My undercover journey: Exposing the doctors exploiting patients like me - BBC World Service
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- čas přidán 1. 04. 2023
- Visually impaired journalist Ramadan Younes goes undercover to expose the doctors charging up to 20 thousand dollars for bogus and potentially dangerous treatments for an incurable genetic eye condition.
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Ramadan is one of the millions of people around the world with retinitis pigmentosa, which can lead to blindness. For BBC News Arabic, he confronts the clinics in the US, Russia and the Middle East promising to treat the untreatable. Having got the evidence can he get the authorities to take action?
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Hi this is Ramadan younes, the presenter of the film. I’m glad you liked it . Thank you.
Thank you for this, I learned so much! More awareness and action needs to be taken!
My heart goes out to this brave man
Hi this is Ramadan younes, the presenter of the film. Thank you for your appreciation.
As an optometrist who has examined and diagnosed many Retinitis Pigmentosa. I'm pained that any doctor will give such false hope to patients. It is unethical and cruel. There's no cure of RP at this time. Of course research is continuous, but still no cure in 2023.
Is there something you can do as an insider to report these liars and stop them? Please do.
@@InJusticeAustralia There is no inside. They live in tinpot dictatorships run by similar conmen, like Putin, Xi, Sisi, Assad, and the rest....
I suffer from bilateral amblyopia. Is there a cure for this?
Hi this is Ramadan younes , the presenter of the film and I’d like to thank you for watching the film. We all as journalists, doctors and even patients have a vital role in raising awareness that there is no approved treatment for RP so far except the one designed for patients with a very specific genetic mutation.
@@ruffkoins2804 For those of you who may not know, amblyopia is the medical term for "Lazy Eye." One or both eyes will deviate to the side or center while you are focused on an object.
There are 6 muscles that control the eye. top, bottom, outside, and inside. plus two muscles that attach at angles of the eyeball.
Treatment for this varies. Early treatment is highly recommended. Because the brain over time will reduce confusion by rewiring the neuropathways, ignoring one eye and only interpreting the signal from the other eye.
Treatment early on (before age 13) may include:
-wearing a patch over the strong eye to help the brain to recognize the signals from the weak eye.
-Atropine eye drops in the strong eye to blur its function to the brain.
-Addition of special focus glasses when the patch is not being worn.
Starting Treatment as an Adult can be helpful, but it requires a lot of work that is not always as successful.
-Patch
-Glasses
-Vision therapy. Vision treatment is a collection of workouts, as well as tasks, that aid a person to enhance their visual skills.
Thank you, Mr Ramadan Younes, for brilliantly sharing this story even though it's so difficult for you. Words cannot express how sadden I am by not only your story but those shared by your brave participants. I send you all my thoughts and well wishes for the days ahead. May the grace of God be with you always.
Hi this is ramadan younes, the presenter of the documentary. Thank you for your appreciation . Glad you liked the film.
I"m from Russia and i'm deeply ashamed that Fedorov clinic runs such a scheme. I will try my best to spread awarness in Russia
Tread carefully. No telling what criminal organization profits off this.
Hi this is Ramadan younes ,the presenter of the documentary . Thank you for watching the film and for trying to raise awareness by sharing this documentary with others.
may these doctors never enjoy the money they scammed from the poor patients that trusted them.
well they actually don't ...they end up in a very bad fate
Truer words never spoken 👏 🙌 👌
AAMEEN! AAMEEN!! AAMEEN!!!!
Money likely went to Hamas.
@@thehunzz fat cars
They should be shut down
When you have a registered clinical trial and claim to have treated 700 patients successfully, but have not published your numbers in a peer-reviewed magazine, you're a fraud, plain and simple.
Absolutely, an amazing documentary, well done ! Fantastic that so many people have been reached and forewarned .
Hi this is Ramadan younes , the presenter of the film. Thank you for liking it.
As Retinitis Pigmentosa patient from Africa, I am shocked.
Hi this is Ramadan younes, the presenter of the film. Thank you for watching it and it would be helpful if you could share it with other patients you know.
Thank you Mr. Ramadan for exposing those scammers and also for letting me share my story in your documentary
I’m Ramadan younes. We also thank you for taking part in the film and sharing your story with our audience.
Ramadan Younes, you've done a brilliant job, sir. Thank you for highlighting this issue. I wonder if it was made available in Arabic to the Middle East too, so they also see it? This should really be distributed widely. May our hearts never be blinded by greed, a heart that sees is better than an eye that deceives. Good luck for your future endeavours.
Hi this is Ramadan younes, the presenter of the film. I’m glad you liked it and yas , there’s a version in Arabic as well on BBC News Arabic’s CZcams channel.
Thank you so much for sharing this documentary!! My brother is struggling with this disease and he was about to be fooled by those people
Hi this is Ramadan younes, the presenter of the film. Thank you for watching it and I hope this film will help other patients, like your brother, avoid such unapproved treatments.
Ramadan Younes, thank you for investigating, I truly hope action will be taken against these harmful scams. I hope you are doing well now and are proud of the work you’ve done for this documentary. Thank you so much! Your investigation will help raise awareness about this!
الله يشفيك شفاء لا يغادر سقما ولا يبقي ألما.
Hi this is Ramadan younes, the presenter of the film. Thank you very much.
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Great information. I really wish that the conversations that aren't in English were translated in voice-over and not just captioned. It makes it hard for people who actually suffer from RP to know what is being said. Kind of ironic 😬
well done !! i hope this investigation will raise the voices of justice for many desperate people and help them in many ways such as impede them from falling to traps of these doctors or even the traps of depression ! if we cant help them at least lets not be cruel on them lets be supportive !
Hi this is Ramadan Younes,the presenter of the film.thank you for watching and liking it.it would be helpful if we could share it with anyone suffering from such diseases.
That is a noble, honorable and excellent motivation! Thank you for sharing your story, it's really moving
Hi this is Ramadan younes, the presenter of the film. Thank you for watching and liking it.
Such an amazing documentary 😊.
Hi this is Ramadan younes, the presenter of the film. I’m glad you liked it. Thank you.
More stories like this!
thank you Mr Younes, for sharing your journey with its struggles, with us.
Hi this is Ramadan younes , the presenter of the film. Thank you for watching and liking it.
Thank you for this. ❤
Scammers are in everwhere nowadays
Thanxs God they got caught
I am an Rp patient from Jordan. Thank you for this film and for highlighting some negative practices by doctors who unfortunately trade in medicine for financial profit.
Hi this is Ramadan younes, the presenter of the film. I’d like to thank you for watching it and it would be helpful if you could share it with other patients you know.
This is so awful. I have a condition that makes my vision deteriorate and know a little of what it feels like to cling on to every hope. These "Doctors " should at the very least be made to return the money and pay compensation. But ultimately there is no amount of money that can help. Hopefully one day a cure will be found. 🙏
Hi this is Ramadan younes,the presenter of the documentary.thank you for watching the film and it would be helpful if we could share it widely among patients who suffer from such eye conditions.
Thank you Mr Ramadan for this great documentary. I do appriciate your efforts. I felt so related cuz I am an RP patients and one of the victims who have been decieved by those doctors. Thank you
Hi this is Ramadan younes, the presenter of the film. Thank you for watching it and it would be helpful if we could deliver it to as many other patients as possible.
Thank you very much ramadan for your excellent effort
Brilliant Doco.
Fabulous journalism.
This doco WILL save and inspire many people.
In fact, it already has. Me. As I’ve been struggling with exposing the scams of the psychiatric world, and this was the inspiration I needed to push it to the next level- to go public.
I’m scared to present the evidence I have, but I’m more scared for the harm that will be done to innocent people if I don’t.
So if the gentleman that made this doco, or anyone like BBC that may want a similar story, feel free to contact me.
God bless those in the good fight.
Hi this is Ramadan younes, the presenter of the film. I’m glad you liked it . If you like, leave your email address here and I will get back to you as soon as possible.
This is happening around the world, it is sad and nobody is doing anything about it! SAD, SAD!
Many are the times that I have visited a doctor gotten and expensive prescription and gone home without getting the medicine and the symptoms disappear just like that.
so sad and so sorry that there are doctors who are criminals and they get away with it.
This is just crazy
I had visual impairment in both eyes for the first 30 years of my life and I was going slowly blind. Then I got lucky and surgeries gave me good vision better than expected and I have been driving my own car for a year now and I have flown 2 planes. I researched for a long time about different surgeons and details of surgeries and it thankfully paid off. I thought I had it bad until I saw this. Poor people that's just awful. These doctors should be sued and tried and the victims deserve millions in compensation. Can someone who has money make this happen please.
You are Amazing and a Brave Man Mister , Ramadan Younes, I would like to write a Lots to prize Your Encouragement.. I wish...I could...
Hi this is Ramadan younes, the presenter of the film. Thank you very much for your appreciation . I’m glad you liked the film .
Oh My God, please help those people who has suffered RP and many many similar kinds of diseases-Ameen
And Please please also protect them to be a victim of those Bad people on this planet.
Hard to believe that someone can actually do to another person just for the sake of money, which means nothing in reality only if they think that way..
Desperation leads people to spend monies in hope😢
Hi this is Ramadan younes, the presenter of the film. Thank you for watching at and it would be helpful if you could share it with others.
شكرا استاذ رمضان على مجهودك و على الفيلم و توعيه مرضى RP لان معظمنا كمرضى كان ضحيه لهذه الممارسات الطبيه الخاطءه من بعض الاطباء معدومي الضمير
Hi this is Ramadan younes, the presenter of the film. I’m happy you liked the film and it would be helpful if you could share it with other patients you know.
ما شاء الله شئ رائع الاستاذ الفاضل رمضان يونس حضرتك عملت انجاز رائع بالتوفيق داىما
We must also understand that the word "treat" does not necessarily translates to cure. This style of language is underhanded and unethical because the doctor wants to come back and refute any complain that may arise down the line in saying that he/she said they will "treat" meaning that any action done to address the condition and he/she did not promise to remove the problem. It is a cruel practice and health authorities should prevent doctors from using such phrases as they are misleading and create false hope. Many months or year down the line, patients are the ones who suffer dire consequences.
Why am I not surprised that Florida's medical malpractice laws are lesser in terms of regulation than a gardening company? This shows just how important investigative journalism is.
He's talking about liability insurance
Hi this is Ramadan younes, the presenter of the film . Thank you for watching it and for sharing your opinion with us.
Sorry to see people being exploited , I have heard of leech treatment for almost blind people recovering though not seen someone in person I only heard
Hi this is Ramadan younes, the presenter of the film. Thank you for watching it and it would be helpful if you share it with others.
Excellent journalism! It’s cruel to give such false hope. FDA must take more responsibility to bring those who lie to justice. Perhaps Ramadan might consider future interviews to investigate some amazing new innovative technology for blind persons. Microsoft & others have some amazing new resources. I’ve seen a program in which special glasses describe whats in front & around you (facial descriptions, etc) Just saw an app that can used to direct a blind person by sound. Until this disease can be cured perhaps encourage others with news of new & updated help. My heart goes out to all with vision impairment (as I have myself). ❤🇨🇦
The US Food and Drug Administration (FDA) approved the Argus II Retinal Prosthesis System, the first implanted device to treat adults with advanced retinitis pigmentosa (RP)
It is not treatment but it is implant for blind people with RP that help with orientation in they everyday life. You should mention this too. With another non effective treatment in your program I agree.
Is there any profession without scammers?
❤❤❤
Hi this is Ramadan younes, the presenter of the film. Thank you for watching it .
The lawyer in the USA is the one who could file a malpractice and put an end to these clowns in Florida, but there is no money in it for him. He is shameful as well. Normally, patients are PAID for their participation in a clinical trial in USA.
He could but he can't afford to do so. In Florida's current climate, it might even be career suicide. But, he did speak out publicly and deserves to have acknowledgement for that.
Very cruel and unethical of these practitioners to create false hope and cheat the sight challenged..
Hi this is Ramadan younes, the presenter of the film. Thank you for watching it and it would be helpful if you could share it with others.
GREED
As an optometrist I m shocked how can a. Eye care professional can claim to cure. May Allah show them right path..yes we can refer them to low vision specialist if remaining vision is left but nothing can b done yes we can use remaining vision with magnifier instruments for near and far that what I suggest for my patients...it's 2023 no cure but hopefully we will find a way inshAllah
Hi this is Ramadan younes, the presenter of the film. Thank you for watching it and it would be helpful if you could share it with the patients and doctors you know.
@@BBCWorldService please mail me sir I need more awareness of BBC if you could help this in Pakistan Lahore
Being low vision, l find it ironic that this video has subtitles. Something that people who can not see well read.
Lol stop being daft! FYI, some people are deaf, so they need to read because they cant hear. If you have low vision, then you would listen.
@Blair Santillana That is what a closed caption is for. Low vision people don't have that option. Generally, I realize that I am not going to get the information out of the video, so move on to something else , but because this video was about vision, I thought it should be pointed out.
@@sandyclaflin2844 Why don't you stick your fingers in your ears and then complain because this film has sound?
Maybe you will feel happier.
I am low vision and listened to the bulk of it. The one gentlemen who was blinded at Dr. Weiss' clinic spoke Arabic and when he stopped, his comments were translated. Mr. Younis and the BBC made this accessible.
This documentary should play a key role in educating governments on why they need stricter regulation of stem cell clinics. The attorney said he had been approached by other victims. Those are ones we know of. How many other victims are there? And how many other clinics? This has to stop.
The capitalist order will fall and hope,love kindness will return to all to living things
Nonsense
Your correct 10,000 years from now😂
@@ouigisboredroom Lol. We'll all be gone by then...just living between ice ages.
dr ismaiel musalm he is well known a scammer in palistain nd jordan
God shower the rain for good and bad people. The judgment day will come and the bad people will tremble.
Great reporting. Thank you ❤
Hi this is Ramadan younes, the presenter of the film. I’m glad you liked it.
God can heal the world if it would only ask Him.
God helps those who help themselves. We can both pray and fight against those who prey on desperate people.
Good man i hope there cure for this condition and some doctors dont care about peoples only moner and fame they are evils
Wet and dry AMD
Who do you blame the businessmen/doctors who take advantage of business opportunities or the politicians that make the laws to allow this to happen? Just like in all business opportunities people find loop holes to make MONEY and in the spirit of "doing business" someone always loses!
Alway do your due diligence these days you can not completely rely on doctors.
Is this similar to glaucona?
LASIK is also a scam
wow. hats off to bbc. wish i could watch the "modi and india' documentary of BBC
Vpn?
Capitalist countries always try to make healthcare expensive ( people poor in general ), which is another way to domiate and exploit.
One way, is to train less doctors and nurses ( like in the UK and USA ) by making it as expensive as possible
This has nothing to do with capitalism! They are deplorable humans in every country !
The same people who are cursing nazi are committing crime against Palestinian & no body care about it shame
Doctor in Gaza sounds like a Hamas front.
Have u visited Indian doctor?
Hi this is Ramadan younes, the presenter of the film. Thank you for watching it and I didn’t visit India before.
Don’t believe someone just bc they wear a white coat!
FDA is the real culprit here...
What about the blind faith in the jabs? And now the dropping dead like flies? Let's have a documentary on that
Oh there are some speaking up. I think we are just finally seeing how indifferent people are and how self interested some professions are
You won't see that on the BBC...
You won’t see a story on that because it’s a non -issue , basically a conspiracy theory that has been repeatedly debunked by medical professionals , actual scientists and organizations . So no, you wouldn’t see that on the bbc because they are a reputable news agency
nice - now lets expose those behind the tavistock gender clinic
The NHS? Please present your proof of any wrongdoing at the clinic..
It is glorious it well so glorious it glorious it best so it glorious it best so well it glorious best.
Hi this is Ramadan younes,the presenter of the film. I’m glad you liked it. Thank you.
How about Dr. Sebi on the herbal remedies that he developed? Though he is diseased, there are quite exquisite results of his work on treating blindness. Where western medicinals don't prevail, alternative herbs do nurture the life aspects of energy, restores balance and eventually heal such inconsistencies of the body.
Not a doctor but a scam artist.
Herbs cannot cure blindness. This should be common knowledge.
Scammy claptrap.
That is absurd. Herbs cannot reverse genetic code and cure these conditions. If they could, why are Dr. Sebi's patients silent?
And what do you think about Dr Yu in Vancouver (Canada)?? He use acuponcture and herbs médicinal…