A Mother's Journey With Babies' Kidney Disease: Navigating Uncertainty. DKW Podcast Ep 111.

In this moving episode, Rajinder shares her journey as a parent of a baby with Kidney Disease, starting from a complicated pregnancy to facing the challenges of a son with failing kidneys. The lack of support and empathy during difficult pregnancies is discussed, highlighting the need for better emotional guidance during such times. Rajinder and her husband navigated tough decisions to give their baby the best chance at life despite medical team dismissal. The traumatic birth experience and the subsequent NICU journey filled with uncertainty and fear are detailed, showcasing the family's strength in facing their baby's health struggles. Despite the challenges, Milo showed resilience in coping with dialysis from a young age. This episode sheds light on the importance of support and understanding in navigating complex pregnancies and health challenges.
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infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
infokid.org.uk/
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: [e-mail]
• Tel: [phone]
• Facebook: kidneycareuk.org
• Instagram: @kidneycareuk
• CZcams: / @kidneycareuk
To sign up to receive the Kidney Matters Quarterly Magazine Email: [e-mail]
Disclaimer: The views and opinions expressed on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK
Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
00:00:00 Content Warning & Introduction
00:04:18 A Life-changing scan
00:14:05 The Choice of a Medical Termination
00:15:30 Seeking Support
00:24:16 Meeting with Specialists
00:35:12 The Birth Experience
00:36:54 Arrival in NICU
00:38:31 Emotional Reflections
00:39:40 First Encounter in NICU
00:41:08 Hour-by-hour Tension
00:43:33 Fear and Uncertainty
00:47:03 Start of Dialysis
00:48:15 Coping with Dialysis
00:49:28 Delay and Catch-up
00:50:33 Resilience of Children
00:51:08 Advice for Health Professionals
00:51:45 Personalised Support Needed
00:54:40 Advice for Parents Receiving News
00:57:25 Transition to Transplant
01:00:17 Impact of New Kidney
01:02:23 Milo's Stability Post Transplant
01:06:28 Transplant as Treatment
01:08:15 Resources for Support
01:09:53 Advocacy and Questioning
01:12:38 Conclusion and Call to Action