MINISODA MINNESOTA | RETT SYNDROME + RARE + RV
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- čas přidán 27. 05. 2021
- Minnesota taught us many things. Grayden learned how to ride a bike with training wheels which was too scary in our old neighborhood. Maggie learned how to row a boat. Jenny and I learned how much we like to frolic.
Schedule a screening of our award winning documentary about Rett Syndrome at magnoliashopedoc.com
Read our story from the beginning at www.magnoliashope.com
Donate at rettgive.org/campaigns/magnol...
Produced by Jenny and AJ Tesler
Directed/Edited by AJ Tesler
About Rett Syndrome:
A debilitating neurological/movement disorder that primarily affects females.
Leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands.
As prevalent as ALS, Cystic Fibrosis and Huntington's Disease.
Another baby girl born afflicted every 90 minutes.
Potentially REVERSIBLE! Research shows once genetics are normalized, symptoms subside.
Maggie has such a kind smile, you can tell she has a heart of gold. I wish you and your whole family the best, hope you all have a very happy holidays!!
You guys are awesome 😎
Hello, how are you? May God bless you and keep you and your family 🙏🏼
So inspiring, really bringing hope to all families. You mentioned up for a trial like a year ago, any updates?
Nice to see you again guys.
Where are you guys 😥
Hi my daughter just recently diagnose with rett syndrom and i feel very devastated and my heatt is so heavy, pls help me how to hundle this situation😢 she is my only child
I only want to shoot videos for the girl