FSHD 101 - What causes FSHD? With Matt Harms, MD

From the 2020 FSHD Connect Classroom conference. Dr. Matthew Harms of Columbia University Medical Center provides a lucid explanation of the genetic mechanism underlying FSH muscular dystrophy. For more information, visit www.fshdsociety.org.

[@2SeriouslyLaughing]

Thank you Dr Harms! You are the first person, that has been able to break down this complicated information, into a way I can understand! We are so close.... and to learn that we are really looking at three DIFFERENT targeted areas and within each of those three, to have so many researchers/pharms targeting possibilities... that is truly uplifting. THANK YOU!!!!

[@ChingLiAAA]

This is the most clear explanation I have ever heard! Thank you very much!!!!!!

[@oludareolayiwola307]

Thanks for this clear explanation Dr Harms!

[@lucky84036]

Stunning explanation sir loved it the way u explained🙏🏼🙏🏼🙏🏼🙏🏼

[@neerajsinghbjpnetalucknow2793]

Thainks You So Much❤❤❤

[@poonamghai6374]

Thank you.Good explanation.

[@acarnack7272]

Great explanation. Thank you!

[@ozgegundogdu6388]

That was amazing.

[@pablomontagna2502]

Thank you!!

[@ginaesrar9945]

Cannabis combined with a multi-disciplinary approach can restore lost muscles, movement, and strength in FSHD.

[@henningmolstad6462]

Hi. I have a friend who has FSHD2. I have been following the research of David Sinclair and other highly respected scientists om longevity and autophagy. A lot of this research shows that it can be possible to turn on or of genes throug lifestyle-choises. Fasting, Hiit-training, heat/cold exposure.. and allso through the use of Reservatrol and to increase the level of NAD in the body by taking NMN (NAD+). What are your thoughts on this. If following this path,do you think it can be possible to slow down the procss or even fix this problem??

[@mauricebaldizzone7210]

I notice a reduction in pain when taking cold water baths. Increase pain when doing heavy exercises. And i am hearing this more from other FSHD2 patients

[@ch.wey.4406]

All the knowledge and still not even a start of something.. no solution... damn annoying and frustrating....

[@jared0379]

GREAT NOW CURE IT SMARTY PANTS!!!