HORMONE BLOCKING MEDICATION & BONE MINERAL DENSITY
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- čas přidán 29. 06. 2024
- Hormone Blocking Medication (HBM) is a BIG topic of conversation in my clinic. And understandably so. Research shows that taking HBM can help reduce risk of recurrence and extend survival after Breast Cancer.
However, for many women taking this medication can come with fairly intense side effects. Examples include hot flushes, sexual dysfunction, joint and bone pain, and significant impact on sleep. A lot of women end up ceasing the medication due to the impact on their quality of life.
I strongly believe we need better delivery of information on HBM and how side effects can be effectively managed. In this video I discuss The Breast Cancer Thrivership Program that I co-founded in 2020 and the last Education Session on HBM. I also dive into how Bone Mineral Density can be affected with HBM and what you can do about it. A huge thank you to Medical Oncologist Dr Brenton Seidl from Sunshine Coast Haematology Oncology Clinic who presented the lecture.
The Breast Cancer Thrivership Program
www.thrivership.com.au
Hi Jen, Linda here from sunny SA, I actually went in for my bone density check up and came out with stage 2 breast cancer 🙈… we are lucky we got it early, they did the Op to remove the tumour and two of my sentinel nodes, sadly I am having severe side effects from surgery, some nerve damage, severe cording and possible onset of lymphoedema. It’s through watching your videos that I have been given so much information and helped me ask all the right questions when I started noticing and experiencing all these side effect, sadly my oncology team never informed me the above was a possibility… I have got a good physio now who has helped with the cording and medication for the nerve damage, also half way through my radiation treatment and will soon start the hormone blocking treatment. So very eager to learn all about possible side affects and how to combat them, THANK YOU for sharing all this very important information 🥰🌸
Hi Linda! So so pleased to hear my Channel has helped you. I'm really pleased to hear you have an excellent Physio helping you - it is SO needed through and after Breast Cancer. I hope everything continues to improve for you. Jen x
@@TheBreastCancerPhysio Thank you Jen 🌸
😊Thank you Jen for the great information.
You are most welcome! Jen :)
Thank you Jen for putting up these informative video
Chemo brain still making it hard to concentrate. Videos work well😀
Hi and thank you for commenting! Chemo brain was definitely one of my inspirations for making these videos - at least you can watch them as many times as required and hit the pause button!! Jen :)
Jen, another fantastic video. Six months into hormone blocking medication and am starting to see joint pain. So would love more content on this and sleep management, which hasn't been good for a while now. But all your content is greatly appreciated.
Thanks for your lovely feedback Linda! Hormone Blocking Medication will definitely be another focus area for my Channel. Jen x
Thank you for the information
My pleasure Olinda! I have a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hiya Jen, another really interesting video. Would love you to do one providing tips on improving quality of sleep. Thanks so much for your efforts in providing these informative videos.
Thanks so much Marie! Definitely keen to do videos on sleep. Absolutely vital for us to focus on this issue but currently very under addressed. Jen x
I’ve been on Letrozole for around 2 months, and sleep disruption is a big problem. I also find all my arthritic joints have become a lot more painful. I’m 68 years old. I’d love help with these issues. Your videos are so helpful, thank you.
Hi Pam! Thank you for your feedback. Really appreciate your comments. I am aiming to get a Sleep Expert in to educate on sleep hygiene, and discuss ways to reduce joint pain. Jen x
Thank you, so many side effects, the meds are life changing
Thank you for commenting. Yes a very tough medication for so many, but with a lot of benefit for some. I am hoping my videos on this topic will be helpful. More to come soon! Jen x
Looking forward to hearing about when your thrivership programme goes worldwide 🤞
Hey hey Ruth!! How are you hun!? I will definitely let everyone know if I can get Thrivership going globally! I think it is needed! Jen x
Yes Im starting to have some muscle aches joint pain and stiffness. Hot flashes. Just started taking the hormone blocking pill.
My oncologist said I would have muscle aches and joint pain.
Hi Nancy, yes unfortunately there are some very average side effects from Hormone Blocking Medication. I've launched a Private Group on Facebook 'The Compass Community' - a global online Breast Cancer Education & Support Network with free weekly live education sessions and Q&A. There is much more interaction on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
I usually only get flashes when I go to bed, but I work out almost daily with weights and cardio. I would also suggest eliminating the caffeine and try decaf.
Would you consider doing some exercise videos on resistance training from home as it is difficult and expensive to get to a gym? 😊
Hi Paula! If you scroll down to my earlier videos, I have done an upper body resistance exercise video. I am yet to do one on the lower body but can make it happen. Thanks for watching! Jen x
Thank you so much. I believe I am having issues with this. My bone numbers are off on my bone number and I've been on the medication since April/21. I will meet with my oncologist in Dec. to retest. I'll be paying attention.
Hi! Thank you so much for your comments. Definitely worth a discussion with your Oncologist. I hope you can find a solution. Jen x
@@TheBreastCancerPhysio Thank you Jen. Your channel has been so helpful to me. I was originally diagnosed 12/01/20, so I'm still learning. I'm currently recovering from DIEP surgery 10/04/21, after having a bilateral Mastectomy. It's been a busy year getting to speed and self advocating.
@@amb7412 so pleased to hear the Channel has helped you! I hope you are recovering well after the DIEP Flap surgery. Jen x
@@TheBreastCancerPhysio Thank you Jen it's a tough recovery but it's getting each day.
Hi jen
I am about to start letrazole. I am 70 and when I had the menopause I had terrible fibromyalgia, so I am really anxious about it. My oncologist says not to worry, there are substitutes. Are other drugs better from the pain point of view.?
Hi Angela, thanks for your question. Everyone seems to react individually to Hormone Blocking Medication. Keep an open line of communication with your Oncologist and maybe consider the Letrozole as a trial period with option to change if symptoms are not tolerable. I hope this helps. Jen
I am taking letrazole and I already had osteoporosis. Due a bone density scan soon. The side effects I have are a few aches and pains but the main one for me is weight gain and I was wondering if it will even out. I get plenty of exercise but weight still still creeping up.
Hi Maggie, I am about to do a weight loss after Breast Cancer video with my brother Andrew who specialises in this area. Jen x
@@TheBreastCancerPhysio thank you Jean I will be looking out for that as my whole body shape is changing, a small price to pay I know, I am 71.
Should I have had a bone density test prior to be given letrisol .I have them sat in box and to worried about taking them
Hi Deborah, I think having a Bone Mineral Density Test performed prior to starting Letrozole is a good point in time to know your baseline bone stock. I would discuss this with your Medical Team. Jen x
I just scheduled my bone density test for a baseline, my Dr agreed it’s important.
Were any of the seminars recorded, so we can watch?
Hi Connie, so sorry for my delayed reply. I am not recording any further CZcams videos at this time but I have launched a Private Facebook Group called 'The Compass Community' - a global online Breast Cancer Education & Support Network with weekly live education sessions and Q&A. I will be able to assist you more on this platform. Here is the link if you would like to join: facebook.com/groups/breastcancercompasscommunity
Hello Jen...I love your helpful videos.....how can I purchase Mobiderm from your website ? Iam in the U.S.?
Hi Risitos, thank you for your positive feedback. If you're in the US it may be easier to order Medi Lymph Pads from Brightlife. Very similar product. Here is the link: www.brightlifedirect.com/products/mediven-lymph-pads
@@TheBreastCancerPhysio thank you Jen...I just placed an order....can't wait to use them
It is hell