thank you! I was able to follow along and that was very nice! the talks are usually so complex I experience neuro cognitive fatigue rather quickly and can't finish the video. I understand the need for 3-syllables in a word, but it is out of my new brain's ability to navigate. I'm totally alone 99.9% of the time and I do get frightened when I need a glass of water or maybe a small meal. There is no one to help me. I've been sick for most of my 18 year olds life and it was just the two of us. I do have some help with a caregiver but each caregiver decides what's important to them and it's really hard to explain to them that yeah I love it there is a crock pot of stew in the fridge but how do I lift it out of there to a counter when I can't pick up even a can of food without my hand and wrist giving way and dropping the can? I think it's very hard for my adult children and my 18 yr old to understand how sick I am even though they sound sympathetic. I just try not to worry but it's hard when people don't think about you and you really need help. I lost every friend I had when I got sick and the man that I was engaged to said he was too young to be somebody's caregiver and sent me away while he pursued his music career in New York. I work so hard I'm not getting depressed. I smile and laugh out loud every single day! I think my biggest fear is that my two grandchildren are growing so fast I'm not going to be able 2 Viva Grandma's it instills them with that sense of worth and knowing that they're always love unconditionally from your grandmother. We have so much fun even though I'm bedridden when I do get to see the little ones! I used to crochet and kept my yarn on the other side of my far too large bed now I'm the only person ever using it and I really enjoyed the bright colors. When I couldn't go outside and flower garden anymore I felt like I'd been disconnected from God because that's when we were closest. Then I saw people crocheting flowers online and I've never seen anything like that before! Just the Chevron Ripple blanket. It seems to be a family favorite pattern! But I had to have things within Arm's Reach of me because I wasn't able to get up most of the time without Aid and my grandson I would crawl up here to where grandma was sitting up against the head of the bed and he grabbed a skein of yarn and stuff it in his mouth! LOL I'd have to join in with the fun and grab one and Chomp on it! 😂 I had no problem bonding with them. My grandson and I bonded over color the joy of laughter and yarn! My granddaughter is only two years old but when she was a tiny baby and my daughter had brought her to the house so I can see her when she was near me I started singing very Softly and she started looking for what she was hearing. so I knew I had somebody that enjoyed singing. Oh that's turned into watching her favorite part of trolls and she says sing Grandma! sing with me! And then she told me she loved me and came over and gave me a great big hug. That's my joy, and I know that I have bonded with my grandbabies and but I wish I could see them more than once every 3 months. seems like somebody's always too sick and we have to cancel plans. And it's usually me that's too sick. Imagine that! again thank you very much for your presentation. I'm grateful and honestly enjoyed it.
I have both ME/CFS along with Post Polio Syndrome and a host of other things. One problem is they cross over each other with the same symptoms which is a nightmare getting treated. I saw Dr Bateman before she started her center after 8 yrs on a waiting list to get seen I gave up.
Have you signed up for our communications list? We will send you email with direct links! batemanhornecenter.org/voicesofgratitude/ Or you can find them on our website and facebook events calendar!
thank you! I was able to follow along and that was very nice! the talks are usually so complex I experience neuro cognitive fatigue rather quickly and can't finish the video. I understand the need for 3-syllables in a word, but it is out of my new brain's ability to navigate. I'm totally alone 99.9% of the time and I do get frightened when I need a glass of water or maybe a small meal. There is no one to help me. I've been sick for most of my 18 year olds life and it was just the two of us. I do have some help with a caregiver but each caregiver decides what's important to them and it's really hard to explain to them that yeah I love it there is a crock pot of stew in the fridge but how do I lift it out of there to a counter when I can't pick up even a can of food without my hand and wrist giving way and dropping the can? I think it's very hard for my adult children and my 18 yr old to understand how sick I am even though they sound sympathetic. I just try not to worry but it's hard when people don't think about you and you really need help. I lost every friend I had when I got sick and the man that I was engaged to said he was too young to be somebody's caregiver and sent me away while he pursued his music career in New York. I work so hard I'm not getting depressed. I smile and laugh out loud every single day! I think my biggest fear is that my two grandchildren are growing so fast I'm not going to be able 2 Viva Grandma's it instills them with that sense of worth and knowing that they're always love unconditionally from your grandmother. We have so much fun even though I'm bedridden when I do get to see the little ones! I used to crochet and kept my yarn on the other side of my far too large bed now I'm the only person ever using it and I really enjoyed the bright colors. When I couldn't go outside and flower garden anymore I felt like I'd been disconnected from God because that's when we were closest. Then I saw people crocheting flowers online and I've never seen anything like that before! Just the Chevron Ripple blanket. It seems to be a family favorite pattern! But I had to have things within Arm's Reach of me because I wasn't able to get up most of the time without Aid and my grandson I would crawl up here to where grandma was sitting up against the head of the bed and he grabbed a skein of yarn and stuff it in his mouth! LOL I'd have to join in with the fun and grab one and Chomp on it! 😂 I had no problem bonding with them. My grandson and I bonded over color the joy of laughter and yarn! My granddaughter is only two years old but when she was a tiny baby and my daughter had brought her to the house so I can see her when she was near me I started singing very Softly and she started looking for what she was hearing. so I knew I had somebody that enjoyed singing. Oh that's turned into watching her favorite part of trolls and she says sing Grandma! sing with me! And then she told me she loved me and came over and gave me a great big hug. That's my joy, and I know that I have bonded with my grandbabies and but I wish I could see them more than once every 3 months. seems like somebody's always too sick and we have to cancel plans. And it's usually me that's too sick. Imagine that! again thank you very much for your presentation. I'm grateful and honestly enjoyed it.
I have both ME/CFS along with Post Polio Syndrome and a host of other things. One problem is they cross over each other with the same symptoms which is a nightmare getting treated. I saw Dr Bateman before she started her center after 8 yrs on a waiting list to get seen I gave up.
To try the free monthly support group facilitated by Dr Sherlock, click on the calendar item batemanhornecenter.org/calendar/
Where do I sign up for the online support group please
Have you signed up for our communications list? We will send you email with direct links! batemanhornecenter.org/voicesofgratitude/
Or you can find them on our website and facebook events calendar!