ENDO GIRL - a short documentary on Endometriosis
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- čas přidán 24. 03. 2021
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A film by Sophia Bender.
Please note - The statistics have changed from 1 in 10 women to 1 in 9 women since the making of this film. www.endometriosisaustralia.or...
Endo Girl is a film aimed at raising awareness of the insidious disease that takes over the lives of one in 9 women worldwide -Endometriosis. Thirteen women share their stories of what it’s like to live with this incurable disease, what an individual’s delayed journey to diagnosis is like, as well as the effect the disease has on their day-to-day lives and their closest relationships.
Brought to life through the medium of dance, the film is shocking, violating and takes the audience on a vulnerable journey, exposing what lies beneath the surface of one in 9 women worldwide.
"We are not living, we are just coping everyday" Such a powerful quote from the Documentary
Yes!!
I say something like this all the time that “I’m not living anymore, just surviving” so that hit me hard
I say this all the time “I’m not living, I’m existing”
Crying watching this. Thank you for spreading awareness and validating those whose lives are so very affected by this condition.
This is so raw. I’m crying.
Misunderstood, judged, mocked, fired, neglected, gaslighted. We don’t need all that, we already have a big burden to carry, opportunities to miss.
Thank you to everyone who participated in this!! I'm crying because I know I AM NOT ALONE! 🙏🏼🎗
ME too
😢 me too❤💛
I am crying angry tears right now. Watching this hurt more than hearing my husband tell our marriage counselor that if he'd known I was "defective" he never would have married me. 37 1/2 years and 18 miscarriages ago, at the age of 24, I had a hysterectomy due to my endometriosis. It was my 2nd surgery and I2th doctor since I had started having my period. It angers me beyond belief that women and girls are STILL suffering and that the medical profession has not even attempted to learn more about this debilitating disease. A few issues having an erection and there are little blue pills all over the place, but life-altering pain and medical issues for women...nothing
I am so sorry you had to go through all of this. It is infuriating going through these experiences. You deserved better from everyone. I know your pain and am sending you love.
Here I'm, 2024 diagnosed with endometriosis, I found the answer to many questions
...I'm not alone ! Thank you! 🎗❤
Me too! Now I finally know I am a fighter! So do u!
I’m in tears😭😭😭I’ve been in pain all my life 😭got diagnosed and now it’s post surgery, I’m in so much pain
Just amazing, as someone with endo and lives in 24/7 chronic pelvic pain, so many tears.
I cried hard through this. It was beautifully delivered. I was diagnosed at 39 years old. I connected to every word in the film. Thank you for making this. Thank you for your courage to share your experiences. So much love! 💛
I know how you feel, I was diagnosed at 34. It's been a nightmare
I cried like a baby watching this bc not only do I suffer from Endometriosis but I have Polycystic ovarian syndrome fibromyalgia and Osteoarthritis thyroid disease ( hashimoto's) chronic fatigue syndrome its just HARDDDDDD
I love this💛💛💛 I was diagnosed at the age of 16, my doctor didn't tell me cause I knew and I asked him "do you think it's Endometriosis?" He looked at me like🤨🤨🤨 and asked "why do you say that?" I said, "because i have a cousin and a cousin-in-law that has Endometriosis and my symptoms are very similar to theirs." He said yes there can be a chance that you have it. He told me about the Laparoscopy surgery and at the age of 17 in 2014 I had my 1st surgery. Then in 2016 I had my 2nd surgery a Laparotomy (drs had to do an emergency surgery because I had 3 medium size chocolate cyst, 1 looked like it was inside of my right ovary, luckily I didn't have to remove my ovaries). In 2017, I had my third surgery a Laparotomy again, endo was removed and also my right appendix. •PLEASE BEAR IN MIND MY HUSBAND AND I HAVE TRIED FOR PREGNANCY FOR 4YRS ON FERTILITY MEDS AND NOTHING.
Then in 2019 at the age of 23, I had a Total Abdominal Hysterectomy and Bilateral Salpingo Oophorectomy and an Explatory Lap later that same night because I was having an internal bleeding.
I'm 25 now with no kids, my husband and I are supporting each other I thank God for him, plus it was his decision for me to remove my womb. I'm on HRT due to the fact that I'm going through full menopause like an 40-50yr old. Doing a hysterectomy isn't a cure for Endo but I'm much better than how I was, everything you ladies said about the symptoms I've experienced them, it's not something nice to go through when others don't understand and they just judge us. Alot of people think that I'm good now, I'm not in pain anymore but they don't know what I'm battling with each day. This plain isn't easy to deal with.
#ENDOLIFE #ENDOSISTERS #SUPPORT #AWARENESS #1IN10 💛💛💛
How are you now , I thought after full hysterectomy you don't feel pain anymore bcoz there is no uterus, no ovaries...
But you said you still feel pain , how ??
Pls tell me
@@pinkysneha1002 I would love to know too because i am considering hysterectomy
As someone who has bled since 13, told i was faking it with how bad my periods were, first surgery and diagnosis in my early 20s, three surgeries now including a hysterectomy after uncontrolled hemorrhage for over 6 months..... pain every single day and can no longer lay comfortably to sleep.. i feel each and every single moment of this film.... i’m not living, i’m existing...
Thank you! I was just Diagnosed at 56yrs of age! I’ve dealth with pain for decades! I have an answer now and I’m not crazy! I have Stage 4 Endometriosis! I can now make sure my daughters are checked for Endo!
I was also diagnosed at age 56, 11 years ago after so many years of being accused of having anorexia, it’s all in my head, attention seeker…I have endo in my intestines and bowel.
Did you go through menopause yet? Did that help?
I got endo symptoms at 12, was diagnosed through surgery at 16 thanks to my parents pushing for help. I'm turning 24 in june, I have a 14 month old boy and I've had excruciating pain daily for what will be half my life in November. It's spread so far, it's deep infiltrated, my uterus was fused to my bowels, even during pregnancy. After birth, I was okay for a month and it came back with a vengance, my first period lasted for 56 days, I am anemic still from that. The pain is worse... I'm not living, I'm existing for my baby boy...
So grateful that this has finally been brought into awareness. Had 4 laparoscopy procedures before finally having everything removed. After one procedure the doctor described it as looking like a paintbomb had gone off only 4 months after the previous dnc. I was fortunate to have found a doctor who took it seriously. One thing I didn't see mention of was being called a "drug seeker" and told by a doc who spent 2 minutes with me, no exam, just said he wouldn't prescribe me painkillers and walked out of the room.
This is the BEST endometriosis documentary 💛😭
Incredible dancing and such an amazing way to make awareness. Praying for all that are affected
This has been touching to watch, I resonate so deeply having been diagnosed 2 months ago with stage 4 endo after a 10 year battle with the system. I am so proud of every woman who is going through this and struggling to be heard. We need to keep speaking up and keep our voices heard. This is the time we make a collective change to the poor history that generations before us have had to endure and are still enduring to an extent right now.
We owe this to ourselves, the future generations of women and to honour the women who have suffered immensely before us.
This is amazing.. I'm an endo warrior with 14 surgery's with my last being a hysterectomy.. 💛
If you muted this you would still be able to capture the magnitude of how powerful this documentary is. Words explained and yet unless your 1 of the 1 out of 10 it’s hard to explain just how much we go through. As hard as it is I will tell you that the Endo community is on of the most resilient group of women in my eyes every day we survive every day we endure. Thank you for this level of awareness done so eloquently
I am 😭 they did so well on this documentary 💯🎯💔 This is so profound so raw & authentic. I had a miscarriage 9 yrs ago this coming Feb. 5 yrs ago I had laproscopic surgery & diagnosed with Endometriosis. I call it a Devils disease & wouldn't wish it on my worst enemy.
I have been struggling so much especially this past yr with this debilitating disease & I need another surgery💔 I am exhausted from it all & having to cancel on people & them not believing me. Stressing over not being able to keep my husband happy/pleased even though he has been supportive from the start. But you endo warriors know what this feels like...
I feel so seen & heard from this Absolutely brilliant video. Thank yo for this!💛🎗
I just found the answers to my questions. I'm so depressed because of this disease. Thanks for this powerful documentary.
Such an amazing piece! So powerful and moving. We are 1 in 10 🎗️
Thank you for sharing, no one quite understands like a woman that is going through the same pain.
This needs millions of views.
I cried watching it, it shows exactly whats going on my mind...
Wow this was an sooo well done. God I balled my eyes out for all of it. You killed it with showing how much endo effects us. Thank you for this. It helped my partner to see some of the things I worry about in our relationship later on even though he’s amazingly supportive
Thank you for the continued awareness.
Two things:
1. The sufferer who mentioned it was her fault her bf cheated on her: no it’s not. You are much better without him.
2. I wish there had been more representation of sufferers bc it disproportionately impacts communities of color. For example: my diagnosis took 20 years and I have two major surgeries under my belt bc of it (34 year old Latina).
Periods should only end sentences.
All I can say is thank you for this. I was finally surgically diagnosed a year ago this month. This is so unbelievably powerful. 🙌🏻💛
I have never felt so understood in all my life. Thank you from the bottom of my heart- for bringing our experiences come to life. We have all been through so much
My face is wet now.. Thank you for raising awareness for Endo sufferers. I've been trying and trying to get diagnosed, but no one listens and they disregard my pain. I hope that awareness will be brought to the US soon.
Literally just hung up from a phone call with my sister after crying for emotional support as this pain has crushed me physically and emotionally. Her answer was don’t call me this pain is in your head. I have no one to turn to and this pain awaits me 3 days from now. After 13 years of trying to cope/cure it i feel that death could be so sweet right now💔
I know how you feel I truly do…remember you are not alone even when it feels like you truly are…but you have me a complete stranger and I want you to know I care and understand and even tho you commented 8 months ago…I hope you see my message..❤❤
Just watched this and couldn’t stop crying! I’m also an endo warrior and this resonated with me so much 💛
This video needs to go viral my lass has it . Needs to be heard more what its really is 😙😭❤❤❤💪 x
Thank you! Thank you, thank you, thank you!! I am one in nine! This brought me to tears with the rawness and the understanding of what I’m going through. I’m not alone. I can’t express how much this video means. It’s just everything I need to say but can’t find the words.
I am in tears after watching this video 😭. You nailed it.
Incredible.
More power to an Endo girl ☺️
Thank you so much for educating and bringing awareness to this horrible disease. I cried through the entire film. Words cannot express the relief of being understood.
I cried watching this. Such a perfect articulation of what it’s life to have endo.
No words. Just overwhelming sentiment that this disease was discovered 4000 years ago and women are still suffering an agonizing life faced with no cure.
Sophia, I am still in absolute awe of what you have created. I feel beyond blessed that our paths have crossed. I still cry watching this.
This is beautiful and very raw and honest. It captured how I feel, but struggle to describe accurately.. the shame, the guilt, the feel of worthlessness, the lack of support...and so much more. Beautiful work Sophia. We must shout from the roof tops to make this known. Hardly anyone knows what this disease is and what it does. Let’s make it common knowledge #EndEndo
Fellow endo warriors. There is support out there, and there are supportive singnificant others. My husband has been right by my side since 2010, at first when endometriosis was suscpected and when I finally got a confirmed diagnosis at 34 in 2020. He understands what the condition does and will continue to be my rock
I'm in stage 4 so I can relate. Be strong Endo warrior's,❤️❤️❤️
I too am in stage 4 but I’m on orilissa you hardly hear any one being on this medication or talking about it. It has truly helped but when I get off of it in the next two years that’s what I worry about !
This is SO well done, so factually accurate... so beautiful. Well worth the wait 💛
20 years on and I’m still dying a painful death living with this chronic disease. Thank you for being a voice for so many of us women going through so much pain on every level 😢
This was amazing! I mean, it was so beautifully done. The dancing was beautiful. Ill just say this. those of us with endo are so strong every day. I was diagnosed at 40. It took 25 years. And i also still struggle with accepting that there was an explanation. I wasnt imagining it. I wasnt a weakling. It wasnt normal. I am so sorry for all of us with this. Its still hard to talk about it. I can tell it makes people uncomfortable. But i still do it. And now with my own 16 year old showing symptoms, I am more determined than anything to get her the help she needs. I am her biggest advocate. I believe her pain, i see the tears. Ive held her while she cried. I cried with her. And i found her a doctor that knows and understands endo and we are working TOGETHER to make sure she gets the help she needs. She deserves the best and so do all of you ladies! We will get our progress as long as we continue to use our voices. Thank you for this!!
25 years here also. I remember screaming and hanging on to my headboard as a teen. The heredity factor really does indicate that this is something we are born with. Like a time bomb.
@@nettwench Im so sorry you went through that. Being a kid and dealing with that much pain is just...its unreal... I think there is some heredity to it. They need to do more research for womens health. Much love and support to you! I hope you are doing better and/or moving towards that
This is truly amazing and needs to be main streamed so that all could see. More eyes need on this documentary. The doctors refuse to do the surgery to confirm but always continue to say that the endo is the problem for me. I believe that to be true. Cysts, ovarian masses, massive bleeding, unbearable pain, I live with it all. Doctors even need to lay their eyes on this video to help motivate them and to get them to realize we aren't making it up with how bad it affects our lives. I've shared with my friends and family your documentary in the hopes for understanding.. Such an amazing and moving piece. Thank you for sharing!
So amazing. Great job. Perfectly described everything I feel. My heart goes out to everyone who has endometriosis, it’s such a difficult, painful disease. #EndEndo
Crying watching this. It sums up a lot of what I've been through. I've had this all my life and was just diagnosed with it. Now I know I'm not crazy and so many emotions are going through my head. I won't let this disease stop me from loving my self or my life anymore.
Can't believe there's a dislike🤷🤦
This made me cry ! So powerful!
This is INCREDIBLE. Thank you so much for this!
THANK YOU SO MUCH FOR THIS POWERFUL STORY IF ANYONE IS GOING THROUGH THIS PLEASE DON'T HESITATE REACH OUT I LOVVVVEEE ALL MY ENDOMETRIOSIS SISTERS IVE HAD THREE CYST REMOVALS MY APPENDIX AND GALLBLADDER AND A PARTIAL HYSTERECTOMY I LOVE YA'LL SO MUCH
This is so touching and true. I cried watching this. This should have millions of views. Thank you so much for making this. More and more coverage DOES count. You’ve given me more hope today, thank you.
Made me cry, thank you! Sending love from Polish endoWarriors!!
Sending love & hugs to all my fellow endo warriors!
This is SO AMAZING!
Thank you for doing this.
This was well put together. Wow. I have been struggling with this since I was 16 but not diagnosed until 22 , I have had a total of 12 losses all together buried 2 but I did have a little girl in 2020 was able to carry full term and she was born in Feb 2020 ... Keep your hope in God he knows what your heart wants and he will give you your hearts desire. I still struggle with it. I have had two surgeries and I had a blood transfusion in 2021 after bleeding for 7 months straight .. thanks for making this video.. only y'all understand ❤
I'm 37 now
Thank you so much for this.
I'm crying thank YOU ❤️
Such a wonderful film. Crying.
This is incredible work. Thank you for all of the effort. I wish you the very best in this being seen far and wide, as in it getting on Netflix and touching the world.
Amazing documentary, found this on Facebook being shared in the endo group.
Amazing work Sophia, thank you for making this. 🎗
Absolutely amazing. Kudos
Wow it’s beautiful! The dancing made my heart beats. Much love to everyone in this film and everyone who made it possible, you rock! 💛
Thank you everyone this is beautiful, it explains what we experience so well.
This is a beautiful documentary! I am so happy to see something so wonderfully made that highlights something that I struggle with everyday. I felt like it expresses the pain perfectly. Thank you for all the work that went into this masterpiece and all those who shared their stories.
So well done. Many comments were like taken right from my own thoughts, feelings. I hate this disease. Thank you for creating this.. ❤️❤️
Thank you ladies. This was sooo needed. I don't have Endo but I know women who do and I will share!
Thank you to the beautiful ladies for sharing your stories and building awareness on something that can be really debilitating not just physically but mentally 💖
So beautifully presented 💛 powerful, informative and raw - thank you for representing endo warriors so gracefully 💛
Thank you for making this documentary. I cried while watching it.
We need more and more awareness about it.
For the generations to come!
What a great way to shine a light on this disease, and well done to those brave women for telling thier story. The cinematography is stunnning!
wow what an amazing movie.
I also have endometriosis and watching this video all emotions were released.
How awful to see so much recognition. very good that this is getting attention. 😔😢❤️
Thank you so much for this outstanding masterpiece! It's the most powerful representation of this terrible whole body disease I've ever seen. I suffer from it myself. Tears were running down my face through the whole movie. 😭
I cried from beginning to end. I have never felt more heard and understood 🎗🎗🎗 Thank you for producing this amazing piece of art and education ❤️❤️❤️
Tears for all of you sharing this painful journey
Thank you for this powerful and poignant documentary and to all of the endometriosis sisters especially for their honesty and vulnerability. I love you all. 💕
This is beautifully done. I cried watching this. This awareness is needed. It truly is misdiagnosed so often. I was misdiagnosed too. Debilitating.
I'm from Philippines I've been suffering with endomitriosis for many years now very very bad disease
Brilliant! Thank you deeply brave strong women! I am excited to see this documentary speak to the myriad of ways in which endo. negatively impacts our lives. Topics like , infertility, relationship dynamics ,and quite often the need for multiple surgeries are often overlooked or not spoken about. The physical pain can be crippling ( not always) but so can the emotional/ psychological pain.
Thank you for this video , I don’t feel alone , guilt or misunderstood anymore. 🌹❤️🌹
Simply brilliant . . . Spot on from beginning to end!! Thank you!! I am 1 in 9 & this perfectly relayed what I'm sure each & every one of us only wish we could convey to the world . . . I just wish we didn't feel the need to convey it in an effort to "defend" ourselves & the way we are, cuz it's certainly not the way we want to be!! Sadly even after 28 yrs & 8 surgeries people still treat me as tho "she MUST be exaggerating, it can't really be THAT bad I'm sure!! BUT the more information like THIS that gets out the more people will begin to SEE & accept that "ok wow, maybe it really IS that bad after all " 🤷♀️🥺
#endowarrior❤
The tears I’ve had flowing.. this is so unique, real and authentic! ❤
Thank you for spreading love and validating what we feel as females 😢
The words “I FINALLY had an explanation.. “ hit so hard
Incredible 💛
Thank you
Thank you for talking about it.
this made me cry. Just had a lap had some relief and now it feels like it came back. I'm in a flare again and feel so depressed.
I cried, THIS actually is what Endo means. Nothing hits me harder than these truly Real informations about it in this Video. Thank God they did this for us!🍀💎 living with it since i was 11, keep going🍀
Currently bawling my eyes out 😢
Cried watching this. A sad subject but a beautifully made documentary. I had key hole surgery and while the gyno was in there she checked for endo. I don't have it apparently. So my extreme pain is unexplained and it's so FRUSTRATING!! The gyno did offer to give me a hysterectomy (leaving my ovaries) but this didn't guarantee that I would be without the pain, because we don't know the where or why of the pain and I'm not willing to give up my ovaries for another couple decades at least. I really feel for all the women and girls with endo or who are undiagnosed, not only is there the debilitating pain to deal with but the debilitating emotional upheavals of being gaslit again and again by not only friends, family, colleagues and strangers, but also Medical professionals. Keep going ladies. You are not alone. We not not alone.
Wow, watched this and cried the whole time. It’s my life!! I hate that any of us have to deal with all this day in day out.
This disease has destroyed my life and my families but the medical community couldn’t care less.
This is POWERFUL WOW 💛😭 I have two uterus and endometriosis I feel all of this
❤️ stay strong. That sounds like a lot.
I cried soooo hard
I'm in tears bcus I am suffering from stage 4 endo & im trying my best to not let it overcome me. I will be posting on my channel very soon to bring awareness to this horrible condition and to also just share my journey and informing others on what has helped me etc.
So relatable. 😢 I hope better solutions are found to relieve us endo girls from this pain which is so hard to explain.
I was diagnosed at 14 when I first got my period at 14 I had huge amounts of pain and wanted to pass out I thought mum doesn't sweat hurt so much she can't move luckly mum got me to a doctor .but I'm not living panadol tramadol voltarion isn't living I feel like a burden to my friends they can read me and my pain like a book even if I think I'm hiding it they know when I'm in a flare
Litterally has me in tears 😢
I was recently diagnosed and I was thrown off guard by the way I found out. Misfortune to my circumstances I don't wish this on nobody because year 2021 I felt great but by the end of 2021 I had the horrible news hit me like bricks