A Walk Through Dementia - walking home
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- čas přidán 1. 06. 2016
- A Walk Through Dementia is a unique app designed to put you in the shoes of someone living with dementia. See one of the 360 clips from the experience.
awalkthroughdementia.org/
itunes.apple.com/us/app/a-wal...
play.google.com/store/apps/de...
my mom hasn't recognized me in about 7 years. The other day she looked at me and had a spark of recognition, reaching over to grab my hand and kiss it. It was like she had come back after being abducted - and then she was gone again. It's terrible and devastating.
That would completely break my heart. I guess some people get used to it and live with this sickness of one of their family members, but for an outsider, like me, reading your comment was just a tough read.
I can relate, my mom is going through this, she went to live with her family who live far from me, my sister told me that should would keep asking where i am and if I'm alright and asking about our cat, my sister said i should video call her because she misses me and keeps asking about me, but when i called its like she wasn't there, she didn't recognize me or my voice and just kept closing her eyes and i couldn't understand anything she said, i could hear my sister in the background telling her who it is, i cried so hard after that videocall
I feel that man🙏
My mom just passed but she's been gone for 15 years.😪
@@laurayoung8001 my condolences to you, it is the hardest thing to ever go through, i wish you and your family all the best💐💔
The worst part was realising that when she got home, she was alone. At the height of her anxiety.
ikr
Damn who's that in your pfp?
@@reesenaiyah311 Japan
@@reesenaiyah311 Japan
@@reesenaiyah311 Jonghyun from shinee
I have dementia, and it is horrible. My wife tells me what we’re going to do, but I have to ask her over and over. I was a highly sought after teacher, but my wife, who is a nurse, began to limit a lot of what I was allowed to do. Every month I need to scale down the things I did because it gets to confusing. I have a lot of people around me, but my kids and grandkids don’t know how to talk with me. I’ve written two books, and I have a very hard time to understand what I have written. It’s scary.
Its sad knowing your gonna forget that you even wrote this comment
@@spongegiovanna483 It’s just scary. And frustrating.
it's really terrible that you have to go through this. but thank you for sharing your story, i really wish there was better ways to treat mental issues like dementia!!
Prayers for you dear ❤.
God that sucks
My grandfather passed from dementia in January. I came over to his house about a week before he died, he knew who I was, his face lit up, and he said what sounded like “what a joy”. That was the last time I saw him, and also happened to be his last lucid moment.
I‘m so sorry for your loss
That period of lucidity just before death is called terminal lucidity.
So sorry for your loss
I heard that a-lot comes back to them before they die. Sorry for your loss.
I know I'm like a month late, but
I'm really sorry for your loss. I hope you recover.
I remember when I was 18 and ny grandma was dying. She was always generous and often gave us money. Then she started giving us tissue and random bits of paper thinking it was money. I was told to just pretend in case it made her panic.
My grandma did that too, tissue, letters, paper, she used to give us all sorts of stuff. Right before she kicked the bucket she was giving heaps of lip, to be fair though she was great at giving head too. I miss my grandma.
@@----.__ Your grandma was great at giving head?? Wait... Wut...
@@kylejones8891 bruh wtf did i just read
@@----.__ lmao
@@----.__ great at WHAT???
Breaks my heart.. My girlfriend from childhood has dementia. She is sixty nine. We now live in different states but speak over the phone often. I can hear her frustration knowing she has confusion. She is now in a dependent living facility and depressed. It saddens me to listen to her and knowing I am powerless. Very sad to say the least...
God bless you for staying in contact and being there for her. I'm sure you brighten her day anytime you two speak.
@@franziskahuber9664 Thank you so much. And God bless and watch over all our brothers and sisters that have this dreadful condition. They are like innocent children.
Wow god bless you and her that sounds awful for her to live there instead of in a beautiful spacious home or at least a retirement home
I have a family member who suffe from Dementia
I don't even know what to say about that but that I'm sorry :(
I saw a quote on a video related to dementia that said “You couldn’t even begin to imagine how hard it is to mourn someone who’s still alive” and that’s exactly what it was like with my girlfriends great grandma. Losing her was devastating for everyone around her and she hadn’t even passed yet. I sometimes wonder why these things happen but I’m all for helping find a cure
Moved into a house next to a sweet old lady. I was talking to her and she told me about her husband and that he'd passed away years ago.
Skip forward a few years. I get home from work late at night and she's looking out the window searching for something. She comes to the door and asks me "Have you seen my husband? He should be home by now"
To this day, the most gut wrenching thing I've ever heard.
What can you say?
Mannn…😖
I don't know why God allows these things in our lives but I believe He has a reason and purpose for everything. No matter what happens to me in this life I know He loves me and cares for me and everyone else in this world.
@@patriciatollison8655 shut up bro nobody genuinely cares
@@patriciatollison8655 God is within you. God is not deciding whether or not people get dementia.
@@patriciatollison8655 Right... A god which is supposed to love all humans lets them suffer an absolutely terrifying fate like this because of "a reason and purpose". Makes sense...
It’s scary how the human brain can turn on you after relying on it for so long.
Never was on my side to begin with.
@@ianknowlton5172 haha
@@ianknowlton5172 truth
It's not turning on you, it's just sick and dying. This is important to remember when you're young too, mental illness is not your brain "turning on you" or "working against you" even if it can feel that way, it's just sick and you can work with it to make it healthy again. I made the mistake of thinking like that for a while and it absolutely makes you worse. Your brain is your friend be nice to it
@@j-skullz I still hold my beliefs. Your brain turns on you. And no you can’t always work with it since everyone is different. I don’t have anything wrong with me but at the same time I have a friend who suffers from schizophrenia. Which is literally your brain turning on you. Your brain is the most complex thing you have in your arsenal as a human. Please tell me how work with a patient in late dementia. If your brain doesn’t turn on you? Why do certain people see delusions and believe things will harm them if their brain doesn’t turn on them? I hold this belief to be true and I don’t feel much worse or much better.
This is early stage, it only gets worse and more confusing from here. Full on hallucinations, not knowing your own home, and thinking you're in the past are all yet to come, along with repeated infections, loss of bladder/bowel control, aggression, dizziness etc. all until you eventually hit a stage of blissful ignorance & know nothing around you at all, right up until you either die from an infection, since you can't remember pain, or starve to death cause your body has forgotten how to eat. Luckily, you die unable to even form thought, but not before months or years of pure hell. This comment is only a taste, to truly see the destruction, you need to know first hand.
And no cure, in the early stages they like to give you pills and tell you it'll slow it down, but thats just to help your anxiety as you progress.
We need a cure. Dementia is on the rise, this could be any one of us.
Wow. Omg... This is horrible... I had no idea... Thank you
I've always been patient with old people and I will be even more now
That’s sad. I would never wish dementia on anyone, except maybe a few evil but
My mom doesn't even know who I am anymore..Worst feeling in the world just being called a f*cking liar and/or a b**** all the time trying to help her...Frontal lobe dementia caused by multiple strokes..Nursing center that she was released to didn't have patience/time to feed her so it's not an option..
@@owell4151 I'm sorry to read that, I wish people would know better and started treating others more kindly and even more in this situation, stay strong, sending a lot of love and good energies.
I grandfather starved because he just couldn't swallow anymore. He had lewy body dementia and it was terrible seeing seeing him in that state. :,(
My 88 y.o grandma has dementia and forgets she’s in her own home. She gets frustrated when she asks to go home not realising she’s already there.
Horrible to see a family member that you have so many great memories of slowly slipping away.
My gran passed away 12th August aged 100. 6 days before her passing, she took a funny turn, we all rushed to be by her side, she didn't recognise my Uncle, her son, nor my mother, her daughter, but as soon as she saw me... "Hello Ben, sit down pet" with a great big beaming smile. I took a photo of her as her face totally lit up with the most beautiful smile I've seen from her in years, I wish I could post a photo on here to share it with you all.
That sounds like a stroke.
I wish we could see it too.
@@hherpdderp I thought that, I reckon she'd had a few mini ones.
Damn y’all, it’s pretty obvious Joe doesn’t realize something actually wrong. He probably just thinks “Ah, mums getting a little on in age”
Why her son leaves his mother alone at home?
That is so Cruel!
They should live together.
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@@londonoxfordstreet that’s not always how life works out, most of the time when someone is older they don’t want their freedom taken away because they don’t even realize something is wrong themselves. unless they are diagnosed then there’s only so much u can do
@@londonoxfordstreet Caring for your parents is important but sometimes life is much more important. You would lose a lot of freedom of things you could do, and a lot of people aren't selfless enough to care for their parents constantly.
Dont we all?
Who's Joe?
having dementia is quite literally my worst fear. there isnt a single thing that even comes close. the second it can be confirmed i have dementia i want to be put out of my misery, its not an experience i want to have.
I’m the same. More than horrific illness, more than torture, more than death, the thing that terrifies me the most is debilitating mental or neurological illness. The existentially terrifying thing about dementia, psychosis, schizophrenia, etc is that you usually don’t know you have a problem. So it’s not just your mind being destroyed, from your perspective these horrors are 100% real.
But with dementia in particular, you slowly lose all conceptions of family, home, self, even space and time. And you’re painfully aware of how lost you are. The cruelty of life knows no bounds.
You're probably going to have to do the putting out yourself.
@@huntsman145 There are states that have implement the "right to die".
my vitamin b12 is very low and im so scared im going to have it in the future
It’s no way to live.
My grandfather was in the navy, he learned guitar very well. even kinda looks like johhny cash. he ended up losing 3 fingers, but still played VERY well. I was about 10 when he gave me my first guitar. I practiced so very hard. years and years, just to show him how well ive done. i wanted to play like him. and i did. when i was 24 he was diagnosed. i had finally got a chance to show him, since hes been in another state. i played my heart out for him, but he looked at my grandmother and asked who i was. my heart broke into a million pieces.
That's real sad, my friend, I know he'd be proud.........if he wasn't lost......
I‘m taking care of my demented grandmother… alone, 24/7. Jesus Christ it is difficult, on top of chores, tending a vegetable garden and having a small side business. Massive respect to those who take care of someone with dementia, I don‘t know how long I can keep on doing this. Worst of all I get more discouraged comments rather than encouraging ones, most people tell me it will get worse, it won‘t get better, be prepared for it to escalate. Yeah no shit, I already know months before I took her that shit will hit the fan more often than I can blink, but please don‘t give me a look that says: „You will see I told you so“ or „I wonder how long till she gives up“.
At least I try.
Words may not do much to ease your struggles, but hang in there. We took care of my grandpa and after he passed, are now taking care of grandma. Caretaking is taxing, and caring for one with a condition like dementia even more so.
Regardless of disease progression, the fact that you’re sticking by her in her most vulnerable time is worth a great deal more than much else on this Earth. Of course, that doesn’t take away the pain of facing it day by day, nor of the struggles of earning a living. But it does rekindle one’s resolve after a long day. May we be equal to the burden.
Kudos to you for doing what you are doing. Don't let the negative people get to you. They sound pretty unpleasant to be honest. They have to be a bit defective themselves, to gloat about someone else's situation. How many of them offer to sit with her for an hour or 2 while you get some 'Me' time? Not many I am guessing.
People are scared of it. Something I have learned through the internet is people project a lot. They accuse total strangers of things that are actually Their problems or internalise other's issues until they become Theirs.
When I grew up cancer was the Big Taboo, now it is Dementia. People get scared of things they don't understand or feel they can't cope with.
But you Will cope and may even get some good moments from it. It doesn't have to be all doom and gloom. See it as a journey you are taking together. Not one either one of you would have chosen, but one you have to make, nevertheless. But if you feel it is too much for you, don't feel guilty if you jump ship. It is allowed and she would understand.
Are there any support groups in your area, who can provide practical or moral support?
And how's it going now?
You're a good person
You’re a good person.
If that is what it's like just walking home, I can't even imagine staying home alone.🙏🏾❤️To anyone going through this family friends etc
Why her son leaves his mother alone at home?
That is so Cruel!
They should live together.
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@@londonoxfordstreet because her son is a young adult that also has a life too? it’s not cruel that he has to have space, but he should definitely hire a caretaker
@@wonyoungiesgirl Treating your elderly parents with care and kindness in their old age is a must just the way your parents treating u with care and kindness while you were a helpless baby.
Loneliness / being away from your own kids is so oppressive in old age.
Hiring a care taker is not prohibited. It can be done while keeping your elderly parents with u in the same house.
Your kind treatment with ur elderly parents is a good example for ur kids to emulate.
Be kind to them. Do not punish them in old age uncaring prisons that u call care homes.
@@londonoxfordstreet people got jobs all day and need time to rest when they come home. he might have a wife & kids or other responsibilities too it’s just not realistic I’m sorry
@@londonoxfordstreet Why'd fuck am I morally obligated to be forced to live with some stupid old people do literally can't get their shit together? Do you think young people don't deserve a life of their own or their own family? How do you expect someone to have their girlfriend move in with an old dementia patient? If you are fucking lonely for staying at home along, find a hobby or something. Also there is a placed designed for old dementia patients waiting to die, because at that point their life is meaningless anyway, and it's called a care home where professional caretakers are paid to treat adults like 1 year old babies.
Oh god if joe didn’t say he was joe I couldn’t tell him apart from the other man
Glad joe is weaing same fashion outfit as every man in the street or at least from "her" perception it looks like same outfit -_-
Thats about what it's like. Dementia patients call me by other names in the hospital and if I end up having to tell them I'm thier nurse the responses range from being embarrassed to straight up refusing to believe they aren't at home.
@@cinimatics *visible confusion*
JOE MAMa 😂
@@Demureu oh snap xD
This activated a panic attack. It's terrifying and heartbreaking. I feel so horrible for people who have these illnesses and their families. My heart goes out to you and yours.
Thank you, I'm glad someone else realizes how terrifying this is and isn't making jokes about it. I lost both my grandparents to dementia in 2018 after years of going downhill. They were married for over 60 years, one of the last things my grandpa ever did was reach out to hold his wife's hand while she passed. That memory brings me a lot of comfort. They must have been terrified having their minds slowly turn on them but they were able to remember each other.
I'd do anything to make sure nobody ever has to experience this again. Bless you. x
Grow up.
@@redtortoise how about you grow up?
@@redtortoise You must be miserable.
@@redtortoise Eat dirt, dawg!
Her depiction of Dementia is something I’ve yet to witness. Although she is having anxiety and finding it difficult to concentrate without hallucinating, she’s still very pleasant. She isn’t combative, violent or a complete mess of a individual. With all that said, I still would not feel comfortable leaving her at home alone.
Seems very early stages
My great grandmother had dementia too and even in the very late stages, until her death, she was still the most lovable person i have ever met. Her character didn`t change one bit. I am very thankful for that, since I was told that her demeanor would differ from her former self.
Breaks my heart. This is my wife right now: published author, retired attorney, now I have a tracking app for her because she likes to slip out for walks and get lost. I stay home most of the time to make sure she stays safe.
The puddle hit home--my wife warned me of a puddle just yesterday.
how old are you and your wife
why are they afraid of puddles?
@@youtubetv1588 Perception...can’t tell how deep it is, might be a hole.
Sometimes there is mo puddle, but she sees one anyway
@@xdtijnntssyu3314 mid 60s
I’m really sorry. God bless you and your wife. Your a good husband to her
My mother has dementia. My sister had to put her in memory care facility. It’s heartbreaking, she thinks my Papa is on a hunting trip. No matter how many times we tell her he passed away she still thinks he’s hunting. It’s a horrible way to live
Why her son leaves his mother alone at home?
That is so Cruel leaving his parent alone at this critical stage of life!
They should live together.
No medical facility can replace the love and care of one's family, children, grand children..
Do not throw away your parents in care homes.
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@@londonoxfordstreet it’s what people from The West(Europe, America) do. They throw away their parents in care homes cause these people don’t want to spend their time on their parents once they are old. They put themselves first instead of equal with their parents. You can perfectly balance taking care of your parents and going to work or taking care of kids just like in the old days, but people these days are too lazy and don’t don’t want to handle the stress. So they put them in care homes where elderly people get abused without the knowledge of the children. I worked in a care home, and they neglect a lot of elderly people. Sad. No wonder some white people send their grandparents to Asian care homes as in Asia it is important to take great care of your ancestors and grandparents.
Don't tell your mum your father has passed. There is no need and professionals don't recommend it.
@@truehappiness4U wtf... i don’t know if you’ve ever been experienced having to take care of your parent with dementia but it’s not easy at all. plus, it’s a pretty broad statement of yours to say that this just happens in the west, it doesn’t. if you did a bit of research maybe you’d realize that people in asia are no different then us. normally people in asia will take care of their parents better because of their religion, not because they’re asian.
Professionals, from what I’ve read, do not recommend reminding them of the deaths of loved ones. All that you are doing when you tell them is putting them in immense pain that they will just forget again. It’s like being told they’re dead for the first time every time. They’re already going through so much, they don’t need the repeated pain of that as well.
I wish you the absolute best, and I’m so sorry about what you and your family have to go through.
My grandma is 80. My aunt had been telling everyone she has dementia for years. I started taking care of her 3 years ago and she doesn’t have dementia. My aunt was lying so she could get her house. I can’t believe someone would lie about something like this especially about their own mother.
Or, you have dementia as well so you keep forgetting she has dementia. Can I have your house?
Why didn’t people just talk to her and ask her basic questions?
@@gottfriedhub dude some people that have dementia FORGET THEY HAVE DEMENTIA. So the grandmother at one point would thought, huh since everyone knows I have dementia,I must of forgot!
I used to have dreams when I was a very young child that were exactly what I would imagine dementia must be like, it was absolutely terrifying. And the thought of ending up with that being my every day reality is even more terrifying. My heart breaks for people suffering from this disease.
A lot of jokes, but no one taking about how disturbing this video was.
I really hope I don't get any psychological problems when I get older, Alzheimer, dementia, the state of mental confusion really scares me.
Me too. Today after i was leaving school and got to a public bus, a woman and another person (maybe a child) came right next to me on ny left as i was sitting on a seat. The "child" started talking in a hushed voice to the woman about going to the library or some sort. She repeated that thign ober 30. Times. And we were all silent as she was repeating herself, the woman answered her several times again and again, then lost a bit of her calm and hit the child (tho like not hard, in a sense gently and silently) and she again started bringing up the topic, the woman again answeted and after about 2 times she jjst told her that they're getting off the bus at the next stop.
You're no idea how i symphatize with you right now..
Sleep well and often. It’s been proven to help tremendously. Also look into Loins Mane, it’s a natural supplement that aids in neurogenesis, it regrows the “insulation” around the nerves in your brain preventing misfiring that can cause a whole slew of illness.
I think everyone find this video scary. They just cope with humour
Same here I pray that never happens to me it’s such a scary thing I feel so bad for anyone or their family members that have to endure it .
frrr
The voice over actress does a REALLY excellent job of conveying the terror.
I’m shook
@@wiredmetalplant6125 metal piranha plant got shook by thunder from the" ?" item box
@@amandaclaireon4065 no I’m fucking shitting my self
Actor is a job title that isn't gendered but yeah true
@@RealFemale69 Yes, an "actress" is a female actor.
The scary thing is that this isn’t just something that affects the elderly, as it can also occur in children although extremely rare
I nearly fought you but then googled it and learned childhood dementia/alzheimer's is a thing... that's horrifying
I feel like it's better for children, although a lot sadder for outsiders. Children havent a clear and defined identity of themselves yet, while the older patients are trying to grasp onto the people they love with no avail.
@@_miobrot_603 yeah, but kid didn't even began a life and already doomed is scary in its own way
Yup. Seriously rare, but it can happen, and has happened.
One of my close friends has pseudo-dementia. She’s in her mid 20’s.
My great-grandmother lived to be 103. She had Alzheimer's for 12 years. The most random and completely obscure things she would remember really made me scratch my head.
Pedestrian: "Joe who??"
*grandma troll face*
xd
Lmao nooo
JOE
M A MA
Joebama
Joe mama
I am a member of a search team, and we are called upon to search urban areas, forests, swamps and such all the time for elderly people with dementia who "wandered off". Needless to say that it is of the utmost importance that they get found immediately. Unfortunately, it often turns into a recovery. So please, please do NOT underestimate dementia and do not leave them to care for themselves.
Thats sad..
Better to keep them confined in their homes under strict supervision until their brains rot away? Honestly if it were me, I would rather take a quick death in the wilderness from hypothermia than endure years of suffering in hospice.
@@PatrickPierceBateman I understand what you're saying. I've felt this way myself. I still do sometimes!
Sadly lost my mum to Alzheimer's just a few weeks ago but was blessed to have her living with me for the last 8 years. Just prior to her diagnosis I realised she had stopped going to the shop or even her church which was literally around the corner and had been an almost daily activity for decades for her. On discussing it with her she said that she'd stopped going to either of these places as she was scared of getting lost. Hearing that was heartbreaking and helped us to seek a diagnosis etc.
I'm with you though, I would much rather find ways to help them engage in activities they love but first the caregiver needs to understand what their loved one is experiencing (and be aware of some additional risks involved in what to us seems fairly benign tasks/outings) sadly with the fear and stigma attached not everybody is forthcoming or able/willing to articulate what is going on from their perspective. These videos are informative and may help carers to navigate this stage from a place of understanding. There are ways around it that can enrich both their lives, give a sense of confidence to the patient and to help both the individual and their caregivers feel reassured, build memories (even for the patient - I was stunned that up until the last 6mths of her life many of our daily activities worked there way from her short to long term memory and I blame lockdown for her final mental deterioration, whilst she was housebound so was I so we both took a knock to our mental health. You can't pour from an empty cup right?)
@@RevolutionAndPeace Very true. My grandfather died of Alzheimer's last year and the past two years of his life he was non-verbal, unable to walk without assistance, needed to wear diapers, and had to be constantly cared for. Basically our whole family agreed that it would be better if he had just passed away from a heart attack or something quick. Alzheimer's is a hellish disease.
I wish it was just as simple as making a decision to not leave them to care for themselves.
My dad refuses to return to the neurology department that diagnosed him with “mild cognitive decline” 3 years ago, and it has progressed wildly. I made the decision to move in with him because its the only way I can keep him from driving and make sure his bills are paid and he eats enough/doesn’t eat anything that’ll make him sick. Hes extremely argumentative, paranoid, and just angry at me all the time, when I’m the only person in his life willing to help him.
My life is at a hellish stand-still and I have no clear way of getting him to accept live-in care or go to a home. He’s in too much denial about his situation, and attached to control, and his own independence.
Similarly, my half-sister is a caretaker for her mom and dad, the latter of which recently had a stroke but couldnt stay long in the hospital because of the cost. They also cant afford assisted living.
As their kids, we’re put in a situation where we have to put our lives on hold indefinitely so that we don’t end up feeling responsible for a result like Mike here has described. It’s pretty awful but I don’t see much way around it
My nan was depressed most of her life but was at her happiest when she had dementia, bittersweet
Dementia is so scary... just, slowly forgetting everything, and everyone... my grandmother has it currently. Me, my siblings, and mother take turns watching her/making sure she's fed, bathed, clothed, and just overall comfortable. It's rough.
We all used to laugh and joke about our grandparents' lack of memory.
Now that we have some perspective on what it's actually like to be in their shoes, we don't laugh and joke that way anymore.
The comment section on this video annoys me cause all I see is people trying to be funny when this video was to give perspective on how people with dementia live.
Dark humour is dark humour and nothing is stopping me.
@@liminalb1rds158 twitter stops you
@buzz magister That's true but most of the comment section just seems like your typical CZcams commenters
@@mohoodie8728 i mean i found a comment section once with all sad comments and it gave me nightmares of how horrifying it would be to forget all my families i could hardly sleep so this is way better than that most people are just trying to lighten up the mood atleast for me
Lmao I was like "Doesn't joe realize there is something wrong with his mum? She is literally looking at the sky the whole walk! Oh wait. THE VIDEO MOVES??!!".
No not really... My mother is going through it right now with my grandmother... Apparently over 7 years ago my grandmother had a stroke which started causing dementia and memory loss, my grandfather and mother and family basically just found out about two years ago, so my grandmother was basically living for 5 years with onset dementia without any of us even really realizing it.
But in fact, it does not move
@@BiggerThenKingKong Wish you and your family all the best through this situation.
Hahahahaha
On that day, Rikuto Kun discovered they are the one with dementia
I want to give my appreciation to everyone involved in making this piece 😥 reminded me of how fragile as lifeforms we truly are. My heart goes to all the viewers and readers with mentally disabled relatives ❤.
I am really lucky to have been with my great-grandma until 16 years of age. She was 101, born in 1921. My family lived 12 hours away, so we came to visit for 2 weeks to say our goodbyes and let her go knowing we loved her dearly. We had to repeat our stories because she forgot only 2 days later. She often repeated the same sentenceso. Rest in peace Grandma GG. I've always loved ya 😪
Are you a Minibrot…
Memory Care worker here!
I’m a dietary aide for the MC unit at one of my city’s retirement homes, and have been employed here since October 2018. My job is to essentially deliver food to MC, as well as maintain the mini-kitchens in located down there. Despite not being an actual caregiver that’s with them all day, I have experienced many things, happy and sad.
Hell I’ve even been punched in the stomach by a resident for refusing to let her into the kitchen, and I’d bet many people would be surprised how painful a gut punch from a very thin, roughly 5’2” elderly woman can be (for context, this was last year when I was about 5’5” and ~120lbs at age 20).
Your perspective changes **drastically** once you’ve actually worked with people affected by dementia. There are so many residents over the years who’ve left me with fond memories before they passed away or moved to a different facility. The hardest part of working in memory care, in my opinion, is witnessing just how rapidly a resident’s health can decline.
Numerous times when we’ve had a new resident in MC, they’re confused and scared, as they’re in someplace new without anyone they know. One woman, for instance, moved in last year. She’d been just skiing with her family the month prior. She was so lost and lonely, begging us to take her home, even offering to pay us money. And the situations don’t end there. Questions like how much dinner costs, if the sports were on or if we played bingo that night, what day of the week it was, where the elevator/stairs were (MC is one floor), and many others.
Sometimes people forget that the way we view the world isn’t the same as how it’s viewed by individuals living with dementia, and there are often times where I wonder what my residents see, so as to understand them better and make it known that I know what they’re talking about.
If anyone has questions, I’ll try to reply to the best of my ability!
For everyone who suffers from this: I'm so sorry and hope there will be a treatment or better yet a cure for alzheimer's.
Pretty hard to cure the degradation of the mind since there's no virus or bacteria making happen but still I hope that at some point in the future technology advances enough
@@orangegradient4309 it does seem that some forms of dementia could be detected years before symptoms appear due to build up of proteins in the brain. In the future at a certain age a person may be recommended to go to the doctor and have a test done to see if these proteins are building up. If they are they could be prescribed a medication that helps them.
There's research being done with certain mushroom species that have some kind of chemical in them that can stimulate neurogenesis.
being dead is better than this
@@EpreTroll hey lol surprised to see you here. Uh if you see this I like your Touhou piano videos.
I bet its like in that dream where reality is confusingly inconsistent and you just go through without any idea what would really happen next.
Stop peeking at me….
Oh man, I hate those dreams. Yea, I'll be walking through town or in my house, then open a door walk into a room, go back through that same door, and the whole place is different. usually its a shopping mall, and I cant find a store, because the layout keeps changing. Thats really sad for those suffering from this.
Guess I'm lucky to have extremely consistent dreams, lol
Wow.
That is a perfect way to put it.
This is very scary. I don't know how my great grandmother stayed in such high spirits until the last few stages. She was always smiling with us even though she had no clue who we were
My 95-year-old grandmother has Demetia, thank God she still lives in her home and has plenty of help from family members. God bless her soul.
Thank you for the upload.
Peace and love.
This… is absolutely terrifying. I couldn’t imagine what it feels like losing yourself and being completely conscious and aware that it’s happening
Have schizophrenia, went through fits like this (+ Alex Jones conspiracy upgrade pack), and I gotta tell ya, once you're in the shit, you realize why people with the condition are at such a high risk of killing themselves.
Just overdose on acid
You arent aware after stage 3, thats when post awareness rolls in, heck stage 6 track one in EATEOT is “a confusion so thick you forget forgetting”
@@apeanut2833 That's fukin terrifying....
If you die tonight, do you know where you're going? Did you know that Jesus Christ is THE only way to Heaven and He loves you?
Through Him, God offers you a FREE gift - forgiveness. All you need to do is repent, turn away from your sins and evil ways,
from now on put your faith completely in Jesus Christ and be obedient to Him.
Biblical explanation of the Gospel:
God doesn’t want anybody in hell because He loves us, but you must understand why
we deserve hell and why those who refuse to live under His authority will go
there. (Matthew 12:30) ''Whoever is not with me is against me, and whoever does not
gather with me scatters.'' He gave us the law (Ten Commandments) not to make us righteouss, but
rather to show us our sin (Romans 3:20). God gave us free will and since Adam
sinned in the garden, sin is the nature of our flesh and we ALL have sinned. (Romans 3:23)
The law demands death to those who sin (Romans 6:23).
For someone to be justified before holy God they have to be sinless, that's why everyone need Jesus Christ
for He lived a sinless life.
None of us are good in God’s eyes, because for God good means moral perfection. We all
have broken God’s commandments, we all have sinned in our lives so none of us
are good. ‘’For whoever keeps the whole law and yet stumbles at just one point is
guilty of breaking all of it.’’ (James 2:10).
Good News is that Jesus Christ lived a perfect, holy, sinless life, Christ died for our sins according to the Scriptures,
He was buried and He was raised from the dead on the third day according to the Scriptures (1 Corinthians 15:3-4)
For God so loved the world that He gave His one and only Son, that whoever
believes in Him shall not perish but have eternal life.’’ (John 3:16)
We aren’t saved based on our good deeds/works, but only by the grace of God through faith.
''For it is by grace you have been saved, through faith - and this is not from yourselves, it is the gift of God -
not by works, so that no one can boast. (Ephesians 2:8-9)
Jesus said ‘’it is finished’’ (John 19:30) just before He died on the cross, which means He paid the fine for our sins
(past, present, future) to be forgiven if we repent and trust in Him.
''What then? Shall we sin because we are not under law but under grace? Certainly not!'' (Romans 6:15)
''Repent therefore and be converted, that your sins may be blotted out'' (Acts 3:19)
Repentance is a turning away from sin and all evil works, and it always results in changed behavior (Luke 3:8).
Biblically, a person who repents does not continue willfully in sin.
While sorrow from sin is not equivalent to repentance, it is certainly an element of scriptural repentance (2 Corinthians 7:10).
Do not play a hypocrite. ''God is light; in Him there is no darkness at all.
If we claim to have fellowship with Him and yet walk in the darkness, we lie and do not live out the truth.'' (1 John 1:5-6)
If you have repented and have genuine faith in Jesus Christ then you will receive the gift of Holy Spirit and be born-again spiritually.
(John 3:3) Jesus replied, "Very truly I tell you, no one can see the kingdom of God unless they are born again."
When you believed, you were marked in Him with a seal, the promised Holy Spirit, who is a deposit guaranteeing our inheritance
until the redemption of those who are God’s possession - to the praise of His glory. (Ephesians 1:13-14)
You are born again with the Spirit of Christ (2 Corinthians 5:17).
Whoever believes in the Son has eternal life; whoever does not obey the Son shall not see life, but the wrath of God remains on him. (John 3:36)
''You will know them by their fruits'' (Matthew 7)
If you have been truly born-again with the Holy Spirit and He has regenerated your heart, you will desire righteousness -
to do what is good and righteous in God's eyes, to seek God everyday in His Word and prayer, to strengthen your relationship with God.
You will no longer desire to willfully continue living in sin but will want to obey God out of your love for Him because of His amazing grace
revealed to us through the death and resurrection of His Son.
''Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new.'' (2 Corinthians 5:17)
''For we are His workmanship, created in Christ Jesus for good works, which God prepared beforehand that we should walk in them.'' (Eph 2:10)
You will have a testimony - of what your life had been before and how has it changed now when you have surrendered it to Lord Jesus Christ.
As a declaration and affirmation of your faith in Jesus Christ, get baptised in water because He commanded us to do so.
In John 3:5 Jesus answered, “Very truly I tell you, no one can enter the kingdom of God unless they are born of water and the Spirit.''
''Therefore go and make disciples of all nations, baptizing them in the name of the Father and of the Son and of the Holy Spirit'' (Matthew 28:19)
''Those who accepted his message were baptized, and about three thousand were added to their number that day.'' (Acts 2:41)
''And this water symbolizes the baptism that now saves you also - not the removal of dirt from the body,
but the pledge of a clear conscience toward God - through the resurrection of Jesus Christ,'' (1 Peter 3:21)
''We were therefore buried with him through baptism into death in order that,
just as Christ was raised from the dead through the glory of the Father, we too may live a new life.'' (Romans 6:4)
''Having been buried with him in baptism, in which you were also raised with him through your faith in the working of God,
who raised him from the dead.'' (Colossians 2:12)
Please get right with God and start your relationship with Jesus Christ today before it’s too late, because there’s not much time left!
"But about that day or hour no one knows, not even the angels in heaven, nor the Son, but only the Father.’’ (Mark 13:32)
Get to know Christ through God's Word - Bible. At first I recommend reading Gospel of John and book of Romans. God bless you!
Jeremiah 29:13 - ''You will seek me and find me when you seek me with all your heart.''
This reminds me of my grandma. She moved in with us and my younger sister and I would always be with her for a couple hours after school to supervise her. 99% of the time she thought she was in mexico and thought we were random neighborhood kids. She would always try to make us rolled up tortillas sprinkled with salt because thats what she used to eat in mexico when her family was very poor. One time she even asked me to call her boyfriend, my grandpa, so he could come pick her up and take her to her parents house because she wasn’t supposed to be out late. My grandpa had died 10 years prior, but I told her I called him and he was on his way. She sat down patiently and waited for him, until about a couple minutes later she forgot our conversation. She passed away about 5 years ago at 90 years old but I’m so grateful for our time together
What a kind person you sound like. 🌹
i'm sorry to hear that :( you're really sweet to ur grandma
Sounds like you took good care of her :)
That there sounds like the right approach. Humour and comfort them, don't try to reason when reason has fled.
This made me cry, this was exactly my childhood.. literally. I hope you’re doing okay, I know it’s hard, I still suffer with a lot of memories and sadness it left me. 💛
I cannot imagine leaving my mother for one moment if she ever had Alzheimer’s. My grandmother passed of Alzheimer’s after 15 years and not one day passed where we didn’t care for her every second of the way. This leaving here, “I’ll be back tomorrow” is absolutely unacceptable. My mother retired early and lost great part of pension for it and not a day goes by where she regrets that.
The voice of the lady feels so gentle and nice, It makes me feel sad for what she goes through :(
My grandfather every once in a while, reminded me to feed ‘mary’ under the bed. Always did and he ended up eating the food, forgetting about it, finding the empty plate, and be convinced she existed every time. His wife passed years earlier and would act out memories of her, but instead with ‘Mary’. I think these memories manifest themselves into a coping mechanism in the form of a character. And that’s how I fed him when he eventually forgot how to eat, or rather forgot to eat when his body wouldn’t. He would eat it for her because she wasn’t hunger and he didn’t want to waste it. Survived a bit longer with this response. It was funny and intriguing, but sad and somber at the same time.
This is so interesting and helpful. Thanks for sharing 🤍
Sad part about her being home alone is that there's a set of stairs that must seem absolutely *MASSIVE* to her, with the way she freaked about the five in front of the door.
Agreed.
Not necessarily.
My grandma who also had dementia had issues with the stairs leading up from the front door, it was too tiring and such an obstacle you had to help her walk up. The one leading up to the bedroom was no problem though, despite it being almost double the length.
@@Reflox1 I think it has to do with the safety of being at home and feeling safe. The outside stairs are scary because well they are outside
She didn't freak about the 5
Towards the end of her life my mother would say "you look like my daughter" or "I've been talking to Jimmy (my deceased father) a lot lately."
She was in her 80's when she passed. Now it's my turn to go Home & I can't wait.
My grandpa recently passed away due to a stroke, but since the start of COVID he'd began suffering with dementia, he was always confused, and when we had to put him in a nursing home, he always thought he'd be going home soon. It broke my heart like nothing else, and in a way it feels nice that he doesn't have to worry anymore.
Let me tell you a story about our Betty.
I found an elderly lady straddling a fence down a ditch on a dual carriageway once. I looked down the ditch and asked if she was ok as I was walking by, she just kind of gave me a blank stare and nodded yes so I carried on a few more paces. It didn’t feel right so I turned around and went back to help her off the fence. She was a lot bigger than me so I ran back up the ditch and asked a man to help me get her down and then offered to walk her to the bus or home. So I picked up my dog in one arm and her bags in the other, gave her my umbrella as it was raining and off we went. After what seemed like ages (I don’t do walking, let alone carrying a dog and a bag) I started to ask if we were nearly at the bus stop or her home, and she just kept saying yes not far. I don’t know how she was still going because I was exhausted but anyway, we get to a house, walked down the path, through a door and a lady was sat there on the phone which was on speaker phone. Betty has disappeared into the kitchen to put my umbrella in the sink and the lady sat there is looking shocked and the voice on the speaker phone is asking “what’s going on mum” and the lady responded “I don’t know”. It’s at that point that I started to realise that me and our Betty had just broken into some random house (not literally broken into, the door was unlocked) so as the lady sitting there was clearly quite scared, I apologised and went to find Betty in the kitchen and very quickly left the scene of the crime and back out into the rain on what I was starting to think was an endless journey. At this point, I was panicking about what to do, so decided to start walking towards a bus stop for shelter from the rain while I decided what I was going to do. But before we got to the bus stop, a police car turned up asking if she was Betty.
Turns out, she had dementia and went into a home for the day for respite for her husband so he could do some things that he needed to do without worrying about her.
Taking into consideration the time that she went missing, she must have been straddling that fence for 2 hours before we got her down. It’s a dual carriageway so not the busiest place for people walking but there must have been dozens of people that walked past our Betty straddling a fence for 2 hours that day.
Even the man I asked for help was a bit annoyed about losing 2 minutes of his precious time to help what I now know was an extremely vulnerable person. Betty’s family were so grateful.
The next day her legs were covered in bruises but our Betty was a right trooper that day.
I guess my point is that even though it should have been obvious given the circumstances of where I found her, it really wasn’t obvious to me, in fact, I had never even considered that she was suffering from dementia. I could have continued on my journey and not given her a second thought, many others did that day, so I am glad that something made me reconsider taking another step and turn around.
I’m far more observant now and always consider that people around may be vulnerable and in need of help but it might not be obvious at all.
With the drug pushing that happens to our elderly, it will most likely happen to most of us, if the C doesn’t get you first, so have some compassion as you might need that help too one day!
You are a kind person
Keep it up
May God help you and bless you
What a story, thank you for your compassion! ♡♡
Meh, I'm not worried, I'm sure that by the time I get that old they'll hasn't already invented a cure. I mean, they get billions in funding every year, its gotta be found soon.. right?
Good on you for doing that, very kind and considerate.
In the US, current statistics show that if you get to be 85, you have a 1 in 3 probability of having dementia. If you live to be 90, the chance is 50%.
I DEFINIELY need to be a more patient person with my aging mother! Thanks for posting this.
Yup you sure do. We all do
They were patient with us when we were snotty brats, its only fair we give back in their golden years.
@@noneisallminussome371 my lord, what a simple and totally true statement. You're so right! Next time I visit my mom I will remember your straight forward reply. Thank you
My dad suffered from Alzheimer's as did his sister and 2 aunts. Now, I'm going to go through a mini mental stress test in a few days to see if I'm in the early stages. I always tell my husband to be patient with me and I tell my family to remember what I say. The last time I saw my dad, before he died, he thought I was a nice lady. He has been gone 14 years now. They say that, when you have Alzheimer's, it is like being trapped in a dark closet and the light that shines in through the floor slowly fades away.
@@sumame47 wow! Thanks for the visual re the light and the closet.
These illnesses are complicated because as we age, we all get forgetful.
However, there is a real difference which I must try to pin point.
Sometimes my 71 yr old mother is so irrational with me but, then she acts totally normal with other people! It drives me CRAZY!
I will try to be more calm and understanding and perhaps, will try to put common sense aside and just smile. A very difficult situation.
The most recent - in early July, took my mother to a grocery store 25 min away. Then, it started to POUR rain! I asked "do u want me to drop u off at the door?" ... she replied "no take me home, it is storming too much!"
I almost LOST it! YOU wont walk 3 seconds outside but u want me to drive us 25 min away to be SAFE?!!!!
Logic and common sense gone ... I drove us home :(
I remember when my 85-year-old father from New York began showing these symptoms. No matter what medication we gave him, or cognitive behavioral therapy he received, right up until his last few days he thought he was an old British lady.
Mental diseases/deteriorations are absolutely insane. Physical injuries and illnesses, while still bad, you keep your personality, memories, and everything else. With things such as Alzheimer's, you lose what you are. It's terrifying.
I could actually feel the anxiety realizing she was home alone. What a powerful message
My grandmother developed dementia shortly before she passed. She stopped recognizing me or my brother all together after one point. One night there was a power outage and when the lights came back on she had locked herself in her room and couldn't remember how to unlock it. She said she saw our shadows and thought it was burglars in the garden. She knew her brain was playing tricks on her and there was little she could do about it. It must be very scary.
wow that's eye opening, seeing how my grandpa would respond to me when he wondered off in the morning and I would be in a panic looking for him. Thankfully there was a dog he could walk with and could lead him back home.
My mom works in a long term care home with people with dementia. She loves the residents. She tells me that they tell her stories from far in the past when the residents were still around 5. She tells me that they act like kindergarten students. My mom loves her job.
Quite interesting... it's like having a bad psychedelic trip... constantly
Yeah fuck that
No, that's psychosis. Alzheimers is way worse...
Maybe worse. You may stop taking drugs but not fix your brain... 😢
not really... you're not hallucinating in the same way, you just have huge lapses of memory which make you confused where you are or what you're doing. like imagine you got up to take your medicine, then all of a sudden your daughter is standing there like "mom, it's 4pm, you took your medicine this morning, what are you doing?" and you can't remember the entire time from that morning to that moment. in your mind you just woke up to take your medication, but in reality hours have passed since then and you can't remember any of it. it's much scarier than a drug trip in the sense that you're never quite sure what's real or not or what's happening. ime drug trips still have a level of control where you're like "my perception is altered because of the drug, but i can't control my perception" whereas this is like "i have no idea who tf i am or where i am or what's going on"
DPH
The fuck, I didn’t realize this was a 360 video until it was like almost over
I only realised because of this comment imao
BRUH- this is my first time seeing a 360 video and i was wondering what this comment meant while the video was paused, then i accidentally moved the video and MY HEART DROPPED IT WAS SCARY
Right, when did this shit come out?
It's been a thing for years now 😅
@@inktoxicate I’ve legit never seen one tho
7 years ago, this video was the most important one I watched when my mother first developed FTD/PPA. It helped me with her care and designing an adapted at-home environment. Thank you for creating this!
All I can say is THANK YOU FOR THE PERSPECTIVE.
This is terrifying. I had no idea that this is what dementia looked like.
Watch the father. Much better illustration.
I thought it just meant that you have bad memory. Im so stupid
@@johnheng1040 Memory is one of the first things you would notice but yeah, it's a lot more than that. It's a pretty disorienting condition. This video is not a very good representation but there are good resources out there if you want to understand what it's like. They did a great job with "The Father". I highly recommend it.
@@jonathanpitman1 whats the father
@@Ok-ok3jz It's a movie that came out a few months ago starting Anthony Hopkins. It follows Anthony's character as his mind slowly fades away due to dementia.
Lost both of my grandparents on my father's side to this. I'll never forget seeing my grandmother at my grandfather's funeral and walking up to her and greeting her. Only for her to reply "And who might you be?" At that moment I knew my grandmother was already gone. It's like losing a relative twice.
Damn, that hits hard.
My precious mama had Alzheimer’s it’s a Life Robber and hard way to live. Anyone who has a loved one with any form of dementia please be loving and kind to them and remember there’s help out there because it can be overwhelming I am so happy I was able to care for my mom the last 3 years of her life and she received her reward and know God is watching
I've worked at a place where dementia people live. I cleaned their rooms. I saw many times people in the hallway crying and I just felt so sorry for them cuz their parents didn't recognize them. 😥
Bless you for your service; not easy to witness that.
Wow, it looks like whoever played Joe made some enemies for life in the comments! Glad to see how many people care so deeply for the senior citizens in their life
@MathematicalPhysics why do you think that? I don’t want to dismiss you as just being cynical because you seem like you’re speaking from genuine life experiences
I understand why they'd hate the character, but the actor? Man, they sound like fucking sociopaths.
Some of them are simply nuts or momentarily caring and virtue signalling. I wouldnt be surprised if they d forgotten commenting here
@@hotel_arcadia never underestimate basement dwellers who think they're morally correct.
Absolutely
I’m literally rolling on my bed right now just to look around and find the right angle
You can just swipe your finger on the video to move the camera lol
I’m so dumb lmao
@@megumi6953 happens to the best of us lol
My mother died of this disease and forgot all of us. Then, the day before and the day she died she had a few moments of clarity that was so precious.
They say I have dementia, I just call it sometimers.....sometimes I remember, some times I don't. Things are starting to progress for me now though and only the Living God In heaven can help me.
It is my wife and loved ones that mourn. I see in their eyes, especially my grandchildrens eyes, when papa forgets something and my 12 and 10 yr old are on baby sitting duty. I don't mind, it gives me especially more time to tell them about God and His Son Jesus 😀
My father has dementia and we sadly had to put him in a nursing home. I have been looking, after him and my mother for the last 20yrs. That is when we noticed things were not right with the both of them. Dad started to sleep more, and mom was hurting more. As well as my oldest sis was dying of stage 4 colon cancer. I stopped working and was there for my parents and my sisters family full time. Back to now, my mom is totally fine in mind, but not in body. My father has had his 6th fall at the home, he tries to stand up, from is full padding wheelchair. He has to stay at the nursing center fulltime. I don't like see him like the way he is. Sadly I didn't know my dad growing up, as he was working all the time to feed 6 kids and his parents, as they lived in an apartment on the side of our house. So I got to know my father as he was failing. He doesn't know me by name ,but I think he knows me because when I go an see him his eyes light up. My other sister sees him once a week, my mother tries to see him once a week, as well as all of church friends go see him as much as they can. One of them goes about each day around supper time to feed him his supper, as my father no longer can for himself. I have mixed feelings about seeing him. I love him for him, I'm very protective about him, but I don't like seeing him this way.💙
2:05 really hit home to me, that panic stricken voice "watch out Joe" over a puddle of water.
I fear that my mother (71 yrs old) is perhaps in the early stages of dementia. It is complicated to make the distinction between old age and normal forgetfulness vs actual dementia. (I mean we all forget things time to time).
But that scene at 2:05 - her voice, the irrelevant panic over nothing; hits at me hard!
I notice this with my mother, anxiety and panic over NOTHING.
"Don't WALK in the dark, what are u doing?" ... "There is a CAR coming" ....
THE VOICE "WATCH out JOE" ... ughhhh ..... sounds so familiar to me.
It is an awful feeling; no matter how old we are our parents are the ones who have cared for us, a complete role reversal terrifies me.
I agree, it's extremely terrifying 💔
I wish the best for you and your mom 💕
Some people were like that the entire time and this is why their kids don't talk to them. Lol
Ik there's a lot of comments but adding on here: Alzheimer's and dementia are not normal parts of aging, it's just a common disease in the elderly. We don't yet know how to prevent it. But there's no reason people should have to go through this. Brains don't get Alzheimer's as they age. They get Alzheimer's because of an unknown trigger that begins a this brain disease.
Though we don't know what causes it yet, recent studies show a possible link between bad dental health and the onset of Alzheimer's. Take care of your teeth. They're close to your brain, and if they get infected, there's not that large a distance for infection to travel before it could potentially spread to your brain. And a life of bad dental health could mean an old age with high risk of Alzheimer's -- if recent studies are onto something, that is.
That sounds very logical and I believe you. Thanks for your insight.
really? i’m scared now because i never brush my teeth i’m not old tho i’m 18
@@xdtijnntssyu3314 might wanna start brushing, then
Thanks for the tip!
Wow this sounds very realistic but do you have a link so I can see all the details?
What a terrible heartbreaking way to live. I'm just now (last month) taking care of my mom, as my dad just passed. 6 months ago my mom was diagnosed with dementia after she wondered and we were fortunate to find her alive. Dad asked me to take care of her because she does not want to go to a home and wants to stay in their home. Mom had the best memory of anyone I knew, now she can't tell you what she had for lunch. She still remembers who I am but I have to omit I'm terrified of what is going to happen. This is a 24/7 responsibility and not much support at least in my area. I would never have thought this is how my life was going to be, but I will at least try and full fill my dads wishes.
God bless everyone who lives with this terrible disease and everyone that takes care of someone.
Such a cruel and depressing illness.Along with Alzheimer's.My Father died from Alzheimer's but my siseter and I kept him with us,we didn't want him in a nursing home, we saw his decline over 2 years and it's heartbreaking.But I'm thankful for the time we spent with him.I love my dad and miss him terribly.
My mother has this and her symptoms were noticeable since August of 2018. I handed her e remote to the tv as up to that point she was always turning on the TV. She asked me how does this work. I thought she was joking or it’s just that she was old, but eventually realized when she started to show other signs. I began to panic whenever she had left the house one time. After everything that made me realized she had it had transpired, I also realized I couldn’t go out anymore. I’m basically with her 24/7. She can’t be left alone anymore. She doesn’t deserve this, and I really wanted her to have a normal life at as any elderly. Unfortunately, life always likes being cruel, and now I don’t know how much longer it will be until she’s eventually going to forget who I am. She’s already forgetting which sister of mines she talks to. My aunt had dementia too, but she had no children. Among all my relatives, those two seem to have similar levels of dementia.
I’m terrified that the only person I’ve been closest with is now a shell of her former self. It’s heartbreaking seeing it progress, to trying to slow it down and not being about to stop it.
I'm so sorry
You're strong, and I hope you're doing okay. That is heartbreaking. You're doing something amazing by staying with her to make sure she's okay. She's lucky to have you.
Stay strong 💪
I’m so sorry. It’s terrible to suffer though but, hopefully she won’t have to progress all 7 stages. When it is your mom’s time, she will be in heaven.
I want you to know that I am in such a similar situation as you. My father is only 58 and he's suffering from a rare form of early onset alzheimers. He's my best friend and it's really difficult to watch him suffer and get worse, all the while knowing that he'll probably get to the point where he doesn't remember me, his only child. Seeing it happen to your elderly relatives is tough but having it happen to them when they're still relatively young is heartbreaking. I'm really sorry for what you are going through with your mom. You are not alone ❤
After seeing only one of these videos (the supermarket one), my instinctual response to getting lost was to think “where’s Joe?” I was so relieved when he came back, but when it turned out not to be him I was scared again. As soon as he walked out the door I felt alone and almost frightened. Well done.
joe mama sorry
@@richardgibson8403
💀
My heart goes out to anyone suffering or suffering beside someone who has dementia 😔
Dimentia is scary. I listend to just a burning memory and now i am invested in dementia
This makes me wanna cry. My Mom was getting like this, although, she always recognized me, she was becoming a different person. And this scares the hell out of me, now that I'm older, and memory issues are starting to become a bit of a problem. I rarely drive anywhere now, and pretty much in my immediate neighbor to shop. I've gotten temporarily lost a couple times... blocks from my house. It was surreal and I felt somewhat panicked. Plus, I've noticed that I feel irritated more often, and sometimes for no reason. I wonder if 'that cure' is anywhere near being discovered(?). F*ck!
damn dude, there is quite literally not a fate worse than yours. the fact that all your progress in life is going to be forgotten is insane. i reccomend constantly listening to your favorite music (it seems to stimulate memories), and maybe looking up some medication to slow the process.
I agree! At times, I've thought I was in a Twilight Zone episode. It never ends. 😳
what you just stated are all common signs of dementia, you should get checked out
I hope you are doing well!
I could imagine that meditation could help pretty well as well, since you are training to hold something in your awareness for a longer time of period.
Man go seek help immediately. Maybe they can slow down the process in some ways.
This topic needs a lot more exposure. Dementia is often overlooked and extremely underestimated. In the end it killed my grandpa and caused massive damage to the whole family in its wake. It first started with little things like losing his keys and forgetting to buy some items from his shopping list. Then it took longer and longer for him to return from his shopping trips until one day it was already late at night when he came back, later we found out it was due to not being able to find his way back home again... Slowly things began to turn from bad to horrible. After he wasn't able to do the things he loved anymore and not understanding what was happening to him he started to get confused and angry. Knowing him for all my life and remembering him as the kindest person I have ever met this came to me as a massive shock. Then he started to not recognize me anymore, or his 3 children, and in the end he even lost all memories of his wife, to whom he had been married for over 50 years... He started thinking the house he built with his own hands and in which he had lived for over 40 years wasn't his home and that the person living with him there (his wife) was holding him captive. So he tried to escape over and over again as he thought the place he lived in during his childhood was his real home, but this place didn't even exist anymore. Then the horrible things started to turn into undescribable hell. One after another he was losing even the most basic physical and mental abilities. He didn't know how to use a toothbrush anymore, how to use a bathroom, or even how to eat and drink. Then he lost his ability to speak and walk. It was devastating. Seeing this kind and loving person in this state didn't only bring me to tears, it brought me to my knees and there was nothing I could do to help him. The doctor's said there's no cure, no treatment helped and things only got worse. All hope faded. He coulnd't leave his bed anymore and the only thing the doctor's could do was giving him painkillers and making sure his limbs wouldn't die off from lack of blood circulation. It was horrible. This spiral downwards went on for many, many years. Then the day came when he took his final breath. When I entered his room that day his skin had a purplish tone and his breathing was fast and shallow. After sitting by his side for a while I grabbed his hand and for the first time in years there was a spark of recognition in his eyes when he turned to me. And he smiled. Then his breathing stopped. That's when something inside me broke and I burst into tears that wouldn't stop running down my cheeks for years to come. This man has been good to me all his life and the only thing I could do for him was sitting by his side when he passed away. It still breaks my heart when I think about it and I will never be the same person again... Be kind to your loved ones. We always think there's enough time until it's too late.
I’m am so sorry for your loss. Your story made me cry. The things we take for granted are always the things we miss the most. I hope you’re doing well, remember the good times and keep your chin up! Hugs from Canada 💜
My father was always a kind, quiet man. Never raised a hand or his voice to anyone. Then he started getting aggressive with my sons when they tried to bathe him. When he finally had to be placed in a nursing home, he would kick or try to bite his caregivers. This upset me because they didn’t know his true sweet personality. He lived with severe Alzheimer’s for about six years .near the end, when he could still talk, he thought I was his sister. With Alzheimer’s, it’s like your loved one dies twice. I’m almost 83 and I often wonder if it will strike me, too.
You actually did a lot. I'm sure that even sitting by his side at the last moments is a harsh challenge that you decided to confront anyway. You brave and strong and you gave him the opportunity to not die in loneliness
I'm feeling sorry about your Grandfather 🥺
That was a sad story,really sad 😔
that "wrong alleyway" part was terrifying, it feels like youve never been there before and looking back confuses you even further, its like being in a dream and trying to find a place
This is so sad. I have never thought of dimensia like this. I thought it was lile you just forget things sometimes but ur fine. This is heart breaking. Big love and support to anyone who has this horrible illness. ♥️
I remember feeling so ashamed when I wasn’t watching my grandmother close enough while she was still alive. She was never diagnosed, but we knew she had dementia of some sort. I would be upstairs in my room watching something dumb or doing my homework and the doorbell would ring; my neighbor would be there with my grandmother, saying she had wandered across the street towards their house. I was so, so lucky we lived in a neighborhood with little to no traffic and no busy roads nearby. I constantly wished I had looked after her better, had asked her more questions while she was still aware of who she was. It’s been six years now since she passed away (in her sleep, thankfully not an accident). I miss her every day and hope I don’t have to wait long to see her in the next life.
She's in hell now
Don't reproach yourself. You were a kid and kids always think they know Everything when they know Zilch! We have all been there.
Dementia is a weird thing, even the 'experts' get lost. I have found the best way is just run with it. Enter the dream. If you try to drag them back you terrify them. BUT if you enter the dream you can lead them gently back. It won't last, but they will trust you and respond. I am no 'qualified' expert 'but I lived being treated s a geriatric for 3 years on and off. Complicated. I also worked in homes as a menial. So I had time to break through. Some are just gone into another universe, but some do touch base occasionally. And that is when you see Them. It is beautiful. You are never going to 'cure 'them or 'get them back' and why should you? Treasure what they have become. I learned a lot!
" I constantly wished I had looked after her better, had asked her more questions while she was still aware of who she was. "
I am in my 30s and I have these exact feelings regarding my father who had dementia. I wish I had made more of the time that I knew was left. I think at the time I was too afraid to face up to the reality of what was going to happen.
@@peepiepo Forgive yourself. We all react differently, especially when we find ourselves on strange shores. Perhaps you were in denial, hoping that if you didn't accept it, it would just go away. i think one of the hardest things for a person who has lived with a loved one fading before their eyes, be that physically or mentally, is Guilt. You Always feel that you missed something, could have done something differently, could have done More. Even if we know that we did all we knew how. Sometimes we are not even in full knowledge of the facts. The doctors, or the person themselves will hide them from us, in a mistaken attempt at protecting us. They don't know either, that will make it harder for us when they are gone. 'If only I had known A, I would have done B!' etc. I am sure you did whatever you could for your father, and he knows that, wherever he is. Just keep making him proud. You are his child; he is remembered through You. As you will be through any offspring you may have.
Don’t blame yourself, Chelnah. Try writing your feelings for your grandmother. That’s what I do. Write down memories of her, and keep them in your heart.
Can't believe that's how my grandma felt for the last 5 years. For the last 2 months of her life she was more like a newborn baby rather than a 74 year old woman. The same with her mother, my great-grandma. At least they're not suffering any longer 😞
Once into the more advanced stages of dementia, my 91 year old grandmother lived in a long term care facility. Eventually she could not do many basic tasks un-assisted. She was spoon fed a pureed diet in order to avoid constant choking and had lost the ability to speak in a way that others could understand. Her speech consisted of mumbling and slurring - sometimes combining parts of French and Italian that she had known in her past. You could tell if she was making a statement or asking a question based on her tone. It appeared as if she understood what she was saying but acted as if no one else understood her. She would mumble and stare at you, waiting for your response, and then give a look of confusion as if you had ignored what she just said or completely side-stepped her question or comment with something unrelated.
At that time, one of her favorite items to hold on her person was a paper napkin that had a picture of different colored bell peppers on it. As I was getting ready to end our visit one afternoon, she was trying to eat the napkin and would likely choke so I had to take it from her. She protested once, mumbling something I did not understand so I waited. After a few minutes, I attempted to take it again and she burst out in a moment of clarity and said " I SAY NO! " in a firm tone. I was stunned but was eventually successful by trading the napkin for an empty paper cup that she became fascinated with. Those were the last words that I ever understood that came from my grandmother.
After a few months had passed, she was totally mute and nearing the end of her road. I held her hand and thanked her for all of what she had taught me and for all of our shared experiences together. My grandmother squeezed my hand three times in a row, as if to say " I love you " and passed away a few hours later.
I will forever cherish the time we spent together.
@@MAC.... I've heard some people with Dementia getting some kinda of miraculous clearance shortly before they will die. Such a terrifying and yet happy thing to experience. I offer my condolences, however long it may have been since she died.
Love and treat your parents (and other old people) with respect, while you can - they won't be with you forever.
Thank you for these videos, they give one a good perspective and help remind us to be patient and kind.
As someone who doesn't even have dementia, it was really eye opening to see that even as someone who doesn't have dementia it was really eye opening to see that despite not having dementia I really felt that because I don't even have dementia it was really eye opening to see from the point of view of someone who has dementia, unlike me who doesn't even have dementia it was really eye opening to see that even as someone without dementia that people with dementia feel very differently to me
Underrated comment
@@vincem3748 what is
@@Average-Cacodemon-Enjoyer your comment. It's underrated!
@@vincem3748 my comment asking what is?
@@Average-Cacodemon-Enjoyer your original comment is underrated
For me, the most terrifying part of the whole video was when Joe closed the door, leaving her all alone. She’s now isolated in a big home with tall stairs and could easily walk out. But worse than all that is that she has to sit there alone with her distorted and abstract thoughts. Truly a horrific masterpiece.
My mom was just diagnosed with Alzheimer’s last year. Kills me to know she’ll be this helpless one day
I’m sorry, it’s never ever ever something you want. But let me encourage you that even when it’s hard and sad and awkward and difficult, still treasure the time you have with her. Be with her in the moment. Even if she brings up stuff that isn’t logical or isn’t real, it is real to her so it matters. Choosing to just listen and ask questions instead of correcting or arguing will go a long way, and will help you bond with her and form a connection in the moment, even if she won’t remember it in the future. For example, if she talks about her parents coming home soon, don’t try to convince her that they passed away-there’s really no benefit or point to making sure that she knows the truth-instead ask questions about them. Get her to smile and reminisce about her parents or grandparents, and that way you can even learn more about them that you maybe didn’t know! Having to take care of my grandmother while she is in the late stages of dementia and caused me to really treasure the little things. The other day I heard her sing for a few seconds for the first time in a year and i was so overcome with joy. I have it my goal to get her to laugh and it really helps me stay positive. It can be a lot harder if your loved one gets aggressive and confused, but in that moment I would say to have compassion and sympathy. Understand that their agitation is probably stemming from fear and confusion. Know that they don’t truly mean those hurtful words. Just walk away and leave them be if you have to. Play some of their favorite music as a musical therapy. Patience and compassion are the keys. I’m sorry again, it’s not easy, but there can still be joys and blessings that come from these hard times❤️
Greta Eder thank you for that. It’s hard when she doesn’t make any sense or blatantly forgets something important, it hasn’t fully registered to me the extent she will change and it scares the shit out of me. I’ve been trying to be compassionate and not correct her, it’s just really hard holding back the pure sadness I feel at the time. There’s really no worse pain than watching a loved one lose themselves slowly. I appreciate your advice (especially about asking questions to indulge her when she’s wrong) and I’m trying to treasure every moment. Your advice already helped this morning, had a long conversation about her brother (who passed away a while back) and got to learn more about him. I’m sorry about your grandma, just know your message brought me to tears and has helped. Thank you❤️
My grandpa has it too (not fully sure but I know he has pretty bad memory problems and my mom has talked about it to me a little bit) and he sometimes stops taking his medicines or forgets he already told us something and it really hurts my mom. I've never been very close with him but I feel bad for him too and my mom, since she helps him a lot and checks on him.
A_FinlandGirl I’m sorry to hear that, but it sounds like your mom is being strong for him and that’s all a person can do in that situation
@@gretaeder5996 this is a wonderful comment, thank you for helping him and others understand the situation. I am sorry for anyone who has to go through this and hopefully one day we will be able to prevent it.
This makes me sad and I pray to god that anyone going through or has a family member going through this the best.
Bob, you look awesome. I’m amazed how much energy you have in spite of all the trials and tribulations.
That water level was hard.
People be asking where's Joe
But nobody asks how's Joe
Not funny
@@YoungSavageLife Have a sense of humour, Dimentia is a serious enough issue without you making things worse
who's Joe
Indeed, Alzheimers is a cruel disease where loss I experienced many fold.
@@SpectreOZ yep. My Nan and Grandad both have it. My grandad has been alright for the last 4 years since his diagnosis, but now, at the age of 94, he's deteriorating much faster 😭
It's heartbreaking, it feels like you're losing a loved one twice. Alzheimers has been in my family for generations, so it's likely that I will go through the same. Spend time with your family while you have the chance, and cherish every day
I helped my best friend with his mother who had Alzheimer's and passed from it. It was always crazy to me hearing him say that she probably is still conscious on the inside even tho towards the end she became bedridden and almost mute. This really put that into perspective, wow. Her name was Irma Collins ❤️
I remember seeing you guys at a science convention and I actually was given a VR headset for this. The experience has stuck with me ever since. This is terrifying and you all did a splendid job.
I still remember the last two days of life of my great grandmother she got dementia and thought i was her doctor and wouldn't recognize me for a bit until her brain snapped in place for a bit. This disease is no joke, it's really tough, not only for the people who go through it but for the families as well.
My grandma is at the point where I came to see her after being gone for four months and she didn't show happiness or anything, just a "oh hi, what are you doing here", and I'm pretty sure she literally just forgot that I was away for a few months. She can't remember what's my job and she still thinks I work at a place where I used to work two or three years ago, and she keeps repeating the same stories over and over, sometimes twice in ten minutes.
A few years ago i was neighbours to a lovey old lady called jean, she used come round for a chat and a cup of tea. When ever she came round we always had a conversation about how proud she was of her children who were all grown up and how she used to work for the council. The thing is she never remembered our last conversations so for twice a week for about 5 years we had the same conversation over and over. I miss her so much.
i love the subtle details, like how there _was_ an orange car parked by her house, but not the same type she saw earlier.
POV: you’re a logo with an old woman’s voice trying to navigate home during a fever dream
oh my fucking goddddd
Damn... this is true
This is supposed to be funny, or..? I legitimately don't get the point of this comment, because it just sounds so mundane and pointless, especially considering the subject matter.
Grow up.
@@raccooncityhunk497 jesus lord calm down mate it’s called a joke
i get the joke was insensitive but you really didn’t need to say antything
@@raccooncityhunk497 you need to grow up.
"Dementia is like the first Digimon intro where everyone is spiraling upside down into the void."
-Neil Degrasse Tyson
If Jeff Bezos put all his money into his ass, he'd have a very big ass
-Nein Degrasse Tyson
what
Digimon! Digital monsters! Digimon are the CHAMPIONS!
Hey now
You're an all star
My favourite intro as a kid !
My mum wander off to some random places. She plays with her hair whilst talking to herself, sometimes even shouting. She has schizophrenia, on and off dementia, depression, anxiety, high blood pressure but despite all the difficulties she is going through, she remembers me from time to time. There were times she would tell me “you’re not my son, you’re just a clone of him. Where is my real son?”
Dementia varies so drastically, this is not everyone. My mom-mom had dementia. She was always in a good place- always happy and enjoying herself.