Craig...this story really hits close to home. My father was diagnosed with pulmonary fibrosis around 2010, he was retired and exercised daily and was actually very healthy as far as I could see, but that disease took a quick left. In the matter of months he was on 02 24/7 and still could not breathe. He went to a very distinguished hospital and after a weeks worth of tests they said NO, we feel like if we operate you will not make it. My Dad was given a phone number to another surgeon in a different state. Dad made the call and they met. Dad did not leave the hospital until he had 2 new lungs, this happened a few months after he was at this hospital. They put him first on the list and within a month from that time, his lungs arrived. The operation went well and his recovery went really well. He has had a couple of rejection scares but beyond that he is doing great. In October 2020 he will be 6 years post op and doing great. THANK YOU for sharing your story. May you live a very long and healthy life.
@@cgotca Sorry to hear about your sister. If it is okay with you, can you please provide more information on what happened, it would help us know the cons of lung transplant
Hi how are you? Can you please share a little bit of your story with me? My dad might need a lung transplant. Please help me understand more about the process.
@@josselyntobar4789 actually I have an entire CZcams channel devoted to transplant education and motivation. You can find me by searching for The Transplant Helper or taping on my picture on a mobile device will take you there. Once there I’d recommend the “Getting Started” playlist.
Due to the condition I have I well never be able to have a transplant. I was born with one lung and two holes in my heart and had complete air way reconstruction. I am very limited in my activity but successfully living for 14 years
I know what you mean..I was born with one lung and a half, and a couple holes in my heart. A month ago my smaller lung collapsed and never came back so it was removed. I have severe asthma since I was a baby. Two years ago I was diagnosed with severe eosinophilic asthma. My one lung is not doing good. I've been in the hospital now for a month cause I had surgury in my heart and lung. I'm on oxygen, and feeding tube. I'm on the list for new lungs but I'm still discourage with the information about it.
😭😭😭😭😭😭😭😢 this is beautiful my mom going thru the same thing from years of smoking 🚬 I love her so much I want this same story 4 her …congratulations craig stay blessed 😇
Thanks for sharing. I am a 50 year old with chronic lung disease also on constant oxygen. I am also a musician. I am a bass player... at least I was before I got so sick. Your video gave me the hope I was looking for.
@@jwfriedman1 even my heart lung transplant workup is going on hope so get the best match donor soon ...but scared whether to do or not or continue meds My oxygen levels are vry low nd I was admitted for tht , but now fine I was having breathlessness... Fever malaria K/ co of asd c pulmonary hyper tension
My aunt died of PMF and she refused her transplant because she knew she had a problem with her organs being reversed. It traumatized me for years until i saw this video. I was a smoker for 10 years and quit. But i am 26 now and knowing a Lung transplant can save my life if need be gave me hope but i still will stay off smoking! Cancer is scary to me, but PMF... that was my worst fear until now! Thank you!
I Def needed this Craig I myself is on 4 lpm of oxygen 24 /7 and I'm currently listed for transplant and I was scared but I know I can't keep living like this forever.
It's good that in your country the opportunity is offered to you, in Romania I don't care about you, you can see on yutube cases of how they died waiting for the Romanian state
My name is Denise Perkins and I have plumnary fibrosis from sacordoiois and I have to get a double lung transplant am in stage 4 now looking at the different stories is giving me motivation I was 297 pounds from predizone now am on ozempic and eating right and I have lost 50 pounds am tryuig I gotta get to 200 pounds to have the transplant and by the grace of God I’ll get there thank you for sharing my story
Hi Craig! What was your disease and the doctor performing the transplant? Good to see the recovery! I have PPFE thinking about transplant. You can email me too if easier. Thank you!
I was born with one lung and a half, and a couple holes in my heart. A month ago my smaller lung collapsed and never came back so it was removed. I have severe asthma since I was a baby. Two years ago I was diagnosed with severe eosinophilic asthma. My one lung is not doing good. I've been in the hospital now for a month cause I had surgury in my heart and lung. I'm on oxygen, and feeding tube. I'm on the list for new lungs but I'm still discourage with the information about it.
Was this a single lung transplant or a double (or bilateral) lung transplant? So glad you are better now, and can breathe again...enjoy life...Congratulations! I am also getting listed in about one week, finished all of my evaluation, now they are having meetings with the transplant med staff.
Forgot to add...the surgeon suggested that I would be a great candidate for a single lung, but at first, I wanted a double, but this is why I am asking you if your's was a single or not. If yours was a single, what kind of activities or how much activities can you do?
Hello how long does it take to get on the list I would like to talk to you further more about this what is the cost on average waiting for your response thank you bye
Craig, How many medications do you have to take a day? I just got turned down for lung transplant. The team said I would need to take 55 medications a day.
I take 27 doses a day. Some are the same meds 2x but its 27 pills, 4 nasal sprays a day and 1 shot for sugar control because of the steroids. Was 70 when I got a left lung and a heart bypass at the same time. Was diagnosed 8 years before with IPF and told I had 3 to 5 yrs. Because of my age I had to go through some extensive testing to prove that i was strong enough and and well enough to be sick. Once I made the wait list it only took 2 weeks to get the magic call. After surgery I was acute ICU for 2 weeks before they could get me off the pipe. Im 8 months out and finally feeling pretty good and getting stronger. What screwed up my rehab was Covid. I was never so sick In my life. I would go through the transplant surgery again before I would want Covid again At 4 months Covid set be back to the beginning plus the added feeling of being sick. Dr said I had gotten it before the surgery it would have without a doubt killed me. The old lungs were down to about 20% or less. One new lung not on 02 since covid on room air im at 97-98%
No, you need two. I'm dying from fibrosis among other things. I'm just now thinking about transplant. I'm 38 and male. Your dad must be able to survive it or he's not eligible. His health must be good other then the lungs. Sometimes I think death may be the best choice, if not for my three young sons. I'm down to 119lbs.
Jason Taylor,,, It's easy to take for granted ones good fortune in health. Although my father is very challenged by his health issues. he's not as bad as you are. I am so very sad that you are having to endure these health issues. But, I do know that anything is possible through faith and the power of God. Never give up buddy.
I WANT TO SEE THE ACTUAL OPERATION,I'VE SEEN THEM BEFORE IN YOU TUBE,NOW I DON'T SEE THE ACTUAL REMOVAL AND INSTALLATION OF THE REPLACEMENT LUNGS,THATS WHAT EVERYBODY WANT TO SEE.
Long term survival rates for lung transplant patients is not that great. It's like 43% survival rate at five years and goes down from there. I just watched half of another video for those rates. The problem is the body's immune system attacking the new organs that are transplanted.
Whoever is reading this. Please register for organ donation. After your death your body is of no use for yourself but it can bring home someone dad, mom or child. It can really change life of many people by helping one.
While you enjoy a new lease on life it would be nice to remember the departed soul you owe your life to......but not a word. That's how ungrateful people can be . I'm so sad for that unfortunate man who probably met an accident and left the world.😭😭😭😭👎👎👎
Craig...this story really hits close to home. My father was diagnosed with pulmonary fibrosis around 2010, he was retired and exercised daily and was actually very healthy as far as I could see, but that disease took a quick left. In the matter of months he was on 02 24/7 and still could not breathe. He went to a very distinguished hospital and after a weeks worth of tests they said NO, we feel like if we operate you will not make it. My Dad was given a phone number to another surgeon in a different state. Dad made the call and they met. Dad did not leave the hospital until he had 2 new lungs, this happened a few months after he was at this hospital. They put him first on the list and within a month from that time, his lungs arrived. The operation went well and his recovery went really well. He has had a couple of rejection scares but beyond that he is doing great. In October 2020 he will be 6 years post op and doing great. THANK YOU for sharing your story. May you live a very long and healthy life.
James what was his age at the time of surgery?
I think in 50s
Is he still alive
Craig is now celebrating 10 years without the need for an oxygen tank and still playing with his band.
HOW SO???? video was made in 2013 ?
@M JA DON’T call people names please
I am glad that some people made it this long....my little syster didn't make it.
The lung transplant it is not for everyone....😪😪😪
Hello, Please how is Craid doing at this point? My mother is being evaluated for double lungs transplant.
@@cgotca Sorry to hear about your sister. If it is okay with you, can you please provide more information on what happened, it would help us know the cons of lung transplant
Glad to see you doing well. I'm a 2013 heart transplant recipient myself. What a gift!
Hi how are you? Can you please share a little bit of your story with me? My dad might need a lung transplant. Please help me understand more about the process.
@@josselyntobar4789 actually I have an entire CZcams channel devoted to transplant education and motivation. You can find me by searching for The Transplant Helper or taping on my picture on a mobile device will take you there. Once there I’d recommend the “Getting Started” playlist.
@@TransplantHelperGlad to hear you are still going. My left lung is stiff. Just found about it few weeks or months ago.
Due to the condition I have I well never be able to have a transplant. I was born with one lung and two holes in my heart and had complete air way reconstruction. I am very limited in my activity but successfully living for 14 years
Oh, prayers and best wishes to you dear heart. Pray for me too. God bless you always.
😇🙏💙
I know what you mean..I was born with one lung and a half, and a couple holes in my heart. A month ago my smaller lung collapsed and never came back so it was removed. I have severe asthma since I was a baby. Two years ago I was diagnosed with severe eosinophilic asthma. My one lung is not doing good. I've been in the hospital now for a month cause I had surgury in my heart and lung. I'm on oxygen, and feeding tube. I'm on the list for new lungs but I'm still discourage with the information about it.
Wow. My prayers are with you. Have you considered heart and lung transplant?
@@fitjef since I was born that way my body has adjusted to the way it is, so a transplant would do more harm then good
Craig, I am so happy the transplant worked for you.
Hi. My father has IPF. We are considering lung transplant. It was so inspirational to see you. I hope you’re doing well.
How's your father and how much are they charging
A 8th grade classmate we have in common told me to check you out here. Amazing story and you look mahvelous. Continued health to you, Craig.
Wishing you continued health.
So happy for you Craig! !! You look great!
are you ok? are you dead? will you reply to me even after 8 years???
This a great story !
😭😭😭😭😭😭😭😢 this is beautiful my mom going thru the same thing from years of smoking 🚬 I love her so much I want this same story 4 her …congratulations craig stay blessed 😇
Thanks for sharing. I am a 50 year old with chronic lung disease also on constant oxygen. I am also a musician. I am a bass player... at least I was before I got so sick. Your video gave me the hope I was looking for.
Don’t ever give up! There can always be hope 💓
@@jwfriedman1 la bolile astea miere nu exista cel puțin la mine an Romania
@@jwfriedman1 even my heart lung transplant workup is going on hope so get the best match donor soon ...but scared whether to do or not or continue meds
My oxygen levels are vry low nd I was admitted for tht , but now fine I was having breathlessness... Fever malaria
K/ co of asd c pulmonary hyper tension
My aunt died of PMF and she refused her transplant because she knew she had a problem with her organs being reversed. It traumatized me for years until i saw this video. I was a smoker for 10 years and quit. But i am 26 now and knowing a Lung transplant can save my life if need be gave me hope but i still will stay off smoking! Cancer is scary to me, but PMF... that was my worst fear until now! Thank you!
I got a double lung Transplant . I was skin and bone. Congrats !
How r u now sir
I am waiting for mine now and I had lost like 45-50 pounds
@@greesable8588 am also waiting for heart lung transplant hope so get the rrbest
I Def needed this Craig I myself is on 4 lpm of oxygen 24 /7 and I'm currently listed for transplant and I was scared but I know I can't keep living like this forever.
Hi Davon. How are you?
You there?
It's good that in your country the opportunity is offered to you, in Romania I don't care about you, you can see on yutube cases of how they died waiting for the Romanian state
God Bless You!
I wonder if he's still alive. WOuld be nice to get an update. I wish him well!
Thank you for sharing; we are about to go through this process with my boyfriend.
My name is Denise Perkins and I have plumnary fibrosis from sacordoiois and I have to get a double lung transplant am in stage 4 now looking at the different stories is giving me motivation I was 297 pounds from predizone now am on ozempic and eating right and I have lost 50 pounds am tryuig I gotta get to 200 pounds to have the transplant and by the grace of God I’ll get there thank you for sharing my story
Hi Craig! What was your disease and the doctor performing the transplant? Good to see the recovery! I have PPFE thinking about transplant. You can email me too if easier. Thank you!
I was born with one lung and a half, and a couple holes in my heart. A month ago my smaller lung collapsed and never came back so it was removed. I have severe asthma since I was a baby. Two years ago I was diagnosed with severe eosinophilic asthma. My one lung is not doing good. I've been in the hospital now for a month cause I had surgury in my heart and lung. I'm on oxygen, and feeding tube. I'm on the list for new lungs but I'm still discourage with the information about it.
How are you now Michael?
inspiring
How is he doing now? Can anybody tell me?
Disease of what kind to your lungs?
Moral of the story is to go to the bathroom and hope you don’t need oxygen when you come back
Updates on the transplant? How long its been?
I’m on six I got plumonary fibrosis one lung is collapsed & the other has pushed my heart over & Emory hospital says that can’t help me
Was this a single lung transplant or a double (or bilateral) lung transplant? So glad you are better now, and can breathe again...enjoy life...Congratulations! I am also getting listed in about one week, finished all of my evaluation, now they are having meetings with the transplant med staff.
Forgot to add...the surgeon suggested that I would be a great candidate for a single lung, but at first, I wanted a double, but this is why I am asking you if your's was a single or not. If yours was a single, what kind of activities or how much activities can you do?
Hello how long does it take to get on the list I would like to talk to you further more about this what is the cost on average waiting for your response thank you bye
@@vertism.wilder4213 even same here am going through
What a story. 😁
It was funny when he said I m back ! But happy for him
How old were you when you had the transplant?
My mom will need a transplant in the very near future. How is Craig Doing now?
CJ Girard I had a double lung/heart transplant 5 years ago and am doing fine...
How’s your mom doing?
@@kathytanksley9425wow. Do you have any problems with the medications? I might need a transplant for lung soon.
Wife is going to go through a surgery soon.
How is yu doing today?
is this man still alive and now what is the condition .and any difficulty ?
Good question
Craig, How many medications do you have to take a day? I just got turned down for lung transplant. The team said I would need to take 55 medications a day.
@Sree Krishnan No, every amount of meds depends on the patient
I take 27 doses a day. Some are the same meds 2x but its 27 pills, 4 nasal sprays a day and 1 shot for sugar control because of the steroids. Was 70 when I got a left lung and a heart bypass at the same time. Was diagnosed 8 years before with IPF and told I had 3 to 5 yrs. Because of my age I had to go through some extensive testing to prove that i was strong enough and and well enough to be sick. Once I made the wait list it only took 2 weeks to get the magic call. After surgery I was acute ICU for 2 weeks before they could get me off the pipe. Im 8 months out and finally feeling pretty good and getting stronger. What screwed up my rehab was Covid. I was never so sick In my life. I would go through the transplant surgery again before I would want Covid again
At 4 months Covid set be back to the beginning plus the added feeling of being sick. Dr said I had gotten it before the surgery it would have without a doubt killed me. The old lungs were down to about 20% or less. One new lung not on 02 since covid on room air im at 97-98%
@@HeavyHaul51
Thanks for sharing. Hope you are well!
Salubrita et longa vita pro tibi :)
Please tell me how to help my dad. He has empysema and copd and he is bad. can i being his son give him my lung?
No, you need two. I'm dying from fibrosis among other things. I'm just now thinking about transplant. I'm 38 and male. Your dad must be able to survive it or he's not eligible. His health must be good other then the lungs. Sometimes I think death may be the best choice, if not for my three young sons. I'm down to 119lbs.
Jason Taylor,,, It's easy to take for granted ones good fortune in health. Although my father is very challenged by his health issues. he's not as bad as you are. I am so very sad that you are having to endure these health issues. But, I do know that anything is possible through faith and the power of God. Never give up buddy.
@@NAFOARMY how are you now jason??
@@loveme6670 i hope hes ok
I WANT TO SEE THE ACTUAL OPERATION,I'VE SEEN THEM BEFORE IN YOU TUBE,NOW I DON'T SEE THE ACTUAL REMOVAL AND INSTALLATION OF THE REPLACEMENT LUNGS,THATS WHAT EVERYBODY WANT TO SEE.
I finally quited smoking I have a chance
Hope you doing well....
Long term survival rates for lung transplant patients is not that great. It's like 43% survival rate at five years and goes down from there. I just watched half of another video for those rates. The problem is the body's immune system attacking the new organs that are transplanted.
@@jaxflfreebird it’s actually 60%
@@duskthunder9274 Well let's hope it continues to go up. Lung disease is pretty scary and it's a great reason not to smoke.
Whoever is reading this. Please register for organ donation. After your death your body is of no use for yourself but it can bring home someone dad, mom or child. It can really change life of many people by helping one.
Plz donate organ but rejection list should nt be tr I hope so same workup am going through
While you enjoy a new lease on life it would be nice to remember the departed soul you owe your life to......but not a word. That's how ungrateful people can be . I'm so sad for that unfortunate man who probably met an accident and left the world.😭😭😭😭👎👎👎
IKR? I was gonna say that. He didn't even say a single word to thank the soul that gave him a life, he is very ungrateful.
@@minejohn1 because a lot of times they don’t know them..
@@minejohn1we dont know that. Those are personal things. People often write even to the donors family. It is really God who gives or takes lives.
You lost me with " especially as a man"