Looking back over the last couple of months when my mobility has been good, and I've been able to enjoy a little bit more quality of life. Sadly this is no longer the case.
Don't lose faith Neil. I have had good days 2-3 in a row and then I can't get up from bed because of muscle weakness, vertigo, spasms. I progress and then regress. My neurologist says thats the nature of the disease and I have to live with it and work around it. Sometimes I don't want to go on but then I come across other MS patients at the neuro clinic and they are much worst. Hang in there Neil.Celebrate the good and push through the bad. Love you guys.
Thanks Bode, that's also the conclusion I've come to .. its the nature of the beast and we have to try and live with it best we can. I sometimes feel the same, and yes seeing other people in a worse condition than ourselves give me a strange feeling that somehow in a weird way I'm lucky. But then, I also worry a lot about the future and what is around the corner, as I'm still relatively young at 46. Much love to you also - Neil & Teresa.
Hi Neil sorry your mobility is dipping again ..it's just not fair ..I've got a chronic condition that affects my life ..some days I can barely walk without pain ..I hate to admit it but I find it hard looking after my children some days ..i think i ive told you about my son previously..they both have autism but my son have severe leaning difficulties also ..so I have to try to fight the pain which makes it worse.. they are only 9 and 12 ...you never have to apologise for your videos being negative..we all enjoy your journey as you keep it real ..chin up your not alone ...let's hope you get some answers soon
Hi Grace, yes I remember you well. It must be really hard looking after your children and feeling so poorly yourself. It’s definitely nothing to be ashamed of, you’re made of strong stuff. I often wondered how I would cope looking after a small child now (my daughters are all grown up), and honestly, I don’t think I’d be able to do it. I just don’t have the mobility or the energy. You’re doing a grand job Grace.
Bro, I’m saddened to see that you are struggling. I’m hoping this could very well be just a minor stumbling block or temporary setback. You know how unpredictable MS can be. I’m believing that the new year will be a year full of blessings and positive testimonies for both of our households, my friend. I’m praying for you you, Neil. I’m asking God to breathe His life into you, strengthening your body and reviving your spirit. I pray that your mobility and coordination for walking will be better than ever and that your stamina will outlast your wildest expectations. God’s richest blessings to you and your household for the coming year and always. Chaplain Kenny and Carolyn Pecher
It’s the nature of the beast . . You have to always be ready to adapt to change and the progression of the disease. Regular Physio and exercise targeted at the deficits is how I maintain and improve my own function. ❤️ But I think even more importantly is mental health . . .and resilience to adversity. I feel your unhappiness and wish I could send you some of my happiness!
Good morning Neil, as I watched your video I was nodding my head as you talked about your knees and how they are stiff around them. My neurologist is doing blood work and checking for approval from my health insurance to put me on ocrevus. I feel I am getting worse day by day and working is becoming extremely difficult but due to I would lose my health insurance and I can’t afford to quit my job I have to keep going. It is putting severe pressure on my hips, knees and back. Also my drop foot has become a permanent thing for me. I wish you better health and I want to let you know that even though you think your videos are negative, they are your truth. Keep them coming. You inspire me.
Hi Patty, thank you for your kind words. I really do understand where you’re coming from, and I totally understand how difficult you are now finding working. It must feel like your stuck between a rock and a hard place, you need your job of course for your income, and the health insurance. It’s so difficult. My mobility is so bad, I literally could not work which involved any kind of walking, for me impossible. I hope that time never comes for you Patty. Look after yourself. By the way, I’ve been watching your videos and always giving you a like. Keep going, the first hundred subscribers are the most difficult. Took me ages.
Neil, thank you so much. I do see you liking my videos and I appreciate that. I just watched video of stretches for ms spasticity in knees and thighs. It’s called ms gym. I just did one stretch and it helped a little relaxing my knee and thigh muscles. It has been hurting so bad that it’s hard to sleep at night. I will be doing a new video soon.
That’s great Patty, I’m interested to see those exercises myself. If you know how, perhaps you’d paste a link to them on here. I’m also starting the struggle once again with sleeping at night due to pain. One of the worse things is spasticity in my legs, I go to turn over in bed and my legs start shaking so violently it feels like they’re going to dislocate at my hip. Horrible.
Neil, whatever is going on with you, you must try and exercise. When I couldn’t exercise for a couple of weeks, I became so STIFF.....needing baclofen. MS sux, we have to do our best and keep moving forward and try to keep our independence. I met someone at the gym today who was hobbling on two crutches and she was working out. Talk about inspiring and feeling gratitude.
This video broke my heart Neil you must stay strong. Take the good you have in your life and make that your priority. Easier said than done I know, but do your best to focus on what you CAN do rather what you can’t do. Otherwise you’re going to drive yourself mad. We are all here for you Neil and please don’t get discouraged. Happy New Year to you both and hoping for a prosperous 2019
Hi Neil and Happy New Years to you and Teresa! It’s been a few days since your video and I hope and pray they you are feeling better. Keep pushing and don’t give up. It gets hard and will probably get harder but get excited for all the good and blessing that are to come because this will pass. Be Encouraged
Thank you, I’m about the same, if not a bit worse😟 .. I’m hopeful it will pass, no sign as yet though. Happy new year to you also. I really appreciate your encouragement thank you 🙏
It breaks my heart to see you struggling like this. I absolutely understand though. And it’s okay to feel down about it. Anyone would. It is key that they get you sorted out at the hospital, so you can be properly diagnosed and get the RIGHT treatment. You will feel better when you know what’s going on with your legs, whether it’s MS or not. Not knowing is the worst. I am keeping you in my thoughts. Hugs!
If you have had a busy Christmas maybe this wont have helped, maybe after a few days/weeks rest you may well come good again. I hope you have a better time soon.
Hi Neil,you are in my prayers and I'm sending healing thoughts your way. I'm ways so thankful for your channel because it is very transparent. When we are doing well it's good,when it's bad well it's just not good days and I find it a big job putting on to make everyone around me feel or see that I'm great. Being sick is a big job!! Please keep posting as you feel like it!!
Hello Neil: I have so enjoyed your videos! I know you have good days and bad days, but please stay strong.Stay busy, mentally if not physically. Please don't let the depression get ahead of you. Take care GOD bless you.
I'm so sad to hear this Neil 😔 you were doing so good. I'm sorry. Maybe you've just over did it with the holidays and stuff. Just try not to worry, I wish you and Theresa a blessed 2019 love you guy's 💛💛💛💛💛💛💛💛
I’ve been checking every day to see if you made a video #82. I’m so sorry that you’ve being feeling poorly since Christmas. Please let us know how your doing.
Hi Marianne, ahh that’s so very kind of you to be so concerned. I’m no worse but I’m no better either. I’ve still not had an appointment through for a Lumber Puncture but honestly, I’m not in any rush (head in sand on this occasion). Just as soon as I hear something I’ll do another video. Thanks so much for your support. 😊👍
Hi Neil, I’m so sorry you’re having a crappy time at the moment. It’s difficult to be positive when we’re dealing with so many health hurdles. I hope you get your hospital letter for the lumbar puncture soon , I’d wait a week or so and if no response then I would call and chase this with your Ms nurse . Also it might be useful to start a diary just to note all the symptoms you’re suffering with daily at the moment. You could show this diary to your Ms team as well , I’m sure it will be a useful guide. I hope you get some answers and hopefully some medication to help you . In the meantime stay strong , you’ll get some direction /answers soon . Sending some positive vibes your way . Love & hugs , Grace .
Stay strong man! I was diagnosed in 2011. Look into Huffington Post articles by Paul Stamets about Medicinal mushrooms, especially Lions Mane mushrooms. I started cultivating them because they stimulate production of Nerve Growth Factor and I’m taking them in capsules daily. I’m not saying they’re a magic bullet for ms but I’m walking better, much better, since I started on them. I’m praying for you brother. MS truly sucks!
Just now saw one of your videos, I am trying to do my research on CBD's. I want to say Thank You for sharing. Positive blessings and healing energy to you.
Thank you Joe, for me I’ve not had a great deal of success with the CBD Oil. Nevertheless, this isn’t to say somebody else won’t. You may well respond really well to the oil should you decided to try it. Good luck.
Hello Neil. I can see how down and upset you are and its not a nice thing to see. You had a bite of the cherry and was a great feeling but now the cherry has been taken away its so hard. I have never had a bite so I don't know what its like I just get worse every year. Could it be the worry from the maybe not a MS diagnosis and the lumbar jab that's made you this way? I have found a trend with my MS that it was triggered by stress in the first place and could this be your worries and stress over your last letter etc. It certainly wouldn't do you any good! I hope it is just that and you feel better when they have sorted out your illness and give you a definitive diagnosis which I do hope they can give you and at least you will then know what you are suffering from. It's so hard sometimes my friend but we just have to go with the flow as we can't change things. I wish you both a Happy New Year and a positive progress for us all. Adrian 🙂
Thanks Adrian, strangely I don’t feel overly worried because I’m still pretty sure it’s MS. Another subscriber touched upon an interesting theory, one I thought of myself also. Change in diet over Christmas?. As a rule my diet is pretty consistent with little change, then Christmas happened. It’s possible as my symptoms sometimes respond to simply having a meal. Clutching at straws a little, but it helps me get through.
I’m really sorry you’re feeling so bad. I hope the lumbar puncture will go smoothly and give you some answers. Have the doctors given you any clues about other possible diagnoses that you could be looking at besides MS? Since steroids seem to help for awhile, how often is it safe for you to have them again?
I’ve found ms to have an ebb and flow I haven’t been able to nail it down I have learned to enjoy the good days and I watch movies or Utube on other days It makes it hard to make plans Perspective is Everything in ms Try to count all the abilities you still have now Put on your wedding song and slow dance with beautiful Teresa
Hang in there Neil, you look like you have MS legs, especially the left leg. If they saw spots, then they're in there still, they may have gone dark, from not being lit up, say in a flare. They will get to the bottom of it.
Thanks Jared, yes I do this and find distractions are a very good help. I play an online role playing game called Runescape, it requires lots of thought and concentration which is definitely good at distracting me. Unfortunately I don’t find medication very helpful and prefer to take as little as possible.
I've been watching your channel, and I too have Ms and your the only one that has the same symptoms I have ,I would like to talk and compare notes on what you and I have tried, I'm on Facebook
Hi Chris, thank you for your message. I'm very interested to hear about your symptoms and how you cope also. We can either chat on here, or if you prefer search for "neil.bradley.37" on Facebook and send me a private message. Regards - Neil.
Hi Sondra, I don’t suffer with the dizzy episodes as I don’t have MS activity in my brain. People with MS lesions in their brain are more likely to have the dizzy spells, perhaps your friend is like this.
Neil you’re correct. I have lesions on my brain and I have the dizzy spells. As a side note, depending where they are located on the brain can affect things such as memory, thinking, sleep issues, etc.
Neil I wondered if you have ever tried acupuncture? I don't know if you have spoke about this before or not. I'm not sure if it would help you or not but could be worth having a read up. Just remember mate every day is a new chance to feel better. Sometimes you have to feel shit so you can wake up and feel an improvement just try not to let yourself have to many shit days in a row. P.s. stop hogging all subscribers 😉
Hey there!! No I've not tried Acupuncture, might be worth doing a bit of research to see if anybody else with MS has tried it with good results. Have you tried it yourself? You're absolutely right of course, and I do understand where you're coming from about having bad days. I find myself looking for the slightest little improvement, and although (at the moment) it doesn't happen very often, it does. In fact, I really pushed myself today with the same old stiff legs and back, hardly able to take steps but I did what I set out to do.. I also think to gain that sense of achievement is really important. The only thing is, these are things I could do with my eyes shut ten years ago, not so much now though. Ah-ha You're little comment about subscribers really made me smile .. I actually read this message at 4am this morning and then started to check out your channel. I REALLY like your videos, you just say it as it is, keeping it very real. I notice also that you've only recently started up, so I'd like to wish you luck.. the first 100 subs are the hardest. Oh and by the way, you now have a new subscriber - ME!! Looking forward to your next video :) All the best - Neil.
@@NeilBradleyMS thanks for the response mate. Glad you saw the fun in my p.s comment 😏. Personally I haven't tried acupuncture but when you were saying about the stiffness in your back and legs it got me wondering if this would help with the stiffness. I have seen some reports of MS and acupuncture so it would be worth having a look I think. I haven't had a relapse for sometime now but I am very lucky as nearby there is a MS therapy center and they have a oxygen therapy chamber so if I was to relapse I would see about getting in that straight away. Oxygen therapy is supposed to fantastic for all kinds of recovery so that could also be something for you to look into but I don't know how easy it is to find places with a chamber. I do hope you start to feel better soon mate and I look forward to seeing the videos when you do. All the best to you and your family for 2019 and thanks for the sub 🧡🎗️👍
I tried acupuncture hoping for relief but I didn’t feel any. Everyone is different though so I don’t wanna dissuade others from giving it a go. The pain signals of needle insertion in my legs and back, which is minimally painful, kept going astray and I felt them in places no needles should ever go in my nether regions. Damned MS eliminated anything resembling a sex life and it’s hard on a marriage. Stay strong guys. We can do this!
The Facebook community is also the greatest most positive supportive community online, I can also tell you that your knee problem is more of a hip and pelvic floor problem. Download the hip flexor guide from the website I shared or if you join the free Facebook group there's videos in there that show you how to help
Hi Tim, I have done and I’ve been watching some of the videos this afternoon. I think you’re right about my knee problems, I also feel weakness in my hips. I’m already planning to try some of the exercises to strengthen my hip flexors. Cheers👍
That's wonderful to hear, I can't stress enough about how impactful Trevor Wicken is with his knowledge and teaching with MS movement and how to correct it. I've been apart of the MS Gym since December'17, and I can honestly say I've regained so much that I thought I lost forever.
Neil, I appreciate you sharing your progress and problems. Please continue keeping it real.
Thanks Kathy.
Don't lose faith Neil. I have had good days 2-3 in a row and then I can't get up from bed because of muscle weakness, vertigo, spasms. I progress and then regress. My neurologist says thats the nature of the disease and I have to live with it and work around it. Sometimes I don't want to go on but then I come across other MS patients at the neuro clinic and they are much worst. Hang in there Neil.Celebrate the good and push through the bad. Love you guys.
Thanks Bode, that's also the conclusion I've come to .. its the nature of the beast and we have to try and live with it best we can. I sometimes feel the same, and yes seeing other people in a worse condition than ourselves give me a strange feeling that somehow in a weird way I'm lucky. But then, I also worry a lot about the future and what is around the corner, as I'm still relatively young at 46. Much love to you also - Neil & Teresa.
Hi Neil sorry your mobility is dipping again ..it's just not fair ..I've got a chronic condition that affects my life ..some days I can barely walk without pain ..I hate to admit it but I find it hard looking after my children some days ..i think i ive told you about my son previously..they both have autism but my son have severe leaning difficulties also ..so I have to try to fight the pain which makes it worse.. they are only 9 and 12 ...you never have to apologise for your videos being negative..we all enjoy your journey as you keep it real ..chin up your not alone ...let's hope you get some answers soon
Hi Grace, yes I remember you well. It must be really hard looking after your children and feeling so poorly yourself. It’s definitely nothing to be ashamed of, you’re made of strong stuff. I often wondered how I would cope looking after a small child now (my daughters are all grown up), and honestly, I don’t think I’d be able to do it. I just don’t have the mobility or the energy. You’re doing a grand job Grace.
Praying for you!
Bro, I’m saddened to see that you are struggling. I’m hoping this could very well be just a minor stumbling block or temporary setback. You know how unpredictable MS can be.
I’m believing that the new year will be a year full of blessings and positive testimonies for both of our households, my friend.
I’m praying for you you, Neil. I’m asking God to breathe His life into you, strengthening your body and reviving your spirit. I pray that your mobility and coordination for walking will be better than ever and that your stamina will outlast your wildest expectations.
God’s richest blessings to you and your household for the coming year and always.
Chaplain Kenny and Carolyn Pecher
Thank you Kenny, blessings to you. 🙏
Hey, I can stand in agreement with those prayers! Prayers are what gets me through the day! God bless you both!
Still praying for you😇
It’s the nature of the beast . . You have to always be ready to adapt to change and the progression of the disease.
Regular Physio and exercise targeted at the deficits is how I maintain and improve my own function.
❤️
But I think even more importantly is mental health . . .and resilience to adversity. I feel your unhappiness and wish I could send you some of my happiness!
Ahh thank you, I’m very strong willed but I do feel my mental health is starting to take a hit.
God bless Neil hang in there my friend!
Good morning Neil, as I watched your video I was nodding my head as you talked about your knees and how they are stiff around them. My neurologist is doing blood work and checking for approval from my health insurance to put me on ocrevus. I feel I am getting worse day by day and working is becoming extremely difficult but due to I would lose my health insurance and I can’t afford to quit my job I have to keep going. It is putting severe pressure on my hips, knees and back. Also my drop foot has become a permanent thing for me. I wish you better health and I want to let you know that even though you think your videos are negative, they are your truth. Keep them coming. You inspire me.
Hi Patty, thank you for your kind words. I really do understand where you’re coming from, and I totally understand how difficult you are now finding working. It must feel like your stuck between a rock and a hard place, you need your job of course for your income, and the health insurance. It’s so difficult. My mobility is so bad, I literally could not work which involved any kind of walking, for me impossible. I hope that time never comes for you Patty. Look after yourself. By the way, I’ve been watching your videos and always giving you a like. Keep going, the first hundred subscribers are the most difficult. Took me ages.
Neil, thank you so much. I do see you liking my videos and I appreciate that. I just watched video of stretches for ms spasticity in knees and thighs. It’s called ms gym. I just did one stretch and it helped a little relaxing my knee and thigh muscles. It has been hurting so bad that it’s hard to sleep at night. I will be doing a new video soon.
That’s great Patty, I’m interested to see those exercises myself. If you know how, perhaps you’d paste a link to them on here. I’m also starting the struggle once again with sleeping at night due to pain. One of the worse things is spasticity in my legs, I go to turn over in bed and my legs start shaking so violently it feels like they’re going to dislocate at my hip. Horrible.
Thinking of you Neil, hoping and praying you get some answers. It sucks so bad doesn’t it. Your a good guy, keep strong 💪
Neil, whatever is going on with you, you must try and exercise. When I couldn’t exercise for a couple of weeks, I became so STIFF.....needing baclofen. MS sux, we have to do our best and keep moving forward and try to keep our independence. I met someone at the gym today who was hobbling on two crutches and she was working out. Talk about inspiring and feeling gratitude.
Hi Karen, I do keep up with the exercises and I do feel they help. Agreed, sitting around definitely makes us worse.
Neil Bradley I really hope they figure it out for you.
This video broke my heart
Neil you must stay strong. Take the good you have in your life and make that your priority. Easier said than done I know, but do your best to focus on what you CAN do rather what you can’t do. Otherwise you’re going to drive yourself mad.
We are all here for you Neil and please don’t get discouraged. Happy New Year to you both and hoping for a prosperous 2019
Thanks Paul.
Hi Neil and Happy New Years to you and Teresa! It’s been a few days since your video and I hope and pray they you are feeling better. Keep pushing and don’t give up. It gets hard and will probably get harder but get excited for all the good and blessing that are to come because this will pass. Be Encouraged
Thank you, I’m about the same, if not a bit worse😟 .. I’m hopeful it will pass, no sign as yet though. Happy new year to you also. I really appreciate your encouragement thank you 🙏
It breaks my heart to see you struggling like this. I absolutely understand though. And it’s okay to feel down about it. Anyone would.
It is key that they get you sorted out at the hospital, so you can be properly diagnosed and get the RIGHT treatment. You will feel better when you know what’s going on with your legs, whether it’s MS or not. Not knowing is the worst.
I am keeping you in my thoughts. Hugs!
If you have had a busy Christmas maybe this wont have helped, maybe after a few days/weeks rest you may well come good again. I hope you have a better time soon.
Thank you Dee, and I hope so.
Hi Neil,you are in my prayers and I'm sending healing thoughts your way. I'm ways so thankful for your channel because it is very transparent. When we are doing well it's good,when it's bad well it's just not good days and I find it a big job putting on to make everyone around me feel or see that I'm great. Being sick is a big job!! Please keep posting as you feel like it!!
Ahh thanks Avril, that means a lot. Yes!! You are so right, putting on that brave face to make it look like we’re ok is so so draining.
im sorry you are feeling so bad Neil. 😞 .
Hello Neil: I have so enjoyed your videos! I know you have good days and bad days, but please stay strong.Stay busy, mentally if not physically. Please don't let the depression get ahead of you. Take care GOD bless you.
Thank you Claire, bless you. 🙏
I'm so sad to hear this Neil 😔 you were doing so good. I'm sorry. Maybe you've just over did it with the holidays and stuff. Just try not to worry, I wish you and Theresa a blessed 2019 love you guy's 💛💛💛💛💛💛💛💛
Thanks Cheri. All the best to you for 2019. 🙏
I’ve been checking every day to see if you made a video #82. I’m so sorry that you’ve being feeling poorly since Christmas. Please let us know how your doing.
Hi Marianne, ahh that’s so very kind of you to be so concerned. I’m no worse but I’m no better either. I’ve still not had an appointment through for a Lumber Puncture but honestly, I’m not in any rush (head in sand on this occasion). Just as soon as I hear something I’ll do another video. Thanks so much for your support. 😊👍
Drives me crazy too!
I believe you’re strong 💪
Hi Neil, I’m so sorry you’re having a crappy time at the moment. It’s difficult to be positive when we’re dealing with so many health hurdles. I hope you get your hospital letter for the lumbar puncture soon , I’d wait a week or so and if no response then I would call and chase this with your Ms nurse . Also it might be useful to start a diary just to note all the symptoms you’re suffering with daily at the moment. You could show this diary to your Ms team as well , I’m sure it will be a useful guide. I hope you get some answers and hopefully some medication to help you . In the meantime stay strong , you’ll get some direction /answers soon . Sending some positive vibes your way . Love & hugs , Grace .
Thank you Grace 🙏
Stay strong man! I was diagnosed in 2011. Look into Huffington Post articles by Paul Stamets about Medicinal mushrooms, especially Lions Mane mushrooms. I started cultivating them because they stimulate production of Nerve Growth Factor and I’m taking them in capsules daily. I’m not saying they’re a magic bullet for ms but I’m walking better, much better, since I started on them. I’m praying for you brother. MS truly sucks!
Thanks for that, and good luck with mushrooms.
It is a bummer how we feel
Just now saw one of your videos, I am trying to do my research on CBD's. I want to say Thank You for sharing. Positive blessings and healing energy to you.
Thank you Joe, for me I’ve not had a great deal of success with the CBD Oil. Nevertheless, this isn’t to say somebody else won’t. You may well respond really well to the oil should you decided to try it. Good luck.
i am having this exact same issue with mobility and back.
Hope all is well Neil 🙏🏼
Hi Paul, no better no worse really.. thank you for asking. How’s things with yourself? Well I hope.
Neil Bradley all is well Neil thank unit for asking. No change I guess is good. At least it’s not worse. Please keep us posted. Cheers
Hello Neil. I can see how down and upset you are and its not a nice thing to see. You had a bite of the cherry and was a great feeling but now the cherry has been taken away its so hard. I have never had a bite so I don't know what its like I just get worse every year. Could it be the worry from the maybe not a MS diagnosis and the lumbar jab that's made you this way? I have found a trend with my MS that it was triggered by stress in the first place and could this be your worries and stress over your last letter etc. It certainly wouldn't do you any good! I hope it is just that and you feel better when they have sorted out your illness and give you a definitive diagnosis which I do hope they can give you and at least you will then know what you are suffering from. It's so hard sometimes my friend but we just have to go with the flow as we can't change things.
I wish you both a Happy New Year and a positive progress for us all.
Adrian 🙂
Thanks Adrian, strangely I don’t feel overly worried because I’m still pretty sure it’s MS. Another subscriber touched upon an interesting theory, one I thought of myself also. Change in diet over Christmas?. As a rule my diet is pretty consistent with little change, then Christmas happened. It’s possible as my symptoms sometimes respond to simply having a meal. Clutching at straws a little, but it helps me get through.
I’m really sorry you’re feeling so bad. I hope the lumbar puncture will go smoothly and give you some answers. Have the doctors given you any clues about other possible diagnoses that you could be looking at besides MS? Since steroids seem to help for awhile, how often is it safe for you to have them again?
Thanks Amber, no clues I’m afraid. I’m allowed to have steroids three times in twelves months evenly spaced apart.
I'm so sorry it's gone downhill since we last talked. I really hope that things can look up again soon. -Ana
Thank you Ana 🙏
I’ve found ms to have an ebb and flow I haven’t been able to nail it down I have learned to enjoy the good days and I watch movies or Utube on other days It makes it hard to make plans Perspective is Everything in ms Try to count all the abilities you still have now Put on your wedding song and slow dance with beautiful Teresa
SummerLady but buyback
Hi Neil, sorry your feeling bad. Neil I know you have had a MRI have you ever had a DAT scan or a SPECT scan. It is very hard to accept.
Hi Paul, no I’ve only ever had the MRI.
Hang in there Neil, you look like you have MS legs, especially the left leg. If they saw spots, then they're in there still, they may have gone dark, from not being lit up, say in a flare. They will get to the bottom of it.
Find something that helps with the discomfort MS causes?
Thanks Jared, yes I do this and find distractions are a very good help. I play an online role playing game called Runescape, it requires lots of thought and concentration which is definitely good at distracting me. Unfortunately I don’t find medication very helpful and prefer to take as little as possible.
I've been watching your channel, and I too have Ms and your the only one that has the same symptoms I have ,I would like to talk and compare notes on what you and I have tried, I'm on Facebook
Hi Chris, thank you for your message. I'm very interested to hear about your symptoms and how you cope also. We can either chat on here, or if you prefer search for "neil.bradley.37" on Facebook and send me a private message. Regards - Neil.
Are you dizzy sometimes. I'm just wondering because I have a friend who has.ms and.he.has.dizzy spells
Hi Sondra, I don’t suffer with the dizzy episodes as I don’t have MS activity in my brain. People with MS lesions in their brain are more likely to have the dizzy spells, perhaps your friend is like this.
Neil you’re correct. I have lesions on my brain and I have the dizzy spells. As a side note, depending where they are located on the brain can affect things such as memory, thinking, sleep issues, etc.
Here is the video I was talking about
czcams.com/video/qDT-Oum1CV8/video.html
Neil I wondered if you have ever tried acupuncture? I don't know if you have spoke about this before or not. I'm not sure if it would help you or not but could be worth having a read up. Just remember mate every day is a new chance to feel better. Sometimes you have to feel shit so you can wake up and feel an improvement just try not to let yourself have to many shit days in a row. P.s. stop hogging all subscribers 😉
Hey there!! No I've not tried Acupuncture, might be worth doing a bit of research to see if anybody else with MS has tried it with good results. Have you tried it yourself?
You're absolutely right of course, and I do understand where you're coming from about having bad days. I find myself looking for the slightest little improvement, and although (at the moment) it doesn't happen very often, it does. In fact, I really pushed myself today with the same old stiff legs and back, hardly able to take steps but I did what I set out to do.. I also think to gain that sense of achievement is really important. The only thing is, these are things I could do with my eyes shut ten years ago, not so much now though.
Ah-ha You're little comment about subscribers really made me smile .. I actually read this message at 4am this morning and then started to check out your channel. I REALLY like your videos, you just say it as it is, keeping it very real. I notice also that you've only recently started up, so I'd like to wish you luck.. the first 100 subs are the hardest.
Oh and by the way, you now have a new subscriber - ME!! Looking forward to your next video :)
All the best - Neil.
@@NeilBradleyMS thanks for the response mate. Glad you saw the fun in my p.s comment 😏.
Personally I haven't tried acupuncture but when you were saying about the stiffness in your back and legs it got me wondering if this would help with the stiffness. I have seen some reports of MS and acupuncture so it would be worth having a look I think.
I haven't had a relapse for sometime now but I am very lucky as nearby there is a MS therapy center and they have a oxygen therapy chamber so if I was to relapse I would see about getting in that straight away. Oxygen therapy is supposed to fantastic for all kinds of recovery so that could also be something for you to look into but I don't know how easy it is to find places with a chamber.
I do hope you start to feel better soon mate and I look forward to seeing the videos when you do.
All the best to you and your family for 2019 and thanks for the sub 🧡🎗️👍
I tried acupuncture hoping for relief but I didn’t feel any. Everyone is different though so I don’t wanna dissuade others from giving it a go. The pain signals of needle insertion in my legs and back, which is minimally painful, kept going astray and I felt them in places no needles should ever go in my nether regions. Damned MS eliminated anything resembling a sex life and it’s hard on a marriage. Stay strong guys. We can do this!
You should look up the MS Gym on all platforms, You tube, Instagram, and Facebook (preferably) and go to www.exercisewithms. com. It'll help greatly.
The Facebook community is also the greatest most positive supportive community online, I can also tell you that your knee problem is more of a hip and pelvic floor problem. Download the hip flexor guide from the website I shared or if you join the free Facebook group there's videos in there that show you how to help
Hi Tim, I have done and I’ve been watching some of the videos this afternoon. I think you’re right about my knee problems, I also feel weakness in my hips. I’m already planning to try some of the exercises to strengthen my hip flexors. Cheers👍
That's wonderful to hear, I can't stress enough about how impactful Trevor Wicken is with his knowledge and teaching with MS movement and how to correct it. I've been apart of the MS Gym since December'17, and I can honestly say I've regained so much that I thought I lost forever.
That’s brilliant Tim, I’m trying so hard to keep mobile but sometimes I feel like I’m fighting a loosing battle. I’ve subbed to his channel.
Another thing, there's great motivation talks available on iTunes and podbean under the MS gym. They are worth a listen.