Thank you for describing Cervical Medullary Syndrome. My son’s neurosurgeon said he has this but didn’t explain anything or what to do about it. He said to find a pediatric neurosurgeon because my son is 14. He also diagnosed him with hEDS, OTCS, and CCI. He also has Dysautonomia and other diagnoses.
PS. After advocating for my youngest son for almost 5 years and seeing multiple doctors and specialists, we have multiple diagnoses… but… my own adult children refuse to look at the medical records or talk to the doctors, and have accused me of making it all up… but not before they accused my youngest son of making it all up. It’s really sickening and heartbreaking when your own family members don’t believe what you are going through or support your efforts to get the necessary treatments. Medical gaslighting is a major problem! Gaslighting in general is a horrible thing to do to someone, especially when their problems are so debilitating.
@@jenniferyork7804 Jennifer I hope you found someone who can help your son. I'm currently going through the samething at the moment. It's so heartbreaking to know this illness/disability is so hard to diagnose.
Thank you Rose. You're very knowable and I love learning from you. I'm in Canada also. I had a pretty bad whiplash injury at the end of 2017 so I now worry about CCI. In 2007 I have a two level fused neck c-6 to c-4 so the head/whiplash injury was hard on my brainstem/hindbrain. Yes, the healthcare is not good. Better than nothing but still not good. And medical gaslighting is so bad in Canada. They gaslight and deny the disabled, the injuried workers and now the vAx injuried. So sick and corrupt here.
Thank you so much for sharing your experience. I am so lucky and glad i found your videos. For the last 3 months i've been experiencing dizziness/major brain fog/neck stiffness. I've had 3 major traumatic neck injuries and funny enough 2 months before my symptoms had began was when my 3rd neck injury happened. All neck injuries happened on the same side(left). I have crappy insurance and have told my Primary care doctor that i know it's my neck but all the ctscans have shown are moderate degeneration of 2 discs. I've been put on ambien to help sleep otherwise my brain keeps waking me up every 45 minutes after nodding off. May i ask how high your heart rate got when standing before the beta-blockers? Also do you experience brain fog as well? I can feel stiffness not only where the neck meets the skull but also right above the base of the skull which is very concering. My whole life is now revolved around my condition it sucks so much. Anyway thanks for reading this hope you are doing better friend.
I Did Try To Post A Comment Underneath Of Your Very First Video By Saying I Have Been In That 'Situation' Many Times In The Past To Do With Being 'Bullied' And 'Tormented'. 😔. And I Just Subscribed To You. 😃👍.
Thank you for describing Cervical Medullary Syndrome. My son’s neurosurgeon said he has this but didn’t explain anything or what to do about it. He said to find a pediatric neurosurgeon because my son is 14. He also diagnosed him with hEDS, OTCS, and CCI. He also has Dysautonomia and other diagnoses.
PS. After advocating for my youngest son for almost 5 years and seeing multiple doctors and specialists, we have multiple diagnoses… but… my own adult children refuse to look at the medical records or talk to the doctors, and have accused me of making it all up… but not before they accused my youngest son of making it all up. It’s really sickening and heartbreaking when your own family members don’t believe what you are going through or support your efforts to get the necessary treatments. Medical gaslighting is a major problem! Gaslighting in general is a horrible thing to do to someone, especially when their problems are so debilitating.
@@jenniferyork7804 Jennifer I hope you found someone who can help your son. I'm currently going through the samething at the moment. It's so heartbreaking to know this illness/disability is so hard to diagnose.
Thank you Rose. You're very knowable and I love learning from you. I'm in Canada also. I had a pretty bad whiplash injury at the end of 2017 so I now worry about CCI. In 2007 I have a two level fused neck c-6 to c-4 so the head/whiplash injury was hard on my brainstem/hindbrain. Yes, the healthcare is not good. Better than nothing but still not good. And medical gaslighting is so bad in Canada. They gaslight and deny the disabled, the injuried workers and now the vAx injuried. So sick and corrupt here.
Thank you so much for sharing your experience. I am so lucky and glad i found your videos. For the last 3 months i've been experiencing dizziness/major brain fog/neck stiffness. I've had 3 major traumatic neck injuries and funny enough 2 months before my symptoms had began was when my 3rd neck injury happened. All neck injuries happened on the same side(left). I have crappy insurance and have told my Primary care doctor that i know it's my neck but all the ctscans have shown are moderate degeneration of 2 discs. I've been put on ambien to help sleep otherwise my brain keeps waking me up every 45 minutes after nodding off. May i ask how high your heart rate got when standing before the beta-blockers? Also do you experience brain fog as well? I can feel stiffness not only where the neck meets the skull but also right above the base of the skull which is very concering. My whole life is now revolved around my condition it sucks so much. Anyway thanks for reading this hope you are doing better friend.
Hugs! ❤️🙏
I Did Try To Post A Comment Underneath Of Your Very First Video By Saying I Have Been In That 'Situation' Many Times In The Past To Do With Being 'Bullied' And 'Tormented'. 😔.
And I Just Subscribed To You. 😃👍.