This was explained very well. My Mother started her symptoms in August of 2014 - SCLC was her diagnosis. Today she is cancer free thanks to the early diagnosis due to the LEMS symptoms. She is currently undergoing Brain radiation therapy. This is a precautionary treatment that is recommended as SCLC typically travels to the brain first so by doing this radiation therapy to the brain the thought is, if there are any cancer cells there that cannot be yet detected they will be killed. She has been on DAP and it has helped her greatly. She still needs a walker to assist her but she is now able to open her eyes, her speech is much better and she can now get up from a seated position on her own. When she started her Chemo/Radiation therapy back in November she was in a wheelchair, could not hold her head up, keep her eyes open and her speech was very slurred, so it is good to see her be able to go play bridge with her bridge group again and get out and about.
I need your help! I have just about every symptom of LEMS and I had 2 Dr say I might have MG and did minimal bloodwork for it and results of those were negative! Since they told me that it might be MG I have been studying it and with my symptoms I was led to LEMS. I have week muscles, dry mouth, I was a former smoker of 20 years. I have thyroid and parotid tumors. I also have a lung pain in my upper right lung into my shoulder on and off again! I had an ex ray and it said my lung was clear at that time! I’ve been sick for at least 10 years progressed over time! I also have eye drooping! I got better the bogging of this year after I had Septoplasty terbinoplasty and I was taking prednisone for pain after! I only realized this when is got sick again several months later and the symptoms have almost all come back! They slowly came back! I had been exercising and noticed at the start of me feeling better my VO2 max improved and the start of not feeling good it has been decreasing! I feel that the prednisone treatment may have helped me and then it wore off! Just before this surgery I was sleeping and couldn’t barely get off the chair for a whole year! After my surgery I got so strong I hadn’t felt like since I was a child! I also have constipation and sleep apnea! I sweat till I’m drenched and night sweats horrible and low grade fever a lot! My menstal cycle has been coming like every 23 days and getting closer together over time and it only lasts like 2 days. I am most symptomatic around my period and ovulation time I can’t barely function! Anyway I can’t get anyone to listen to me! I have so many more symptoms I couldn’t put them all here! I have 2 kids and need and want to take care of them and I have brain fog so I can’t even take care of my bills and have to wait for a clear brain moment to do it! I live in a small town and not to mAny specialist Dr around! I have been sent to so many different kinds and f Dr and getting no where. I have so many unanswered questions and need some help! It’s hard with my brain fog to even tell the Dr what is going on with me! I need someone who will guide me and help me get to the bottom of this! Please if there is any thing that you could do to help me my children, family and myself would greatly appreciate it! Thanks so much!
At last! Thank you!! Brilliant explanation of this rare illness!
Such a clear explanation of all aspects of this condition. Thank you
This was explained very well. My Mother started her symptoms in August of 2014 - SCLC was her diagnosis. Today she is cancer free thanks to the early diagnosis due to the LEMS symptoms. She is currently undergoing Brain radiation therapy. This is a precautionary treatment that is recommended as SCLC typically travels to the brain first so by doing this radiation therapy to the brain the thought is, if there are any cancer cells there that cannot be yet detected they will be killed.
She has been on DAP and it has helped her greatly. She still needs a walker to assist her but she is now able to open her eyes, her speech is much better and she can now get up from a seated position on her own. When she started her Chemo/Radiation therapy back in November she was in a wheelchair, could not hold her head up, keep her eyes open and her speech was very slurred, so it is good to see her be able to go play bridge with her bridge group again and get out and about.
nice video...keep on sharing such videos ...
Thank you.
Thanks
thank you, i hadnt even heard of this before today
awesm..video
Thank you I am a med student, that was very helpful
I need your help! I have just about every symptom of LEMS and I had 2 Dr say I might have MG and did minimal bloodwork for it and results of those were negative! Since they told me that it might be MG I have been studying it and with my symptoms I was led to LEMS. I have week muscles, dry mouth, I was a former smoker of 20 years. I have thyroid and parotid tumors. I also have a lung pain in my upper right lung into my shoulder on and off again! I had an ex ray and it said my lung was clear at that time! I’ve been sick for at least 10 years progressed over time! I also have eye drooping! I got better the bogging of this year after I had Septoplasty terbinoplasty and I was taking prednisone for pain after! I only realized this when is got sick again several months later and the symptoms have almost all come back! They slowly came back! I had been exercising and noticed at the start of me feeling better my VO2 max improved and the start of not feeling good it has been decreasing! I feel that the prednisone treatment may have helped me and then it wore off! Just before this surgery I was sleeping and couldn’t barely get off the chair for a whole year! After my surgery I got so strong I hadn’t felt like since I was a child! I also have constipation and sleep apnea! I sweat till I’m drenched and night sweats horrible and low grade fever a lot! My menstal cycle has been coming like every 23 days and getting closer together over time and it only lasts like 2 days. I am most symptomatic around my period and ovulation time I can’t barely function! Anyway I can’t get anyone to listen to me! I have so many more symptoms I couldn’t put them all here! I have 2 kids and need and want to take care of them and I have brain fog so I can’t even take care of my bills and have to wait for a clear brain moment to do it! I live in a small town and not to mAny specialist Dr around! I have been sent to so many different kinds and f Dr and getting no where. I have so many unanswered questions and need some help! It’s hard with my brain fog to even tell the Dr what is going on with me! I need someone who will guide me and help me get to the bottom of this! Please if there is any thing that you could do to help me my children, family and myself would greatly appreciate it! Thanks so much!
does anyone know who this doctor is ??
why limb muscle are affected early ?? and why ptosis and diplopia occur late in this disease although ach is less in both types??
hello sir I am MG patient my problem 10 years my better suggestion thank you sir
I haven't heart of any cases of LEMS with cancer, where the cancer is cured and the LEMS goes away, including me!