I was asked about my experiences with fludrocortisone (aka florinef)...for me the combination of high dose florinef and ivabradine (a heart rate med that doesn't affect blood pressure) is wonderful!
Thanks heaps for this. I have been on this med for 3 months now too and am not dizzy nor passing out due to my extremely low Blood pressure. I am on 2 tablets each day one morning and one after lunch. No side effects so it’s great for me. Cheers Shirley from SWAustralia ☘️👍❤️
Ahh thank you for making this video! It's really interesting to hear about someone else's experiences with it. I have POTS too and am on 50 micrograms of Fludro which I've been on for a week and it's not going well at all so far! I feel horrible on it. Glad it seems to work for you though x
Hey fluffy beetle. I am still on both, though we've just reduced the doses slightly as its caused my BP (which is stupid and labile and unpredictable and does this anyways) to stay too high. So now I'm on 5mg of the ivab morning and night, and 50mcg (0.5mg) fludro morning and night. I can't actually remember how long it too to see a significant difference...must have been a month or two...it just seemed to work a bit different for me as I've had no swelling or oedema. Hope it works for you!
I'm on Florinef for POTS , my blood pressure is not low I just have very rapid heart rate fatigue lightheadedness nausea… I'm pretty debilitated if I stand or walk too long I have to lay down I also have MCAS , Starting this med has made me gain lots of water retention and I'm pretty grumpy it's hard to say if this is my MCAS causing me to act this way.... or if my body will adjust to this medicine? I do not know
i found this video because i wanted to see the side effects of fludrocortisone. I've been on it for like 1 month and yes i too get chest pains!! but i also get confusion sometimes does that happened to you?
I'm also investigating side effects. My thought is if these drugs aren't going to get me to a high level of functioning then the risks outweigh the benefits.
Thanks heaps for this. I have been on this med for 3 months now too and am not dizzy nor passing out due to my extremely low Blood pressure. I am on 2 tablets each day one morning and one after lunch. No side effects so it’s great for me. Cheers Shirley from SWAustralia ☘️👍❤️
Ahh thank you for making this video! It's really interesting to hear about someone else's experiences with it. I have POTS too and am on 50 micrograms of Fludro which I've been on for a week and it's not going well at all so far! I feel horrible on it. Glad it seems to work for you though x
Thanks for posting!
Are you still on both of these?
Hey fluffy beetle.
I am still on both, though we've just reduced the doses slightly as its caused my BP (which is stupid and labile and unpredictable and does this anyways) to stay too high. So now I'm on 5mg of the ivab morning and night, and 50mcg (0.5mg) fludro morning and night. I can't actually remember how long it too to see a significant difference...must have been a month or two...it just seemed to work a bit different for me as I've had no swelling or oedema.
Hope it works for you!
A few more questions:
How much Florinef are you on?
How long did it take to make a significant difference?
Thanks Heaps :)
I'm on Florinef for POTS , my blood pressure is not low I just have very rapid heart rate fatigue lightheadedness nausea… I'm pretty debilitated if I stand or walk too long I have to lay down I also have MCAS , Starting this med has made me gain lots of water retention and I'm pretty grumpy it's hard to say if this is my MCAS causing me to act this way.... or if my body will adjust to this medicine? I do not know
i found this video because i wanted to see the side effects of fludrocortisone. I've been on it for like 1 month and yes i too get chest pains!! but i also get confusion sometimes does that happened to you?
I'm also investigating side effects. My thought is if these drugs aren't going to get me to a high level of functioning then the risks outweigh the benefits.
Thhhhhppppppt!
Mam,can u help me,pls,I need your help,how I buy this medicine florinef,pls mam help me,pls help me
Go to goldpharma.cn
Its an online pharmacy in Germany, I buy my medicines from them they dont need prescription so its great.