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Thanks heaps for this. I have been on this med for 3 months now too and am not dizzy nor passing out due to my extremely low Blood pressure. I am on 2 tablets each day one morning and one after lunch. No side effects so it’s great for me. Cheers Shirley from SWAustralia ☘️👍❤️

Mam,can u help me,pls,I need your help,how I buy this medicine florinef,pls mam help me,pls help me

i found this video because i wanted to see the side effects of fludrocortisone. I've been on it for like 1 month and yes i too get chest pains!! but i also get confusion sometimes does that happened to you?

I'm on Florinef for POTS , my blood pressure is not low I just have very rapid heart rate fatigue lightheadedness nausea… I'm pretty debilitated if I stand or walk too long I have to lay down I also have MCAS , Starting this med has made me gain lots of water retention and I'm pretty grumpy it's hard to say if this is my MCAS causing me to act this way.... or if my body will adjust to this medicine? I do not know

Hello Kate. I need your help. I prosume you live in the UK...hopefully. I have a dog who is suffering from the Addissons desease and I live in Portugal. Here they don´t sell the Fludrocortisone 0.1mg that I need for my Fanny. So I can order it from the UK but they need a prescribtion from the UK. I have only the prescription from my Vet and need any help. They used to sell it in Spain but now they have a production stop. Can you help me? Please contact me on my Facebook A Casota Do Touche or anacristina1971@hotmail.com. I am really desperate because without Fludrocortisone 0.1mg my dog will die.

Thhhhhppppppt!

Hey fluffy beetle. I am still on both, though we've just reduced the doses slightly as its caused my BP (which is stupid and labile and unpredictable and does this anyways) to stay too high. So now I'm on 5mg of the ivab morning and night, and 50mcg (0.5mg) fludro morning and night. I can't actually remember how long it too to see a significant difference...must have been a month or two...it just seemed to work a bit different for me as I've had no swelling or oedema. Hope it works for you!

A few more questions: How much Florinef are you on? How long did it take to make a significant difference? Thanks Heaps :)

Thanks for posting! Are you still on both of these?

Thank you for uploading this! Can you recommend any exercises for core muscles? Thanks in advance :)

Wow! This is going to be extremely helpful. I've been doing a very limited amount of non-standing exercises, these ideas will really help :)

Australia also has Emergency ID Australia if you wanted to take a look at the LARGEST range in Australia. Great options for young people :-) Also can be found on Facebook!

Good work out thanks

Great work out for POTS thanks alot its been helping me

Ahh thank you for making this video! It's really interesting to hear about someone else's experiences with it. I have POTS too and am on 50 micrograms of Fludro which I've been on for a week and it's not going well at all so far! I feel horrible on it. Glad it seems to work for you though x

What about pool exercises for people with POT's? I get overheated very easily and the pool tends to keep me cool. Would love some suggestions!

@hotsypotsymamaof2 i made a video reply for you, hope it helps! fludro (in high doses) has been my wonder drug which is kinda weird since i have more of a hyperPOTS but yeah, fludro and ivabradine r my wonder drugs :-) hope it works for u too, or u find something that works good soon!!

@ThorDogk9: Indeed!

My main concern with the proliferation of information is that not all of it is medically sound and that a lot of the info in journals is quite complex if you don't come from that background and can be easily misinterpreted. Plus the whole just because it works for one person doesn't mean it will work for others issue. As a group we also tend to have multiple comorbities that complicate the picture and vlogs/blogs and forum posts are simple a snapshot of a complex individual profile.

Hi Kate, well said. I think we often get so caught up in the maelstrom of wanting information, treatment etc that like you said, we forget to live. I know early on I was so focused on Bob that life was passing me by. Now I deal with it when I have to, like now, and the rest of the time I try to just find the joy in life. It's a chronic condition with no easy fix and you can drive yourself nuts searching. It's a hard balance to maintain, but a very important one. :)

It's the big picture. I do respect that people want to know varying amount of info. I so really do understand how important a diagnosis is, I just worry sometimes that people get so caught up in that that they (myself included sometimes) forget to live.

I appreciate your view on POTS and I do not wish to change that. I personally though think it is very imporant to know what type of POTS a person has, because treatment is different for each type. I feel there is nothing wrong with having either view, if you feel happy no knowing the cause, then this works for you and no-one needs to challenge that. Flipside of that is, if others need to know what type they have and seek information this should be respected also, like your view is respected.

not florinef, since im not on it hehe. thinking it may be dihydroergotamine! the evils of POTS meds i tell u! make me functionable but kill off my liver!

which drug seems to be causing problems? Is it the florinef? My doctor told me that they do not like to use it longterm :S