A Parent-to-Parent Conversation - What You Need to Know About DAYBUE (trofinetide), Part 3

In the final video in our Q&A series, IRSF's Family Empowerment Team, Paige Nues and Samantha Brant, have a frank and sometimes emotional conversation about what the FDA approval means to the families they speak with every day and to themselves personally as parents of children with Rett syndrome. With IRSF's Tim Frank, himself a Rett dad, they share stories from the Rett community and highlight the heroes who have given of themselves on the path to FDA approval. As we prepare for Acadia's webinar for caregivers on March 28th, join us to celebrate this historic milestone for the Rett community.
You can now find all videos in this 3-part series, plus audio-only versions and transcripts in English and Spanish, on our website at rettsyndrome.org/trofinetidevideos.
Learn more about DAYBUE (trofinetide) and register for the caregiver webinar at daybue.com. Find links to resources and share your reaction to this historic news on our website at rettsyndrome.org/trofinetideapproved.
Disclaimer: All information is intended for informational purposes only and is not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your specific medical condition."