What childhood dementia takes from kids

Childhood dementia takes so much from kids like Noah. It's caused by over 70 genetic conditions that have attracted little research, attention or action. Childhood dementia is progressive. The brain is damaged more and more. Children progressively lose skills they’ve already developed such as the ability to write, read, learn, talk, walk and play. Their brains also lose the ability to keep the body functioning properly and, eventually, to keep the body alive. Most children with dementia sadly die before they reach adulthood.
Childhood dementia is sometimes referred to as 'childhood Alzheimer's'. The signs and symptoms are similar to Alzheimer's disease, and so this name is used to help people quickly understand the challenges kids with dementia can face. While ‘Alzheimer’s’ and ‘dementia’ are often colloquially used interchangeably, many people don’t know that Alzheimer’s disease is actually a specific disease and the most common cause of dementia in adults. There are over 70 genetic conditions that cause dementia in childhood.
Childhood Dementia Initiative is a for-purpose organisation established in 2020 to transform research, care and policy responses for all children with dementia so that they may live long and fulfilling lives.
Learn more, get involved or donate here: www.childhooddementia.org
If your family is impacted by childhood dementia, we have information for you here:
www.childhooddementia.org/for...
If you are a health professional and would like to learn more about childhood dementia, please visit:
www.childhooddementia.org/pro...
If you are a researcher and would like to learn more, get the latest information and collaborate with other researchers, please visit: www.childhooddementia.org/joi...
You can learn more about childhood dementia here: www.childhooddementia.org/wha...
You may also like to watch our 3-min explainer video: • What is Childhood Deme...
You can also join the movement changing the world for children with dementia here:
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