Hey dude. I’m 59 and a former National Mountain Bike champ and just got my pacemaker implanted two weeks ago. Thanks for your video. Hang in there and best of luck going forward!
Holy hell. I randomly came across this video looking at different pacemaker ‘how to’ educational type videos. WPW myself, ablation at 7 and same issue damaging the AV node, first pacemaker at 8…35 now and looking at my second extraction. First was with my first pacemaker replacement going single to dual chamber. This will be my 6th pacemaker now, still only dual chamber and first extraction after 22 years with these leads. Only difference is I was told these guys only last 15-20 years so my EP wasn’t necessarily surprised. Same deal activity wise with resistance training 4 days a week, cardio, biking and other outdoor stuff the other days... I was warned of the clavicle potentially crushing it but also was told it’s a relatively small incident rate as well so I’ve kept going with it. You’re correct. A subset of a subset of a subset, and others just don’t realize the struggle of trying to be active and stay healthy while having the chance of doing yourself in in the process.
First of all, hi from Lithuania :) I feel sorry that you had to go trough this, but also what I wanted to say is that I can relate to you and I feel the same and I live with the same fears as you do. I am 27 now and I do have 19 years old lead in my body. I had a surgery a month ago and my pacemaker was changed for the third time. And I know that one day my lead will be changed too. With all risks that you mentioned. It's pretty scary to live like that, managing to deal with all the fears. But what can we do. We just live and pray to live as much longer as we can. I really feel you and I just stopped by to say that you should not feel alone. There are people in this world like me, who sits in the same boat with you. I truly wish you all the best. Stay blessed.
Hello I’m in the same boat as you right now. I had my av node damaged in an WPW ablation. I’m playing college baseball and just found out after not feeling well that my ejection fraction has dropped from 73 to 40 in 7 months. It’s stressful! I’m looking into getting the new leafless pacemaker called “Micra av”. It is put into the area where the av node would be at and helps with synchrony with the ventricles. If I decide not to get that then I’ll get the third wire. I just want to get better ASAP for baseball. I hope everything is going well. The doctor I will speak with is close to being able to regenerating the whole av node with gene therapy. His name is Dr. Cingolani! He’s great and I see him tomorrow. Maybe we can help with funding for the biological pacemakers to be available soon. If you want to chat you can email me @rhettwalker11@gmail.com Thanks, look forward to hearing from you!
Talked to my doctor today and he strongly recommends a pacemaker. I've had four catheter ablations and when I was younger I had open heart surgery to repair a septal defect. I am also considering Mini Maze procedure but my Cardiologist is concerned that my lungs might not be able to handle it. I have sick sinus node, hope that the way its described. So he thinks that I'll probably need a pacemaker regardless if the Mini Maze if successful or not. I've had A-fib for about 20 years. Thanks for the info.
My uncle passed away tonight during a lead extraction. Something went wrong, put him on bypass but his arteries couldn't take it. Its still sketchy it just happened. But ill miss him. I dont mean to upset you. Im just heartbroken at the moment.
Sorry to hear what you had go through, must've been a frustrating journey. I'm in a similar position in that I'd like to do some form of weight training program but also cautious about increasing risk of lead fracture. Do you have any training recommendation or videos in terms of what might cause extra wear and tear to the ICD/pacemaker leads.
Hi Noboru, sorry for the delayed response, we didn't get notified of your comment! There are a couple problems with recommendations about exercise selection. 1. It depends on where your leads are placed. A popular option is the subclavian vein which is a higher risk for lead fracture. 2. It depends if your pacer is sub pec or subcutaneous. If it is sub pec (under the muscle) it will be more protected 3. The number of leads you have makes a difference. A single lead is safer than a dual lead is safter than a triple lead. There's only so much space in there, so more leads=greater risk of fracture. 4. Your personal anatomy. The shape of your body will make a big difference. Some people have been able to make zero modifcations to their exercise routines and have had no issues. Others have fractured leads very easily (like me). In general I would avoid anything repetitve overhead (like military presses, pull-ups, lat pulldowns, etc...) and also any chest exercises like bench press, push-ups, etc... The other down side is that pacing isn't that commong. Roughly 350k people in the US, which is a drop in the bucket in the medical world. Couple that with the fact that more than 95% of people with pacers are over the age of 50. The 50+ community isn't a population that is commonly involved in strength training. So there isn't much data. Fortunately leadless pacing technology is on its way, and should be a viable solution for most people in the next 5-10 years.
@@ArkitectFitness thanks plenty for the response!! Very insightful and Helpful. I guess were all unique. I have one icd lead subcutaneous and pretty sure it’s not via the subclavian vein. I guess it’s a bummer that repetitive exercises over the head and chest is not recommended. Let’s hope technologies keep on improving for both pacemakers and icds. Thanks again!
Hii, Im sorry sorry to hear that. Im 18 now and i have atrial fibrillation during sports. I had an ablation done near my AV. The docter said that the operation didn't succeed and unfortunately he was right. It is a bit worse than before cause i now have it sometimes when im not sporting at all. I tried some medication but that didn't work as well. Now im thinking about a pacemaker cause im reading on the internet that it is a possibility for me. At this moment im not sure if i can keep going with the atrial fibrillation i have now. I cannot even sport anymore cause the second i try it hits me again. So i was wondering what would you do. Im very young still so i know that my wires would have to be changed someday later in my life which is going to be dangerous. I just don't know if its the right thing for me to go for a pacemaker or just accept the way it is. Hope to hear from you
@@ArkitectFitness It's still very bad. I'm on medication again twice a day now. Still think it doesn't work. For now i'll leave it as it is. Maybe someday i will go abroad to see if there are other options for me, cause i heard in the country next to me, they are more specialized in pacemakers etc. Hope your doing good as well
Hey dude. I’m 59 and a former National Mountain Bike champ and just got my pacemaker implanted two weeks ago. Thanks for your video. Hang in there and best of luck going forward!
Holy hell. I randomly came across this video looking at different pacemaker ‘how to’ educational type videos.
WPW myself, ablation at 7 and same issue damaging the AV node, first pacemaker at 8…35 now and looking at my second extraction.
First was with my first pacemaker replacement going single to dual chamber. This will be my 6th pacemaker now, still only dual chamber and first extraction after 22 years with these leads. Only difference is I was told these guys only last 15-20 years so my EP wasn’t necessarily surprised.
Same deal activity wise with resistance training 4 days a week, cardio, biking and other outdoor stuff the other days... I was warned of the clavicle potentially crushing it but also was told it’s a relatively small incident rate as well so I’ve kept going with it.
You’re correct. A subset of a subset of a subset, and others just don’t realize the struggle of trying to be active and stay healthy while having the chance of doing yourself in in the process.
Same with me first ablation then pacemaker. Still am notback to normal, thanks for the video. I know some people who pray, lil have them pray for you
Thank s for very good info
First of all, hi from Lithuania :) I feel sorry that you had to go trough this, but also what I wanted to say is that I can relate to you and I feel the same and I live with the same fears as you do. I am 27 now and I do have 19 years old lead in my body. I had a surgery a month ago and my pacemaker was changed for the third time. And I know that one day my lead will be changed too. With all risks that you mentioned. It's pretty scary to live like that, managing to deal with all the fears. But what can we do. We just live and pray to live as much longer as we can. I really feel you and I just stopped by to say that you should not feel alone. There are people in this world like me, who sits in the same boat with you. I truly wish you all the best. Stay blessed.
How are things going now?
Thank you.
Hello I’m in the same boat as you right now. I had my av node damaged in an WPW ablation. I’m playing college baseball and just found out after not feeling well that my ejection fraction has dropped from 73 to 40 in 7 months. It’s stressful! I’m looking into getting the new leafless pacemaker called “Micra av”. It is put into the area where the av node would be at and helps with synchrony with the ventricles. If I decide not to get that then I’ll get the third wire. I just want to get better ASAP for baseball. I hope everything is going well. The doctor I will speak with is close to being able to regenerating the whole av node with gene therapy. His name is Dr. Cingolani! He’s great and I see him tomorrow. Maybe we can help with funding for the biological pacemakers to be available soon. If you want to chat you can email me @rhettwalker11@gmail.com
Thanks, look forward to hearing from you!
Rough road for you but it sounds like you’ve handled it well. 🙏🏻
Basically he's been living in hell
How the fuck can you enjoy life like that?
And l am starting to feel tired all the time because of my cardiomiopaty
Talked to my doctor today and he strongly recommends a pacemaker. I've had four catheter ablations and when I was younger I had open heart surgery to repair a septal defect. I am also considering Mini Maze procedure but my Cardiologist is concerned that my lungs might not be able to handle it. I have sick sinus node, hope that the way its described. So he thinks that I'll probably need a pacemaker regardless if the Mini Maze if successful or not. I've had A-fib for about 20 years. Thanks for the info.
How did it turn out for you?
My uncle passed away tonight during a lead extraction. Something went wrong, put him on bypass but his arteries couldn't take it. Its still sketchy it just happened. But ill miss him.
I dont mean to upset you. Im just heartbroken at the moment.
Very sorry for your loss. Can't even imagine how difficult that must be.
Sorry to hear what you had go through, must've been a frustrating journey. I'm in a similar position in that I'd like to do some form of weight training program but also cautious about increasing risk of lead fracture. Do you have any training recommendation or videos in terms of what might cause extra wear and tear to the ICD/pacemaker leads.
Hi Noboru, sorry for the delayed response, we didn't get notified of your comment! There are a couple problems with recommendations about exercise selection.
1. It depends on where your leads are placed. A popular option is the subclavian vein which is a higher risk for lead fracture.
2. It depends if your pacer is sub pec or subcutaneous. If it is sub pec (under the muscle) it will be more protected
3. The number of leads you have makes a difference. A single lead is safer than a dual lead is safter than a triple lead. There's only so much space in there, so more leads=greater risk of fracture.
4. Your personal anatomy. The shape of your body will make a big difference. Some people have been able to make zero modifcations to their exercise routines and have had no issues. Others have fractured leads very easily (like me).
In general I would avoid anything repetitve overhead (like military presses, pull-ups, lat pulldowns, etc...) and also any chest exercises like bench press, push-ups, etc...
The other down side is that pacing isn't that commong. Roughly 350k people in the US, which is a drop in the bucket in the medical world. Couple that with the fact that more than 95% of people with pacers are over the age of 50. The 50+ community isn't a population that is commonly involved in strength training. So there isn't much data.
Fortunately leadless pacing technology is on its way, and should be a viable solution for most people in the next 5-10 years.
@@ArkitectFitness thanks plenty for the response!! Very insightful and Helpful. I guess were all unique. I have one icd lead subcutaneous and pretty sure it’s not via the subclavian vein. I guess it’s a bummer that repetitive exercises over the head and chest is not recommended. Let’s hope technologies keep on improving for both pacemakers and icds. Thanks again!
Hii, Im sorry sorry to hear that. Im 18 now and i have atrial fibrillation during sports. I had an ablation done near my AV. The docter said that the operation didn't succeed and unfortunately he was right. It is a bit worse than before cause i now have it sometimes when im not sporting at all. I tried some medication but that didn't work as well. Now im thinking about a pacemaker cause im reading on the internet that it is a possibility for me. At this moment im not sure if i can keep going with the atrial fibrillation i have now. I cannot even sport anymore cause the second i try it hits me again. So i was wondering what would you do. Im very young still so i know that my wires would have to be changed someday later in my life which is going to be dangerous. I just don't know if its the right thing for me to go for a pacemaker or just accept the way it is. Hope to hear from you
Any updates on this? How did it turn out?
@@ArkitectFitness It's still very bad. I'm on medication again twice a day now. Still think it doesn't work. For now i'll leave it as it is. Maybe someday i will go abroad to see if there are other options for me, cause i heard in the country next to me, they are more specialized in pacemakers etc. Hope your doing good as well