What is wrong with Shane’s voice? / Squirmy and Grubs
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- čas přidán 23. 07. 2024
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Shane Burcaw (he/him) is the author of several award-winning books about disability. He is the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
Hannah Burcaw (she/her) graduated from Carleton College, where she studied Sociology and Anthropology. She films and edits the “Squirmy and Grubs” vlog, which has over 800,000 subscribers on CZcams. Hannah has spoken at prestigious universities and Fortune 500 companies alike about the realities of ableism. On her popular Instagram account, she advocates for acceptance of all people and works to improve the way society thinks about disability.
Shane and Hannah have been together for over four years. They got married in September of 2020 in the midst of a global pandemic in their backyard, with their officiant conducting the ceremony via Zoom. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
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Hannah is like the type of a woman that every woman should look up to! 🥰
💗💗💗you guys
@@AngelKhalidah yes she is💗
@@AngelKhalidah love her sense of humor
Thank you for your vlogs . I mostly have a stupid smile on my face due to the feel good factor of the content presentation .
Geez, I thought Shane actually sounded clearer over the past year or so. The video title had me concerned his muscles had weakened. Glad to hear everthing is good!
Scared me too
It might have to do with getting used to his speech as well.
@@Nairozet yeah that’s it for me
I never think about my tongue until I’m at the dentist and then it’s ALL I CAN THINK ABOUT AND I CANT CONTROL ITS POWER
Lol. True
Me too!
True! I’m a linguist and learning to do speech therapy so I think about tongues a little bit more than the normal person but not much of my own
This made me laugh out loud
Same🤣😂🤣😂
Interrupting is a sign of love. I've been trying to tell my husband this for 22 years. I'm not trying to interrupt him out of rudeness but I'm engaging in the conversation and I'm excited to chat and be near him. He just gets mad. sigh. You two are the absolute best!
Yes, there is a difference between partners interrupting each other to add to each other's sentences, and rude people who interrupt during an argument or - what happens to me often - when you're talking to person A, and think they are listening, and then person B comes, and they start talking to each other, right in the middle of my sentence. That makes me feel like person A wasn't interested at all in what I was saying.
But when partners do it to finish each other's sentences or add to them, that's different, because it shows they are interested.
Awwww so true! And my boyfriend gets so mad about that too 🤣
@@ElaMongrella I've also recently been diagnosed with ADHD-PI. It seems it's something that's been misdiagnosed for 40 years and while I have tried to control it, I do sometimes inadvertently butt into conversations. Instead of helping me find an answer for why I do it, I get berated and yelled at about how rude I am. Sometimes it's not intentional. Sometimes it's because a person has something in their brain that, important or not, the mind feels like it has to push out of the mouth before we forget. So we either 1)are rude butting in or 2)when we wait and try to remember what it was we wanted to contribute we look like we didn't care about the conversation enough to follow it. We are damned if we do and damned if we don't. I'm sorry if people have butted into your conversations, truly I am, I'm just offering an alternate potential scenario.
@@ElaMongrella Person A was not invested in you or your side of what was supposed to be a conversation. I have had the same happen to me many times and when it would happen, since A and the third party were so engaged in their convo, I would just walk away ..... just turn and walk away. When A would confront me later for being "rude" by leaving and insist on knowing why I did so, I would simply tell them to think about the situation ...... and then walk away again. Sadly, most times A would never figure it out, much to their misfortune in not learning the negative effect their behavior had on such a situation. But, I figured, I had raised one child to adulthood and it was not my responsibility to retrain a grown ass adult in acceptable social behavior.
@@SpamMom I got a late autism diagnosis, and yes, sometimes I feel like I need to interrupt, when I have something to say, pertaining to a topic, because I have a hard time picking up on cues, when it's my turn to talk, and if I sit and wait, suddenly the topic has changed 3 times, and when I can finally talk, I have to say "going back 3 topics," and everyone looks at me funny.
I love the way y'all complement each other. I love the way Hannah picks up on Shane's body language and takes over to help him.
I have been a subscriber to you for quite a long time now, but I’m just now getting the courage to comment. Thank you so very much for pointing out the frustrations with someone asking what’s wrong with whatever it is. I am a totally blind person that uses an iPhone with a feature called voiceover. I get it all the time also when people ask what’s wrong with my eyes, I’ve even had someone ask me what’s wrong with my face. It really makes me feel awful, and it makes me feel even more of an outcast than I already do. Thank you so very much for this video.
Congratulations to your first comment! You made it and should be proud of yourself! Keep going as you are beautiful and uniquely created! GOD bless dear! 🙏❤️🇺🇸💎😊
Thank you for commenting and sharing this! I'm very sorry that this happened to you. I recently saw a quote that I saved by a therapist which said: " I'm surprised you feel comfortable asking people that." the next time someone asks something invasive, none of their business or insensitive. All the best to you from England 🇬🇧
I have Rosacea and work in a school. I also have vitaligro Micheal Jackson syndrome kids don't miss anything. Red face ,white arms. I'm a real treat. Some say what's wrong with your face. Why is it like that? I tell them I was born the way I am. There's nothing wrong. Just like you were born the way you were born the way you are. We are all different!
"so tell me, what's wrong with your rudeness?"
(is that a real word? English is not my native language, sorry!)
It all goes back to that saying "it's not what you say it's how you say it" and the Golden Rule "do unto others as you would want them to do unto you" we need to teach our children and grandchildren to be kind and considerate and not just assume something's wrong but to ask in a nice kind way truly not that hard to be kind
I think Shane does a fine job speaking! He has a fantastic partner with whom he communicates quite well! Thanks for explaining!
Yeah, I’ve heard a lot worse in the disability community. Some, you can hardly understand, and I don’t know why they didn’t have one of those devices that speak for them.
I agree. He does really well.
@@cleosworld9096 cxx x cc c c
@@dominiclowrey6567 are u ok?
She's his caretaker and they make videos for money, stop believing a fairy tale
Even as a speech-language pathologist, I’m still amazed at how many muscles are involved in speech. So sorry to hear that people have left rude comments. Really love your videos! 🙂
ME TOO!!! It’s fascinating 🤩 Shane has great intelligibility 👌🏼
@@hayleycole5119 You don't, making words up.
@@hayleycole5119 You don't, making words up.
@@lizb4156 here ya go, did the research for you…
in·tel·li·gi·bil·i·ty
noun
1 the state or quality of being intelligible. "being able to see a speaker can improve intelligibility"
From the Oxford dictionary.
@@hayleycole5119 What a moron! You didn't understand what I was on about. I said she didn't have intelligibility at the beginning of my sentence.
I’m a speech therapist who has a lot of experience with motor speech disorders. I have DEFINITELY noticed a difference over the past year! I mean-I have some base knowledge of the WHY you sound different, but your speech has been the biggest way I have noticed strength improvement! I’ve actually shown a clip of yours to some of the kids I work with to show that adults have differences too. Thank you!!
You both do such a great job of helping others understand not only SMA but disabilities in general.
It always makes me sad when you feel you have to explain yourselves to viewers, but you always do it with humor, and I hope you know that most of us just love you guys.
Goes with the territory. If you want people to understand something, you have to give them the information.
Agree
You under no obligation to explain anything to anyone
@@elizabethconroy7665 His whole career is based off of informing people about his disability.
Yes, always done with humor, but also a gentleness, respect, and a desire for people to understand...that in itself should demand respect for such a personal question. Perhaps the anonymity of these platforms allows people to trespass such boundaries.
I'm so glad I found your channel. A close friend's grandbaby was just born with SMA, and I would never have been able to understand what this disease was about without your wonderful channel. You are a hero.
Folks with SMA isn't the world's problem.
Are they able to test for it in utero?
“CRAWL!” “NO!” I legitimately laughed out loud! And the look on Hannah’s face! 😂
Nearly spat out my drink 😃
Lol I love Shane's jokes. "My parents put me on the floor and said CRAWL" haha
Literally hilarious 😂
Shane often makes me almost spit out my coffee LOL He's hilarious :)
Funny 😆
"Whenever we're out in public
I cannot get her to Shut Up!"
🤣🤣🤣 You two are Great!😊
I love the way you know each others strengths and weaknesses and acomadate each other in your union,you are truly a example of true love!
So wonderful you are there to finish each other’s stories! Such a blessing and shows how connected you are to each other. 💞
People can be so ruuuuuude! My vocal chords usually shrivel up if I’m in a social setting, it’s so frustrating. You shouldn’t need to educate people to be considerate human beings but you’re doing a grand job! You two are great ❤️
There’s nothing wrong with Shane’s voice, everybody has different speech patterns and it’s all good.I love you both and you handle obnoxious comments great.
I know it's not the same, but i have an issue with R and W. Some times I'll say Wabbit, etc.
@@jessiehass82 My daughter, Anna, used to do that with words, that began with t. She would make a dee sound. For example, she would say " diss, and dat", instead, of "this and that". It was so cute.
I came to say there isn't anything wrong with Shane's voice. Hell it's like someone asking Hannah what's wrong with her hair because it is blonde lol.
Everyone is different. It would be a bloody boring world if we were all the same.
I think most people realise it is because of SMA. But at the end of the day it is rude to ask. Respect people's differences.
The gaggy saliva sound is hard to hear.
If it's a trial about the focus and lighting, and you are sharing, I will assume you are okay with hearing how viewers think it is working. It's a bit fuzzy compared to previously. Also, I noticed, the focus changes in and out .
Video topic aside, I just wanted to say how moved I am by the connection and the obvious kinship you both have with each other. Your bond is so beautiful, strong and sincere
What's sweet is she looks at Shane with such love, in her eyes. Love this.
To be honest, I have never noticed anything abnormal about the way Shane speaks because I'm too busy laughing at the things he says... dude is hilarious 🤣
True dat! LoL 😆😆😆
EXACTLY!!
Yep. He always cracked me up, so I was surprised to see the title that there was 'something wrong' with the way he speaks.
It is traitorous though not to realise there might be something wrong with his voice, because he is hilarious. Thank you for talking about this.
@@nonondriessen ...
Traitorous ? ? ?
Sure, Shane has his limitations, as do we all, some are just more obvious than others, but refraining from focusing on those differences is by no means "traitorous", it is merely an appreciation for the uniqueness and talents that every individual brings to the table...
Shane's physical limitations are between him and his doctor, and in no way reflect upon his value as an individual... focusing on the differences of others is more a reflection of the observers character than that of the one being observed...
I read out loud for two hours straight one day last week and my jaw was so tired afterwards. Like Shane said, I haven't considered how important the tongue as a muscle is for talking, etc. Again, I appreciate your teaching about disability. I've learned so much from you both.
I get the exact same thing from having cerebral palsy so you’re definitely not alone in dealing with it Shane! Good for you for explaining it so well and good job Hannah too!
Thank you for giving us more insight into how SMA can affect ones voice. Much appreciated.
Hannah how do you survive all the laughter. I really appreciate Shane's sense of humor. You have worked so hard Shane congratulations on all your hard work on your speech.
Hannah is so proud of herself for figuring out the camera, this is delightful ^^
Yeah it's all about her lol !!! Always has been lol!!!!
The puppet next to her is the pet.
You guys are great! I'm usually smiling and chuckling throughout your vids. I love Hannah's comment that, "interrupting is a sign of love"! Virtual hugs to both of you!
I really enjoy watching the interchange between the two of you. What a fun, loving relationship you have!
When you've learned a foreign language just enough to be able to talk for a while, that's when you can really experience the tiredness in your tongue and cheeks, since the sounds in different languages require different movement for the muscles to be able to produce them. And you're not experienced enough yet to have found the most optimal way to pronounce the words.
Huh. I didn't know this was even a thing people were asking. I always appreciate learning more about SMA and how it effects your day-to-day, but it's a shame that the question about your voice has been asked so rudely in the past. I love that you handle it all with humor and grace.
Emily. Frankly, I don’t consider it being rude. I consider it people loving and caring about this man, and humanly curious about his good points as well as bad points. People are so scared to death of just being normal and asking questions, that it is just sickening to listen to them. If Sean is THAT sensitive, let him just SAY to stop all questions.
@@carolcole570 They're taking offense to calling his voice wrong.
@@carolcole570 I think it's the way people are asking. You can tell if someone is genuinely interested/concerned or if someone is being downright rude. The rude people don't actually care what the reason is behind their question they are just being snarky. Some people thrive off of the negative vibes they give others.
@@carolcole570 BTW Shane's disease is not a "bad point". It was just the cards he was dealt in life.
@@carolcole570 It's not inappropriate to ask questions, but when you imply that there's something "wrong" with Shane or implying that he needs to be "fixed"? That's completely unnecessary. You can ask questions without implying that he's broken.
I have never thought Shane's speach was different. Everyone has a different sounding voice.
I just absolutely adore the two of you! I could just listen to you two all day long! The way Hannah looks at Shane and he at her.....and how they interact. That is what everyone should strive for. Truly amazing to see two people so in love and sharing their story. That's what it's all about. Love. God bless both of you!! I love your videos so much!! Inspiring to say the very least. :)
People can be cruel.
They think their opinions are “needed”🤦🏻♀️
Hang in there y’all
And that they "are entitled" to it. Yes you can have your own opinions but you don't have to be an butthole.
I discovered this channel like 5 days ago and I laughed so much with you and learn so much. KEEP THAT GOOD VIBES UP GUYS
Audio and lighting has always been good but now it is amazing!!!!! Nice job, guys!! 😍😍😍
Love your humor and how you share your story while educating people too, all the best!
When Shane said "what is wrong with your hair ?" It made me laugh. You have a great tone voice. So happy to learn more about how your condition affects voice. What beautiful singing. You can be an opera singer.
Same!! I LOL’d!!😂
Same! I cackled!
I am grateful for the explanation and the kind, gentle way you always tell your audience things about your disease and relationship. Anyone who says ridiculous things about your videos and relationship are jealous, plain and simple. I guess I don't scroll through the comments enough to see those awful things said. I see a ton of supportive, loving people here. You deserve those folks, not the others. Ignore them, don't feed into their negativity.
I LOVE how that blue cabinet with the green plant looks in that clip where Shane talks about wine. That’s a beautiful cabinet 💜
My brother got to the point he couldn't swallow, his muscles were so weak. He decided against a feeding tube, and passed away about a month later. It was a TERRIBLE death. He was 19, had the heart of a 70 yr old. I've lost many relatives to Muscular Dystrophy. It is an evil disease! I'm a carrier:/
Was you told 50/50 chance? I never got any test done, but I have two healthy boys. Age 32 and 22.
@@donnahocutt395 I was so young. I was only told by my mom, that any boy I had would have it. I remember all the testing, the NEEDLES!! But, I didn't fully understand it all. I know as an adult, and after seeing all the ones in our family with it, that I don't believe that to be true now. My sister was adopted out at 3 weeks old to extended family. My parents didn't know at that time, that my brothers were going to have it, nor that she was a carrier. She had 5 children, three of them were boys (all approx. one year apart). The two oldest had it, the youngest did not. I had two aunts that had the same mom, as my mom, but different father. One had a son with it, the other had 3 boys - none had it. Another aunt (both same parents as mom), she had 3 boys. One had it, the other 2 did not.
I haven’t been able to watch your videos for a while and woah! The audio sounds so much better now! I love it. 😍☺️
Shane, I think you handle everything you have been dealt in life so wonderfully. Now that you have Hannah to help you things are even better! I cannot understand why people are so critical of you and Hannah. You are fortunate to have found one another! Who can tell someone who to fall in love with! People who are critical of Hannah and your marriage are unhappy and want everyone else to be unhappy too. You two make me smile with joy. God bless you both! Love, Sandi from Texas
When i saw this title my first thought was “oh no! What has happened to Shane’s voice”
It just didn’t occur to me that there’s anything “wrong” with Shane’s natural voice. Love you guys!!!
🙄
Thanks guys!! You both just continue to educate and share you’re beautiful souls with us!
Very informative and you explained it well, even adding some humor, sorry that people were not very kind about their questions. Keep up the great videos your family seem to be very nice people, and I think you two like food as much as I do:)
You so gracefully explain all the ways in which people are rude as hell- I truly commend you! And anyone who actually watches your videos would probably understand why Shane’s voice works the way it does-
That is excellent that the SMA treatments work so well! Never knew this about your speech! So happy for you both!
you guys are too wholesome and adorable this video brightened my day i was smiling the whole time
I wish I could have Hannah's chill attitude about interrupting each other, but OMG that's like my biggest peeve! You two are great 💜
I love your story! You always bring joy into my heart. Have a great weekend!!
I really appreciate your willingness to share your story & be vulnerable.
I couldn't really follow any of what was being said because I was so distracted by how amazing the lighting was! Whoever set the camera does amazing work! 👍
I love your voice Shane, especially when you sing. Beautiful voice, beautiful person. Love you guys
Thanks you so much for posting this. Your approach to life is a inspiration for me and countless others!
I think you two are brave to do all you do. You’re an inspiration for all physically challenged. Thank you for your willingness to share and your honesty.
Shane, you are freakin hilarious! I absolutely love you! Your humor, your warmth and just everything about you.
Love you two, you are able to call out rude behavior in such a gentle and Informative way, love it.
I feel like you barely scratched the surface with this one. Thank you for all you do and the awareness you raise. Ive heard stories of my great grandma getting a lot of flack for her froggy voice. I get it too; inherited along with "EDS." Talking is one thing... Eating and laughing suck so much more engery from my voice; two great joys in life. How grateful we are for those that keep the mitigation and treatment options alive.
Just met you guys 2nite.
I❤ YOU! Thx for educating & entertaining us so freely & genuinely.
as a speech therapist I’m so thankful y’all made a video about this 😌
As a person with the physical disability, I have Cerebral Palsy, the first time I watch this video I was apalled at the idea that you even had to bring the subject up. In my mind there is nothing wrong with your voice. Even if there is, the name of your disability explains it all. But I guess there’s just some people that don’t get it. Enjoy your content and love you!
You all make me feel more comfortable with how I communicate with people. Watching your life helps me accommodate others. I appreciate it.
As a speech therapist in training I found this super interesting and fun to watch!
So much is unknown about these things, so I am glad you shared your story :)
The funny thing is I never actually even notice or pay attention to Shane's voice. I just pay attention to what he's saying. 🤷🏽♀️
Me too. I can’t Imagine even asking about anyone’s voice ect.
I haven't either
Same here! Nothing wrong with his voice
Love his sense humour 💝
Same!
i'm a speech therapist and am about to do an assessment on a child with SMA. so this was perfect timing!
That said, i never really had any concerns about his voice and could understand him just fine. even during the experiment.
I have noticed your voice becoming stronger. I haven’t noticed the interruptions. I noticed entertaining banter. I love the back and forth. It’s better than one person talking for too long. It keeps it light. My favourite part is where you break into song, “it’s perfect…”
I love how you use your channel to educate everyone about individuals with disabilities ! I am a speech therapist and your humor is priceless !
Y’all are perfect!!!
Love you guys
I understand everything Shane always says. And he’s amazingly fun and funny. And Hannah is beautiful in every way she’s the light that always shines bright. My favorite channel.
Thankyou for your loving kindness, Shane and Hanna. You are so blessed with such a deep and beautiful love. I think sadly too many people just do not understand the depth of such a love!❤️🙏🏻
I'm addicted to watching you guys. You make me laugh so hard. You both seem so happy. Love it!
So yes your interruption is a sign of love to help carry his voice!! 💕💕
The two of you are amazing but you are lovely Hannah! Never notice Shane putting you down. Never! Your man is just extremely witty! Our worlds are far apart but for Hannah and Shane, I only see love, warmth and happiness in your eyes and your every day living. Thanks for always sharing!
Shane your humor and overall attitude about dealing with what challenges you have faced and continue to face are inspiring. We all have our own tests and trials and its people like you who set the bar about how to meet those test! I adore watching you both! Thank you!
Lol you two make me laugh and smile so big, I seriously love both of you. Thanks for always brightening up our day.
I love seeing the love Hannah has for Shane in the way she looks at him.
You're joking, right? She's obviously a very well paid caregiver, nothing else. Their "marriage" is a farce. She has been seen with a very hunky guy, they just hide it well. Can't believe people actually believe these guy's are a couple. It's all for the money.
@@OscarsMama Can you show or provide a source for her being with a hunky guy besides just hearsay? I'm being serious. I'm truly curious if there is any reliable evidence for this being a sham, besides your theorizing.
@@amyball3342 it leaked out on Twitter. But I don't remember whose. But yes, she admitted to being with the guy, of course, said it was just a friend. Then on their next post there was a lot of tension. When asked about it the comments Hannah said the tension was caused by a problem with a mutal friend. That's all I know.
I love both of them !!!!!
@@OscarsMama Very interesting indeed. I'll see what I can dig up. Thanks
Being a fast talker, there are times people have a hard time understanding me--even my wife asks me to repeat myself. Shane, I have NO problem ever understanding you. As for the interruptions, my wife and I are also interrupting each other. It's a married couple thing...lol Love you guys
Ahhh love y’all!!! Thanks for explaining and showing us your life! Shane- you kill me with laughter!!! Too funny. Hannah you look at Shane with such love. ❤️
Such a lovely couple ❤️ love the videos! Congrats on the post lockdown wedding :) you both looked amazing.
Shane, your singing voice is wonderful! You kids are so loveable. Hannah is such a beautiful and fun lady as well. Still love the eyebrow thing, too! 😘😘
I like your voice shane, and I'm sure your beautiful bride to be loves your voice, I also love how incredibly polite you always are, dont let others get you down with there ill thought out questions, you both are amazing
Thank you for explaining this because I was wondering about it too! You are both perfect in my eyes.
You guys are just great together. I always end up with a smile on my face watching the two of you. Lots of love from South Africa
I was seriously focusing then right when Shane said “In the month of May” I busted out laughing. Shane, your sense of humor is just the best!
5:33 - Shane: "...while you tell them about this, I will show off my voice, in the background."
Me: +grinning already, waiting for what I KNOW is coming+
Hannah: +starts talking+
Shane: "AaaaaAAAAAaaaaaaaaaa..."
Hannah: +facepalms+
Shane: "Just keep going."
Hannah: +falls for it, again+
Shane: "AAAAA..."
Shane, you did NOT disappoint. Bravo! 👏🏻 👏🏻 👏🏻 👏🏻 👏🏻 (applause)
I just found you both a few days ago & have been watching in amazement how the two of you are so in Love & work well with each other. I can see the Love you both have for each other.
CRAWL! 🤣 I love you two! Thanks for sharing what causes changes in Shane's speech. It was very educational.
I had trigger point injections in the right side of my neck last year for pain relief and the doctor accidentally paralyzed my right vocal cord. I started coughing within an hour, had shortness of breath, chest pain, hard time talking. Of course it was 2020 C-19;they said but 7 negative tests later and a trip to the ENT doctor who dropped a camera down my throat saw my vocal cord was paralyzed and will not come back. So I too have trouble talking and swallowing, chocking on my own spit. I did try speech therapy but as the doctor said, it didn’t work but I wanted to try. So this video really interests me!! Thank you so much for sharing.
Oh man this is terrifying! Up until about two years ago I had been getting trigger point injections in my neck (usually 9-10 at once) every other month. I didn’t even know that was a possibility!
@@RonHeartsMe yeah me neither. I had them done for years by another neurologist and never had an issue. I went to this lady once and wham! Was out of work from July to October last year and still have affects. I pray you never have this happen to you. I called three lawyers and they won’t take me as a client because there isn’t enough payout.
As a speech pathologist and a fan of your channel, I love your voice ❤️
I was only thinking of you two yesterday wondering when you would do another video. Love you guys. Love watching your love story. Wishing you both fantastic happiness, wonderful health and everlasting love.
You both are a great couple. Love how you hold your vows and are a great support system for eachother. Take care and stay healthy.
Everyone's voice is different and a result of our makeup. I never thought it was any more different than anyone else's. You sound as "normal " as anyone else
Are you serious? What good are doing the man by telling such a blatant lie? He doesn't sound normal at all, which is why he's making a video explaining it.
Tell em Shane!! Y’all got this! 🥰
Never wish to change. You guys have helped keep me going and keep some hope in me for years. Thank you.
I love you guys so much :)
I have had TMJ since a young age. My grandmother laughed at me for saying”I’m not full I’m just tired of chewing”😀
Can relate to that ! Plus half my tongue has become paralysed. Eating and talking are not the same. I think Shane sounds fine.
Both of you are glowing ! 3rd wedding glow?!
LOL Cabernet:) KILLING me, hey you 2, thank you again for all you are sharing and doing
One of my uncles was born with SMA, so Shane's story and all of your videos hold a special place in my heart. I'm not usually one to subscribe to CZcams channels and hit the notification bell, but you guys are an exception. ❤