help with PD here: www.parkinson.org/living-with-parkinsons/legal-financial/insurance

  • @thelmafernandes4756
    @thelmafernandes4756 Před 3 měsíci +1

    Within i progŕesseð to wheelchair ̈yr

  • @revdrjamesshowersjr8494
    @revdrjamesshowersjr8494 Před rokem +1

    Parkinson's disease patient