Local family shares experience with rare Angelman Syndrome

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  • čas přidán 8. 09. 2024
  • February 15th is Angelman Syndrome Day in Minnesota, and a local family shares what it’s like for their 5-year-old daughter Rose who was diagnosed with the rare genetic disorder.
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Komentáře • 18

  • @BeautyWithShayOfficial
    @BeautyWithShayOfficial Před 29 dny +3

    Rose is beautiful in every way. I work in ABA and I have a client with Angelman Syndrome. He is the sweetest child I have ever met. 💙💙

  • @brianlawson363
    @brianlawson363 Před rokem +21

    The beauty and joy that Rose gives is a gift for those of us who are not aware that we let sadness control our lives.

  • @tanzilaleeya
    @tanzilaleeya Před 9 měsíci +19

    I'm a single mum raising two little girls. My baby has angelman syndrome 😢

    • @Sophiesticateduhhuh
      @Sophiesticateduhhuh Před 8 měsíci +6

      You will be ok mama, I promise ❤️‍🩹

    • @OpinionatedEmpath
      @OpinionatedEmpath Před 7 měsíci +1

      I wanted to learn more about the syndrome and subhanAllah I saw this comment from you 😢

    • @くらく
      @くらく Před měsícem +2

      god bless you , my big brother has the same... he's 20 years old now..trust me it gets better with time..they really deserve care and love ❤️

  • @gusruckus
    @gusruckus Před 6 měsíci +7

    Sad to share that this little girl passed away in her mothers arms this fall. Lots of love to the famiy💔💔💔
    -Gus

    • @gusruckus
      @gusruckus Před 6 měsíci

      @rickyanthony I'd like you to respect my privacy during this time.
      -Gus

    • @gusruckus
      @gusruckus Před 6 měsíci +2

      @rickyanthony You probably don't realize the grief you are causing here. It's not funny to me, and this isn't a hoax. We miss her. If you cared enough to do any amount of research here, you would know that AS can come with a number of complications. Also there is in fact a privacy concern. Please move on with your life and let this family grieve in peace.
      -Gus

    • @anonymous_dot_com2326
      @anonymous_dot_com2326 Před 5 měsíci

      Gustavo?

    • @stvce
      @stvce Před 2 měsíci +2

      @rickyanthony what is wrong with you? this is a child that YOU DONT PERSONALLY KNOW.
      rest easy rose

  • @Chad-Giga.
    @Chad-Giga. Před rokem +6

    It's a chromosome disorder actually

  • @That1SonOfGodIam
    @That1SonOfGodIam Před rokem +5

    👑👑👑👑👑👑

  • @onetwocue
    @onetwocue Před 9 měsíci +3

    Joker had this right?