Video

Thanks

Thanks

ive just had this ruled out, need research late stage sjogrens now, think im lucky

I have ocular miastenija gravis? What medicqment to use?

I am MG patient my problem 10 years

my heart goes out to all of us I too suffer with this I am doing ok now but I am still afraid

hello sir I am MG patient my problem 10 years my better suggestion thank you sir

is this an episode of brasseye

Thank you.

Such a clear explanation of all aspects of this condition. Thank you

I need your help! I have just about every symptom of LEMS and I had 2 Dr say I might have MG and did minimal bloodwork for it and results of those were negative! Since they told me that it might be MG I have been studying it and with my symptoms I was led to LEMS. I have week muscles, dry mouth, I was a former smoker of 20 years. I have thyroid and parotid tumors. I also have a lung pain in my upper right lung into my shoulder on and off again! I had an ex ray and it said my lung was clear at that time! I’ve been sick for at least 10 years progressed over time! I also have eye drooping! I got better the bogging of this year after I had Septoplasty terbinoplasty and I was taking prednisone for pain after! I only realized this when is got sick again several months later and the symptoms have almost all come back! They slowly came back! I had been exercising and noticed at the start of me feeling better my VO2 max improved and the start of not feeling good it has been decreasing! I feel that the prednisone treatment may have helped me and then it wore off! Just before this surgery I was sleeping and couldn’t barely get off the chair for a whole year! After my surgery I got so strong I hadn’t felt like since I was a child! I also have constipation and sleep apnea! I sweat till I’m drenched and night sweats horrible and low grade fever a lot! My menstal cycle has been coming like every 23 days and getting closer together over time and it only lasts like 2 days. I am most symptomatic around my period and ovulation time I can’t barely function! Anyway I can’t get anyone to listen to me! I have so many more symptoms I couldn’t put them all here! I have 2 kids and need and want to take care of them and I have brain fog so I can’t even take care of my bills and have to wait for a clear brain moment to do it! I live in a small town and not to mAny specialist Dr around! I have been sent to so many different kinds and f Dr and getting no where. I have so many unanswered questions and need some help! It’s hard with my brain fog to even tell the Dr what is going on with me! I need someone who will guide me and help me get to the bottom of this! Please if there is any thing that you could do to help me my children, family and myself would greatly appreciate it! Thanks so much!

Great education on mg, does elderly patient on long term unselective beta blocker carvedilol causing severe myasthenia gravis or crisis?

Como eu queria a traduçaõ desse vidío

Amazing lecture...

The person in the video is Professor Newsom-Davies.

This video could do with a slight update. Not only does it look rather old but you now need to contact Myaware.co.uk who were previously MGA.

Hi I am myasthenia gravis patient, I survived 21 years,

Thank you needed to understand this for my pathophys class.

I have mystania gravis please help me sir

does anyone know who this doctor is ??

If I have a positive EMG, drooping eye and muscle weakness but normal labs? Can I still have MG?

Muje myasthenia h help me

I was diagnosed with this almost a month ago. I'm shocked at how quickly this rolled over me. I'm in rehab as I write this. I have no clue what comes next in my life with this.

Thank you Sir ... I am MG patient since 18 yrs. As I have gone through all the process. I knew all the stages . But you explaine everything so well I realised how well I have been gueided.!!

Spot on

No need to read CMDT...hatsoff sir

Most informative, and well explained, thank you! :)

Excellent, thank you! :)

I heard that by removing thymas. MG can be cured for most of the patient. Is it true?

Horrible intro, I'd like the past 1 1/2 years of my life back please, sign me up. Prednisone failed. IVIG failed. CellCept failed. Currently waiting 6 months - Year for Imuran. For me, it started in my right leg primarily. I've needed oxygen, BiPAP, etc. Please don't this Physician's Opinions as fact, research Myasthenia Gravis Foundation of America, MGFA

I've had LEMS for almost five years. I was a smoker for years. I quit about ten years before the LEMS symptoms started. So far, no cancer has been detected. This is the first time I've heard any doctor say that if you were a smoker and you develop LEMS, you will definitely find that you have small cell lung cancer. I agree that it's important to provide patients with a realistic prognosis but such a categorical statement as this leaves a person with no hope. If I could, I'd thank the good doctor for such a clear explanation of this disorder. I learned a a lot that I didn't understand before. Nonetheless, I am so very grateful that it was not this doctor who first explained to me my diagnosis.

This is what it is like when I have a relapse. Was diagnosed in 1991 and am now 62 years old. Have had various relapses in the last few years. Am now on I.V.I.G on a 4 weekly basis, as well as immune suppressants and prednisilone tablets.

when I first saw this, it was helpful. 2 years later, I know what twaddle it is. it is far more serious than he suggests.

Thank you

TKS for the video!!

Sir, I am Mr S B Mekali 52 years old I have two children es one f email (18 years) & one mail (15years) both are suffering by CMS since by birth. Now they are use Tilstigmin tablet 15mg (Neostigmine) simtameticaly.Please inform, is there any advanced treatment ?

Did this help u n make u smile?

This was explained very well. My Mother started her symptoms in August of 2014 - SCLC was her diagnosis. Today she is cancer free thanks to the early diagnosis due to the LEMS symptoms. She is currently undergoing Brain radiation therapy. This is a precautionary treatment that is recommended as SCLC typically travels to the brain first so by doing this radiation therapy to the brain the thought is, if there are any cancer cells there that cannot be yet detected they will be killed. She has been on DAP and it has helped her greatly. She still needs a walker to assist her but she is now able to open her eyes, her speech is much better and she can now get up from a seated position on her own. When she started her Chemo/Radiation therapy back in November she was in a wheelchair, could not hold her head up, keep her eyes open and her speech was very slurred, so it is good to see her be able to go play bridge with her bridge group again and get out and about.

Buen Dia: Estoy tratando de exponer esta situacion de la mejor manera posible. Tengo 49 años, diagnosticada con trastorno bipolar en buen control, con diabetes tipo 2, con historial familiar de Sjogren, en mi caso negativo, historial familiar de hipotiroidismo, yo en estudio y observacion. Con hija de 27 años, diagnosticada a los 2 años con MG con prueba de Tensilón+, EMG+ anticuerpos receptores de acetilcolina+, con pobre respuesta a mestinon, por lo que se le realiza timectomia a los 16, mejorando +++ sintomas de inmediato. Mi hija se embarazo a los 21, con problemas que su ùtero no alimentaba a la bebe. La bebe con diagnostico lisencefalia moderada sin conocer el tipo. A los tres dias de nacida empieza la bebe con dificultad para tomar biberon o pecho, igual que sucedio a mi hija cuando bebè. Solicitamos cita a neuropediatria, la cual nos dieron a tres meses, empeora la bebe, en urgencias no le dan importancia, no la ve neuropediatria, a las tres semanas de nacida nos cambian la cita para dentro de 5 meses, en mi desesperacion empiezo a a darle mestinon en dosis de 15 mg porque fue lo que salvo la vida de mi hija cuando pequeña, sin tomar en cuenta por mi ignorancia y trastorno bipolar que ella tenia menos peso que mi hija al ser diagnosticada. Con una situacion economica terrible, sin voz para seguir luchando por la cita y solo con las citas de urgencias que no resolvieron nada, la niña empieza a mejorar poco a poco con el mestinon, pero al pasar las semanas vuelve a empeorar (sin saberlo yo le habia provocado una sobredosis), y en una enesima visita a urgencias con crisis respiratoria gravisima, llorando le suplico al pediatra que la valore por MG neonatal, pues al nacer no me permitieron hablar con la pediatra. Es entonces a los cuatro meses valorada, considerando la posibilidad de MG y en observacion, con posible diagnostico MG neonatal. Hacemos convenio verbal de no demanda yo a hospital y hospital a mi, pues hubo grave negligencia medica y yo con atenuante por el trastorno bipolar, ademàs del perdon de mi hija y su esposo. Terrible. Mi nieta mejora con la adecuacion de la dosis de mestinon, y en los cuidados hospitalarios la pediatra observa los mismos síntomas en mi, por lo que me sugiere buscar neurologo, lo que hice, siendo dificil todavia nuestra situacion economica. El medico duda, sin embargo yo me hago los examenes de anticuerpos receptores de acetilcolina, resultando positivos en mi, por lo que seguimos haciendole examenes a mi nieta, quien si tiene seguro medico para esa fecha, siendo negativos por segunda vez, a los dos años de edad, mencionando la doctora que sigue con probable diagnostico MG por los sintomas de ptosis palpebral, debilidad en brazos, piernas y cuello, dificultad ahora para comer solidos. ( cabe mencionar que el laboratorio contratado por el hospital es de muy dudosa calidad, yendo yo misma a hablar con el encargado, comprobando que no tenian ese anticuerpo, reportando yo al hospital como sospechoso el resultado de mi nieta), sin que esto signifique que la neuropediatra valide o invalide el diagnostico. En mi pais, México, la seguridad social no cubre MG, por lo que el neurólogo no puede darme mestinon, ni solicitar gratuitos TAC de torax o EMG, para corroborar que tengo MG, por lo que intente hacerme poco a poco los estudios solicitados, poniendo yo una parte del dinero necesario, y negandome ayuda el sistema DIF de mi ciudad, por vivir en una colonia nice. Puedo pagar nuevamente los Anticuerpos receptores de acetilcolina en mi y esta vez el resultado es negativo, pero los sintomas han avanzado, pues ya es frecuente que se me cierren los parpados y dificultad para caminar, comer, tomar mi medicamento, y empeorado por el eventual uso de analgesicos o relajantes para el dolor de una vieja lesion cervical, Mi pregunta es..... Cómo puedo yo estar segura que es MG en mi caso, pues el neurologo es el mismo, en consulta particular y en la seguridad social, y el niega que yo tenga MG, aun con el primer resultado positivo, ofendido por que va contra lo que el sabe, que solo hay un caso familiar de MG reportado en el mundo mundial. Alguien alla afuera tendra interés en estudiar y diagnosticar correctamente nuestro caso? El mestinon me ayuda bastante, pero hay temporadas que no lo hace. Es dificil para mi vivir con una calidad de vida tan deficiente, pero me ayudaria saber si es MG, independientemente de los demas diagnosticos, porque me siento perdida, abandonada en el mar de los egos medicos duranguenses. Hay un médico pediatra que por su cuenta me buscó y me pidió que acudiera con el, de verme en la calle sin poder caminar, se bajo de su auto y me ofrecio ayuda, el conoce de MG y ha visto a mi nieta en consulta posteriormente a sus hospitalizaciones, pero yo quisiera la opinion medica de neurologos en cuanto a la dualidad de los resultados de laboratorio. Agradezco la atencion y disculpen que exponga la situaciòn mèdica de nuestro estado y Pais, que estoy segura es la misma que en varios paises de nuestro continente. Mientras pueda respirar, espero respuesta y ayuda.

Awesome thanks

why limb muscle are affected early ?? and why ptosis and diplopia occur late in this disease although ach is less in both types??

nice video...keep on sharing such videos ...

what a tit

thank you so much!

thank you so much!

awesm..video

is it true that Romani people might have higher risk of CMS? I have father with similar symptoms as this, especially fatigue, he had to retire at 50, and I have had muscle weakness in legs since childhood that meant I was no good at sports, now I am 45 & am try find out if my disability is caused by head injury (1996) arthritis or if I have been suffering from this. I have always had trouble swallow/spit had some black-outs too.

thank you, i hadnt even heard of this before today

Who is the physician?

Other than "John" of course