Thank you so much for this simple, factual and well communicated video. I am so sick of FND ‘explanations’ that insist all FND is hidden trauma, which it is not. Or videos that use old descriptive statements, and overtly make the point “it’s not organic” as if that explains what it IS. What patients want is actual scientific data, cutting edge research and honest discussion, that includes the admission their is still much to be discovered about FND. It seems to be a diagnosis everyone wants to make excuses for or brush under the carpet. This video actually looks head on about what is going on in the brain….thank you!
Thanks for sharing this important information, Tom. I appreciate it. I plan on sharing with my therapist so we can understand the “brainwork” together! So helpful!!
Unfortunately for me here in South Africa there is virtually no treatment available. I've only got a clinical psychologist and a normal psychiatrist who tells me FND is curable. My neurologist diagnosed me in 2022 after I had stroke like symptoms and was hospitalised. I had to use CZcams to relearn how to walk properly. Did my own exercises to strengthen my left leg, arm and hand. I still have problems with them. Being discriminated at work is also making symptoms worse and it's extremely distressing.
What you said makes sense,when I was diagnosed in2010 I was told to look it up on the internet.i have serious fnd and still had no help.thankyou for the video.
If you are in the United States the department of neurology at the University of Pittsburgh Medical Center has specialists and have done wonders for my family member
ever consider that it can be an effect of stroke that differ from the usual paralissed arm ,elocution issues and gait? after terror attack i became overwelmed by sensory input by light :sun and uv from neon light. diagnosed fnd it took me a long time to figure out how to deal with it. that trauma base of fnd didnt make any sense to me and i turned down any psy therapy.
Thank you so much for this simple, factual and well communicated video. I am so sick of FND ‘explanations’ that insist all FND is hidden trauma, which it is not. Or videos that use old descriptive statements, and overtly make the point “it’s not organic” as if that explains what it IS. What patients want is actual scientific data, cutting edge research and honest discussion, that includes the admission their is still much to be discovered about FND. It seems to be a diagnosis everyone wants to make excuses for or brush under the carpet. This video actually looks head on about what is going on in the brain….thank you!
Thanks for sharing this important information, Tom. I appreciate it. I plan on sharing with my therapist so we can understand the “brainwork” together! So helpful!!
Thank you Tom.
Always looking for way's to live with this disorder.
I am learning how to take back control which is very good, thanks for the info
Unfortunately for me here in South Africa there is virtually no treatment available. I've only got a clinical psychologist and a normal psychiatrist who tells me FND is curable. My neurologist diagnosed me in 2022 after I had stroke like symptoms and was hospitalised. I had to use CZcams to relearn how to walk properly. Did my own exercises to strengthen my left leg, arm and hand. I still have problems with them. Being discriminated at work is also making symptoms worse and it's extremely distressing.
Diagnosed 2023 FND & lost my voice can't words ,speech therapy & last week told her im getting worse ? 😢
What you said makes sense,when I was diagnosed in2010 I was told to look it up on the internet.i have serious fnd and still had no help.thankyou for the video.
If you are in the United States the department of neurology at the University of Pittsburgh Medical Center has specialists and have done wonders for my family member
I was just diagnosed. I was wondering if FND is hereditary
ever consider that it can be an effect of stroke that differ from the usual paralissed arm ,elocution issues and gait? after terror attack i became overwelmed by sensory input by light :sun and uv from neon light. diagnosed fnd it took me a long time to figure out how to deal with it. that trauma base of fnd didnt make any sense to me and i turned down any psy therapy.
This does not explain what causes the sudden onset .. why do the signals suddenly get mixed up . There must be a common cause